74 results on '"Innes, Anthea"'
Search Results
2. Cultural Myths, Superstitions, and Stigma Surrounding Dementia in a UK Bangladeshi Community
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Hussain, Nazmul, primary, Clark, Andrew, additional, and Innes, Anthea, additional
- Published
- 2024
- Full Text
- View/download PDF
3. Exploring the impact of live music performances on the wellbeing of community dwelling people living with dementia and their care partners
- Author
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Smith, Sarah Kate, Innes, Anthea, and Bushell, Sophie
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- 2021
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- View/download PDF
4. Self-reported benefits for care partners of attending a person-centred dementia cafe
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Chesterton, Lorna, Innes, Anthea, Smith, Sarah K, Morris, Lydia, Chesterton, Lorna, Innes, Anthea, Smith, Sarah K, and Morris, Lydia
- Abstract
Informal care partners of individuals with dementia are often referred to as the ‘invisible patient’, whose needs are under-represented in research. The physical, mental and emotional responsibilities of caring for someone with dementia can be both rewarding and challenging. This qualitative study explored how attending a dementia cafe affected care partner well-being. The co-designed cafe adopted a person-centred approach, valuing members’ unique abilities and contributions. Results showed that the cafe provided a safe environment where individuals could be themselves. Participants found a sense of belonging, camaraderie and friendship that enhanced their sense of well-being and maintained their selfhood and dignity.
- Published
- 2022
5. Dementia Friendly Care: Methods to Improve Stakeholder Engagement and Decision Making
- Author
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Innes,Anthea, Smith,Sarah Kate, and Bushell,Sophie
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Journal of Healthcare Leadership ,mental disorders - Abstract
Anthea Innes, Sarah Kate Smith, Sophie Bushell Salford Institute for Dementia and Ageing, School of Health and Society, University of Salford, Salford, UKCorrespondence: Anthea InnesSalford Institute for Dementia and Ageing, The Dementia Hub, School of Health and Society, University of Salford, Salford, UK, M6 6PU Tel +44 0161 295 2363Email a.innes1@salford.ac.UkAbstract: Dementia friendly (DF) is a term that has been increasingly used in the international literature to describe approaches that include and involve people living with dementia within their communities and wider society. How to support the involvement of people living with dementia to achieve dementia friendly care or support outcomes is an area that has begun to receive attention. We begin by introducing the concept of dementia friendly, the policy context and what has already been evidenced via prior reviews and conceptual discussions. We conducted a systematic review following PRISMA guidelines, resulting in the inclusion of nineteen papers that reported on the methods and approaches used to involve people living with dementia in achieving dementia friendly or supportive care outcomes. Five primary themes were identified: the potential of group-based activities to facilitate inclusion and engagement; achieving engagement in decision making; the value of developing tools to help service providers to engage those living with dementia in care decisions; the role of awareness raising and education to support the inclusion of a range of stakeholders in achieving DF support and care outcomes; the need for cultural and contextual sensitivity when seeking to engage stakeholders to achieve positive care outcomes. We conclude by considering how both the underpinning ethos of social citizenship and social inclusion need to be in place alongside a range of approaches that are adapted to fit local contexts and needs to enable the involvement of people living with dementia in achieving dementia friendly care outcomes.Keywords: people living with dementia, involvement, supportive communities, inclusive, social citizenship
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- 2021
6. Analyzing Mobility Patterns of Older Adults with Dementia Using GPS Technology
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Banihashemi, M. Amin, Sapkota, Shraddha, Bronskill, Susan E., Stuss, Donald T., Black, Sandra E., Bayat, Sayeh, Naglie, Gary, Rapoport, Mark, Ye, Bing, Stasiulis, Elaine, Mihailidis, Alex, Maxwell, Selena P., Cash, Meghan K., Darvesh, Sultan, Teper, Matthew Hacker, Hudon, Catherine, Vedel, Isabelle, Yang, Xin Qiang, Khanassov, Vladimir, Guseva, Elena, Lungu, Ovidiu, Goldman, Sondra, Wilchesky, Machelle, Tam, Angela, Dansereau, Christian, Itturia-Medina, Yasser, Urchs, Sebastian, Orban, Pierre, Breitner, John, Bellec, Pierre, Benhajali, Yassine, Spiers, Helen, Badhwar, AmanPreet, Trouille, Laura, Wallace, Lindsay, Theou, Olga, Godin, Judith, Rockwood, Kenneth, Andrew, Melissa, Starblanket, Danette, Bourassa, Carrie, Godard-Sebillotte, Claire, Sourial, Nadia, Rochette, Louis, Hardouin, Marine, Pelletier, Eric, Strumpf, Erin, Ruthirakuhan, Myuri, Herrmann, Nathan, Andreazza, Ana C., Gallagher, Damien, Verhoeff, Nicolaas Paul L.G., Lanctôt, Krista L., Trenaman, Shanna C., Andrew, Melissa K., Goralski, Kerry B., McLean, Allen, Morgan, Debra, Kosteniuk, Julie, O’Connell, Megan, Bayly, Melanie, Chow, Amanda Froehlich, Elliot, Valerie, Osgood, Nathaniel, Collin-Verreault, Yannik, Chouinard, Isabelle, Vogel, Jacob, Potvin, Olivier, Duchesne, Simon, Mirza, Saira Saeed, Ramirez, Joel, Lanctôt, Krista, Masellis, Mario, Kozyrev, Natalie, Albers, Shawn, Yang, Jennifer, Prado, Vania F., Rylett, R. Jane, Dekaban, Gregory A., McFall, G. Peggy, Dieumengarde, Louis, Drouin, Shannon, Camicioli, Richard, Dixon, Roger A., Adlimoghaddam, Aida, Perez, Claudia, Stortz, Greg, Djordjevic, Jelena, Snow, Wanda M., Goertzen, Andrew L, Ko, Ji Hyun, Albensi, Benedict C, Watson, Erin, Osman, Meric, Osman, Beliz Acan, O’Connell, Megan E., Kirk, Andrew, Stewart, Norma, Cammer, Allison, Innes, Anthea, Smith, Eric E., Barber, Philip A., Field, Thalia S., Frayne, Richard, Ganesh, Aravind, Hachinski, Vladimir, McCreary, Cheryl R., Pantoni, Leonardo, Sahlas, Demetrios J., Sharma, Mukul, Swartz, Richard H., Corbett, Dale, Yamin, Stéphanie, Vrkljan, Brenda, Tuokko, Holly, Sanford, Sarah, Porter, Michelle, Polgar, Jan, Myers, Anita, Moorhouse, Paige, Molnar, Frank, Mazer, Barbara, Marshall, Shawn, Gélinas, Isabelle, Crizzle, Alexandra, Byszewski, Anna, Belchior, Patricia, Bédard, Michel, Liu, Lili, Hollinda, Kara, Kaufman, David, Astell, Arlene, Daum, Christine, Stewart, Norma J., Seitz, Dallas, Holroyd-Leduc, Jayna, Daku, Jean, Hack, Tracy, Hoium, Faye, Kennett-Russill, Deb, Sauter, Kristen, Bronskill, Susan, Etches, Jacob, Guthrie, Dawn M., Williams, Nicole, Campos, Jennifer, Mick, Paul, Orange, Joseph B., Pichora-Fuller, M. Kathleen, Phillips, Natalie A., Savundranayagam, Marie, Wittich, Walter, Arsenault-Lapierre, Genevieve, Bergman, Howard, Tadley, Jaspaul, Buzatto, Adriana Zardini, Mung, Dorothea, Bajwa, Barinder, and Li, Liang
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Abstracts ,CCNA Investigator Abstracts ,I. Masters Students ,III. Postdoctoral Fellows ,II. MD, MD/PhD, or PhD Students - Published
- 2019
7. From repeating routes to planning novel routes:the impact of landmarks and ageing on route integration and cognitive mapping
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Grzeschik, Ramona, Conroy-Dalton, Ruth, Hilton, Christopher, Konovalova, Irma, Cotterill, Ella, Innes, Anthea, Wiener, Jan, Grzeschik, Ramona, Conroy-Dalton, Ruth, Hilton, Christopher, Konovalova, Irma, Cotterill, Ella, Innes, Anthea, and Wiener, Jan
- Abstract
The integration of intersecting routes is an important process for the formation of cognitive maps and thus successful navigation. Here we present a novel task to study route integration and the effects that landmark information and cognitive ageing have on this process. We created two virtual environments, each comprising five places and one central intersection but with different landmark settings: in the Identical Landmark environment, the intersection contained visually monotonic features whereas the intersection contained visually distinctive features in the Different Landmarks environment. In both environments young and older participants were presented with two short routes that both traversed through the shared intersection. To test route integration, participants were asked to either repeat the learning routes, to navigate the routes from the destination to the starting place or to plan novel routes. As expected, results demonstrate better performance when repeating or retracing routes than when planning novel routes. Performance was better in younger than older participants and in the Different Landmark environment which does not require detailed knowledge of the spatial configuration of all places in the environment. A subgroup of the older participants who performed lower on a screening test for cognitive impairments could not successfully complete the experiment or did not reach the required performance criterion. These results demonstrate that strategically placed landmarks support the integration of route knowledge into spatial representations that allow for goal-dependent flexible navigation behaviour and that earliest signs of atypical cognitive ageing affect this process of route integration.
