419 results on '"INTERNET in medicine"'
Search Results
2. Patients' Online Information-Seeking Behavior Throughout Treatment: The Impact on Medication Beliefs and Medication Adherence.
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Linn, Annemiek J., van Weert, Julia C. M., Gebeyehu, Beniam G., Sanders, Remco, Diviani, Nicola, Smit, Edith G., and van Dijk, Liset
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INFORMATION-seeking behavior , *PATIENT compliance , *DRUG therapy , *INTERNET in medicine , *PATIENTS' attitudes , *CHRONICALLY ill patient care , *ANALYSIS of variance , *BIOTHERAPY , *CHI-squared test , *DRUGS , *HEALTH attitudes , *IMMUNOSUPPRESSIVE agents , *INFLAMMATORY bowel diseases , *INTERNET , *LONGITUDINAL method , *QUESTIONNAIRES , *SELF-evaluation , *STATISTICS , *TIME , *DATA analysis , *RETROSPECTIVE studies , *DESCRIPTIVE statistics - Abstract
Research on the longitudinal impact of using the internet as an information source on patients' beliefs and medication adherence is scarce. Chronic patients (N = 107) from six hospitals were surveyed to longitudinally explore their online information seeking behavior throughout treatment (i.e., before the consultation about their newly prescribed medication in the initiation phase and after six months in the implementation phase) and how this affects their medication beliefs (concerns and necessity) and medication adherence after three weeks (T1) and six months (T2). Most patients (79%) used the internet. Patients who used the internet before the consultation reported to have more concerns about their medication at T1 and T2 compared to those who did not. Moreover, patients who used the internet throughout treatment valued their concerns higher than the necessity after six months (T2). Patients who used the internet after the consultation reported to be more non-adherent after three weeks (T1) compared to those who did not. Because of the longitudinal nature of this study, we were able to pinpoint in which treatment phase patients' online information seeking behavior is particular relevant in affecting patients' beliefs and medication adherence. [ABSTRACT FROM AUTHOR]
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- 2019
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3. Development and evaluation of a scale assessing therapist fidelity to guidelines for delivering therapist-assisted Internet-delivered cognitive behaviour therapy.
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Hadjistavropoulos, Heather D., Schneider, Luke H., Klassen, Kristen, Dear, Blake F., and Titov, Nickolai
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COGNITIVE therapy , *MENTAL depression , *ANXIETY , *INTERNET in medicine , *BEHAVIOR therapists - Abstract
Internet-delivered cognitive behaviour therapy (ICBT) is often accompanied by therapist emails, but there is limited research on the quality of this therapist-assistance. In this study, an ICBT Therapist Rating Scale (ICBT-TRS) was developed and evaluated to assess whether therapist emails showed fidelity to specific therapist behaviours. Using data from a previous ICBT trial for depression and anxiety, the ICBT-TRS was used to rate 706 emails sent by 39 therapists to 91 randomly selected patients. Emails were rated for adherence (absent/present) and quality (inadequate/competent) on the following behaviours: Builds Rapport, Seeks Feedback, Provides Symptom Feedback, Provides Psychoeducation, Facilitates Understanding, Praises Effort, Encourages Practice, Clarifies Administrative Procedures, and Communicates Effectively. Inter-rater reliability was high. Most behaviours were identified as present in 72-100% of emails, with the exception of Provides Symptom Feedback and Facilitating Understanding which were only present in 54 and 61% of emails. The majority of emails were rated as high quality (88-98% of messages). While not related to symptom improvement, ICBT-TRS ratings were higher when patients were more engaged in ICBT (e.g. log-ins) and among therapists who specialized in ICBT or had a background in Psychology. The ICBT-TRS has potential to facilitate ICBT research and clinical training. [ABSTRACT FROM AUTHOR]
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- 2018
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4. Teaching advocacy communication to pediatric residents: the efficacy of applied improvisational theater (AIT) as an instructional tool.
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Hoffmann-Longtin, Krista, Organ, Jason M., Helphinstine, Jill V., Reinoso, Deanna R., Morgan, Zachary S., and Weinstein, Elizabeth
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MEDICAL communication , *MEDICAL informatics , *SOCIAL media , *MEDICAL personnel , *INTERNET in medicine - Abstract
In today's communication landscape, the public often turn to the Internet and social media instead of their physician for health information. To remain relevant and respected amidst the wealth of health information available online, physicians need to offer something the Internet cannot fully emulate: empathetic imagination and an ability to instantaneously tailor messages to reach and teach worried and often confused audiences effectively. We developed an instructional communication module for pediatric residents that used applied improvisational theater to help residents develop complex and dynamic communication skills. The module included opportunities to develop empathy, practice audience analysis, distill messages to key points, and apply these skills in media and community contexts. Attendees completed surveys regarding their perceptions of curricular structure, efficacy, and utility. Preliminary results indicate gains in communication confidence and skills. This type of instructional communication and training module encourages healthcare practitioners to position themselves as trusted experts and partners in helping clients make meaning of health information, thus empowering a new generation of pediatricians to bridge communication gaps created by new technologies and increased access to multiple information sources. [ABSTRACT FROM AUTHOR]
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- 2018
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5. Impact of Interaction Paradigms on Full-Body Interaction Collocated Experiences for Promoting Social Initiation and Collaboration.
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Crowell, Ciera, Mora-Guiard, Joan, and Pares, Narcis
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HEALTH information technology , *CHILDREN with autism spectrum disorders , *INTERNET in medicine , *MEDICAL communication , *DEVELOPMENTAL disabilities - Abstract
This article addresses the design and study of novel interaction settings and systems supporting collocated interaction. More specifically, we aim to analyze the implications of two different interaction approaches, namely first-person and third-person interaction paradigms, and the corresponding theoretical approaches when designing and developing collocated experiences for children with Autism Spectrum Disorders (ASDs). This analysis is supported by the outcomes of several examples of full-body interaction collocated experiences aimed at promoting social initiation and collaboration. Moreover, we present a series of goal-driven guidelines to consider when designing with various interaction paradigms. Finally, we discuss future work to better understand the implications of constructing paradigms for the intuitive use of these full-body interaction systems. [ABSTRACT FROM AUTHOR]
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- 2018
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6. Nurses' experiences of the use of an Internet-based support system for adolescents with depressive disorders.
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Kurki, Marjo, Anttila, Minna, Koivunen, Marita, Marttunen, Mauri, and Välimäki, Maritta
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INTERNET in medicine , *DEPRESSION in adolescence , *PSYCHIATRIC nurses , *DEPRESSED persons , *TECHNOLOGY Acceptance Model , *NEUROINFORMATICS , *ATTITUDE (Psychology) , *MEDICAL care , *THERAPEUTICS - Abstract
Background: Internet-based applications are potentially useful and effective interventions to reach and support adolescents with mental health problems. Adolescents' commitment to the use of a new Internet-based intervention is closely related to the support they receive from healthcare professionals. This study describes nurses' experiences of the use of an Internet-based support system for adolescents with depressive disorders.Method: Qualitative descriptive study design including individual interviews with nine nurses at two psychiatric outpatient clinics. The Technology Acceptance Model (TAM) was used as the theoretical background of the study.Results: Nurses described several benefits of using the Internet-based support system in the care of adolescents with depressive disorders if the nurses integrate it into daily nursing practices. As perceived disadvantages the nurses thought that an adolescent's mental status might be a barrier to working with the support system. Perceived enablers could be organizational support, nurses' attitudes, and technology-related factors. Nurses' attitudes were identified as a barrier to supporting adolescents' use of the Internet-based support system.Conclusion: The findings suggest that the implementation plan and support from the organization, including that from nurse managers, are crucial in the process of implementing a technology-based support system. [ABSTRACT FROM AUTHOR]- Published
- 2018
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7. Individually tailored internet-based cognitive behaviour therapy for older adults with anxiety and depression: a randomised controlled trial.
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Silfvernagel, Kristin, Westlinder, Anna, Andersson, Stina, Bergman, Kajsa, Diaz Hernandez, Rosario, Fallhagen, Line, Lundqvist, Ida, Masri, Nicole, Viberg, Linda, Forsberg, Marie-Louise, Lind, Maria, Berger, Thomas, Carlbring, Per, and Andersson, Gerhard
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COGNITIVE therapy , *BEHAVIOR therapy , *INTERNET in medicine , *ANXIETY in old age , *MENTAL depression , *THERAPEUTICS , *BECK Anxiety Inventory , *COGNITIVE ability - Abstract
Mixed anxiety and depression is common among older adults. The aim of the study was to compare the effects of an eight-week-long tailored internet-supported cognitive behaviour therapy (ICBT) programme and to compare against the provision of weekly general support. A second aim was to investigate if pre-treatment cognitive flexibility and self-reported cognitive problems would predict outcome. We included 66 older adults (aged over 60 years) with mixed anxiety/depression following media recruitment and randomised them into treatment and control groups. We also included a one-year follow-up. As a measure of executive function, we used the Wisconsin Card Sorting Test (perseverative errors) and the Cognitive Failures Questionnaire during the pre-treatment phase. Results showed a moderate between-group effect on the main outcome measure, the Beck Anxiety Inventory (BAI) (d=.50), favouring the treatment group. Nearly half (45.5%) of that group were classified as responders. One person (3%) in the treatment group deteriorated. There were significant correlations between perseverative errors and outcome (on the BAI r = −.45), but not among self-reported cognitive function. We conclude that guided, tailored ICBT may be effective for some older adults and that the role of cognitive function needs to be investigated further. [ABSTRACT FROM AUTHOR]
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- 2018
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8. Affordances of mHealth technology and the structuring of clinic communication.
