3,613 results
Search Results
2. A systematic review of contaminants in donor human milk.
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Thayagabalu, Sionika, Cacho, Nicole, Sullivan, Sandra, Smulian, John, Louis‐Jacques, Adetola, Bourgeois, Marie, Chen, Henian, Weerasuriya, Wasana, and Lemas, Dominick J.
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MEDICAL information storage & retrieval systems ,CRITICALLY ill ,PATIENTS ,FOOD consumption ,RESEARCH funding ,BREAST milk banks ,CINAHL database ,BREAST milk ,STAPHYLOCOCCUS aureus ,FOOD contamination ,SYSTEMATIC reviews ,MEDLINE ,BACTERIAL contamination ,ONLINE information services ,COMPARATIVE studies ,CHILDREN - Abstract
Donor human milk (DHM) from a milk bank is the recommended feeding method for preterm infants when the mother's own milk (MOM) is not available. Despite this recommendation, information on the possible contamination of donor human milk and its impact on infant health outcomes is poorly characterised. The aim of this systematic review is to assess contaminants present in DHM samples that preterm and critically ill infants consume. The data sources used include PubMed, EMBASE, CINAHL and Web of Science. A search of the data sources targeting DHM and its potential contaminants yielded 426 publications. Two reviewers (S. T. and D. L.) conducted title/abstract screening through Covidence software, and predetermined inclusion/exclusion criteria yielded 26 manuscripts. Contaminant types (bacterial, chemical, fungal, viral) and study details (e.g., type of bacteria identified, study setting) were extracted from each included study during full‐text review. Primary contaminants in donor human milk included bacterial species and environmental pollutants. We found that bacterial contaminants were identified in 100% of the papers in which bacterial contamination was sought (16 papers) and 61.5% of the full data set (26 papers), with the most frequently identified genera being Staphylococcus (e.g., Staphylococcus aureus and coagulase‐negative Staphylococcus) and Bacillus (e.g., Bacillus cereus). Chemical pollutants were discovered in 100% of the papers in which chemical contamination was sought (eight papers) and 30.8% of the full data set (26 papers). The most frequently identified chemical pollutants included perfluoroalkyl substances (six papers), toxic metal (one paper) and caffeine (one paper). Viral and fungal contamination were identified in one paper each. Our results highlight the importance of establishing standardisation in assessing DHM contamination and future studies are needed to clarify the impact of DHM contaminants on health outcomes. Key messages: Research regarding chemical contamination in donor human milk (DHM) is limited and needs to be studied further to draw appropriate conclusions on reducing potential risks for infants.Parents/guardians should be educated on the availability of DHM as a supplemental feeding option and made aware of the current research in the field.DHM use requires further standardisation both within the United States and abroad. This standardisation should ensure that risks are not overemphasised and DHM is a cost‐effective, accessible resource as a short‐term intervention when used appropriately as part of optimal lactation and breastfeeding support. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Community initiatives for well‐being in the United Kingdom and their role in developing social capital and addressing loneliness: A scoping review.
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Tierney, Stephanie, Rowe, Rosie, Connally, Emily L, Roberts, Nia W, Mahtani, Kamal R, and Gorenberg, Jordan
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WELL-being ,CINAHL database ,MEDICAL information storage & retrieval systems ,SOCIAL support ,SYSTEMATIC reviews ,SOCIAL capital ,COMMUNITY support ,MENTAL health ,SOCIAL isolation ,LONELINESS ,DESCRIPTIVE statistics ,INTERPERSONAL relations ,RESEARCH funding ,SOCIAL attitudes ,LITERATURE reviews ,MEDLINE ,SOCIAL skills ,TRUST - Abstract
Introduction: Loneliness can have a negative impact on people's physical and psychological well‐being; building social capital is a potential means of addressing this connection. Community initiatives (e.g. groups, clubs, neighbourhood activities) may be a route that enables people to build social capital to tackle loneliness. Understanding what is known, and where gaps in knowledge exist, is important for advancing research on this topic. Methods: A scoping review was undertaken to explore the question – What community initiatives, with a focus on well‐being, have been evaluated in the United Kingdom that include information about social capital and loneliness? Four databases (Medline, CINAHL, ASSIA and Embase) were searched for relevant research papers. References were screened by two researchers to identify if they met the review's inclusion criteria. Data were summarised as a narrative and in tables. Results: Five papers met the review's inclusion criteria. They all used qualitative methods. Findings suggested that social capital could be developed through creating a sense of trust, group cohesion and reciprocity among participants in the community initiatives. This connection enabled people to experience a sense of belonging and to feel they had a meaningful relationship with others, which appeared to alleviate feelings of loneliness. Conclusion: More research is warranted on the review topic, including studies that have employed quantitative or mixed methods. Clarity around definitions of social capital and loneliness in future research is required. Engagement with community initiatives can provide a formalised route to help people develop connections and counteract limitations in their social networks. However, individuals may be wary about attending community initiatives, needing support and encouragement to do so. Social prescribing link workers are one means of motivating people to access groups, events or organisations that could improve their well‐being. [ABSTRACT FROM AUTHOR]
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- 2024
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4. A systematic review of literature examining the application of a social model of health and wellbeing.
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Rahman, Rachel, Reid, Caitlin, Kloer, Philip, Henchie, Anna, Thomas, Andrew, and Zwiggelaar, Reyer
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HOLISTIC medicine ,HEALTH status indicators ,OCCUPATIONAL achievement ,INTERPROFESSIONAL relations ,RESEARCH funding ,MEDICAL care ,CINAHL database ,DESCRIPTIVE statistics ,ATTITUDE (Psychology) ,SYSTEMATIC reviews ,MEDLINE ,MATHEMATICAL models ,CONCEPTUAL structures ,THEORY ,CHANGE ,STAKEHOLDER analysis ,SOCIAL support ,QUALITY assurance ,WELL-being ,PSYCHOLOGY information storage & retrieval systems - Abstract
Background Following years of sustained pressure on the UK health service, there is recognition amongst health professionals and stakeholders that current models of healthcare are likely to be inadequate going forward. Therefore, a fundamental review of existing social models of healthcare is needed to ascertain current thinking in this area, and whether there is a need to change perspective on current thinking. Method Through a systematic research review, this paper seeks to address how previous literature has conceptualized a social model of healthcare and, how implementation of the models has been evaluated. Analysis and data were extracted from 222 publications and explored the country of origin, methodological approach, and the health and social care contexts which they were set. Results The publications predominantly drawn from the USA, UK, Australia, Canada and Europe identified five themes namely: the lack of a clear and unified definition of a social model of health and wellbeing; the need to understand context; the need for cultural change; improved integration and collaboration towards a holistic and person-centred approach; measuring and evaluating the performance of a social model of health. Conclusion The review identified a need for a clear definition of a social model of health and wellbeing. Furthermore, consideration is needed on how a model integrates with current models and whether it will act as a descriptive framework or, will be developed into an operational model. The review highlights the importance of engagement with users and partner organizations in the co-creation of a model of healthcare. [ABSTRACT FROM AUTHOR]
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- 2024
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5. Evaluation of Public Involvement in Doctoral Research Using a Four‐Dimensional Theoretical Framework.
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Teodorowski, Piotr, Tahir, Naheed, and Ahmed, Saiqa
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PATIENT selection ,SOCIAL media ,RESEARCH funding ,HUMAN research subjects ,INTERVIEWING ,DATA analytics ,COMMUNITIES ,EXPERIMENTAL design ,CONCEPTUAL structures ,MEDICAL research ,RESEARCH methodology ,ORGANIZATIONAL change ,PATIENT participation ,COVID-19 pandemic - Abstract
Background: Working together and co‐production with public advisors have become popular among health researchers. This practice extends to doctoral researchers who involve public advisors at different stages of their research or throughout their doctoral journey. Objective: A doctoral researcher and two public advisors jointly evaluated public involvement in doctoral research. Methods: Using the established public involvement evaluation framework by Gibson and colleagues, public advisors and a doctoral researcher mapped and evaluated their experiences of public involvement in doctoral research. The four‐dimensional framework allowed the authors to reflect on (1) the strength of the public voice, (2) the number of ways in which public advisors had an opportunity to get involved, (3) whether the discussion was about the public or organisation's (doctoral researcher, university or funder) concerns and (4) if the organisation changed or resisted feedback. Results are presented in a diagrammatic and narrative way. Results: Public advisors saw themselves as having a stronger voice in doctoral research than the doctoral researcher perceived. All agreed that there existed multiple ways for public advisors to be involved. Public advisors' feedback was taken on board, but it was also limited due to restrictions of what the doctoral programme allowed. Conclusion: Public advisors ensured that the doctoral research was more relevant to the public. The ongoing involvement also shaped the doctoral researcher's thinking and views. Patient and Public Involvement: Two public advisors were involved throughout the 3 years of this doctoral research. They co‐evaluated this involvement and are co‐authors of this paper. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Organizational Support for Nurses' Career Planning and Development: A Scoping Review.