- Published
- 2021
8. (Dis)orientation and Design Preferences Within an Unfamiliar Care Environment: A Content Analysis of Older Adults’ Qualitative Reports After Route Learning
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O’Malley, Mary, primary, Innes, Anthea, additional, and Wiener, Jan M., additional
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- 2020
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9. (Dis)orientation and Design Preferences Within an Unfamiliar Care Environment: A Content Analysis of Older Adults' Qualitative Reports After Route Learning.
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O'Malley, Mary, Innes, Anthea, and Wiener, Jan M.
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OLDER people , *CONTENT analysis , *OPEN-ended questions - Abstract
Ensuring that environments are designed to cater for those with decreasing orientation, perceptual and mobility skills, is an example of how environments are being changed to become more age and dementia friendly. However, environmental design should directly involve potential users of the environment to ensure that their views are accounted for. Four open-ended questions, focusing on orientation strategies, reasons for disorientation, and design preferences, were given to 32 older adults after they had completed a route learning task through an unfamiliar environment. A Content Analysis found a strong focus on participants' ability to memorize routes based on verbally encoding the route and on their ability to remember landmarks, with the reports linking closely to cognitive theories of navigation. Design suggestions included the importance of a homely and welcoming environment, memorable features, and access to the outdoors. The findings can be used inform age and dementia friendly design principles. [ABSTRACT FROM AUTHOR]
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- 2022
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10. Assistive technologies to address capabilities of people with dementia: from research to practice
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Kenigsberg, Paul-Ariel, Aquino, Jean-Pierre, Charras, Kevin, Dening, Tom, Gzil, Fabrice, Hicks, Ben, Innes, Anthea, Nguyen, Mai, Pino, Maribel, Sacco, Guillaume, Salmon, Eric, Villez, Marion, Robert, Philippe, and Manera, Valeria
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dementia, assistive technologies, capabilities, empowerment, assessment, ethics, human rights, psychosocial model of disability, public policies, economics - Abstract
Assistive technologies (AT) became pervasive and virtually present in all our life domains. They can be either an enabler or an obstacle leading to social exclusion. The Fondation Médéric Alzheimer gathered international experts of dementia care, with backgrounds in biomedical, human and social sciences, to analyse how AT can address the capabilities of people with dementia, on the basis of their needs. Discussion covered the unmet needs of people with dementia, the domains of daily life activities where AT can provide help to people with dementia, the enabling and empowering impact of technology to improve their safety and wellbeing, barriers and limits of use, technology assessment, ethical and legal issues. The capability approach (possible freedom) appears particularly relevant in person-centered dementia care and technology development. The focus is not on the solution, rather on what the person can do with it: seeing dementia as disability, with technology as an enabler to promote capabilities of the person, provides a useful framework for both research and practice. This article summarizes how these concepts took momentum in professional practice and public policies in the past fifteen years (2000-2015), discusses current issues in the design, development and economic model of AT for people with dementia, and covers how these technologies are being used and assessed.
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- 2019
11. The Contribution of Visual Attention and Declining Verbal Memory Abilities to Age-related Route Learning Deficits
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Grzeschik, Ramona, Dalton, Ruth, Innes, Anthea, Shanker, Shanti, Wiener, Jan, Grzeschik, Ramona, Dalton, Ruth, Innes, Anthea, Shanker, Shanti, and Wiener, Jan
- Abstract
Our ability to learn unfamiliar routes declines in typical and atypical ageing. The reasons for this decline, however, are not well understood. Here we used eye-tracking to investigate how ageing affects people’s ability to attend to navigationally relevant information and to select unique objects as landmarks. We created short routes through a virtual environment, each comprised of four intersections with two objects each, and we systematically manipulated the saliency and uniqueness of these objects. While salient objects might be easier to memorise than non-salient objects, they cannot be used as reliable landmarks if they appear more than once along the route. As cognitive ageing affects executive functions and control of attention, we hypothesised that the process of selecting navigationally relevant objects as landmarks might be affected as well. The behavioural data showed that younger participants outperformed the older participants and the eye-movement datarevealed some systematic differences between age groups. Specifically, older adults spent less time looking at the unique, and therefore navigationally relevant, landmark objects. Both young and older participants, however, effectively directed gaze towards the unique and away from the non-unique objects, even if these were more salient. These findings highlight specific age-related differences in the control of attention that could contribute to declining route learning abilities in older age. Interestingly, route-learning performance in the older age group was more variable than in the young age group with some older adults showing performance similar to the young group. These individual differences in route learning performance were strongly associated with verbal and episodic memory abilities.
- Published
- 2019
12. Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice
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Dröes, R. M, CHATTAT, RABIH, Diaz, A., Gove, D., Graff, M., Murphy, K., Verbeek, H., Vernooij Dassen, M., Clare, L., Johannessen, A., Roes, M., Verhey, F., Charras, K., van Audenhove, Chantal, Casey, Dympna, Evans, Simon, FABBO, ANDREA, Franco, Manuel, Gerritsen, Debby, Vittoria Gianelli, Marie, Gonςalves Pereira, Manuel, Gzil, Fabrice, van Hout, Hein, Innes, Anthea, Hee Jeon, Yun, Koopmans, Raymond, Kristensen, Fritze, Losada Baltar, Andrés, Mcevoy, Phil, Mchugh, Joanna, Meiland, Franka, Moniz Cook, Esme, Parkes, Jacqueline, Rymaszewska, Joanna, Spruytte, Nele, Surr, Claire, de Vugt, Marjolein, Wolf Ostermann, Karin, Zuidema, Sytse, Psychiatry, APH - Aging & Later Life, APH - Mental Health, APH - Quality of Care, APH - Methodology, RS: CAPHRI - R1 - Ageing and Long-Term Care, RS: Academische Werkplaats Ouderenzorg, Health Services Research, MUMC+: MA Med Staf Spec Psychiatrie (9), RS: MHeNs - R1 - Cognitive Neuropsychiatry and Clinical Neuroscience, Psychiatrie & Neuropsychologie, Dröes, R.M, Chattat, R., Diaz, A., Gove, D., Graff, M., Murphy, K., Verbeek, H., Vernooij-Dassen, M., Clare, L., Johannessen, A., Roes, M., Verhey, F., Charras, K., van Audenhove, Chantal, Casey, Dympna, Evans, Simon, Fabbo, Andrea, Franco, Manuel, Gerritsen, Debby, Vittoria Gianelli, Marie, Gonςalves-Pereira, Manuel, Gzil, Fabrice, van Hout, Hein, Innes, Anthea, Hee Jeon, Yun, Koopmans, Raymond, Kristensen, Fritze, Losada Baltar, André, Mcevoy, Phil, Mchugh, Joanna, Meiland, Franka, Moniz-Cook, Esme, Parkes, Jacqueline, Rymaszewska, Joanna, Spruytte, Nele, Surr, Claire, de Vugt, Marjolein, Wolf-Ostermann, Karin, and Zuidema, Sytse
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Health Knowledge, Attitudes, Practice ,self-management ,social participation ,Alzheimer`s disease Donders Center for Medical Neuroscience [Radboudumc 1] ,Applied psychology ,Social group ,0302 clinical medicine ,ddc:150 ,therapy [Chronic Disease] ,QUALITY-OF-LIFE ,Surveys and Questionnaires ,Health care ,Activities of Daily Living ,030212 general & internal medicine ,effective intervention ,SKILL-BUILDING PROGRAM ,NURSING-HOME RESIDENTS ,RANDOMIZED CONTROLLED-TRIAL ,COGNITIVE STIMULATION THERAPY ,Social engagement ,Europe ,ALZHEIMERS-DISEASE ,Psychiatry and Mental Health ,standards [Social Validity, Research] ,Social competence ,Health education ,Pshychiatric Mental Health ,Psychology ,Consensus ,psychology [Dementia] ,therapy [Dementia] ,FRAIL OLDER-PEOPLE ,03 medical and health sciences ,effective interventions ,COMMUNITY OCCUPATIONAL-THERAPY ,Nursing ,Humans ,Social determinants of health ,Psychiatric Mental Health ,Social health ,Health policy ,Aged ,Operationalization ,psychology [Chronic Disease] ,030214 geriatrics ,business.industry ,capacity ,Social Support ,Social Validity, Research ,FAMILY CAREGIVERS ,Chronic Disease ,Quality of Life ,LONG-TERM-CARE ,Geriatrics and Gerontology ,business ,Gerontology ,dementia - Abstract
Contains fulltext : 170085.pdf (Publisher’s version ) (Open Access) BACKGROUND: Because the pattern of illnesses changes in an aging population and many people manage to live well with chronic diseases, a group of health care professionals recently proposed reformulating the static WHO definition of health towards a dynamic one based on the ability to physically, mentally and socially adapt and self-manage. This paper is the result of a collaborative action of the INTERDEM Social Health Taskforce to operationalize this new health concept for people with dementia, more specifically the social domain, and to formulate directions for research and practice to promote social health in dementia. METHOD: Based on the expertise of the Social Health Taskforce members (N = 54) three groups were formed that worked on operationalizing the three social health dimensions described by Huber et al.: (1) capacity to fulfil potential and obligations; (2) ability to manage life with some degree of independence; (3) participation in social activities. For each dimension also influencing factors, effective interventions and knowledge gaps were inventoried. After a consensus meeting, the operationalizations of the dimensions were reviewed by the European Working Group of People with Dementia (EWGPWD). RESULTS: The social health dimensions could be well operationalized for people with dementia and are assessed as very relevant according to the Social Health Taskforce and EWGPWD. Personal (e.g. sense of coherence, competencies), disease-related (e.g. severity of cognitive impairments, comorbidity), social (support from network, stigma) and environmental factors (e.g. enabling design, accessibility) that can influence the person with dementia's social health and many interventions promoting social health were identified. CONCLUSION: A consensus-based operationalization of social health in dementia is proposed, and factors that can influence, and interventions that improve, social health in dementia identified. Recommendations are made for research and practice.