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Mikesell, Lisa, Marti, F. Alethea, Guzmán, Jennifer R., McCreary, Michael, and Zima, Bonnie
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INTERNET in medicine , *DIGITAL technology , *ATTENTION-deficit hyperactivity disorder , *STIMULANTS , *MEDICAL care - Abstract
Careful examination of communicative outcomes of mHealth technology is critical for understanding its capacity to shape the clinical interview and structure clinic communication. Drawing on a communicative affordances framework and adopting a video-based inductive analytic approach, we extend the concept of actualizations. We do so by examining the in situ communicative actions afforded by a mHealth web interface utilized during medication titration interviews with parents of children beginning stimulant medication for ADHD. We find that the web interface served five broad communicative functions that provided opportunities for improving information accuracy and for rendering clinical reasoning transparent, while jeopardizing opportunities for parents to narrativize medication experiences. We discuss clinical, theoretical, and methodological implications. [ABSTRACT FROM AUTHOR]
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- 2018
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9. Adherence predictors in an Internet-based Intervention program for depression.
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Castro, Adoración, López-del-Hoyo, Yolanda, Peake, Christian, Mayoral, Fermín, Botella, Cristina, García-Campayo, Javier, Baños, Rosa María, Nogueira-Arjona, Raquel, Roca, Miquel, and Gili, Margalida
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MENTAL depression , *PSYCHOTHERAPY , *INTERNET in medicine , *PRIMARY care , *SOCIODEMOGRAPHIC factors - Abstract
Internet-delivered psychotherapy has been demonstrated to be effective in the treatment of depression. Nevertheless, the study of the adherence in this type of the treatment reported divergent results. The main objective of this study is to analyze predictors of adherence in a primary care Internet-based intervention for depression in Spain. A multi-center, three arm, parallel, randomized controlled trial was conducted with 194 depressive patients, who were allocated in self-guided or supported-guided intervention. Sociodemographic and clinical characteristics were gathered using a case report form. The Mini international neuropsychiatric interview diagnoses major depression. Beck Depression Inventory was used to assess depression severity. The visual analogic scale assesses the respondent’s self-rated health and Short Form Health Survey was used to measure the health-related quality of life. Age results a predictor variable for both intervention groups (with and without therapist support). Perceived health is a negative predictor of adherence for the self-guided intervention when change in depression severity was included in the model. Change in depression severity results a predictor of adherence in the support-guided intervention. Our findings demonstrate that in our sample, there are differences in sociodemographic and clinical variables between active and dropout participants and we provide adherence predictors in each intervention condition of this Internet-based program for depression (self-guided and support-guided). It is important to point that further research in this area is essential to improve tailored interventions and to know specific patients groups can benefit from these interventions. [ABSTRACT FROM AUTHOR]
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- 2018
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10. The rationale and design of reduction of uncontrolled hypertension by Remote Monitoring and Telemedicine (REMOTE) study.
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Yatabe, Midori Sasaki, Yatabe, Junichi, Asayama, Kei, Staessen, Jan A., Mujaj, Blerim, Thijs, Lutgarde, Ito, Kyotaro, Sonoo, Tomohiro, Morimoto, Satoshi, and Ichihara, Atsuhiro
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HYPERTENSION , *THERAPEUTICS , *INTERNET in medicine , *TELEMEDICINE , *REGULATION of blood pressure , *BLOOD pressure , *PATIENTS , *PATIENT satisfaction , *COST effectiveness , *COMPUTER network resources - Abstract
Purpose: Although self-measurement of home blood pressure (HBP) is common in Japan and HBP telemonitoring via the Internet is possible, whether telemonitoring improves HBP control better than conventional practice remains unclear. Furthermore, hypertension care with online communication using telemonitored HBP is feasible, whereas the efficacy and safety of such telemedicine have not been established. We aim to compare traditional care, care with office visits using HBP telemonitoring, and antihypertensive telemedicine based on HBP telemonitoring. Methods and design: In total, 444 patients with uncontrolled hypertension will be recruited and randomly assigned to three groups: (1) control: usual care with office visits and HBP self-report, (2) telemonitoring: weekly assessment of transmitted HBP by physicians and treatment adjustment upon office visits, or (3) telemedicine: online communication instead of office visits to adjust medication using telemonitored HBP. Primary outcome is the time to control of HBP, and secondary outcomes include achieved HBP levels, adherence, treatment intensity, adverse events, patient satisfaction and cost-effectiveness. Discussion: Hypertension care with telemonitoring and telemedicine are expected to require shorter time to achieve HBP control compared to usual care. Combining HBP telemonitoring with telemedicine may lower the hurdles for starting and persisting to hypertension treatment and eventually reduce cardiovascular events. [ABSTRACT FROM AUTHOR]
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- 2018
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11. Quality of web-based family-building information for LGBTQ individuals.
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Kreines, Fabiana M., Farr, Alex, Chervenak, Frank A., and Grünebaum, Amos
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INTERNET in medicine , *FAMILY planning , *HEALTH of LGBTQ+ people , *REPRODUCTIVE health , *QUALITY control - Abstract
Objective: The number of patients who seek health information on the internet is increasing. Rates are particularly high among lesbian, gay, bisexual, transgender and queer (LGBTQ) individuals, due to health care barriers. The aim of this study was to evaluate the quality and inclusivity of web-based information pertaining to LGBTQ family building.Methods: The first 100 US-based websites pertaining to LGBTQ family building were identified through a terminology-based internet search. After eliminating 45 websites, 55 websites were found to be eligible. The 2016 Website Information Reliability Evaluation Instrument (of the Office of Disease Prevention and Health Promotion, US Department of Health and Human Services) was used to analyse the quality of information on each website. Websites were analysed for inclusivity of important topics surrounding LGBTQ family building.Results: A total of 46 websites (83.6%) belonged or were related to reproductive services and served as advertisements for their respective owners; nine websites (16.4%) belonged to third parties. No website met more than four of the six major reliability criteria, and 42 websites (76.4%) met only one or two of the six major reliability criteria. When inclusivity was considered, 29 websites (52.7%) mentioned options for transgender individuals and nine websites (16.4%) mentioned adoption.Conclusions: There is a lack of reliable web-based information for LGBTQ family building and a need for improvement in quality and scope. Improvements could lead to a shift in reproductive health care towards better inclusion of and catering to LGBTQ individuals. [ABSTRACT FROM AUTHOR]- Published
- 2018
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12. Digital Natives Versus Digital Immigrants: Influence of Online Health Information Seeking on the Doctor-Patient Relationship.
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Haluza, Daniela, Naszay, Marlene, Stockinger, Andreas, and Jungwirth, David
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INTERNET in medicine , *PHYSICIAN-patient relations , *INFORMATION-seeking behavior , *HEALTH information services , *INFLUENCE , *INTERNET users , *SOCIODEMOGRAPHIC factors , *HEALTH attitudes , *PSYCHOLOGY , *AGE distribution , *CHI-squared test , *COMMUNICATION , *CONFIDENCE intervals , *CONSUMER attitudes , *DATA transmission systems , *HEALTH , *INTERNET , *PROBABILITY theory , *STATISTICAL sampling , *SCALE analysis (Psychology) , *SELF-efficacy , *SEX distribution , *INFORMATION resources , *LOGISTIC regression analysis , *CROSS-sectional method , *DATA analysis software , *DESCRIPTIVE statistics , *ODDS ratio - Abstract
Ubiquitous Internet access currently revolutionizes the way people acquire information by creating a complex, worldwide information network. The impact of Internet use on the doctor-patient relationship is a moving target that varies across sociodemographic strata and nations. To increase scientific knowledge on the patient-Web-physician triangle in Austria, this study reports findings regarding prevailing online health information-seeking behavior and the respective impact on doctor-patient interactions among a nonprobability convenience sample of Internet users. To investigate digital age group-specific influences, we analyzed whether digital natives and digital immigrants differed in their perspectives. The questionnaire-based online survey collected sociodemographic data and online health information-seeking behavior from a sample of 562 respondents (59% females, mean age 37 ± 15 years, 54% digital natives). Most respondents (79%) referred to the Internet to seek health information, making it the most commonly used source for health information, even more prevalent then the doctor. We found similar predictors for using the Internet as a source for health-related information across digital age groups. Thus, the overall generational gap seems to be small among regular Internet users in Austria. However, study participants expressed a rather skeptical attitude toward electronic exchange of health data between health care professionals and patients, as well as toward reliability of online health information. To improve adoption of electronic doctor-patient communication and patient empowerment, public education and awareness programs are required to promote consumer-centered health care provision and patient empowerment. [ABSTRACT FROM AUTHOR]
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- 2017
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13. eHealth for inflammatory bowel disease self-management – the patient perspective.
