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This study aims to examine the reliability and validity of Home-visit Nursing Quality Indicators for Children (HNQIC) with medical complexity in Japan that will enable measuring the quality of services provided by home-visit nursing agencies (HNA) for children with medical complexity (CMC) and their families. This study employed a model that measures medical quality as proposed by Donabedian in a conceptual framework. The HNQIC is comprised of a total of 42 items with responses in 5-point Likert scale: 8 items in "Structure", 24 items in "Process", and 10 items in "Outcome". A self-rating questionnaire survey was administered and responses from 57 home-visit nursing agencies were analyzed. An exploratory factor analysis was performed to examine the validity of the construct, and a covariance structure analysis was performed to examine the structural validity of the model that measures medical quality. The "Structure" and "Process" sections included 28 items in 5 factors, and the "Outcome" section included 7 items in 3 factors. The Cronbach's α coefficient for all of the items of "Structure" and "Process" was 0.93, and that of "Outcome" was 0.76. As a result of a covariance structure analysis, we obtained following goodness-of-fit indices: χ2 / df = 1.41, GFI =.897, AGFI =.794, CFI =.926, and for the coefficient of determination.14 ≤ R2 ≤.68. As the statistical validity of the HNQIC was confirmed, we determined the goodness-of-fit indices of the model to be acceptable. The findings suggested that the HNQIC can be used as a quality indicator to access care effects objectively to provide better support. • Home-visit nursing plays important roles to support increasing number of CMC. • Home-visit nursing quality indicator guidelines exclusive to CMC are needed. • Developed Home-visit Nursing Quality Indicators for Children with medical complexity. [ABSTRACT FROM AUTHOR]

Abstract: Objectives: Epileptic spasms (ES) in West syndrome (WS) are classified as being of the generalized seizure type. However, evidence of a focal neocortical origin has been proposed based mainly on surgical WS series. We report herein two infants with WS, whose ES subsequently evolved into focal ES of the right lower extremity. Methods: Medical records, electroencephalographic and neuroimaging findings were retrospectively analyzed. Results: A 2year-old Japanese girl developed ES at 3months of age. Focal ES of the right leg manifested one month after successful ACTH therapy performed at 6 months of age. Brief jerking of the right leg, every few seconds, occurred immediately after awakening. A 7month-old girl with symptomatic WS had developed focal seizures with postural signs at 2months of age. The seizures gradually diminished and had been replaced by ES by 3months of age. ES gradually evolved into focal ES of the right leg. A video-polygraphic study demonstrated the ES with marked predominance in the right leg corresponding to a left sided predominant paroxysmal biphasic slow wave complex. Brain MRI revealed no abnormal findings although interictal EEG demonstrated left centro-parieto-temporal localized spike foci. Conclusions: The focal ES of one lower limb, following treatment of ES in these two infants with WS, suggests the origin of the ES in the first case to be a neocortical focus involving the primary motor cortex representing the lower limb while that in the second case involves more widespread neocortical area with predominance in the same motor cortex as the first case. [Copyright &y& Elsevier]