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1. Internet use by older adults with bipolar disorder: international survey results

Author

Bauer, Rita, Glenn, Tasha, Strejilevich, Sergio, Conell, Joern, Alda, Martin, Ardau, Raffaella, Baune, Bernhard T., Berk, Michael, Bersudsky, Yuly, Bilderbeck, Amy, Bocchetta, Alberto, Castro, Angela M. Paredes, Cheung, Eric Y. W., Chillotti, Caterina, Choppin, Sabine, Cuomo, Alessandro, Del Zompo, Maria, Dias, Rodrigo, Dodd, Seetal, Duffy, Anne, Etain, Bruno, Fagiolini, Andrea, Fernandez Hernandez, Miryam, Garnham, Julie, Geddes, John, Gildebro, Jonas, Gitlin, Michael J., Gonzalez-Pinto, Ana, Goodwin, Guy M., Grof, Paul, Harima, Hirohiko, Hassel, Stefanie, Henry, Chantal, Hidalgo-Mazzei, Diego, Lund, Anne Hvenegaard, Kapur, Vaisnvy, Kunigiri, Girish, Lafer, Beny, Larsen, Erik R., Lewitzka, Ute, Licht, Rasmus W., Misiak, Blazej, Piotrowski, Patryk, Miranda-Scippa, Angela, Monteith, Scott, Munoz, Rodrigo, Nakanotani, Takako, Nielsen, Rene E., O'Donovan, Claire, Okamura, Yasushi, Osher, Yamima, Reif, Andreas, Ritter, Philipp, Rybakowski, Janusz K., Sagduyu, Kemal, Sawchuk, Brett, Schwartz, Elon, Slaney, Claire, Sulaiman, Ahmad H., Suominen, Kirsi, Suwalska, Aleksandra, Tam, Peter, Tatebayashi, Yoshitaka, Tondo, Leonardo, Veeh, Julia, Vieta, Eduard, Vinberg, Maj, Viswanath, Biju, Zetin, Mark, Whybrow, Peter C., and Bauer, Michael

Subjects
communication, Research, lcsh:QP351-495, multisite survey, united-states, literacy, mental-illness, decision-making, lcsh:RC321-571, health information, lcsh:Neurophysiology and neuropsychology, technology, lcsh:Neurosciences. Biological psychiatry. Neuropsychiatry, online, engagement
Abstract

Background: The world population is aging and the number of older adults with bipolar disorder is increasing. Digital technologies are viewed as a framework to improve care of older adults with bipolar disorder. This analysis quantifies Internet use by older adults with bipolar disorder as part of a larger survey project about information seeking. Methods: A paper-based survey about information seeking by patients with bipolar disorder was developed and translated into 12 languages. The survey was anonymous and completed between March 2014 and January 2016 by 1222 patients in 17 countries. All patients were diagnosed by a psychiatrist. General estimating equations were used to account for correlated data. Results: Overall, 47% of older adults (age 60 years or older) used the Internet versus 87% of younger adults (less than 60 years). More education and having symptoms that interfered with regular activities increased the odds of using the Internet, while being age 60 years or older decreased the odds. Data from 187 older adults and 1021 younger adults were included in the analysis excluding missing values. Conclusions: Older adults with bipolar disorder use the Internet much less frequently than younger adults. Many older adults do not use the Internet, and technology tools are suitable for some but not all older adults. As more health services are only available online, and more digital tools are developed, there is concern about growing health disparities based on age. Mental health experts should participate in determining the appropriate role for digital tools for older adults with bipolar disorder. We acknowledge support by the Open Access Publication Funds of the SLUB/TU Dresden (Grant No. IN-1502335).

