33 results
Search Results
2. Some religious, myths, beliefs, and cultural dispositions as contributors to child sexual abuse in Zimbabwe.
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Muridzo, Noel Garikai, Simbine, Samuel Lisenga, and Chigangaidze, Robert Kudakwashe
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PREVENTION of child sexual abuse , *CHILD sexual abuse risk factors , *RISK assessment , *CHILD welfare , *QUALITATIVE research , *CULTURE , *INTERVIEWING , *SOCIOECONOMIC factors , *JUDGMENT sampling , *CHILD sexual abuse , *SOCIAL case work , *RITES & ceremonies , *RELIGION , *SUPERSTITION , *RESEARCH methodology - Abstract
While on paper Zimbabwe has a comprehensive child protection legal framework, the occurrence of child sexual abuse (CSA) is high. Drawing from findings of a qualitative study, a case study design, and a research population consisting of a forum of organizations providing CSA interventions: the Victim Friendly System, this paper presents how some cultural myths, cultural practices, cultural rites, and religious practices may contribute to CSA in Zimbabwe. Purposive sampling was used to select 38 professional working in the VFS, 4 key informants, 17 VFS monthly meeting minutes, and 300 court files of tried and sentenced CSA cases from Harare and Gokwe. CSA is a gross child and human rights violation that places some religions, myths, beliefs, and cultural practices at crossroads with social work principles. Various social work interventions are suggested as ways to navigate the paradox: shaped by cultural, traditional, religious, and mythical factors contributing to CSA and legal frameworks to address CSA. [ABSTRACT FROM AUTHOR]
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- 2024
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3. A qualitative exploration of speech–language pathologists' approaches in treating spoken discourse post‐traumatic brain injury.
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Hoffman, Rhianne, Spencer, Elizabeth, and Steel, Joanne
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SPEECH therapy , *MEDICAL logic , *MEDICAL protocols , *QUALITATIVE research , *INTERVIEWING , *CONTENT analysis , *JUDGMENT sampling , *PHYSICIAN practice patterns , *RESEARCH methodology , *SOCIAL skills , *BRAIN injuries , *DISEASE complications - Abstract
Background: Spoken discourse impairments post‐traumatic brain injury (TBI) are well‐documented and heterogeneous in nature. These impairments have chronic implications for adults in terms of employment, socializing and community involvement. Intervention delivered by a speech–language pathologist (SLP) is recommended for adults with discourse impairments post‐TBI, with an emphasis on context‐sensitive treatment. The developing evidence base indicates a wide array of treatment components for SLPs to evaluate and implement within their clinical practice. However, there is limited insight into how SLPs are currently treating discourse impairments and the rationales informing clinical practice. Aims: To explore the under‐researched area of clinical practice for spoken discourse interventions with adults post‐TBI, including treatment components and clinician rationales, and to contribute towards a shared knowledge base. Methods & Procedures: Participants were recruited via purposeful sampling strategies. Six SLPs participated from Australia, the United Kingdom (UK) and the United States (US). Semi‐structured interviews were conducted via Zoom. Interviews were manually transcribed, coded and analysed via a qualitative content analysis approach. Outcomes & Results: :Participants described discourse treatment practices across various settings and TBI recovery stages. Results indicated that SLPs used numerous treatment activities, resources and outcome measures. Intervention approaches primarily targeted social communication skills, strategy development/utilization and insight‐building. Clinical practice conformed to available guidelines where possible, reflected best practice and incorporated components of the research literature. Participants reported using individualized treatment activities aimed at addressing client‐specific factors and rationales prioritized tailored, context‐sensitive and goal‐directed treatment. Conclusions & Implications: This study provided insight into a previously under‐researched area. It highlighted a wide range of treatment activities and factors informing current SLPs' treatment of spoken discourse impairment post‐TBI. Overall, clinical practice and rationales discussed in this study were aligned with best practice and emphasized a contextualized, individualized approach to discourse treatment across service settings and stages of recovery. Participants identified areas requiring further support, including access to training, resources and research, and the challenge of finding suitable outcome measures. Further investigation into discourse management post‐TBI, from initial assessment to outcome measurement, may help inform clinical decision‐making and the transfer of research to practice. WHAT THIS PAPER ADDS: What is already known on the subject: Spoken discourse impairments occur in dialogic and monologic productions post‐TBI. Interventions targeting both genres are detailed within the research literature; however, studies exploring clinical practice and decision‐making for discourse interventions post‐TBI are limited. What this paper adds to existing knowledge: This study provides new insight into the current treatment targets, activities, resources and outcome measures employed by clinicians supporting adults with discourse impairment post‐TBI. It details the factors that influence clinical decision‐making for this caseload and identifies an emphasis on client priorities and the value of clinician experience. What are the potential or actual clinical implications of this work?: This study identifies the broad and complex considerations required to deliver context‐sensitive discourse intervention post‐TBI. It indicates the need for an in‐depth review from assessment to treatment outcomes to better understand and support this area of practice and to direct future research. This study also highlighted the role of clinician experience in discourse intervention and the value of sharing clinical knowledge and resources within and across the profession to support all levels of clinician experience. [ABSTRACT FROM AUTHOR]
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- 2024
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4. Stakeholder views on cognitive communication assessment and intervention for a person living independently in the community with severe traumatic brain injury.
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Howell, Susan, Hoskin, Joanna, Eaton, Debbie, Holloway, Mark, and Varley, Rosemary
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REHABILITATION for brain injury patients , *HEALTH services accessibility , *INDEPENDENT living , *INTERVIEWING , *SEVERITY of illness index , *JUDGMENT sampling , *COMMUNICATIVE disorders , *THEMATIC analysis , *COGNITION disorders , *RESEARCH methodology , *QUALITY of life , *BRAIN injuries , *HEALTH care teams , *SPEECH therapy , *WELL-being , *DISEASE complications - Abstract
Background: Cognitive communication disorder (CCD) following traumatic brain injury (TBI) is well documented and these communication problems impede successful re‐integration into community living. While there is growing evidence for intervention to both detect and treat the impact of these deficits across the rehabilitation continuum, there are barriers to accessing services. Cognitive communication impairments may be missed because the person can talk, and this may mask the subtle but debilitating impact of a CCD. Referral to a speech and language therapist (SLT) may be overlooked or not timely, which prevents the individual accessing evidence‐based interventions. Inadequate treatment provision and an under‐ or overestimation of communication capability can potentially undermine the effectiveness of wider team assessment and intervention. Aims: To report stakeholder views on specialist SLT input for CCD within a multidisciplinary team intervention for a community‐dwelling individual with severe TBI. The investigation explored perspectives on understanding of CCD, on practice and on outcomes, in order to inform professional groups on perceived impacts of the evidence‐to‐practice gap. Methods and Procedures: A semi‐structured interview methodology was employed with 11 stakeholder participants involved in a single case. Data were evaluated using a thematic framework method. Themes were inductively derived from the stakeholder narratives. Outcomes: Stakeholders reported the following outcomes from specialist SLT input for CCD within a collaborative team approach: improved engagement with rehabilitation and support teams, improved health‐related quality of life and well‐being, and increased client participation in community activities of personal relevance. Stakeholders also reported inequities in wider service provision where limitations in professional understanding of CCD and knowledge of best practice recommendations preclude access to specialist SLT services. Conclusions: CCDs are under‐recognised and this can have a devastating effect on people with CCD and on those around them. Stakeholder reports provide evidence for the effectiveness of SLT practice recommendations for the treatment of CCD following TBI. They also provide additional evidence of persisting barriers to accessing treatment. Future research to explore ways to close this evidence‐to‐practice gap is required. What This Paper Adds: What is already known on this subject: Cognitive communication difficulties are a well‐documented consequence of TBI. There is evidence for the effectiveness of person‐centred interventions for CCD across the recovery continuum. International evidence‐based practice recommendations are in place for CCD assessment and management. Barriers to accessing SLT expertise for CCD have previously been reported. What this paper adds to existing knowledge: This investigation explores the views of a diverse group of stakeholders involved in a single case of a community‐dwelling individual with severe TBI. Stakeholders report positive real‐world outcomes from SLT interventions for CCD within a coordinated multidisciplinary rehabilitation team. Stakeholder reports also indicate inequities in wider service provision and CCD knowledge gaps amongst professional groups providing rehabilitation services for people with TBI. What are the potential or actual clinical implications of this work?: CCDs are under‐recognised, with devastating effect for people with CCD and those around them. These findings underscore the importance of raising professional awareness of CCD and best practice recommendations, in order to improve access to SLT expertise for people with CCD following TBI. [ABSTRACT FROM AUTHOR]
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- 2024
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5. Exploring the experiences of a person with dementia and their spouse who attended a telehealth music therapy programme: Two case examples from Ireland.
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Kelly, Lisa, Kenny, Niamh, McGlynn, Cathy, Richardson, Ita, and Moss, Hilary
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FAMILIES & psychology , *SPOUSES , *MUSIC therapy , *INTERVIEWING , *QUESTIONNAIRES , *JUDGMENT sampling , *TELEMEDICINE , *FAMILY attitudes , *EXPERIENCE , *THEMATIC analysis , *RESEARCH , *RESEARCH methodology , *RURAL conditions , *DEMENTIA , *PHENOMENOLOGY , *PSYCHOLOGY of caregivers , *PATIENTS' attitudes , *DEMENTIA patients - Abstract
There is an increased need for accessible psychosocial interventions that support both people with dementia and their spouses. Recent research demonstrates the benefits of music therapy and caregiver-delivered music therapy for this population. This paper contributes to the emerging evidence base on telehealth music therapy for people with dementia outside of a COVID-19 era when in-person services were available. This exploratory phenomenological study explores the experiences of two couples who attended a six-week telehealth music therapy programme via two detailed case examples. Online semi-structured interviews with each couple were conducted pre and post intervention and analysed using Interpretative Phenomenological Analysis. Three shared themes emerged from the data analysis including (1) social isolation and lack of confidence linked to dementia diagnosis is worsened in rural locations, (2) song singing and song writing enables us to revisit happy memories, and (3) telehealth delivery increases access due to geographical location. The findings are presented in a narrative case study format to provide rich detailed descriptions of the music therapy programme and to illuminate the experiences of the participants. In both examples, telehealth delivery expanded access to music therapy (which was otherwise unavailable) and stimulated reminiscence which in turn encouraged meaningful engagement between the couple. The delivery of music therapy via telehealth, alongside in-person delivery, has the potential to expand access to music therapy to those who may not have access to or are no longer able to attend community support services due to geographical location, increased cognitive decline or reduced mobility. The successful delivery of telehealth music therapy is dependent on several factors including digital literacy, access to appropriate technological devices, caregiver support and level of cognitive decline. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Understanding differential reductions in undernutrition among districts in Rwanda through the perspectives of mid‐level and community actors on policy commitment and policy coherence.
