1. Implementation and evaluation of a therapeutic patient education programme during a clinical trial in Yaoundé, Cameroon – Trial ANRS-12286/MOBIDIP.
- Author
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Galy, Adrien, Ciaffi, Laura, Mberyo, Geraldine Manirakiza, Mbouyap, Pretty, Abessolo, Hermine, Toby, Roselyne, Essomba, Frida, Lamarre, Geneviève, Bikié, Angeline, Bell, Olga, Koulla-Shiro, Sinata, and Delaporte, Eric
- Subjects
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PATIENT education , *ANTIRETROVIRAL agents , *EDUCATIONAL programs , *HIV infections , *THERAPEUTICS , *PATIENT satisfaction , *MEDICAL consultation , *AIDS education , *CLINICAL trials , *SURVEYS , *HUMAN services programs , *HEALTH literacy , *EVALUATION of human services programs - Abstract
Objectives High adherence is needed to maintain antiretroviral therapy efficacy. Few attempts at therapeutic patient education (TPE) have been made in sub-Saharan Africa. We describe patients’ achievements before intervention and identified needs, TPE programme implementation and evaluation, and patients’ satisfaction. Methods The TPE programme was proposed to patients in the ANRS-12286/MOBIDIP trial. Beforehand, a directory of competences to manage HIV infection was designed. Patients’ HIV-related knowledge and skills assessment was realised, leading to an educational contract. Evaluation was performed using a standardised collection form and a satisfaction survey. Results Of 154 patients, 146 underwent TPE. During a median of 1.8 years, 47% of patients had ≥3 consultations. Educational assessment revealed limited knowledge about HIV disease. Conversely, patients had frequently managed issues of adherence or disclosure. A median of 12 objectives were considered per patient, and 75% were attained. Objectives from the cognitive domain were less frequently attained. Patients appeared satisfied with the intervention: more emphasis was placed on psycho-affective aspects or experience-sharing than on the acquisition of knowledge. Conclusion Active listening, know-how and a space for discussion appear more important for patients than knowledge on disease or treatments. Practice implications In HIV care, the directory of learning objectives should be revised to include more objectives concerning practical skills for disease management. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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