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Kallio, Hanna, Liljeroos, Hanna, Koivunen, Marita, Kuusisto, Anne, Hult, Marja, and Kangasniemi, Mari
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CORPORATE culture ,RESEARCH funding ,NURSING career counseling ,CINAHL database ,SYSTEMATIC reviews ,MEDLINE ,LITERATURE reviews ,SOCIAL support ,ONLINE information services ,VOCATIONAL guidance - Abstract
Aim. To systematically map and identify key knowledge on organizational support for nurses' career planning and development. Design. Scoping review. Methods. Systematic electronic searches were carried out with the CINAHL, PubMed, Scopus, and Web of Science databases in May 2022. The searches were limited to scientific, peer-review papers that were published in English from January 2012 to May 2022. Data were extracted and synthetized and are presented in tables and text. The review was conducted following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Results. We identified 1,400 papers and 28 met the inclusion criteria. Organizations recognized nurses' career planning and development in relation to the individual's professional development and the organization's need to promote high-quality services and workforce engagement. The organizational support included strategic work to ensure there were adequate resources and purposeful vacancies and a structured framework based on objective qualification criteria and equal assessment. Organizations focused on sharing knowledge, structured career planning, and interpersonal support. Support within the nursing profession and multilayered interprofessional collaboration were also important. Conclusion. Nurses' career planning and development was linked to their personal development and the organization's aims and required support from both fellow nurses and other professionals. Implications for the Nursing Management. Identifying the organizational structures and methods that are needed to support nurses' career planning and development can help nursing management to evaluate and develop strategies that improve the attractiveness of a nursing career and nurses' engagement. [ABSTRACT FROM AUTHOR]
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- 2024
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7. Evaluating diabetes care in primary healthcare centers in Abuja, Nigeria: a cross-sectional formative assessment.
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Orji, Ikechukwu A., Baldridge, Abigail S., Ikechukwu-Orji, Mercy U., Banigbe, Bolanle, Eze, Nelson C., Chopra, Aashima, Omitiran, Kasarachi, Iyer, Guhan, Odoh, Deborah, Alex-Okoh, Morenike, Reng, Rifkatu, Hirschhorn, Lisa R., Huffman, Mark D., and Ojji, Dike B.
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DIAGNOSIS of diabetes ,TREATMENT of diabetes ,HEALTH services accessibility ,CROSS-sectional method ,MEDICAL protocols ,MEDICAL personnel ,RURAL health ,BLOOD sugar monitors ,MANAGEMENT information systems ,RESEARCH funding ,PRIMARY health care ,DESCRIPTIVE statistics ,RURAL health services ,ROUTINE diagnostic tests ,MEDICAL screening ,DRUGS ,DATA analysis software ,HEALTH information systems ,EQUIPMENT & supplies - Abstract
Introduction: Noncommunicable diseases (NCDs) are associated with high and rising burden of morbidity and mortality in sub-Saharan Africa, including Nigeria. Diabetes mellitus (DM) is among the leading causes of NCD-related deaths worldwide and is a foremost public health problem in Nigeria. As part of National policy, Nigeria has committed to implement the World Health Organization (WHO) Package of Essential Non-communicable Disease interventions for primary care. Implementing the intervention requires the availability of essential elements, including guidelines, trained staff, health management information systems (HMIS), equipment, and medications, in primary healthcare centers (PHCs). This study assessed the availability of the DM component of the WHO package, and the readiness of the health workers in these PHCs to implement a DM screening, evaluation, and management program to inform future adoption and implementation. Methods: This cross-sectional formative assessment adapted the WHO Service Availability and Readiness Assessment (SARA) tool to survey 30 PHCs selected by multistage sampling for readiness to deliver DM diagnosis and care in Abuja, Nigeria, between August and October 2021. The SARA tool was adapted to focus on DM services and the availability and readiness indicator scores were calculated based on the proportion of PHCs with available DM care services, minimum staff requirement, diagnostic tests, equipment, medications, and national guidelines/protocols for DM care within the defined SARA domain. Results: All 30 PHCs reported the availability of at least two full-time staff (median [interquartile range] = 5 [4–9]), which were mostly community health extension workers (median [interquartile range]) = 3 [1–4]. At least one staff member was recently trained in DM care in 11 PHCs (36%). The study also reported high availability of paper-based HMIS (100%), and DM screening services using a glucometer (87%), but low availability of DM job aids (27%), treatment (23%), and national guidelines/protocols (0%). Conclusion: This formative assessment of PHCs' readiness to implement a DM screening, evaluation, and management program in Abuja demonstrated readiness to integrate DM care into PHCs regarding equipment, paper-based HMIS, and nonphysician health workers' availability. However, strategies are needed to promote DM health workforce training, provide DM management guidelines, and supply essential DM medications. [ABSTRACT FROM AUTHOR]
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- 2024
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8. Bibliometric analysis of occupational exposure in operating room from 1973 to 2022.
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Li, Chuang, Geng, Meng, Li, Shujun, Li, Xianglan, Li, Huiqin, Yuan, Hufang, and Liu, Fengxia
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RESEARCH funding ,NITROUS oxide ,OCCUPATIONAL exposure ,BIBLIOMETRICS ,PUBLISHING ,MEDICAL literature ,AUTHORS ,OPERATING rooms ,INDUSTRIAL hygiene - Abstract
Objective: The purpose of this study is to identify and visualize from different perspectives the topic on occupational exposure in operating room (OEOR). Methods: In the Web of Science Core Collection (WoSCC), all the half-century data were retrieved from January 1st, 1973 to December 31st, 2022. CiteSpace, VOSviewer and Excel 2019 were employed to analyze and visualize data, based on publications, countries, institutions, journals, authors, keywords. Result: A total of 336 journal papers were found. The increase of publications virtually started in 1991, peaked in 2020 and has been slowing down ever since. USA played most significant part among all the 49 countries/regions, while Universidade Estadual Paulista out of 499 institutions published the most papers. International Archives of Occupational and Environmental Health bears the most documents and citations in all the 219 retrieved journals. There are 1847 authors found, among whom Hoerauf K is the most influential one. "Occupational exposure", "nitrous oxide" and "operating room personnel" are the top 3 co-occurrences keywords. Conclusion: The trend in the field lies in "anaesthetic gas", "blood borne pathogen", "radiation" and "aerosol", while "surgical smoke" and "occupational safety" are the recently researching hot spots in this study. Accurate recognize and effective protection are always essential subjects for researchers. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Isokinetic assessment of the female's soccer player's knee. A systematic review of outcomes measures.
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Cicchella, Antonio and Zhang, Cheng
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SOCCER ,RESEARCH funding ,SPORTS ,EVALUATION of medical care ,INFORMATION storage & retrieval systems ,KNEE joint ,MUSCLE strength ,ATHLETES ,SYSTEMATIC reviews ,MEDLINE ,EXERCISE tests ,ONLINE information services ,KNEE injuries ,MUSCLE contraction ,PSYCHOLOGY information storage & retrieval systems - Abstract
Background: Isokinetic normative data in females' soccer players is scarce in comparison to males. Furthermore, evaluation protocols employed to obtain those data in female's studies, strongly differ from each other, using different ranges of speeds and movement patterns, thus producing different output data. Thus, it is difficult for the researcher and the clinician to choose a correct protocol for knee isokinetic test in female soccer players. Aim of this paper is to review the literature to provide updated information on how to interpret a knee isokinetic testing in healthy females. Methods: Google Scholar, PubMed, Sport Discus, and Psych info databases were queried, and 17 papers were selected. Following PRISMA methodology and PEDro scale, we classified the retrieved papers and assessed the quality. Results: In this review some common features of isokinetic testing in female soccer players of various levels of qualification are highlighted. The isokinetic performance indexes widely accepted are the hamstring/quadriceps (H/Q) ratio and dominant/non-dominant (D/ND) ratio. It also emerges that, 3 reps at the speed of 60°/sec in knee flexion/extension are preferable due to the higher reliability and that the optimal H/Q ratio in healthy female soccer players of different level of qualification and age is 50%, while the interlimb differences (D/ND) should be below 10%. Conclusions: Normative data and methodologies reviewed can be useful for the isokinetic test of female soccer players. It emerges that simplifying test procedures limiting at few testing speed and considering selected H/Q and D/ND gives all the necessary relevant informations. [ABSTRACT FROM AUTHOR]
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- 2024
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10. Calculating the similarity between prescriptions to find their new indications based on graph neural network.