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Iruhiriye, Elyse, Frongillo, Edward A., Olney, Deanna K., Niyongira, Emmanuel, Nanama, Simeon, Blake, Christine E., Rwibasira, Eugene, and Mbonyi, Paul
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COMMUNITY health services , *POLICY sciences , *RISK assessment , *MALNUTRITION , *QUALITATIVE research , *RESEARCH funding , *HEALTH policy , *INTERVIEWING , *JUDGMENT sampling , *DESCRIPTIVE statistics , *THEMATIC analysis , *RESEARCH methodology , *GROWTH disorders , *PRACTICAL politics , *COMPARATIVE studies , *DISEASE risk factors , *DISEASE complications - Abstract
Understanding the drivers of improvements in child undernutrition at only the national level can mask subnational differences. This paper aimed to understand the contributions of factors in the enabling environment to observed differences in stunting reduction between districts in Rwanda. In 2017, we conducted 58 semi‐structured interviews with mid‐level actors (n = 38) and frontline workers (n = 20) implementing Rwanda's multi‐sectoral nutrition policy in five districts in which stunting decreased (reduced districts) and five where it increased or stagnated (non‐reduced districts) based on Rwanda's 2010 and 2014/15 Demographic and Health Surveys. Mid‐level actors are government officials and service providers at the subnational level who represent the frontline of government policy. Interviews focused on political commitment to and policy coherence in nutrition, and contributors to nutrition changes. Responses were coded to capture themes on the changes and challenges of these topics and compared between reduced and non‐reduced districts. Descriptive statistics described district characteristics. Political commitment to nutrition was high in both reduced and non‐reduced districts. Respondents from reduced districts were more likely to define commitment to nutrition as an optimal implementation of policy, whereas those from non‐reduced districts focused more on financial commitment. Regarding coherence, respondents from reduced compared to non‐reduced districts were more likely to report the optimal implementation of multi‐sectoral nutrition planning meetings, using data to assess plans and progress in nutrition outcomes and integration of nutrition into the agriculture sector. In contrast, respondents from non‐reduced districts more often reported challenges in their relationships with national‐level stakeholders and nutrition and/or monitoring and evaluation capacities. Enhancing the integration of nutrition in different sectors and improving mid‐level actors' capacity to plan and advocate for nutrition programming may contribute to reductions in stunting. Key messages: Understanding the lens through which policy implementers at subnational levels view multi‐sectoral nutrition strategies and their role in these strategies provides useful information on the facilitators and constraints of implementation for nutrition actions.Differences in leadership and responsiveness to prioritise nutrition at the subnational levels are important in decentralised governance systems where responsibilities in nutrition planning, coordination and implementation shift to mid‐level actors.Mainstreaming nutrition responsibilities across sectors and administrative levels requires investments in capacities to plan, monitor and advocate for multi‐sectoral nutrition programming, including for mid‐level actors. [ABSTRACT FROM AUTHOR]
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- 2024
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7. What aspects of health and wellbeing are most important to parent carers of children with disabilities?
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McGlinchey, Caomhan, Harniess, Phillip, Borek, Aleksandra J., Garrood, Alice, McDonald, Annabel, Boyle, Fleur, Logan, Stuart, and Morris, Christopher
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MENTAL health , *HEALTH status indicators , *QUALITATIVE research , *RESEARCH funding , *INTERVIEWING , *PARENT attitudes , *INTERNET , *JUDGMENT sampling , *THEMATIC analysis , *RESEARCH methodology , *PARENTS of children with disabilities , *PSYCHOLOGY of caregivers , *HEALTH promotion , *PSYCHOSOCIAL factors , *CAREGIVER attitudes , *WELL-being - Abstract
Introduction: Parent carers of children with special educational needs or disabilities are at risk of poorer health and wellbeing outcomes because of the distinct and challenging circumstances they face. Evaluations of interventions promoting the health of parent carers should focus on measuring the aspects of health and wellbeing which are most relevant to this group. As part of a programme of research on parent carer‐focused interventions, this study aimed to understand which aspects of health and wellbeing are perceived by parent carers as most meaningful and important. Methods: A qualitative study using semistructured online interviews was conducted. A purposive sample of parent carers was interviewed about relevant health and wellbeing outcomes. Transcripts were analysed thematically. Results: Thirty parent carers were interviewed, 19 of whom had experienced a health‐promoting intervention, either as participants (n = 14) or facilitators (n = 5). Three main themes were identified: 'self, identity and beliefs'; 'social connections and support' and 'health‐promoting practices and outcomes.' Each theme encompassed the challenges participants faced, and the changes that helped them overcome these challenges. 'Self‐identity' challenges focused on the overwhelming nature of the parental care role and the emotional impact of this. Changes were brought about by developing a positive mindset, increasing confidence, and reconnecting with aspects of their identity which were important to them before they became parent carers. Challenges related to 'social connections' reflected parent carers' isolation. Change was brought about through increased peer support and peer interactions. Parent carers experienced challenges in terms of 'health‐promoting activities' because they lacked free time and experienced poor physical health. Changes were brought about by engagement in health‐promoting activities of various kinds. Conclusion: Parent carers view health and wellbeing in terms of overcoming the common challenges they face as a group. These challenges reflect the ways in which their physiological and psychological needs are often unmet. Researchers interested in measuring parent carer health and wellbeing should consider the specific challenges this group face, as well as theoretical frameworks which can make sense of these challenges, such as self‐determination theory. Patient or Public Contribution: Our team carries out patient and public involvement (PPI) through a Family Faculty group facilitated by a Family Involvement Co‐ordinator (A. McD.) who is herself a parent carer. A study‐specific PPI working group was established which included members of the Family Faculty. The PPI group advised on various aspects of the research as reported in the paper. The manuscript was co‐authored by the team's Family Involvement Co‐ordinator (A. McD.). [ABSTRACT FROM AUTHOR]
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- 2024
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8. Workforce training needs to address social and emotional wellbeing in home-based Aboriginal and Torres Strait Islander aged care.
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Parrella, Adriana, Zagler, Jonathon, D'Antoine, Matilda, Brodie, Tina, Smith, Kate, Watts, Aunty Martha, Ieremia, Tameeka, Aitken, Graham, Brown, Alex, and Pearson, Odette
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ELDER care , *HOME care services , *RESEARCH funding , *QUALITATIVE research , *DESCRIPTIVE statistics , *JUDGMENT sampling , *TORRES Strait Islanders , *THEMATIC analysis , *RESEARCH methodology , *NEEDS assessment , *SOCIAL support , *DATA analysis software , *LABOR supply , *WELL-being - Abstract
Objective: To explore the training needs of the home care workforce in supporting the social and emotional wellbeing (SEWB) of Aboriginal and Torres Strait Islander peoples receiving aged care services through the Home Care Package (HCP) Program. Methods: A mixed-methods design including (1) a focus group and interview with coordinators of HCP Program services for Aboriginal and Torres Strait Islander peoples across metropolitan and rural South Australia in April and June 2022, and (2) a desktop review of training, professional development opportunities and resources for existing and pre-entry workforce addressing the SEWB of Aboriginal and Torres Strait Islander peoples in aged care across the Vocational Education Training and higher education sectors in South Australia, the Australian Indigenous HealthInfoNet, the Department of Health and Aged Care website and aged care email alerts between December 2021 and September 2022. Results: Five themes representing workforce training needs were identified: cultural safety, trauma-informed care, case management, compliance with funding rules and preferred formats for training. The desktop review identified a paucity of formal training, professional development and resources within the context of addressing the SEWB of Aboriginal and Torres Strait Islander peoples in aged care. Conclusions: These findings suggest that ongoing practice-based professional development learning opportunities are needed within organisations to enhance peer-learning and support. These need to be available together with dedicated formal training programs and practical resources on meeting Aboriginal and Torres Strait Islander peoples' SEWB in aged care. What is known about the topic? Supporting social and emotional wellbeing is an important aspect of delivering quality aged care for Aboriginal and Torres Strait Islander peoples. What does this paper add? Insights into workforce training needs which support the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples in home-based aged care. What are the implications for practitioners? Ongoing practice-based learning opportunities, training and resources are needed to enhance peer-learning and support workforce in supporting Aboriginal and Torres Strait Islander peoples' social and emotional wellbeing in aged care. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Health systems model for chronic disease secondary prevention in rural and remote areas – Chronic disease: Road to health.
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Field, Pat, Franklin, Richard C., Barker, Ruth, Ring, Ian, and Leggat, Peter
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PREVENTION of chronic diseases , *HEALTH services accessibility , *COMMUNITY health services , *PATIENT education , *QUALITATIVE research , *SOCIAL determinants of health , *RESEARCH funding , *MEDICAL care , *STATISTICAL sampling , *INTERVIEWING , *HOSPITALS , *JUDGMENT sampling , *TELEMEDICINE , *THEMATIC analysis , *RURAL conditions , *MATHEMATICAL models , *RESEARCH methodology , *THEORY , *CASE studies , *SOCIAL support , *QUALITY assurance , *HEALTH promotion , *CARDIAC rehabilitation , *INDIGENOUS Australians - Abstract
Objectives: Cardiac rehabilitation (CR) provides evidence-based secondary prevention for people with heart disease (HD) (clients). Despite HD being the leading cause of mortality and morbidity, CR is under-utilised in Australia. This research investigated healthcare systems required to improve access to CR in rural and remote areas of North Queensland (NQ). Methods: A qualitatively dominant case study series to review management systems for CR in rural and remote areas of NQ was undertaken. Data collection was via semi-structured interviews in four tertiary hospitals and four rural or remote communities. An audit of discharge planning and CR referral, plus a review of community-based health services, was completed. An iterative and co-design process including consultation with healthcare staff and community members culminated in a systems-based model for improving access to CR in rural and remote areas. Results: Poorly organised CR systems, poor client/staff understanding of discharge planning and low referral rates for secondary prevention, resulted in the majority of clients not accessing secondary prevention, despite resources being available. Revised health systems and management processes were recommended for the proposed Heart: Road to health model, and given common chronic diseases risk factors it was recommended to be broadened into Chronic disease: Road to health. Conclusion: A Chronic disease: Road to health model could provide effective and efficient secondary prevention for people with chronic diseases in rural and remote areas. It is proposed that this approach could reduce gaps and duplication in current healthcare services and provide flexible, client-centred, holistic, culturally responsive services, and improve client outcomes. What is known about the topic? Cardiac rehabilitation is known to improve health outcomes and reduce hospitalisations, but referrals and attendance are low (30%). What does this paper add? A revised systems-based model for improved access to secondary prevention for people with heart and related chronic diseases in rural and remote areas of North Queensland is proposed: Chronic disease: Road to health. What are the implications for practitioners? A functional system from hospitalisation to local healthcare services has been designed to improve access to secondary prevention. Staff require support and education to improve skills, better manage care and improve job satisfaction. [ABSTRACT FROM AUTHOR]
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- 2024
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10. Humor: A Grief Trigger and Also a Way to Manage or Live With Your Grief.
