1,664 results
Search Results
2. Impact of prophylactic wound closure in colorectal ESD on postoperative wound complications: A meta‐analysis.
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Fang, Zhengdong, Xu, Yan, and Huang, Xiaolin
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LARGE intestine surgery ,COLON surgery ,PREVENTIVE medicine ,SURGERY ,TREATMENT effectiveness ,META-analysis ,DESCRIPTIVE statistics ,SURGICAL blood loss ,SURGICAL complications ,ODDS ratio ,ENDOSCOPIC gastrointestinal surgery ,COMPARATIVE studies ,CONFIDENCE intervals ,DATA analysis software ,HEMORRHAGE ,PREVENTIVE health services ,EVALUATION - Abstract
Endoscopic submucosa dissection (ESD) has been applied extensively in the treatment of large intestine tumours due to its high total excision ratio. Nevertheless, there is a high incidence of adverse reactions in colon ESD, and the efficacy of prophylactic ESD following ESD in prevention of postoperative haemorrhage is still disputed. The purpose of this meta‐analysis is to evaluate the effectiveness of prophylaxis of wound closure in large intestine ESD after operation. For eligibility, we looked through three databases: PubMed, Embase and Cochrane Library. Heterogenity was measured by means of a chi‐square method of Q‐statistic and an I2 test. Fixed or random effects models were used for data processing. Based on the retrieval policy, we found a total of 1286 papers, and then we collected nine papers to extract the data. Regarding postoperative haemorrhage, there was a significant reduction in the risk of wound haemorrhage in the wound closure group than in the control group (OR, 0.29; 95% CI, 0.19–0.44 p < 0.0001). No statistical significance was found in the incidence of perforation in the wound closure and the control group (OR, 0.45; 95% CI, 0.19–1.03 p = 0.06). There was a significant reduction in the incidence of postoperation fever among those in the wound closure group than in the control group (OR, 0.37; 95% CI, 0.15–0.93 p = 0.04). Preventive endoscopic closure decreased the rate of ESD in colon disease, but did not significantly decrease the rate of postoperation perforation and postoperative fever. Future research will be required to clarify the risk factors and classify high‐risk individuals in order to formulate a cost‐effective prevention strategy. [ABSTRACT FROM AUTHOR]
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- 2024
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3. XMM- Newton publication statistics.
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Ness, J.-U., Parmar, A.N., Valencic, L.A., Smith, R., Loiseau, N., Salama, A., Ehle, M., and Schartel, N.
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NAVIGATION (Astronautics) ,DATA analysis software ,MODEL validation ,ASTRONOMICAL observations - Abstract
We assessed the scientific productivity of XMM- Newton by examining XMM- Newton publications and data usage statistics. We analyse 3272 refereed papers, published until the end of 2012, that directly use XMM- Newton data. The SAO/NASA Astrophysics Data System (ADS) was used to provide additional information on each paper including the number of citations. For each paper, the XMM- Newton observation identifiers and instruments used to provide the scientific results were determined. The identifiers were used to access the XMM-Newton Science Archive (XSA) to provide detailed information on the observations themselves and on the original proposals. The information obtained from these sources was then combined to allow the scientific productivity of the mission to be assessed. Since around three years after the launch of XMM- Newton there have been around 300 refereed papers per year that directly use XMM- Newton data. After more than 13 years in operation, this rate shows no evidence that it is decreasing. Since 2002, around 100 scientists per year become lead authors for the first time on a refereed paper which directly uses XMM- Newton data. Each refereed XMM- Newton paper receives around four citations per year in the first few years with a long-term citation rate of three citations per year, more than five years after publication. About half of the articles citing XMM- Newton articles are not primarily X-ray observational papers. The distribution of elapsed time between observations taken under the Guest Observer programme and first article peaks at 2 years with a possible second peak at 3.25 years. Observations taken under the Target of Opportunity programme are published significantly faster, after one year on average. The fraction of science time taken until the end of 2009 that has been used in at least one article is ∼90%. Most observations were used more than once, yielding on average a factor of two in usage on available observing time per year. About 20 % of all slew observations have been used in publications. The scientific productivity of XMM- Newton measured by the publication rate, number of new authors and citation rate, remains extremely high with no evidence that it is decreasing after more than 13 years of operations. [ABSTRACT FROM AUTHOR]
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- 2014
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4. Moving towards social inclusion: Engaging rural voices in priority setting for health.
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Tugendhaft, Aviva, Christofides, Nicola, Stacey, Nicholas, Kahn, Kathleen, Erzse, Agnes, Danis, Marion, Gold, Marthe, and Hofman, Karen
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HEALTH policy ,MEDICAL information storage & retrieval systems ,RURAL conditions ,PSYCHOLOGICAL vulnerability ,MEDICAL care ,UNIVERSAL healthcare ,MANN Whitney U Test ,DECISION making ,DESCRIPTIVE statistics ,RURAL health ,DATA analysis software ,SOCIODEMOGRAPHIC factors ,SOCIAL integration ,HEALTH planning - Abstract
Background: Achieving universal health coverage (UHC) in the context of limited resources will require prioritising the most vulnerable and ensuring health policies and services are responsive to their needs. One way of addressing this is through the engagement of marginalised voices in the priority setting process. Public engagement approaches that enable group level deliberation as well as individual level preference capturing might be valuable in this regard, but there are limited examples of their practical application, and gaps in understanding their outcomes, especially with rural populations. Objective: To address this gap, we implemented a modified priority setting tool (Choosing All Together—CHAT) that enables individuals and groups to make trade‐offs to demonstrate the type of health services packages that may be acceptable to a rural population. The paper presents the findings from the individual choices as compared to the group choices, as well as the differences among the individual choices using this tool. Methods: Participants worked in groups and as individuals to allocate stickers representing the available budget to different health topics and interventions using the CHAT tool. The allocations were recorded at each stage of the study. We calculated the median and interquartile range across study participants for the topic totals. To examine differences in individual choices, we performed Wilcoxon rank sum tests. Results: The results show that individual interests were mostly aligned with societal ones, and there were no statistically significant differences between the individual and group choices. However, there were some statistically significant differences between individual priorities based on demographic characteristics like age. Discussion: The study demonstrates that giving individuals greater control and agency in designing health services packages can increase their participation in the priority setting process, align individual and community priorities, and potentially enhance the legitimacy and acceptability of priority setting. Methods that enable group level deliberation and individual level priority setting may be necessary to reconcile plurality. The paper also highlights the importance of capturing the details of public engagement processes and transparently reporting on these details to ensure valuable outcomes. Public Contribution: The facilitator of the CHAT groups was a member from the community and underwent training from the research team. The fieldworkers were also from the community and were trained and paid to capture the data. The participants were all members of the rural community‐ the study represents their priorities. [ABSTRACT FROM AUTHOR]
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- 2024
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5. Global research status of localised scleroderma reported over the period 1993–2022: A 30‐year bibliometric analysis.
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Li, Zi‐Ming, Li, Tian‐Hao, Li, Zhu‐Jun, Wang, Li‐Quan, Long, Xiao, and Huang, Jiu‐Zuo
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SCLERODERMA (Disease) treatment ,TRANSFORMING growth factors-beta ,DERMATOMYOSITIS ,SYSTEMATIC reviews ,BIBLIOMETRICS ,PHOTOTHERAPY ,DIFFERENTIAL diagnosis ,CITATION analysis ,METHOTREXATE ,CANCER ,SCLERODERMA (Disease) ,DATA analysis software - Abstract
Localised scleroderma predominantly affects the skin with an unknown aetiology. Despite its clinical importance, no comprehensive bibliometric analysis has been conducted to assess the existing research landscape and future prospects for localised scleroderma. The articles related to localised scleroderma were retrieved from the WoSCC database and analysed by VOSviewer 1.6.10.0 (Leiden University, Netherlands), CiteSpace 6.1.R1 (Dreiser University, USA), and HistCite 2.1 (New York, United States). 2049 research papers pertaining to localised scleroderma spanning the years from 1993 to 2022 were extracted from the WoSCC database. The United States exhibited the highest productivity with 644 papers, accounting for 31.43% of the total output, followed by Germany with 206 papers (10.05%) and Italy with 200 papers (9.76%). Regarding academic institutions and journals, the University of Texas System and Dermatology published the most significant number of papers, and Professor Ihn, H emerged as the most prolific contributor among scholars. The top 10 cited references primarily concentrated on the diagnosis and treatment of localised scleroderma. "Phototherapy" and "methotrexate (MTX)" surfaced as the most recent and noteworthy keywords, representing the research hotspots in the domain of localised scleroderma. This bibliometric analysis furnishes valuable insights into the contemporary research landscape of localised scleroderma. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Effect of concomitant tricuspid annuloplasty on postoperative wound complications in heart failure patients undergoing mitral valve repair.
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Hou, Yuehui, Guo, Lan, Li, Yonghua, and Cai, Jin
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HEMORRHAGE risk factors ,TRICUSPID valve surgery ,MORTALITY risk factors ,MITRAL valve surgery ,RISK assessment ,MEDICAL information storage & retrieval systems ,RESEARCH funding ,HEART failure ,META-analysis ,DESCRIPTIVE statistics ,SURGICAL complications ,ODDS ratio ,MEDLINE ,MEDICAL databases ,SURGICAL site infections ,DATA analysis software ,CONFIDENCE intervals ,ONLINE information services ,COMPARATIVE studies ,DISEASE risk factors - Abstract
Tricuspid valve repair (TVR) combined with mitral valve surgery (MVS) has been a controversial issue. It is not clear whether the combined surgery has any influence on the occurrence of postoperative complications. The aim of this study was to compare the occurrence of complications including wound infection, wound bleeding, and mortality after MVS combined with or without TVR. By meta‐analysis, a total of 1576 papers were collected from 3 databases, and 7 of them were included. We provided the necessary data of 7 included studies such as the authors, publication date, country, surgical approach and case number, patient age, and so on. Statistical analysis was carried out with RevMan 5.3 software. We found that patients with heart failure accepting MVS combined with or without TVR, performed no statistically significant difference in postoperative wound infection (OR: 0.88; 95% CI: 0.29, 2.62; P = 0.81), wound bleeding (OR: 0.74; 95% CI: 0.3, 1.48; P = 0.39), and mortality (OR: 1.05; 95% CI: 0.42, 2.61; P = 0.92). In conclusion, current evidence indicated that the combined surgery had no additional risk of postoperative complications, and might be an effective alternative surgical approach to mitral valve diseases accompany with tricuspid regurgitation. However, for the limited case size, it was required to support the findings with a large number of cases in further studies. [ABSTRACT FROM AUTHOR]
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- 2024
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7. The Impact of Occupational Therapy on the Self‐Management of Rheumatoid Arthritis: A Mixed Methods Systematic Review.
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Gavin, James P., Rossiter, Laura, Fenerty, Vicky, Leese, Jenny, Adams, Jo, Hammond, Alison, Davidson, Eileen, and Backman, Catherine L.
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PAIN management ,AMED (Information retrieval system) ,HEALTH self-care ,PATIENT education ,COMMUNITY health services ,SELF-management (Psychology) ,RESEARCH funding ,SELF-efficacy ,RHEUMATOID arthritis ,FATIGUE (Physiology) ,CINAHL database ,REHABILITATION ,TREATMENT effectiveness ,FUNCTIONAL status ,DESCRIPTIVE statistics ,PROBLEM solving ,GOAL (Psychology) ,BEHAVIOR ,GROUP psychotherapy ,PSYCHOLOGICAL adaptation ,OCCUPATIONAL therapy ,EXPERIENCE ,SYSTEMATIC reviews ,MEDLINE ,MUSCLE strength ,THEMATIC analysis ,DATA analysis software ,COGNITIVE therapy ,PATIENTS' attitudes ,PSYCHOLOGY information storage & retrieval systems ,PHYSICAL mobility ,ACTIVITIES of daily living ,EVALUATION - Abstract
Objective: To determine the impact of occupational therapy (OT) on the self‐management of function, pain, fatigue, and lived experience for people living with rheumatoid arthritis (RA). Methods: Five databases and gray literature were searched up to June 30, 2022. Three reviewers screened titles and abstracts, with two independently extracting and assessing full texts using the Cochrane risk of bias (quantitative) and Critical Appraisal Skills Programme (qualitative) tools to assess study quality. Studies were categorized into four intervention types. Grading of Recommendations, Assessment, Development and Evaluations (GRADE) (quantitative) and GRADE‐ Confidence in Evidence from Reviews of Qualitative research (qualitative) were used to assess the quality of evidence for each intervention type. Results: Of 39 eligible papers, 29 were quantitative (n = 2,029), 4 qualitative (n = 50), and 6 mixed methods (n = 896). Good evidence supports patient education and behavior change programs for improving pain and function, particularly group sessions of joint protection education, but these do not translate to long‐term improvements for RA (>24 months). Comprehensive OT had mixed evidence (limited to home OT and an arthritis gloves program), whereas limited evidence was available for qualitative insights, splints and assistive devices, and self‐management for fatigue. Conclusion: Although patient education is promising for self‐managing RA, no strong evidence was found to support OT programs for self‐managing fatigue or patient experience and long‐term effectiveness. More research is required on lived experience, and the long‐term efficacy of self‐management approaches incorporating OT, particularly timing programs to meet the individual's conditional needs (i.e., early or established RA) to build on the few studies to date. [ABSTRACT FROM AUTHOR]
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- 2024
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8. Scientific research ability of specialist nurses in Guangxi Zhuang Autonomous Region, China: A cross‐sectional study.