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Con, Danny, Jackson, Belinda, Gray, Kathleen, and De Cruz, Peter
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INFLAMMATORY bowel diseases , *SELF medication , *INTERNET in medicine , *FORUMS , *TREATMENT effectiveness - Abstract
Background:Electronic health (eHealth) solutions may help address the growing pressure on IBD outpatient services as they encompass a component of self-management. However, information regarding patients’ attitudes towards the use of eHealth solutions in IBD is lacking. Objective:The aim of this study was to evaluate eHealth technology use and explore the perspectives of IBD patients on what constitutes the ideal eHealth solution to facilitate self-management. Methods:A mixed methods qualitative and quantitative analysis of the outcomes of a discussion forum and an online survey conducted at a tertiary hospital in Melbourne, Australia between November 2015 and January 2016 was undertaken. Results:Eighteen IBD patients and parents participated in the discussion forum. IBD patients expressed interest in eHealth tools that are convenient and improve access to care, communication, disease monitoring and adherence. Eighty six patients with IBD responded to the online survey. A majority of patients owned a mobile phone (98.8%), had access to the internet (97.7%), and felt confident entering data onto a phone or computer (73.3%). Most patients (98.8%) were willing to use at least one form of information and communication technology to help manage their IBD. Smartphone apps and internet websites were the two most preferred technologies to facilitate IBD self-management. Conclusions:This study demonstrates the willifngness of patients to engage with eHealth as a potential solution to facilitate IBD self-management. Future development and testing of eHealth solutions should be informed by all major stakeholders including patients to maximise their uptake and efficacy to facilitate IBD self-management. [ABSTRACT FROM PUBLISHER]
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- 2017
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14. “That Should Be Left to Doctors, That’s What They are There For!”—Exploring the Reflexivity and Trust of Young Adults When Seeking Health Information.
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Mendes, Álvaro, Abreu, Liliana, Vilar-Correia, Maria Rui, and Borlido-Santos, Júlio
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HEALTH of young adults , *HEALTH information services , *REFLEXIVITY , *INFORMATION-seeking behavior , *TRUST , *INTERNET in medicine , *LIFESTYLES & health , *INDIVIDUALIZED medicine , *GROUNDED theory , *HEALTH , *INTERNET , *INTERVIEWING , *LONGITUDINAL method , *RESEARCH methodology , *PATIENT-professional relations , *SENSORY perception , *RESEARCH funding , *INFORMATION resources , *QUALITATIVE research , *THEMATIC analysis - Abstract
This paper explores the health information-seeking practices of healthy young adults and how they assess and rank sources of information through a qualitative study. The findings show that participants (a) are strongly committed to searching for information about health and lifestyle, especially via the Internet; (b) healthcare professionals were perceived as the most reliable source of health information and advice; (c) online health information, although frequently accessed and experienced as empowering, is seen as a potentially unreliable source. Findings evidence how becoming better informed about health-related topics plays a pivotal role in individuals’ lives, most notably by using the Internet. Participants were able to reflect about what it means to know about health. The construction of trust regarding health information involved a heuristic process vis-à-vis source reliability and perceived credibility that places doctors as the most trustworthy medium of medical advice and health information. We conclude that participants’ trust toward professionals suggests the preference and need for more personalized care; and it is a response to the ambiguity and uncertainty that permeates the health information landscape, particularly that which is web-based. [ABSTRACT FROM PUBLISHER]
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- 2017
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15. Avatar-assisted therapy: a proof-of-concept pilot study of a novel technology-based intervention to treat substance use disorders.
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Gordon, Michael S., Carswell, Steven B., Schadegg, Mary, Mangen, Kayla, Merkel, Kelly, Tangires, Susan, and Vocci, Frank J.
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SUBSTANCE abuse treatment , *INTERNET in medicine , *PUBLIC health laws , *AVATARS (Virtual reality) , *REAL-time control , *MEDICATION abuse , *SUBSTANCE abuse & psychology , *COUNSELING , *INTERNET , *MEDICAL consultation , *COMPUTERS in medicine , *TELEMEDICINE , *THERAPEUTICS , *PILOT projects , *TREATMENT effectiveness - Abstract
Background: Avatar-assisted therapy (AAT) is a novel and emerging technology that uses the Internet to enable clinicians and clients in substance abuse treatment to participate in group counseling sessions from separate and remote locations in real time through the use of avatars and virtual environments.Objectives: The current study is a pilot proof-of-concept feasibility study involving individuals in outpatient substance abuse treatment. This report addresses two questions: (1) are individuals who present for substance abuse treatment interested in receiving AAT and (2) what factors are associated with better treatment success.Methods: Individuals who presented at the treatment clinic who met study eligibility criteria, and provided their written informed consent to participate, were included in the current study (N = 59; 78% male).Results: Twenty-eight (47.5%) participants completed 16 weeks of treatment and attended more sessions compared to non-completers (M = 14.3 vs. 7.5 p < .05). Those individuals who completed treatment were less likely to have a positive urine drug screen at baseline (21.5 vs. 78.6%; p < .05). Furthermore, those individuals who successfully completed treatment were less likely to have positive urine drug screens during treatment compared to those who did not complete (29.7% vs. 70.3%, p < .05). There were no arrests during treatment for completers and non-completers.Conclusion: Poor retention in substance use disorder treatment has long been a major problem for public health. AAT is a feasible approach that has the potential to expand treatment to individuals who might have difficulty accessing treatment. Moreover, AAT may be appealing to clients who are concerned about anonymity and confidentiality. [ABSTRACT FROM AUTHOR]- Published
- 2017
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16. Preparing medical students for the e-patient.
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Masters, Ken
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INTERNET in medicine , *YOUNG adults , *ADULTS , *HIGHER education , *PROFESSIONAL education , *MEDICAL education , *PATIENTS , *CURRICULUM , *INTERNET , *TEACHING methods - Abstract
The emergence of the e-patient has resulted in many medical practitioners' being ill-equipped to deal with the 21st-century medical practice. This Guide is a teaching guide for medical educators so that they can prepare their students for the new environment that has resulted from the emergence of the e-patient. Within the context of theoretical perspectives, the Guide begins by defining the concept, and examining the history of the e-patient, detailing typical e-patient activities and some complexities raised by these activities. Finally, the Guide details the topic areas that should be covered in a course aimed at preparing medical students for e-patients. The result is a theoretical and practical teaching Guide that equips medical teachers and their students with the necessary background information, and also assists teachers in the teaching of that information so that their students may become health practitioners fully equipped to deal with the problems and potential of the e-patient. [ABSTRACT FROM PUBLISHER]
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- 2017
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17. Ready for eHealth? Health Professionals' Acceptance and Adoption of eHealth Interventions in Inpatient Routine Care.
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Hennemann, Severin, Beutel, Manfred E., and Zwerenz, Rüdiger
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REHABILITATION worker attitudes , *INTERNET in medicine , *INPATIENT care , *ATTITUDES of medical personnel , *HEALTH care intervention (Social services) , *HOSPITAL care , *MEDICAL personnel , *SURVEYS , *TELEMEDICINE , *CROSS-sectional method , *PSYCHOLOGY - Abstract
eHealth interventions can be effective in treating health problems. However, adoption in inpatient routine care seems limited. The present study therefore aimed to investigate barriers and facilitators to acceptance of eHealth interventions and of online aftercare in particular in health professionals of inpatient treatment. A total of 152 out of 287 health professionals of various professional groups in four inpatient rehabilitation facilities filled out a self-administered web-based questionnaire (response rate: 53%); 128 individuals were eligible for further data analysis. Acceptance and possible predictors were investigated with a complex research model based on the Unified Theory of Acceptance and Use of Technology. Acceptance of eHealth interventions was rather low (M = 2.47, SD = 0.98); however, acceptance of online aftercare was moderate (M = 3.08, SD = 0.96, t(127) = 8.22, p < .001), and eHealth literacy was elevated. Social influence, performance expectancy, and treatment-related internet and mobile use significantly predicted overall acceptance. No differences were found between professional and age groups. Although acceptance of eHealth interventions was limited in health professionals of inpatient treatment, moderate acceptance of online aftercare for work-related stress implies a basis for future implementation. Tailored eHealth education addressing misconceptions about inferiority and incongruity with conventional treatment considering the systemic aspect of acceptance formation are needed. [ABSTRACT FROM AUTHOR]
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- 2017
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18. Factors Influencing Communication with Doctors via the Internet: A Cross-Sectional Analysis of 2014 HINTS Survey.
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Jiang, Shaohai and Street, Richard L.
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INTERNET in medicine , *PHYSICIAN-patient relations , *INFLUENCE , *INTERPERSONAL relations & psychology , *HEALTH surveys , *PATIENT psychology , *MASS media & psychology , *INTERNET access , *INFORMATION-seeking behavior , *COMMUNICATION , *CONCEPTUAL structures , *STATISTICAL correlation , *ETHNIC groups , *HEALTH , *HEALTH status indicators , *INTERNET , *MEDICAL appointments , *MEDICAL care use , *QUESTIONNAIRES , *REGRESSION analysis , *SCALE analysis (Psychology) , *SURVEYS , *TRUST , *INFORMATION resources , *SECONDARY analysis , *EDUCATIONAL attainment , *CROSS-sectional method , *PATIENT-centered care , *DESCRIPTIVE statistics - Abstract
Based on Street’s (2003) ecological framework of communication in medical encounters, this study examined personal, interpersonal, and media factors that could influence patients’ use of the Internet to communicate with doctors. Results from data analysis of responses from the 2014 Health Information National Trends Survey showed that patient activation and ease of Internet access were two positive predictors of online doctor-patient communication. In addition, patients’ trust in doctors positively moderated the relationships between patient activation and online doctor-patient communication, and between perceived health status and online doctor-patient communication. Finally, the quality of patients’ past experiences communicating with doctors had a positive moderation effect on the association between health information seeking behavior and online doctor-patient communication. Implications and limitations are discussed. [ABSTRACT FROM PUBLISHER]
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- 2017
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19. Regular cognitive self-monitoring in community-dwelling older adults using an internet-based tool.