Published
2018
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2. Internet use by older adults with bipolar disorder: international survey results

Author

Bauer, Michael, Bauer, Rita, Glenn, Tasha, Strejilevich, Sergio, Conell, Jörn, Alda, Martin, Ardau, Raffaella, Baune, Bernhard T., Berk, Michael, Bersudsky, Yuly, Bilderbeck, Amy, Bocchetta, Alberto, Paredes Castro, Angela M., Cheung, Eric Y. W., Chillotti, Caterina, Choppin, Sabine, Cuomo, Alessandro, Del Zompo, Maria, Dias, Rofrigo, Dodd, Seetalq, Duffy, Anne, Etain, Bruno, Fagiolini, Andrea, Fernández Hernandez, Miryam, Garnham, Julie, Geddes, John, Gildebro, Jonas, Michael J., Gonzalez-Pinto, Anna, Goodwin, Guy M., Grof, Paul, Harima, Hirohiko, Hassel, Stefanie, Henry, Chantal, Hidalgo-Mazzei, Diego, Hvenegaard Lund, Anne, Kapur, Vaisnvy, Kunigiri, Girish, Lafer, Beny, Larsen, Erik R., Lewitzka, Ute, Licht, Rasmus W., Misiak, Blazej, Piotrowski, Patryk, Miranda-Scippa, Angela, Monteith, Scott, Munoz, Rodrigo, Nakanotani, Takako, Nielsen, René E., O´Donovan, Claire, Okamura, Yasushi, Osher, Yamima, Reif, Andreas, Ritter, Philipp, Rybakowski, Janusz K., Sagduyu, Kemal, Sawchuk, Brett, Schwartz, Elon, Slaney, Claire, Sulaiman, Ahmad H., Suominen, Kirsi, Suwalska, Aleksandra, Tam, Peter, Tatebayashi, Yoshitaka, Tondo, Leonardo, Veeh, Julia, Vieta, Eduard, Vinberg, Maj, Viswanath, Biju, and Whybrow, Peter C.

Subjects
bipolare Störung, Informationssuche, medizinische Begleiterkrankungen, endokrine, respiratorische und kardiovaskuläre Erkrankungen, Technische Universität Dresden, Publikationsfond, ddc:610, bipolar disorder, information seeking, medical comorbidities, endocrine, respiratory and cardiovascular conditions, Technische Universität Dresden, Publishing Funds
Abstract

Background: The world population is aging and the number of older adults with bipolar disorder is increasing. Digital technologies are viewed as a framework to improve care of older adults with bipolar disorder. This analysis quantifes Internet use by older adults with bipolar disorder as part of a larger survey project about information seeking. Methods: A paper-based survey about information seeking by patients with bipolar disorder was developed and translated into 12 languages. The survey was anonymous and completed between March 2014 and January 2016 by 1222 patients in 17 countries. All patients were diagnosed by a psychiatrist. General estimating equations were used to account for correlated data. Results: Overall, 47% of older adults (age 60 years or older) used the Internet versus 87% of younger adults (less than 60 years). More education and having symptoms that interfered with regular activities increased the odds of using the Internet, while being age 60 years or older decreased the odds. Data from 187 older adults and 1021 younger adults were included in the analysis excluding missing values. Conclusions: Older adults with bipolar disorder use the Internet much less frequently than younger adults. Many older adults do not use the Internet, and technology tools are suitable for some but not all older adults. As more health services are only available online, and more digital tools are developed, there is concern about growing health disparities based on age. Mental health experts should participate in determining the appropriate role for digital tools for older adults with bipolar disorder.