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Huang, Ziwei, Liu, Yuanfang, Lei, Yi, Wei, Yiping, Chen, Xiaomei, and Lan, Yuansong
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NATIONAL competency-based educational tests ,STATISTICS ,CROSS-sectional method ,NURSING research ,CLINICAL competence ,QUESTIONNAIRES ,SCALE analysis (Psychology) ,DESCRIPTIVE statistics ,RESEARCH funding ,NURSE practitioners ,DATA analysis software ,LOGISTIC regression analysis - Abstract
Aim: This study investigated the scientific research ability of Chinese specialist nurses (SNs) in the Guangxi Zhuang Autonomous Region and its influencing factors. Design: A cross‐sectional design. Methods: A total of 652 SNs in the Guangxi Zhuang Autonomous Region were investigated from March to October 2021. The nursing scientific research ability level was measured using the Nursing Research Competence of Nurses Self‐evaluation Scale. Descriptive statistics, univariate analysis and ordinal logistic regression analysis were used to evaluate factors affecting the scientific research ability of SNs. Results: The median score of scientific research ability of SNs was 31 (interquartile range: 19–41). Approximately 74.8% of clinical speciality nurses had low scientific research ability. Educational background, working hospital level, being the first author of a published paper and successful application for scientific research projects were identified as factors influencing scientific research ability score. [ABSTRACT FROM AUTHOR]
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- 2023
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9. Enhancing the education of paediatric nurses: A positive step towards achieving sustainable development goals.
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Nkurunziza, Aimable, Katende, Godfrey, Uwimana, Philomene, Moreland, Patricia J., Rosa, William E., Umwangange, Marie Louise, Kayiranga, Dieudonne, Rugema, Joselyne, and Mukeshimana, Madeleine
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OCCUPATIONAL roles ,HEALTH policy ,NURSING practice ,PEDIATRIC nurses ,DESCRIPTIVE statistics ,NURSES ,INTERPROFESSIONAL relations ,SUSTAINABLE development ,DATA analysis software ,MEDICAL needs assessment ,GOAL (Psychology) - Abstract
Aim: The aim of this discursive paper was to describe and expound on how paediatric nurses will be able to address the needs of children and adolescents through the lens of selected Sustainable Development Goals (SDGs) in Rwanda. Design: A discursive analysis of SDGs relating to the roles of paediatric nurses in the context of Rwanda. Methods: A discursive method using SDGs as a guiding framework is used in this paper. We drew on our own experiences and supported them with the available literature. Results: A collection of contextually relevant examples of how paediatric nurses will be able to address the needs of children and adolescents through the lens of selected SDGs in Rwanda was discussed. The selected SDGs expounded on were: no poverty, good health and well‐being, quality of education, decent work and economic growth, reduced inequalities, and partnerships for the goals. Conclusions: There is no doubt that the paediatric nurses in Rwanda play undeniable key roles in attaining SDGs and their targets. Thus, there is a need to train more paediatric nurses with the support of the interdisciplinary partners. Collaboratively, this is possible in the bid to ensure equitable and accessible care to the current and future generations. Public contribution: This discursive paper is intended to inform the different stakeholders in nursing practice, research, education and policy to support and invest in the advanced education of paediatric nurses for attainment of the SDGs. [ABSTRACT FROM AUTHOR]
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- 2023
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10. Strengthening mental health research outcomes through genuine partnerships with young people with lived or living experience: A pilot evaluation study.
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Lee, Grace Yeeun, McKenna, Sarah, Song, Yun Ju C., Hutcheon, Alexis, Hockey, Samuel J., Laidler, Rachael, Occhipinti, Jo‐An, Perry, Claudia, Lindsay‐Smith, Tara, Ramsay, Annabel, Choi, Skye, Feirer, Dakota, Shim, Andrew W., Cottle, Jessica, Mukherjee, Anith, New, Joshua, Yu, Rebecca, Scott, Elizabeth Mary, Freebairn, Louise, and Hickie, Ian Bernard
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PSYCHIATRY ,PILOT projects ,RESEARCH methodology ,QUANTITATIVE research ,EXPERIENCE ,QUALITATIVE research ,SURVEYS ,SELF-efficacy ,CONCEPTUAL structures ,ACTION research ,DESCRIPTIVE statistics ,THEMATIC analysis ,DATA analysis software - Abstract
Background: Despite increasing support for stakeholder inclusion in research, there is limited evaluative research to guide safe (i.e., youth‐friendly) and meaningful (i.e., non‐tokenistic) partnerships with young people with lived experience of mental ill‐health in research. This paper describes a pilot evaluation and iterative design of a Youth Lived Experience Working Group (LEWG) protocol that was established by the Youth Mental Health and Technology team at The University of Sydney's Brain and Mind Centre, based on the results of two studies. Methods: Study one consisted of a pilot evaluation of the extent to which youth partners felt empowered to contribute, to qualitatively explore how LEWG processes could be improved. Youth partners completed online surveys, and results were shared over two LEWG meetings in 2021 to empower youth partners to collectively identify actions of positive change regarding LEWG processes. These meetings were audio‐recorded and transcripts were subsequently coded using thematic analysis. Study two assessed whether LEWG processes and proposed improvements were acceptable and feasible from the perspective of academic researchers via an online survey in 2022. Results: Quantitative and qualitative data collected from nine youth partners and 42 academic researchers uncovered initial learnings regarding facilitators, motivators, and barriers to partnering with young people with lived experience in research. Implementing clear processes for youth partners and academic researchers on effective partnership strategies, providing training opportunities for youth partners to develop research skills, and providing regular updates on how youth partner contributions led to research outcomes were identified as key facilitators. Conclusions: This pilot study provides insight into a growing international field on how to optimise participatory processes so that researchers and young people with lived experience can be better supported and engaged to make meaningful contributions to mental health research. We argue that more transparency is needed around participatory research processes so that partnerships with young people with lived experience are not merely tokenistic. Consumer Contributions: Our study has also been approved by and reflects the concepts and priorities of our youth lived experience partners and lived experience researchers, all of whom are authors of this paper. [ABSTRACT FROM AUTHOR]
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- 2023
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11. In praise of postgraduate career clinics: Translating health professionals' willingness to engagement.
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Redwood, T., Ward, A., Ali, T., Poole, C., O'Dell, C., and Rebaudo, D.
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CONTINUING education centers ,VOCATIONAL guidance ,ATTITUDES of medical personnel ,PROFESSIONAL employee training ,RESEARCH methodology ,MEDICAL care ,CONTINUING medical education ,SURVEYS ,MARKETING ,ADVERTISING ,UNIVERSITIES & colleges ,MASTERS programs (Higher education) ,DESCRIPTIVE statistics ,QUESTIONNAIRES ,RESEARCH funding ,EMPIRICAL research ,DATA analysis software ,THEMATIC analysis ,EMPLOYEE retention - Abstract
Aim: To capture and retain healthcare staff in postgraduate courses relevant to individual career aspirations, service requirements and continuous practice development (CPD) within an English UK university. Design: Two virtual career clinics for postgraduate practitioners to engage in CPD offers within the university. An online post‐enrolment online survey to explore their experiences of engagement with the university. Methods: Mixed: qualitative and quantitative methods. Engaging 10 participants attended the career clinics, and 42 participants with an online survey. Results: The career clinics were well received by participants who mapped CPD requirements and individual career aspirations. The surveys exposed challenges with marketing and enrolment; however, these were mitigated with support. Four recommendations are presented within this paper applicable to the international postgraduate education of all health practitioners. [ABSTRACT FROM AUTHOR]
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- 2024
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12. Insights from defining nurses' career success: An integrative review.
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Yamada, Masako, Asakura, Kyoko, Sugiyama, Shoko, and Takada, Nozomu
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ONLINE information services ,CINAHL database ,VOCATIONAL guidance ,DESCRIPTIVE statistics ,RESEARCH funding ,NURSING students ,MEDLINE ,DATA analysis software ,SUCCESS - Abstract
Aims: To review the literature and identify factors that make sense of and influence nurses' career success. We sought to provide insights into achieving nurses' career success. Design: An integrative review conducted in May 2022 using Whittemore and Knafl's methodology of integrative review. Methods: The databases searched were PubMed, Web of Science, Scopus, and CINAHL. Search criteria included the keywords "nurs*" and "career success" in the title and abstract. The quality of the reviewed papers was assessed using the JBI Critical Appraisal Tool for cross‐sectional studies and qualitative research. We extracted five types of information from quantitative studies: the definition of career success, factors of career success instruments, reliability or validity of career success instruments, and factors influencing nursing career success. Furthermore, we extracted two types of information from qualitative studies: themes that imply career success and factors that influence nurses' career success. Primary data were categorized into two perspectives: (1) what nurses' career success means and (2) what influences nurses' career success. Categorized data were unified into similar contents. Themes were developed from unified subgroups. Results: Fourteen studies were included in the analysis. Seven themes were integrated into the factors that make sense of nurses' career success: satisfaction, positive attitude towards work, quality work in nursing, continuation of career and professional development, positive interaction at work, person–organization fit, and enrichment of an individual's life. Three themes were integrated into the factors influencing nursing career success: personal resources, positive behavior toward nursing work and research, and job resources and environment. No Patient or Public Contribution: Patients or members of the public were not involved in this review. [ABSTRACT FROM AUTHOR]
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- 2024
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13. A bibliometric study: Relevant studies on scar laser therapy since the 21st century.
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Zuo, Yiwei, Deng, Kexin, Tang, Fengjie, Chen, Shuyue, Liu, Daisong, Han, Zhaofei, Shi, Ke, Chen, Jia, Li, Ping, Zhou, Jianda, and Liu, Can
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WOUND healing ,SCARS ,BIBLIOMETRICS ,BURNS & scalds ,LASERS ,LASER therapy ,RESEARCH funding ,SOFTWARE analytics ,DATA analysis software ,MEDICAL research - Abstract
To summarise research studies on scar laser therapy since the 21st century using bibliometric methods, and to speculate on the possible development in the future. The literature about scar laser therapy in Web of Science database was searched. CiteSpace and VOSviewer were used to analyse main countries, institutions, journals,subject hotspots and trends, etc. A total of 884 papers have been published since the 21st century. These publications were written by 653 authors from 515 institutions in 58 countries. The United States published 287 papers in this field and ranks first. Laser in Surgery and Medicine is the most widely published journal, with Shumaker as the core author. The main keyword clustering includes terms such as combination therapy, wound healing, fractional photothermolysis, experience, scar formation, etc. CiteSpace and VOSviewer were used to sort out and summarise the countries, institutions, authors, journals, research hotspots and frontier topics of related literature about scar laser therapy since the 21st century. The current situation of its application and basic scientific research in clinical treatments were summarised briefly. This provides a new idea for the development and research of scar laser therapy in the future. [ABSTRACT FROM AUTHOR]
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- 2024
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14. Understanding how shared decision‐making approaches and patient aids influence patients with advanced cancer when deciding on palliative treatments and care: A realist review.
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Edwards, Michelle, Holland‐Hart, Daniella, Mann, Mala, Seddon, Kathy, Buckle, Peter, Longo, Mirella, Byrne, Anthony, and Nelson, Annmarie
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TUMOR treatment ,EVALUATION of medical care ,CINAHL database ,PSYCHOLOGY information storage & retrieval systems ,MEDICAL information storage & retrieval systems ,PATIENT decision making ,TUMOR classification ,COMMUNICATION ,DECISION making ,DESCRIPTIVE statistics ,DATA analysis software ,MEDLINE ,PALLIATIVE treatment - Abstract
Background: Patients with advanced incurable cancer face difficult decisions about palliative treatment options towards their end of life. However, they are often not provided with the appropriate information and support that is needed to make informed decisions. This review aimed to identify contexts and mechanisms associated with communication tools, patient decision‐aids and shared decision‐making (SDM) approaches that influence patient outcomes. Methods: We used a realist review method to search for published studies of patients (adults > 18) with advanced cancer who were expected to make a decision about palliative treatment and/or supportive care in consultation with healthcare practitioners. We appraised and synthesised literature describing the contexts of (when and how) decision aids and SDM approaches are used, and how these contexts interact with mechanisms (resources and reasoning) which impact patient outcomes. Stakeholders including academics, palliative healthcare professionals (HCPs) and people with lived experience of supporting people with advanced incurable cancer contributed to identifying explanatory accounts. These accounts were documented, analysed and consolidated to contribute to the development of a programme theory. Results: From the 33 included papers, we consolidated findings into 20 explanatory accounts to develop a programme theory that explains key contexts and mechanisms that influence patient and SDM. Contexts include underlying patients' and HCPs' attitudes and approaches. These need to be understood in relation to key mechanisms, including presenting information in multiple formats and providing adequate time and opportunities to prepare for and revisit decisions. Contexts influenced mechanisms which then influence the levels of patient decisional satisfaction, conflict and regret. Conclusions: Our programme theory highlights mechanisms that are important in supporting shared treatment decisions for advanced noncurative cancer. The findings are informative for developing and evaluating interventions to improve understanding and involvement in SDM for patients with advanced incurable cancer. Patient and Public Contribution: We included patient and public involvement (PPI) representatives in four stakeholder meetings. PPI helped to define the scope of the review, identify their unique experiences and perspectives, synthesise their perspectives with our review findings, make decisions about which theories we included in our programme theory and develop recommendations for policy and practice and future research. [ABSTRACT FROM AUTHOR]
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- 2023
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15. Utilization of Integrated Child Development Services (ICDS) and its linkages with undernutrition in India.