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Han, Xingxing, Xie, Xiaoxia, Zhao, Ranran, Li, Yu, Ma, Pengzhen, Li, Huan, Chen, Fengming, Zhao, Yufeng, and Tang, Zhishu
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CHINESE medicine ,DIFFUSION of innovations ,RESEARCH funding ,QUESTIONNAIRES ,DRUG repositioning ,ARTIFICIAL neural networks ,DRUGS ,COMPARATIVE studies - Abstract
Background: Drug repositioning has the potential to reduce costs and accelerate the rate of drug development, with highly promising applications. Currently, the development of artificial intelligence has provided the field with fast and efficient computing power. Nevertheless, the repositioning of traditional Chinese medicine (TCM) is still in its infancy, and the establishment of a reasonable and effective research method is a pressing issue that requires urgent attention. The use of graph neural network (GNN) to compute the similarity between TCM prescriptions to develop a method for finding their new indications is an innovative attempt. Methods: This paper focused on traditional Chinese medicine prescriptions containing ephedra, with 20 prescriptions for treating external cough and asthma taken as target prescriptions. The remaining 67 prescriptions containing ephedra were taken as to-be-matched prescriptions. Furthermore, a multitude of data pertaining to the prescriptions, including diseases, disease targets, symptoms, and various types of information on herbs, was gathered from a diverse array of literature sources, such as Chinese medicine databases. Then, cosine similarity and Jaccard coefficient were calculated to characterize the similarity between prescriptions using graph convolutional network (GCN) with a self-supervised learning method, such as deep graph infomax (DGI). Results: A total of 1340 values were obtained for each of the two calculation indicators. A total of 68 prescription pairs were identified after screening with 0.77 as the threshold for cosine similarity. Following the removal of false positive results, 12 prescription pairs were deemed to have further research value. A total of 5 prescription pairs were screened using a threshold of 0.50 for the Jaccard coefficient. However, the specific results did not exhibit significant value for further use, which may be attributed to the excessive variety of information in the dataset. Conclusions: The proposed method can provide reference for finding new indications of target prescriptions by quantifying the similarity between prescriptions. It is expected to offer new insights for developing a scientific and systematic research methodology for traditional Chinese medicine repositioning. [ABSTRACT FROM AUTHOR]
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- 2024
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11. Exploring Whether and How People Experiencing High Deprivation Access Diagnostic Services: A Qualitative Systematic Review.
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Vincent, Christine, Fenge, Lee‐Ann, Porter, Sam, and Holland, Sharon
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HEALTH services accessibility ,MEDICAL care use ,MEDICAL information storage & retrieval systems ,HEALTH literacy ,NATIONAL health services ,DIAGNOSTIC services ,RESEARCH funding ,SOCIAL determinants of health ,HEALTH attitudes ,CINAHL database ,SOCIOECONOMIC factors ,RESPONSIBILITY ,EMOTIONS ,EXPERIENCE ,SYSTEMATIC reviews ,MEDLINE ,THEMATIC analysis ,MEDICAL databases ,CONCEPTUAL structures ,HEALTH equity ,PATIENT decision making ,MEDICAL screening ,MINORITIES ,SOCIAL isolation ,PATIENTS' attitudes ,PSYCHOLOGY information storage & retrieval systems ,SOCIAL stigma - Abstract
Introduction: To contribute to addressing diagnostic health inequalities in the United Kingdom, this review aimed to investigate determinants of diagnostic service use amongst people experiencing high deprivation in the United Kingdom. Methods: A systematic review was conducted using three databases (EBSCO, Web of Science and SCOPUS) to search studies pertaining to diagnostic service use amongst people experiencing high deprivation. Search terms related to diagnostics, barriers and facilitators to access and deprivation. Articles were included if they discussed facilitators and/or barriers to diagnostic service access, contained participants' direct perspectives and focussed on individuals experiencing high deprivation in the United Kingdom. Articles were excluded if the full text was unretrievable, only abstracts were available, the research did not focus on adults experiencing high deprivation in the United Kingdom, those not including participants' direct perspectives (e.g., quantitative studies) and papers unavailable in English. Results: Of 14,717 initial papers, 18 were included in the final review. Determinants were grouped into three themes (Beliefs and Behaviours, Emotional and Psychological Factors and Practical Factors), made up of 15 sub‐themes. These were mapped to a conceptual model, which illustrates that Beliefs and Behaviours interact with Emotional and Psychological Factors to influence Motivation to access diagnostic services. Motivation then influences and is influenced by Practical Factors, resulting in a Decision to Access or Not. This decision influences Beliefs and Behaviours and/or Emotional and Psychological Factors such that the cycle begins again. Conclusion: Decision‐making regarding diagnostic service use for people experiencing high deprivation in the United Kingdom is complex. The conceptual model illustrates this complexity, as well as the mediative, interactive and iterative nature of the process. The model should be applied in policy and practice to enable understanding of the factors influencing access to diagnostic services and to design interventions that address identified determinants. Patient or Public Contribution: Consulting lived experience experts was imperative in understanding whether and how the existing literature captures the lived experience of those experiencing high deprivation in South England. The model was presented to lived experience experts, who corroborated findings, highlighted significant factors for them and introduced issues that were not identified in the review. [ABSTRACT FROM AUTHOR]
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- 2024
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12. Supraspinatus extraction from MRI based on attention-dense spatial pyramid UNet network.
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Wang, Peng, Liu, Yang, and Zhou, Zhong
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SUPRASPINATUS muscles ,DEEP learning ,DIGITAL image processing ,ROTATOR cuff injuries ,COMPUTER-aided design ,MAGNETIC resonance imaging ,RETROSPECTIVE studies ,DESCRIPTIVE statistics ,RESEARCH funding ,DECISION making in clinical medicine ,COMPUTER-assisted image analysis (Medicine) ,SHOULDER - Abstract
Background: With potential of deep learning in musculoskeletal image interpretation being explored, this paper focuses on the common site of rotator cuff tears, the supraspinatus. It aims to propose and validate a deep learning model to automatically extract the supraspinatus, verifying its superiority through comparison with several classical image segmentation models. Method: Imaging data were retrospectively collected from 60 patients who underwent inpatient treatment for rotator cuff tears at a hospital between March 2021 and May 2023. A dataset of the supraspinatus from MRI was constructed after collecting, filtering, and manually annotating at the pixel level. This paper proposes a novel A-DAsppUnet network that can automatically extract the supraspinatus after training and optimization. The analysis of model performance is based on three evaluation metrics: precision, intersection over union, and Dice coefficient. Results: The experimental results demonstrate that the precision, intersection over union, and Dice coefficients of the proposed model are 99.20%, 83.38%, and 90.94%, respectively. Furthermore, the proposed model exhibited significant advantages over the compared models. Conclusion: The designed model in this paper accurately extracts the supraspinatus from MRI, and the extraction results are complete and continuous with clear boundaries. The feasibility of using deep learning methods for musculoskeletal extraction and assisting in clinical decision-making was verified. This research holds practical significance and application value in the field of utilizing artificial intelligence for assisting medical decision-making. [ABSTRACT FROM AUTHOR]
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- 2024
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13. Electronic adaptation and danish cross-cultural translation of PEmb-QoL and VEINES-QoL/Sym for patients with venous thromboembolism.
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Lindegaard, Stine Foged, Højen, Anette Arbjerg, and Rolving, Nanna
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FIELD research ,PULMONARY embolism ,HUMAN research subjects ,AGE distribution ,ACTIVITIES of daily living ,HEALTH surveys ,INTERVIEWING ,VENOUS thrombosis ,INFORMED consent (Medical law) ,SEX distribution ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,RESEARCH funding ,JUDGMENT sampling - Abstract
Purpose: Most patient-reported outcome (PROs) used in thrombosis research and clinical practice are delivered using technology like online questionnaires. However, only few have undergone formal electronic adaptation from paper to digital versions, threatening the validity and reliability of the PROs. The present study aimed to perform an electronic adaption and cross-cultural translation of two PROs measuring health-related quality of life in a Danish cohort of patients with venous thrombosis (VTE), specifically the VEINES-QoL/Sym questionnaire and the PEmb-QoL questionnaire. Methods: The electronic adaption and cross-cultural translation processes followed the international guidelines recommended by ISPOR. The migration of the questionnaires from paper to electronic versions was conducted in the Research Electronic Data Capture (REDCap). Following approval of the electronically adapted and translated versions, a pretest of the questionnaires was performed by cognitive interviewing patients with VTE recruited from a hospital setting. Results: Nine men and ten women between the age of 19 and 73 years participated in cognitive interviews. The questionnaires were successfully adapted from paper to electronic versions, and during the migration process only a few modifications to the content and format were made. Most comments were related to technicalities, e.g. touch functions and checkboxes. The cross-cultural translation of both questionnaires was satisfactory, as only minor rephrasing was required. Conclusions: The original and Danish version of VEINES-QoL/Sym and PEmb-QoL were successfully adapted into electronic versions and are ready to share for REDCap users. Furthermore, the Danish versions of the two questionnaires have shown satisfactory face validity. [ABSTRACT FROM AUTHOR]
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- 2024
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14. The elements of end-of-life care provision in paediatric intensive care units: a systematic integrative review.
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Adistie, Fanny, Neilson, Susan, Shaw, Karen L., Bay, Betul, and Efstathiou, Nikolaos
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MEDICAL information storage & retrieval systems ,GREY literature ,RESEARCH funding ,CINAHL database ,DECISION making ,DESCRIPTIVE statistics ,PEDIATRICS ,SYSTEMATIC reviews ,MEDLINE ,INTENSIVE care units ,TERMINAL care ,PSYCHOLOGY information storage & retrieval systems - Abstract
Background: Deaths in paediatric intensive care units (PICUs) are not uncommon. End-of-life care in PICUs is generally considered more challenging than other settings since it is framed within a context where care is focused on curative or life-sustaining treatments for children who are seriously ill. This review aimed to identify and synthesise literature related to the essential elements in the provision of end-of-life care in the PICU from the perspectives of both healthcare professionals (HCPs) and families. Methods: A systematic integrative review was conducted by searching EMBASE, CINAHL, MEDLINE, Nursing and Allied Health Database, PsycINFO, Scopus, Web of Science, and Google Scholar databases. Grey literature was searched via Electronic Theses Online Service (EthOS), OpenGrey, Grey literature report. Additionally, hand searches were performed by checking the reference lists of all included papers. Inclusion and exclusion criteria were used to screen retrieved papers by two reviewers independently. The findings were analysed using a constant comparative method. Results: Twenty-one studies met the inclusion criteria. Three elements in end-of-life care provision for children in the PICUs were identified: 1) Assessment of entering the end-of-life stage; 2) Discussion with parents and decision making; 3) End of life care processes, including care provided during the dying phase, care provided at the time of death, and care provided after death. Conclusion: The focus of end-of-life care in PICUs varies depending on HCPs' and families' preferences, at different stages such as during the dying phase, at the time of death, and after the child died. Tailoring end-of-life care to families' beliefs and rituals was acknowledged as important by PICU HCPs. This review also emphasises the importance of HCPs collaborating to provide the optimum end-of-life care in the PICU and involving a palliative care team in end-of-life care. [ABSTRACT FROM AUTHOR]
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- 2024
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15. Identification of methodological issues regarding direct impact indicators of COVID-19: a rapid scoping review on morbidity, severity and mortality.