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- 2017
13. Effects of Cognitive Ageing on Finding and Selecting Reliable Landmarks
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Grzeschik, Ramona, Dalton, Ruth, Innes, Anthea, Wiener, Jan, Grzeschik, Ramona, Dalton, Ruth, Innes, Anthea, and Wiener, Jan
- Abstract
Not every object is a useful landmark when learning routes, be it due to repetitive occurrence or visual appearance. Salient objects might be easier to memorize than non-salient objects, but if they appear more than once along a route, they cannot be used as reliable landmarks. As cognitive ageing affects executive functions and control of attention, we hypothesized that it could also impact on the process of selecting navigationally relevant objects as landmarks. Here we investigated how cognitive ageing affects people’s ability to select unique objects as landmarks when learning novel routes. We created two types of routes through a virtual care home each comprising four intersections each with two objects. On simple routes, the unique landmarks were also salient. On complex routes, in contrast, the salient objects occurred twice, while the non-salient objects were unique. The behavioural data showed that younger participants outperformed the older participants in route learning and the eye-movement data revealed some systematic differences between age groups. Specifically, older adults spent less time attending navigationally relevant information, but both groups effectively directed gaze towards the unique and away from the non-unique objects, even if these were more salient. While the findings highlight differences in control of attention between age groups, we believe that these differences cannot account for the pronounced differences in route learning performance. Instead, we show that individual differences in word list learning and Corsi blocks task performance were predictive for route learning performance in the older, but not the younger, participant group.
- Published
- 2018
14. Technologies to support community-dwelling persons with dementia: a position paper on issues regarding development, usability, effectiveness and cost-effectiveness, deployment, and ethics
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Meiland, Franka, Innes, Anthea, Mountain, Gail, Robinson, Louise, Gove, Dianne, Evans, Shirley, Kelly, Fiona, Kurz, Alexander, Casey, Dympna, Szcze?niak, Dorota, Dening, Tom, Craven, Michael P., Span, Marijke, Felzmann, Heike, Tsolaki, Magda, and Franco-Martin, Manuel
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Ethics ,Technology ,Diffusion of innovation ,Dementia ,Evaluation studies - Abstract
Background: With the expected increase in the numbers of persons with dementia, providing timely, adequate, and affordable care and support is challenging. Assistive and health technologies may be a valuable contribution in dementia care, but new challenges may emerge.Objective: The aim of our study was to review the state of the art of technologies for persons with dementia regarding issues on development, usability, effectiveness and cost-effectiveness, deployment, and ethics in 3 fields of application of technologies: (1) support with managing everyday life, (2) support with participating in pleasurable and meaningful activities, and (3) support with dementia health and social care provision. The study also aimed to identify gaps in the evidence and challenges for future research.Methods: Reviews of literature and expert opinions were used in our study. Literature searches were conducted on usability, effectiveness and cost-effectiveness, and ethics using PubMed, Embase, CINAHL, and PsycINFO databases with no time limit. Selection criteria in our selected technology fields were reviews in English for community-dwelling persons with dementia. Regarding deployment issues, searches were done in Health Technology Assessment databasesResults: According to our results, persons with dementia want to be included in the development of technologies; there is little research on the usability of assistive technologies; various benefits are reported but are mainly based on low-quality studies; barriers to deployment of technologies in dementia care were identified, and ethical issues were raised by researchers but often not studied. Many challenges remain such as including the target group more often in development, performing more high-quality studies on usability and effectiveness and cost-effectiveness, creating and having access to high-quality datasets on existing technologies to enable adequate deployment of technologies in dementia care, and ensuring that ethical issues are considered an important topic for researchers to include in their evaluation of assistive technologies.Conclusions: Based on these findings, various actions are recommended for development, usability, effectiveness and cost-effectiveness, deployment, and ethics of assistive and health technologies across Europe. These include avoiding replication of technology development that is unhelpful or ineffective and focusing on how technologies succeed in addressing individual needs of persons with dementia. Furthermore, it is suggested to include these recommendations in national and international calls for funding and assistive technology research programs. Finally, practitioners, policy makers, care insurers, and care providers should work together with technology enterprises and researchers to prepare strategies for the implementation of assistive technologies in different care settings. This may help future generations of persons with dementia to utilize available and affordable technologies and, ultimately, to benefit from them.
- Published
- 2017
15. Dichotomising dementia: is there another way?
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Mc Parland, Patricia, Kelly, Fiona, Innes, Anthea, Mc Parland, Patricia, Kelly, Fiona, and Innes, Anthea
- Abstract
This article discusses the reduction of the complex experience of dementia to a dichotomised ‘tragedy’ or ‘living well’ discourse in contemporary Western society. We explore both discourses, placing them in the context of a successful ageing paradigm, highlighting the complex nature of dementia and the risks associated with the emergence of these arguably competing discourses. Specifically, we explore this dichotomy in the context of societal understandings and responses to dementia. We argue for an acceptance of the fluid nature of the dementia experience, and the importance of an understanding that recognises the multiple realities of dementia necessary for social inclusion to occur. Such an acceptance requires that, rather than defend one position over another, the current discourse on dementia is challenged and problematised so that a more nuanced understanding of dementia may emerge; one that fully accepts the paradoxical nature of this complex condition.
- Published
- 2017
16. Human rights, citizenship and dementia care nursing
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Kelly, Fiona and Innes, Anthea
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citizenship ,nursing ,human rights ,theory-practice gap ,dementia - Abstract
Background. Human rights and citizenship are concepts widely used in health and social care literature. However, they are applied less frequently and less rigorously in dementia care. This paper briefly presents these concepts before exploring how they have been applied to dementia care policy and practice. We highlight areas of dementia care where human rights can be violated and citizenship can be denied. We suggest reasons why people with dementia can be denied their human and civil rights and discuss how such concepts provide a way to address cultural and practice change in dementia care.Aims and objectives. To demonstrate how these concepts can be used to challengeand improve dementia care nursing.Conclusions. This paper contributes to emerging discussion about dementia carenursing by challenging conventional ways of understanding dementia and the carepractices that result. Taking a rights-based approach allows nurses to examineinequity in services and address poor practice.Implications for practice. Looking at dementia through the lenses of citizenship and human rights provides a way to broaden the scope of contemporary dementia carenursing, to enable nurses to challenge inequity and to develop and improve thedirect nursing care offered to people with dementia.
- Published
- 2013
17. Integrated Knowledge Translation Strategies that Enhance the Lives of Persons with Dementia and Their Family Caregivers.
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Forbes, Dorothy A., Blake, Catherine, Bayly, Melanie, Peacock, Shelley, Hawranik, Pamela, and Innes, Anthea
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PSYCHOLOGY of caregivers ,CONCEPTUAL structures ,DEMENTIA ,HOME care services ,INTERVIEWING ,LONGITUDINAL method ,CASE studies ,MEDICAL cooperation ,PSYCHOTHERAPY patients ,RESEARCH ,RURAL conditions ,DESCRIPTIVE statistics ,FIELD notes (Science) ,PSYCHOLOGY - Abstract
Purpose: To understand the lived experience of persons with dementia and their family caregivers who receive home care in northern Alberta, Canada, and to reveal how integrated knowledge translation (iKT) strategies influence the uptake of best available dementia care evidence over time. Sample: Three persons living with dementia and thirteen family caregivers were interviewed at the beginning of the study, nine months after implementation of the knowledge broker (KB), and six months after termination of the KB role (total interviews = 41). Method: The PARiHS framework guided our longitudinal case study that included two rural home care centres. A qualitative interpretive descriptive approach was used. A KB was hired for 12 months to facilitate the development of different iKT strategies with staff. Site A developed two strategies: 1) a planning meeting to discuss local needs and suggestions for improving access to dementia care information and community supports; and 2) the development of an information package. Site B focused on working through modules of the U-First program that entailed dementia education and training for the home care providers (HCPs). They then used the U-First wheels with clients during their home visits. Findings: Persons living with dementia spoke of both positive and negative aspects of their dementia journey and how they attempted to manage their lives. Family caregivers struggled to find the best approaches and supports to use to enable their family member with dementia to remain at home for as long as possible. iKT strategies such as a KB, the information resource package developed by the HCPs, use of the U-First modules and wheels, and a support group were examples of effective iKT. Conclusion: iKT strategies and projects increased access to dementia care information and supports. These assisted caregivers to better care for their family member for longer periods at home. [ABSTRACT FROM AUTHOR]
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- 2018
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18. Incidence and prevalence of dementia in linked administrative health data in Saskatchewan, Canada: a retrospective cohort study
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Kosteniuk, Julie G., primary, Morgan, Debra G., additional, O’Connell, Megan E., additional, Kirk, Andrew, additional, Crossley, Margaret, additional, Teare, Gary F., additional, Stewart, Norma J., additional, Bello-Haas, Vanina Dal, additional, Forbes, Dorothy A., additional, Innes, Anthea, additional, and Quail, Jacqueline M., additional
- Published
- 2015
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19. Dementia Care Evidence: Contextual Dimensions that Influence Use in Northern Home Care Centres
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Forbes, Dorothy, primary, Strain, Laurel, additional, Blake, Catherine, additional, Peacock, Shelley, additional, Harrison, Wendy, additional, Woytkiw, Terri, additional, Hawranik, Pamela, additional, Thiessen, Emily, additional, Woolf, Amy, additional, Morgan, Debra, additional, Innes, Anthea, additional, and Gibson, Maggie, additional
- Published
- 2015
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20. Growing older in Malta. Experiences of British retirees
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Innes, Anthea
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Cultural Studies ,Health (social science) ,media_common.quotation_subject ,Immigration ,Gender Studies ,Body of knowledge ,older people ,Malta Emigration and immigration ,Sociology ,Life history ,lcsh:Social sciences (General) ,Life-span and Life-course Studies ,media_common ,Great Britain Emigration and immigration ,British Malta ,Retirement migration ,Human migration ,business.industry ,Malta ,Field (Bourdieu) ,Gender studies ,retirees ,lcsh:H1-99 ,business ,Older people ,Retirees Great Britain ,Demography - Abstract
International retirement migration (IRM) is attracting increasing research interest. This article reports findings from an exploratory case study of 16 older people who havemoved from theUKto grow older in Malta. Data was collected using in-depth interviews drawing on a life history approach. This article builds on previous research in the IRM field by providing detailed examples of the push and pull factors influencing the decision to move to Malta and the reported positive experiences of living in Malta. The article also discusses negative impressions of life in Malta, an issue that has not been previously documented in relation to Malta. Future difficulties that the immigrants may encounter are also considered. This article contributes to the growing body of knowledge concerning the experience of IRM.
