1. Quality of Life and Health Services Utilization for Spanish Children With Cerebral Palsy.
- Author
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Pérez-Ardanaz, Bibiana, Morales-Asencio, José Miguel, León-Campos, Álvaro, Kaknani-Uttumchandani, Shakira, López-Leiva, Inmaculada, Garcia-Piñero, José Miguel, Martí-García, Celia, and García-Mayor, Silvia
- Abstract
To examine the health-related quality of life of children with cerebral palsy and its relationship with their use of health resources, taking into account sociodemographic factors concerning the family context. Cross-sectional study of children with cerebral palsy in Granada (Spain). Quality of life was evaluated with PedsQL questionnaire. A total of 75 children were analysed (mean age 7.41 years; SD 4.37; 50.7% male). They made an average of 22.80 visits (SD 12.43) per year; greater use was made of resources by children who had been diagnosed with cerebral palsy for <45 months (36.00 vs. 26.93 visits per year, p < 0.0001). Older children suffered more fatigue and pain. Children aged 2–4 years who presented with fatigue had more hospitalizations (r = −0.35; p = 0.20), whereas those >4 years who had a higher quality of life for daily activities had made more visits to hospital A&E (r = 0.35, p = 0.043). Among the children studied, there was no significant association between HRQOL and the parents' education or occupation. These findings highlight variables that may influence children's quality of life and their use of health resources, identifying certain profiles of children who might need individualized interventions. These findings could inform services provided by paediatric nurses to children with cerebral palsy, to individualize interventions and improve patient centred care. • Children with cerebral palsy have a high use of health care: on average, 23 annual visits to specialized care and four visits to emergency services. • Children with a recent diagnose of CP (under 45 months) and those with fatigue have a greater use of health resources and hospitalization rates. • There is a high use of home medical devices, such as oxygen therapy, gastrostomy, enteral nutrition and mechanical ventilation. • Many families used mutual support associations and alternative therapies and had additional health expenses for health care. • Activities of daily living is the most affected dimension of quality of life. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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