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Valdes, Elise G., Sadeq, Nasreen A., Harrison Bush, Aryn L., Morgan, David, and Andel, Ross
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COGNITIVE ability , *SELF-monitoring (Psychology) , *HEALTH of older people , *INTERNET in medicine , *PATIENT monitoring , *LONGITUDINAL method - Abstract
Introduction: Monitoring for various health conditions (e.g., breast cancer, hypertension) has become common practice. However, there is still no established tool for regular monitoring of cognition. In this pilot longitudinal study, we examined the utility and feasibility of internet-based cognitive self-monitoring using data from the first 12 months of this ongoing study.Method: Cognitively healthy community-dwelling older adults (Montreal Cognitive Assessment ≥ 26) were enrolled on a rolling basis and were trained in self-administration of the internet-based version of the CogState Brief Battery. The battery uses playing cards and includes Detection, Identification, One Back, and One Card Learning subtasks.Results: Of the 118 participants enrolled, 26 dropped out, mostly around first in-home session. Common reasons for participant attrition were internet browser problems, health problems, and computer problems. Common reasons for delayed session completion were being busy, being out of town, and health problems. Participants needed about one reminder phone call per four completed sessions or one reminder email per five completed sessions. Performance across the monthly sessions showed slight (but significant) improvement on three of the four tasks. Change in performance was unaffected by individual characteristics with the exception of previous computer use, with less frequent users showing greater improvement on One Card Learning. We also found low intraindividual variability in monthly test scores beyond the first self-administered testing session.Conclusions: Internet-based self-monitoring offers a potentially feasible and effective method of continuous cognitive monitoring among older adults. [ABSTRACT FROM PUBLISHER]
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- 2016
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20. Accuracy of internet images of ligamentous knee injuries.
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DeFroda, Steven F., Bokshan, Steven L., Vutescu, Emil Stefan, Sullivan, Kayleigh, and Owens, Brett D.
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INTERNET in medicine ,DIAGNOSTIC imaging ,ANTERIOR cruciate ligament injuries ,POSTERIOR cruciate ligament injuries ,COLLATERAL ligament injuries ,PATIENT education ,SPORTS injuries - Abstract
Background: The internet is an easily accessible resource for both providers and patients. Despite this, the internet is not peer reviewed, leaving searches subject to inaccuracies, especially with regards to medical information. The purpose of this study was to review internet images of anterior cruciate ligament (ACL), posterior cruciate ligament (PCL), medial collateral ligament (MCL), and lateral collateral ligament (LCL) tears using two popular search engines: Google and Bing. Methods: A search query was performed on both Google and Bing for the following terms: 'ACL tear', 'PCL tear', 'MCL tear' and 'LCL tear'. The first 100 images of each individual search were analyzed by three independent orthopedists. Results: The inter-rater reliability was very good for PCL tear on Bing (Cronbach's alpha = 0.89) and excellent (Cronbach's alpha > 0.9) for the remainder of the search queries. When comparing Google to Bing, the only significant difference occurred in the ACL group, with Bing returning a significantly greater number of correct images 60%, 95% CI: 53.2 - 66.7%) compared to Google (45% correct, 95% CI: 38.1-51.8%), p = 0.034. With regards to the other ligaments Bing was more accurate than Google for PCL (39% versus 38%), and LCL (32% to 30%). Both sites were 48% accurate for MCL tear. Conclusion: Ultimately, our study revealed that physicians should take an active role in making high quality, easy to understand medical resources and anatomic diagrams available to their patients to avoid confusion and enhance understanding when querying the internet for additional information regarding their condition. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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21. Psychenet.de: Development and process evaluation of an e-mental health portal.
- Author
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Dirmaier, Jörg, Liebherz, Sarah, Sänger, Sylvia, Härter, Martin, and Tlach, Lisa
- Subjects
- *
MENTAL health services , *WEB portals , *INTERNET in medicine , *HEALTH outcome assessment , *USER-centered system design , *PSYCHIATRIC diagnosis , *MENTAL illness treatment , *AGE distribution , *COMPARATIVE studies , *INTERNET , *RESEARCH methodology , *MEDICAL cooperation , *MEDICAL screening , *MEDICINE information services , *NEEDS assessment , *RESEARCH , *HEALTH self-care , *SEX distribution , *TELEMEDICINE , *PATIENT participation , *SOCIAL support , *SOCIOECONOMIC factors , *EVALUATION research , *HUMAN services programs , *CROSS-sectional method , *MENTAL health services administration , *HEALTH information services - Abstract
Background: E-mental health interventions can have a positive impact on patient-reported and clinical outcomes. The purpose of this project was to develop a user-centered e-mental health portal.Methods: The development of the portal www.psychenet.de included mixed-methods techniques for needs assessment to identify user-relevant content. Furthermore, user-centered design techniques were applied by utilizing individual usability testing with cognitive task analysis. First, a basic version of the portal was created and introduced to the public by means of a media campaign. After the development of module-specific content, exposure and use of the portal was investigated as part of a process evaluation.Results: Relevant content identified by needs assessment covered both, overarching and diagnosis-specific topics. Results of the process evaluation showed a highly accessed website. During the first 18 months, 119,423 visits were tracked. The portal was predominantly accessed by Google searches (73.9%), while 17.6% of visits were related to direct traffic.Discussion: Serving as a complement to face-to-face consultations, www.psychenet.de attempts to inform about mental disorders, and engage patients in the course of their treatment. Results of the process evaluation confirm the high relevance and potential of the portal and can be used for further improvements and extensions in the future. [ABSTRACT FROM AUTHOR]- Published
- 2016
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22. Modification of an Internet-based patient education program for adults with schizophrenia spectrum disorder to suit adolescents with psychosis.
- Author
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Laine, Anna, Anttila, Minna, and Välimäki, Maritta
- Subjects
- *
PATIENT education , *INTERNET in medicine , *SCHIZOPHRENIA , *PSYCHOSES in adolescence , *MENTAL health services , *COMPARATIVE studies , *EXPERIMENTAL design , *INTERNET , *RESEARCH methodology , *MEDICAL cooperation , *NEEDS assessment , *PSYCHOSES , *RESEARCH , *EVALUATION research , *PSYCHOLOGICAL factors - Abstract
Introduction: The overall goal of this study was to produce a user-friendly and high quality Internet-based patient education program for adolescents with psychosis. To achieve this, we ascertained the adolescents' and health care professionals' needs and expectations of patient education using Internet and the improvement proposals for an existing MentalNet program originally developed for adults with schizophrenia.Methods: The research process was conducted in two phases. First, adolescents' and healthcare professionals' needs for patient education and Internet were ascertained by interviewing adolescents and in two educational sessions with staff members (Phase I). Second, the preliminary evaluation of the Internet-based patient education program MentalNet was gathered from adolescents by an iterative process (see cyclic, recurring, repeating method), in one educational session with staff members and a questionnaire via email from other health care professionals (Phase II).Results: The needs and expectations of adolescents and health care professionals were related to the content, usability, design and realization of Internet-based patient education. Based on the information obtained the MentalNet program was modified to satisfy adolescents' needs.Discussion: The usefulness and effectiveness of the program will require scrutiny in future studies. [ABSTRACT FROM AUTHOR]- Published
- 2016
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23. ProstateAnalyzer: Web-based medical application for the management of prostate cancer using multiparametric MR imaging.
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Mata, Christian, Walker, Paul M., Oliver, Arnau, Brunotte, François, Martí, Joan, and Lalande, Alain
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- *
PROSTATE cancer treatment , *PROSTATE , *INTERNET in medicine , *MEDICAL informatics , *WEB-based user interfaces , *MAGNETIC resonance imaging , *COMPARATIVE studies , *DIAGNOSTIC imaging , *INTERNET , *RESEARCH methodology , *MEDICAL cooperation , *COMPUTERS in medicine , *PROSTATE tumors , *PSYCHOLOGICAL tests , *RESEARCH , *EVALUATION research - Abstract
Objectives: In this paper, we present ProstateAnalyzer, a new web-based medical tool for prostate cancer diagnosis. ProstateAnalyzer allows the visualization and analysis of magnetic resonance images (MRI) in a single framework.Methods: ProstateAnalyzer recovers the data from a PACS server and displays all the associated MRI images in the same framework, usually consisting of 3D T2-weighted imaging for anatomy, dynamic contrast-enhanced MRI for perfusion, diffusion-weighted imaging in the form of an apparent diffusion coefficient (ADC) map and MR Spectroscopy. ProstateAnalyzer allows annotating regions of interest in a sequence and propagates them to the others.Results: From a representative case, the results using the four visualization platforms are fully detailed, showing the interaction among them. The tool has been implemented as a Java-based applet application to facilitate the portability of the tool to the different computer architectures and software and allowing the possibility to work remotely via the web.Conclusion: ProstateAnalyzer enables experts to manage prostate cancer patient data set more efficiently. The tool allows delineating annotations by experts and displays all the required information for use in diagnosis. According to the current European Society of Urogenital Radiology guidelines, it also includes the PI-RADS structured reporting scheme. [ABSTRACT FROM AUTHOR]- Published
- 2016
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24. New Science Brings Opportunity for Museums.
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Flynn, Stuart
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MEDICAL communication ,INTERNET in medicine ,MEDICAL museums - Abstract
Scientific advances in medicine and related fields demand an informed and participating public. However many established venues for public communication, such as the internet or news talk shows, become conflicted in their messaging, inserting doubt about the very processes of scientific progress and discovery. Museums have managed to rise above such conflicts, vetting discussion to provide an unbiased, safe, and balanced platform to facilitate the public's understanding of issues, paving a road to policy debate and decision. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
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25. Internet-delivered cognitive therapy for PTSD: a development pilot series.
