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1. CRUSE®—An innovative mobile application for patient monitoring and management in chronic spontaneous urticaria

Author

Neisinger, Sophia, primary, Sousa Pinto, Bernardo, additional, Ramanauskaite, Aiste, additional, Bousquet, Jean, additional, Weller, Karsten, additional, Metz, Martin, additional, Magerl, Markus, additional, Kocatürk, Emek, additional, Cherrez‐Ojeda, Ivan, additional, Gimenez‐Arnau, Ana M., additional, Parisi, Claudio Alberto S., additional, Altrichter, Sabine, additional, Ensina, Luis Felipe, additional, Bouillet, Laurence, additional, Asero, Riccardo, additional, Gonçalo, Margarida, additional, Guillet, Carole, additional, Rutkowski, Krzysztof, additional, Bernstein, Jonathan A., additional, Hardin, Hannah, additional, Godse, Kiran, additional, Brzoza, Zenon, additional, Sousa, Jose Ignacio Larco, additional, Thomsen, Simon Francis, additional, van Doorn, Martijn, additional, Hide, Michihiro, additional, Ye, Young‐Min, additional, Vanderse, Staffan, additional, Lapiņa, Lāsma, additional, Peter, Jonny, additional, Zhao, Zuotao, additional, Han, Lianyi, additional, Nasr, Iman, additional, Rockmann‐Helmbach, Heike, additional, Sørensen, Jennifer Astrup, additional, Kara, Rabia Öztaş, additional, Kurjāne, Natalja, additional, Kurchenko, Andrii I., additional, Kaidashev, Igor, additional, Tsaryk, Vladyslav, additional, Stepanenko, Roman, additional, and Maurer, Marcus, additional

Published
2024
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2. Definition, aims, and implementation of GA(2) LEN/HAEi Angioedema Centers of Reference and Excellence