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Garriga, Cesar, Valero-Gaspar, Teresa, Rodriguez-Blazquez, Carmen, Diaz, Asuncion, Bezzegh, Péter, Daňková, Šárka, Unim, Brigid, Palmieri, Luigi, Thiβen, Martin, Pentz, Richard, Cilović-Lagarija, Šeila, Jogunčić, Anes, Feteira-Santos, Rodrigo, Vuković, Jakov, Idavain, Jane, Curta, Anda, Sandu, Petru, Vinko, Matej, and Forjaz, Maria João
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MEDICAL information storage & retrieval systems ,HEALTH status indicators ,RESEARCH funding ,POPULATION health ,SEVERITY of illness index ,DESCRIPTIVE statistics ,SYSTEMATIC reviews ,MEDLINE ,MEDICAL research ,LITERATURE reviews ,ONLINE information services ,COVID-19 ,COVID-19 pandemic - Abstract
Background During the first epidemic wave, COVID-19 surveillance focused on quantifying the magnitude and the escalation of a growing global health crisis. The scientific community first assessed risk through basic indicators, such as the number of cases or rates of new cases and deaths, and later began using other direct impact indicators to conduct more detailed analyses. We aimed at synthesizing the scientific community's contribution to assessing the direct impact of the COVID-19 pandemic on population health through indicators reported in research papers. Methods We conducted a rapid scoping review to identify and describe health indicators included in articles published between January 2020 and June 2021, using one strategy to search PubMed, EMBASE and WHO COVID-19 databases. Sixteen experts from European public health institutions screened papers and retrieved indicator characteristics. We also asked in an online survey how the health indicators were added to and used in policy documents in Europe. Results After reviewing 3891 records, we selected a final sample of 67 articles and 233 indicators. We identified 52 (22.3%) morbidity indicators from 33 articles, 105 severity indicators (45.1%, 27 articles) and 68 mortality indicators (29.2%, 51). Respondents from 22 countries completed 31 questionnaires, and the majority reported morbidity indicators (29, 93.5%), followed by mortality indicators (26, 83.9%). Conclusions The indicators collated here might be useful to assess the impact of future pandemics. Therefore, their measurement should be standardized to allow for comparisons between settings, countries and different populations. [ABSTRACT FROM AUTHOR]
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- 2024
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16. Coding Diagnoses from the Electronic Death Certificate with the 11th Revision of the International Statistical Classification of Diseases and Related Health Problems: An Exploratory Study from Germany.
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Stausberg, Jürgen and Vogel, Ulrich
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RESEARCH funding ,CAUSES of death ,DEATH certificates ,MEDICAL coding ,RESEARCH ,SEMANTICS ,NOSOLOGY - Abstract
The 11th Revision of the International Statistical Classification of Diseases, Injuries, and Causes of Death (ICD-11) will replace its predecessor as international standard for cause-of death-statistics. The digitization of healthcare is a main motivation for its introduction. In parallel, the replacement of the paper-based death certificate with an electronic format is under evaluation. At the moment, the death certificate is used in paper-based format with ICD-10 for coding in Germany. To be prepared for the switch to ICD-11, the compatibility between ICD-11 and the electronic certificate should be assured. Objectives were to check the appropriateness of diagnosis-related information found on death certificates for an ICD-11 coding and to describe enhancements to the certificate's structure needed to fully utilize the strengths of ICD-11. As part of an exploratory test of a respective application, information from 453 electronic death certificates were provided by one local health authority. From a sample of 200 certificates, 433 diagnosis texts were coded into the German version of ICD-11. The appropriateness of the results as well as the further requirements of ICD-11, particularly with regard to post-coordination, were checked. For 430 diagnosis texts, 649 ICD-11 codes were used. Three hundred and sixty two diagnosis texts were rated as appropriately represented through the coding result. Almost all certificates contained diagnosis texts that lacked details required by ICD-11 for a precise coding. The distribution of diseases was very similar between ICD-10 and ICD-11 coding. A few gaps in ICD-11 were identified. Information requested by ICD-11 for a mandatory post-coordination were almost entirely absent from the death certificates. The structure and content of the death certificate are currently not well prepared for an ICD-11 coding. Necessary information was frequently missing. The line-oriented structure of death certificates has to be supplemented with a more flexible approach. Then, the semantic knowledge base of ICD-11 should better guide the content related input fields of a future electronic death certificate. [ABSTRACT FROM AUTHOR]
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- 2024
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17. Embedding Public Involvement in a PhD Research Project With People Affected by Advanced Liver Disease.
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Beresford, Cathy J., Rahman, Mahabuba, Gray, Yvonne, Ramshaw, Sandra, Gelling, Leslie, Baron, Sue, and Dominey, Jackie
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LIVER disease treatment ,SOCIAL media ,PATIENT selection ,RESEARCH funding ,INTERPROFESSIONAL relations ,DATA analysis ,DOCTORAL programs ,PATIENT psychology ,HUMAN research subjects ,DESCRIPTIVE statistics ,DECISION making ,MEDICAL research ,ATTITUDES of medical personnel ,ACQUISITION of data ,GROUNDED theory ,STAKEHOLDER analysis ,COMMITMENT (Psychology) ,PATIENT participation ,PATIENTS' attitudes ,CAREGIVER attitudes - Abstract
Background: Liver disease is an increasing cause of morbidity and mortality in the United Kingdom and can be challenging to live with in the advanced stages. There has been little research exploring the healthcare experiences of UK individuals with decompensated disease when the liver cannot carry out its functions properly. A PhD research project was developed with people who have liver disease to explore care experiences in decompensated advanced liver disease. Public involvement (PI) is an essential aspect of meaningful health research, and this paper reports on the progression of our PI approach in this ongoing study. Objective: To embed PI throughout the research project to ensure that the study is meaningful to individuals with liver disease and the people who support them. Methods: The research adopts a Constructivist Grounded Theory methodology to develop a theory of care experience. Various PI approaches were considered in developing the PI strategy for this qualitative study. Initially, Embedded consultation was the preferred model, which has evolved to include aspects of collaboration and coproduction. A PI group was set up to oversee the project through the national public engagement website VOICE, and reflections on PI from three members of the group are included in this paper to illuminate the PI process. Results: Six individuals with liver disease and three carers from across the United Kingdom are part of an ongoing PI group. Their role includes commenting on the findings of the systematic literature review for this project and contributing to decisions about recruitment, data collection and data analysis. Additionally, they had a direct impact on changing the focus of the research. The PI group will continue involvement until the completion of the project. Conclusion: Successfully embedding PI into doctoral research, as demonstrated in this project, requires commitment, planning and dedication to reciprocal working for the benefit of PI contributors as well as the research. This approach could be adopted by other postgraduate researchers. Patient or Public Contribution: This project is overseen by the PI group, whose contribution is described throughout, including reflections from three PI group members. [ABSTRACT FROM AUTHOR]
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- 2024
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18. How Do Patients Use Self‐Care to Manage Nonspecific Symptoms Prior to a Cancer Diagnosis? A Rapid Review to Inform Future Interventions to Reduce Delays in Presentation to Primary Care.
