4 results on '"van Uden-Kraan, Cornelia F."'
Search Results
2. Evaluation of the Implementation of the Dutch Breast Cancer Surveillance Decision Aid including Personalized Risk Estimates in the SHOUT-BC Study: A Mixed Methods Approach.
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Ankersmid, Jet W., Engelhardt, Ellen G., Lansink Rotgerink, Fleur K., The, Regina, Strobbe, Luc J. A., Drossaert, Constance H. C., Siesling, Sabine, and van Uden-Kraan, Cornelia F.
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EVALUATION of human services programs ,BREAST tumor treatment ,PUBLIC health surveillance ,HEALTH services accessibility ,RESEARCH funding ,RISK management in business ,DECISION making ,DESCRIPTIVE statistics ,THEMATIC analysis ,ATTITUDES of medical personnel ,RESEARCH methodology ,CONCEPTUAL structures ,QUALITY assurance ,HEALTH outcome assessment ,DATA analysis software ,EMPLOYEES' workload - Abstract
Simple Summary: This study examined the use of the Breast Cancer Surveillance Decision Aid (BCS-PtDA) in eight Dutch hospitals. This PtDA supports information provision (including information about personalized recurrence risks) and decision-making about post-treatment surveillance. Health care professionals (HCPs) acknowledged that the tool helped make patients aware of their options but felt it increased their workload without clear benefits. While the tool was effective in presenting choices to patients, deliberation about the options was scarce. The main challenges were related to the extra time required and HCPs' perception of the tool's value. Risk communication was deemed generally adequate. The study suggests that, while the PtDA offers benefits, better integration and communication strategies are needed to enhance shared decision-making processes. In conclusion, the implementation of the BCS-PtDA led to choices being offered to patients. However, there is room for improvement in information provision and the application of shared decision-making. Background: To improve Shared decision-making (SDM) regarding personalized post-treatment surveillance, the Breast Cancer Surveillance Decision Aid (BCS-PtDA), integrating personalized risk information, was developed and implemented in eight hospitals. The aim of this mixed-methods study was to (1) assess the implementation and participation rates, (2) identify facilitators and barriers for use by health care professionals (HCPs), (3) quantify the observed level of SDM, and (4) evaluate risk communication and SDM application in consultations. Methods: Implementation and participation rates and patients' BCS-PtDA use were calculated using hospital registry data and BCS-PtDA log data. HCPs' perspective on facilitators and barriers were collected using the MIDI framework. Observed SDM levels in consultation transcripts were quantified using the OPTION-5 scale. Thematic analysis was performed to assess consultation content. Results: The average PtDA implementation and participation rates were, respectively, 26% and 61%. HCPs reported that the PtDA supported choice awareness. Reported barriers for implementation were mainly increased workload and a lack of perceived benefits. The consultation analysis (n = 64) showed patients were offered a choice, but deliberation was lacking. Risk communication was generally adequate. Discussion: When the BCS-PtDA was used, patients were clearly given a choice regarding their post-treatment surveillance, but information provision and SDM application can be improved. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Evaluating patient participation in value‐based healthcare: Current state and lessons learned.
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Westerink, Henrike J., Garvelink, Mirjam M., van Uden‐Kraan, Cornelia F., Zouitni, Ouisam, Bart, Hans A. J., van der Wees, Philip J., and van der Nat, Paul B.
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PATIENT participation ,RESEARCH methodology ,INTERVIEWING ,VALUE-based healthcare ,COMPARATIVE studies ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,RESEARCH funding ,THEMATIC analysis - Abstract
Introduction: Value‐based healthcare (VBHC) focusses on increasing value for patients. Hospitals aim to implement VBHC via value improvement (VI) teams for medical conditions. To determine the patient's perspective on value, collective patient participation is important in these teams. We therefore evaluated the current state of patient participation in VI teams and share lessons learned. Methods: This mixed‐methods study was conducted at seven collaborating hospitals in the Netherlands. A questionnaire (the public and patient engagement evaluation tool) was tailored to the study's context, completed by VI team members (n = 147 from 76 different VI teams) and analysed with descriptive statistics. In addition, 30 semistructured interviews were held with VI team members and analysed through thematic analysis. Data were collected between February 2022 and January 2023 and were triangulated by mapping the quantitative results to the interview themes. Results: Thirty‐eight of the 76 included VI teams reported using a form of patient participation. Many respondents (71%) indicated a lack of a clear strategy and goal for patient participation. Multiple VI team members believed that specific knowledge and skills are required for patients to participate in a VI team, but this led to concerns regarding the representativeness of participating patients. Furthermore, while patients indicated that they experienced some level of hierarchy, they also stated that they did not feel restricted hereby. Lastly, patients were satisfied with their participation and felt like equal VI team members (100%), but they did mention a lack of feedback from the VI team on their input. Conclusion: The results imply the lack of full implementation of patient participation within VI teams. Guidelines should be developed that provide information on how to include a representative group of patients, which methods to use, how to evaluate the impact of patient participation, and how to give feedback to participating patients. Patient and Public Contribution: Two patient advisors were part of the research team and attended the research team meetings. They were involved as research partners in all phases of the study, including drafting the protocol (e.g., drafting interview guides and selecting the measurement instrument), interpreting the results and writing this article. [ABSTRACT FROM AUTHOR]
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- 2024
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4. The use of outcome data in patient consultations from the healthcare professionals' and patients' perspectives: A mixed methods study.
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Westerink, Henrike J., Bresser, Cato C., Garvelink, Mirjam M., van Uden-Kraan, Cornelia F., Zouitni, Ouisam, Bart, Hans A.J., van der Wees, Philip J., and van der Nat, Paul B.
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PATIENTS' attitudes , *MEDICAL personnel , *INFLAMMATORY bowel diseases , *PROSTATE cancer patients , *THEMATIC analysis - Abstract
To gain insight into healthcare professionals' (HCPs') perspectives on the use of outcome data in consultations and to understand which aggregated outcomes patients find important. This study had a mixed-methods design and consisted of two steps: 1. HCPs (n = 11) were interviewed about the use of outcome data in consultations. Thematic analysis was used for data analysis. 2. Patients with prostate cancer, lung cancer, and inflammatory bowel disease (IBD) completed questionnaires (n = 283) to identify important outcomes. Descriptive statistics were used for data analysis. HCPs indicated that aggregated outcome data are not routinely used in consultations. They pointed out various barriers to using outcome data, e.g., low response rates of PROMs, and suggested actions to address these barriers, including training of HCPs in outcome data usage. Patients rated the majority of aggregated outcomes as important, although preferences differed between the studied health conditions. Both HCPs and patients underscored the importance of discussing outcome data in consultations. Nevertheless, HCPs encountered several barriers to using outcome data. Furthermore, patients with different health conditions have somewhat different information needs. The study identified several actionable steps to enhance the collection and application of outcome data in consultations. • Aggregated outcome data are not routinely used in consultations • Patients rate the majority of aggregated outcomes as important information • Patients with different health conditions have somewhat different information needs • Healthcare professionals experience barriers to use outcome data in consultations • Multiple actions to increase use of outcome data in consultations were identified [ABSTRACT FROM AUTHOR]
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- 2024
- Full Text
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