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Singh, Shri K., Chauhan, Alka, Alderman, Harold, Avula, Rasmi, Dwivedi, Laxmi K., Kapoor, Rati, Meher, Trupti, Menon, Purnima, Nguyen, Phuong H., Pedgaonker, Sarang, Puri, Parul, and Chakrabarti, Suman
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NATIONAL health services ,CROSS-sectional method ,LEANNESS ,CHILD health services ,LOGISTIC regression analysis ,MULTIVARIATE analysis ,CHILD development ,DATA analysis software ,CHILDREN - Abstract
The Integrated Child Development Services (ICDS) programme has been the central focus of the POSHAN Abhiyaan to combat maternal and child malnutrition under the national nutrition mission in India. This paper examined the linkages between utilization of ICDS and underweight among children aged 6–59 months. The study utilized data from two recent rounds of the National Family Health Survey (NFHS‐4 [2015–2016] and NFHS‐5 [2019–2021]). Descriptive analyses were used to assess the change in utilization of ICDS and the prevalence of underweight at the national and state levels. Multivariable logistic regressions were performed to examine factors associated with the utilization of ICDS and underweight. Linkages between utilization of ICDS and underweight were examined using the difference‐in‐differences (DID) approach. Utilization of ICDS increased from 58% in 2015–2016 to 71% in 2019–2021. The prevalence of underweight decreased from 37% to 32% in the same period. Changes in ICDS utilization and underweight prevalence varied considerably across states, socioeconomic and demographic characteristics. Results from decomposition of DID models suggest that improvements in ICDS explained 9%–12% of the observed reduction in underweight children between 2016 and 2021, suggesting that ICDS made a modest but meaningful contribution in addressing undernutrition among children aged 6–59 months in this period. Key messages: Utilization of ICDS services among children aged 6–59 months increased from 58% (2015–2016) to 71% (2019–2021) nationally. The programme's expansion was prominent in urban areas, showcasing progress across states.The prevalence of underweight among children in India declined by 5 percentage points from 2016 to 2021, but almost one‐third of children are still underweight.Increase in coverage and service delivery strengthening of ICDS explained 9%–12% of the observed reduction in underweight between 2016 and 2021.The findings suggest that optimizing quality of interventions under ICDS can have a modest but meaningful contribution in reducing childhood underweight in India. [ABSTRACT FROM AUTHOR]
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- 2024
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16. Effectiveness of a nonweight‐based daily dosage of ready‐to‐use therapeutic food in children suffering from uncomplicated severe acute malnutrition: A nonrandomized, noninferiority analysis of programme data in Afghanistan.
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Bahwere, Paluku, Funnell, Grace, Qarizada, Ahmad Nawid, Woodhead, Sophie, Bengnwi, Wilfred, and Le, Minh Tram
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PEARSON correlation (Statistics) ,MALNUTRITION ,FOOD consumption ,T-test (Statistics) ,RESEARCH funding ,BODY weight ,KRUSKAL-Wallis Test ,CLINICAL trials ,TREATMENT effectiveness ,DESCRIPTIVE statistics ,CHI-squared test ,ELEMENTAL diet ,DOSE-response relationship in biochemistry ,LONGITUDINAL method ,CONFIDENCE intervals ,DATA analysis software ,THERAPEUTICS ,CHILDREN - Abstract
Severe acute malnutrition (SAM) remains a major global public health problem. SAM cases are treated using ready‐to‐use therapeutic food (RUTF) at a dosage of ∼200 kcal/kg/day per the standard treatment protocol (STD). Emerging evidence on simplifications to the standard protocol, which among other adaptations, includes reducing the daily RUTF dosage, indicates that it is effective and safe for treating children with SAM. In response to a foreseen stock shortage of RUTF, the government of Afghanistan endorsed the temporary use of a modified treatment protocol in which the daily RUTF dosage was prescribed at 1000 kcal/day (irrespective of body weight) until the child achieved moderate acute malnutrition status (weight‐for‐height z‐score ≥ −3 or mid‐upper arm circumference [MUAC] ≥ 115 mm), at which point 500 kcal/day was prescribed until cured (modified treatment protocol [MTP]). In this paper, we report the results of this nonweight‐based daily RUTF dosage experience. Data of 2042 children with SAM, treated using either the STD protocol (n = 269) or the MTP protocol (n = 1773) from August 2019 to March 2021 in five provinces, were analyzed. The per‐protocol analyses confirmed noninferiority of MTP protocol when compared to STD protocol for recovery rate [93.3% vs. 90.2%; ∆ (95% confidence interval, CI) = 3.1 (−0.9; 7.2) %] and length‐of‐stay [82.6 vs. 75.6 days; ∆ (95% CI) = 6.9 (3.3; 10.5) days], considering the margin of noninferiority of −10% and +14 days, respectively. Weight gain velocity was smaller in the MTP protocol group than in the STD protocol group [3.7 (1.7) vs. 5.2 (2.9) g/kg/day; ∆ (95% CI) = −1.5 (−1.8, −1.2); p < 0.001]. The STD group had a significantly higher mean than the MTP group for absolute MUAC gain [∆ (95% CI) = 1.7 (1.0; 2.3) mm; p < 0.001] and the MUAC velocity [∆ (95% CI) = 0.29 (0.20; 0.37) mm/week; p < 0.001]. Our results confirm the noninferiority of a nonweight‐based daily dosage and support the endorsement of this modification as an alternative to the standard protocol in resource‐constrained contexts. Key messages: More evidence supporting the use of the nonweight‐based daily ready‐to‐use therapeutic food (RUTF) dosage for treating uncomplicated severe acute malnutrition (SAM), in specific contexts, is needed.Our real‐world prospective nonrandomized study showed that the fixed nonweight‐based daily RUTF dosage protocol is as effective as the standard weight‐based protocol for treating uncomplicated SAM in children <5 in the Afghanistan context.Our findings support the reflection of a nonweight‐based daily RUTF dosage in resource‐constrained contexts in national and global policies and guidelines to improve coverage of all children in need of treatment. [ABSTRACT FROM AUTHOR]
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- 2024
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17. Video‐based interventions promoting social behavioural skills for autistic children and young people: An evidence and gap map.
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McConnell, Karen, Keenan, Ciara, Storey, Catherine, and Thurston, Allen
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PATIENT education ,EVIDENCE gaps ,RESEARCH funding ,AUTISM ,DESCRIPTIVE statistics ,SYSTEMATIC reviews ,MEDLINE ,SOCIAL skills ,MEDICAL databases ,DATA analysis software ,SOCIAL skills education ,VIDEO recording ,PSYCHOLOGY information storage & retrieval systems ,ERIC (Information retrieval system) - Abstract
Background: Video‐based interventions (VBIs) are an approach that can be used to promote social behavioural skills for autistic children and young people. Despite an abundance of literature in this area, previous evidence syntheses are limited by their exclusive search strategies and eligibility criteria. Therefore, there is a lack of comprehensive evidence syntheses to provide insight on whether these interventions work, for whom, and in what circumstances. Evidence and Gap Maps (EGMs) are used to collate vast literature on a broad topic area such as this, highlighting areas for synthesis, and identifying gaps for future research. Objectives: To identify, map and synthesise existing primary research on VBIs promoting social behavioural skills for autistic children and young people, creating a live, searchable and publicly available EGM. Search Methods: Searches were conducted in electronic databases (n = 8), web search engines, and other repositories including published papers and grey literature. The search strategy was developed around two concepts including (1) terms related to autism, and (2) terms related to VBIs. Searches were conducted in May 2021. Selection Criteria: All primary studies evaluating the effectiveness of VBIs in promoting social behaviours for autistic children and young people aged 3–18 were included in the EGM. Data Collection and Analysis: Search results were imported into Eppi‐Reviewer where duplicates of identical studies were removed. Titles and abstracts were then screened by two independent reviewers. Potentially eligible full texts were located and also screened by two reviewers. Data were then extracted on study design, participant characteristics, type of intervention, type of outcome, and country of study, by one of three reviewers. EPPI‐Mapper was used to create the interactive EGM. Main Results: The current EGM contains 438 studies reporting on 394 single subject research designs, 25 randomised controlled trials, 15 non‐randomised group designs, and 8 pretest–posttest designs. Included studies evaluated VBIs in all male (n = 238), mixed gender (n = 172) or all female (n = 17) samples. VBIs employed included video modelling (n = 273), video self‐modelling (n = 82), point‐of‐view modelling (n = 61), video prompting (n = 57), video feedback (n = 12) and computer‐based video instruction (n = 4). The most frequently used models were adults (n = 191) and peers (n = 135). In relation to social outcomes, almost half evaluated social engagement (n = 199) with limited studies looking at safety (n = 9) and community (n = 7) skills. Authors' Conclusions: This EGM provides a valuable resource for policy‐makers, practitioners, researchers, funders and members of the public to access evidence on VBIs promoting social behavioural skills in autistic children and young people. The map has identified areas of sufficient research where evidence can undergo synthesis. In addition, important gaps in the evidence were highlighted and suggest further research is warranted in all female samples and less frequently evaluated types of VBIs and social outcomes. Evidence included in this EGM will be further explored via systematic review and meta‐analysis on control group designs. [ABSTRACT FROM AUTHOR]
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- 2024
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18. Assessing the Gap Between Women's Expectations and Perceptions of the Quality of Intrapartum Care in Jordan: A Two‐Stage Study Using the SERVQUAL Model.
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Hijazi, Heba, Al‐Yateem, Nabeel, Al abdi, Rabah, Baniissa, Wegdan, Alameddine, Mohamad, Al‐Sharman, Alham, AlMarzooqi, Alounoud, Subu, Muhammad Arsyad, Ahmed, Fatma Refaat, Hossain, Ahmed, Sindiani, Amer, and Hayajneh, Yaseen
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EMPATHY ,MEDICAL quality control ,EVIDENCE gaps ,RESEARCH funding ,MEDICAL care ,RESEARCH evaluation ,STATISTICAL sampling ,ATTITUDES of mothers ,CHILDBIRTH education ,TERTIARY care ,DESCRIPTIVE statistics ,CONTINUUM of care ,CHI-squared test ,MANN Whitney U Test ,INTRAPARTUM care ,HEALTH planning ,SURVEYS ,PRENATAL care ,EXPERIENCE ,MATHEMATICAL models ,RESEARCH ,PAIN management ,RESEARCH methodology ,WOMEN'S health ,THEORY ,QUALITY assurance ,DATA analysis software ,FACTOR analysis ,CONFIDENCE intervals ,SOCIODEMOGRAPHIC factors - Abstract
Introduction: Although Jordan has made significant progress toward expanding the utilization of facility‐based intrapartum care, prior research highlights that poor service quality is still persistent. This study aimed to identify quality gaps between women's expectations and perceptions of the actual intrapartum care received, while exploring the contributing factors. Methods: Utilizing a pre–post design, quality gaps in intrapartum care were assessed among 959 women pre‐ and postchildbirth at a prominent tertiary hospital in northern Jordan. Data were gathered using the SERVQUAL scale, measuring service quality across reliability, responsiveness, tangibles, assurance, and empathy dimensions. Results: The overall mean gap score between women's expectations and perceptions of the quality of intrapartum care was −0.60 (±0.56). The lowest and highest mean gap scores were found to be related to tangibles and assurance dimensions, −0.24 (±0.39) and −0.88 (±0.35), respectively. Significant negative quality gaps were identified in the dimensions of assurance, empathy, and responsiveness, as well as overall service quality (p < 0.001). The MLR analyses highlighted education (β = 0.61), mode of birth (β = −0.60), admission timing (β = −0.41), continuity of midwifery care (β = −0.43), physician's gender (β = −0.62), active labour duration (β = 0.37), and pain management (β = −0.33) to be the key determinants of the overall quality gap in intrapartum care. Conclusion: Our findings underscore the importance of fostering a labour environment that prioritizes enhancing caregivers' empathetic, reassuring, and responsive skills to minimize service quality gaps and enhance the overall childbirth experience for women in Jordan. Patient or Public Contribution: This paper is a collaborative effort involving women with lived experiences of childbirth, midwives, and obstetrics and gynaecologist physicians. The original idea, conceptualization, data generation, and coproduction, including manuscript editing, were shaped by the valuable contributions of stakeholders with unique perspectives on intrapartum care in Jordan. [ABSTRACT FROM AUTHOR]
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- 2024
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19. The psychosocial impact of a chronic disease in Ireland: Burdens and helpful practices for a life with epidermolysis bullosa.
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Salamon, Gudrun, Field‐Werners, Ursula, Strobl, Sophie, Hübl, Vinzenz, and Diem, Anja
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CHRONIC diseases & psychology ,COMMUNITY health services ,MEDICAL care use ,SOMATOFORM disorders ,HEALTH services accessibility ,PSYCHOTHERAPY ,RESEARCH funding ,HEALTH status indicators ,ENDOWMENTS ,SATISFACTION ,EPIDERMOLYSIS bullosa ,RARE diseases ,DISEASE management ,QUESTIONNAIRES ,KRUSKAL-Wallis Test ,BANDAGES & bandaging ,MANN Whitney U Test ,DESCRIPTIVE statistics ,SEVERITY of illness index ,THEMATIC analysis ,FAMILY attitudes ,PHYSICIAN practice patterns ,RESEARCH methodology ,QUALITY of life ,PATIENT-professional relations ,EXTENDED families ,FACTOR analysis ,QUALITY assurance ,COMPARATIVE studies ,DATA analysis software ,SOCIAL support ,INTERPERSONAL relations ,SURGICAL dressings ,DRUGS ,PSYCHOSOCIAL factors ,PHYSICAL mobility ,MEDICAL care costs ,NONPARAMETRIC statistics ,PATIENTS' attitudes - Abstract
Objective: Although Ireland has one of the highest levels of well‐being in Europe, having a health condition has been found to have a direct negative impact. The aim of this study is to evaluate the current situation and the experiences of patients with epidermolysis bullosa (EB), a rare genetic skin disease, and their relatives living in Ireland, with a focus on burdens and helpful practices. Methods and Measures: In a mixed‐methods design, a series of standardised questionnaires were combined with open‐ended questions. Via an online survey, data from n = 59 EB patients and relatives of EB patients living in Ireland were collected. Results: EB affects both the patients and their relatives. Burdens were found in relation to the visibility of EB, the degree of severity, the current health status, reduced mobility, the financial impact of EB, the psychosocial impact and personal and social resources. The paper also analyses existing resources and highlights opportunities for support and needs of improvement. Conclusion: Quality of life with EB is influenced by somatic symptoms and the psychosocial burden. Individual helpful practices in dealing with this rare disease can be considered as mediators, but they need to be supported by structural and healthcare improvements. Patient or Public Contribution: The perspective of EB patients, their relatives and EB experts were taken into account in the development of the study design via two feedback loops with the EB patient organisations DEBRA Ireland and DEBRA Austria. The design was adapted accordingly. Additionally, by including open‐ended questions, patients and relatives could contribute their individual perspectives and add insights into their lives with EB that might not have been captured with the structured online survey alone. [ABSTRACT FROM AUTHOR]
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- 2024
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20. Barriers and facilitators of self‐management of diabetes amongst people experiencing socioeconomic deprivation: A systematic review and qualitative synthesis.