Author

Göncü, Özgür Emek Kocatürk (ORCID 0000-0003-2801-0959 & YÖK ID 217219), Maurer, Marcus; Werner, Aberer; Agondi, Rosana; Al-Ahmad, Mona; Al-Nesf, Maryam Ali; Ansotegui, Ignacio; Arnaout, Rand; Arruda, Luisa Karla; Asero, Riccardo; Aygoeren-Puersue, Emel; Banerji, Aleena; Bauer, Andrea; Ben-Shoshan, Moshe; Berardi, Alejandro; Bernstein, Jonathan A; Betschel, Stephen; Bindslev-Jensen, Carsten; Bizjak, Mojca; Boccon-Gibod, Isabelle; Bork, Konrad; Bouillet, Laurence; Boysen, Henrik Balle; Brodszki, Nicholas; Broesby-Olsen, Sigurd; Busse, Paula; Buttgereit, Thomas; Bygum, Anette; Caballero, Teresa; Campos, Regis A.; Cancian, Mauro; Cherrez-Ojeda, Ivan; Cohn, Danny M.; Costa, Celia; Craig, Timothy; Criado, Paulo Ricardo; Criado, Roberta F.; Csuka, Dorottya; Dissemond, Joachim; Du-Thanh, Aurelie; Ensina, Luis Felipe; Ertaş, Ragıp; Fabiani, Jose E.; Fantini, Claudio; Farkas, Henriette; Ferrucci, Silvia Mariel; Figueras-Nart, Ignasi; Fili, Natalia L.; Fomina, Daria; Fukunaga, Atsushi; Gelincik, Aslı; Gimenez-Arnau, Ana; Godse, Kiran; Gompels, Mark; Goncalo, Margarida; Gotua, Maia; Gower, Richard; Godse, Kiran; Gompels, Mark; Goncalo, Margarida; Gotua, Maia; Gower, Richard; Grumach, Anete S; Guidos-Fogelbach, Guillermo; Hide, Michihiro; Ilina, Natalia; Inomata, Naoko; Jakob, Thilo; Josviack, Dario O.; Kang, Hye-Ryun; Kaplan, Allen; Kasperska-Zajac, Alicja; Katelaris, Constance; Kessel, Aharon; Kleinheinz, Andreas; Kosnik, Mitja; Krasowska, Dorota; Kulthanan, Kanokvalai; Kumaran, M. Sendhil; Larco Sousa, Jose Ignacio; Longhurst, Hilary J.; Lumry, William; MacGinnitie, Andrew; Magerl, Markus; Makris, Michael P.; Malbran, Alejandro; Marsland, Alexander; Martinez-Saguer, Inmaculada; Medina, Iris V.; Meshkova, Raisa; Metz, Martin; Nasr, Iman; Nicolay, Jan; Nishigori, Chikako V.; Meshkova, Raisa; Metz, Martin; Nasr, Iman; Nicolay, Jan; Nishigori, Chikako; Ohsawa, Isao; Özyurt, Kemal; Papadopoulos, Nikolaos G.; Parisi, Claudio A. S.; Peter, Jonathan Grant; Pfuetzner, Wolfgang; Popov, Todor; Prior, Nieves; Ramon, German D.; Reich, Adam; Reshef, Avner; Rie, School of Medicine, Göncü, Özgür Emek Kocatürk (ORCID 0000-0003-2801-0959 & YÖK ID 217219), Maurer, Marcus; Werner, Aberer; Agondi, Rosana; Al-Ahmad, Mona; Al-Nesf, Maryam Ali; Ansotegui, Ignacio; Arnaout, Rand; Arruda, Luisa Karla; Asero, Riccardo; Aygoeren-Puersue, Emel; Banerji, Aleena; Bauer, Andrea; Ben-Shoshan, Moshe; Berardi, Alejandro; Bernstein, Jonathan A; Betschel, Stephen; Bindslev-Jensen, Carsten; Bizjak, Mojca; Boccon-Gibod, Isabelle; Bork, Konrad; Bouillet, Laurence; Boysen, Henrik Balle; Brodszki, Nicholas; Broesby-Olsen, Sigurd; Busse, Paula; Buttgereit, Thomas; Bygum, Anette; Caballero, Teresa; Campos, Regis A.; Cancian, Mauro; Cherrez-Ojeda, Ivan; Cohn, Danny M.; Costa, Celia; Craig, Timothy; Criado, Paulo Ricardo; Criado, Roberta F.; Csuka, Dorottya; Dissemond, Joachim; Du-Thanh, Aurelie; Ensina, Luis Felipe; Ertaş, Ragıp; Fabiani, Jose E.; Fantini, Claudio; Farkas, Henriette; Ferrucci, Silvia Mariel; Figueras-Nart, Ignasi; Fili, Natalia L.; Fomina, Daria; Fukunaga, Atsushi; Gelincik, Aslı; Gimenez-Arnau, Ana; Godse, Kiran; Gompels, Mark; Goncalo, Margarida; Gotua, Maia; Gower, Richard; Godse, Kiran; Gompels, Mark; Goncalo, Margarida; Gotua, Maia; Gower, Richard; Grumach, Anete S; Guidos-Fogelbach, Guillermo; Hide, Michihiro; Ilina, Natalia; Inomata, Naoko; Jakob, Thilo; Josviack, Dario O.; Kang, Hye-Ryun; Kaplan, Allen; Kasperska-Zajac, Alicja; Katelaris, Constance; Kessel, Aharon; Kleinheinz, Andreas; Kosnik, Mitja; Krasowska, Dorota; Kulthanan, Kanokvalai; Kumaran, M. Sendhil; Larco Sousa, Jose Ignacio; Longhurst, Hilary J.; Lumry, William; MacGinnitie, Andrew; Magerl, Markus; Makris, Michael P.; Malbran, Alejandro; Marsland, Alexander; Martinez-Saguer, Inmaculada; Medina, Iris V.; Meshkova, Raisa; Metz, Martin; Nasr, Iman; Nicolay, Jan; Nishigori, Chikako V.; Meshkova, Raisa; Metz, Martin; Nasr, Iman; Nicolay, Jan; Nishigori, Chikako; Ohsawa, Isao; Özyurt, Kemal; Papadopoulos, Nikolaos G.; Parisi, Claudio A. S.; Peter, Jonathan Grant; Pfuetzner, Wolfgang; Popov, Todor; Prior, Nieves; Ramon, German D.; Reich, Adam; Reshef, Avner; Rie, and School of Medicine

