1. A Delphi Panel Study for Public Education about Vascularized Composite Allograft Donation in the United States.
- Author
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Downey MC, Sidoti CN, Ferzola A, Anderson N, Sung HC, Van Pilsum Rasmussen SE, Vanterpool KB, Segev DL, Cooney CM, Kimberly LL, Warren DS, Johnson ID, Brandacher G, Gordon EJ, and Levan ML
- Subjects
- Humans, United States, Surveys and Questionnaires, Male, Female, Health Education, Adult, Middle Aged, Composite Tissue Allografts, Delphi Technique, Tissue and Organ Procurement
- Abstract
Introduction: Improving public awareness about the opportunity to become a vascularized composite allograft (VCA) donor is crucial to increasing access to organs. Prior research identified a need for comprehensive and comprehensible public education materials. A 2-round Delphi panel was conducted to garner US expert consensus on the topics and language to include in public education materials via an organ procurement organization-hosted website. Methods: The round 1 survey assessed the importance of educational topics and statements ( n = 19) using 5-point Likert scales. The round 2 survey asked experts to rate new and repeated educational topics ( n = 27). Open-ended comment boxes elicited experts' feedback and language revisions for educational statements. Responses were analyzed using descriptive statistics and rapid qualitative analysis. Findings: Eighteen experts responded to the round 1 survey and 15 to round 2. After round 2, 20 topics had mean ( M ) importance greater than neutral ( M > 3.00) and were retained in the educational materials. The 5 most important topics by mean Likert ratings were: consent process for donation ( M = 4.73), potential recipients ( M = 4.73), most common vascularized composite organs transplanted ( M = 4.47), purpose ( M = 4.47), and definition ( M = 4.47). Seven themes emerged from experts' open-ended comments about the importance and language of educational statements. Conclusions: Delphi panel findings identified expert-endorsed topics and educational statements for public education about vascularized composite organ donation via an educational website. Future research should assess the website's impact on public knowledge of VCA donation., Competing Interests: Declaration of Conflicting InterestsThe authors declared the following potential conflicts of interest with respect to the research, authorship, and/or publication of this article: Dorry L. Segev discloses consulting for AstraZeneca, CareDx, Moderna Therapeutics, Novavax, Regeneron, and Springer Publishing. Dorry L. Segev discloses being a speaker/honorarium for AstraZeneca, CareDx, Houston Methodist, Northwell Health, Optum Health Education, Sanofi, and WebMd. Gerald Brandacher discloses being a medical advisor for X-Therma and for Ossium Health. The other authors declared no potential conflicts of interest with the research, authorship, and/or publication of this article.
- Published
- 2024
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