1. The WHOQOL-BREF in Indonesian CLP-patients: an initial evaluation
- Author
-
Jansma J, Engelbert A.J.M. Schulten, Tymour Forouzanfar, Dagmar E Wortmann, and Muhammad Ruslin
- Subjects
lcsh:RK1-715 ,Indonesian ,medicine.medical_specialty ,Whoqol bref ,business.industry ,lcsh:Dentistry ,Family medicine ,language ,medicine ,business ,humanities ,CLP, WHOQOL-BREF, Orofacial cleft ,language.human_language - Abstract
The high occurrence of orofacial cleft, particularly in South-East Asia, and the psychological and social-economic influence of the condition both advocate to rise attention for patient reported health outcomes in treatment evaluation.This especially applies for surgical procedures since these are invasive, rather drastic for patient and family, go along with several risks and are irrevocable, not to mention the financial implications.Several studies have yet been performed in order to generate a proper tool for evaluation of QoLin patients affect with CLP. However, studies are often of limited value and mainly performed among specific populations from developed countries. Moreover, what the effect is of interventions on the QoL measured, remains unanswered.The authors therefore conclude that additional research is ought to be done. The aim of this study is validate a tool for comparing QoL reported by CLP patients who underwent different (surgical) treatment procedures in Indonesia. The twenty-six item WHOQOL-BREF will be used as it is expected to be suitable for this purpose.The study will contribute to improvement of cleft treatment procedures and academic knowledge on quality of life measurement, both in Indonesia and the rest of the world.This will be performed in a cross-sectional study. The WHOQOL consists of four domains covering different facets of QoL. Adjacently, an individual’s perception of their QoL and their health, identification of the relation between QoL and oral health and biographic parameters will be registered separately. The WHOQOL-BREF will be administered to patients affected with the clinical diagnoses of non-syndromicorofacial cleft in all forms and a matching control group on epidemiological fields. Allindividuals should becapable of independently responding the questionnaire.The administration will be done following the WHOQOL-BREF manual. Statistical analyses will be performed using statistical analysis software SPSS and will be done according academic psychometric protocols.
- Published
- 2016
- Full Text
- View/download PDF