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Woodward, Abi, Walters, Kate, Davies, Nathan, Nimmons, Danielle, Protheroe, Joanne, Chew‐Graham, Carolyn A., Stevenson, Fiona, and Armstrong, Megan
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DIABETES prevention ,MEDICAL information storage & retrieval systems ,AMED (Information retrieval system) ,HEALTH literacy ,LIFESTYLES ,SELF-management (Psychology) ,RESEARCH funding ,SOCIOECONOMIC factors ,CINAHL database ,CULTURE ,SYSTEMATIC reviews ,MEDLINE ,THEMATIC analysis ,DATA analysis software ,SOCIAL isolation ,PSYCHOLOGY information storage & retrieval systems ,MEDICAL care costs ,DIET - Abstract
Background: The number of people living with diabetes is rising worldwide and a higher prevalence of diabetes has been linked to those experiencing socioeconomic deprivation. Self‐management strategies are vital and known to reduce the risks of long‐term complications amongst people living with diabetes. Lack of knowledge about self‐care activity required to manage diabetes is a key barrier to successful self‐management. Self‐management interventions can be less effective in socioeconomically deprived populations which can increase the risk of exacerbating health inequalities. The purpose of this review is to identify and synthesise qualitative evidence on the barriers and facilitators of self‐management of diabetes amongst people who are socioeconomically disadvantaged. Methods: MEDLINE, EMBASE, AMED, PsycINFO and CINAHL Plus were searched for qualitative studies concerning self‐management of multiple long‐term conditions amongst socioeconomically disadvantaged populations. Relevant papers which focused on diabetes were identified. Data were coded and thematically synthesised using NVivo. Findings: From the search results, 79 qualitative studies were identified after full‐text screening and 26 studies were included in the final thematic analysis. Two overarching analytical themes were identified alongside a set of subthemes: (1) Socioeconomic barriers to diabetes self‐management; healthcare costs, financial costs of healthy eating, cultural influences, living in areas of deprivation, competing priorities and time constraints, health literacy, (2) facilitators of diabetes self‐management; lifestyle and having goals, support from healthcare providers, informal support. Discussion: Self‐management of diabetes is challenging for people experiencing socioeconomic deprivation due to barriers associated with living in areas of deprivation and financial barriers surrounding healthcare, medication and healthy food. Support from healthcare providers can facilitate self‐management, and it is important that people with diabetes have access to interventions that are designed to be inclusive from a cultural perspective as well as affordable. Patient or Public Contribution: A patient advisory group contributed to the research questions and interpretation of the qualitative findings by reflecting on the themes developed. [ABSTRACT FROM AUTHOR]
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- 2024
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21. Towards an Implementation‐STakeholder Engagement Model (I‐STEM) for improving health and social care services.
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Potthoff, Sebastian, Finch, Tracy, Bührmann, Leah, Etzelmüller, Anne, van Genugten, Claire R., Girling, Melissa, May, Carl R., Perkins, Neil, Vis, Christiaan, and Rapley, Tim
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STAKEHOLDER analysis ,MATHEMATICAL models ,RESEARCH methodology ,INTERNET ,GROUNDED theory ,MEDICAL care ,INTERVIEWING ,QUALITATIVE research ,THEORY ,QUALITY assurance ,RESEARCH funding ,DESCRIPTIVE statistics ,SOCIAL services ,DATA analysis software ,EMPIRICAL research ,COGNITIVE therapy ,MEDICAL coding - Abstract
Background: The implementation science literature acknowledges a need for engagement of key stakeholders when designing, delivering and evaluating implementation work. To date, the literature reports minimal or focused stakeholder engagement, where stakeholders are engaged in either barrier identification and/or barrier prioritisation. This paper begins to answer calls from the literature for the development of tools and guidance to support comprehensive stakeholder engagement in implementation research and practice. The paper describes the systematic development of the Implementation‐STakeholder Engagement Model (I‐STEM) in the context of an international, large‐scale empirical implementation study (ImpleMentAll) aimed at evaluating the effectiveness of a tailored implementation toolkit. The I‐STEM is a sensitising tool that defines key considerations and activities for undertaking stakeholder engagement activities across an implementation process. Methods: In‐depth, semistructured interviews and observations were conducted with implementers who were tailoring implementation strategies to integrate and embed internet‐based cognitive behavioural therapy (iCBT) services in 12 routine mental health care organisations in nine countries in Europe and Australia. The analytical process was informed by principles of first‐ and third‐generation Grounded Theory, including constant comparative method. Results: We conducted 55 interviews and observed 19 implementation‐related activities (e.g., team meetings and technical support calls). The final outcome of our analysis is expressed in an initial version of the I‐STEM, consisting of five interrelated concepts: engagement objectives, stakeholder mapping, engagement approaches, engagement qualities and engagement outcomes. Engagement objectives are goals that implementers plan to achieve by working with stakeholders in the implementation process. Stakeholder mapping involves identifying a range of organisations, groups or people who may be instrumental in achieving the engagement objectives. Engagement approaches define the type of work that is undertaken with stakeholders to achieve the engagement objectives. Engagement qualities define the logistics of the engagement approach. Lastly, every engagement activity may result in a range of engagement outcomes. Conclusion: The I‐STEM represents potential avenues for substantial stakeholder engagement activity across key phases of an implementation process. It provides a conceptual model for the planning, delivery, evaluation and reporting of stakeholder engagement activities. The I‐STEM is nonprescriptive and highlights the importance of a flexible, iterative approach to stakeholder engagement. It is developmental and will require application and validation across a range of implementation activities. Patient or Public Contribution: Patient contribution to ImpleMentAll trial was facilitated by GAMIAN‐Europe at all stages—from grant development to dissemination. GAMIAN‐Europe brings together a wide variety of patient representation organisations (local, regional and national) from almost all European countries. GAMIAN‐Europe was involved in pilot testing the ItFits‐toolkit and provided their views on the various aspects, including stakeholder engagement. Patients were also represented in the external advisory board providing support and advice on the design, conduct and interpretation of the wider project, including the development of the ItFits‐toolkit. Trial registration: ClinicalTrials.gov NCT03652883. Retrospectively registered on 29 August 2018. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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22. A Community of Practice to increase education and collaboration in dementia and ageing research and care: The Liverpool Dementia & Ageing Research Forum.
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Giebel, Clarissa, Tetlow, Hilary, Faulkner, Thomas, and Eley, Ruth
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TREATMENT of dementia ,RESEARCH methodology ,CONFERENCES & conventions ,COMMUNITIES of practice ,AGING ,DEMENTIA ,INTERPROFESSIONAL relations ,WEBINARS ,DESCRIPTIVE statistics ,DATA analysis software ,DEMOGRAPHY ,MEDICAL research - Abstract
Background: Too often, dementia research is conducted in research silos without thorough integration and the involvement of people with lived experiences, care professionals and the Third Sector. Research can also get lost in academic publications, without reaching those benefiting most from the evidence. The aim of this methods and evaluation paper was to outline the aims, components and evaluation of the public‐facing and ‐engaging Liverpool Dementia & Ageing Research Forum, to provide a blueprint for setting up similar communities of practice. Methods: The Forum was set up in 2019 with the aim to (a) connect different stakeholders in dementia and ageing and co‐produce research and to (b) inform and educate. This paper provides an account of the Forum model and evaluates the following key elements: (1) engagement; (2) experiences of the Forum and its impact (via an online evaluation survey and three reflections). All Forum members and attendees were asked to complete a brief evaluation survey about their experiences from October to November 2022. Three regular Forum attendees provided a case study about their involvement and its impact. Findings: The Forum has reached out to diverse stakeholders and the general public, generating growing interest and engagement since its initiation. Forty‐four members and attendees completed the survey. Most attendees completing the evaluation survey have so far engaged in between 5 and 20 activities (47.8%), and 91% felt the aims of the Forum have been met. Engaging in the Forum has produced various benefits for attendees, including increased research capacity and knowledge, as well as improved connectivity with other stakeholders. Eleven percent of respondents, 39% of lived experts, stated they experienced improved access to postdiagnostic care. Conclusions: This is the first reported multistakeholder Community of Practice (CoP) on dementia and ageing. We make key recommendations for setting up and running similar dementia CoP, as they provide a noninterventional format for raising awareness, capacity and access to dementia care. Patient and Public Involvement: This paper reports on the involvement and engagement of people with dementia, unpaid carers, health and social care providers and Third Sector organisations in a CoP. [ABSTRACT FROM AUTHOR]
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- 2023
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23. Automated content analysis: The review of the big data systemic discourse in tourism and hospitality.
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Peterlin, Judita, Meško, Maja, Dimovski, Vlado, and Roblek, Vasja
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CUSTOMER relations ,DESCRIPTIVE statistics ,AUTOMATION ,TOURISM ,SOFTWARE analytics ,CONTENT analysis ,DATA analysis software - Abstract
Tourism is one of the economic activities that has changed most since large‐scale multidimensional data set, so‐called big data, was provided. The scientific literature on big data and tourism with the hospitality industry has been growing exponentially, which is, for this reason, hard to comprehend and synthesise manually. Our research question is how to familiarise oneself with the current knowledge of the relationship between the big data and the complex changes in the tourism and hospitality industry. An automated content analysis procedure was used to identify key topics and concepts of interest to the researchers. A careful review of the abstracts and full texts was carried out, resulting in a final list of 308 papers published in 154 journals. We used the Leximancer software 5.0 to create an automated content analysis. Seven topics (tourism, data, search, model, industry, online and travel) from papers published between 2011 and 5/2020 were found. We propose future development trends of big data in sustainable tourism. [ABSTRACT FROM AUTHOR]
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- 2021
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24. Easy read and accessible information for people with intellectual disabilities: Is it worth it? A meta-narrative literature review.
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Chinn, Deborah and Homeyard, Claire
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CINAHL database ,HEALTH ,MEDICAL information storage & retrieval systems ,PSYCHOLOGY information storage & retrieval systems ,MEDLINE ,PEOPLE with intellectual disabilities ,READABILITY (Literary style) ,INFORMATION resources ,SYSTEMATIC reviews ,ACCESS to information ,DATA analysis software ,META-synthesis - Abstract
Background The proliferation of 'accessible information' for people with intellectual disabilities in UK health care has accelerated in recent years, underpinned by policy guidance alongside the recent introduction of mandatory standards. However, questions have been raised as to the impact of such resources as a means of enhancing involvement in health care and addressing health inequalities. Objective To review and synthesize the evidence from different approaches used to evaluate the impact of accessible information for people with intellectual disabilities using a meta-narrative approach. Search strategy Literature searches were iterative and incorporated formal databases, grey literature and hand searches alongside more intuitive and opportunistic methods. Inclusion criteria Included English language papers published before December 2015 described the design and evaluation of written information adapted for adults with intellectual disabilities. Data extraction and synthesis We organized the papers into five groups according to similarity in authors' writing styles and presentation, epistemology and theoretical foundations, aims and methodologies, professional and organizational identities. Main results The 42 included papers in the five groupings occupied diverse positions on (i) public communication vs individualized materials, (ii) literacy as decontextualized skills vs social practices and (iii) the expertise of patients vs professionals. There was limited evidence for the impact of accessible health information, notwithstanding the potential benefits associated with their creation. Conclusions Individually tailored information is more likely to meet personalized health information needs for people with intellectual disabilities. The emergence of different social formations in the creation of accessible information has potential for advancing engagement of diverse groups. [ABSTRACT FROM AUTHOR]
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- 2017
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25. Trends in gynecological cancer incidence, mortality, and survival among elderly women: A SEER study.
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Priyadarshini, Subhadra, Swain, Prafulla Kumar, Agarwal, Khushi, Jena, Diptismita, and Padhee, Sourav
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AMERICAN women ,UTERINE tumors ,CERVIX uteri tumors ,OVARIAN tumors ,VAGINAL tumors ,REPORTING of diseases ,DESCRIPTIVE statistics ,RETROSPECTIVE studies ,VULVAR tumors ,FEMALE reproductive organ tumors ,KAPLAN-Meier estimator ,DATA analysis software ,REGRESSION analysis - Abstract
Objectives: This paper aims to comprehensively analyze trends in gynecological cancers among elderly women in the United States from 1975 to 2020. Methods: Surveillance, Epidemiology, and End Results (SEER) population data were utilized for the analysis. Annual Percentage Change (APC) and Average APC were estimated using join‐point regression to assess trends in mortality rates. Results: The study reveals an increasing pattern of incidence and mortality in all gynaecological cancer sites except cervical cancer among elderly. The incidence of cervical cancer decreased from 1975 to 2007 and then increased, whereas cancer‐specific mortality decreased from 1977 to 2020, indicating positive advancements in detection and treatment. Conclusions: Despite progress in managing certain gynecological cancers, challenges persist, particularly evidenced by increasing mortality rates for cancers in other female genital organs. This underscores the necessity for sustained research efforts and targeted interventions to address these ongoing challenges effectively. [ABSTRACT FROM AUTHOR]
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- 2024
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26. Shaping research for people living with co‐existing mental and physical health conditions: A research priority setting initiative from the United Kingdom.