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Wilson, Donna M., Knox, Michelle, Banamwana, Gilbert, Brown, Cary A., and Errasti-Ibarrondo, Begoña
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WIT & humor , *QUALITATIVE research , *DEATH , *INTERVIEWING , *PSYCHOLOGICAL adaptation , *JUDGMENT sampling , *FAMILY relations , *BEREAVEMENT , *RESEARCH methodology , *GRIEF - Abstract
In 2020–2021, a qualitative study was undertaken using an interpretive description methodology to identify what triggers grief in the first 2 years following the death of a beloved family member, and to gain other helpful insights about grief triggers from bereaved Canadian adult volunteers. In that study, a purposive sampling method was used to select 10 bereaved Canadian adult volunteers for in-depth, semi-structured interviews. This paper reports on the humor findings, as revealed to be a particularly complex grief trigger for many participants, as well as a periodic way for most to manage or live with their grief. Participant quotes and an extended discussion are included to illustrate the importance of these humor findings in relation to grief, and to inform bereaved people, bereavement service providers, and the general public about both helpful aspects and some cautionary considerations about humor. [ABSTRACT FROM AUTHOR]
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- 2024
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11. Developing a research tool to detect iatrogenic adverse events in psychiatric health care by involving service users and health professionals.
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Okkenhaug, Arne, Tritter, Jonathan Q., and Landstad, Bodil J.
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IATROGENIC diseases , *RISK assessment , *CONSENSUS (Social sciences) , *FOCUS groups , *CONTROL (Psychology) , *MEDICAL errors , *PATIENT safety , *RESEARCH funding , *RESEARCH methodology evaluation , *INTERVIEWING , *JUDGMENT sampling , *CONTINUUM of care , *SOUND recordings , *ATTITUDES of medical personnel , *RESEARCH methodology , *PSYCHIATRIC hospitals , *ADVERSE health care events , *PSYCHIATRIC somatic therapies , *PATIENTS' attitudes , *DISEASE risk factors - Abstract
Accessible Summary: What is known on the subject: Most health professionals working in psychiatric care will experience adverse events (AE) such as service user suicide or violence, during their careerNorway lacks measures to capture potential iatrogenic injuries, such as risk assessment measures, to evaluate patient records for AEs in both inpatient and outpatient psychiatric clinics in hospitals What the paper adds to existing knowledge: We have described an approach to the validation of a research tool between different national contexts; a process that went beyond language translationWe have incorporated the understanding of health professionals and service users; to bring together the lifeworld of the patient with the professional definition of AEs, triggers and risk areas of AEs in a psychiatric context. The service users' experiences resulted in modifications to the tool. What are the implications for nurses: Applying the 'Global Trigger Tool—Psychiatry' in Norway and Sweden can help mental health nurses to prevent iatrogenic harm and reduce the occurrence of AEs through the identification of potential triggers.Implementing 'Global Trigger Tool—Psychiatry' might help mental health nurses to improve patient safety in Norway and Sweden. Introduction: There is little consensus on cross‐cultural and cross‐national adaptation of research instruments. Aim/Question: To translate and validate a Swedish research tool (GTT‐P) to detect iatrogenic adverse events in psychiatric health care by involving service users and health professionals in the process. Method: The GTT‐P, designed to identify events in patient records that were triggers for adverse events, was translated to Norwegian using a cross‐cultural adaptation approach. This involved two focus groups with clinical staff, one of which involved service users, and a joint discussion at a Dialogue Conference to generate consensus on the definition of the triggers of potential adverse events identifiable in patient records. Results: We highlight both the differences and commonalities in defining the nature of risks, the adverse events and the triggers of such events. The Dialogue Conference resulted in three modifications of the tool, based on service users' experiences. Service user involvement and co‐production was essential for both the translation and adaptation of the research instrument. Discussion: We have described an approach to the validation of a research tool between different national contexts; a process that went beyond language translation. This approach enables a more nuanced understanding of potential risks within a psychiatric context as it engages differences in the care delivery. Applying the GTT‐P in hospital‐based psychiatric care might help to identify processes that need to be changed in order to promote patient safety and a safer work environment for mental health nurses. Implications for practice: When translating and validating the GTT‐P from Swedish to Norwegian, we have considered the knowledge and experiences of both service users and health professionals. The application of the GTT‐P can promote greater patient safety in hospital settings. [ABSTRACT FROM AUTHOR]
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- 2024
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12. Patient perspective on observation methods used in seclusion room in an Irish forensic mental health setting: A qualitative study.
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Shetty, Shobha Rani, Burke, Shauna, Timmons, David, Kennedy, Harry G., Tuohy, Mary, and Terkildsen, Morten Deleuran
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QUALITATIVE research , *RESEARCH funding , *INTERVIEWING , *SCIENTIFIC observation , *SECLUSION of psychiatric hospital patients , *FORENSIC psychology , *RETROSPECTIVE studies , *JUDGMENT sampling , *SOUND recordings , *THEMATIC analysis , *MEDICAL records , *ACQUISITION of data , *RESEARCH methodology , *PHENOMENOLOGY , *PATIENTS' attitudes - Abstract
Accessible Summary: What is known on the subject?: Nurses' observation of patients in seclusion is essential to ensure patient safety.Patient observation in seclusion assists nurses in adhering to the requirements of mental health legislation and hospital policy.Direct observation and video monitoring are widely used in observing patients in seclusion.Coercive practices may cause distress to patient‐staff relations. What the paper adds to existing knowledge?: We add detailed information on specific observation methods in seclusion and compare them from the perspective of patients.Nurses communicating with patients ensures relational contact and that quality care is provided to patients even in the most distressed phase of their illness.Providing prior information to patients on observation methods in seclusion and the need for engaging patients in meaningful activities, while in seclusion are emphasized.Observation via camera and nurses' presence near the seclusion room made patients feel safe and gave a sense of being cared for in seclusion.Pixellating the video camera would give a sense of privacy and dignity. What are the implications for practice?: The overarching goal is to prevent seclusion. However, when seclusion is used as a last resort to manage risk to others, it should be done in ways that recognize the human rights of the patient, in ways that are least harmful, and in ways that recognize and cater to patients' unique needs.A consistent approach to relational contact and communication is essential. A care plan must include patient's preferred approach for interacting while in seclusion to support individualized care provision.Viewing panels (small window on the seclusion door) are important in establishing two‐way communication with the patient. Educating nurses to utilize them correctly helps stimulate relational contact and communication during seclusion to benefit patients.Engaging patients in meaningful activities when in seclusion is essential to keep them connected to the outside world. Depending on the patient's presentation in the seclusion room and their preferences for interactions, reading newspapers, poems, stories, or a book chapter aloud to patients, via the viewing panel could help ensure such connectedness.More focus should be placed on providing communication training to nurses to strengthen their communication skills in caring for individuals in challenging care situations.Patient education is paramount. Providing prior information to patients using a co‐produced information leaflet might reduce their anxiety and make them feel safe in the room.When using cameras in the seclusion room, these should be pixelated to maintain patients' privacy. Introduction: A lack of research investigating the specific role that various observational techniques may have in shaping the therapeutic relations in mental health care during seclusion warranted this study. Aim: The aim of the study was to explore patients' experience of different methods of observation used while the patient was in seclusion. Method: A retrospective phenomenological approach, using semi‐structured interviews, ten patients' experiences of being observed in the seclusion room was investigated. Colaizzi's descriptive phenomenological method was followed to analyse the data. Results: Communicating and engaging patients in meaningful activities can be achieved via the viewing panel. The camera was considered essential in monitoring behaviour and promoting a sense of safety. Pixelating the camera may transform patient view on privacy in seclusion. Discussion: The mental health services must strive to prevent seclusion and every effort should be made to recognise the human rights of the patient. The study reveals numerous advantages when nurses actively engage in patient communication during the process of observation. Implications for Practice: Different observation methods yield different benefits; therefore, staff education in using these methods is paramount. Empowering the patient with prior information on seclusion, engaging them in meaningful activities and proper documentation on patient engagement, supports the provision of individualised care in seclusion. [ABSTRACT FROM AUTHOR]
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- 2024
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13. Using ChatGPT to promote research competency: English as a Foreign Language undergraduates' perceptions and practices across varied metacognitive awareness levels.
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Abdelhalim, Safaa M.
