1. Family centeredness of care: a cross-sectional study in intensive care units part of the European society of intensive care medicine.
- Author
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Azoulay, Élie, Kentish-Barnes, Nancy, Boulanger, Carole, Mistraletti, Giovanni, van Mol, Margo, Heras-La Calle, Gabriel, Estenssoro, Elisa, van Heerden, Peter Vernon, Delgado, Maria-Cruz Martin, Perner, Anders, Arabi, Yaseen M, Myatra, Sheila Nainan, Laake, Jon Henrik, De Waele, Jan J., Darmon, Michael, and Cecconi, Maurizio
- Subjects
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CROSS-sectional method , *PALLIATIVE treatment , *SELF-efficacy , *RESEARCH funding , *HEALTH policy , *VISUAL analog scale , *QUESTIONNAIRES , *DECISION making in clinical medicine , *DESCRIPTIVE statistics , *ETHICAL decision making , *FAMILY-centered care , *INTENSIVE care units , *CRITICAL care medicine - Abstract
Purpose: To identify key components and variations in family-centered care practices. Methods: A cross-sectional study, conducted across ESICM members. Participating ICUs completed a questionnaire covering general ICU characteristics, visitation policies, team-family interactions, and end-of-life decision-making. The primary outcome, self-rated family-centeredness, was assessed using a visual analog scale. Additionally, respondents completed the Maslach Burnout Inventory and the Ethical Decision Making Climate Questionnaire to capture burnout dimensions and assess the ethical decision-making climate. Results: The response rate was 53% (respondents from 359/683 invited ICUs who actually open the email); participating healthcare professionals (HCPs) were from Europe (62%), Asia (9%), South America (6%), North America (5%), Middle East (4%), and Australia/New Zealand (4%). The importance of family-centeredness was ranked high, median 7 (IQR 6–8) of 10 on VAS. Significant differences were observed across quartiles of family centeredness, including in visitation policies availability of a waiting rooms, family rooms, family information leaflet, visiting hours, night visits, sleep in the ICU, and in team-family interactions, including daily information, routine day-3 conference, and willingness to empower nurses and relatives. Higher family centeredness correlated with family involvement in rounds, participation in patient care and end-of-life practices. Burnout symptoms (41% of respondents) were negatively associated with family-centeredness. Ethical climate and willingness to empower nurses were independent predictors of family centeredness. Conclusions: This study emphasizes the need to prioritize healthcare providers' mental health for enhanced family-centered care. Further research is warranted to assess the impact of improving the ethical climate on family-centeredness. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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