7 results on '"Megan Crowley-Matoka"'
Search Results
2. Anthropological issues in renal care
- Author
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Megan Crowley-Matoka
- Subjects
Nephrology ,medicine.medical_specialty ,business.industry ,Cultural variation ,Scientific literature ,medicine.disease ,Renal care ,Cultural beliefs ,Nursing ,Cultural diversity ,Internal medicine ,medicine ,business ,Cultural competence ,Kidney disease - Abstract
This article provides a brief overview of the critical role that culture can play in renal care, drawing on examples from the social scientific literature to discuss cultural beliefs in three key domains at issue in renal care: beliefs about the kidney itself, about kidney disease, and about kidney treatments. Examining cultural variation within these three key domains across settings ranging from Mexico, USA, China, Egypt, Japan, Turkey, and others provides a means for thinking more deeply and strategically about the role of culture in caring for nephrology patients. The article concludes by offering specific practice strategies designed to strengthen the understanding and communication between clinicians and patients around cultural issues in renal care.
- Published
- 2013
- Full Text
- View/download PDF
3. Desperately seeking 'normal': the promise and perils of living with kidney transplantation
- Author
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Megan Crowley-Matoka
- Subjects
Adult ,Male ,Gerontology ,medicine.medical_specialty ,Coping (psychology) ,Health (social science) ,Adolescent ,Health Status ,media_common.quotation_subject ,Personal Satisfaction ,Organ transplantation ,Interviews as Topic ,Politics ,History and Philosophy of Science ,Adaptation, Psychological ,medicine ,Humans ,Sociocultural evolution ,Mexico ,Kidney transplantation ,media_common ,business.industry ,Public health ,Gender studies ,Middle Aged ,medicine.disease ,Kidney Transplantation ,Transplantation ,surgical procedures, operative ,Female ,Liminality ,business - Abstract
Organ transplantation offers a dramatic example of the promises for health held out by biomedicine—and thus, a productive vantage point from which to interrogate those promises. Drawing on ethnographic research on kidney transplantation in Guadalajara, Mexico, this article examines the version of “health” offered to patients through transplantation. The paper explores patients’ transplant trajectories as they move from learning to desire a transplant to actually receiving one and living with it over the long term, all within particular structuring sociocultural and political economic conditions. The article analyzes how transplanted patients are forced to come to terms with the contingent states of “health” and “normality” wrought by transplantation as they carve out an existence in the persistently liminal spaces between the roles of “sick” and “healthy,” dependent patient and fully contributing family member.
- Published
- 2005
- Full Text
- View/download PDF
4. Dimensions and Mediators of Surrogate Trust in the Intensive Care Unit
- Author
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Paul J. Hutchison, Thomas C. Corbridge, Katie A. McLaughlin, and Megan Crowley-Matoka
- Subjects
Pulmonary and Respiratory Medicine ,medicine.medical_specialty ,business.industry ,law ,medicine ,Cardiology and Cardiovascular Medicine ,Critical Care and Intensive Care Medicine ,Intensive care medicine ,business ,Intensive care unit ,law.invention - Published
- 2013
- Full Text
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5. 'Hurts to Know…And It Helps': Exploring How Surrogates in the ICU Cope With Prognostic Information (TH339-A)
- Author
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Daniel Dohan, Greer A. Tiver, Yael Schenker, Douglas B. White, Robert M. Arnold, and Megan Crowley-Matoka
- Subjects
Anesthesiology and Pain Medicine ,Psychotherapist ,business.industry ,Medicine ,Neurology (clinical) ,business ,General Nursing - Published
- 2013
- Full Text
- View/download PDF
6. Elective Surgical Patients as Living Organ Donors: A Clinical and Ethical Innovation
- Author
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Giuliano Testa, Peter Angelos, Mark Siegler, and Megan Crowley-Matoka
- Subjects
Ethics ,Transplantation ,medicine.medical_specialty ,Letter to the editor ,business.industry ,Urinary system ,medicine.medical_treatment ,General surgery ,medicine.disease ,Kidney Transplantation ,Nephrectomy ,Surgery ,Elective Surgical Procedures ,Living Donors ,medicine ,Humans ,Immunology and Allergy ,Pharmacology (medical) ,Organ donation ,Elective surgery ,business ,Kidney transplantation ,Abdominal surgery ,Surgical patients - Abstract
We propose a new model for living organ donation that would invite elective laparoscopic cholecystectomy patients to become volunteer, unrelated living kidney donors. Such donors would be surgical patients first and living donors second, in contrast to the current system, which 'creates' a surgical patient by operating on a healthy individual. Elective surgery patients have accepted the risks of anesthesia and surgery for their own surgical needs but would face additional surgical risks when a donor nephrectomy is combined with their cholecystectomy procedure. Because these two procedures have never been performed together, the precise level of additional risk entailed in such a combined approach is unknown and will require further study. However, considering the large number of elective cholecystectomies performed each year in the United States, if as few as 5% of elective cholecystectomy patients agreed to also serve as living kidney donors, the number of living kidney donors would increase substantially. If this proposal is accepted by a minority of patients and surgeons, and proves safe and effective in a protocol study, it could be applied to other elective abdominal surgery procedures and used to obtain other abdominal donor organs (e.g. liver and intestinal segments) for transplantation.