- Published
- 2009
21. Measuring person-centered care : a critical comparative review of published tools
- Author
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Edvardsson, David, Innes, Anthea, Edvardsson, David, and Innes, Anthea
- Abstract
Purpose of the study: To present a critical comparative review of published tools measuring the person-centeredness of care for older people and people with dementia. DESIGN AND METHODS: Included tools were identified by searches of PubMed, Cinahl, the Bradford Dementia Group database, and authors' files. The terms "Person-centered," "Patient-centered" and "individualized" (US and UK spelling), were paired with "Alzheimer's disease," "older people," and "dementia" in various combinations. The tools were compared in terms of conceptual influences, perspectives studied and intended use, applicability, psychometric properties, and credibility. RESULTS: Twelve tools eligible for review were identified. Eight tools were developed for evaluating long-term aged care, three for hospital-based care, and one for home care. One tool, Dementia Care Mapping, was dementia specific. A common limitation of the tools reviewed is that they are yet to be used and validated beyond the development period; thus, their validity, reliability, and applicability needs further exploration. Also, the perspective of people with dementia remains absent. IMPLICATIONS: The review demonstrates the availability of a multitude of tools for measurement of person-centered care in different settings and from different perspectives, even if further testing of the tools is needed. The conceptual underpinnings of the tools are rarely explicit, which makes it difficult to ascertain the conceptual comparability of the tools.
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- 2010
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22. Dementia knowledge transfer project in a rural area
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Stark, Cameron, primary, Innes, Anthea, additional, Szymczynska, Paulina, additional, forrest, lynda, additional, and Proctor, Ken, additional
- Published
- 2013
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23. Evaluation of a dementia training workshop for health and social care staff in rural Scotland
- Author
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Szymczynska, Paulina, primary and Innes, Anthea, additional
- Published
- 2011
- Full Text
- View/download PDF
24. Dementia Care Evidence: Contextual Dimensions that Influence Use in Canadian Northern Rural Home Care Centres.
- Author
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Forbes, Dorothy, Strain, Laurel, Blake, Catherine, Peacock, Shelley, Harrison, Wendy, Woytkiw, Terri, Hawranik, Pamela, Thiessen, Emily, Woolf, Amy, Morgan, Debra, Innes, Anthea, and Gibson, Maggie
- Subjects
CAREGIVERS ,COMMUNITIES ,CONCEPTUAL structures ,DEMENTIA ,FOCUS groups ,HEALTH care teams ,HEALTH services accessibility ,HOME care services ,INTERVIEWING ,MATHEMATICAL models ,RESEARCH methodology ,MEDICAL quality control ,QUALITY assurance ,QUALITY of life ,RESEARCH funding ,RURAL population ,SUPPORT groups ,TEAMS in the workplace ,EVIDENCE-based medicine ,QUALITATIVE research ,THEORY ,PROFESSIONAL practice ,THEMATIC analysis ,ADULT day care ,MEDICAL coding - Abstract
Living and working in isolated northern communities pose challenges in using evidence to inform dementia care. Purpose: To better understand the contextual dimensions of two home care centres in two Canadian northern, rural communities that influence the use of evidence from the perspectives of home care providers (HCPs). Sample: All clinical leaders, managers, and home care providers (n=48 FTE) in the two home care centres were sent an information letter outlining the study's purpose, expectations, and benefits and invited to participate in focus groups conducted in two home care centres. Fourteen staff participated in the two focus groups. Method: A qualitative interpretive descriptive approach was used. Semi-structured questions were used to guide the audiotape recorded focus groups. Transcripts were coded using Lubrosky's thematic analysis. Findings: Findings are described in broad contextual themes (e.g., challenges in using the RAI-HC, availability of resources, relationships in a rural community, leadership, and evaluation) that included both positive and negative contextual dimensions that influenced the use of evidence. Conclusions: Most importantly, reallocated resources are needed in northern home care settings. Challenges in exchanging evidence related to difficult relationships with physicians, clients, and their family caregivers were identified. Leadership and collaboration dimensions were fundamental to establishing a vibrant workplace in which HCPs provided and exchanged evidence-based dementia care. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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- View/download PDF
25. Pharmacotherapeutic aspects of dementia care in Malta.
- Author
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Scerri, Charles, Abela, Stephen, and Innes, Anthea
- Subjects
DEMENTIA patients ,MEDICAL care for older people ,DRUG therapy ,CAREGIVERS ,NEUROTRANSMITTERS ,TREATMENT of neurodegeneration ,LONGEVITY ,DEATH (Biology) ,COGNITIVE ability ,MEDICAL care - Abstract
Dementia is the most common neurodegenerative disorder of old age affecting one percent of the local general population. It is a major predictor of morbidity and mortality in the elderly, adding a significant burden on health and social care systems across Europe. The financial impact of caring for individuals with dementia is considerable and progressive loss of cognitive function does not only pose challenges to the patients but also adds significant strain on the well-being of caregivers and family members. Although no cure is available, disease progression can be delayed by early intervention and by the use of pharmacotherapeutic agents that interfere with central neurotransmitter systems involved in cognitive processes. This review presents current trends in pharmacotherapeutic intervention in dementia care together with caregiver perceptions on treatment expectations in Malta. [ABSTRACT FROM AUTHOR]