Published
2018

3. Internet use by older adults with bipolar disorder: international survey results

Author

Neurociencias, Neurozientziak, Bauer, Rita, Glenn, Tasha, Strejilevich, Sergio, Conell, Jörn, Alda, Martin, Ardau, Raffaella, Baune, Bernhard T., Berk, Michael, Berudsky, Yuly, Bilderbeck, Amy, Bocchetta, Albertos, Paredes Castro, Angela M., Cheung, Eric Y. W., Chillotti, Caterina, Choppin, Sabine, Cuomo, Alessandro, Del Zompo, Maria, Dias, Rodrigo, Dodd, Seetal, Duffy, Anne, Etain, Bruno, Fagiolini, Andrea, Fernández Hernández, Miryam, Garnham, Julie, Geddes, John, Gildebro, Jonas, Gitlin, Michael J., González Pinto Arrillaga, Ana María, Goodwin, Guy M., Grof, Paul, Harima, Hirohiko, Hassel, Stefanie, Henry, Chantal, Hidalgo-Mazzei, Diego, Hvenegaard Lund, Anne, Kapur, Vaisnvy, Kunigiri, Girish, Lafer, Beny, Larsen, Erik R., Lewitzka, Ute, Licht, Rasmus W., Misiak, Blazej, Piotrowski, Patryk, Miranda-Scippa, Ângela, Monteith, Scott, Munoz, Rodrigo, Nakanotani, Takako, Nielsen, René E., O’Donovan, Claire, Okamura, Yasushi, Osher, Yamima, Reif, Andreas, Ritter, Philipp, Rybakowski, Janusz K., Sagduyu, Kemal, Sawchuk, Brett, Schwartz, Elon, Slaney, Claire, Sulaiman, Ahmad H., Suominen, Kirsi, Suwalska, Aleksandra, Tam, Peter, Tatebayashi, Yoshitaka, Tondo, Leonardo, Veeh, Julia, Vieta, Eduard, Vinberg, Maj, Viswanath, Biju, Zetin^, Mark, Whybrow, Peter C., Bauer, Michael, Neurociencias, Neurozientziak, Bauer, Rita, Glenn, Tasha, Strejilevich, Sergio, Conell, Jörn, Alda, Martin, Ardau, Raffaella, Baune, Bernhard T., Berk, Michael, Berudsky, Yuly, Bilderbeck, Amy, Bocchetta, Albertos, Paredes Castro, Angela M., Cheung, Eric Y. W., Chillotti, Caterina, Choppin, Sabine, Cuomo, Alessandro, Del Zompo, Maria, Dias, Rodrigo, Dodd, Seetal, Duffy, Anne, Etain, Bruno, Fagiolini, Andrea, Fernández Hernández, Miryam, Garnham, Julie, Geddes, John, Gildebro, Jonas, Gitlin, Michael J., González Pinto Arrillaga, Ana María, Goodwin, Guy M., Grof, Paul, Harima, Hirohiko, Hassel, Stefanie, Henry, Chantal, Hidalgo-Mazzei, Diego, Hvenegaard Lund, Anne, Kapur, Vaisnvy, Kunigiri, Girish, Lafer, Beny, Larsen, Erik R., Lewitzka, Ute, Licht, Rasmus W., Misiak, Blazej, Piotrowski, Patryk, Miranda-Scippa, Ângela, Monteith, Scott, Munoz, Rodrigo, Nakanotani, Takako, Nielsen, René E., O’Donovan, Claire, Okamura, Yasushi, Osher, Yamima, Reif, Andreas, Ritter, Philipp, Rybakowski, Janusz K., Sagduyu, Kemal, Sawchuk, Brett, Schwartz, Elon, Slaney, Claire, Sulaiman, Ahmad H., Suominen, Kirsi, Suwalska, Aleksandra, Tam, Peter, Tatebayashi, Yoshitaka, Tondo, Leonardo, Veeh, Julia, Vieta, Eduard, Vinberg, Maj, Viswanath, Biju, Zetin^, Mark, Whybrow, Peter C., and Bauer, Michael

Abstract

Background: The world population is aging and the number of older adults with bipolar disorder is increasing. Digital technologies are viewed as a framework to improve care of older adults with bipolar disorder. This analysis quantifies Internet use by older adults with bipolar disorder as part of a larger survey project about information seeking. Methods: A paper-based survey about information seeking by patients with bipolar disorder was developed and translated into 12 languages. The survey was anonymous and completed between March 2014 and January 2016 by 1222 patients in 17 countries. All patients were diagnosed by a psychiatrist. General estimating equations were used to account for correlated data. Results: Overall, 47% of older adults (age 60 years or older) used the Internet versus 87% of younger adults (less than 60 years). More education and having symptoms that interfered with regular activities increased the odds of using the Internet, while being age 60 years or older decreased the odds. Data from 187 older adults and 1021 younger adults were included in the analysis excluding missing values. Conclusions: Older adults with bipolar disorder use the Internet much less frequently than younger adults. Many older adults do not use the Internet, and technology tools are suitable for some but not all older adults. As more health services are only available online, and more digital tools are developed, there is concern about growing health disparities based on age. Mental health experts should participate in determining the appropriate role for digital tools for older adults with bipolar disorder.

