1. Exploring views on long term rehabilitation for people with stroke in a developing country: findings from focus group discussions
- Author
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Saperi Sulong, Aznida Firzah Abdul Aziz, Devinder Kaur Ajit Singh, Syed Mohamed Aljunid, Nor Aishah Omar Othman, Noorazah Abd Aziz, and Nor Azlin Mohd Nordin
- Subjects
Adult ,Male ,Attitude of Health Personnel ,medicine.medical_treatment ,Health informatics ,Health Services Accessibility ,Health administration ,Nursing ,medicine ,Humans ,Stroke ,Developing Countries ,Aged ,Health Services Needs and Demand ,Rehabilitation ,business.industry ,Nursing research ,Health Policy ,Malaysia ,Stroke Rehabilitation ,Continuity of Patient Care ,Focus Groups ,Middle Aged ,medicine.disease ,Focus group ,Long-Term Care ,Long-term care ,Family-assisted therapy ,Health Resources ,Female ,business ,Attitude to Health ,Qualitative research ,Research Article - Abstract
Background The importance of long term rehabilitation for people with stroke is increasingly evident, yet it is not known whether such services can be materialised in countries with limited community resources. In this study, we explored the perception of rehabilitation professionals and people with stroke towards long term stroke rehabilitation services and potential approaches to enable provision of these services. Views from providers and users are important in ensuring whatever strategies developed for long term stroke rehabilitations are feasible and acceptable. Methods Focus group discussions were conducted involving 15 rehabilitation professionals and eight long term stroke survivors. All recorded conversations were transcribed verbatim and analysed using the principles of qualitative research. Results Both groups agreed that people with stroke may benefit from more rehabilitation compared to the amount of rehabilitation services presently provided. Views regarding the unavailability of long term rehabilitation services due to multi-factorial barriers were recognised. The groups also highlighted the urgent need for the establishment of community-based stroke rehabilitation centres. Family-assisted home therapy was viewed as a potential approach to continued rehabilitation for long term stroke survivors, given careful planning to overcome several family-related issues. Conclusions Barriers to the provision of long term stroke rehabilitation services are multi-factorial. Establishment of community-based stroke rehabilitation centres and training family members to conduct home-based therapy are two potential strategies to enable the continuation of rehabilitation for long term stroke survivors.
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