- Published
- 2010
26. Growing older in Malta: experiences of British retirees.
- Author
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Innes, Anthea
- Subjects
EMIGRATION & immigration ,OLDER people ,RETIREES ,QUALITY of life ,RETIREMENT ,LIFE history interviews ,SOCIAL science research - Abstract
International retirement migration (IRM) is attracting increasing research interest. This article reports findings from an exploratory case study of 16 older people who have moved from theUKto grow older in Malta. Data was collected using in-depth interviews drawing on a life history approach. This article builds on previous research in the IRM field by providing detailed examples of the push and pull factors influencing the decision to move to Malta and the reported positive experiences of living in Malta. The article also discusses negative impressions of life in Malta, an issue that has not been previously documented in relation to Malta. Future difficulties that the immigrants may encounter are also considered. This article contributes to the growing body of knowledge concerning the experience of IRM. [ABSTRACT FROM AUTHOR]
- Published
- 2008
27. Technologies to support community-dwelling persons with dementia: a position paper on issues regarding development, usability, effectiveness and cost-effectiveness, deployment, and ethics
- Author
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Meiland, Franka, Innes, Anthea, Mountain, Gail, Robinson, Louise, Roest, Henriëtte van der, García-Casal, J. Antonio, Gove, Dianne, Thyrian, Jochen René, Evans, Shirley, Dröes, Rose-Marie, Kelly, Fiona, Kurz, Alexander, Casey, Dympna, Szcześniak, Dorota, Dening, Tom, Craven, Michael P., Span, Marijke, Felzmann, Heike, Tsolaki, Magda, Franco-Martin, Manuel, Meiland, Franka, Innes, Anthea, Mountain, Gail, Robinson, Louise, Roest, Henriëtte van der, García-Casal, J. Antonio, Gove, Dianne, Thyrian, Jochen René, Evans, Shirley, Dröes, Rose-Marie, Kelly, Fiona, Kurz, Alexander, Casey, Dympna, Szcześniak, Dorota, Dening, Tom, Craven, Michael P., Span, Marijke, Felzmann, Heike, Tsolaki, Magda, and Franco-Martin, Manuel
- Abstract
Background: With the expected increase in the numbers of persons with dementia, providing timely, adequate, and affordable care and support is challenging. Assistive and health technologies may be a valuable contribution in dementia care, but new challenges may emerge. Objective: The aim of our study was to review the state of the art of technologies for persons with dementia regarding issues on development, usability, effectiveness and cost-effectiveness, deployment, and ethics in 3 fields of application of technologies: (1) support with managing everyday life, (2) support with participating in pleasurable and meaningful activities, and (3) support with dementia health and social care provision. The study also aimed to identify gaps in the evidence and challenges for future research. Methods: Reviews of literature and expert opinions were used in our study. Literature searches were conducted on usability, effectiveness and cost-effectiveness, and ethics using PubMed, Embase, CINAHL, and PsycINFO databases with no time limit. Selection criteria in our selected technology fields were reviews in English for community-dwelling persons with dementia. Regarding deployment issues, searches were done in Health Technology Assessment databases Results: According to our results, persons with dementia want to be included in the development of technologies; there is little research on the usability of assistive technologies; various benefits are reported but are mainly based on low-quality studies; barriers to deployment of technologies in dementia care were identified, and ethical issues were raised by researchers but often not studied. Many challenges remain such as including the target group more often in development, performing more high-quality studies on usability and effectiveness and cost-effectiveness, creating and having access to high-quality datasets on existing technologies to enable adequate deployment of technologies in dementia care, and ensuring that ethical is
- Full Text
- View/download PDF
28. Technologies to support community-dwelling persons with dementia: a position paper on issues regarding development, usability, effectiveness and cost-effectiveness, deployment, and ethics
- Author
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Meiland, Franka, Innes, Anthea, Mountain, Gail, Robinson, Louise, Roest, Henriëtte van der, García-Casal, J. Antonio, Gove, Dianne, Thyrian, Jochen René, Evans, Shirley, Dröes, Rose-Marie, Kelly, Fiona, Kurz, Alexander, Casey, Dympna, Szcześniak, Dorota, Dening, Tom, Craven, Michael P., Span, Marijke, Felzmann, Heike, Tsolaki, Magda, Franco-Martin, Manuel, Meiland, Franka, Innes, Anthea, Mountain, Gail, Robinson, Louise, Roest, Henriëtte van der, García-Casal, J. Antonio, Gove, Dianne, Thyrian, Jochen René, Evans, Shirley, Dröes, Rose-Marie, Kelly, Fiona, Kurz, Alexander, Casey, Dympna, Szcześniak, Dorota, Dening, Tom, Craven, Michael P., Span, Marijke, Felzmann, Heike, Tsolaki, Magda, and Franco-Martin, Manuel
- Abstract
Background: With the expected increase in the numbers of persons with dementia, providing timely, adequate, and affordable care and support is challenging. Assistive and health technologies may be a valuable contribution in dementia care, but new challenges may emerge. Objective: The aim of our study was to review the state of the art of technologies for persons with dementia regarding issues on development, usability, effectiveness and cost-effectiveness, deployment, and ethics in 3 fields of application of technologies: (1) support with managing everyday life, (2) support with participating in pleasurable and meaningful activities, and (3) support with dementia health and social care provision. The study also aimed to identify gaps in the evidence and challenges for future research. Methods: Reviews of literature and expert opinions were used in our study. Literature searches were conducted on usability, effectiveness and cost-effectiveness, and ethics using PubMed, Embase, CINAHL, and PsycINFO databases with no time limit. Selection criteria in our selected technology fields were reviews in English for community-dwelling persons with dementia. Regarding deployment issues, searches were done in Health Technology Assessment databases Results: According to our results, persons with dementia want to be included in the development of technologies; there is little research on the usability of assistive technologies; various benefits are reported but are mainly based on low-quality studies; barriers to deployment of technologies in dementia care were identified, and ethical issues were raised by researchers but often not studied. Many challenges remain such as including the target group more often in development, performing more high-quality studies on usability and effectiveness and cost-effectiveness, creating and having access to high-quality datasets on existing technologies to enable adequate deployment of technologies in dementia care, and ensuring that ethical is
- Full Text
- View/download PDF
29. Assistive technologies to address capabilities of people with dementia: from research to practice
- Author
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Kenigsberg, Paul-Ariel, Aquino, Jean-Pierre, Bérard, Alain, Brémond, François, Charras, Kevin, Dening, Tom, Dröes, Rose-Marie, Gzil, Fabrice, Hicks, Ben, Innes, Anthea, Nguyen, Mai, Nygård, Louise, Pino, Maribel, Sacco, Guillaume, Salmon, Eric, Roest, Henriëtte van der, Villet, Hervé, Villez, Marion, Robert, Philippe, Manera, Valeria, Kenigsberg, Paul-Ariel, Aquino, Jean-Pierre, Bérard, Alain, Brémond, François, Charras, Kevin, Dening, Tom, Dröes, Rose-Marie, Gzil, Fabrice, Hicks, Ben, Innes, Anthea, Nguyen, Mai, Nygård, Louise, Pino, Maribel, Sacco, Guillaume, Salmon, Eric, Roest, Henriëtte van der, Villet, Hervé, Villez, Marion, Robert, Philippe, and Manera, Valeria
- Abstract
Assistive technologies (AT) became pervasive and virtually present in all our life domains. They can be either an enabler or an obstacle leading to social exclusion. The Fondation Médéric Alzheimer gathered international experts of dementia care, with backgrounds in biomedical, human and social sciences, to analyse how AT can address the capabilities of people with dementia, on the basis of their needs. Discussion covered the unmet needs of people with dementia, the domains of daily life activities where AT can provide help to people with dementia, the enabling and empowering impact of technology to improve their safety and wellbeing, barriers and limits of use, technology assessment, ethical and legal issues. The capability approach (possible freedom) appears particularly relevant in person-centered dementia care and technology development. The focus is not on the solution, rather on what the person can do with it: seeing dementia as disability, with technology as an enabler to promote capabilities of the person, provides a useful framework for both research and practice. This article summarizes how these concepts took momentum in professional practice and public policies in the past fifteen years (2000-2015), discusses current issues in the design, development and economic model of AT for people with dementia, and covers how these technologies are being used and assessed.
- Full Text
- View/download PDF
30. Technologies to support community-dwelling persons with dementia: a position paper on issues regarding development, usability, effectiveness and cost-effectiveness, deployment, and ethics
- Author
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Meiland, Franka, Innes, Anthea, Mountain, Gail, Robinson, Louise, Roest, Henriëtte van der, García-Casal, J. Antonio, Gove, Dianne, Thyrian, Jochen René, Evans, Shirley, Dröes, Rose-Marie, Kelly, Fiona, Kurz, Alexander, Casey, Dympna, Szcześniak, Dorota, Dening, Tom, Craven, Michael P., Span, Marijke, Felzmann, Heike, Tsolaki, Magda, Franco-Martin, Manuel, Meiland, Franka, Innes, Anthea, Mountain, Gail, Robinson, Louise, Roest, Henriëtte van der, García-Casal, J. Antonio, Gove, Dianne, Thyrian, Jochen René, Evans, Shirley, Dröes, Rose-Marie, Kelly, Fiona, Kurz, Alexander, Casey, Dympna, Szcześniak, Dorota, Dening, Tom, Craven, Michael P., Span, Marijke, Felzmann, Heike, Tsolaki, Magda, and Franco-Martin, Manuel
- Abstract
Background: With the expected increase in the numbers of persons with dementia, providing timely, adequate, and affordable care and support is challenging. Assistive and health technologies may be a valuable contribution in dementia care, but new challenges may emerge. Objective: The aim of our study was to review the state of the art of technologies for persons with dementia regarding issues on development, usability, effectiveness and cost-effectiveness, deployment, and ethics in 3 fields of application of technologies: (1) support with managing everyday life, (2) support with participating in pleasurable and meaningful activities, and (3) support with dementia health and social care provision. The study also aimed to identify gaps in the evidence and challenges for future research. Methods: Reviews of literature and expert opinions were used in our study. Literature searches were conducted on usability, effectiveness and cost-effectiveness, and ethics using PubMed, Embase, CINAHL, and PsycINFO databases with no time limit. Selection criteria in our selected technology fields were reviews in English for community-dwelling persons with dementia. Regarding deployment issues, searches were done in Health Technology Assessment databases Results: According to our results, persons with dementia want to be included in the development of technologies; there is little research on the usability of assistive technologies; various benefits are reported but are mainly based on low-quality studies; barriers to deployment of technologies in dementia care were identified, and ethical issues were raised by researchers but often not studied. Many challenges remain such as including the target group more often in development, performing more high-quality studies on usability and effectiveness and cost-effectiveness, creating and having access to high-quality datasets on existing technologies to enable adequate deployment of technologies in dementia care, and ensuring that ethical is
- Full Text
- View/download PDF
31. Assistive technologies to address capabilities of people with dementia: from research to practice
- Author
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Kenigsberg, Paul-Ariel, Aquino, Jean-Pierre, Bérard, Alain, Brémond, François, Charras, Kevin, Dening, Tom, Dröes, Rose-Marie, Gzil, Fabrice, Hicks, Ben, Innes, Anthea, Nguyen, Mai, Nygård, Louise, Pino, Maribel, Sacco, Guillaume, Salmon, Eric, Roest, Henriëtte van der, Villet, Hervé, Villez, Marion, Robert, Philippe, Manera, Valeria, Kenigsberg, Paul-Ariel, Aquino, Jean-Pierre, Bérard, Alain, Brémond, François, Charras, Kevin, Dening, Tom, Dröes, Rose-Marie, Gzil, Fabrice, Hicks, Ben, Innes, Anthea, Nguyen, Mai, Nygård, Louise, Pino, Maribel, Sacco, Guillaume, Salmon, Eric, Roest, Henriëtte van der, Villet, Hervé, Villez, Marion, Robert, Philippe, and Manera, Valeria
- Abstract
Assistive technologies (AT) became pervasive and virtually present in all our life domains. They can be either an enabler or an obstacle leading to social exclusion. The Fondation Médéric Alzheimer gathered international experts of dementia care, with backgrounds in biomedical, human and social sciences, to analyse how AT can address the capabilities of people with dementia, on the basis of their needs. Discussion covered the unmet needs of people with dementia, the domains of daily life activities where AT can provide help to people with dementia, the enabling and empowering impact of technology to improve their safety and wellbeing, barriers and limits of use, technology assessment, ethical and legal issues. The capability approach (possible freedom) appears particularly relevant in person-centered dementia care and technology development. The focus is not on the solution, rather on what the person can do with it: seeing dementia as disability, with technology as an enabler to promote capabilities of the person, provides a useful framework for both research and practice. This article summarizes how these concepts took momentum in professional practice and public policies in the past fifteen years (2000-2015), discusses current issues in the design, development and economic model of AT for people with dementia, and covers how these technologies are being used and assessed.