Published
2018

4. Online information seeking by patients with bipolar disorder: results from an international multisite survey

Author

Conell, Jorn, Bauer, Rita, Glenn, Tasha, Alda, Martin, Ardau, Raffaella, Baune, Bernhard T., Berk, Michael, Bersudsky, Yuly, Bilderbeck, Amy, Bocchetta, Alberto, Bossini, Letizia, Paredes Castro, Angela Marianne, Cheung, Eric Yat Wo, Chillotti, Catarina, Choppin, Sabine, Del Zompo, Maria, Dias, Rodrigo, Dodd, Seetal, Duffy, Anne, Etain, Bruno, Fagiolini, Andrea, Garnham, Julie, Geddes, John, Gildebro, Jonas, Gonzalez-Pinto, Ana, Goodwin, Guy M., Grof, Paul, Harima, Hirohiko, Hassel, Stefanie, Henry, Chantal, Hidalgo-Mazzei, Diego, Kapur, Vaisnvy, Kunigiri, Girish, Lafer, Beny, Lam, Chun, Larsen, Eric Roj, Lewitzka, Ute, Licht, Rasmus, Lund, Anne Hvenegaard, Misiak, Blazej, Piotrowski, Patryk, Monteith, Scott, Munoz, Rodrigo, Nakanotani, Takako, Nielsen, Rene E., O'Donovan, Claire, Okamura, Yasushi, Osher, Yamima, Reif, Andreas, Ritter, Philipp, Rybakowski, Janusz K., Sagduyu, Kemal, Sawchuk, Brett, Schwartz, Elon, Scippa, Ângela Miranda, Slaney, Claire, Sulaiman, Ahmad Hatim, Suominen, Kirsi, Suwalska, Aleksandra, Tam, Peter, Tatebayashi, Yoshitaka, Tondo, Leonardo, Vieta, Eduard, Vinberg, Maj, Viswanath, Biju, Volkert, Julia, Zetin, Mark, Zorrilla, Inaki, Whybrow, Peter C., Bauer, Michael, Conell, Jorn, Bauer, Rita, Glenn, Tasha, Alda, Martin, Ardau, Raffaella, Baune, Bernhard T., Berk, Michael, Bersudsky, Yuly, Bilderbeck, Amy, Bocchetta, Alberto, Bossini, Letizia, Paredes Castro, Angela Marianne, Cheung, Eric Yat Wo, Chillotti, Catarina, Choppin, Sabine, Del Zompo, Maria, Dias, Rodrigo, Dodd, Seetal, Duffy, Anne, Etain, Bruno, Fagiolini, Andrea, Garnham, Julie, Geddes, John, Gildebro, Jonas, Gonzalez-Pinto, Ana, Goodwin, Guy M., Grof, Paul, Harima, Hirohiko, Hassel, Stefanie, Henry, Chantal, Hidalgo-Mazzei, Diego, Kapur, Vaisnvy, Kunigiri, Girish, Lafer, Beny, Lam, Chun, Larsen, Eric Roj, Lewitzka, Ute, Licht, Rasmus, Lund, Anne Hvenegaard, Misiak, Blazej, Piotrowski, Patryk, Monteith, Scott, Munoz, Rodrigo, Nakanotani, Takako, Nielsen, Rene E., O'Donovan, Claire, Okamura, Yasushi, Osher, Yamima, Reif, Andreas, Ritter, Philipp, Rybakowski, Janusz K., Sagduyu, Kemal, Sawchuk, Brett, Schwartz, Elon, Scippa, Ângela Miranda, Slaney, Claire, Sulaiman, Ahmad Hatim, Suominen, Kirsi, Suwalska, Aleksandra, Tam, Peter, Tatebayashi, Yoshitaka, Tondo, Leonardo, Vieta, Eduard, Vinberg, Maj, Viswanath, Biju, Volkert, Julia, Zetin, Mark, Zorrilla, Inaki, Whybrow, Peter C., and Bauer, Michael

