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1. Childhood cancer survivorship care during the COVID-19 pandemic: an international report of practice implications and provider concerns

Author

Van den Oever, Selina R., Pluijm, Saskia M. F., Skinner, Rod, Glaser, Adam, Mulder, Renée L., Armenian, Saro, Bardi, Edit, Berger, Claire, Erhardt, Matthew J., Gilleland Marchak, Jordan, Haeusler, Gabrielle M., den Hartogh, Jaap, Hjorth, Lars, Kepak, Tomas, Kriviene, Izolda, Langer, Thorsten, Maeda, Miho, Márquez-Vega, Catalina, Michel, Gisela, Muraca, Monica, Najib MU, Mohamed, Nathan, Paul C., Panasiuk, Anna, Prasad, Maya, Roganovic, Jelena, Uyttebroeck, Anne, Winther, Jeannette F., Zodravec Zaletel, Lorna, van Dalen, Elvira C., van der Pal, Helena, Hudson, Melissa M., Kremer, Leontien C. M., Van den Oever, Selina R., Pluijm, Saskia M. F., Skinner, Rod, Glaser, Adam, Mulder, Renée L., Armenian, Saro, Bardi, Edit, Berger, Claire, Erhardt, Matthew J., Gilleland Marchak, Jordan, Haeusler, Gabrielle M., den Hartogh, Jaap, Hjorth, Lars, Kepak, Tomas, Kriviene, Izolda, Langer, Thorsten, Maeda, Miho, Márquez-Vega, Catalina, Michel, Gisela, Muraca, Monica, Najib MU, Mohamed, Nathan, Paul C., Panasiuk, Anna, Prasad, Maya, Roganovic, Jelena, Uyttebroeck, Anne, Winther, Jeannette F., Zodravec Zaletel, Lorna, van Dalen, Elvira C., van der Pal, Helena, Hudson, Melissa M., and Kremer, Leontien C. M.

Abstract

Purpose: Long-term follow-up (LTFU) care is essential to optimise health outcomes in childhood cancer survivors (CCS). We aimed to assess the impact of the COVID-19 pandemic on LTFU services and providers. Methods: A COVID-19 working group within the International Late Effects of Childhood Cancer Guideline Harmonization Group (IGHG) distributed a questionnaire to LTFU service providers in 37 countries across Europe, Asia, North America, Central/South America, and Australia. The questionnaire assessed how care delivery methods changed during the pandemic and respondents' level of worry about the pandemic's impact on LTFU care delivery, their finances, their health, and that of their family and friends. Results: Among 226 institutions, providers from 178 (79%) responded. Shortly after the initial outbreak, 42% of LTFU clinics closed. Restrictions during the pandemic resulted in fewer in-person consultations and an increased use of telemedicine, telephone, and email consultations. The use of a risk assessment to prioritise the method of LTFU consultation for individual CCS increased from 12% to 47%. While respondents anticipated in-person consultations to remain the primary method for LTFU service delivery, they expected significantly increased use of telemedicine and telephone consultations after the pandemic. On average, respondents reported highest levels of worry about psychosocial well-being of survivors. Conclusions: The pandemic necessitated changes in LTFU service delivery, including greater use of virtual LTFU care and risk-stratification to identify CCS that need in-person evaluations., + ID der Publikation: unilu_56897 + Sprache: Englisch + Letzte Aktualisierung: 2022-01-24 15:04:24

Published
2022

2. Long-term survivors of childhood cancer: cure and care—the Erice Statement (2006) revised after 10 years (2016)

Author

Jankovic, Momcilo, Haupt, Riccardo, Spinetta, John J., Beck, Joern D., Byrne, Julianne, Calaminus, Gabriele, Lackner, Herwig, Biondi, Andrea, Oeffinger, Kevin, Hudson, Melissa, Skinner, Roderick, Reaman, Gregory, van der Pal, Helena, Kremer, Leontien, den Hartogh, Jaap, Michel, Gisela, Frey, Eva, Bardi, Edit, Hawkins, Michael, Rizvi, Katie, Terenziani, Monica, Valsecchi, Maria Grazia, Bode, Gerlind, Jenney, Meriel, de Vathaire, Florent, Garwicz, Stanislaw, Levitt, Gill A., Grabow, Desiree, Kuehni, Claudia E., Schrappe, Martin, Hjorth, Lars, and participants in PanCare

Subjects
Quality of life, Health, education, Childhood care, Childhood cure
Abstract

Purpose: The number of persons who have successfully completed treatment for a cancer diagnosed during childhood and whohave entered adulthood is increasing over time, and former patients will become aging citizens. Methods: Ten years ago, an expert panel met in Erice, Italy, to produce a set of principles concerning the cure and care ofsurvivors of childhood and adolescent cancer. The result was the Erice Statement (Haupt et al. Eur J Cancer 43(12):1778–80,2007 ) that was translated into nine languages. Ten years on, it was timely to review, and possibly revise, the Erice Statement inview of the changes in paediatric oncology and the number and results of international follow-up studies conducted during theintervening years. Results: The long-term goal of the cure and care of a child with cancer is that he/she becomes a resilient and autonomous adultwith optimal health-related quality of life, accepted in society at the same level as his/her age peers.“Cure”refers to cure from theoriginal cancer, regardless of any potential for, or presence of, remaining disabilities or side effects of treatment. Thecareof achild with cancer should include complete and honest information for parents and the child. Conclusions and implication for cancer survivors: Some members of the previous expert panel, as well as new invited experts, metagain in Erice to review the Erice Statement, producing a revised version including update and integration of each of the tenpoints. In addition, a declaration has been prepared, by the Childhood Cancer International Survivors Network in Dublin onOctober 2016 (see Annex1).

Published
2018
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