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2. HOW TO OVERCOME LACK OF HEALTH RECORD DATA AND PRIVACY OBSTACLES IN INITIAL PHASES OF MEDICAL DATA ANALYSIS PROJECTS

Author

Mohamad, Yehya, Gabber, Alexander, Heidenblut, Sonja, Zenz, Daniel, Siddiqi, Anam, Gappa, Henrike, Mohamad, Yehya, Gabber, Alexander, Heidenblut, Sonja, Zenz, Daniel, Siddiqi, Anam, and Gappa, Henrike

Abstract

The lack of electronic health record data in general and especially at initial phases of medical research projects is common and is one of the main reasons for delay or failure of such projects. One of the health areas with little attention is the home care area, where patients are being supported by their families or informal caregiver at home. In this paper we present related work on medical data formats and synthetical data generation of medical health records. Furthermore, it presents an approach to generate synthetic electronic health records (HER) that are readily available; suited to research; and free of legal, privacy, security and intellectual property restrictions to be used in home care research projects. We adapted and used SyntheaTM, an open-source software framework that simulates the lifespans of synthetic patients to generate synthetic EHRs. This paper presents the use case of home care from the capturing of user requirements of home care patients, translating the requirements into a data model, feeding the data model into Synthea (TM) framework, which produces synthetical health data records mainly as QuestionnaireResponse instance of the Fast Healthcare Interoperability Resources (FHIR) to using these EHRs to build an initial machine learning data model for home care.

Published
2022

3. Requirements for Large Scale Web Accessibility Evaluation

Author

Paternò, Fabio, Pulina, Francesca, Santoro, Carmen, Gappa, Henrike, and Mohamad, Yehya

Subjects
Monitoring, Accessibility guidelines, Article, Automatic evaluation
Abstract

The recent European legislation emphasizes the importance of enabling people with disabilities to have access to online information and services of public sector bodies. To this regard, automatic evaluation and monitoring of Web accessibility can play a key role for various stakeholders involved in creating and maintaining over time accessible products. In this paper we present the results of elicitation activities that we carried out in a European project to collect experience and feedback from Web commissioners, developers and content authors of websites and web applications. The purpose was to understand their current practices in addressing accessibility issues, identify the barriers they encounter when exploiting automatic support in ensuring the accessibility of Web resources, and receive indications about what functionalities they would like to exploit in order to better manage accessibility evaluation and monitoring.

Published
2020

5. PICASO - Die Plattform für eine verbesserte persönliche und koordinierte Betreuung chronisch Kranker - Erste Zwischenergebnisse einer Proof-of-Concept Studie

Author

Richter, Jutta, Chehab, Gamal, Tomczak, Monika, Acar, Hasan, Schwartz, Catarina, Ricken, Elisabeth, Schneider, Matthias, Gappa, Henrike, Velasco, Carlos A., and PICASO Konsortium

Subjects
ddc: 610, 610 Medical sciences, Medicine
Abstract

Einleitung: Die sektorübergreifende Koordination von Behandlungsplänen und ein effizientes Management von Patienten (Pat.) mit Komorbiditäten ist von hoher Bedeutung. Dies betrifft auch Pat. mit rheumatoider Arthritis (RA). Eine Orchestrierung der an verschiedenen Stellen über einen[zum vollständigen Text gelangen Sie über die oben angegebene URL], 47. Kongress der Deutschen Gesellschaft für Rheumatologie (DGRh), 33. Jahrestagung der Deutschen Gesellschaft für Orthopädische Rheumatologie (DGORh), 29. Jahrestagung der Gesellschaft für Kinder- und Jugendrheumatologie (GKJR)

Published
2019
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