- Full Text
- View/download PDF
32. Technologies to support community-dwelling persons with dementia: a position paper on issues regarding development, usability, effectiveness and cost-effectiveness, deployment, and ethics
- Author
-
Meiland, Franka, Innes, Anthea, Mountain, Gail, Robinson, Louise, Roest, Henriëtte van der, García-Casal, J. Antonio, Gove, Dianne, Thyrian, Jochen René, Evans, Shirley, Dröes, Rose-Marie, Kelly, Fiona, Kurz, Alexander, Casey, Dympna, Szcześniak, Dorota, Dening, Tom, Craven, Michael P., Span, Marijke, Felzmann, Heike, Tsolaki, Magda, Franco-Martin, Manuel, Meiland, Franka, Innes, Anthea, Mountain, Gail, Robinson, Louise, Roest, Henriëtte van der, García-Casal, J. Antonio, Gove, Dianne, Thyrian, Jochen René, Evans, Shirley, Dröes, Rose-Marie, Kelly, Fiona, Kurz, Alexander, Casey, Dympna, Szcześniak, Dorota, Dening, Tom, Craven, Michael P., Span, Marijke, Felzmann, Heike, Tsolaki, Magda, and Franco-Martin, Manuel
- Abstract
Background: With the expected increase in the numbers of persons with dementia, providing timely, adequate, and affordable care and support is challenging. Assistive and health technologies may be a valuable contribution in dementia care, but new challenges may emerge. Objective: The aim of our study was to review the state of the art of technologies for persons with dementia regarding issues on development, usability, effectiveness and cost-effectiveness, deployment, and ethics in 3 fields of application of technologies: (1) support with managing everyday life, (2) support with participating in pleasurable and meaningful activities, and (3) support with dementia health and social care provision. The study also aimed to identify gaps in the evidence and challenges for future research. Methods: Reviews of literature and expert opinions were used in our study. Literature searches were conducted on usability, effectiveness and cost-effectiveness, and ethics using PubMed, Embase, CINAHL, and PsycINFO databases with no time limit. Selection criteria in our selected technology fields were reviews in English for community-dwelling persons with dementia. Regarding deployment issues, searches were done in Health Technology Assessment databases Results: According to our results, persons with dementia want to be included in the development of technologies; there is little research on the usability of assistive technologies; various benefits are reported but are mainly based on low-quality studies; barriers to deployment of technologies in dementia care were identified, and ethical issues were raised by researchers but often not studied. Many challenges remain such as including the target group more often in development, performing more high-quality studies on usability and effectiveness and cost-effectiveness, creating and having access to high-quality datasets on existing technologies to enable adequate deployment of technologies in dementia care, and ensuring that ethical is
- Full Text
- View/download PDF
33. Assistive technologies to address capabilities of people with dementia: from research to practice
- Author
-
Kenigsberg, Paul-Ariel, Aquino, Jean-Pierre, Bérard, Alain, Brémond, François, Charras, Kevin, Dening, Tom, Dröes, Rose-Marie, Gzil, Fabrice, Hicks, Ben, Innes, Anthea, Nguyen, Mai, Nygård, Louise, Pino, Maribel, Sacco, Guillaume, Salmon, Eric, Roest, Henriëtte van der, Villet, Hervé, Villez, Marion, Robert, Philippe, Manera, Valeria, Kenigsberg, Paul-Ariel, Aquino, Jean-Pierre, Bérard, Alain, Brémond, François, Charras, Kevin, Dening, Tom, Dröes, Rose-Marie, Gzil, Fabrice, Hicks, Ben, Innes, Anthea, Nguyen, Mai, Nygård, Louise, Pino, Maribel, Sacco, Guillaume, Salmon, Eric, Roest, Henriëtte van der, Villet, Hervé, Villez, Marion, Robert, Philippe, and Manera, Valeria
- Abstract
Assistive technologies (AT) became pervasive and virtually present in all our life domains. They can be either an enabler or an obstacle leading to social exclusion. The Fondation Médéric Alzheimer gathered international experts of dementia care, with backgrounds in biomedical, human and social sciences, to analyse how AT can address the capabilities of people with dementia, on the basis of their needs. Discussion covered the unmet needs of people with dementia, the domains of daily life activities where AT can provide help to people with dementia, the enabling and empowering impact of technology to improve their safety and wellbeing, barriers and limits of use, technology assessment, ethical and legal issues. The capability approach (possible freedom) appears particularly relevant in person-centered dementia care and technology development. The focus is not on the solution, rather on what the person can do with it: seeing dementia as disability, with technology as an enabler to promote capabilities of the person, provides a useful framework for both research and practice. This article summarizes how these concepts took momentum in professional practice and public policies in the past fifteen years (2000-2015), discusses current issues in the design, development and economic model of AT for people with dementia, and covers how these technologies are being used and assessed.
- Full Text
- View/download PDF
34. Technologies to support community-dwelling persons with dementia: a position paper on issues regarding development, usability, effectiveness and cost-effectiveness, deployment, and ethics
- Author
-
Meiland, Franka, Innes, Anthea, Mountain, Gail, Robinson, Louise, Roest, Henriëtte van der, García-Casal, J. Antonio, Gove, Dianne, Thyrian, Jochen René, Evans, Shirley, Dröes, Rose-Marie, Kelly, Fiona, Kurz, Alexander, Casey, Dympna, Szcześniak, Dorota, Dening, Tom, Craven, Michael P., Span, Marijke, Felzmann, Heike, Tsolaki, Magda, Franco-Martin, Manuel, Meiland, Franka, Innes, Anthea, Mountain, Gail, Robinson, Louise, Roest, Henriëtte van der, García-Casal, J. Antonio, Gove, Dianne, Thyrian, Jochen René, Evans, Shirley, Dröes, Rose-Marie, Kelly, Fiona, Kurz, Alexander, Casey, Dympna, Szcześniak, Dorota, Dening, Tom, Craven, Michael P., Span, Marijke, Felzmann, Heike, Tsolaki, Magda, and Franco-Martin, Manuel
- Abstract
Background: With the expected increase in the numbers of persons with dementia, providing timely, adequate, and affordable care and support is challenging. Assistive and health technologies may be a valuable contribution in dementia care, but new challenges may emerge. Objective: The aim of our study was to review the state of the art of technologies for persons with dementia regarding issues on development, usability, effectiveness and cost-effectiveness, deployment, and ethics in 3 fields of application of technologies: (1) support with managing everyday life, (2) support with participating in pleasurable and meaningful activities, and (3) support with dementia health and social care provision. The study also aimed to identify gaps in the evidence and challenges for future research. Methods: Reviews of literature and expert opinions were used in our study. Literature searches were conducted on usability, effectiveness and cost-effectiveness, and ethics using PubMed, Embase, CINAHL, and PsycINFO databases with no time limit. Selection criteria in our selected technology fields were reviews in English for community-dwelling persons with dementia. Regarding deployment issues, searches were done in Health Technology Assessment databases Results: According to our results, persons with dementia want to be included in the development of technologies; there is little research on the usability of assistive technologies; various benefits are reported but are mainly based on low-quality studies; barriers to deployment of technologies in dementia care were identified, and ethical issues were raised by researchers but often not studied. Many challenges remain such as including the target group more often in development, performing more high-quality studies on usability and effectiveness and cost-effectiveness, creating and having access to high-quality datasets on existing technologies to enable adequate deployment of technologies in dementia care, and ensuring that ethical is
- Full Text
- View/download PDF
35. Assistive technologies to address capabilities of people with dementia: from research to practice
- Author
-
Kenigsberg, Paul-Ariel, Aquino, Jean-Pierre, Bérard, Alain, Brémond, François, Charras, Kevin, Dening, Tom, Dröes, Rose-Marie, Gzil, Fabrice, Hicks, Ben, Innes, Anthea, Nguyen, Mai, Nygård, Louise, Pino, Maribel, Sacco, Guillaume, Salmon, Eric, Roest, Henriëtte van der, Villet, Hervé, Villez, Marion, Robert, Philippe, Manera, Valeria, Kenigsberg, Paul-Ariel, Aquino, Jean-Pierre, Bérard, Alain, Brémond, François, Charras, Kevin, Dening, Tom, Dröes, Rose-Marie, Gzil, Fabrice, Hicks, Ben, Innes, Anthea, Nguyen, Mai, Nygård, Louise, Pino, Maribel, Sacco, Guillaume, Salmon, Eric, Roest, Henriëtte van der, Villet, Hervé, Villez, Marion, Robert, Philippe, and Manera, Valeria
- Abstract
Assistive technologies (AT) became pervasive and virtually present in all our life domains. They can be either an enabler or an obstacle leading to social exclusion. The Fondation Médéric Alzheimer gathered international experts of dementia care, with backgrounds in biomedical, human and social sciences, to analyse how AT can address the capabilities of people with dementia, on the basis of their needs. Discussion covered the unmet needs of people with dementia, the domains of daily life activities where AT can provide help to people with dementia, the enabling and empowering impact of technology to improve their safety and wellbeing, barriers and limits of use, technology assessment, ethical and legal issues. The capability approach (possible freedom) appears particularly relevant in person-centered dementia care and technology development. The focus is not on the solution, rather on what the person can do with it: seeing dementia as disability, with technology as an enabler to promote capabilities of the person, provides a useful framework for both research and practice. This article summarizes how these concepts took momentum in professional practice and public policies in the past fifteen years (2000-2015), discusses current issues in the design, development and economic model of AT for people with dementia, and covers how these technologies are being used and assessed.
