1. Long-term compliance with endoscopic surveillance for familial adenomatous polyposis.
- Author
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Douma KF, Bleiker EM, Aaronson NK, Cats A, Gerritsma MA, Gundy CM, and Vasen HF
- Subjects
- Adenomatous Polyposis Coli surgery, Adult, Colectomy, Colonoscopy, Colorectal Neoplasms diagnosis, Cross-Sectional Studies, Female, Humans, Male, Middle Aged, Netherlands, Self Efficacy, Socioeconomic Factors, Surveys and Questionnaires, Adenomatous Polyposis Coli psychology, Colorectal Neoplasms prevention & control, Patient Compliance
- Abstract
Aim: The study assessed compliance of patients with familial adenomatous polyposis (FAP) with endoscopic surveillance., Method: In this nationwide, cross-sectional study, individuals from FAP families registered with the Netherlands Foundation for the Detection of Hereditary Tumours were invited to complete a questionnaire on endoscopic screening experiences., Results: A total of 328 individuals were eligible for the study of whom 85 were at risk for FAP, 108 had an intact rectum after a colectomy with ileorectal anastomosis (IRA), and 135 had had a pouch following a proctocolectomy with ileoanal anastomosis (IPAA). Based on medical record data, 20% of the at-risk group and 26% of the IRA-group were found to be undercompliant with surveillance advice which was associated significantly with perceived self-efficacy, use of sedatives during surveillance, pain after surveillance and low perceived benefits of surveillance (P < 0.05)., Conclusion: One in five individuals at risk for FAP and one in four with a retained rectum are undercompliant with screening advice. We recommend that sedatives should be patient-tailored for FAP individuals undergoing surveillance and that adequate pain medication be provided after endoscopy., (© 2010 The Authors. Colorectal Disease © 2010 The Association of Coloproctology of Great Britain and Ireland.)
- Published
- 2010
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