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Wild, Jennifer, Warnock-Parkes, Emma, Grey, Nick, Stott, Richard, Wiedemann, Milan, Canvin, Lauren, Rankin, Harriet, Shepherd, Emma, Forkert, Ava, Clark, David M., and Ehlers, Anke
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- *
TREATMENT of post-traumatic stress disorder , *INTERNET in medicine , *COGNITIVE therapy , *HEALTH outcome assessment , *QUALITY of life - Abstract
Background: Randomised controlled trials have established that face-to-face cognitive therapy for posttraumatic stress disorder (CT-PTSD) based on Ehlers and Clark's cognitive model of PTSD is highly effective and feasible with low rates of dropout. Access to evidence-based psychological treatments for PTSD is insufficient. Several studies have shown that therapist-assisted treatment delivery over the Internet is a promising way of improving access to cognitive behavioural therapy interventions. Objective: To develop an Internet version of CT-PTSD that significantly reduces therapist contact time without compromising treatment integrity or retention rates. Methods: We describe the development of an Internet version of CT-PTSD. It implements all the key procedures of face-to-face CT-PTSD, including techniques that focus on the trauma memory, such as memory updating, stimulus discrimination and revisiting the trauma site, as well as restructuring individually relevant appraisals relating to overgeneralisation of danger, guilt, shame or anger, behavioural experiments and planning activities to reclaim quality of life. A cohort of 10 patients meeting DSM-IV criteria for PTSD worked through the programme, with remote guidance from a therapist, and they were assessed at pre- and post-treatment on PTSD outcome, mood, work and social adjustment and process measures. Results: No patients dropped out. Therapists facilitated the treatment with 192 min of contact time per patient, plus 57 min for reviewing the patient's progress and messages. Internet-delivered CT-PTSD was associated with very large improvements on all outcome and process measures, with 80% of patients achieving clinically significant change and remission from PTSD. Conclusions: Internet-delivered cognitive therapy for PTSD (iCT-PTSD) appears to be an acceptable and efficacious treatment. Therapist time was reduced to less than 25% of time in face-to-face CT-PTSD. Randomised controlled trials are required to evaluate systematically the acceptability and efficacy of iCT-PTSD. [ABSTRACT FROM AUTHOR]
- Published
- 2016
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26. “I just forget to take it” : asthma self-management needs and preferences in adolescents.
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Koster, Ellen S., Philbert, Daphne, de Vries, Tjalling W., van Dijk, Liset, and Bouvy, Marcel L.
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- *
ASTHMA treatment , *HEALTH self-care , *SECONDARY care (Medicine) , *PRIMARY care , *DISEASES in teenagers , *INTERNET in medicine - Abstract
Background: Medication adherence rates often decline as children become teenagers. Effective adherence-enhancing interventions for adolescents are lacking. The objective of this study was to assess adolescent asthmatics needs and preferences regarding medication counseling and support, with focus on new media.Methods: Three focus groups including 21 asthmatic adolescents recruited from both primary and secondary care were held to explore needs and preferences regarding asthma-self management. Questions concerned adherence behavior and needs and preferences in adherence support with focus on new media (mobile technology, social media, health games).Results: Forgetting was mentioned as major reason for not using medication as prescribed. Adolescents also mentioned lack of perceived need or beneficial effects. Parents mainly play a role in reminding to take medication and collecting refills. The suggested strategies to support self-management included smartphone applications with a reminder function and easy access to online information. Participants were positive about sharing of experiences with other teenagers.Conclusion: Forgetfulness is a major reason for non-adherence in adolescents. Furthermore, our results suggest use of peer support may be helpful in promoting good medication use. Future interventions should be aimed at providing practical reminders and should be modifiable to individual preferences. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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27. Randomized controlled trial evaluating the effectiveness of a web-based stress management program among community college students.
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Frazier, Patricia, Meredith, Liza, Greer, Christiaan, Paulsen, Jacob A., Howard, Kelli, Dietz, Lindsey R., and Qin, Kevin
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STRESS management , *INTERNET in medicine , *COMMUNITY college students , *LIFE change events , *MENTAL depression , *RANDOMIZED controlled trials - Abstract
Background and Objectives: This study evaluated the effectiveness of a web-based stress management program among community college students that focused on increasing perceived control over stressful events. Design: Students (N = 257) were randomly assigned to a Present Control Intervention or a Stress-information only comparison group. Methods: Primary outcomes were perceived stress and stress symptoms; secondary outcomes were depression and anxiety. Self-report measures were completed online at preintervention, postintervention, and three-week follow-up. Intervention effects were estimated using linear mixed models. Seventy-five percent of the sample (n = 194) completed the pretest and comprised the intent-to-treat sample. Results: Participants in the intervention group reported significant increases in present control, and significant decreases in all four primary and secondary outcome measures from baseline to postintervention and follow-up. Within-group effect sizes were small to medium at postintervention (mean d = -.34) and follow-up (mean d = -.49). The mean between-group effect size on the four outcome measures was d = .35 at postintervention but d = .12 at follow-up, due to unexpected decreases in distress in the comparison group. Conclusions: Our online program is a cost-effective mental health program for college students. Limitations and future direction are discussed. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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28. Medical decision-making inspired from aerospace multisensor data fusion concepts.
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Pombo, Nuno, Bousson, Kouamana, Araújo, Pedro, and Viana, Joaquim
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MEDICAL decision making , *MULTISENSOR data fusion , *INTERNET in medicine , *MEDICAL personnel , *PAIN , *PATIENTS - Abstract
In recent years, Internet-delivered treatments have been largely used for pain monitoring, offering healthcare professionals and patients the ability to interact anywhere and at any time. Electronic diaries have been increasingly adopted as the preferred methodology to collect data related to pain intensity and symptoms, replacing traditional pen-and-paper diaries. This article presents a multisensor data fusion methodology based on the capabilities provided by aerospace systems to evaluate the effects of electronic and pen-and-paper diaries on pain. We examined English-language studies of randomized controlled trials that use computerized systems and the Internet to collect data about chronic pain complaints. These studies were obtained from three data sources: BioMed Central, PubMed Central and ScienceDirect from the year 2000 until 30 June 2012. Based on comparisons of the reported pain intensity collected during pre- and post-treatment in both the control and intervention groups, the proposed multisensor data fusion model revealed that the benefits of technology and pen-and-paper are qualitatively equivalent . We conclude that the proposed model is suitable, intelligible, easy to implement, time efficient and resource efficient. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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29. Internet delivered question and answer column for patients with schizophrenia.
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Maijala, Riikka, Anttila, Minna, Koivunen, Marita, Pitkänen, Anneli, Kuosmanen, Lauri, and Välimäki, Maritta
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- *
INTERNET in medicine , *PEOPLE with schizophrenia , *INPATIENT care , *PATIENTS , *MEDICAL education , *MENTAL health - Abstract
The purpose of this study was to describe the use of an Internet delivered question and answer column among patients with schizophrenia. The column was developed for research purposes. The study sample consisted of patients ( N = 100) admitted to acute inpatient psychiatric care in two hospital districts. Descriptive data were collected from the column to which a nurse replied within 3 days and analysed using qualitative content analysis. The column had four to five questions weekly. The most common age of users was 18-24 years, and the gender distribution was almost equal. Column use was heaviest among students (44%) and least among unemployed people (19%). Out of 85 questions or comments sent to the column, 25 (29%) were related to program training and the remaining 60 (71%) were related to medication (31%), illness and tests (25%), other questions or comments (9%), daily life and coping with it (4%), and places to receive treatment (2%). An Internet delivered question and answer column can be included in the care of patients with schizophrenia. However, it requires a new type of basic and additional education in the field of mental health care in order for nurses to be able to provide nursing via the Internet forum. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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30. Negative Effects of Internet Interventions: A Qualitative Content Analysis of Patients' Experiences with Treatments Delivered Online.
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Rozental, Alexander, Boettcher, Johanna, Andersson, Gerhard, Schmidt, Brad, and Carlbring, Per
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INTERNET in medicine , *MENTAL illness , *SMARTPHONES , *CLINICAL trials , *SYMPTOMS - Abstract
Internet interventions are defined as the delivery of health care-related treatments via an online or a smartphone interface, and have been shown to be a viable alternative to face-to-face treatments. However, not all patients benefit from such treatments, and it is possible that some may experience negative effects. Investigations of face-to-face treatments indicate that deterioration occurs in 5–10% of all patients. The nature and scope of other negative effects of Internet interventions is, however, largely unknown. Hence, the current study explored patients' reported negative experiences while undergoing treatments delivered via the Internet. Data from four large clinical trials (totalN = 558) revealed that 9.3% of patients reported some type of negative effects. Qualitative content analysis was used to explore the patients' responses to open-ended questions regarding their negative experiences. Results yielded two broad categories and four subcategories of negative effects: patient-related negative effects (insight and symptom) and treatment-related negative effects (implementation and format). Results emphasize the importance of always considering negative effects in Internet-based interventions, and point to several ways of preventing such experiences, including regular assessment of negative events, increasing the flexibility of treatment schedules and therapist contact, as well as prolonging the treatment duration. [ABSTRACT FROM PUBLISHER]
- Published
- 2015
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31. Relatives and friends queries on a psychologists 'question and answer' forum online - authorship and contents.
