1. Privacy rules for DNA databanks: protecting coded 'future diaries.'
- Author
-
Annas, George J.
- Subjects
Databases -- Safety and security measures ,Information storage and retrieval systems -- Medicine ,Medical records -- Access control - Abstract
Current privacy rules governing medical information disclosures, traditional medical recordkeeping and DNA fingerprinting are not adequate protection for stored information provided by advanced genetic technology. Four rules for maintaining privacy in public and private DNA databanks are proposed. A DNA databank should not be opened without first giving public notice concerning its intent and future impact. Collection of DNA samples should be prohibited without prior agreement regarding purpose, use, privacy and access to stored samples. Samples should only be used for their original purpose and access should be denied to any third party unless authorized by the individual. Finally, individuals whose DNA samples are stored should be notified of any developments that may affect their health. Legal aspects of privacy of medical information and implications for DNA databanks are discussed.
- Published
- 1993