363 results on '"Wolfe, Joanne"'
Search Results
2. Parent and Adolescent Perspectives on the Impact of COVID on the Care of Seriously Ill Children
3. Symptoms and Suffering at End of Life for Children With Complex Chronic Conditions
4. “We're Performing Improvisational Jazz”: Interprofessional Pediatric Palliative Care Fellowship Prepares Trainees for Team-Based Collaborative Practice
5. Clinician Identified Barriers and Strategies for Advance Care Planning in Seriously Ill Pediatric Patients
6. A Stakeholder-Driven Qualitative Study to Define High Quality End-of-Life Care for Children With Cancer
7. Engaging Parents of Children Who Died From Cancer in Research on the Early Grief Experience
8. Hospital or Home? Where Should Children Die and How Do We Make That a Reality?
9. Impact of Specialized Pediatric Palliative Care: A Systematic Review
10. Improving family grief outcomes:A scoping review of family-based interventions before and after the death of a child
11. Challenges and Priorities for Pediatric Palliative Care Research in the U.S. and Similar Practice Settings: Report From a Pediatric Palliative Care Research Network Workshop
12. Development of a Pediatric Palliative Care Curriculum and Dissemination Model: Education in Palliative and End-of-Life Care (EPEC) Pediatrics
13. Pediatric Palliative Care in the Multicultural Context: Findings From a Workshop Conference
14. Patterns and Outcomes of Care in Children With Advanced Heart Disease Receiving Palliative Care Consultation
15. Tumor Talk and Child Well-Being: Perceptions of “Good” and “Bad” News Among Parents of Children With Advanced Cancer
16. Status of Palliative Oncology Care for Children and Young People in Sub-Saharan Africa: A Perspective Paper on Priorities for New Frontiers
17. Disparities in parental distress in a multicenter clinical trial for pediatric acute lymphoblastic leukemia
18. Parent Priorities in End-of-Life Care for Children With Cancer
19. Medical and End-of-Life Decision-Making Preferences in Adolescents and Young Adults with Advanced Heart Disease and Their Parents
20. Quality of Life in Children With Advanced Cancer: A Report From the PediQUEST Study
21. End-of-Life Care Patterns Associated with Pediatric Palliative Care among Children Who Underwent Hematopoietic Stem Cell Transplant
22. Advance Care Discussions: Pediatric Clinician Preparedness and Practices
23. Parent Outlook: How Parents View the Road Ahead as They Embark on Hematopoietic Stem Cell Transplantation for Their Child
24. Feasibility of Conducting a Palliative Care Randomized Controlled Trial in Children With Advanced Cancer: Assessment of the PediQUEST Study
25. Prevalence and Impact of Financial Hardship among New England Pediatric Stem Cell Transplantation Families
26. Long-Term Psychosocial Outcomes Among Bereaved Siblings of Children With Cancer
27. A multisite randomized controlled trial of an early palliative care intervention in children with advanced cancer: The PediQUEST Response Study Protocol
28. Economic Impact of Advanced Pediatric Cancer on Families
29. Regional adaptation of the education in palliative and end‐of‐life Care Pediatrics ( EPEC‐Pediatrics ) curriculum in Eurasia
30. Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications
31. Achieving Global Pediatric Palliative Care Equity—What We Have Yet to Learn
32. Goals of Surgical Interventions in Youths Receiving Palliative Care.
33. End-of-life experience of children undergoing stem cell transplantation for malignancy: parent and provider perspectives and patterns of care
34. Family Caregiver Perspectives on Symptoms and Treatments for Patients Dying From Complications of Cystic Fibrosis
35. Caregiver Perspectives on Discussions About the Use of Intensive Treatments in Cystic Fibrosis
36. Fatigue in Children with Cancer at the End of Life
37. Prioritization of Pediatric Palliative Care Field-Advancement Activities in the United States: Results of a National Survey
38. Looking Beyond Where Children Die: Determinants and Effects of Planning a Child's Location of Death
39. To Disclose or Not to Disclose: A Case Highlighting the Challenge of Conflicts in Pediatric Disclosure
40. Definitely Mixed Feelings: The Effect of COVID-19 on Bereavement in Parents of Children Who Died of Cancer
41. Parent Perceptions of Team-Delivered Care for Children With Advanced Cancer: A Report From the PediQUEST Study
42. Weighing Distress and Benefit: Understanding the Research Participation Experiences of Bereaved Parents of Children With Complex Chronic Conditions
43. Spanish Adaptation of the Pediatric Memorial Symptom Assessment Scale for Children, Teens, and Caregivers
44. Parental Perceptions of Hospital-Based Bereavement Support Following a Child's Death From Cancer: Room for Improvement
45. Relationship Between Household Material Hardship and Distress in Parents of Children with Advanced Cancer: A Report from the PediQUEST Response Trial (T315A)
46. Too Much or Not Enough: Decisional Regret in Parents of Children Who Died from Cancer (SCI960)
47. Despite Prognostic Awareness and Advance Care Planning Parents Feel Unprepared at End of Life for Children with Complex Chronic Conditions (RP420)
48. What Defines High Quality End-of-Life Care for Children with Cancer? A Stakeholder-Driven Qualitative Study (GP706)
49. Personal Spirituality and Perceived Importance of Discussing Spirituality Among Parents of Children with Cancer, Pediatric Oncologists, and Psychosocial Clinicians (RP422)
50. Poly-Symptomatology in Pediatric Palliative Care Patients: Baseline Evaluation of SHARE Parent-Reported Data (RP409)
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