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Taylor, Olivia, Newbronner, Elizabeth, Cooke, Helen, Walker, Lauren, and Wadman, Ruth
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PSYCHOTHERAPY patients ,INTERPROFESSIONAL relations ,RESEARCH funding ,HEALTH status indicators ,MENTAL health services ,MEETINGS ,SELF-management (Psychology) ,RESEARCH evaluation ,MENTAL illness ,LIFE expectancy ,FAMILIES ,CAREGIVERS ,EXPERIENCE ,SURVEYS ,THEMATIC analysis ,PRIORITY (Philosophy) ,ADULT education workshops ,VIDEOCONFERENCING ,NEEDS assessment ,HEALTH equity ,DATA analysis software ,COMORBIDITY ,FRIENDSHIP ,PSYCHOSOCIAL factors ,GROUP process - Abstract
Introduction: Those with severe and enduring mental ill health are at greater risk of long‐term physical health conditions and have a reduced life expectancy as a result. Multiple factors compound this health inequality, and the need for setting research priorities in this area is highlighted with physical and mental healthcare services being separate, and limited multimorbidity research. Methods: The aim of this exercise was to work in partnership with healthcare professionals and carers, family, friends and individuals with lived experience of both mental and physical health conditions, to set research priorities to help people with mental health conditions to look after their physical health. The exercise was guided by the James Lind Alliance approach. For this, a steering group was set up, two surveys were completed and a final priority workshop was conducted. Results: This priority setting exercise guided by people's needs and lived experience has produced a set of well‐defined research topics. Initially, 555 research questions were suggested in the first survey, which were refined to 54 questions for the second survey. A priority setting workshop was then conducted to get the final 10 priorities. Conclusions: Taking these topics forward to improve services and treatment for both mental and physical ill health may in turn improve physical health and lessen the reduced life expectancy of those living with mental ill health. Patient or Public Contribution: This work was completed in collaboration with people who have lived experience of mental ill health and physical health conditions, as well as carers, family and friends. Their contribution has been significant for this work from piloting surveys, amending language used and educating the researchers and contributing to this paper. The initial work was completed with a steering group and continued with surveys and workshops. [ABSTRACT FROM AUTHOR]
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- 2024
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27. A qualitative exploration of the barriers and facilitators to self‐managing multiple long‐term conditions amongst people experiencing socioeconomic deprivation.
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Woodward, Abi, Nimmons, Danielle, Davies, Nathan, Walters, Kate, Stevenson, Fiona A., Protheroe, Joanne, Chew‐Graham, Carolyn A., and Armstrong, Megan
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HEALTH services accessibility ,DIGITAL technology ,SELF-management (Psychology) ,QUALITATIVE research ,RESEARCH funding ,ENDOWMENTS ,SELF-efficacy ,SOCIOECONOMIC status ,SOCIOECONOMIC factors ,INTERVIEWING ,CULTURE ,JUDGMENT sampling ,THEMATIC analysis ,RESEARCH methodology ,DATA analysis software ,COMORBIDITY ,SOCIAL isolation ,SOCIAL classes ,SOCIAL stigma - Abstract
Background: Globally, it is estimated that one in three adults live with two or more long‐term conditions (multiple long‐term conditions, MLTCs), that require self‐management. People who experience socioeconomic deprivation face significant health inequalities due to a range of interrelated characteristics that lead to a lack of resources and opportunities. Previous research with underserved populations indicate low levels of trust towards primary care providers and potential barriers for developing patient‐healthcare professional relationships. The purpose of this paper is to explore the barriers and facilitators to self‐managing MLTCs, amongst people who experience socioeconomic deprivation. Methods: Semistructured one‐to‐one interviews with adults (n = 28) living in London and Sheffield, United Kingdom with MLTCs who are experiencing socioeconomic deprivation. Participants were recruited through general practices, community channels and social media. Data were analysed in NVivo using reflexive thematic analysis methods. Findings: Four analytical themes were developed: (1) challenges in accessing healthcare services, financial assistance, and cultural awareness; (2) empowerment and disempowerment through technology, including digital exclusion, and use of technology; (3) impact and causes of exclusion on self‐management, including social isolation, area‐based and economic exclusion, and health‐related stigma and (4) adapting self‐management strategies, including cost‐effective, and culturally/lifestyle appropriate strategies. Conclusions: Future health interventions and services need to be developed with consideration of the combined complexities of managing MLTCs while experiencing socioeconomic deprivation. Increased awareness in practitioners and commissioners of the complexities surrounding the lives of people experiencing socioeconomic deprivation, and the need for targeted strategies to promote self‐management of MLTCs are of great importance. Patient or Public Contribution: A patient advisory group contributed to all stages of the study, including providing important feedback on study documents (topic guides and recruitment materials), as well as providing critical insights surrounding the interpretation of interview data. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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28. A co‐created multimethod evaluation of recovery education in Ireland.
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O'Brien, Ann, Murphy, Louise, Hunt, Amanda, Dwyer, David, and Hunter, Andrew
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WORK ,SCHOOL environment ,MENTAL health ,SELF-efficacy ,FOCUS groups ,RESEARCH funding ,HEALTH occupations students ,EDUCATIONAL outcomes ,QUESTIONNAIRES ,SCHOOL administrators ,EXPERIENCE ,STUDENTS ,PROFESSIONS ,CONVALESCENCE ,COLLEGE teacher attitudes ,ATTITUDES of medical personnel ,RESEARCH methodology ,STUDENT attitudes ,DATA analysis software ,TEACHER-student relationships ,EXPERIENTIAL learning ,WELL-being - Abstract
Background: This paper aims to explore the impact of recovery education on recovery knowledge, attitudes and the quality of life of students undertaking recovery education, contributing to the evidence base in relation to the impact of recovery education. It also explores the experiences of all stakeholders involved in the co‐facilitation, delivery and participation in recovery education. Setting and Participants: This study evaluates the experiences of stakeholders involved in the co‐facilitation, delivery and participation in recovery education across four recovery colleges in Ireland. Participants included students undertaking recovery education, peer educators, education facilitators, recovery college coordinators and practitioner/service providers. Discussion: Findings from the quantitative survey when compared with extant literature suggest that students had a good understanding of recovery education. The social aspect of empowerment for growth and wellbeing was identified through themes relating to co‐production and facilitating student learning. Support for equitable access to recovery education, including co‐production for both the public and staff, was identified as a challenge for the future. Conclusion: The findings from both the qualitative and quantitative components of the study show the positive impact of recovery education on stakeholders while acknowledging the need for ongoing support for people working in recovery education and the development of services. In particular, there was a high level of recovery knowledge found in students undertaking recovery education. Patient or Public Contribution: This study utilised a co‐created study design. From inception a steering group comprising stakeholders (peer educators, recovery education facilitators including past recovery college students and nonpeer staff involved in the co‐production of recovery education) directed the conduct of the evaluation. This steering group participated in an iterative process of information sharing, suggestions for evaluation process and language. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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29. Effects of evidence‐based nursing in preventing pressure ulcers in intensive care unit patients: A meta‐analysis.
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Li, Yuanli, Huang, Zhifeng, Yu, Keping, and Li, Ya
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NURSING audit ,EVIDENCE-based nursing ,MEDICAL information storage & retrieval systems ,CRITICALLY ill ,PATIENTS ,INTENSIVE care nursing ,EVALUATION of medical care ,META-analysis ,DESCRIPTIVE statistics ,SYSTEMATIC reviews ,MEDLINE ,INTENSIVE care units ,MEDICAL databases ,ONLINE information services ,DATA analysis software ,CONFIDENCE intervals ,PRESSURE ulcers - Abstract
To systematically analyse the effects of evidence‐based nursing (EBN) in preventing the development of pressure ulcers (PUs) in intensive care unit (ICU) patients. We conducted a computerised search of the Embase, PubMed, Cochrane Library, Web of Science, China National Knowledge Infrastructure and Wanfang databases for randomised controlled trials on the prevention of PUs in ICU patients by EBN, published before the respective databases were established until September 2023. Two investigators independently performed literature screening, data extraction and quality assessment. A meta‐analysis was performed using Stata 17.0. Eighteen papers were included, comprising 2593 patients, of whom 1297 and 1296 received EBN and conventional nursing, respectively. The incidence of PUs was 2.70% and 12.04% in the EBN and conventional nursing groups, respectively. Meta‐analysis showed a statistically significantly lower incidence of PUs in the EBN group than that in the conventional nursing group (risk ratio = 0.22, 95% confidence interval: 0.16–0.32, p < 0.001). EBN interventions are more effective than conventional nursing in preventing PUs in ICU patients. However, since the literature included in this study was from China, the conclusions require further confirmation via higher‐quality studies. [ABSTRACT FROM AUTHOR]
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- 2024
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30. Risk and protective factors associated with wound infection after neurosurgical procedures: A meta‐analysis.
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He, Kang, Li, Yan‐Yang, and Liu, Hong‐Lin
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ONLINE information services ,MEDICAL databases ,META-analysis ,MEDICAL information storage & retrieval systems ,CONFIDENCE intervals ,AGE distribution ,OPERATIVE surgery ,ANTI-infective agents ,RISK assessment ,SEX distribution ,MEDICAL emergencies ,SURGICAL site infections ,DESCRIPTIVE statistics ,RESEARCH funding ,CRANIOTOMY ,MEDLINE ,DATA analysis software ,ODDS ratio ,COMORBIDITY ,DISEASE risk factors - Abstract
To systematically evaluate the risk factors for wound infection at the surgical site after neurosurgical craniotomy by meta‐analysis, and to provide an evidence‐based basis for preventing the occurrence of wound infection. A computerised search of PubMed, EMBASE, Cochrane Library, China National Knowledge Infrastructure and Wanfang database was conducted for relevant studies on risk factors for surgical site wound infection after neurosurgical craniotomy published from the database inception to November 2023. Two researchers independently screened the literature, extracted the data and performed quality assessment in strict accordance with the inclusion and exclusion criteria. STATA 17.0 software was applied for data analysis. Overall, 18 papers with 17 608 craniotomy patients were included, of which 905 patients developed wound infections. The analysis showed that underlying diseases [OR = 2.50, 95% CI (1.68, 3.72), p < 0.001] and emergency surgery [OR = 2.47, 95% CI (1.80, 3.38), p < 0.001] were the risk factors for developing wound infections after craniotomy, age < 60 years [OR = 0.72, 95% CI (0.52, 0.98), p = 0.039] was a protective factor for wound infections; whereas sex [OR = 1.11, 95% CI (0.98, 1.27), p = 0.112] and the antimicrobial use [OR = 1.30, 95% CI (0.81 2.09), p = 0.276] were not associated with the presence or absence of wound infection after craniotomy. Underlying disease and emergency surgery are risk factors for developing wound infections after craniotomy, whereas age < 60 years is a protective factor. Clinicians can reduce the occurrence of postoperative wound infections by communicating with patients in advance about the possibility of postoperative wound infections based on these factors, and by doing a good job of preventing postoperative wound infections. [ABSTRACT FROM AUTHOR]
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- 2024
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31. Effects of bundle‐care interventions on pressure ulcers in patients with stroke: A meta‐analysis.
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Wang, Li‐Ping, Gao, Ming‐Ming, Wang, Xiu‐Qin, Gu, Min‐Min, and Qi, Qin‐De
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WOUND healing ,ONLINE information services ,MEDICAL databases ,META-analysis ,MEDICAL information storage & retrieval systems ,CONFIDENCE intervals ,NURSING ,PRESSURE ulcers ,SYSTEMATIC reviews ,DISEASE incidence ,PATIENT satisfaction ,TREATMENT effectiveness ,STROKE patients ,DESCRIPTIVE statistics ,MEDLINE ,DATA analysis software ,ODDS ratio ,WOUND care ,EVALUATION - Abstract
We conducted a meta‐analysis to assess the effects of bundle‐care interventions on pressure ulcers in patients with stroke to provide a basis for clinical work. Randomised controlled trials on the effects of bundle‐care interventions in patients with stroke were identified using computerised searches of the PubMed, Embase, Cochrane Library, Chinese National Knowledge Infrastructure, VIP and Wanfang databases, from the time of inception of each database to July 2023, supplemented by manual literature searches. Two researchers independently retrieved and screened the articles, extracted the data and evaluated the quality of the included studies. After reaching consensus, meta‐analysis was performed using RevMan 5.4. Twenty‐four papers were included, involving 3330 patients of whom 1679 were in the intervention group and 1651 were in the control group. The results showed that, compared with standard care, bundle‐care interventions significantly reduced the incidence of pressure ulcers (3.28% vs. 14.84%, odds ratio [OR]: 0.19, 95% confidence interval [CI]: 0.14–0.26, p < 0.001), and aspiration (5.60% vs. 18.84%, OR: 0.25, 95% CI: 0.17–0.39, p < 0.001), and improved patient satisfaction with nursing care (96.59% vs. 84.43%, OR. 5.45, 95% CI: 3.76–7.90, p < 0.001). Current evidence suggests that care bundles are significantly better than conventional nursing measures in preventing pressure ulcers and aspiration, and improving patient satisfaction with nursing care in patients with stroke, and are worthy of clinical promotion and application. [ABSTRACT FROM AUTHOR]
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- 2024
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32. Older adults' needs and preferences for a nutrition education digital health solution: A participatory design study.
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Turner, Ashlee, Flood, Victoria M., and LaMonica, Haley M.