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SELF-evaluation , *PEARSON correlation (Statistics) , *UNDERGRADUATES , *ARTIFICIAL intelligence , *INTERVIEWING , *QUESTIONNAIRES , *STATISTICAL sampling , *JUDGMENT sampling , *MANN Whitney U Test , *DESCRIPTIVE statistics , *ENGLISH as a foreign language , *THEMATIC analysis , *PROFESSIONAL employee training , *RESEARCH methodology , *STUDENT attitudes , *DATA analysis software , *COGNITION , *REGRESSION analysis - Abstract
Background: Introducing new technologies in education sparks debates, disrupting traditional practices, and requiring teacher adaptation. ChatGPT is an example. Research explores its benefits and concerns in education, with recommendations for classroom use. Nevertheless, limited evidence supports ChatGPT as a tool for supporting English as a Foreign Language (EFL) students' research competency. Moreover, while the literature primarily focuses on the perspectives of scholars and teachers, it is essential to incorporate students' viewpoints in order to maximize the potential of this technology. Objectives: The present study investigated EFL undergraduates' perceptions and practices of ChatGPT as a tool for promoting their research competency. Additionally, the study examined the potential influence of metacognitive awareness (MA) levels in this context. Methods: The study utilized a mixed‐method research design, collecting quantitative and qualitative data from 27 EFL undergraduates (12 with low MA and 15 with high MA) over one semester. Data sources included a self‐report questionnaire, self‐study log, and semi‐structured interviews. Results and conclusions: Quantitative analysis showed significant differences between low and high MA groups in their perceptions of ChatGPT (U = 37.500, Z = 2.570). Regression analysis revealed a positive correlation between MA scores and students' perceptions and practices of ChatGPT. Qualitative analysis revealed diverse perceptions and practices of ChatGPT between the high MA and low MA groups, showcasing behaviours ranging from replication to using ChatGPT as a thought‐stimulating and supportive tool, accessing supplementary information, and seeking guidance. Key factors for effective ChatGPT use included prompt formulation, systematic thinking, self‐regulation strategies, and trust in AI. Lay Description: What is currently known about this topic: Research competency and metacognitive awareness are important for EFL undergraduates.Technology has been explored for promoting research competency.ChatGPT is used as a learning tool in EFL instruction contexts. What does this paper add: It provides a deeper understanding of the practical application of AI tools like ChatGPT for developing research competency among EFL students.It enhances understanding of metacognition's role in successful learning in digital environments by exploring MA's impact on using ChatGPT for research purposes. Implications for practice/policy: Provide explicit instructions and guidelines for EFL students to effectively use ChatGPT for research competency, emphasizing clear prompt design and fostering responsible use through critical thinking and awareness of biases and limitations.Enhance EFL students' metacognitive awareness through scaffolding, explicit instruction, and activities.Implement assessments and monitoring mechanisms to track metacognitive development and guide instructional interventions.Offer professional development opportunities for EFL teachers to enhance their understanding and skills in integrating AI tools into research instruction and other EFL aspects. [ABSTRACT FROM AUTHOR]
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- 2024
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14. Examining Healthcare Professionals’ Communication Around Decision-Making with Internet-Informed Patients.
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Walker, Lauren and Sillence, Elizabeth
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COMMUNICATIVE competence , *INTERNET searching , *PATIENT compliance , *QUALITATIVE research , *SELF-efficacy , *HEALTH , *INTERVIEWING , *DECISION making , *INFORMATION resources , *JUDGMENT sampling , *DESCRIPTIVE statistics , *THEMATIC analysis , *RESEARCH methodology , *PATIENT-professional relations , *ONLINE information services , *CASE studies , *HONESTY - Abstract
In the last ten years the use of the internet as a health resource has transformed, and while patients increasingly consult online resources for health decision-making, less is known about how healthcare professionals (HCPs) currently discuss decision-making with internet informed patients (IIPs). In this paper we examine how HCPs perceive IIPs and specifically how bringing online information into appointments can prompt different communicative strategies around decision-making. Ten HCPs with experience working across different healthcare roles, took part in semi-structured interviews and discussed their interactions with IIPs around decision-making. Vignettes based on descriptions of real patients bringing online health information to their HCPs were used to prompt further discussion. The analysis identified two themes in relation to communication: (i) being honest about information sources and (ii) from compliance to coconstruction: improving communication around decision-making. HCPs were overwhelmingly positive toward IIPs and encouraged patients to be transparent about their online searching to understand their motivations, priorities, and concerns. Although compliance remains part of the narrative, HCPs recognized practical ways in which discussing online health information could improve HCP-patient communication around shared decision-making. We discuss the findings in relation to early work on communicative strategies between HCP’s and patients bringing resources to their consultations. We argue that for HCPs the concept of the internet as a provider of health information is no longer seen as inherently damaging or risky. There is growing acceptance of pre-consultation internet searching with the caveat that any information sourced online should inform rather than dictate decision-making with HCPs. [ABSTRACT FROM AUTHOR]
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- 2024
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15. Implementation of a crisis resolution team service improvement programme: a qualitative study of the critical ingredients for success.
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Lamb, Danielle, Milton, Alyssa, Forsyth, Rebecca, Lloyd-Evans, Brynmor, Akther, Syeda, Fullarton, Kate, O'Hanlon, Puffin, Johnson, Sonia, and Morant, Nicola
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HOME care services , *TEAMS in the workplace , *HUMAN services programs , *QUALITATIVE research , *FOCUS groups , *INTERPROFESSIONAL relations , *RESEARCH funding , *INTERVIEWING , *EVALUATION of human services programs , *CRISIS intervention (Mental health services) , *JUDGMENT sampling , *DESCRIPTIVE statistics , *THEMATIC analysis , *ATTITUDES of medical personnel , *RESEARCH methodology , *COMMUNICATION , *QUALITY assurance , *DATA analysis software , *STAKEHOLDER analysis - Abstract
Background: Crisis Resolution Teams (CRTs) offer home-based care for people in mental health crisis, as an alternative to hospital admission. The success of CRTs in England has been variable. In response to this, the CRT Optimization and RElapse prevention (CORE) study developed and trialled a 12-month Service Improvement Programme (SIP) based on a fidelity model. This paper describes a qualitative evaluation of the perspectives of CRT staff, managers, and programme facilitators. We identify barriers and facilitators to implementation, and mechanisms by which service improvements took place. Methods: Managers and staff from six purposively sampled CRTs were interviewed, as well as six facilitators who were employed to support the implementation of service improvement plans. Semi-structured focus groups and individual interviews were conducted and analysed using thematic analysis. Findings: A majority of participants viewed all components of the SIP as helpful in improving practice, although online resources were under-used. Perceived barriers to implementation centred principally around lack of staff time and ownership. Support from both senior staff and facilitators was essential in enabling teams to undertake the work associated with the SIP. All participating stakeholder groups reported that using the fidelity model to benchmark their CRT work to best practice and feel part of a 'bigger whole' was valuable. Conclusion: CRT staff, managers and programme facilitators thought that a structured service improvement programme helped to increase fidelity to a best practice model. Flexibility (from all stakeholders) was key to enable service improvement actions to be manageable within time- and resource-poor teams. [ABSTRACT FROM AUTHOR]
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- 2024
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16. Pathways, journeys and experiences: Integrating curricular activities related to social accountability within an undergraduate medical curriculum.
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Dubé, Tim V., Cumyn, Annabelle, Fourati, Mariem, Chamberland, Martine, Hatcher, Sharon, and Landry, Michel
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CURRICULUM , *MEDICAL education , *EXECUTIVES , *QUALITATIVE research , *RESEARCH funding , *EVALUATION of human services programs , *CONSUMER attitudes , *STATISTICAL sampling , *SOCIAL responsibility , *COMMUNITIES , *JUDGMENT sampling , *MEDICAL students , *EXPERIENCE , *THEMATIC analysis , *RESEARCH methodology , *CURRICULUM planning , *QUALITY assurance - Abstract
Background: Health professions education curricula are undergoing reform towards social accountability (SA), defined as an academic institution's obligation to orient its education, service and research to respond to societal needs. However, little is known about how or which educational experiences transform learners and the processes behind such action. For example, those responsible for the development and implementation of undergraduate medical education (UGME) programs can benefit from a deeper understanding of educational approaches that foster the development of competencies related to SA. The purpose of this paper was to learn from the perspectives of the various partners involved in a program's delivery about what curricular aspects related to SA are expressed in a UGME program. Methods: We undertook a qualitative descriptive study at a francophone Canadian university. Through purposive convenience and snowball sampling, we conducted 16 focus groups (virtual) with the following partners: (a) third‐ and fourth‐year medical students, (b) medical teachers, (c) program administrators (e.g., program leadership), (d) community members (e.g., community organisations) and (e) patient partners. We used inductive thematic analysis to interpret the data. Results: The participants' perspectives organised around four key themes including (a) the definition of a future socially accountable physician, (b) socially accountable educational activities and experiences, (c) characteristics of a socially accountable MD program and (d) suggestions for curriculum improvement and implementation. Conclusions: We extend scholarship about curricular activities related to SA from the perspectives of those involved in teaching and learning. We highlight the relevance of experiential learning, engagement with community members and patient partners and collaborative approaches to curriculum development. Our study provides a snapshot of what are the sequential pathways in fostering SA among medical students and therefore addresses a gap between knowledge and practice regarding what contributes to the implementation of educational approaches related to SA. We emphasise the need for educational innovation and research to develop and align assessment methods with teaching and learning related to SA. This study delves into how a medical training fosters socially accountable physicians. Findings underscore the importance of experiential learning, community engagement, and collaborative curriculum development. #MedEd #SocialAccountability [ABSTRACT FROM AUTHOR]
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- 2024
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17. Worth a try or a last resort: Healthcare professionals' experiences and opinions of above cuff vocalisation.