- Full Text
- View/download PDF
36. Technologies to support community-dwelling persons with dementia: a position paper on issues regarding development, usability, effectiveness and cost-effectiveness, deployment, and ethics
- Author
-
Meiland, Franka, Innes, Anthea, Mountain, Gail, Robinson, Louise, Roest, Henriëtte van der, García-Casal, J. Antonio, Gove, Dianne, Thyrian, Jochen René, Evans, Shirley, Dröes, Rose-Marie, Kelly, Fiona, Kurz, Alexander, Casey, Dympna, Szcześniak, Dorota, Dening, Tom, Craven, Michael P., Span, Marijke, Felzmann, Heike, Tsolaki, Magda, Franco-Martin, Manuel, Meiland, Franka, Innes, Anthea, Mountain, Gail, Robinson, Louise, Roest, Henriëtte van der, García-Casal, J. Antonio, Gove, Dianne, Thyrian, Jochen René, Evans, Shirley, Dröes, Rose-Marie, Kelly, Fiona, Kurz, Alexander, Casey, Dympna, Szcześniak, Dorota, Dening, Tom, Craven, Michael P., Span, Marijke, Felzmann, Heike, Tsolaki, Magda, and Franco-Martin, Manuel
- Abstract
Background: With the expected increase in the numbers of persons with dementia, providing timely, adequate, and affordable care and support is challenging. Assistive and health technologies may be a valuable contribution in dementia care, but new challenges may emerge. Objective: The aim of our study was to review the state of the art of technologies for persons with dementia regarding issues on development, usability, effectiveness and cost-effectiveness, deployment, and ethics in 3 fields of application of technologies: (1) support with managing everyday life, (2) support with participating in pleasurable and meaningful activities, and (3) support with dementia health and social care provision. The study also aimed to identify gaps in the evidence and challenges for future research. Methods: Reviews of literature and expert opinions were used in our study. Literature searches were conducted on usability, effectiveness and cost-effectiveness, and ethics using PubMed, Embase, CINAHL, and PsycINFO databases with no time limit. Selection criteria in our selected technology fields were reviews in English for community-dwelling persons with dementia. Regarding deployment issues, searches were done in Health Technology Assessment databases Results: According to our results, persons with dementia want to be included in the development of technologies; there is little research on the usability of assistive technologies; various benefits are reported but are mainly based on low-quality studies; barriers to deployment of technologies in dementia care were identified, and ethical issues were raised by researchers but often not studied. Many challenges remain such as including the target group more often in development, performing more high-quality studies on usability and effectiveness and cost-effectiveness, creating and having access to high-quality datasets on existing technologies to enable adequate deployment of technologies in dementia care, and ensuring that ethical is
- Full Text
- View/download PDF
37. Exploring the ‘active mechanisms’ for engaging rural-dwelling older men with dementia in a community technological initiative
- Author
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Hicks, Ben, Innes, Anthea, Nyman, S.R., Hicks, Ben, Innes, Anthea, and Nyman, S.R.
- Abstract
Research has suggested ecopsychosocial initiatives can promote a sense of well-being and inclusion in people with dementia. However, few studies have elucidated the ‘active mechanisms’ whereby such initiatives can achieve these outcomes, so hindering their generalisability. This is particularly pertinent when seeking to support community-dwelling older men with dementia who are reluctant to engage with traditional health and social care initiatives. This paper reports on a study that drew from the principles of Participatory Action Research to explore the ‘active mechanisms’ of a technological initiative for older men (65+ years) with dementia in rural England. An individually-tailored, male-only initiative, using off-the-shelf computer game technology (e.g. iPad, Nintendo Wii and Microsoft Kinect) was delivered over a nine week period. Multiple qualitative methods were employed including; focus groups, open interviews and extensive reflexive field-notes, to gather data from the perspective of twenty-two men, fifteen care partners and five community volunteers. The data were analysed thematically and interpreted using a masculinity lens. Three mechanisms contributed to the initiative’s success: the use of the technology; the male-only environment; and the empowering approach adopted. The paper argues that initiatives aimed at community-dwelling older men with dementia would be advised to consider these gendered experiences and ensure participants can maximise their masculine capital when participating in them, by providing enabling activities, non-threatening environments and empowering approaches of delivery.
38. Dementia-friendly communities: challenges and strategies for achieving stakeholder involvement.
- Author
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Heward, Michelle, Innes, Anthea, Cutler, C., Hambidge, Sarah, Heward, Michelle, Innes, Anthea, Cutler, C., and Hambidge, Sarah
- Abstract
Dementia-friendly communities (DFCs) are a UK policy initiative that aims to enable people with dementia to feel supported and included within their local community. Current approaches to DFC creation rely on stakeholder involvement, often requiring volunteer assistance. There is though a lack of evidence that examines the reality of achieving this. This paper critically assesses the challenges and strategies for achieving stakeholder involvement in DFCs. The evidence base is drawn from an inter-agency project funded by the National Health Service in the South of England where seven DFCs were developed by steering group partners and four part-time project workers (PWs). Data from the independent evaluation undertaken in the first year (2013-2014) of the project were analysed: 14 semi-structured interviews and a focus group examined PWs' experiences; while progress and key milestones are determined from monthly progress forms, good news stories, locality steering group minutes and press releases. Analysis was undertaken using a directed content analysis method, whereby data content for each locality was matched to the analytical framework that was drawn from Alzheimer's Society guidance. Challenges to achieving stakeholder involvement were identified as: establishing networks and including people representative of the local community; involving people affected by dementia; and gaining commitment from organisations. Strategies for achieving stakeholder involvement were recognised as: a sustainable approach; spreading the word; and sharing of ideas. By highlighting these challenges and the approaches that have been used within communities to overcome them, these findings form the foundation for the creation of DFC initiatives that will become embedded within communities. Stakeholder involvement is unpredictable and changeable; therefore, reliance on this approach questions the long-term sustainability of DFCs, and must be considered in future policies designed to enhan
39. Social care and support needs of community-dwelling people with dementia and concurrent visual impairment
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Nyman, S.R., Innes, Anthea, Heward, Michelle, Nyman, S.R., Innes, Anthea, and Heward, Michelle
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Objectives: Little is known about the needs of people who have both dementia and visual impairment. This study explored the social care and support needs of people with dementia and concurrent visual impairment, and the barriers and facilitators for meeting these needs. Method: Twenty-six semi-structured interviews were conducted: 21 joint interviews with the person with dementia and visual impairment and their family member / paid carer; and 5 individual interviews with either the person with dementia and visual impairment (n=4) or their family member (n=1). Interviews were audio recorded, transcribed verbatim, and analysed thematically. Results: Three themes are presented. (1) Social care needs: having dementia can reduce an individual’s ability to cope with their visual impairment, and in turn make the person more dependent and prone to lack of daily stimulation. (2) Barriers to using technology to meet social care needs: difficulties were reported in learning to use unfamiliar technology, and for some, the presence of dementia made visual impairment aids unusable and vice versa. Visual impairment aids were also perceived as expensive. (3) Familiarity as a facilitator for meeting social care needs: living at home or taking furnishings and ornaments into a new home environment facilitated retention of independence, and continuity of paid carers / volunteers facilitated the caring relationship between the individual and staff / volunteer. Conclusion: Dementia and visual impairment often coexist and care workers will better serve older people if they are aware of the social care and support needs that arise from having both conditions.
40. Tales of The Sea: Connecting people with dementia to the UK heritage through maritime archaeology (innovative practice).
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Cutler, C., Palma, Paola, Innes, Anthea, Cutler, C., Palma, Paola, and Innes, Anthea
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This paper reports on a pilot study evaluating the impact of a series of interactive and educational maritime archaeological sessions for people with dementia. A typical archaeological approach was adopted including excavations, recovery and reconstruction of artefacts. Findings from this study demonstrate the importance of providing information, delivering alternative activities, enabling educational opportunities and offering support to and for people living with dementia. Our findings further illustrate that people with dementia can be included in maritime archaeology and that including people with dementia in heritage-based initiatives is possible.