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HEALTH education ,PILOT projects ,PATIENT participation ,MEDICAL care for older people ,FOOD consumption ,DIGITAL health ,SMARTPHONES ,NUTRITION education ,QUALITATIVE research ,PATIENTS' attitudes ,EXPERIENCE ,COMPARATIVE studies ,QUESTIONNAIRES ,AGING ,COST effectiveness ,DESCRIPTIVE statistics ,NEEDS assessment ,THEMATIC analysis ,TECHNOLOGY ,DATA analysis software ,HEALTH promotion ,DIETARY patterns ,ADULT education workshops ,WORLD Wide Web ,OLD age - Abstract
Background: The global population is ageing rapidly and there is a need for strategies to promote health and wellbeing among older adults. Nutrition knowledge is a key predictor of dietary intake; therefore, effective educational programmes are urgently required to rectify poor dietary patterns. Digital health technologies provide a viable option for delivering nutrition education that is cost‐effective and widely accessible. However, few technologies have been developed to meet the unique needs and preferences of older adults. Objective: The aim of this study was to explore technology use among older adults and qualitatively determine the content needs and design preferences for an online nutrition education resource tailored to older adult consumers in Australia. Methods: Twenty adult participants aged 55 years and older (95% female) participated in one of four 2‐h participatory design workshops. In each workshop, prompted discussion questions were used to explore participants' technology use and preferences and to explore content needs and design preferences for an online nutrition education resource specific to older adults. Results: All participants were regularly using a range of different devices (e.g., smartphones, tablets and computers) and reported being comfortable doing so. Participants wanted a website that provided general nutrition information, practical advice and recipes. To enhance engagement, they sought a personalised resource that could be adjusted to suit their needs, included up‐to‐date information and allowed for easy sharing with others by exporting information as a PDF. Conclusions: Participatory design methods generate new knowledge for designing and tailoring digital health technologies to be appropriate and useful for the target audience. Specifically, older adults seek an online resource that has large and simple fonts with clear categories, providing them with practical advice and general nutrition information that can be personalised to suit their own needs and health concerns, with the option to export and print information into a paper‐based format. Patient or Public Contribution: Older adults actively participated in the development and evaluation process to generate ideas about potential features, functionalities, uses and practicalities of an online nutrition education resource. [ABSTRACT FROM AUTHOR]
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- 2024
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33. Experiences of health service access: A qualitative interview study of people living with Parkinson's disease in Ireland.
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O' Shea, Emma, Rukundo, Aphie, Foley, Geraldine, Wilkinson, Tony, and Timmons, Suzanne
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PARKINSON'S disease treatment ,HEALTH services accessibility ,OUTPATIENT medical care ,RESEARCH methodology ,DISCRIMINATION (Sociology) ,INTERVIEWING ,POPULATION geography ,PRIVATE sector ,PATIENTS' attitudes ,QUALITATIVE research ,HEALTH attitudes ,SOUND recordings ,DESCRIPTIVE statistics ,HEALTH care teams ,PUBLIC sector ,RESEARCH funding ,SECONDARY care (Medicine) ,JUDGMENT sampling ,DATA analysis software ,THEMATIC analysis - Abstract
Background: People with Parkinson's disease (PD) do not always access specialist outpatient services in a timely manner in Ireland. The perspectives of people living with PD, relating to service access, are largely absent in the existing literature. Aim: To explore experiences of PD service access for people living with PD, using a qualitative approach. Methods: Purposive maximum variation sampling was used. Semi‐structured telephone interviews were conducted with 25 service users, including people with PD (n = 22) and supporting carers (n = 3). Informed consent was obtained from all participants. Interviews ranged in duration from 30 to 90 min. Data were managed in NVivo 12 and interpreted inductively using thematic analysis. The researchers were reflexive throughout the research process. The Consolidated Criteria for Reporting Qualitative Research checklist was employed to maximise transparency. Results: The findings highlight several key barriers to and facilitators of equitable and timely service access. Three key themes were identified comprising experiences of PD service access including 'geographical inequity', 'discriminatory practices', and 'public and private system deficits'. Together, these themes illustrate how a two‐tiered and under‐resourced health system lacks capacity, in terms of infrastructure and workforce, to meet PD needs for both public and private patients in Ireland. Conclusions: These findings point to problems for PD care, relating to (i) how the health system is structured, (ii) the under‐provision and under‐resourcing of specialist outpatient PD services, including medical, nursing, and multidisciplinary posts, and (iii) insufficient PD awareness education and training across health settings. The findings also show that telemedicine can provide opportunities for making access to certain aspects of PD care more flexible and equitable, but the feasibility and acceptability of technology‐enabled care must be assessed on an individual basis. Implications for policy, practice and research are discussed. Patient or Public Contribution: The design and conduct of this study were supported by an expert advisory group (EAG) of 10 co‐researchers living with PD. The EAG reviewed the interview schedule and the protocol for this study and provided detailed feedback from their perspective, to improve the methods, including the interview approach. The group also reviewed the findings of the study and contributed their insights on the meaning of the findings, which fed into this paper. [ABSTRACT FROM AUTHOR]
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- 2024
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34. 'Including us, talking to us and creating a safe environment'—Youth patient and public involvement and the Walking In ScHools (WISH) Study: Lessons learned.
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Gallagher, Alison M., O'Kane, Sarah Maria, Doherty, Leanne C., Faulkner, Maria, McDermott, Gary, Jago, Russell, Lahart, Ian M., Murphy, Marie H., and Carlin, Angela
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WORK environment ,MEETINGS ,PUBLIC health ,PHYSICAL activity ,SURVEYS ,CONCEPTUAL structures ,SCHOOLS ,QUESTIONNAIRES ,DATA analysis software ,THEMATIC analysis ,COVID-19 pandemic - Abstract
Background: Young people have the right to be informed and consulted about decisions affecting their lives. Patient and public involvement (PPI) ensures that research is carried out 'with' or 'by' young people rather than 'to', 'about' or 'for' them. The aim of this paper is to outline how youth PPI can be embedded within a physical activity intervention, reflect on the impact of PPI and provide recommendations for future PPI in a similar context. Methods: A Youth Advisory Group (YAG) was set up within the Walking In ScHools (WISH) Study to involve adolescent girls in the delivery, implementation and dissemination of a physical activity intervention targeted at adolescents. Schools invited pupils aged 12–14 years and 15–18 years to YAG meetings (n3, from 2019 to 2023). Participative methods were used to inform recruitment strategies and data collection methods for the WISH Study. Results: Across the three YAG meetings, n51 pupils from n8 schools were involved. Pupils enjoyed the YAG meetings, felt that their feedback was valued and considered the meetings a good way to get young people involved in research. The YAG advised on specific issues and although measuring impact was not the primary aim of the YAG meetings, over the course of the study there were many examples of the impact of PPI. Recruitment targets for the WISH Study were exceeded, the attrition rate was low and pupils were engaged in data collection. Conclusion: Youth PPI is a developing field and there are few physical activity studies that report the PPI work undertaken. Within the WISH Study, three YAG meetings were held successfully, and the views of adolescent girls were central to the development of the study. Considering the specific issues that the YAG advised on (study recruitment, attrition and data collection), there was evidence of a positive impact of PPI. Patient or Public Contribution: Pupils from post‐primary schools interested/participating in the WISH Study were invited to attend YAG meetings. YAG meetings were set up to consult adolescent girls on the delivery, implementation and dissemination of the WISH intervention. [ABSTRACT FROM AUTHOR]
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- 2024
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35. Experiences and views of people who frequently call emergency ambulance services: A qualitative study of UK service users.
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Evans, Bridie A., Khanom, Ashra, Edwards, Adrian, Edwards, Bethan, Farr, Angela, Foster, Theresa, Fothergill, Rachael, Gripper, Penny, Gunson, Imogen, Porter, Alison, Rees, Nigel, Scott, Jason, Snooks, Helen, and Watkins, Alan
- Subjects
AMBULANCES ,INTERVIEWING ,PATIENTS' attitudes ,EXPERIENCE ,QUALITATIVE research ,SOUND recordings ,THEMATIC analysis ,DATA analysis software ,MEDICAL case management ,PATIENT-professional relations ,EMERGENCY medicine ,POLICE - Abstract
Introduction: People who call emergency ambulances frequently are often vulnerable because of health and social circumstances, have unresolved problems or cannot access appropriate care. They have higher mortality rates. Case management by interdisciplinary teams can help reduce demand for emergency services and is available in some UK regions. We report results of interviews with people who use emergency ambulance services frequently to understand their experiences of calling and receiving treatment. Methods: We used a two‐stage recruitment process. A UK ambulance service identified six people who were known to them as frequently calling emergency services. Through third‐sector organisations, we also recruited nine individuals with healthcare experiences reflecting the characteristics of people who call frequently. We gained informed consent to record and transcribe all telephone interviews. We used thematic analysis to explore the results. Results: People said they make frequent calls to emergency ambulance services as a last resort when they perceive their care needs are urgent and other routes to help have failed. Those with the most complex health needs generally felt their immediate requirements were not resolved and underlying mental and physical problems led them to call again. A third of respondents were also attended to by police and were arrested for behaviour associated with their health needs. Those callers receiving case management did not know they were selected for this. Some respondents were concerned that case management could label frequent callers as troublemakers. Conclusion: People who make frequent calls to emergency ambulance services feel their health and care needs are urgent and ongoing. They cannot see alternative ways to receive help and resolve problems. Communication between health professionals and service users appears inadequate. More research is needed to understand service users' motivations and requirements to inform design and delivery of accessible and effective services. Patient or Public Contribution: People with relevant experience were involved in developing, undertaking and disseminating this research. Two public contributors helped design and deliver the study, including developing and analysing service user interviews and drafting this paper. Eight public members of a Lived Experience Advisory Panel contributed at key stages of study design, interpretation and dissemination. Two more public contributors were members of an independent Study Steering Committee. [ABSTRACT FROM AUTHOR]
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- 2024
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36. Menopause at work—An organisation‐based case study.
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Cronin, Camille, Abbott, Joanne, Asiamah, Nestor, and Smyth, Susan
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PERIMENOPAUSE ,WORK environment ,WELL-being ,OCCUPATIONAL roles ,SHIFT systems ,INFERENTIAL statistics ,SOCIAL support ,JOB stress ,RESEARCH methodology ,MEDICAL care ,INTERVIEWING ,FLEXTIME ,QUANTITATIVE research ,CASE-control method ,SEVERITY of illness index ,EMPLOYEE assistance programs ,SURVEYS ,QUALITATIVE research ,LABOR supply ,JOB satisfaction ,EMPLOYMENT ,RESEARCH funding ,MENOPAUSE ,DATA analysis software ,THEMATIC analysis ,OCCUPATIONAL health services ,CORPORATE culture ,WOMEN employees ,WOMEN'S health - Abstract
Aim: The aim of the study was to explore and understand the organizational culture of a workplace in terms of support and well‐being for staff experiencing perimenopausal and menopausal symptoms at work. Design: It is widely acknowledged that perimenopause and menopause symptoms are experienced by a large percentage of the female workforce. There is a lack of research into how nurses are supported through menopause (Cronin et al. Issues in Mental Health Nursing, 42, 2021, 541–548). The perimenopause and menopause transition can be a challenging time where many may require symptom management and support (RCN, The Menopause and Work: Guidance for RCN Representatives, 2020). This paper presents a case study research (CSR) approach to examine one healthcare organization. Methods: CSR design was used: A survey distributed to all staff employed, a review of the available documentation on menopause and interviews with managers from different levels of the organization. The COREQ consolidated criteria was used for reporting the qualitative research reported this study. Results: The case study generated both quantitative and qualitative data using surveys, interviews and documentation. Data from the organization (n = 6905) showed a majority female workforce of 81.9% with 40.6% aged between 41 and 55 years old, meaning a third of the organization working through perimenopause and menopause. Survey responses (n = 167) collected biographical and psychometric data on the prevalence of perimenopausal and menopausal symptoms. Seven managers were interviewed highlighting two themes: Access to support and culture of menopause and 13 documents from the organization on menopause were analysed for content. The study design permitted an iterative approach to data collection and providing an in‐depth understanding of the needs and support for those experiencing perimenopause and menopause. The findings help healthcare organizations to understand their workforce and take in to account the larger numbers of female employees particularly nurses with the need to provide person‐centred support mechanisms and an organizational approach for all employees. [ABSTRACT FROM AUTHOR]
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- 2024
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37. Implementing patient–public engagement for improved health: Lessons from three Ghanaian community‐based programmes.
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Ankomah, Samuel E., Fusheini, Adam, and Derrett, Sarah
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EVALUATION of human services programs ,EVALUATION of medical care ,MATERNAL health services ,FOCUS groups ,PATIENT participation ,HEALTH services accessibility ,STAKEHOLDER analysis ,LEADERSHIP ,HEALTH facility administration ,COMMUNITY health services ,INTERVIEWING ,CHILD health services ,DESCRIPTIVE statistics ,ORGANIZATIONAL effectiveness ,DATA analysis software ,THEMATIC analysis ,NEEDS assessment ,HEALTH promotion ,BURULI ulcer ,HEALTH care rationing - Abstract
Background: Community‐based health interventions have been implemented as a key strategy for achieving improved health outcomes in Ghana. Effectiveness, however, largely depends on the successful implementation of patient–public engagement (PPE). Although several PPE studies have been conducted in Ghana, little research has been done to understand the specific role of PPE in the context of implementing community‐based health programmes. This paper, therefore, examines the extent of PPE implementation in three selected community‐based health programmes (Community‐based Health Planning and Service [CHPS], Community‐based Maternal and Child Health and Buruli Ulcer) to understand their specific effects on health outcomes. Methods: Three focus groups, involving 26 participants, were held in three districts of the Ashanti region of Ghana. Participants were mainly health service users involving community health committee members/volunteers, residents and health professionals. They were invited to participate based on their roles in the design and implementation of the programmes. Participants focused on each of Rifkin's spider‐gram components. Data were transcribed and analysed descriptively using NVIVO 12 Plus. Results: PPE implementation was found to be extensive across the three programmes in specific areas such as organisation and resource mobilisation. PPE was more restricted in relation to community needs assessment, leadership and management, particularly for the CHPS and Buruli Ulcer programmes. Conclusion: Findings suggest that benefits from community‐based health interventions are likely to be greater if PPE can be widely implemented across all dimensions of the spider‐gram framework. [ABSTRACT FROM AUTHOR]
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- 2023
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38. Who cares for the carer? Codesigning a carer health and wellbeing clinic for older care partners of older people in Australia.