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Mills, Claire S., Michou, Emilia, Bellamy, Mark C., Siddle, Heidi J., Brennan, Cathy A., and Bojke, Chris
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WORK , *TRACHEOTOMY , *MEDICAL personnel , *SPEECH , *RESEARCH funding , *PATIENT safety , *PSYCHOLOGICAL distress , *QUALITATIVE research , *INTERVIEWING , *REFLECTION (Philosophy) , *UNCERTAINTY , *JUDGMENT sampling , *THEMATIC analysis , *ETHICS , *ATTITUDES of medical personnel , *QUALITY of life , *RESEARCH methodology , *COMMUNICATION , *DEGLUTITION , *LENGTH of stay in hospitals , *PSYCHOSOCIAL factors , *EXPERIENTIAL learning , *DEGLUTITION disorders ,TRACHEOTOMY equipment - Abstract
Background: Above cuff vocalisation (ACV) involves the application of an external flow of air via the subglottic port of a tracheostomy. ACV can facilitate vocalisation and may improve swallowing and quality of life for patients with a tracheostomy. A recent systematic review highlighted the limited evidence available for the acceptability, effectiveness, safety or optimal implementation of ACV. Aims: To explore the experience of healthcare professionals (HCPs) using ACV and their perceptions of best practice. Methods and Procedures: Semi‐structured interviews were conducted with a range of HCPs with experience using ACV. Topics included: experiences with ACV, management of ACV, opinions about ACV, impact of COVID‐19, future directions for ACV and impact on length of stay. Interviews were conducted online from December 2020 to March 2022. Data were analysed using reflexive thematic analysis. Outcomes and Results: Twenty‐four HCPs were interviewed from seven countries and five professional groups. Four interconnected themes were developed: (1) moral distress amplifying the need to fix patients; (2) subjectivity and uncertainty leading to variations in practice and purpose; (3) knowledge and experience leading to control and caution; and (4) worth a try or a last resort. Theme four contained three sub‐themes: (a) part of the toolbox; (b) useful but limited tool; and (c) following the patient's lead. The moral distress experienced by HCPs and their essential 'need to fix' patients seems to underpin the varied opinions of ACV. These opinions appear to be formed primarily on the basis of experience, because of the underlying subjectivities and uncertainties. As knowledge and experience with ACV increased, and adverse events were experienced, most HCPs became more cautious in their approach to ACV. Conclusions and Implications: More research is needed to reduce the subjectivities and uncertainties surrounding ACV. The implementation of standardised procedures, processes, and competencies may help to reduce the frequency of adverse events and support a more controlled approach. Widening the focus of the purpose of ACV to include swallowing may help to maximise the potential benefits. WHAT THIS PAPER ADDS: What is already known on the subject: There is limited and low‐quality evidence for above cuff vocalisation (ACV) and clinical application and practice varies substantially. However, the reasons for this variation in practice and healthcare professionals' (HCPs') opinions of ACV were unclear. What this study adds: HCPs' experiences and opinions of ACV vary as a result of the uncertainty and subjectivity surrounding ACV compounded by their personal experiences with it. A need for caution also appears to emerge as HCPs become more familiar and experienced with using ACV. What are the clinical implications of this work?: Implementing standardised procedures, safety processes and competencies may help to compensate for the uncertainty and subjectivity surrounding ACV and may reduce the frequency of adverse events. Widening the focus of purpose of ACV, including swallowing in addition to communication, may increase the number of potential candidates and increase the potential benefits of ACV. Using multidisciplinary team (MDT) simulation training for ACV competency development might help to improve MDT working and ACV implementation. [ABSTRACT FROM AUTHOR]
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- 2024
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18. The impact of the COVID‐19 pandemic on speech and language therapy services in Ireland: A mixed‐methods survey at two time points during the pandemic.
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Müller, Nicole, Lyons, Rena, Devlin, Anne Marie, Antonijevic‐Elliott, Stanislava, and Kirkpatrick, Vickie
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CROSS-sectional method , *SPEECH therapists , *SEASONS , *PERSONAL protective equipment , *HEALTH occupations students , *STATISTICAL sampling , *PRIMARY health care , *CONTENT analysis , *JUDGMENT sampling , *CHI-squared test , *DESCRIPTIVE statistics , *TELEMEDICINE , *RESEARCH methodology , *MEDICAL needs assessment , *NEEDS assessment , *PUBLIC health , *DATA analysis software , *COVID-19 pandemic , *SPEECH therapy , *MEDICAL referrals - Abstract
Background: During the COVID‐19 pandemic, Ireland implemented a series of stringent public health measures, including lockdowns and suspension of non‐urgent clinical services. Aims: To investigate the impact of the COVID‐19 pandemic on the demand for and delivery of speech and language therapy (SLT) services in Ireland in 2020. Methods & Procedures: Two iterations of a cross‐sectional, mixed‐methods online survey were distributed to speech and language therapists (SLTs) and SLT students in Ireland in the spring and autumn of 2020 using a combination of purposive and snowball sampling. The spring survey yielded 407 responses (including 14 from SLT students), while 197 respondents took part in the autumn (13 students). Survey analysis focused on questions related to the impact of the COVID‐19 pandemic on delivery and demand for SLT services (student responses were excluded from analysis owing to low response rate). The largest group in respect of experience were senior SLTs (58% in both surveys). The work settings most strongly represented were HSE primary care (34.4%) and disability services (26.5%) in the spring, and HSE primary care (39.1%), acute hospitals (22.8%) and disability services (20.8%) in the autumn. We used descriptive statistics, including distribution analysis, to analyse the quantitative data. Free text data were interrogated through a variant of a conventional qualitative content analysis. Outcomes & Results: In the spring, cessation of face‐to‐face services featured prominently (reported by 65.6% versus 14.2% in the autumn), across SLTs' work settings, except acute hospitals. Lower demand was reported by 42.5% in the spring, while in the autumn, 48.7% indicated that demand was higher. SLTs experienced large‐scale redeployment (spring: 45.9%, autumn: 38.4%), with HSE primary care SLTs redeployed most (spring: 71.7%; autumn: 62.3%). The need to suddenly pivot to telehealth was a significant challenge in terms of training, technology and logistics. New ways of working emerged and gradually, telehealth became more embedded. SLTs also had to adapt to working with evolving public health measures, such as space restrictions and personal protective equipment (PPE) requirements. Across the two survey iterations, SLTs reported tensions between demands and capacity: while referrals and demand initially decreased in the spring, this led to increased backlog and longer waiting lists, ongoing and increasing pressure on clinicians and services, and negatively impacted clients and families. Conclusions & Implications: The COVID‐19 pandemic had a significant negative impact on SLT services in Ireland. Going forward, the SLT profession and its services will require sustained support to mitigate long‐term negative consequences, such as increased waiting lists. WHAT THIS PAPER ADDS: What is already known on this subject: The negative impact of the COVID‐19 pandemic on SLT services has been examined in several countries. Ireland imposed more stringent pandemic‐management measures than many other countries, and it was therefore warranted to investigate how SLT services in the country were affected. What this study adds to the existing knowledge: Face‐to‐face SLT services effectively ceased in most non‐urgent contexts in spring 2020. This coincided with large‐scale redeployment of SLTs to non‐SLT contexts. By autumn 2020, demand had increased again, but not all services had recommenced, and redeployment was still a factor. Although SLTs adapted to the ongoing changes imposed by the pandemic, they voiced concern about increasing backlogs and longer waiting lists, ongoing and increasing pressure on both SLTs and services, and negative impacts on clients and families. What are the actual and clinical implications of this work?: The COVID‐19 pandemic had a significant negative impact on SLT services in Ireland. Going forward, the SLT profession and its services will require sustained support to mitigate long‐term negative consequences, such as increased waiting lists. [ABSTRACT FROM AUTHOR]
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- 2024
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19. Tackling the 'normalisation of neglect': Messages from child protection reviews in England.
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Taylor, Julie, Dickens, Jonathan, Garstang, Joanna, Cook, Laura, Hallett, Nutmeg, and Molloy, Eleanor
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POLICE education , *PROFESSIONAL practice , *CULTURE , *CHILD sexual abuse , *PSYCHOLOGY of parents , *CHILD abuse , *RESEARCH methodology , *ATTITUDE (Psychology) , *QUANTITATIVE research , *CRIME , *FAMILIES , *MENTAL health , *QUALITATIVE research , *SEVERITY of illness index , *STEREOTYPES , *CHILD welfare , *COMMUNICATION , *INTERPROFESSIONAL relations , *POVERTY , *SUDDEN infant death syndrome , *JUDGMENT sampling , *THEMATIC analysis , *DEATH , *HOUSING , *SOCIAL case work , *MENTAL illness - Abstract
Despite a history of critique, concentrated discussion and improved assessment processes, neglect continues to be a major challenge for child protection services. This paper draws on findings from a government‐commissioned analysis of 'serious case reviews' (SCRs) in England, arising from incidents of serious child abuse in 2017–2019. There were 235 cases, for which 166 final reports were available. Alongside a quantitative analysis of the whole cohort, we undertook an in‐depth qualitative analysis of 12 cases involving neglect. A key challenge in responding to neglect in its different forms is that it can be so widespread amongst families that practitioners no longer notice its severity or chronicity – it becomes normalised. In this paper we explore two dimensions of the 'paradox of neglect' where it seems to be everywhere and nowhere simultaneously. The first is that neglect is so closely bound up with the prevalence of poverty that little action is taken to address it. The second is that the overwhelming nature of neglect can blind practitioners to other forms of maltreatment that may also be present within a family. Practitioners, now more than ever, need to recognise the dimensions of this paradox to protect children from neglect. [ABSTRACT FROM AUTHOR]
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- 2024
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20. Smart glasses use experience of nursing graduate students: qualitative study.
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Calik, Afra, Ozkul, Denizhan, and Kapucu, Sevgisun
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GRADUATE nursing education , *QUALITATIVE research , *SATISFACTION , *GRADUATE students , *INTERVIEWING , *QUESTIONNAIRES , *EDUCATIONAL technology , *JUDGMENT sampling , *EXPERIENCE , *STUDENTS , *VIRTUAL reality , *HYPERGLYCEMIA , *THEMATIC analysis , *NURSING practice , *RESEARCH methodology , *CLINICAL competence , *STUDENT attitudes , *LEARNING strategies , *SOCIODEMOGRAPHIC factors , *OPTICAL head-mounted displays , *NURSING students , *VIDEO games - Abstract
Background: Immersive technologies such as smart glasses can benefit nursing training and clinical practice. In this paper, we explore the views of nursing graduate students about their experience with smart glasses. Methods: Nursing graduate students (n = 13) were recruited using purposeful sampling. First, a virtual reality intervention for hyperglycemia in nursing care was shown. This was an attempt to introduce people to the technology and start discussions about how it might be used in nursing care. After that, participants underwent online interviews. Thematic analysis was used to examine the data. Results: The study findings indicated that the use of smart glasses as an enjoyable learning experience and immersive games positively affects nursing students. In addition, it was determined that they had negative experiences such as costs, lack of infrastructure, and smart glass side effects. Conclusions: Smart glasses indicate good usability and availability in nursing education and potential for use in hospital nursing practice. [ABSTRACT FROM AUTHOR]
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- 2024
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21. Distinct experiences and care needs of advanced cancer patients with good ECOG performance status: a qualitative phenomenological study.
