Search

Your search keyword '"Avard, Denise"' showing total 9 results
Start Over Author "Avard, Denise" Publisher wiley
9 results on '"Avard, Denise"'

2. Cohort Profile: The Maternal‐Infant Research on Environmental Chemicals Research Platform

Author

Arbuckle, Tye E., primary, Fraser, William D., additional, Fisher, Mandy, additional, Davis, Karelyn, additional, Liang, Chun Lei, additional, Lupien, Nicole, additional, Bastien, Stéphanie, additional, Velez, Maria P., additional, Dadelszen, Peter, additional, Hemmings, Denise G., additional, Wang, Jingwei, additional, Helewa, Michael, additional, Taback, Shayne, additional, Sermer, Mathew, additional, Foster, Warren, additional, Ross, Greg, additional, Fredette, Paul, additional, Smith, Graeme, additional, Walker, Mark, additional, Shear, Roberta, additional, Dodds, Linda, additional, Ettinger, Adrienne S., additional, Weber, Jean‐Philippe, additional, D'Amour, Monique, additional, Legrand, Melissa, additional, Kumarathasan, Premkumari, additional, Vincent, Renaud, additional, Luo, Zhong‐Cheng, additional, Platt, Robert W., additional, Mitchell, Grant, additional, Hidiroglou, Nick, additional, Cockell, Kevin, additional, Villeneuve, Maya, additional, Rawn, Dorothea F. K, additional, Dabeka, Robert, additional, Cao, Xu‐Liang, additional, Becalski, Adam, additional, Ratnayake, Nimal, additional, Bondy, Genevieve, additional, Jin, Xiaolei, additional, Wang, Zhongwen, additional, Tittlemier, Sheryl, additional, Julien, Pierre, additional, Avard, Denise, additional, Weiler, Hope, additional, LeBlanc, Alain, additional, Muckle, Gina, additional, Boivin, Michel, additional, Dionne, Ginette, additional, Ayotte, Pierre, additional, Lanphear, Bruce, additional, Séguin, Jean R., additional, Saint‐Amour, Dave, additional, Dewailly, Éric, additional, Monnier, Patricia, additional, Koren, Gideon, additional, and Ouellet, Emmanuel, additional

Published
2013
Full Text
View/download PDF

9. Expectations and values about expanded newborn screening: a public engagement study.

Author

Hayeems RZ, Miller FA, Bombard Y, Avard D, Carroll J, Wilson B, Little J, Chakraborty P, Bytautas J, Giguere Y, Allanson J, and Axler R

Subjects
Adolescent, Adult, Canada, Female, Focus Groups, Humans, Infant, Newborn, Informed Consent psychology, Male, Middle Aged, Parents psychology, Patient Acceptance of Health Care psychology, Surveys and Questionnaires, Young Adult, Neonatal Screening psychology
Abstract

Objectives: Newborn bloodspot screening (NBS) panels have expanded to include conditions for which treatment effects are less certain, creating debate about population-based screening criteria. We investigated Canadian public expectations and values regarding the types of conditions that should be included in NBS and whether parents should provide consent., Methods: Eight focus groups (FG; n = 60) included education, deliberative discussion and pre-/post-questionnaires. Data were analysed quantitatively and qualitatively., Results: Quantitatively, the majority supported NBS for serious disorders for which treatment is not available (95-98, 82%). A majority endorsed screening without explicit consent (77-88%) for treatable disorders, but 62% supported unpressured choice for screening for untreatable disorders. Qualitatively, participants valued treatment-related benefits for infants and informational benefits for families. Concern for anxiety, stigma and unwanted knowledge depended upon disease context and strength of countervailing benefits., Conclusions: Anticipated benefits of expanded infant screening were prioritized over harms, with information provision perceived as a mechanism for mitigating harms and enabling choice. However, we urge caution around the potential for public enthusiasm to foster unlimited uptake of infant screening technologies., (© 2013 Blackwell Publishing Ltd.)

Published
2015
Full Text
View/download PDF

Catalog

Books, media, physical & digital resources
See catalog results