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Layton, Natasha, Lalor, Aislinn, Slatyer, Susan, Lee, Den‐Ching A, Bryant, Christina, Watson, Moira, Khushu, Anjali, Burton, Elissa, Oliveira, Déborah, Brusco, Natasha L., Jacinto, Alessandro, Tiller, Elizabeth, and Hill, Keith D.
- Subjects
CAREGIVER attitudes ,EXPERIMENTAL design ,MEETINGS ,SOCIAL support ,FOCUS groups ,ATTITUDES of medical personnel ,ATTITUDE (Psychology) ,TELEPHONES ,MEDICAL care ,EXECUTIVES ,HEALTH status indicators ,VIDEOCONFERENCING ,CLINICS ,INTERVIEWING ,LANGUAGE & languages ,QUALITATIVE research ,EXPERIENCE ,SURVEYS ,TREATMENT effectiveness ,INTERPROFESSIONAL relations ,PSYCHOLOGY of caregivers ,HEALTH ,AGING ,RESEARCH funding ,NEEDS assessment ,JUDGMENT sampling ,POLICY sciences ,DATA analysis software ,ADULT education workshops ,EMAIL - Abstract
Introduction: Older carers or 'care partners' of older people experiencing care needs often provide essential support, at times while neglecting their own health and well‐being. This is an increasingly frequent scenario due to both demographic changes and policy shifts towards ageing in place. Multiple community stakeholders within the care and support ecosystem hold valuable expertise about the needs of older care partners, and the programme and policy responses that may better support their health and well‐being. The aim of this study was to identify the perspectives of stakeholders obtained through the codesign phase of a multicomponent research project investigating new models of care and support for older care partners suitable for the Australian context. Methods: Principles of codesign were used to engage a purposeful sample of older care partners, health professionals, researchers, policy makers and health service administrators. Participants took part in a series of three codesign workshops conducted remotely via video conferencing. The workshops were supported with briefing material and generated consensus‐based summaries, arriving at a preferred service model. Findings: This paper reports the research design and structure of the codesign panels, the range of findings identified as important to support the health and well‐being of older carers of older people, and the resulting service model principles. The codesigned and preferred model of care is currently being prepared for implementation and evaluation in Australia. Public Contribution: This study was conducted using codesign methodology, whereby stakeholders including older care partners and others involved in supporting older carers, were integrally involved with design, development, results and conclusions. [ABSTRACT FROM AUTHOR]
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- 2023
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39. Acceptability of a shared cancer follow‐up model of care between general practitioners and radiation oncologists: A qualitative evaluation.
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Sandell, Tiffany, Schütze, Heike, and Miller, Andrew
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PATIENT aftercare ,HOSPITAL shared services ,GENERAL practitioners ,MEDICAL radiology ,CANCER patient psychology ,ETHICS ,RESEARCH methodology ,PHYSICIANS' attitudes ,INTERVIEWING ,PATIENTS' attitudes ,QUALITATIVE research ,PRE-tests & post-tests ,HEALTH insurance reimbursement ,CONCEPTUAL structures ,SELF-efficacy ,PSYCHOSOCIAL factors ,RESEARCH funding ,EMPLOYEES' workload ,CLINICAL competence ,THEMATIC analysis ,DATA analysis software ,CANCER patient medical care ,ONCOLOGISTS ,MEDICAL coding - Abstract
Introduction: Facilitators to implement shared cancer follow‐up care into clinical practice include mechanisms to allow the oncologist to continue overseeing the care of their patient, two‐way information sharing and clear follow‐up protocols for general practitioners (GPs). This paper aimed to evaluate patients, GPs and radiation oncologists (ROs) acceptance of a shared care intervention. Methods: Semi‐structured interviews were conducted pre‐ and post intervention with patients that were 3 years post radiotherapy treatment for breast, colorectal or prostate cancer, their RO, and their GP. Inductive and deductive thematical analysis was employed. Results: Thirty‐two participants were interviewed (19 patients, 9 GPs, and 4 ROs). Pre intervention, there was support for GPs to play a greater role in cancer follow‐up care, however, patients were concerned about the GPs cancer‐specific skills. Patients, GPs and ROs were concerned about increasing the GPs workload. Post intervention, participants were satisfied that the GPs had specific skills and that the impact on GP workload was comparable to writing a referral. However, GPs expressed concern about remuneration. GPs and ROs felt the model provided patient choice and were suitable for low‐risk, stable patients around 2–3 years post treatment. Patients emphasised that they trusted their RO to advise them on the most appropriate follow‐up model suited to their individual situation. The overall acceptance of shared care depended on successful health technology to connect the GP and RO. There were no differences in patient acceptance between rural, regional, and cancer types. ROs presented differences in acceptance for the different cancer types, with breast cancer strongly supported. Conclusion: Patients, GPs and ROs felt this shared cancer follow‐up model of care was acceptable, but only if the RO remained directly involved and the health technology worked. There is a need to review funding and advocate for health technology advances to support integration. Patient or Public Contribution: Patients treated with curative radiotherapy for breast, colorectal and prostate cancer, their RO and their GPs were actively involved in this study by giving their consent to be interviewed. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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40. Impact of job control on hospital workers' safety performance: A moderated mediation analysis of the influences of hospital safety climate and social support.
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Zhao, Guolong and Yin, Chenxi
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HEALTH facility employees ,RESEARCH ,SOCIAL support ,CROSS-sectional method ,SELF-evaluation ,ATTITUDES of medical personnel ,MEDICAL emergencies ,QUALITY assurance ,PSYCHOSOCIAL factors ,FACTOR analysis ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,SCALE analysis (Psychology) ,JOB performance ,STATISTICAL sampling ,DATA analysis software ,PATIENT safety ,CORPORATE culture - Abstract
Aim: To improve the level of hospital workers' safety performance in response to emergencies (e.g. COVID‐19), this paper examines the relationship between hospital workers' job control on safety performance, and the mediating role of hospital safety climate and the moderating role of social support. Design: In this cross‐sectional questionnaire survey, a convenience sampling of hospital workers from three hospitals that have COVID‐19 cases from Beijing and Shandong Province in China. Methods: These questionnaires were used to obtain self‐reported data on hospital workers' job control, hospital safety climate, social support and safety performance. Mplus software was used to calculate CFA. SPSS25.0 software was used to calculate mean values, standard deviations, correlations and regression analyses. Results: The participants were 241 hospital workers from three hospitals in China (male = 55.2%, female = 44.8%; age range <30 to >45; physician = 58%, nurse = 22%, other hospital worker = 20%). A moderated mediation model among job control, hospital safety climate, social support and safety performance was supported. Moderated mediation analysis indicates hospital workers' job control effectively improves the level of safety performance; hospital safety climate plays a partially mediating role in the process of job control affecting hospital workers' safety performance; social support moderates the effect of work control on medical workers' safety climate. Hence, it is important to increase job control and hospital safety climate. Further, social support for hospital workers should be encouraged, advocated and supported. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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41. The effects of exercise on sleep disturbances and cancer‐related fatigue for female breast cancer survivors receiving adjuvant hormone therapy: A systematic review.
- Author
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McGrorry, Anna Rose, Paterson, Amy, and Peddie, Nicola
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SLEEP disorders treatment ,PSYCHOLOGY information storage & retrieval systems ,HORMONE therapy ,MEDICAL information storage & retrieval systems ,SYSTEMATIC reviews ,SPORTS ,CANCER patients ,TREATMENT effectiveness ,DESCRIPTIVE statistics ,QUESTIONNAIRES ,FATIGUE (Physiology) ,MEDLINE ,INFORMATION storage & retrieval systems ,DATA analysis software ,BREAST tumors ,EXERCISE therapy - Abstract
Background: Breast cancer is the most common type of cancer, accounting for 15% of all new cases. Hormone therapy (HT) is extremely effective in reducing breast cancer recurrence. However, adherence to HT medication is often poor due to negative side effects such as fatigue and sleep disturbances. Physical activity has been identified as a possible intervention to improve quality of life and reduce side effects of HT. Objective: The objective of this systematic review was to summarise evidence of exercise interventions for women being treated with HT for breast cancer. Method: Electronic searches were conducted from inception to March 2022 using Medline, SPORTdiscus, Embase, Scopus, PsycINFO and Web of Science databases. Searches included a combination of terms related to breast cancer, exercise, sleep disturbances, fatigue and HT. Results: Ten eligible papers were identified, and their quality was assessed. Type, frequency, duration and intensity of exercise interventions varied. Exercise types included aerobics, strength/resistance training, walking and yoga. Heterogeneity of data made it difficult to draw conclusions. However, aerobic exercise interventions provide clear improvements in fatigue and sleep disturbances. Conclusions: This review identified a lack of consistency in exercise recommendations for women being treated for breast cancer. It identifies that aerobic exercise can successfully improve fatigue and sleep disturbances, consistent with existing literature. Exercise has a range of benefits for this population, including improving psychological well‐being and quality of life. Clinicians should strongly advocate for engagement in exercise to promote overall physical and psychological well‐being in women being treated for breast cancer. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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42. NIPT for adult‐onset conditions: Australian NIPT users' views.
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Marks, India R., Devolder, Katrien, Bowman‐Smart, Hilary, Johnston, Molly, and Mills, Catherine
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- *
PRENATAL diagnosis , *CHROMOSOME abnormalities , *DESCRIPTIVE statistics , *BIOETHICS , *QUANTITATIVE research , *CHI-squared test , *RESEARCH methodology , *DATA analysis software , *GENETIC testing - Abstract
Noninvasive prenatal testing (NIPT) has become widely available in recent years. While initially used to screen for trisomies 21, 18, and 13, the test has expanded to include a range of other conditions and will likely expand further. This paper addresses the ethical issues that arise from one particularly controversial potential use of NIPT: screening for adult‐onset conditions (AOCs). We report data from our quantitative survey of Australian NIPT users' views on the ethical issues raised by NIPT for AOCs. The survey ascertained support for NIPT for several traits and conditions including AOCs. Participants were then asked about their level of concern around implications of screening for AOCs for the future child and parent(s). Descriptive and comparative data analyses were conducted. In total, 109 respondents were included in data analysis. The majority of respondents expressed support for NIPT screening for preventable (70.9%) and nonpreventable AOCs (80.8%). Most respondents indicated concern around potential harmful impacts associated with NIPT for AOCs, including the psychological impact on the future child and on the parent(s). Despite this, the majority of participants thought that continuation of a pregnancy known to be predisposed to an AOC is ethically acceptable. The implications of these data are critically discussed and used to inform the normative claim that prospective parents should be given access to NIPT for AOCs. The study contributes to a body of research debating the ethical acceptability and regulation of various applications of NIPT as screening panels expand. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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43. Attribute nonattendance in COVID‐19 vaccine choice: A discrete choice experiment based on Chinese public preference.
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Xiao, Jianhong, Wang, Fei, Wang, Min, and Ma, Zegang
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VACCINATION ,COVID-19 vaccines ,ATTITUDE (Psychology) ,PUBLIC health ,PATIENTS' attitudes ,COMPARATIVE studies ,SOFTWARE architecture ,RESEARCH funding ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,CHI-squared test ,SOCIODEMOGRAPHIC factors ,DATA analysis software ,COVID-19 pandemic - Abstract
Objectives: The global coronavirus disease 2019 (COVID‐19) pandemic has not been well controlled, and vaccination could be an effective way to prevent this pandemic. By accommodating attribute nonattendance (ANA) in a discrete choice experiment (DCE), this paper aimed to examine Chinese public preferences and willingness to pay (WTP) for COVID‐19 vaccine attributes, especially the influence of ANA on the estimated results. Methods: A DCE was designed with four attributes: effectiveness, protection period, adverse reactions and price. A random parameter logit model with an error component (RPL‐EC) was used to analyse the heterogeneity of respondents' preferences for COVID‐19 vaccine attributes. Two equality constraint latent class (ECLC) models were used to consider the influence of ANA on the estimated results in which the ECLC‐homogeneity model considered only ANA and the ECLC‐heterogeneity model considered both ANA and preference heterogeneity. Results: Data from 1,576 samples were included in the analyses. Effectiveness had the highest relative importance, followed by adverse reactions and protection period, which were determined by the attributes and levels presented in this study. The ECLC‐heterogeneity model improved the goodness of fit of the model and obtained a lower probability of ANA. In the ECLC‐heterogeneity model, only a small number of respondents (29.09%) considered all attributes, and price was the most easily ignored attribute (64.23%). Compared with the RPL‐EC model, the ECLC‐homogeneity model obtained lower WTPs for COVID‐19 vaccine attributes, and the ECLC‐heterogeneity model obtained mixed WTP results. In the ECLC‐heterogeneity model, preference group 1 obtained higher WTPs, and preference groups 2 and 3 obtained lower WTPs. Conclusions: The RPL‐EC, ECLC‐homogeneity and ECLC‐heterogeneity models obtained inconsistent WTPs for COVID‐19 vaccine attributes. The study found that the results of the ECLC‐heterogeneity model considering both ANA and preference heterogeneity may be more plausible because ANA and low preference may be confused in the ECLC‐homogeneity model and the RPL‐EC model. The results showed that the probability of ANA was still high in the ECLC‐heterogeneity model, although it was lower than that in the ECLC‐homogeneity model. Therefore, in future research on DCE (such as the field of vaccines), ANA should be considered as an essential issue. Public Contribution: Chinese adults from 31 provinces in mainland China participated in the study. All participants completed the COVID‐19 vaccine choice questions generated through the DCE design. [ABSTRACT FROM AUTHOR]
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- 2022
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44. Factors associated with the sleep disturbances of people with breast cancer during chemotherapy in China: A cross‐sectional study.
