1. Brazilian headache registry: methods and preliminary data of the pilot study.
- Author
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Grassi V, Jurno ME, Fröhlich AC, Rieder CRM, Sarmento EM, Pereira JK, Silva LL, Barea LM, Poli LEB, Queiroz LP, Ciciarelli MC, Peres MFP, Rocha Filho PAS, Vieira RVA, Londero RG, and Kowacs F
- Subjects
- Female, Male, Humans, Pilot Projects, Brazil epidemiology, Preliminary Data, Prospective Studies, Registries, Headache epidemiology
- Abstract
Background: Evaluation and treatment of primary and secondary headaches is a global public health challenge. Recognizing the epidemiological impact of headaches, a group of researchers linked to the Brazilian Headache Society proposed the Brazilian Headache Registry and drew up its initial protocol., Objective: Here we describe the methods and preliminary data obtained from the pilot study., Methods: This was a multicenter longitudinal observational study conducted between September 2020 and August 2021. Prospective data were collected in three specialist centers for headache care in states in southern and southeastern Brazil. Patients aged 18 years or older who sought care for headache in tertiary centers and who agreed to participate in the study, were considered eligible., Results: Sixty-six patients were included in the pilot study: 43 (65%) from Rio Grande do Sul state and 23 (35%) from Minas Gerais state. Overall, 90% were female, and the subjects' mean age was 38.2 ± 11.2 years. Primary headaches accounted for 85.3% of the diagnoses made. Among secondary headaches, medication overuse headache was the most frequent type (7.1%)., Conclusions: The pilot study showed the feasibility of the research protocol developed for tertiary centers. The Brazilian Headache Registry will form a source of longitudinal data with the aim of contributing to better characterization of the various phenotypes of patients with primary and secondary headaches, and to detailing the use of health resources and identifying predictors of better clinical outcomes., Competing Interests: There is no conflict of interest to declare., (Academia Brasileira de Neurologia. This is an open access article published by Thieme under the terms of the Creative Commons Attribution 4.0 International License, permitting copying and reproduction so long as the original work is given appropriate credit (https://creativecommons.org/licenses/by/4.0/).)
- Published
- 2023
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