1. Improving the impact of clinical documentation through patient-driven co-design: experiences with cancer pathology reports.
- Author
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Austin EJ, Lee JR, Ko CW, Kilgore MR, Parker EU, Bergstedt B, Mitchell AI, Javid SH, and Gore JL
- Subjects
- Focus Groups, Humans, Terminology as Topic, Documentation standards, Electronic Health Records standards, Neoplasms pathology, Pathology, Clinical methods, Patient Access to Records standards, Patient Access to Records trends
- Abstract
Objective: With the unprecedented rise of patient access to clinical documentation through electronic health records, there is a need for health systems to understand best practices for redesigning clinical documentation to support patient needs. This study used an experience-based co-design approach to inform the redesign of cancer pathology reports to improve their patient-centeredness and impact on patient engagement., Materials and Methods: Multiple methods for data collection and stakeholder engagement were used, including Delphi prioritisation with breast and colorectal cancer experts (n=78) and focus groups with patients with cancer (n=23) in the Seattle area. Iterative rounds of consensus generation and reflection were used to elicit themes and design recommendations for the development of patient-centred pathology reports on cancer care., Results: Although each cancer type had nuanced elements to consider, common design requirements emerged around two key themes: (1) clinical documentation language should be framed in a way that informs and engages patients, and (2) clinical documentation format should be leveraged to enhance readability and information flow. Study activities illuminated detailed recommendations to improve the patient-centeredness of pathology reports based on patients' and clinicians' lived experience., Discussion: The design requirements that emerged from this study provide a framework that can guide the rapid development of patient-centred pathology reports for all cancer types. Even further, health systems can replicate these methods to guide experience-based co-design of clinical documentation for contexts beyond cancer care., Conclusion: This work offers practice-based learnings that can more effectively guide health systems in their clinical documentation redesign efforts., Competing Interests: Competing interests: None declared., (© Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)
- Published
- 2020
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