Abstract

GA(2)LEN UCARE Network

Published
2020

3. Definition, aims, and implementation of GA 2 LEN/HAEi Angioedema Centers of Reference and Excellence

Author

Maurer, Marcus, primary, Aberer, Werner, additional, Agondi, Rosana, additional, Al‐Ahmad, Mona, additional, Al‐Nesf, Maryam Ali, additional, Ansotegui, Ignacio, additional, Arnaout, Rand, additional, Arruda, Luisa Karla, additional, Asero, Riccardo, additional, Aygören‐Pürsün, Emel, additional, Banerji, Aleena, additional, Bauer, Andrea, additional, Ben‐Shoshan, Moshe, additional, Berardi, Alejandro, additional, Bernstein, Jonathan A., additional, Betschel, Stephen, additional, Bindslev‐Jensen, Carsten, additional, Bizjak, Mojca, additional, Boccon‐Gibod, Isabelle, additional, Bork, Konrad, additional, Bouillet, Laurence, additional, Boysen, Henrik Balle, additional, Brodszki, Nicholas, additional, Broesby‐Olsen, Sigurd, additional, Busse, Paula, additional, Buttgereit, Thomas, additional, Bygum, Anette, additional, Caballero, Teresa, additional, Campos, Régis A., additional, Cancian, Mauro, additional, Cherrez‐Ojeda, Ivan, additional, Cohn, Danny M., additional, Costa, Célia, additional, Craig, Timothy, additional, Criado, Paulo Ricardo, additional, Criado, Roberta F., additional, Csuka, Dorottya, additional, Dissemond, Joachim, additional, Du‐Thanh, Aurélie, additional, Ensina, Luis Felipe, additional, Ertaş, Ragıp, additional, Fabiani, José E., additional, Fantini, Claudio, additional, Farkas, Henriette, additional, Ferrucci, Silvia Mariel, additional, Figueras‐Nart, Ignasi, additional, Fili, Natalia L., additional, Fomina, Daria, additional, Fukunaga, Atsushi, additional, Gelincik, Asli, additional, Giménez‐Arnau, Ana, additional, Godse, Kiran, additional, Gompels, Mark, additional, Gonçalo, Margarida, additional, Gotua, Maia, additional, Gower, Richard, additional, Grumach, Anete S., additional, Guidos‐Fogelbach, Guillermo, additional, Hide, Michihiro, additional, Ilina, Natalia, additional, Inomata, Naoko, additional, Jakob, Thilo, additional, Josviack, Dario O., additional, Kang, Hye‐Ryun, additional, Kaplan, Allen, additional, Kasperska‐Zając, Alicja, additional, Katelaris, Constance, additional, Kessel, Aharon, additional, Kleinheinz, Andreas, additional, Kocatürk, Emek, additional, Košnik, Mitja, additional, Krasowska, Dorota, additional, Kulthanan, Kanokvalai, additional, Kumaran, M. Sendhil, additional, Larco Sousa, José Ignacio, additional, Longhurst, Hilary J., additional, Lumry, William, additional, MacGinnitie, Andrew, additional, Magerl, Markus, additional, Makris, Michael P., additional, Malbrán, Alejandro, additional, Marsland, Alexander, additional, Martinez‐Saguer, Inmaculada, additional, Medina, Iris V., additional, Meshkova, Raisa, additional, Metz, Martin, additional, Nasr, Iman, additional, Nicolay, Jan, additional, Nishigori, Chikako, additional, Ohsawa, Isao, additional, Özyurt, Kemal, additional, Papadopoulos, Nikolaos G., additional, Parisi, Claudio A. S., additional, Peter, Jonathan Grant, additional, Pfützner, Wolfgang, additional, Popov, Todor, additional, Prior, Nieves, additional, Ramon, German D., additional, Reich, Adam, additional, Reshef, Avner, additional, Riedl, Marc A., additional, Ritchie, Bruce, additional, Röckmann‐Helmbach, Heike, additional, Rudenko, Michael, additional, Salman, Andaç, additional, Sanchez‐Borges, Mario, additional, Schmid‐Grendelmeier, Peter, additional, Serpa, Faradiba S., additional, Serra‐Baldrich, Esther, additional, Sheikh, Farrukh R., additional, Smith, William, additional, Soria, Angèle, additional, Staubach, Petra, additional, Steiner, Urs C., additional, Stobiecki, Marcin, additional, Sussman, Gordon, additional, Tagka, Anna, additional, Thomsen, Simon Francis, additional, Treudler, Regina, additional, Valle, Solange, additional, van Doorn, Martijn, additional, Varga, Lilian, additional, Vázquez, Daniel O., additional, Wagner, Nicola, additional, Wang, Liangchun, additional, Weber‐Chrysochoou, Christina, additional, Ye, Young‐Min, additional, Zalewska‐Janowska, Anna, additional, Zanichelli, Andrea, additional, Zhao, Zuotao, additional, Zhi, Yuxiang, additional, Zuberbier, Torsten, additional, Zwiener, Ricardo D., additional, and Castaldo, Anthony, additional