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Wilson, Georgia, Brewer, Hannah R., Flanagan, James M., von Wagner, Christian, Hirst, Yasemin, and Cao, Canhui
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TUMOR diagnosis ,SELF-management (Psychology) ,BEHAVIOR modification ,TRADITIONAL medicine ,RESEARCH funding ,PRIMARY health care ,HELP-seeking behavior ,DESCRIPTIVE statistics ,SYSTEMATIC reviews ,MEDLINE ,HEALTH behavior ,ALTERNATIVE medicine ,TUMORS ,DELAYED diagnosis ,CANCER patient psychology ,DATA analysis software ,PSYCHOLOGY information storage & retrieval systems ,TIME ,NONPRESCRIPTION drugs ,SYMPTOMS - Abstract
Background. A timely diagnosis of cancer is important for patient outcomes. The delay in the patient interval (time from symptom interpretation to seeking help) is often the longest throughout the cancer patient pathway. Factors extending this interval include vague symptom profiles increasing the difficulty of symptom appraisal and individual demographics influencing help‐seeking behaviours. An underexplored and potential source of delay in cancer diagnosis is associated with managing symptoms using self‐care activities prior to presentation to healthcare. Methods. This study aimed to characterise the use of self‐care activities in the context of managing nonspecific symptoms, prior to cancer diagnosis and their effect on the length of the patient interval. Eligible publications were identified using a rapid systematic review, and their qualitative self‐care data were extracted and analysed using thematic synthesis. Results. Forty‐five qualitative research papers between 2009 and 2024 were included in the final review. Self‐care was used as part of an iterative process, often resulting in delayed presentation to healthcare, if methods were effective in managing nonspecific symptoms. Across the literature, varying types of self‐care activities were reported across all cancers with nonspecific symptoms, including the use of over‐the‐counter or alternative medications, lifestyle changes, and watchful waiting. The individual's decision to self‐care was either prompted externally by a healthcare professional (HCP) (e.g., community pharmacists) or prompted by the individual depending on the availability of home remedies and medication. Patients used self‐care when there was a low perceived need to seek healthcare, to determine whether healthcare was required, or to avoid the use of healthcare. However, across the literature, there is limited evidence to understand the variation by cancer type, symptoms, and individual characteristics. Conclusions. The findings of this rapid review demonstrate that self‐care activities could hinder prompt help‐seeking and delay cancer diagnosis among people who are experiencing nonspecific cancer symptoms. However, more evidence is needed to understand which individual factors facilitate the adoption of self‐care behaviours over prompt help‐seeking for nonspecific cancer symptoms. [ABSTRACT FROM AUTHOR]
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- 2024
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19. Disability Tax in the Welfare State: Uncertainty and Resentment about Disability Services in Finland.
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Katsui, Hisayo
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HEALTH services accessibility ,IMMIGRANTS ,RESEARCH funding ,CHILDREN with disabilities ,ANGER ,MEDICAL care for people with disabilities ,INTERVIEWING ,QUESTIONNAIRES ,UNCERTAINTY ,CITIZENSHIP ,TAXATION ,SURVEYS ,HUMAN rights ,EXPERIENCE ,PUBLIC welfare ,PEOPLE with disabilities - Abstract
This paper focuses on the uncertainty and resentment that many persons with disabilities feel concerning their disability services in the welfare state of Finland. This paper elaborates on the theme through the lived citizenship of persons with disabilities using the key theory of disability tax as an analytical tool. The empirical data were collected through an online survey (n = 541) and six group interviews (n = 41) of persons with disabilities in 2023. The disability tax experiences are elaborated through four aspects: (1) rejected applications, (2) uncertain realisation, (3) laborious complaint mechanisms, and (4) the psycho–emotional effect. The findings of this study establish collective experiences of multi-layered disability tax throughout the disability services process. It concludes that disability services, which were originally planned to specifically ensure equal opportunities to participate in society for persons with disabilities, are increasingly becoming the very sources of burden as austerity has silently grown deeper over recent years and has become the clear policy of the current government. [ABSTRACT FROM AUTHOR]
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- 2024
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20. Clinical Validation of Digital Healthcare Solutions: State of the Art, Challenges and Opportunities.
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Gomis-Pastor, Mar, Berdún, Jesús, Borrás-Santos, Alicia, De Dios López, Anna, Fernández-Montells Rama, Beatriz, García-Esquirol, Óscar, Gratacòs, Mònica, Ontiveros Rodríguez, Gerardo D., Pelegrín Cruz, Rebeca, Real, Jordi, Bachs i Ferrer, Jordi, and Comella, Adrià
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DIGITAL technology ,ACCREDITATION ,CLINICAL medicine ,SAFETY ,ART ,MEDICAL informatics ,DIFFUSION of innovations ,NATURE ,RESEARCH funding ,INTERPROFESSIONAL relations ,DATABASE management ,DIGITAL health ,EMPIRICAL research ,EVALUATION of medical care ,PATIENT care ,DESCRIPTIVE statistics ,BUSINESS ,SYSTEMATIC reviews ,MEDLINE ,TELEMEDICINE ,RESEARCH methodology ,CONCEPTUAL structures ,BIBLIOMETRICS ,QUALITY assurance ,ONLINE information services ,DATA analysis software ,ADOPTION ,RELIABILITY (Personality trait) - Abstract
Digital health technologies (DHTs) at the intersection of health, medical informatics, and business aim to enhance patient care through personalised digital approaches. Ensuring the efficacy and reliability of these innovations demands rigorous clinical validation. A PubMed literature review (January 2006 to July 2023) identified 1250 papers, highlighting growing academic interest. A focused narrative review (January 2018 to July 2023) delved into challenges, highlighting issues such as diverse regulatory landscapes, adoption issues in complex healthcare systems, and a plethora of evaluation frameworks lacking pragmatic guidance. Existing frameworks often omit crucial criteria, neglect empirical evidence, and clinical effectiveness is rarely included as a criterion for DHT quality. The paper underscores the urgency of addressing challenges in accreditation, adoption, business models, and integration to safeguard the quality, efficacy, and safety of DHTs. A pivotal illustration of collaborative efforts to address these challenges is exemplified by the Digital Health Validation Center, dedicated to generating clinical evidence of innovative healthcare technologies and facilitating seamless technology transfer. In conclusion, it is necessary to harmonise evaluation approaches and frameworks, improve regulatory clarity, and commit to collaboration to integrate rigorous clinical validation and empirical evidence throughout the DHT life cycle. [ABSTRACT FROM AUTHOR]
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- 2024
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21. Intelligent Stroke Disease Prediction Model Using Deep Learning Approaches.
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Gao, Chunhua, Wang, Hui, and Mezzapesa, Domenico Maria
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STROKE diagnosis ,RISK assessment ,RANDOM forest algorithms ,PREDICTION models ,DATABASE management ,RESEARCH funding ,SYMPTOMS ,SUPPORT vector machines ,DEEP learning ,ARTIFICIAL neural networks ,STROKE ,COMPARATIVE studies ,MACHINE learning ,DECISION trees ,REGRESSION analysis ,ALGORITHMS ,DISEASE risk factors - Abstract
Stroke is a high morbidity and mortality disease that poses a serious threat to people's health. Early recognition of the various warning signs of stroke is necessary so that timely clinical intervention can help reduce the severity of stroke. Deep neural networks have powerful feature representation capabilities and can automatically learn discriminant features from large amounts of data. This paper uses a range of physiological characteristic parameters and collaborates with deep neural networks, such as the Wasserstein generative adversarial networks with gradient penalty and regression network, to construct a stroke prediction model. Firstly, to address the problem of imbalance between positive and negative samples in the stroke public data set, we performed positive sample data augmentation and utilized WGAN‐GP to generate stroke data with high fidelity and used it for the training of the prediction network model. Then, the relationship between observable physiological characteristic parameters and the predicted risk of suffering a stroke was modeled as a nonlinear mapping transformation, and a stroke prediction model based on a deep regression network was designed. Finally, the proposed method is compared with commonly used machine learning‐based classification algorithms such as decision tree, random forest, support vector machine, and artificial neural networks. The prediction results of the proposed method are optimal in the comprehensive measurement index F. Further ablation experiments also show that the designed prediction model has certain robustness and can effectively predict stroke diseases. [ABSTRACT FROM AUTHOR]
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- 2024
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22. Application of nanoparticles as surface modifiers of dental implants for revascularization/regeneration of bone.
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Soe, Zar Chi, Wahyudi, Rahman, Mattheos, Nikos, Lertpimonchai, Attawood, Everts, Vincent, Tompkins, Kevin A., Osathanon, Thanaphum, Limjeerajarus, Chalida Nakalekha, and Limjeerajarus, Nuttapol
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DENTAL implants ,BIOLOGICAL models ,BONE regeneration ,RESEARCH funding ,DENTAL materials ,REVASCULARIZATION (Surgery) ,SYSTEMATIC reviews ,MEDLINE ,ANIMAL experimentation ,LITERATURE reviews ,ONLINE information services ,NANOPARTICLES ,BONE remodeling ,EQUIPMENT & supplies - Abstract
Background: Osseointegrated dental implants are widely established as a first-choice treatment for the replacement of missing teeth. Clinical outcomes are however often compromised by short or longer-term biological complications and pathologies. Nanoparticle-coated materials represent a very active research area with the potential to enhance clinical outcomes and reduce complications of implant therapy. This scoping review aimed to summarize current research on various types of nanoparticles (NPs) used as surface modifiers of dental implants and their potential to promote biological and clinical outcomes. Methods: A systematic electronic search was conducted in SCOPUS, PubMed and Google Scholar aiming to identify in vivo, in situ, or in vitro studies published between 2014 and 2024. Inclusion and exclusion criteria were determined and were described in the methods section. Results: A total of 169 articles (44 original papers from Scopus and PubMed, and 125 articles from Google Scholar) were identified by the electronic search. Finally, 30 studies fit the inclusion criteria and were further used in this review. The findings from the selected papers suggest that nanoparticle-coated dental implants show promising results in enhancing bone regeneration and promoting angiogenesis around the implant site. These effects are due to the unique physicochemical properties of nanoparticle-coated implants and the controlled release of bioactive molecules from nanoparticle-modified surfaces. Conclusion: Nanoscale modifications displayed unique properties which could significantly enhance the properties of dental implants and further accelerate revascularization, and osseointegration while facilitating early implant loading. Yet, since many of these findings were based on in-vitro/in-situ systems, further research is required before such technology reaches clinical application. [ABSTRACT FROM AUTHOR]
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- 2024
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23. Climate change and artificial intelligence: assessing the global research landscape.