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Chen, Ping, Ding, Mingfu, Li, Changlin, Long, Yujuan, Pan, Deng, Ma, Li, Liu, Taiguo, and Yi, Cheng
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CHINESE medicine , *QUALITATIVE research , *RESEARCH funding , *INTERVIEWING , *HERBAL medicine , *ONCOLOGY , *JUDGMENT sampling , *DECISION making , *PSYCHOLOGICAL adaptation , *THEMATIC analysis , *RELIGION , *RESEARCH methodology , *CANCER patient psychology , *MEDICAL needs assessment , *PHENOMENOLOGY , *TERMINAL care , *GROUP process , *COGNITION - Abstract
Background: Advanced cancer patients with good Eastern Cooperative Oncology Group (ECOG) performance status (score 0–1) are underrepresented in current qualitative reports compared with their dying counterparts. Aim: To explore the experiences and care needs of advanced cancer patients with good ECOG. Design: A qualitative phenomenological approach using semi-structured interview was employed. Data was analyzed using the Colaizzi's method. Setting/Participants: Purposive sample of terminal solid cancer patients on palliative care aged 18–70 years with a 0–1 ECOG score were recruited from a tertiary general hospital. Results: Sixteen participants were interviewed. Seven themes were generated from the transcripts, including experiencing no or mild symptoms; independence in self-care, decision-making, and financial capacity; prioritization of cancer growth suppression over symptom management; financial concerns; hope for prognosis and life; reluctance to discuss death and after-death arrangements; and use of complementary and alternative medicine (CAM) and religious coping. Conclusions: Advanced cancer patients with good ECOG have distinct experiences and care needs from their dying counterparts. They tend to experience no or mild symptoms, demonstrate a strong sense of independence, and prioritize cancer suppression over symptom management. Financial concerns were common and impact their care-related decision-making. Though being hopeful for their prognosis and life, many are reluctant to discuss death and after-death arrangements. Many Chinese patients use herbal medicine as a CAM modality but need improved awareness of and accessibility to treatment options. Healthcare professionals and policy-makers should recognize their unique experiences and needs when tailoring care strategies and policies. Key statements: What is already known about the topic? • Even in their advanced stage, cancer patients with good ECOG performance status are capable of self-care and less reliant on care provided by other. • Existing qualitative research mainly focuses on advanced cancer patients with poor ECOG, emphasizing pain management, emotional distress, and palliative care. What this paper adds? • Our findings reveal distinct experiences and care needs of advanced cancer patients with good ECOG performance status from their dying counterparts. Implications for practice, theory or policy. • Healthcare professionals should recognize and address the patient group's distinct needs. • Future research should further investigate their symptom trajectory, influencing factors, and care needs to fill the gap in their cancer journey. • Policy-makers should develop tailored policies that consider good ECOG performance status. [ABSTRACT FROM AUTHOR]
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- 2024
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22. A community service doctor's experiences of mental healthcare provision in rural Eastern Cape.
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Rall, Divan and Swartz, Leslie
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WORK , *HEALTH services accessibility , *MEDICAL quality control , *COMMUNITY health nurses , *SOCIAL workers , *HEALTH facility administration , *INTERVIEWING , *JUDGMENT sampling , *RURAL health services , *SOUND recordings , *THEMATIC analysis , *HEALTH services administrators , *ATTITUDES of medical personnel , *RESEARCH methodology , *PUBLIC health , *CASE studies , *PHYSICIANS , *EXPERIENTIAL learning - Abstract
Background: Literature shows that in South Africa there are insufficient resources to meet mental healthcare needs. At general or district hospital level, the non-specialist doctor is often responsible for the holistic assessment and management of mental health service users. Such situations inevitably increase doctors' care load as they are required to treat across disciplines. We highlight the particular challenges faced by a community service (CS) doctor in this context. Methods: The presented case study formed part of a larger project that investigated public mental healthcare provision in the Eastern Cape province. Data were collected through a once-off semi-structured interview with the participant. The interview was transcribed and data analysed by utilising thematic analysis to yield results. Results: The study suggests that the CS doctor experiences being overloaded with duties, and feels overwhelmed in a healthcare context that lacks resources needed for service provision, which may lead to inadequate mental healthcare provision to public health service users. Conclusion: Healthcare facilities in rural parts of the Eastern Cape province are in need of assistance. This in-depth account highlighted the consequences of working on the front line of a disadvantaged and under-resourced health system. The presented account can be interpreted as a cry for help by CS doctors for relevant authorities to improve access and provision of mental healthcare in the area. Contribution: The paper provides an exploration of the circumstances wherein mental healthcare is provided in rural parts of South Africa. [ABSTRACT FROM AUTHOR]
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- 2024
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23. Self‐identified culturally related stressors that influence self‐care in older adults with multiple chronic conditions: A qualitative study.
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Jin, Yuanyuan, Bowers, Barbara J., Cotton, Quinton D., and Ersig, Anne L.
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CULTURE -- Psychological aspects , *HEALTH self-care , *LIFE change events , *RESEARCH funding , *QUALITATIVE research , *CONTENT analysis , *EMPIRICAL research , *QUANTITATIVE research , *JUDGMENT sampling , *DESCRIPTIVE statistics , *CHRONIC diseases , *SURVEYS , *THEMATIC analysis , *FINANCIAL stress , *PSYCHOLOGICAL stress , *RESEARCH methodology , *DATA analysis software , *COMORBIDITY , *SELF diagnosis , *SOCIAL isolation , *INTERGENERATIONAL relations , *COVID-19 pandemic - Abstract
Aim: To identify culturally related stressors that influence self‐care in Chinese older adults with multiple chronic conditions. Background: Effective self‐care can improve health outcomes for chronic conditions, but implementing self‐care is challenging. Individuals with multiple chronic conditions face even more self‐care complexity than those with single chronic conditions, generating additional stressors. Although stressors have been found to negatively influence self‐care in multiple chronic conditions, the role of culture in generating stressors has been neglected. Design: This paper reports on the qualitative component of a larger mixed‐methods study. Two free‐response items in a survey were used to identify culturally related stressors that influence self‐care. This report adhered to the SRQR guideline checklist. Methods: Data were collected between January and April 2022. One hundred and thirty‐eight free text responses asking participants to identify stressors that influenced their self‐care effectiveness were analysed sequentially using deductive content analysis and thematic analysis. Results: Findings from deductive content analysis largely confirmed published work in Western literature on stressors complicating self‐care, including symptom burdens, financial strains, social disconnection, caregiving responsibilities and major life events. Findings from reflexive thematic analysis extended current literature by identifying three culturally relevant stressors: intergenerational obligations and commitments, ambivalence about receiving care and worries about potential problems. Conclusion: Chinese older adults with multiple chronic conditions identified a wide range of stressors that impacted their day‐to‐day self‐care. This study provided valuable insights into culturally related stressors in older adults with multiple chronic conditions. Findings deepened our knowledge of cultural influences on the success of self‐care in older adults with multiple chronic conditions, suggesting the potential for reaching populations across different cultures and regions. Implications for the profession and/or patient care: Stressors that might influence self‐care ability are important for nurses to assess in people with multiple chronic conditions. The design of self‐care interventions should take a culturally tailored intergenerational family‐centred approach to help mitigate the impact of stressors and ultimately improve patient outcomes. Impact: What problem did the study address?Stressors documented in older adults with MCCs have all been generated from research with Western populations. China is now home to the largest population of older people in the world. Understanding the influence of culturally relevant stressors on self‐care in Chinese older adults with MCCs is lacking.What were the main findings?Findings from deductive content analysis largely confirmed published work in Western literature on stressors that complicated self‐care, including symptom burdens, financial strains, social disconnection, caregiving responsibilities and major life events. Findings from reflexive thematic analysis extended current literature by identifying three culturally relevant stressors in older adults with MCCs in China: intergenerational obligations and commitments, ambivalence about receiving care and worries about potential problems.Where and on whom will the research have an impact?The research will have an impact on guiding nurses' assessment of culturally relevant stressors' impact on self‐care for older adults with MCCs. In addition, findings could inform research and policy development to aim at mitigating the impact of culturally based stressors on self‐care. Reporting Method: This study adhered to the Standards for Reporting Qualitative Research (SRQR) guideline checklist. Patient or Public Contribution: During the member‐checking process, the validation of findings for accuracy was carried out by 10 participants, who also found resonance between these findings and their own experiences. [ABSTRACT FROM AUTHOR]
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- 2024
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24. The Influence of Spirituality on Professional Identity, Role Performance, and Career Resilience among Nursing Home Social Workers.
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Rogers, Robin K., Myers, Dennis R., Garrison, Brianna V., Singletary, Jon E., and McClellan, Angela
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PROFESSIONAL ethics of social workers , *PSYCHOLOGICAL resilience , *EMPLOYEE retention , *OCCUPATIONAL roles , *NURSING home employees , *SOCIAL workers , *PROFESSIONAL ethics , *QUALITATIVE research , *DATA analysis , *PROFESSIONAL practice , *WORK environment , *INTERVIEWING , *SOCIAL services , *PROFESSIONAL identity , *SOCIAL worker attitudes , *JUDGMENT sampling , *DESCRIPTIVE statistics , *NURSING care facilities , *REHABILITATION centers , *SOUND recordings , *THEMATIC analysis , *SOCIAL case work , *PRAYER , *SPIRITUALITY , *RESEARCH methodology , *HEALTH facilities , *SOCIAL boundaries , *DATA analysis software , *VOCATIONAL guidance , *PSYCHOSOCIAL factors - Abstract
This paper explores how social workers integrate personal spirituality within nursing homes, where a highly regulated, stressful environment marginalizes professional identity and challenges retention. Researchers offer new evidence of how spirituality informs professional identity, ethical practice, and continuation in the role. Twenty BSW/MSW licensed nursing home social workers (NHSWs) reported how they daily navigate the personal spirituality-at-work opportunity and challenge. Qualitative analysis of in-depth interviews resulted in three primary codes and related subcodes: Spirituality-Integrated Professional Identity (Vocational Affirmation and Value Alignment), Spirituality-Informed Practice (Intervention Asset, Relational Affinity, and Ambiguous Boundaries), and Spiritually-Sustained Career Resilience. Respondents reported how spirituality animated professional identity, informed daily role enactment, and sustained role involvement. Recommendations are provided for normalizing ethical spirituality-at-work through social work education and practical guidance in navigating the spirituality and practice space. [ABSTRACT FROM AUTHOR]
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- 2024
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25. A qualitative exploration of the barriers and facilitators to self‐managing multiple long‐term conditions amongst people experiencing socioeconomic deprivation.