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Stjernswärd, Sigrid
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- *
PSYCHOLOGISTS , *ONLINE education , *INTERNET in medicine , *MEDICAL databases , *PSYCHOLOGICAL feedback , *MENTAL health - Abstract
Background: Families living with mental illness can experience added burden and eventually own ill health. National and international guidelines support the development of web based solutions to cost-effectively address health care needs. Mapping patterns of internet use may help tailor interventions to effectively address users' needs. Aim: The study's aim was to explore the contents of relatives' and friends' queries on a psychologists' website with professional feedback. Methods: All visible questions [ n = 59] classified under the website's 'helping a relative/friend' category between 20 090 615-20 130 927 were printed out and analyzed using content analysis. Results: The analysis resulted in four categories and subcategories illuminating families'/friends' areas of concern: support to help; concerns with health care; young children's welfare; and repercussions on own health. Conclusions: 'Question & Answer' [Q&A] forums can shed light onto health seekers' online behavior and may be a way of addressing families' needs of support and information. Further studies are needed to assess the replies' therapeutic value for their recipients. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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32. Requirements of older adults for a daily use of an internet-based cognitive training platform.
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Haesner, Marten, O'Sullivan, Julie L., Gövercin, Mehmet, and Steinhagen-Thiessen, Elisabeth
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COGNITIVE training , *INTERNET in medicine , *ELDER care , *QUALITATIVE research , *MOTIVATION (Psychology) , *WEB 2.0 - Abstract
A decline of cognitive abilities is a part of normal human ageing. However, recent research has demonstrated that an enriched environment can have a beneficial impact on cognitive function in old age. Accordingly, mentally and socially active lifestyles are associated with less cognitive decline in old age. Specific interventions such as computerized cognitive training programs for older adults are also known to have a positive effect on the level of cognitive functioning. Therefore, online platforms combining cognitive training with web 2.0 features may yield multiple benefits for older users. However, to date only little research exists on technological acceptance and media use in this age-group especially for cognitively-impaired seniors. Therefore, in order to assess specific preferences and potential barriers of older adults regarding a web-based platform for cognitive training, we conducted qualitative interviews with 12 older adults. Half of the participants were diagnosed with mild cognitive impairment (MCI). Most importantly, our results show that cognitive exercises should incorporate themes and topics older adults are interested in. Additional communication features could serve as ideal methods for increasing user motivation. Furthermore, we derived eight critical requirements of older adults concerning daily use of a web-based cognitive training platform. Implications for future research and development are discussed. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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33. A mobile user-interface for elderly care from the perspective of relatives.
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Warpenius, Erika, Alasaarela, Esko, Sorvoja, Hannu, and Kinnunen, Matti
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ELDER care , *TELEMEDICINE , *DRUG administration , *INTERNET in medicine , *MEDICAL consultation , *HEALTH surveys - Abstract
As the number of elderly people rises, relatives' care-taking responsibilities increase accordingly. This creates a need for developing new systems that enable relatives to keep track of aged family members. To develop new mobile services for elderly healthcare we tried to identify the most wanted features of a mobile user-interface from the perspective of relatives. Feature mapping was based on two online surveys: one administered to the relatives ( N = 32) and nurses ( N = 3) of senior citizens and the other to nursing students ( N = 18). Results of the surveys, confirmed by face-to-face interviews of the relatives ( N = 8), indicated that the most valued features of the mobile user-interface are Accident Reporting (e.g. falling), Alarms (e.g. fire-alarm), Doctor Visits and evaluation of the General Condition of the Senior. The averaged importance ratings of these features were 9.2, 9.0, 8.6 and 8.5, respectively (on a scale from 0 to 10). Other important considerations for the user-interface development are aspiration to simplicity and ease-of-use. We recommend that the results are taken into account, when designing and implementing mobile services for elderly healthcare. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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34. Characteristics of patients seeking health information online via social health networks versus general Internet sites: a comparative study.
- Author
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Magnezi, Racheli, Grosberg, Dafna, Novikov, Ilya, Ziv, Arnona, Shani, Mordechai, and Freedman, Laurence S.
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MEDICAL informatics , *INTERNET in medicine , *COMPARATIVE studies , *MEDICAL consultation , *HEALTH education , *SOCIAL networks - Abstract
Background: Camoni.co.il, a Hebrew-language social health network offers advice, consultation, and connection to others with chronic illness. This study compared characteristics and objectives of Camoni.co.il users and individuals seeking medical information through general Internet sites. Methods: Similar questionnaires were sent to 1009 Internet and 900 Camoni users. Cluster analysis defined four modes of online social health network use: 'acquiring information and support', 'communicating', 'networking' and 'browsing'. Results: Six hundred and five Internet and 125 Camoni users responded. Diabetes, hypertension, obesity and lung diseases were found more often among general Internet users than Camoni users. Among Camoni users, 'acquiring information and support' was the main motivation for individuals over age 55 years, women, those with lower income, chronic pain, obesity and depression. 'Communicating' was the main incentive of men, those 20-34 years old, those with less education, or an eating disorder. 'Networking' was the most significant motivation for those with multiple sclerosis or depression. Browsing was most frequent among individuals with multiple sclerosis. Conclusions: Identifying needs of social health network surfers will allow planning unique contents and enhancing social health sites. Physicians might advise patients to use them to obtain support and information regarding their conditions, possibly leading to improved compliance and self-management. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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35. What is consumer health informatics? A systematic review of published definitions.
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Flaherty, David, Hoffman-Goetz, Laurie, and Arocha, Jose F.
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MEDICAL informatics , *CONSUMER behavior , *DECISION making , *SYSTEMATIC reviews , *MEDICAL databases , *INTERNET in medicine - Abstract
Background: Consumer health informatics (CHI) is an emerging field that utilizes technology to provide health information to enhance health-care decision making by the public. There is, however, no widely accepted or uniform definition of CHI. A consensus definition would be important for pedagogical reasons, to build capacity and to reduce confusion about what the discipline consists of. Aim: We undertook a systematic review of published definitions of CHI and evaluated them using five quality assessment criteria and measures of similarity. Methods: Five databases were searched (Embase, Web of Science, MEDLINE, CINAHL and Business Source Complete) resulting in 1101 citations. Twenty-three studies met the inclusion criteria. Definitions were appraised using five criteria (with each scoring out of one): use of published citation, multi-disciplinarity, journal impact, definition comprehensibility, text readability. Results: Most definitions scored low on citation (Mean ± SD: 0.22 ± 0.42), multi-disciplinarity (0.15 ± 0.28) and readability (0.04 ± 0.21) and somewhat higher on IF (0.35 ± 0.45) and definition comprehensibility (idea density) (0.87 ± 0.34) criteria. Overall, the quality of the published definitions was low 1.63 ± 0.80 (out of five). Conclusions: The definitions of CHI were variable in terms of the quality assessment criteria. This suggests the need for continued discussion amongst consumer health informaticians to develop a clear consensus definition about CHI. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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36. Patients' contribution to the development of a web-based plan for integrated care - a participatory design study.
- Author
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Bjerkan, Jorunn, Hedlund, Marianne, and Hellesø, Ragnhild
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INTERNET in medicine , *ONLINE education , *HEALTH planning , *USER-centered system design , *PATIENT participation - Abstract
Aims and objectives: The aim was to explore how a participatory design (PD) approach involving adult patients and parents of children with disabilities could contribute to the development of an electronic 'Individual Care Plan' (e-ICP) in Norway. The system was intended to simplify multi-disciplinary cross-sector documentation and collaboration between care professionals and patients in care planning. Methods: The data in the study comprised semi-structured interviews with patients and parents, as well as field notes. Systematic text condensation (STC) in a stepwise analysis model was performed on the data. Results: Testing through three phases resulted in system improvements and additional functionality according to the participating patients' needs and requests. PD was initially applied, enabling a constructive dialogue between developers and patients. System training and collecting patient expectations was a preliminary task. Patients then brought testing experiences to the system developers, focusing first on access to information and document filing. Later, finalizing testing towards a tool for interaction with care professionals was a main concern. Conclusion: Adult patients and parents participating in the study provided various insights and expectations that informed system improvements and resulted in new functionality. System development and testing in healthcare can successfully incorporate patient involvement. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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37. Internet-Delivered Acceptance and Values-Based Exposure Treatment for Fibromyalgia: A Pilot Study.
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Ljótsson, Brjánn, Atterlöf, Ehlin, Lagerlöf, Maria, Andersson, Erik, Jernelöv, Susanna, Hedman, Erik, Kemani, Mike, and Wicksell, Rikard K.
- Subjects
- *
TREATMENT of fibromyalgia , *PILOT projects , *INTERNET in medicine , *ACCEPTANCE & commitment therapy , *COGNITIVE therapy , *MEDICAL protocols , *FIBROMYALGIA , *DIAGNOSIS - Abstract
Background: Acceptance and commitment therapy (ACT) is a promising treatment option for fibromyalgia (FM). Studies have shown that many cognitive behavioral protocols can be transferred to the Internet with sustained efficacy. However, no study has investigated the effect on an Internet-delivered ACT-based protocol for FM. This study evaluated the efficacy, acceptability, and the health economic effects of an Internet-delivered acceptance and values-based exposure treatment for FM.Methods: This open pilot trial included 41 self-referred women with a FM diagnosis. The 10-week Internet-delivered treatment included acceptance, mindfulness, work with life-values, and systematic exposure to FM symptoms and FM-related situations. Participants also had regular contact with an assigned online therapist. Assessments were made at pretreatment, post-treatment, and 6-month follow-up.Results: The treatment was completed by 70% of the participants. Attrition rates were low, with 98% completing the post-treatment assessment and 90% completing the 6-month follow-up assessment. Multiple imputations were used to replace missing values. Pre- to post-treatment within-group effect sizes were in the moderate to large range (Cohen'sd = 0.62–1.56) on measures of FM symptoms and impact, disability, quality of life, depression, anxiety, fatigue, and psychological flexibility. All improvements were maintained at follow-up. Economical analyses revealed significant societal cost reductions that offset the treatment costs within 2 months of treatment completion.Conclusions: An Internet-delivered psychological treatment based on acceptance and exposure principles seems to be an efficacious, acceptable, and cost-effective treatment for FM. Randomized controlled trials are needed to confirm these results. [ABSTRACT FROM AUTHOR]
- Published
- 2014
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38. The Acceptability of Therapist-Assisted, Internet-Delivered Treatment for College Students.
