1. Cystic fibrosis patient characteristics and healthcare resource utilization in Finland using linked registries
- Author
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Kirsi Malmivaara, Mari Pölkki, Tuire Prami, Paavo Raittinen, Eija Heikkilä, Antti Aalto, Teija Dunder, Varpu Elenius, Kristina Sandström, and Lisa J. McGarry
- Subjects
Cystic fibrosis ,healthcare resource use ,Finland ,Retrospective registry study ,Matched cohort study ,Science (General) ,Q1-390 ,Social sciences (General) ,H1-99 - Abstract
Background: Knowledge of prevalence and epidemiology of cystic fibrosis (CF) and healthcare resource use among Finnish people with CF is incomplete. Methods: We conducted a population-based matched cohort study using retrospective real-world data from linked Finnish national registries. Electronic healthcare data and drug purchases of 102 people with CF were analyzed between January 2015 and December 2019 (follow-up). A 5-fold control population was matched by sex, age, and place of residence. Comorbidities and medication use that occurred at any time during follow-up were assessed; annual rates of hospital service use were adjusted for follow-up. Results: The prevalence of CF in Finland was 1.85 per 100,000. Median age at diagnosis was 1 year, with 60 % diagnosed at age 30 times higher in people with CF than matched controls.
- Published
- 2024
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