Abstract

BACKGROUND: Information seeking is an important coping mechanism for dealing with chronic illness. Despite a growing number of mental health websites, there is little understanding of how patients with bipolar disorder use the Internet to seek information. METHODS: A 39 question, paper-based, anonymous survey, translated into 12 languages, was completed by 1222 patients in 17 countries as a convenience sample between March 2014 and January 2016. All patients had a diagnosis of bipolar disorder from a psychiatrist. Data were analyzed using descriptive statistics and generalized estimating equations to account for correlated data. RESULTS: 976 (81 % of 1212 valid responses) of the patients used the Internet, and of these 750 (77 %) looked for information on bipolar disorder. When looking online for information, 89 % used a computer rather than a smartphone, and 79 % started with a general search engine. The primary reasons for searching were drug side effects (51 %), to learn anonymously (43 %), and for help coping (39 %). About 1/3 rated their search skills as expert, and 2/3 as basic or intermediate. 59 % preferred a website on mental illness and 33 % preferred Wikipedia. Only 20 % read or participated in online support groups. Most patients (62 %) searched a couple times a year. Online information seeking helped about 2/3 to cope (41 % of the entire sample). About 2/3 did not discuss Internet findings with their doctor. CONCLUSION: Online information seeking helps many patients to cope although alternative information sources remain important. Most patients do not discuss Internet findings with their doctor, and concern remains about the quality of online information especially related to prescription drugs. Patients may not rate search skills accurately, and may not understand limitations of online privacy. More patient education about online

Published
2016

5. Validity of the EASYCare Standard 2010 assessment instrument for self-assessment of health, independence, and well-being of older people living at home in Poland.

Author

Tobis S, Jaracz K, Talarska D, Kropińska S, Zasadzka E, Pawlaczyk M, Wieczorowska-Tobis K, Philp I, and Suwalska A

Abstract

EASYCare Standard 2010 is a brief instrument identifying concerns in health, functional independence, and well-being, from older persons' perspective. It has not previously been validated for self-assessment. Our aim was to determine whether self-assessment (EC1) can give comparable results to an evaluation performed by professionals (EC2), for older people living at home. The study included community-dwelling individuals (aged at least 60 years, n  = 100; 67 females) without dementia (abbreviated mental test score [AMTS] above 6). It comprised two assessments (self and professional), including summarising indexes: Independence score [IS], Risk of breakdown in care [RBC], Risk of falls [RF], performed within a period between 1 and 2 weeks. Additionally, during EC1, reference tests of physical and mental function (Barthel Index: 96.3 ± 6.5, Lawton scale: 6.7 ± 2.0, geriatric depression scale: 3.0 ± 2.7, AMTS: 10.2 ± 1.0) were applied to test for concurrent validity. Cohen's kappa values (self-assessment vs. professional assessment) across all EASYCare domains were high (0.89-0.95). Results of all summarising indexes derived from self-assessment correlated strongly with reference tests. No differences were found in IS and RBC between EC1 and EC2 (8.6 ± 12.0 vs. 9.0 ± 12.7 and 1.0 ± 1.1 vs. 1.2 ± 1.4). Results of RF were higher in EC2 (1.0 ± 1.1 vs. 1.1 ± 1.4; p  = 0.005), due to a different response to the item "Do you feel safe outside your home?" We conclude that self-assessment with EASYCare Standard in older people without severe functional impairment living at home can deliver valid results, similar to those obtained through professional assessment, thus providing an efficient system for assessment of relatively independent individuals.

Published
2017
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