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Travers, M.Fallon and Benton, S.A.
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INTERNET in medicine , *COUNSELING in higher education , *EDUCATIONAL counseling centers , *COGNITIVE therapy - Abstract
University and college counseling centers struggle with rising service demands without a corresponding increase in resources. Consequently, counseling centers must seek creative ways to not only maintain the status quo, but expand capacity while preserving effectiveness. In other countries, therapist-assisted, Internet-delivered treatment has been effective in treating several common disorders while conserving one third to one half the per client therapist time, suggesting that Therapist-Assisted Internet Based Cognitive Behavioral Treatment (TAI-CBT) could be an alternative treatment option offered through counseling centers in the United States and one possible solution to increase the number of students effectively treated per therapist hour for certain students seeking services. In this study, 334 students were surveyed to assess the acceptability of this mode of treatment; 217 of these students were currently in counseling or had received counseling in the past. TAI-CBT was endorsed by 34% of the students with past counseling and 16% of the students with no history of receiving counseling. These proportions were comparable to the rates for those who expressed interest in group therapy, which is commonly offered in counseling centers. [ABSTRACT FROM PUBLISHER]
- Published
- 2014
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39. How Direct-to-Consumer Drug Websites Convey Disease Information: Analysis of Stigma-Reducing Components.
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Kang, Hannah and An, Soontae
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DIRECT-to-consumer prescription drug advertising , *INTERNET in medicine , *WEBSITES , *CONTENT analysis , *SOCIAL stigma , *COMMUNICABLE diseases ,SOCIAL aspects - Abstract
Given the growing trend of the Internet as a source of health information, this study evaluated whether direct-to-consumer prescription drug websites for stigmatized illnesses contained stigma-reducing components: onset controllability, offset controllability, and recategorization. The authors examined the contents of the first-level homepages and the second-level pages in 88 stand-alone websites for 15 different stigmatized conditions. Overall, about a third of the websites did not provide a direct link to detailed disease information on the homepage. On the homepages, three stigma-reducing components were rarely offered either through textual or visual cues. On the second level, in terms of textual cues, onset controllability and recategorization were the most prevalent, while offset controllability was relatively less frequent. There were no visual cues on the second level. Results point out the limited and insufficient stigma-reducing components of direct-to-consumer prescription drug websites. [ABSTRACT FROM PUBLISHER]
- Published
- 2013
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40. Clinicians’ Attitudes Toward Therapeutic Alliance in E-Therapy.
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Sucala, Madalina, Schnur, JulieB., Brackman, EmilyH., Constantino, MichaelJ., and Montgomery, GuyH.
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THERAPEUTIC alliance , *PSYCHOLOGISTS -- Attitudes , *INTERNET in medicine , *PSYCHOTHERAPIST-patient relations , *MEDICAL personnel , *HEALTH information technology - Abstract
Although therapeutic alliance is a crucial factor in face-to-face therapies, no data exist on clinicians’ attitudes towards alliance in E-therapy. The study explored clinicians’ perceived importance of alliance in E-therapy, clinicians’ confidence in their skills to develop alliance in E-therapy, and whether attitudes towards alliance in E-therapy are associated with intended E-therapy practice. Clinicians (n= 106) responded to an online survey. The majority of clinicians considered alliance to be extremely important in both face-to-face therapy and E-therapy. However, clinicians’ ratings of the importance of alliance in face-to-face therapies were significantly higher than their ratings of the importance of alliance in E-therapy. Clinicians reported less confidence in their skills to develop alliance in E-therapy than in face-to-face therapy. Intended E-therapy practice correlated with confidence in one's ability to develop alliance in E-therapy and with previous E-therapy practice. [ABSTRACT FROM PUBLISHER]
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- 2013
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41. Patient Expectations in Internet-Based Self-Help for Social Anxiety.
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Boettcher, Johanna, Renneberg, Babette, and Berger, Thomas
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INTERNET in medicine , *COGNITIVE therapy , *SOCIAL anxiety , *ANXIETY disorders , *PATIENT compliance , *ONLINE education - Abstract
A number of controlled trials have demonstrated the efficacy of Internet-based cognitive-behaviour therapy for treating social anxiety disorder (SAD). However, little is known about what makes those interventions work. The current trial focuses on patient expectations as one common mechanism of change. The study examines whether patients' expectancy predicts outcome, adherence, and dropout in an unguided Internet-based self-help programme for SAD. Data of 109 participants in a 10-week self-help programme for SAD were analysed. Social anxiety measures were administered prior to the intervention, at week 2, and after the intervention. Expectancy was assessed at week 2. Patient expectations were a significant predictor of change in social anxiety (β = − .35 to − .40, allp < .003). Patient expectations also predicted treatment adherence (β = .27,p = .02). Patients with higher expectations showed more adherence and better outcome. Dropout was not predicted by expectations. The effect of positive expectations on outcome was mediated by early symptom change (from week 0 to week 2). Results suggest that positive outcome expectations have a beneficial effect on outcome in Internet-based self-help for SAD. Furthermore, patient expectations as early process predictors could be used to inform therapeutic decisions such as stepping up patients to guided or face-to-face treatment options. [ABSTRACT FROM PUBLISHER]
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- 2013
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42. Comorbidity and Internet-Delivered Transdiagnostic Cognitive Behavioural Therapy for Anxiety Disorders.
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Johnston, Luke, Titov, Nickolai, Andrews, Gavin, Dear, BlakeF., and Spence, Jay
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ANXIETY disorders treatment , *INTERNET in medicine , *COGNITIVE therapy , *COMORBIDITY , *SOCIAL phobia , *ONLINE education - Abstract
Internet-delivered transdiagnostic anxiety interventions aim to reduce symptoms across several anxiety disorders using one treatment protocol. However, it is unclear whether comorbidity affects outcomes of such treatment. This study re-examined data from a recent randomised controlled trial (N = 129) that evaluated the efficacy of an Internet-delivered transdiagnostic cognitive behavioural therapy (iCBT) intervention for participants with principal diagnoses of generalised anxiety disorder (GAD), social phobia (SP) panic disorder and agoraphobia (PDA), of whom 72% met criteria for a comorbid anxiety disorder or depression. Participants were divided into two groups based on whether or not they had a comorbid disorder before treatment. Participants with comorbid conditions reported higher symptom levels at pre-treatment, post-treatment, and follow-up across a range of measures. Both groups showed significant reductions in symptoms over treatment; however, participants with comorbid disorders showed greater reductions in measures of GAD, PDA, SP, depression, and neuroticism. In addition, treatment significantly reduced the number of comorbid diagnoses at follow-up. These results indicate transdiagnostic iCBT protocols have the potential to reduce comorbidity. [ABSTRACT FROM PUBLISHER]
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- 2013
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43. NEOREG: Design and implementation of an online Neonatal Registration System to access, follow and analyse the data of newborns with congenital cytomegalovirus infection.
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Steurbaut, Kristof, De Backere, Femke, Keymeulen, Annelies, De Leenheer, Marc, Smets, Koenraad, and De Turck, Filip
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CYTOMEGALOVIRUS diseases , *NEONATAL diseases , *MEDICAL informatics , *ELECTRONIC health records , *INTERNET in medicine , *PDF (Computer file format) - Abstract
Today's registration of newborns with congenital cytomegalovirus (cCMV) infection is still performed on paper-based forms in Flanders, Belgium. This process has a large administrative impact. It is important that all screening tests are registered to have a complete idea of the impact of cCMV. Although these registrations are usable in computerised data analysis, these data are not available in a format to perform electronic processing. An online Neonatal Registry (NEOREG) System was designed and developed to access, follow and analyse the data of newborns remotely. It allows remote access and monitoring by the physician. The Java Enterprise layered application provides patients' diagnostic registration and treatment follow-up through a web interface and uses document forms in Portable Document Format (PDF), which incorporate all the elements from the existing forms. Forms are automatically processed to structured EHRs. Modules are included to perform statistical analysis. The design was driven by extendibility, security and usability requirements. The website load time, throughput and execution time of data analysis were evaluated in detail. The NEOREG system is able to replace the existing paper-based CMV records. [ABSTRACT FROM AUTHOR]
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- 2013
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44. A community education initiative to improve using online health information: Participation and impact.
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Gray, Kathleen, Elliott, Kristine, and Wale, Janet
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MEDICAL informatics , *COMMUNITY education , *INTERNET in medicine , *PARTICIPATION , *MEDICAL care , *HEALTH surveys - Abstract
The Internet has become a major source of health information for the general public and has the potential to influence health behaviours; however, most people lack the knowledge and skills to use it insightfully. This paper reports on the evaluation of a community education program, in which a team of clinicians and consumer representatives from a large metropolitan hospital partnered with a major public library to provide free interactive workshops for the general public. The aim of the workshops was to improve participants' ability to find and use evidence-based health information on the Internet. The aim of the evaluation reported here was to study participation in and impact of these workshops. Researchers administered pre- and post-workshop surveys to 89 members of the general public who participated in a workshop. This study found not only similarities in participants' pre-workshop use of online health information compared with population-level studies but also some interesting differences. The workshop was found to have an overall positive impact on changing the way participants intended to look for and use health information in the future, and on improving their knowledge about evidence-based health information, with 63.5% of respondents stating that they would use health information in the future to ask a doctor new questions. These findings offer important evidence of the need to plan nuanced health literacy education and information strategies for the general public. [ABSTRACT FROM AUTHOR]
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- 2013
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45. Use of and trust in health information on the Internet: A nationwide eight-year follow-up survey.