41. ‘Stepping into Nature’: Evaluation Report on Focus Group findings
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Heward, Michelle, Kelly, Fiona, Innes, Anthea, Cutts, Wendy, Heward, Michelle, Kelly, Fiona, Innes, Anthea, and Cutts, Wendy
42. Does Digital Gaming Enable Healthy Aging for Community-Dwelling People With Dementia?
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Cutler, C., Hicks, Ben, Innes, Anthea, Cutler, C., Hicks, Ben, and Innes, Anthea
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This article critically explores the benefits of commercial digital gaming technology for healthy aging of people with dementia. Research with community-dwelling people with dementia has highlighted the need for enhanced access to nonpharmacological interventions to support social engagement. Commercially available technologies offer a means to engage people with dementia. This article expands on this body of knowledge by assessing the benefits of digital gaming on healthy aging for community-dwelling people with dementia who have participated in a series of Tech Clubs using Apple iPads, Nintendo Wii, and Nintendo DS. Findings from this study demonstrates that use of digital gaming technologies promotes lifelong learning; optimization of mental, physical, and social stimulation; and independence, all of which promote the agenda of healthy aging.
43. Technology, fun and games
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Cutler, C., Hicks, Ben, Innes, Anthea, Cutler, C., Hicks, Ben, and Innes, Anthea
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With the advancement in technology, researchers are beginning to explore various avenues where technology can be used to support and improve the well-being of people with dementia by keeping them physically, socially and mentally active. Commercial ‘off-the-shelf’ technology appears to be a viable option as it is cheaper than more dementia-specific technology and more readily available. Preliminary research has also shown it can be effective at improving the lives of people with dementia through increased engagement, mental stimulation and social interaction (SCIE 2012, Upton 2011, Leahey & Singleton 2011, Leng et al 2013). However, further research is required to understand how this technology can be used with people with dementia within group settings. The aim of this article is to report on two technology groups commissioned by Bournemouth Borough Council and discuss our observations of using commercial technology with people with dementia within the community and an assisted living care setting.
44. In their words: how television and visual media can raise awareness of dementia and other health conditions that carry stigma, including disabilities.
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Heward, Michelle, Palfreman-Kay, James, Innes, Anthea, Heward, Michelle, Palfreman-Kay, James, and Innes, Anthea
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This article explores the mutual contribution of television and disability studies, focusing on the role of television and visual media in raising awareness and challenging gaps in understanding of dementia, a health condition that carries stigma and is framed as a disability. The Living Well with Dementia, Dorset: Video project, demonstrates the duality of how creating and disseminating a video featuring people with dementia and carers talking about what it means to live well with the condition, provides a way to use media to raise awareness of dementia. Portraying real-life experiences of people affected by dementia was crucial, and enabled these often marginalized voices to be heard. Participants discussed experiences of diagnosis, post-diagnostic support, adjustments to lifestyle, social activities and family relationships. The video was disseminated through YouTube, and the impact on understandings of dementia was established through a questionnaire. Findings indicate personal stories are a powerful way to raise awareness of dementia, an approach that could improve awareness of other health conditions that carry stigma, including disabilities. Video provides researchers with novel ways to disseminate findings that extend to new and wide- ranging audiences. The fields of television and disability studies can therefore make a valuable mutual contribution.
45. Barriers to leisure participation for people with dementia and their carers: An exploratory analysis of carer and people with dementia's experiences.
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Innes, Anthea, Page, S.J., Cutler, C., Innes, Anthea, Page, S.J., and Cutler, C.
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Leisure has emerged as a prominent research theme within the growing body of knowledge on dementia, with a focus on physical activity. Yet participation in any form of leisure presupposes an ability to freely choose to partake in activities and to negotiate one's way around key barriers. In the case of dementia, the ability to undertake leisure activities is subject to a greater range of barriers, structured in a hierarchical manner that contributes to social exclusion if not addressed. This study based on focus groups with people with dementia and their family members conducted in Dorset, UK illustrates a range of barriers to leisure participation. How to create or maintain leisure opportunities for those living with dementia where households affected by dementia do not adopt avoidance behaviour, compounding a sense of isolation and exclusion is a challenge. Leisure can be an important strategy framed as a form of resistance to the social disabilities experienced by those living with dementia and it is potentially isolating impact.
46. Incidence and prevalence of dementia in linked administrative health data in Saskatchewan, Canada: a retrospective cohort study.
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Kosteniuk, J.G., Morgan, D.G., O'Connell, M.E., Kirke, A., Crossley, M., Teare, G.F., Stewart, N.J., Bello-Haas, V.D., Forbes, D.A., Innes, Anthea, Quail, J.M., Kosteniuk, J.G., Morgan, D.G., O'Connell, M.E., Kirke, A., Crossley, M., Teare, G.F., Stewart, N.J., Bello-Haas, V.D., Forbes, D.A., Innes, Anthea, and Quail, J.M.
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Determining the epidemiology of dementia among the population as a whole in specific jurisdictions - including the long-term care population-is essential to providing appropriate care. The objectives of this study were to use linked administrative databases in the province of Saskatchewan to determine the 12-month incidence and prevalence of dementia for the 2012/13 period (1) among individuals aged 45 and older in the province of Saskatchewan, (2) according to age group and sex, and (3) according to diagnosis code and other case definition criteria.
47. Decreasing spatial disorientation in care-home settings: How psychology can guide the development of dementia friendly design guidelines
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O'Malley, Mary, Innes, Anthea, Wiener, J.M., O'Malley, Mary, Innes, Anthea, and Wiener, J.M.
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Alzheimer’s disease results in marked declines in navigation skills that are particularly pronounced in unfamiliar environments. However, many people with Alzheimer’s disease eventually face the challenge of having to learn their way around unfamiliar environments when moving into assisted living or care-homes. People with Alzheimer’s disease would have an easier transition moving to new residences if these larger, and often more institutional, environments were designed to compensate for decreasing orientation skills. However, few existing dementia friendly design guidelines specifically address orientation and wayfinding. Those that do are often based on custom, practice or intuition and not well integrated with psychological and neuroscientific knowledge or navigation research, therefore often remaining unspecific. This paper discusses current dementia friendly design guidelines, reports findings from psychological and neuropsychological experiments on navigation and evaluates their potential for informing design guidelines that decrease spatial disorientation for people with dementia.
48. Care home design for people with dementia: what do people with dementia and their family carers value?
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Innes, Anthea, Kelly, Fiona, Dincarslan, O., Innes, Anthea, Kelly, Fiona, and Dincarslan, O.
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Objectives: To report on the views of people with dementia who live in care homes and their family carers on aspects of design that are important to them, and discuss these in relation to developing physical care environments that respond to the wishes of people with dementia and their family carers. Method: Six focus groups were held: two in Northern Ireland and four in Scotland. A total of 40 people participated in the focus groups. Twenty nine people were with dementia (24 female and five male), and 11 were family carers (10 female and one male). Results: Carers discussed the features of a building they took into account when selecting a care home, and discussed this in relation to ‘bricks and mortar versus people’. Key themes reported by people with dementia and their family carers included how the space in the environment is used, for example, what happens in the building and the presence or absence of certain design features. Outside space and wayfinding aids were identified as positive features of the home, along with a general lack of concern about ensuite provision. Conclusion: The results demonstrate the complexity of building design as it must provide living space acceptable to people with dementia living there and family members who visit, as well as provide a workable environment for staff. The findings highlight areas that should be considered by care home teams involved in the build of a new home or the redevelopment of an existing care home.
49. Improving care home design for people with dementia
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Kelly, Fiona, Innes, Anthea, Dincarslan, O., Kelly, Fiona, Innes, Anthea, and Dincarslan, O.
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With more people with dementia living in care homes in the UK than ever before, there is growing recognition that the design of such internal and external spaces should meet dementia friendly principles. This paper reports on one part of a study to evaluate the reliability and validity of two tools: The Design Audit Tool and the Environmental Audit Tool developed to audit how dementia-friendly internal and external environments (specifically care homes) are for people with dementia, and presents a qualitative analysis of the reports presented to care homes following each audit. Thirty care homes took part in the study to evaluate the design audit tools and, following good practice, received a home report detailing up to five design strengths and five limitations following the audit. Analysis of the home reports identifies variation and variability in meeting dementia-friendly principles as specified by both tools. Areas of variability included wayfinding, the use of colour and contrast, access to outside spaces, individualization of personal and communal spaces, lighting and opportunities to engage with the environment. This paper provides valuable insights into variability in care home design and identifies common areas of weakness and strength in care homes of different type, ownership and localities.
50. Facilitating independence: The benefits of a post-diagnostic support project for people with dementia.
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Kelly, Fiona, Innes, Anthea, Kelly, Fiona, and Innes, Anthea
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Providing support in the form of information, advice and access to services or social events is promoted as beneficial for people newly diagnosed with dementia and their families. This paper reports on key findings from an evaluation of a post-diagnostic support pilot project in Scotland addressing local service gaps, namely information provision, emotional and practical support and maintaining community links. Twenty-seven participants (14 people newly diagnosed with dementia and 13 family carers) were interviewed at two time points: T1 shortly after joining the pilot project and T2 approximately six months later, to ascertain their views on existing services and the support offered by the pilot project. A comparative thematic analysis revealed that the project facilitated increased independence (associated with increased motivation and self-confidence) of people with dementia. The project illustrates what can be achieved if resources are targeted at providing individualised post-diagnostic support, particularly where there are service delivery gaps.
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