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Lewis, Joanna I., Toney, Autumn, and Shi, Xinglan
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CLIMATE research ,CLIMATOLOGY ,ARTIFICIAL intelligence ,RESEARCH funding ,LANDSCAPES - Abstract
Artificial Intelligence (AI) could revolutionize our ability to understand and address climate change. Studies to date have focused on specific AI applications to climate science, technologies, and policy. Yet despite the vast demonstrated potential for AI to change the way in which climate research is conducted, no study has presented a systematic and comprehensive understanding of the way in which AI is intersecting with climate research around the world. Using a novel merged corpus of scholarly literature which contains millions of unique scholarly documents in multiple languages, we review the community of knowledge at the intersection of climate change and AI to understand how AI methods are being applied to climate-related research and which countries are leading in this area. We find that Chinese research institutions lead the world in publishing and funding research at the intersection of climate and AI, followed by the United States. In mapping the specific AI tasks or methods being applied to specific climate research fields, we highlight gaps and identify opportunities to expand the use of AI in climate research. This paper can therefore greatly improve our understanding of both the current use and the potential use of AI for climate research. [ABSTRACT FROM AUTHOR]
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- 2024
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24. Mapping knowledge domain of acupuncture for Parkinson's disease: a bibliometric and visual analysis.
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Yanqing Zhao, Li Huang, and Wentao Li
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PARKINSON'S disease treatment ,INTELLECT ,SERIAL publications ,RESEARCH funding ,ACUPUNCTURE ,MOVEMENT disorders ,NEUROSCIENCES ,MEDLINE ,BIBLIOMETRICS ,ONLINE information services ,DATA analysis software - Abstract
Objective: This study points to probing the inclination and mapping knowledge domain of acupuncture for Parkinson's disease through bibliometrics. Methods: A search was conducted on 1 February 2024 using the Web of Science to identify papers published on acupuncture for Parkinson's disease. The analysis included scientific research, countries, organizations, authors/cited authors, keywords, journals, and cited references. Bibliometric data were analyzed using VOSviewer software, CiteSpace, GraphPad Prism, and Scimago Graphica. The studies on acupuncture for Parkinson's disease were visualized as a network map according to the publication year. Results: The cumulative publication trend on acupuncture for Parkinson's disease is increasing year by year. China is the leading contributor in this field. International collaboration is predominantly concentrated in Europe, while institutional collaboration is chiefly limited to Chinese universities specializing in traditional Chinese medicine. Park HJ is the most prolific author, with "Movement Disorders" being the journal with the most publications. "Brain Research" is identified as a key journal, reflecting a focus on neuroscience. Kim SN is the most cited author, while Eisenberg DM is a prominent author in this field. Research topics such as mouse models, systematic reviews, and non-motor symptoms are frequently explored, with messenger RNA of substantia nigra emerging as a notable keyword in this field. Choi YG's 2009 paper, published in the Neuroscience Letters journal, is a critical reference in this field. Key papers include Eisenberg DM's 1998 study on randomized trials of acupuncture for non-motor symptoms of PD, as well as research focusing on the neuroinflammatory regulatory mechanisms of acupuncture for PD. Conclusion: The bibliometric analysis offers an exhaustive generality of the advancement and worldwide trends in acupuncture treatments for Parkinson's disease, shedding light on potential avenues for prospective research. [ABSTRACT FROM AUTHOR]
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- 2024
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25. Fighting for menstrual equity through period product pantries.
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Glayzer, Edward J, Jennings, Claire T, Schlaeger, Judith M, Watkins, Brynn, Rieseler, Annabelle, Ray, Melissa, Lee, Adrienne, and Glayzer, Jennifer E
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NONPROFIT organizations ,QUALITATIVE research ,INTERPROFESSIONAL relations ,RESEARCH funding ,INTERVIEWING ,SOCIOECONOMIC factors ,FEMININE hygiene products ,MENSTRUATION ,PUBLIC welfare ,COMPARATIVE studies ,HEALTH education ,CHARITIES ,POVERTY - Abstract
Background: Menstruators facing period poverty often struggle with menstrual hygiene and waste management, which can result in harmful short- and long-term health outcomes such as urinary tract infections, yeast infections, and vulvar contact dermatitis. Research indicates that 42% of menstruators in the United States have difficulty affording period products. Traditional methods of distributing period products through social services may unintentionally undermine menstruators' agency, leading to disempowerment and inefficient resource allocation. Period product pantries are a novel approach aimed at addressing period poverty, inequity, and inadequate menstrual health education in the United States. Objectives: This paper aims to examine the development, organization, and implementation of two distinct period product pantry networks in Ohio and New York. It seeks to compare the advantages and challenges of grassroots versus nonprofit-led models and to provide practical insights for future pantry operators. Design: The study examines two models of period product pantries: a grassroots effort led by three local residents in Ohio and an initiative spearheaded by a nonprofit organization in New York. The design includes a comparative analysis of both models' organization, funding methods, and operational structures. Methods: The authors gathered data on the construction, operation, and usage of two pantry networks, focusing on factors such as accessibility, community engagement, and sustainability. The study employed a combination of qualitative methods, including interviews with organizers, and a review of organizational documents to analyze the effectiveness and scalability of each model. Results: Both pantry networks increased accessibility to period products in low socioeconomic neighborhoods, which are disproportionately affected by period poverty. The grassroots model, while resource-limited, fostered strong community ties and local engagement. The nonprofit-led model benefited from dedicated staff and a more stable funding structure but faced bureaucratic challenges. Despite their differences, both models demonstrated the potential to empower menstruators by preserving their dignity and autonomy. Conclusions: Period product pantries represent an innovative and equitable approach to addressing period poverty and inequity. The analysis of the two models offers valuable insights for organizations and individuals interested in establishing similar initiatives. While each model has its unique benefits and challenges, both are effective in empowering menstruators and providing accessible menstrual hygiene products to those in need. Registration: Not applicable. Plain language summary: Fighting for menstrual equity through period product pantries Period product pantries are a new way to help people who can't afford period products and don't have enough education about menstrual health in the U.S. Many people who experience period poverty, or trouble getting products like pads and tampons, also face barriers to staying clean and managing period waste. This can cause health issues like infections. About 42% of people who get periods in the U.S. say they've had trouble paying for these products. Period product pantries are different from older methods of getting free products, like through social services, because they let people get what they need without feeling embarrassed or losing their sense of control. This paper looks at two types of period pantries: one started by three local people in Ohio and another run by a nonprofit group in New York. Both help people in neighborhoods where it's hard to afford period products. The paper talks about how these pantries were set up, how they are funded, and what worked well or didn't. The goal is to show how these pantries can be a good, fair way to help people while giving advice to others who might want to start their own pantries. [ABSTRACT FROM AUTHOR]
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- 2024
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26. Community engagement in a seaside town: evaluation of Good Grief Weston festival.
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Robb, James, Clabburn, Olly, Bamford, Alison, Matthews, Fiona, Lee, Karen, Toulcher, Lin, Maxwell, Polly, Thomas-Bennett, Nina, Hare, Rachel, Dawson, Lesel, Malpass, Alice, and Selman, Lucy E.
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COMMUNITY support ,LIFE ,FOCUS groups ,GAY people ,RESEARCH funding ,EVALUATION of human services programs ,DEMOGRAPHIC characteristics ,NEURODIVERSITY ,LGBTQ+ people ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,WHITE people ,EXPERIENCE ,SURVEYS ,THEMATIC analysis ,CHRONIC diseases ,ATTITUDE (Psychology) ,RESEARCH methodology ,COMMUNICATION ,GRIEF ,PUBLIC health ,HOLIDAYS ,PEOPLE with disabilities - Abstract
Background: Festivals play an important role in improving death and grief literacy, enabling members of the public to engage with these often-sensitive topics. Good Grief Weston festival was co-designed and delivered with the community in Weston-super-Mare, a coastal town in South-West England with high levels of socioeconomic disadvantage but rich community assets. It was held in person over 8 days in May 2023. Objectives: To evaluate the reach and impact of Good Grief Weston festival and gather data to inform future festivals. Design: Mixed methods evaluation (survey and focus groups). Methods: Online and paper surveys assessing participants' characteristics and experiences were administrated during and after the festival. Survey participants who indicated their willingness to participate were invited to attend a focus group. Focus groups were recorded, transcribed and analysed using thematic analysis. Data were collected by trained community co-researchers. Results: Approximately 3000 people attended the festival. Of 204 completed surveys, 64.5% were from women, age range ⩽15 to ⩾75 years; 88.2% identified as White; 14.9% deaf, disabled/with a chronic condition; 18.9% neurodivergent; 9.0% gay, bisexual or queer. Festival participants were entertained (70.9%), inspired (68.5%), felt part of a like-minded community (54.3%), talked to someone new (49.2%), learnt about grief/bereavement (34.3%), shared or expressed experiences (30.3%) and found out about local support (19.7%). 71.3% reported that they felt more confident talking about grief after attending. Median experience rating was 5 (IQR 0; possible range 1 = poor to 5 = excellent). In free-text comments, participants expressed appreciation for the festival and described benefits in attending. Two focus groups were conducted (n = 8 participants, all women), lasting c.1.5 h. Focus groups added rich descriptions of the festival's value, and data to inform the next festival. Conclusion: Findings suggest festivals of this nature can play a central role in a public health approach. Plain language summary: What was the impact of Good Grief Weston festival? Why was the study done? Previous studies have shown that many people feel unsupported by their community after the death of a loved one. We designed a festival to improve knowledge and support for bereaved people. We did this study to assess how the festival affected the people who attended. What did the researchers do? The team included researchers and people and organisations from the local community. Together, we designed and ran a festival on the topic of death, grief and bereavement in Weston-super-Mare, a coastal town with areas of high deprivation. The festival took place over an eight-day period in May 2023 and included creative, interactive and educational events. The team collected feedback on attendees' experiences of the festival. We did this using online and paper feedback forms, postcards, and focus groups to collect as many opinions as possible. What did the researchers find? We found that a wide range of people attended the festival. Most people who took part in the research rated the festival as 'excellent'. They told us they learnt about grief and bereavement and found out about local support services. Attendees met new people, shared their experiences, and felt that the festival built community spirit. They also made suggestions to improve any future festivals. What do the findings mean? The findings show that in-person festivals can effectively engage the public on the topic of death, grief and bereavement. They can also help develop connections between people and organisations in communities. These connections and learning opportunities may help communities to support their members through bereavement. [ABSTRACT FROM AUTHOR]
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- 2024
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27. Building Equitable Research Partnerships: Learning From a Community Climate Resilience Grant Program.
