1. 'Disability Means, um, Dysfunctioning People': A Qualitative Analysis of the Meaning and Experience of Disability among Adults with Intellectual Disabilities.
- Author
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Monteleone, Rebecca and Forrester‐Jones, Rachel
- Subjects
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EXPERIENCE , *INTERVIEWING , *PHENOMENOLOGY , *RESEARCH methodology , *PEOPLE with intellectual disabilities , *SELF-perception , *SOCIAL stigma , *QUALITATIVE research , *THEMATIC analysis , *ATTITUDES toward mental illness - Abstract
Background There has been little qualitative analysis of the experience of stigma, social comparisons and conception of identity among adults with intellectual disabilities ( ID). This study aimed to develop an understanding of how adults with intellectual disabilities experience their own disability, and any implications relating to self-esteem, stigma and social interactions. Materials and Methods Fifteen adults with intellectual disabilities were interviewed using semi-structured, open-ended questions regarding disability, social interactions and self-esteem. Interviews were analysed independently by two researchers using interpretive phenomenological analysis. Results Three major themes emerged during analysis, exploring pressure on participants to behave in a socially normative way, tendency to produce personal definitions of disability and consistently limited knowledge of and discomfort around common disability terminology. Conclusions Participants' clearly experienced feelings of difference, despite a lack of articulation. Limited understanding of both terminology and conceptualization of disability status could negatively impact self-esteem, person-centred actions and political movement. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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