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Woodward, Abi, Nimmons, Danielle, Davies, Nathan, Walters, Kate, Stevenson, Fiona A., Protheroe, Joanne, Chew‐Graham, Carolyn A., and Armstrong, Megan
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HEALTH services accessibility , *DIGITAL technology , *SELF-management (Psychology) , *QUALITATIVE research , *RESEARCH funding , *ENDOWMENTS , *SELF-efficacy , *SOCIOECONOMIC status , *SOCIOECONOMIC factors , *INTERVIEWING , *CULTURE , *JUDGMENT sampling , *THEMATIC analysis , *RESEARCH methodology , *DATA analysis software , *COMORBIDITY , *SOCIAL isolation , *SOCIAL classes , *SOCIAL stigma - Abstract
Background: Globally, it is estimated that one in three adults live with two or more long‐term conditions (multiple long‐term conditions, MLTCs), that require self‐management. People who experience socioeconomic deprivation face significant health inequalities due to a range of interrelated characteristics that lead to a lack of resources and opportunities. Previous research with underserved populations indicate low levels of trust towards primary care providers and potential barriers for developing patient‐healthcare professional relationships. The purpose of this paper is to explore the barriers and facilitators to self‐managing MLTCs, amongst people who experience socioeconomic deprivation. Methods: Semistructured one‐to‐one interviews with adults (n = 28) living in London and Sheffield, United Kingdom with MLTCs who are experiencing socioeconomic deprivation. Participants were recruited through general practices, community channels and social media. Data were analysed in NVivo using reflexive thematic analysis methods. Findings: Four analytical themes were developed: (1) challenges in accessing healthcare services, financial assistance, and cultural awareness; (2) empowerment and disempowerment through technology, including digital exclusion, and use of technology; (3) impact and causes of exclusion on self‐management, including social isolation, area‐based and economic exclusion, and health‐related stigma and (4) adapting self‐management strategies, including cost‐effective, and culturally/lifestyle appropriate strategies. Conclusions: Future health interventions and services need to be developed with consideration of the combined complexities of managing MLTCs while experiencing socioeconomic deprivation. Increased awareness in practitioners and commissioners of the complexities surrounding the lives of people experiencing socioeconomic deprivation, and the need for targeted strategies to promote self‐management of MLTCs are of great importance. Patient or Public Contribution: A patient advisory group contributed to all stages of the study, including providing important feedback on study documents (topic guides and recruitment materials), as well as providing critical insights surrounding the interpretation of interview data. [ABSTRACT FROM AUTHOR]
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- 2024
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26. Artificial intelligence education for young children: A case study of technology‐enhanced embodied learning.
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Yang, Weipeng, Hu, Xinyun, Yeter, Ibrahim H., Su, Jiahong, Yang, Yuqin, and Lee, John Chi‐Kin
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DIGITAL technology , *SCHOOL environment , *CURRICULUM , *ELEMENTARY schools , *RESEARCH funding , *ARTIFICIAL intelligence , *SCIENTIFIC observation , *INTERVIEWING , *EDUCATIONAL outcomes , *TEACHING methods , *JUDGMENT sampling , *TEACHERS , *RESEARCH methodology , *CHILD development , *COMPUTER literacy , *STORYTELLING , *RESEARCH , *LEARNING strategies , *COMPUTER assisted instruction , *LITERACY , *CASE studies , *CHILDREN - Abstract
Background: Artificial Intelligence (AI) literacy is a crucial part of digital literacy that all individuals should possess in today's technologically advanced world. Despite the potential benefits that AI education offers, little research has been done on how to teach AI literacy to children. Objectives: This study aimed to fill that gap by investigating how children were engaged in AI literacy activities that are supported by intelligent agents. These activities were implemented in a Hong Kong kindergarten with a class of six 5‐year‐olds (Mage = 62.83 months, SD = 2.91) over a 6‐week period. Methods: The study gathered data from multiple sources, including classroom observations, teacher interviews, and documents/artefacts. Results and Conclusions: The results showed that children could learn about AI through interaction with intelligent agents in embodied learning contexts. The findings of this study have implications for the broader field of digital technology education, particularly in the context of early childhood education. Lay Description: What is already known about this topic: Artificial Intelligence (AI) literacy is essential in today's world.Little research exists on engaging young children in learning AI literacy. What this paper adds: Technology‐enhanced embodied learning approach affords multimodality in enabling young children's learning with AI‐related agents.Project‐based learning and real‐life examples can enhance children's learning. Implications for practice and/or policy: Early exposure to AI can help children navigate the increasingly digital world.Practical approaches, such as embodied and multimodal learning, seem to be effective.Teachers can enhance children's digital learning by using pedagogical strategies like project‐based learning and real‐life examples. [ABSTRACT FROM AUTHOR]
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- 2024
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27. The Rhetoric and Reality of Choice and Autonomy When Older People Are Discharged from Community Hospital at the End-of-Life in England: A Constructivist Grounded Theory Study.
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Mckean, Emily, Butler, Claire, and Wilson, Patricia
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AUTONOMY (Psychology) , *PALLIATIVE treatment , *INTERVIEWING , *FRAIL elderly , *DISCHARGE planning , *HOSPITALS , *JUDGMENT sampling , *RESEARCH methodology , *PATIENT decision making , *GROUNDED theory , *STAKEHOLDER analysis , *PATIENTS' attitudes - Abstract
There has been an increasing acknowledgement in the UK of the importance of recognising frailty as a condition that leaves older people vulnerable to dramatic, sudden changes in health triggered by seemingly small events. In policy, the approach to managing frailty is often an emphasis on staying well with limited consideration to frailty as an end-of-life phase. Meanwhile, discharge from hospital continues to be complex. Overstretched acute hospitals are juxtaposed with community and social services that struggle to keep up with the demand of those being discharged and the labelling of older people as "bed blockers" at the centre of delayed discharges. This paper reports a study underpinned by constructivist grounded theory methodology, with the aim of exploring the experiences and perceptions of stakeholders. Semistructured interviews were conducted with 57 participants including patients, their informal carer(s), community hospital staff, community health professionals, and care home managers. The core category of "the drive to discharge conveyor belt" was derived from data analysis. A significant finding of this study was that of the carer, their burden, and their intrinsic role in facilitating discharge, filling in gaps in services, coordinating services, and enabling the patient to stay at home, with little consideration of their choices or autonomy. The "drive to discharge" impacts older people, their informal carers, and health professional. This study suggests how they may be supported, through an ethical lens. [ABSTRACT FROM AUTHOR]
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- 2024
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28. A cancer personalised activity and lifestyle tool (CAN‐PAL): A codesign study with patients and healthcare professionals.
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Gale, Nichola, Jones, Una, Rees, Tracy, Hicks, Alexandra, Davies, Janet, Holliday, Samantha, and Hopkinson, Jane
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LIFESTYLES , *CANCER patient psychology , *EXPERIMENTAL design , *SOCIAL support , *FOCUS groups , *RESEARCH methodology , *INDIVIDUALIZED medicine , *INTERVIEWING , *PHYSICAL activity , *HUMAN services programs , *QUALITATIVE research , *DESCRIPTIVE statistics , *RESEARCH funding , *JUDGMENT sampling , *WORLD Wide Web - Abstract
Aims: To codesign a cancer personalised activity and lifestyle tool (CAN‐PAL) based on an existing tool. To help cancer care workers support people affected by cancer to plan and integrate physical activity into lifestyles. Design: Mixed‐methods codesign study. Methods: Phase 1: Focus groups with people affected by cancer (n = 10) or interviews (n = 2) to discuss suitable physical activities and adaptation of the existing tool. Data were recorded, transcribed and analysed thematically. Themes informed the design of the prototype CAN‐PAL and user guide. Phase 2: Healthcare professionals considered the potential use of the CAN‐PAL prototype and completed an online survey including the system usability scale and free text responses. Results: Phase 1: Identified suitable physical activities and four themes were identified including: Capability, benefits, barriers and resources which informed the prototype CAN‐PAL and user guide. Phase 2: The user survey was completed by 12 healthcare professionals. Median (range) system usability scale was 80 (50–95) (best score 100), scores >68 indicate good or better usability. Themes from the free text comments included strengths, amendments, considerations and limitations. Results were used to finalise CAN‐PAL and the user guide. Conclusion: The codesigned CAN‐PAL tool had good usability. Further work is needed to evaluate the impact of CAN‐PAL on activity levels and behaviour in people affected by cancer. Relevance to Clinical Practice: People affected by cancer need support to undertake physical activity. The purpose of CAN‐PAL is to assist cancer care workers to support people affected by cancer to plan and integrate physical activity into lifestyles. Patient or Public Contribution: Public partners considered the findings from Phase 1 and 2 and informed the design of the prototype, final CAN‐PAL and user guide and coauthored the paper. Reporting Method: The study adhered to relevant EQUATOR guidelines; the study was reported according to the COREQ checklist. [ABSTRACT FROM AUTHOR]
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- 2024
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29. Nursing Students' Experience of a Poverty Simulation and Its Impact on Empathy and Social Justice Awareness: A Descriptive Qualitative Study.
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Holland, Tamara, Walter, Laurie, Langevin, Kerri, Bourgoin, Adam, McKelvey, Michele, Kirk, Christine, and Thomas, Catherine
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PSYCHOLOGY of college students , *EMPATHY , *SOCIAL determinants of health , *PATIENT advocacy , *HEALTH occupations students , *RESEARCH methodology , *SIMULATION methods in education , *SOCIAL justice , *BACCALAUREATE nursing education , *EXPERIENCE , *QUALITATIVE research , *NUTRITION education , *STUDENTS , *UNIVERSITIES & colleges , *EXPERIENTIAL learning , *AT-risk people , *RESEARCH funding , *NURSING students , *STUDENT attitudes , *POVERTY , *JUDGMENT sampling , *THEMATIC analysis , *EMOTIONS , *HEALTH equity , *REFLECTION (Philosophy) - Abstract
Holistic nursing practice requires an understanding of the constraints of poverty as one of the social determinants of health. Future nurses need to be change agents for social justice. A descriptive, qualitative study was conducted to explore students' experience of the Missouri Association for Community Action Poverty Simulation© (CAPS) and its impact on empathy and social justice awareness among a purposive sample of 56 sophomore baccalaureate nursing students at a public university in the Northeastern United States. Inductive thematic analysis was applied to data collected from a postparticipation reflection paper. Five themes emerged: (a) emotions, (b) personal history of poverty, (c) empathy, (d) rising advocacy, and (e) lessons learned. The results support that the CAPS simulation provides an experiential opportunity which impacts empathy and foundational attitudes to be a change agent for social justice. Recommendations include structured education about social determinants of health prior to the CAPS simulation, continued education throughout nursing curricula, and experiential opportunities to apply social justice skills before graduation. [ABSTRACT FROM AUTHOR]
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- 2024
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30. Experiences of health service access: A qualitative interview study of people living with Parkinson's disease in Ireland.