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Cann, K., Leichenko, R., Herb, J., Kaplan, M., and Howell, N.
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URBAN community development ,BUSINESS partnerships ,GOVERNMENT aid ,DESIGN competitions ,STOCK funds ,RESEARCH awards - Abstract
Calls for the co‐production of climate knowledge and services are increasingly prominent in research and funding proposals, including within federally funded programs. While co‐production has led to more accessible and relevant climate services for frontline communities, scholars have identified numerous barriers to equitable relationships and outcomes within co‐production partnerships. In an effort to support the development of climate services through equitable research partnerships, the Consortium for Climate Risk in the Urban Northeast, a NOAA Climate Adaptation Partnership team, collaboratively designed and launched the Community Climate Resilience (CCR) Grant competition in 2022. The CCR program serves to provide funding and build capacity among community‐based organizations (CBOs) responding to climate variability in historically disinvested communities in the urban Northeast, as well as foster co‐production partnerships between the organizations and local university‐based researchers. This paper assesses the design and implementation of the program based on data collected through a survey of research partners, discussions with key stakeholders, and observation of relevant project meetings. Despite the incorporation of lessons from similar co‐production projects, program designers found several persistent impediments to equitable partnerships, including time constraints, funding limitations, and burdensome institutional requirements. We reflect on these challenges and offer strategies for overcoming barriers to equitable partnerships, including streamlining funding pass‐through structures, increasing transparency in funding competitions, promoting flexible funding options, and fostering communities of practice among CBOs and university partners. The findings are relevant for researchers and practitioners implementing equity‐focused co‐production partnerships and small grant programs in climate services and related fields. Plain Language Summary: Knowledge and services produced collaboratively between scientists and local stakeholders have benefits for communities responding to evolving climate risks, including more accessible and relevant research. Funding agencies, including those at the federal level in the U.S., have increased requirements for co‐produced research and service development, prompting relationships between university researchers and community partners. However, co‐production partnerships are not always equitable. This paper identifies promising strategies for improving equity outcomes within co‐production relationships and small grant programs. The authors assess the design and implementation of the Community Climate Resilience (CCR) Grant competition, launched by the Consortium for Climate Risk in the Urban Northeast, a NOAA Climate Adaptation Partnership team, in 2022. While the CCR program attended to multiple dimensions of equity, the authors identified a number of impediments to equitable co‐production partnerships, including time and funding limitations and difficult institutional requirements. We suggest streamlining access to funding, increasing transparency in competition design, promoting realistic funding options, and fostering communities of practice to improve equity outcomes in similar small grant programs and co‐production relationships related to climate adaptation, resiliency, and other fields. Key Points: We identify promising approaches for equitable co‐production relationships in university‐community small grant programsWe assess equity implications of the design and implementation of a small grant program for community resilience in the urban NortheastStreamlining funding access, increasing transparency, promoting flexible spending, and fostering collaboration may improve equity outcomes [ABSTRACT FROM AUTHOR]
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- 2024
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28. Organisational factors associated with healthcare workforce development, recruitment, and retention in the United Kingdom: a systematic review.
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Alkan, Erkan, Cushen-Brewster, Noreen, and Anyanwu, Philip
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EMPLOYEE retention ,CORPORATE culture ,MEDICAL information storage & retrieval systems ,MEDICAL personnel ,PSYCHOLOGICAL burnout ,RESEARCH funding ,WORK environment ,LABOR turnover ,DESCRIPTIVE statistics ,SYSTEMATIC reviews ,MEDLINE ,AGGRESSION (Psychology) ,EMPLOYEE recruitment ,INTENTION ,JOB stress ,ONLINE information services ,QUALITY assurance ,PSYCHOSOCIAL factors ,LABOR supply ,PSYCHOLOGY information storage & retrieval systems ,EMPLOYEES' workload - Abstract
Aims: To synthesise evidence regarding organisational practice environment factors affecting healthcare workforce development, recruitment, and retention in the UK. Methods/data sources: A systematic search of PubMed, Web of Science, EMBASE, and PsycINFO yielded ten relevant studies published between 2018 and 2023 and conducted in the UK (the last search was conducted in March 2023). Adhering to The Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, two independent reviewers conducted screening, sifting, and data extraction, applying the quality assessment tool for risk of bias. Results: Results highlight key factors associated with staff intention to leave/turnover/retention: workplace challenges, aggression, moral distress, on-the-job embeddedness, leadership involvement, organisational support, and flexible shift patterns. Notably, aggression from colleagues, including clinical staff but not interdisciplinary personnel, has a more detrimental impact on staff intention to leave than aggression from patients. Conclusion: The complex and context-dependent impacts of these organisational factors on the UK healthcare workforce underscore the need for tailored interventions. The review acknowledges limitations, including bias from excluding qualitative studies, a small pool of included studies, and nurse overrepresentation. Summary statement: What is already known: Securement and retainment issues affect different aspects of health and care services. Moreover, healthcare workforce shortages persist in the UK. What this paper adds: Our findings on the importance of workplace challenges and aggression, moral distress, on-the-job-embeddedness, leadership, flexible shift pattern, and organisational support in staff retention are important to addressing the current UK healthcare workforce crisis. Implications for practice/policy: The findings of this review are important to healthcare commissioners, policymakers, and stakeholders, offering valuable insights for dealing with factors contributing to shortages in the healthcare workforce and enhancing staff satisfaction and retention. [ABSTRACT FROM AUTHOR]
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- 2024
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29. Defining and quantifying population-level need for children's palliative care: findings from a rapid scoping review.
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Delamere, Tara, Balfe, Joanne, Fraser, Lorna K., Sheaf, Greg, and Smith, Samantha
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MEDICAL information storage & retrieval systems ,PALLIATIVE treatment ,RESEARCH funding ,POPULATION health ,HEALTH ,CINAHL database ,INFORMATION resources ,DESCRIPTIVE statistics ,SYSTEMATIC reviews ,MEDLINE ,LITERATURE reviews ,MEDICAL databases ,MEDICAL needs assessment ,NEEDS assessment ,PSYCHOLOGY information storage & retrieval systems - Abstract
Background: The number of children who require palliative care has been estimated to be as high as 21 million globally. Delivering effective children's palliative care (CPC) services requires accurate population-level information on current and future CPC need, but quantifying need is hampered by challenges in defining the population in need, and by limited available data. The objective of this paper is to summarise how population-level CPC need is defined, and quantified, in the literature. Methods: Scoping review performed in line with Joanna Briggs Institute methodology for scoping reviews and PRISMA-ScR guidelines. Six online databases (CINAHL, Cochrane Library, EMBASE, Medline, PsycINFO, and Web of Science), and grey literature, were searched. Inclusion criteria: literature published in English; 2008–2023 (Oct); including children aged 0–19 years; focused on defining and/or quantifying population-level need for palliative care. Results: Three thousand five hundred seventy-eight titles and abstracts initially reviewed, of which, 176 full-text studies were assessed for eligibility. Overall, 51 met the inclusion criteria for this scoping review. No universal agreement identified on how CPC need was defined in population-level policy and planning discussions. In practice, four key definitions of CPC need were found to be commonly applied in quantifying population-level need: (1) ACT/RCPCH (Association for Children with Life-Threatening or Terminal Conditions and their Families, and the Royal College of Paediatrics and Child Health) groups; (2) The 'Directory' of Life-Limiting Conditions; (3) 'List of Life-Limiting Conditions'; and (4) 'Complex Chronic Conditions'. In most cases, variations in data availability drove the methods used to quantify population-level CPC need and only a small proportion of articles incorporated measures of complexity of CPC need. Conclusion: Overall, greater consistency in how CPC need is defined for policy and planning at a population-level is important, but with sufficient flexibility to allow for regional variations in epidemiology, demographics, and service availability. Improvements in routine data collection of a wide range of care complexity factors could facilitate estimation of population-level CPC need and ensure greater alignment with how need for CPC is defined at the individual-level in the clinical setting. [ABSTRACT FROM AUTHOR]
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- 2024
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30. Navigating the cultural adaptation of a US-based online mental health and social support program for use with young Aboriginal and Torres Strait Islander males in the Northern Territory, Australia: Processes, outcomes, and lessons.
