1. Establishing a protocol for building a pan-Canadian population-based monitoring system for early childhood development for children with health disorders: Canadian Children’s Health in Context Study (CCHICS)
- Author
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Jan Willem Gorter, Magdalena Janus, Rob Santos, Eric Duku, Martin Guhn, Catherine S Birken, Teresa Bennett, Jonathon L Maguire, Barry Forer, Caroline Reid-Westoby, Mark A. Ferro, Jacqueline Pei, Marni Brownell, Robert J. Coplan, Heather Manson, and Stelios Georgiades
- Subjects
Male ,Gerontology ,Canada ,medicine.medical_specialty ,Epidemiology ,Context (language use) ,Models, Psychological ,Social class ,paediatrics ,03 medical and health sciences ,Child Development ,0302 clinical medicine ,Protocol ,medicine ,Humans ,Disease ,0501 psychology and cognitive sciences ,030212 general & internal medicine ,Social determinants of health ,Early childhood ,Child ,10. No inequality ,Socioeconomic status ,Psychological Tests ,Models, Statistical ,business.industry ,4. Education ,05 social sciences ,Child Health ,General Medicine ,Mental health ,Child development ,3. Good health ,Social Class ,Research Design ,Child, Preschool ,developmental neurology & neurodisability ,Female ,business ,community child health ,mental health ,050104 developmental & child psychology - Abstract
Introduction Health disorders early in life have tremendous impact on children’s developmental trajectories. Almost 80% of children with health disorders lack the developmental skills to take full advantage of school-based education relative to 27% of children without a health disorder. In Canada, there is currently a dearth of nationally representative data on the social determinants of early childhood development for children with health disorders. Evidence from Canada and other countries indicate that poorer developmental outcomes in typically developing children are associated with lower socioeconomic status (SES). However, to date, it is not known whether this relationship is stronger among children with health disorders. The study’s objectives are to estimate the prevalence and to investigate social determinants of developmental outcomes for young children with health disorders, using the Early Development Instrument (EDI). Methods and analysis Study objectives will be achieved through three steps. First, using existing EDI data for 10 provinces and 2 territories collected from 2004 to 2015, we will investigate differences in developmental health outcomes among children with identified health disorders. Second, population-level EDI data will be linked with neighbourhood sociodemographic census data to explore associations between socioeconomic characteristics and rates of specific diagnoses among children aged 5–6 years, including trends over time. Third, for 3 of these 12 regions, additional health and/or education databases will be linked at an individual level. These data will be used to establish differences in EDI outcomes in relation to the age-of-onset of diagnosis, and presence of intervention or treatment. Ethics and dissemination Study methodologies have been approved by the Hamilton Integrated Research Ethics Board. The results of the analyses of developmental health outcomes for children with health disorders combined with SES will have implications for both health service delivery and school-based intervention strategies. Results will contribute to a framework for public policy.
- Published
- 2018
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