Published
2020
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4. CRUSE ® -An innovative mobile application for patient monitoring and management in chronic spontaneous urticaria.

Author

Neisinger S, Sousa Pinto B, Ramanauskaite A, Bousquet J, Weller K, Metz M, Magerl M, Kocatürk E, Cherrez-Ojeda I, Gimenez-Arnau AM, Parisi CAS, Altrichter S, Ensina LF, Bouillet L, Asero R, Gonçalo M, Guillet C, Rutkowski K, Bernstein JA, Hardin H, Godse K, Brzoza Z, Sousa JIL, Thomsen SF, van Doorn M, Hide M, Ye YM, Vandersee S, Lapiņa L, Peter J, Zhao Z, Han L, Nasr I, Rockmann-Helmbach H, Sørensen JA, Kara RÖ, Kurjāne N, Kurchenko AI, Kaidashev I, Tsaryk V, Stepanenko R, and Maurer M

Abstract

Background: Chronic spontaneous urticaria (CSU) is unpredictable and can severely impair patients' quality of life. Patients with CSU need a convenient, user-friendly platform to complete patient-reported outcome measures (PROMs) on their mobile devices. CRUSE ® , the Chronic Urticaria Self Evaluation app, aims to address this unmet need., Methods: CRUSE ® was developed by an international steering committee of urticaria specialists. Priorities for the app based on recent findings in CSU were defined to allow patients to track and record their symptoms and medication use over time and send photographs. The CRUSE ® app collects patient data such as age, sex, disease onset, triggers, medication, and CSU characteristics that can be sent securely to physicians, providing real-time insights. Additionally, CRUSE ® contains PROMs to assess disease activity and control, which are individualised to patient profiles and clinical manifestations., Results: CRUSE ® was launched in Germany in March 2022 and is now available for free in 17 countries. It is adapted to the local language and displays a country-specific list of available urticaria medications. English and Ukrainian versions are available worldwide. From July 2022 to June 2023, 25,710 observations were documented by 2540 users; 72.7% were females, with a mean age of 39.6 years. At baseline, 93.7% and 51.3% of users had wheals and angioedema, respectively. Second-generation antihistamines were used in 74.0% of days., Conclusions: The initial data from CRUSE ® show the wide use and utility of effectively tracking patients' disease activity and control, paving the way for personalised CSU management., (© 2024 The Authors. Clinical and Translational Allergy published by John Wiley & Sons Ltd on behalf of European Academy of Allergy and Clinical Immunology.)

Published
2024
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