- Published
- 2010
- Full Text
- View/download PDF
7. Letter to the Editor in Response to: Gordon et al., Elective Surgical Patients as Living Organ Donors: A Clinical and Ethical Innovation by Testa et al
- Author
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Peter Angelos, Giuliano Testa, Megan Crowley-Matoka, and Mark Siegler
- Subjects
Transplantation ,medicine.medical_specialty ,Scrutiny ,Letter to the editor ,business.industry ,medicine.disease ,Transparency (behavior) ,End stage renal disease ,Surgery ,Nursing ,Public trust ,Immunology and Allergy ,Medicine ,Pharmacology (medical) ,Elective surgery ,business ,Kidney transplantation - Abstract
Dear Editor:We are pleased that Gordon et al. are intrigued by our pro-posal even though they urge caution before going forward.On the matter of caution, we agree entirely. In fact, our de-cision to publish our concept paper in the AJTbefore oper-ating on the first case was aimed at promoting opennessand transparency and critical scrutiny of our ideas. This ap-proach of inviting public comment before performing thefirst innovative procedure is based on a model we devel-oped at the University of Chicago in 1989, when we beganthe first protocol series of living donor liver transplantation(1). We will move forward on this concept only after con-ducting rigorous qualitative and quantitative research ex-ploring the feasibility of this idea for the key stakeholdersinvolved—patients, general surgeons, transplant surgeonsand payers. This research will study whether public trust ofthe transplantation system will be affected by our proposaland whether payers, public and private, will support an ef-fort to increase kidney transplantation and thus decreasethe overall costs of end stage renal disease care.Dr. Gordon’s letter also raises questions about a number ofethical issues that we discussed in detail in our paper, in-cluding donor risk, the potential vulnerability of surgical pa-tients, and strategies for improving the informed consentprocess. Certain points deserve repeating for emphasis.On the issue of donor risk, Dr. Gordon claims that ‘reduc-ingthenumberofsurgeries...doesnothelpthedonor’.Noone knows if Dr. Gordon’s claim is correct. For the patientwho is scheduled for elective abdominal surgery and whowants to be a kidney donor, there is no data on whetherthe incremental risk of adding the donor nephrectomy tothe elective surgery is more or less than the de novoriskto a healthy person who volunteers to be a kidney donor.As we indicate in the study, this would be one importantissue to study when a protocol series of cases was done.Regarding donor advocates and their ability to protect sur-gical patients-–whom we agree may be subject to distinc-tive, though not necessarily greater, vulnerabilities—ourexperience differs from Gordon’s ‘prior experience’ whenshe questions the independence of advocates. In 1989,the University of Chicago was one of the first programsin the world to implement a vigorous independent livingdonor advocate program, a program which continues tothe present time. Based on our 20 years of experience,we respectfully disagree with Gordon’s views and believethat donor advocates can maintain their independence andintegrity.However, we do agree with Gordon that there are severalpotential consequences of this proposal that require care-fulexploration,includingthepotentialforgenderinequitiesin patients who would be most likely to be asked to do-nate, and the possibility of slowing the evaluation processfor other living donors. Both concerns raise important eth-ical issues that require empirical investigation.Finally, the decision on whether to move forward may turnultimately on patient/donor attitudes, preferences, desiresand public acceptance. If elective surgery patients whowishtoserveasaltruisticdonorsrequestthattheirgeneralsurgeons give them the opportunity to donate, then thereis a strong possibility that our proposal might succeed andhelp to reduce the current shortage of abdominal organsfor transplantation.Sincerely,Giuliano Testa
- Published
- 2010
- Full Text
- View/download PDF
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