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Zhu, Wenjuan, Li, Wanling, Gao, Jinnan, Wang, Linying, Guo, Jun, and Yang, Hui
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CANCER patient psychology ,SLEEP quality ,STATISTICS ,SOCIAL support ,ANALYSIS of variance ,CONFIDENCE intervals ,CANCER chemotherapy ,CROSS-sectional method ,MULTIVARIATE analysis ,SLEEP disorders ,RISK assessment ,PATIENTS' attitudes ,HOPE ,MENTAL depression ,QUESTIONNAIRES ,INTERPERSONAL relations ,DESCRIPTIVE statistics ,ANXIETY ,STATISTICAL sampling ,MENOPAUSE ,DATA analysis software ,ODDS ratio ,BREAST tumors ,DISEASE risk factors - Abstract
Aim: The aim of the study was to investigate the incidence of sleep disturbance and its relationship with anxiety and depression symptoms, social support and hope in breast cancer patients in China during chemotherapy. Design: A single‐centre cross‐sectional study. Methods: A total of 329 breast cancer patients were selected via convenience sampling method before they began chemotherapy (n = 115), before the 5th week of chemotherapy (n = 117) or 1 month after chemotherapy ended (n = 97) and administered paper‐and‐pencil questionnaires to evaluate sleep quality, depression and anxiety symptoms, social support and hope. Risk factors significantly associated with sleep disturbance during bivariate were incorporated in the multivariate analysis. Bivariate analyses showed that age, menopausal status, depression and anxiety symptoms, emotional/informational support, tangible support, affectionate support, positive social interaction and total support were predictors of sleep disturbance. Results: Sleep disturbance was prevalent in breast cancer patients before (27.0%), during (32.5%) and after (39.2%) chemotherapy, with 37.4%, 41.9% and 52.6% of participants, respectively, reporting sleeping below the recommended 7 h. Only 8.6%–15.5% of patients reported taking sedative‐hypnotic drugs during the chemotherapy. Multivariate analyses found that participants reporting clinically significant anxiety (HADS > 8) were 3.5 times more likely to report sleep disturbance (PSQI > 8) than participants without clinically significant anxiety, and each increment in emotional/informational support was associated with a 9.04% reduced risk of sleep disturbance. Moreover, age was an independent predictor of sleep disturbance during multivariate modelling. [ABSTRACT FROM AUTHOR]
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- 2023
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45. A rapid review of interventions to improve medicine self‐management for older people living at home.
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Previdoli, Giorgia, Cheong, V‐Lin, Alldred, David, Tomlinson, Justine, Tyndale‐Biscoe, Savi, Silcock, Jonathan, Okeowo, Daniel, and Fylan, Beth
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ONLINE information services ,CINAHL database ,PSYCHOLOGY information storage & retrieval systems ,MEDICAL databases ,MEDICAL information storage & retrieval systems ,SELF-management (Psychology) ,DRUGS ,DESCRIPTIVE statistics ,PATIENT compliance ,DATA analysis software ,MEDLINE - Abstract
Background: As people age, they are more likely to develop multiple long‐term conditions that require complicated medicine regimens. Safely self‐managing multiple medicines at home is challenging and how older people can be better supported to do so has not been fully explored. Aim: This study aimed to identify interventions to improve medicine self‐management for older people living at home and the aspects of medicine self‐management that they address. Design: A rapid review was undertaken of publications up to April 2022. Eight databases were searched. Inclusion criteria were as follows: interventions aimed at people 65 years of age or older and their informal carers, living at home. Interventions needed to include at least one component of medicine self‐management. Study protocols, conference papers, literature reviews and articles not in the English language were not included. The results from the review were reported through narrative synthesis, underpinned by the Resilient Healthcare theory. Results: Database searches returned 14,353 results. One hundred and sixty‐seven articles were individually appraised (full‐text screening) and 33 were included in the review. The majority of interventions identified were educational. In most cases, they aimed to improve older people's adherence and increase their knowledge of medicines. Only very few interventions addressed potential issues with medicine supply. Only a minority of interventions specifically targeted older people with either polypharmacy, multimorbidities or frailty. Conclusion: To date, the emphasis in supporting older people to manage their medicines has been on the ability to adhere to medicine regimens. Most interventions identify and target deficiencies within the patient, rather than preparing patients for problems inherent in the medicine management system. Medicine self‐management requires a much wider range of skills than taking medicines as prescribed. Interventions supporting older people to anticipate and respond to problems with their medicines may reduce the risk of harm associated with polypharmacy and may contribute to increased resilience in the system. Patient or Public Contribution: A patient with lived experience of medicine self‐management in older age contributed towards shaping the research question as well as the inclusion and exclusion criteria for this review. She is also the coauthor of this article. A patient advisory group oversaw the study. [ABSTRACT FROM AUTHOR]
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- 2023
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46. The impact of COVID‐19 on patient engagement in the health system: Results from a Pan‐Canadian survey of patient, family and caregiver partners.
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Tripp, Laura, Vanstone, Meredith, Canfield, Carolyn, Leslie, Myles, Levasseur, Mary Anne, Panday, Janelle, Rowland, Paula, Wilson, Geoff, You, Jeonghwa, and Abelson, Julia
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CAREGIVER attitudes ,PATIENT participation ,RESEARCH methodology ,PATIENT-centered care ,MEDICAL care ,PATIENTS' attitudes ,FAMILY attitudes ,SURVEYS ,DESCRIPTIVE statistics ,CHI-squared test ,STATISTICAL sampling ,DATA analysis software ,COVID-19 pandemic - Abstract
Introduction: The COVID‐19 pandemic has had an impact on all aspects of the health system. Little is known about how the activities and experiences of patient, family and caregiver partners, as a large group across a variety of settings within the health system, changed due to the substantial health system shifts catalysed by the pandemic. This paper reports on the results of a survey that included questions about this topic. Methods: Canadian patient, family and caregiver partners were invited to participate in an online anonymous survey in the Fall of 2020. A virtual snowballing approach to recruitment was used. Survey invitations were shared on social media and emailed to health system and governmental organizations with the request that they share the survey with patient partners. This paper focuses on responses to two questions related to patient partner experiences during the COVID‐19 pandemic. Results: The COVID‐19 questions were completed by 533 respondents. Over three quarters of respondents (77.9%, n = 415) indicated their patient engagement activities had been impacted by COVID‐19. The majority (62.5%, n = 230) experienced at least a temporary or partial reduction in their patient engagement activities. Some respondents did see increases in their patient engagement activities (11.4%, n = 42). Many respondents provided insights into their experience with virtual platforms for engagement (n = 194), most expressed negative or mixed experiences with this shift. Conclusions: This study provides a snapshot of Canadian patient, family and caregiver partners' perspectives on the impact of COVID‐19 on their engagement activities. Understanding how engagement unfolded during a crisis is critical for our future planning if patient engagement is to be fully integrated into the health system. Identifying how patient partners were engaged and not engaged during this time period, as well as the benefits and challenges of virtual engagement opportunities, offers instructive lessons for sustaining patient engagement, including the supports needed to engage with a more diverse set of patient, family and caregiver partners. Patient Contribution: Patient partners were important members of the Canadian Patient Partner Study research team. They were engaged from the outset, participating in all stages of the research project. Additional patient partners were engaged to develop and pilot test the survey, and all survey respondents were patient, family or caregiver partners. The manuscript is coauthored by two patient partners. [ABSTRACT FROM AUTHOR]
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- 2022
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47. Mind the (identification) gap: Foci in multiteam systems and their impact on innovative work behaviours.
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Cremers, Erik Eduard and Curșeu, Petru Lucian
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TEAMS in the workplace ,CORPORATE culture ,DIFFUSION of innovations ,GROUP identity ,CRONBACH'S alpha ,WORK environment ,DESCRIPTIVE statistics ,ATTITUDE (Psychology) ,ANALYSIS of variance ,DATA analysis software ,HEALTH care teams - Abstract
The paper presents a longitudinal exploration of identification with teams and multiteam systems (MTSs) in an organizational context that started using MTSs. Data were collected in five waves during the first 2 years in which the organization started the implementation of MTSs in order to aggregate teams in value streams as organizational units. The results show that there is a clear and distinct gap between team and MTS identification. This gap is greater in larger MTSs than smaller MTSs. This gap decreases in time mostly due to a rise in MTS identification in combination with a stable team identification across time. Additionally, our research showed that MTS identification is hindered when negative relations are present in the MTS. Finally, we show that identification with the team fosters innovative team performance and the identification with MTS moderates this positive association in a compensatory manner. The findings show important implications for the management of MTSs in modern organizations. [ABSTRACT FROM AUTHOR]
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- 2024
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48. GROUPS 4 RETIREMENT: A new intervention that supports well‐being in the lead‐up to retirement by targeting social identity management.
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La Rue, Crystal J., Haslam, Catherine, Bentley, Sarah V., Lam, Ben C. P., Steffens, Niklas K., Branscombe, Nyla R., Haslam, S. Alexander, and Cruwys, Tegan
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WELL-being , *EXPERIMENTAL design , *SOCIAL support , *EVALUATION of human services programs , *ATTITUDE (Psychology) , *RETIREMENT planning , *GROUP identity , *HUMAN services programs , *PRE-tests & post-tests , *RESEARCH funding , *DESCRIPTIVE statistics , *FINANCIAL management , *DATA analysis software - Abstract
Successful retirement adjustment requires careful planning in the lead up to this important life transition. While financial planning is routinely prioritized, evidence suggests that the social changes in retirement can be just as challenging to manage — if not more. GROUPS 4 RETIREMENT (G4R) is a new online intervention that addresses this gap by targeting the identity changes that people typically experience in retirement. This paper reports findings from two studies evaluating the acceptability and efficacy of this intervention. Study 1 (N = 89) used a pre‐post design to assess G4R and found that the intervention was positively evaluated by users and led to significant increases in their sense of thriving, perceived control, life satisfaction, anticipated retirement satisfaction, and planning intentions. Study 2 (N = 98) tested the intervention using an experimental design in which participants were randomly assigned to either G4R or a financial planning control condition. Results showed that G4R was as effective as financial planning in improving most outcomes and showed a clear advantage in increasing anticipated retirement satisfaction and intentions to engage in social and activities planning. Together, these studies provide initial evidence of the value of engaging in social identity‐focused social planning to support well‐being and preparedness in the lead up to retirement. [ABSTRACT FROM AUTHOR]
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- 2024
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49. Realistic simulation in nursing education: Testing two scenario‐based models.
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Martins, Teresa, Santos, Francisco, Lumini, Maria José, Sousa, Maria Rui, Peixoto, Maria José, Freire, Rosa Maria, Salazar, Berta, Fernandes, Carla, and de Fátima Araújo, Maria
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COLLEGE students ,SELF-perception ,SIMULATION methods in education ,NURSING education ,EXPERIENCE ,T-test (Statistics) ,CRONBACH'S alpha ,PHILOSOPHY of education ,STUDENTS ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,STUDENT attitudes ,NURSING students ,DATA analysis software ,CLINICAL education - Abstract
Aim: To evaluate students' self‐perceived pedagogical outcomes when using a digital scenario‐based tool compared to traditional scenarios printed on paper. Design: This study used a within‐subjects experiment. Method: A digital platform for scenario development was developed, focusing on patients' regaining independence and returning home after an acute event. Students participated in two simulation activities, differing only in the type of scenario used and completed a questionnaire to evaluate their learning experience. Results: Students considered that the new scenario template provided a clearer understanding of the situation under analysis, allowing them to recognize the focuses of attention to be prioritized when formulating the intervention plan. No Patient or Public Contribution: A digital platform for a standardized process of scenario writing to help realistic simulation in nursing education is a novelty in this study and will likely contribute to substantial learning gains. [ABSTRACT FROM AUTHOR]
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- 2023
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50. Investigation and analysis of status of mechanical prevention of venous thrombosis in ICU.
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Xiaoxiao, Guan, Li, Li, Shijin, Gong, Yueben, Wang, and Junhai, Zhen
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INFECTION prevention ,THROMBOEMBOLISM prevention ,INTENSIVE care units ,HOSPITALS ,VEINS ,HOSPITAL utilization ,MOBILE apps ,COMPRESSION garments ,VENOUS thrombosis ,SURVEYS ,CRITICAL care nurses ,QUESTIONNAIRES ,CHI-squared test ,DESCRIPTIVE statistics ,CLINICAL competence ,RESEARCH funding ,DATA analysis software ,STERILIZATION (Disinfection) - Abstract
Aims: The presented paper aims at understanding the current situation of mechanical prevention of venous thrombosis in ICU. Design: A questionnaire survey. Methods: A self‐developed Questionnaire on the Current Situation of VTE Mechanical Prevention in ICU was distributed. Results: A total of 125 valid questionnaires were collected. The results shows that only 11.2% ICUs had the ratio of mechanical prevention equipment to the bed number ≥0.8:1; there was significant differences among ICU nurses in different levels of hospitals in mastering the indications, contraindications and use process of venous thromboembolism mechanical prevention; 42 ICUs (33.6%) used disposable leg covers for patients before the use of mechanical prevention equipment. The face‐to‐face teaching model was the main method adopted in the education and training of mechanical prevention. [ABSTRACT FROM AUTHOR]
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- 2023
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