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Ek, Stefan, Eriksson-Backa, Kristina, and Niemelä, Raimo
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MEDICAL informatics , *FOLLOW-up studies (Medicine) , *INTERNET in medicine , *COMPARATIVE studies , *EMPIRICAL research - Abstract
Already in its infancy, the World Wide Web was predicted to be a prime tool to promote healthier behaviors. The purpose of this paper is to compare the use of and trust in health information on the Internet during two points of time, 2001 and 2009. The target group of the study is the Finnish population aged 18-65 years. The empirical material is based on two similar postal surveys. Over the period, growth in Internet use was rapid. The results also show a huge growth in use of and trust in health information on the Internet. But still, the e-Health visions evoked in the late 1990s are far from fulfilled, since too many people seem not to seek or obtain health information from the Internet at all. Furthermore, still in 2009, approximately one-third of the respondents had no conception ('do not know') about the online health information reliability, due to the fact that they had used it too rarely or not at all. [ABSTRACT FROM AUTHOR]
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- 2013
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46. Seeking health advice on the Internet in patients with health problems: A cross-sectional population study in Slovenia.
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Klemenc-Ketis, Zalika and Kersnik, Janko
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PSYCHOLOGY of the sick , *SYMPTOMS , *CROSS-sectional method , *MEDICAL care , *INTERNET in medicine - Abstract
To determine the one-month prevalence of the seeking of web-based health information in the general adult population and to identify the symptoms associated with more frequent searching for information online. This was an observational cross-sectional study in a representative sample of 1,002 randomly selected Slovenian inhabitants. We used the method of computer-assisted telephone interviews. The questionnaire consisted of demographic questions, questions about the prevalence and duration of pre-selected symptoms in the past month, questions on the presence of chronic disease and a question about using the Internet for seeking health advice in the past month. Among 774 respondents who reported having had symptoms in the past month, 25.8% of them reported seeking health information on the Internet. The factors found to be independently associated with the seeking of health information on the Internet were a younger age, a higher education level and the presence of constipation, irritability, fatigue, memory impairment and excessive sweating in the past month. The study showed that the Internet was a common source of health information in the general adult population, particularly used for symptoms which are common but not well defined and not associated with a particular disease. [ABSTRACT FROM AUTHOR]
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- 2013
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47. Intracranial aneurysm size responsible for spontaneous subarachnoid haemorrhage.
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Wong, George Kwok Chu, Teoh, Jeremy, Chan, Emily Kit Ying, Ng, Stephanie Chi Ping, and Poon, Wai Sang
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INTRACRANIAL aneurysms , *SUBARACHNOID hemorrhage , *INTERNET in medicine , *VASCULAR diseases , *MEDICAL literature - Abstract
Introduction. It has been theorised that the relationship between smaller body size and smaller ruptured intracranial aneurysms in Asians indirectly supports the treatment of small, unruptured intracranial aneurysms. There has also been uncertainty regarding whether the progress that has been made in neuroimaging allows for better detection of smaller ruptured intracranial saccular aneurysms. Therefore, we conducted this systemic review of ruptured intracranial saccular aneurysm sizes according to region and time. Material and Methods. Computerised MEDLINE and PubMed searches of the literature for population-based studies of ruptured intracranial saccular aneurysms were carried out from 1 January 1980 to 1 March 2011. Statistical analyses were generated using SPSS for Windows, Version 15.0 (SPSS Inc., Chicago, IL) and Comprehensive MetaAnalysis 2.0 for Windows (Biostat, Englewood, NJ). The results of the meta-analyses are presented with 95% confidence intervals (CIs). Results. Six eligible population- or hospital-based studies were analysed. The percentage of ruptured intracranial aneurysms measuring less than 5 mm was 28.4% (95% CI: 18.1% to 41.6%, I2 = 98%). The percentage of ruptured intracranial aneurysms measuring less than 10 mm was 76.7% (95% CI: 69.2% to 82.9%, I2 = 89%). A higher proportion of patients with ruptured intracranial aneurysms of less than 5 mm was found in Asia compared to other regions. Similarly, a higher proportion of patients with ruptured intracranial aneurysms of less than 10 mm was found in Asia compared to other regions. Conclusions. The present findings suggest that ruptured intracranial aneurysms are smaller in Asians and should be confirmed in future prospective international multi-centre registries to assess ethnicity. Whether these findings support treating smaller unruptured intracranial aneurysms in Asians should be investigated. [ABSTRACT FROM AUTHOR]
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- 2013
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48. A meta-analysis to determine the effect of preinjury antiplatelet agents on mortality in patients with blunt head trauma.
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Batchelor, John Stephen and Grayson, Alan
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HEAD injuries , *META-analysis , *PLATELET aggregation inhibitors , *INTERNET in medicine , *NONSTEROIDAL anti-inflammatory agents - Abstract
Introduction. Anticoagulation abnormalities have been recognized for several decades as potential risk factors for increasing the risk of traumatic intracranial haemorrhage in patients with blunt head trauma. The potential increased risk of death as a consequence has not been fully evaluated. The aim of the study was to perform a meta-analysis in order to evaluate based upon the current level of evidence whether the use of pre-injury aspirin or clopidogrel increases the risk of mortality in patients with blunt head trauma. Methods. The databases Medline and EMBASE were searched via the Ovid interface. The Medline database was also searched using the PubMed interface. Case control studies or nested case control studies were identified comparing mortality rates on patients with blunt head trauma in patients on aspirin or clopidogrel against patients not on antiplatelet agents. Results. Five studies in total were identified as suitable for the meta-analysis. Four of these studies were suitable for the aspirin meta-analysis and four for the clopidogrel meta-analysis. The common odds ratio for the aspirin meta-analysis using the Random Effects model was found to be 2.435 (95% CI: 0.637-9.314). Significant heterogeneity was present I2 = 79.521. The common odds ratio for the clopidogrel meta-analysis using the Random Effects model was found to be 1.554 (95% CI: 0.320-7.536). Significant heterogeneity was present I2 = 69.090. Conclusions. In summary, this meta-analysis showed a slight increased risk of death in patients with blunt head trauma who were taking pre-injury antiplatelet agents although the results did not reach statistical significance. In view of the small number of low level studies from which this meta-analysis is based, further work is required in this area. [ABSTRACT FROM AUTHOR]
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- 2013
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49. Quality and accuracy assessment of nutrition information on the Web for cancer prevention.
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Shahar, Suzana, Shirley, Ng, and Noah, Shahrul A.
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INFORMATION processing , *WEB services , *CANCER prevention , *QUALITY of service , *MEDICAL informatics , *INTERNET in medicine - Abstract
This study aimed to assess the quality and accuracy of nutrition information about cancer prevention available on the Web. The keywords 'nutrition + diet + cancer + prevention' were submitted to the Google search engine. Out of 400 websites evaluated, 100 met the inclusion and exclusion criteria and were selected as the sample for the assessment of quality and accuracy. Overall, 54% of the studied websites had low quality, 48 and 57% had no author's name or information, respectively, 100% were not updated within 1 month during the study period and 86% did not have the Health on the Net seal. When the websites were assessed for readability using the Flesch Reading Ease test, nearly 44% of the websites were categorised as 'quite difficult'. With regard to accuracy, 91% of the websites did not precisely follow the latest WCRF/AICR 2007 recommendation. The quality scores correlated significantly with the accuracy scores ( r = 0.250, p < 0.05). Professional websites ( n = 22) had the highest mean quality scores, whereas government websites ( n = 2) had the highest mean accuracy scores. The quality of the websites selected in this study was not satisfactory, and there is great concern about the accuracy of the information being disseminated. [ABSTRACT FROM AUTHOR]
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- 2013
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50. Spontaneously published illness stories on a website for young women with breast cancer: Do writers and themes reflect the wider population?
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Overberg, Regina, De Man, Andries, Wolterbeek, Ron, Otten, Wilma, and Zwetsloot-Schonk, Bertie
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WEBSITES , *BREAST cancer , *YOUNG women , *HOSPITAL records , *INTERNET in medicine , *MASTECTOMY , *DISEASES - Abstract
This study examined writer characteristics and themes written about in a set of 167 spontaneously published stories on a Dutch website for young women with breast cancer. The stories were coded for 6 disease characteristics and 16 themes. Coding results were compared with the characteristics of young women with breast cancer in a hospital cancer register and to the frequency of problems among young breast cancer patients participating in quantitative studies. We found that writer characteristics were diverse. Yet, logistic regression showed that women were more likely to be a writer if they were diagnosed at a younger age (OR 0.82; 95% CI (0.78, 0.85)), underwent a mastectomy (OR 4.63; 95% CI (2.59, 8.26)), or were in the first treatment period (OR 2.83; 95% CI (1.44, 5.58)). All 16 themes were present in the stories, but some themes were addressed less often than their frequency among participants of quantitative studies suggested. The findings indicate that a set of spontaneously published stories might not completely reflect the characteristics and themes of the wider population of young women with breast cancer. Websites with spontaneously published stories should inform readers about this. [ABSTRACT FROM AUTHOR]
- Published
- 2013
- Full Text
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