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O' Shea, Emma, Rukundo, Aphie, Foley, Geraldine, Wilkinson, Tony, and Timmons, Suzanne
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PARKINSON'S disease treatment , *HEALTH services accessibility , *OUTPATIENT medical care , *RESEARCH methodology , *DISCRIMINATION (Sociology) , *INTERVIEWING , *POPULATION geography , *PRIVATE sector , *PATIENTS' attitudes , *QUALITATIVE research , *HEALTH attitudes , *SOUND recordings , *DESCRIPTIVE statistics , *HEALTH care teams , *PUBLIC sector , *RESEARCH funding , *SECONDARY care (Medicine) , *JUDGMENT sampling , *DATA analysis software , *THEMATIC analysis - Abstract
Background: People with Parkinson's disease (PD) do not always access specialist outpatient services in a timely manner in Ireland. The perspectives of people living with PD, relating to service access, are largely absent in the existing literature. Aim: To explore experiences of PD service access for people living with PD, using a qualitative approach. Methods: Purposive maximum variation sampling was used. Semi‐structured telephone interviews were conducted with 25 service users, including people with PD (n = 22) and supporting carers (n = 3). Informed consent was obtained from all participants. Interviews ranged in duration from 30 to 90 min. Data were managed in NVivo 12 and interpreted inductively using thematic analysis. The researchers were reflexive throughout the research process. The Consolidated Criteria for Reporting Qualitative Research checklist was employed to maximise transparency. Results: The findings highlight several key barriers to and facilitators of equitable and timely service access. Three key themes were identified comprising experiences of PD service access including 'geographical inequity', 'discriminatory practices', and 'public and private system deficits'. Together, these themes illustrate how a two‐tiered and under‐resourced health system lacks capacity, in terms of infrastructure and workforce, to meet PD needs for both public and private patients in Ireland. Conclusions: These findings point to problems for PD care, relating to (i) how the health system is structured, (ii) the under‐provision and under‐resourcing of specialist outpatient PD services, including medical, nursing, and multidisciplinary posts, and (iii) insufficient PD awareness education and training across health settings. The findings also show that telemedicine can provide opportunities for making access to certain aspects of PD care more flexible and equitable, but the feasibility and acceptability of technology‐enabled care must be assessed on an individual basis. Implications for policy, practice and research are discussed. Patient or Public Contribution: The design and conduct of this study were supported by an expert advisory group (EAG) of 10 co‐researchers living with PD. The EAG reviewed the interview schedule and the protocol for this study and provided detailed feedback from their perspective, to improve the methods, including the interview approach. The group also reviewed the findings of the study and contributed their insights on the meaning of the findings, which fed into this paper. [ABSTRACT FROM AUTHOR]
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- 2024
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31. A Qualitative Investigation of the Experiences of Women with Perinatal Depression and Anxiety during the COVID-19 Pandemic.
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Rokicki, Slawa, Mackie, Thomas I., D'Oria, Robyn, Flores, Mariella, Watson, Ashley, Byatt, Nancy, and Suplee, Patricia
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MEDICAL quality control , *ATTITUDES of mothers , *POSTPARTUM depression , *HEALTH services accessibility , *SOCIAL support , *PSYCHOLOGY of mothers , *RESEARCH methodology , *SELF-evaluation , *PREGNANT women , *MENTAL health , *INTERVIEWING , *EXPERIENCE , *PERINATAL mood & anxiety disorders , *QUALITATIVE research , *DESCRIPTIVE statistics , *RESEARCH funding , *JUDGMENT sampling , *THEMATIC analysis , *DATA analysis software , *COVID-19 pandemic - Abstract
Objectives: The COVID-19 pandemic has had significant impacts on maternal mental health. We explored the lived experiences of women with perinatal depression and anxiety to elucidate their perceptions of how the pandemic influenced their mental health and access to care. Methods: We conducted a qualitative descriptive study using semi-structured interviews. From March to October 2021, purposive sampling was used to recruit a socio-demographically diverse sample of women with self-reported perinatal depression or anxiety who were pregnant or within one year postpartum between March 2020 and October 2021. Interviews were conducted remotely and thematically analyzed. Results: Fourteen women were interviewed. Three major themes arose. Theme 1, Negative impacts of COVID-19 on symptoms of depression and anxiety, described how the pandemic magnified underlying symptoms of depression and anxiety, increased social isolation, generated anxiety due to fears of COVID-19 infection, and caused economic stress. In theme 2, Negative impacts of COVID-19 on access to and quality of health care, women described stressful and isolating delivery experiences, negative psychological impact of partners not being able to participate in their perinatal health care, interruptions and barriers to mental health treatment, and challenges in using telehealth services for mental health care. Theme 3, Positive impacts of COVID-19 on mental health, identified advantages of increased telehealth access and ability to work and study from home. Conclusions for Practice: The COVID-19 pandemic negatively affected women with perinatal depression and anxiety by magnifying underlying symptoms, increasing stress and social isolation, and disrupting access to mental health care. Findings provide support for policies and interventions to prevent and address social isolation, as well as optimization of telehealth services to prevent and address gaps in perinatal mental health treatment. Significance: What is Already Known on this Subject? Quantitative data suggest that the pandemic increased rates of perinatal mental illness. Yet the perspectives of women with perinatal depression and anxiety on how the pandemic affected their mental health and access to care remain underreported. What this Study adds? This paper offers new insight from the lived experience of women with perinatal depression and anxiety on ways the pandemic negatively and positively affected their mental health and access to mental health care. Implications for interventions, policies, and clinical practice are discussed. [ABSTRACT FROM AUTHOR]
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- 2024
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32. Facilitators and barriers to the implementation of pain neuroscience education in the current Lebanese physical therapist health care approach: a qualitative study.
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Najem, C., Wijma, A. J., Meeus, M., Cagnie, B., Ayoubi, F., Van Oosterwijck, J., De Meulemeester, K., and Van Wilgen, C. P.
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CHRONIC pain , *NEUROSCIENCES , *PHYSICAL therapy assessment , *LUMBAR pain , *BIOPSYCHOSOCIAL model , *HEALTH services accessibility , *NEUROPHYSIOLOGY , *PHYSICAL therapy , *RESEARCH methodology , *MOTIVATION (Psychology) , *MEDICAL care , *LEBANESE , *INTERVIEWING , *CURRICULUM , *HEALTH literacy , *QUALITATIVE research , *CONTINUING education , *PHENOMENOLOGY , *PSYCHOSOCIAL factors , *QUESTIONNAIRES , *DESCRIPTIVE statistics , *SOUND recordings , *RESEARCH funding , *CURRICULUM planning , *JUDGMENT sampling , *THEMATIC analysis , *DATA analysis software , *PHYSICIAN practice patterns , *PHYSICAL therapists , *PHYSICAL therapists' attitudes , *THERAPEUTIC alliance , *PAIN management - Abstract
The purpose of this paper was first to gain an in-depth understanding of the barriers and facilitators to implementing the BPS model and pain neuroscience education in the current Lebanese physical therapy health care approach and explore its acceptability. A qualitative semi-structured interview using purposive sampling was conducted with eight Lebanese physical therapists practising in different governorates. The transcribed text from the interviews was analyzed using inductive thematic analysis. Two topics were generated and constructed by the researchers: (1) "barriers to the implementation of pain neuroscience education, with subthemes including (a) "current health care approach," (b) "basic curriculum and continuing education," (c) "patients' barriers"; (2) "facilitators to the implementation of pain neuroscience education," with subthemes containing (a) "interest in the BPS model, (b) "therapeutic alliance," and (c) "motivation for future training on BPS approach." The analysis of the results showed that Lebanese physical therapists currently hold a strong biomedical view of chronic pain, assessment, and treatment. However, despite the presence of barriers and challenges, they are aware and open to consider the implementation and future training about the BPS model and pain neuroscience education in their approach. The exploration of potential barriers and facilitators to the bio-psychosocial model and pain neuroscience education implementation may provide an opportunity for better development and design of a culturally sensitive pain neuroscience education material for Arab-speaking and Lebanese physical therapists. The exploration of barriers and facilitators to the implementation of pain neuroscience education will help to improve pain education and ensure better clinical pain management. The most important barriers were the dominant characteristic of the Lebanese physical therapist's health approach, which is focused on a biomechanically oriented model, and their lack of knowledge to approach chronic pain from a biopsychosocial perspective. [ABSTRACT FROM AUTHOR]
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- 2024
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33. Now you see them, now you don't: Professional recognition of specialist professionals working with Deaf British Sign Language parents in child safeguarding.
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Oram, Rosemary, Young, Alys, and Cartney, Patricia
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OCCUPATIONAL achievement , *STUTTERING , *OCCUPATIONAL roles , *DEAFNESS , *RESEARCH methodology , *LINGUISTICS , *MEDICAL personnel , *SIGN language , *INTERVIEWING , *PATIENTS' families , *CHILDREN'S accident prevention , *QUALITATIVE research , *PARENTING , *CULTURAL competence , *RESEARCH funding , *JUDGMENT sampling , *STATISTICAL sampling , *THEMATIC analysis , *VIDEO recording - Abstract
This paper concerns parenting assessments which are integral to child-safeguarding professional processes in England, and which involve Deaf parents whose primary language is British Sign Language (BSL). In an under-researched area of social work, the research aim was to contribute to the existing literature by eliciting the practice wisdom of specialist professionals. Specifically, it draws upon their linguistic and cultural knowledge of the Deaf community when they are involved in parenting assessments with Deaf parents who are subject to safeguarding concerns. Data about these professionals' actual experiences of navigating Deaf cultural-competency in contemporary child protection practices were collected through seven video-recorded, semi-structured interviews conducted in BSL. Using interpretive phenomenological analysis, data were analysed in their source language (BSL). This article focusses on one key theme, termed 'Professional Recognition', which incorporates a) the identification of specialist roles and b) the impact of referral processes and protocols on assessment outcomes. The findings highlight participants' perspectives on the benefits and disadvantages of their specialist role in this context. Although their brokerage skills, cultural competence, linguistic fluency and specialist knowledge of the Deaf community are highly regarded and valued by some colleagues, there is insufficient recognition of their existence by the majority. Secondly, participants are concerned by the inefficiency and inconsistency of the referral processes and protocols which they consider have adverse effects on assessment outcomes, and consequently the parents involved. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
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