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Opozda, Melissa J., Bonson, Jason, Vigona, Jahdai, Aanundsen, David, Paradisis, Chris, Anderson, Peter, Stahl, Garth, Watkins, Daphne C., Black, Oliver, Brickley, Bryce, Canuto, Karla J., Drummond, Murray J. N., Miller Jr., Keith F., Oth, Gabriel, Petersen, Jasmine, Prehn, Jacob, Raciti, Maria M., Robinson, Mark, Rodrigues, Dante, and Stokes, Cameron
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EDUCATION of Torres Strait Islanders ,SOCIAL media ,HUMAN services programs ,MENTAL health services ,MENTAL health ,GENDER identity ,GROUP identity ,RESEARCH funding ,MEDICAL care ,EDUCATIONAL outcomes ,CULTURE ,MASCULINITY ,INTERNET ,PSYCHOLOGICAL adaptation ,ATTITUDE (Psychology) ,BLACK people ,ONLINE education ,MATHEMATICAL models ,CURRICULUM planning ,SOCIAL support ,HEALTH promotion ,COLLEGE students ,THEORY ,WELL-being - Abstract
Background: Despite disproportionate rates of mental ill-health compared with non-Indigenous populations, few programs have been tailored to the unique health, social, and cultural needs and preferences of young Aboriginal and Torres Strait Islander males. This paper describes the process of culturally adapting the US-based Young Black Men, Masculinities, and Mental Health (YBMen) Project to suit the needs, preferences, culture, and circumstances of Aboriginal and Torres Strait Islander males aged 16–25 years in the Northern Territory, Australia. YBMen is an evidence-based social media-based education and support program designed to promote mental health, expand understandings of gender and cultural identities, and enhance social support in college-aged Black men. Methods: Our adaptation followed an Extended Stages of Cultural Adaptation model. First, we established a rationale for adaptation that included assessing the appropriateness of YBMen's core components for the target population. We then investigated important and appropriate models to underpin the adapted program and conducted a non-linear, iterative process of gathering information from key sources, including young Aboriginal and Torres Strait Islander males, to inform program curriculum and delivery. Results: To maintain program fidelity, we retained the core curriculum components of mental health, healthy masculinities, and social connection and kept the small cohort, private social media group delivery but developed two models: 'online only' (the original online delivery format) and 'hybrid in-person/online' (combining online delivery with weekly in-person group sessions). Adaptations made included using an overarching Aboriginal and Torres Strait Islander social and emotional wellbeing framework and socio-cultural strengths-based approach; inclusion of modules on health and wellbeing, positive Indigenous masculinities, and respectful relationships; use of Indigenous designs and colours; and prominent placement of images of Aboriginal and Torres Strait Islander male sportspeople, musicians, activists, and local role models. Conclusions: This process resulted in a culturally responsive mental health, masculinities, and social support health promotion program for young Aboriginal and Torres Strait Islander males. Next steps will involve pilot testing to investigate the adapted program's acceptability and feasibility and inform further refinement. Keywords: Aboriginal, Torres Strait Islander, Indigenous, Australia, male, cultural adaptation, social media, mental health, masculinities, social support. [ABSTRACT FROM AUTHOR]
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- 2024
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31. Spatial Allocation Rationality Analysis of Medical Resources Based on Multi-Source Data: Case Study of Taiyuan, China.
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Hu, Lujin and Cai, Shengqi
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COMMUNITY health services ,DATABASES ,MEDICAL care use ,HEALTH services accessibility ,SOCIAL network analysis ,RESEARCH funding ,RESIDENTIAL patterns ,POPULATION geography ,DESCRIPTIVE statistics ,TRANSPORTATION ,METROPOLITAN areas ,MEDICAL emergencies ,TECHNOLOGY ,MEDICAL needs assessment ,PUBLIC health ,HEALTH care rationing ,URBAN health ,EVALUATION - Abstract
Reasonably allocating medical resources can effsectively optimize the utilization efficiency of such resources. This paper took Taiyuan City as an example and established a model to evaluate the rationality of medical resource spatial allocation, incorporating two key dimensions: the spatial layout and the supply and demand of medical resources. In terms of the spatial layout, three indexes were included: Firstly, the service coverage rates of different levels of medical institutions, based on residents' medical orientations, were calculated using network analysis methods. Secondly, the Huff-2SFCA method was improved to calculate the accessibility of medical resources for four different modes of transportation. Then, the Health Resource Agglomeration Degree (HRAD) and Population Agglomeration Degree (PAD) were used to quantify the equity of medical resources. In terms of the supply and demand of medical resources, one index was included: the supply–demand ratio of medical resources during sudden public health events, which was calculated using the number of beds per thousand people as an indicator. These four indexes were weighted using the entropy weight method to obtain the rationality grade of medical resource spatial allocation in Taiyuan City. The study found that the rationality evaluation level of medical resource allocation in the central urban area of Taiyuan City followed a "concentrically decreasing" pattern. The rating ranged from "very reasonable" to "less reasonable", with the area of each level expanding gradually. The areas rated within the top two categories only accounted for 19.92% of the study area, while the area rated as "less reasonable" occupied 38.73% of the total area. These results indicate that the model accounted for residents' travel for various medical orientations and the availability of resources during public health emergencies. It considered both the spatial layout and supply and demand of medical resources, offering recommendations for the precise allocation of urban medical resources. [ABSTRACT FROM AUTHOR]
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- 2024
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32. Co-creating community wellbeing initiatives: what is the evidence and how do they work?
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Powell, Nicholas, Dalton, Hazel, Lawrence-Bourne, Joanne, and Perkins, David
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COMMUNITY support ,PSYCHOLOGICAL resilience ,COMMUNITY health services ,MENTAL health ,RESEARCH funding ,CONVERSATION ,SELF-efficacy ,INTERPROFESSIONAL relations ,CINAHL database ,COMMUNITIES ,REFLECTION (Philosophy) ,SYSTEMATIC reviews ,MEDLINE ,INFORMATION services ,SOCIAL skills ,LITERATURE reviews ,CONCEPTUAL structures ,MEDICAL databases ,COMMUNICATION ,HEALTH promotion ,STAKEHOLDER analysis ,HEALTH outcome assessment ,SOCIAL support ,WELL-being ,COMMUNITY-based social services ,PSYCHOLOGY information storage & retrieval systems ,COALITIONS ,EVALUATION ,PSYCHOSOCIAL factors - Abstract
Background: Addressing wellbeing at the community level, using a public health approach may build wellbeing and protective factors for all. A collaborative, community-owned approach can bring together experience, networks, local knowledge, and other resources to form a locally-driven, place-based initiative that can address complex issues effectively. Research on community empowerment, coalition functioning, health interventions and the use of local data provide evidence about what can be achieved in communities. There is less understanding about how communities can collaborate to bring about change, especially for mental health and wellbeing. Method: A comprehensive literature search was undertaken to identify community wellbeing initiatives that address mental health. After screening 8,972 titles, 745 abstracts and 188 full-texts, 12 exemplar initiatives were identified (39 related papers). Results: Eight key principles allowed these initiatives to become established and operate successfully. These principles related to implementation and outcome lessons that allowed these initiatives to contribute to the goal of increasing community mental health and wellbeing. A framework for community wellbeing initiatives addressing principles, development, implementation and sustainability was derived from this analysis, with processes mapped therein. Conclusion: This framework provides evidence for communities seeking to address community wellbeing and avoid the pitfalls experienced by many well-meaning but short-lived initiatives. [ABSTRACT FROM AUTHOR]
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- 2024
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33. A State-of-the-Science Review of the Effect of Damp- and Mold-Affected Housing on Mental Health.
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Gatto, Maria Rosa, Mansour, Adelle, Li, Ang, and Bentley, Rebecca
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MEDICAL information storage & retrieval systems ,EMOTION regulation ,MENTAL health ,RESEARCH funding ,FUNGI ,EVALUATION of medical care ,ANXIETY ,EMOTIONS ,SYSTEMATIC reviews ,MEDLINE ,ENVIRONMENTAL exposure ,PSYCHOLOGICAL stress ,HOUSING ,INDOOR air pollution ,PSYCHOLOGY information storage & retrieval systems ,MENTAL depression ,WELL-being - Abstract
BACKGROUND: While it is well-established that exposure to dampness or mold in homes negatively affects physical health, the association with mental health remains less well evidenced. As plausible psychosocial and biological pathways exist between dampness and mold exposure and poor mental health, a review of evidence is required. OBJECTIVE: This State-of-the-Science review sought to assess what is known about the mental health effects of dampness or mold exposure and identify gaps in the literature and priorities for further research. METHODS: A comprehensive search of electronic databases (MEDLINE, Embase, PsycInfo, Global Health, Web of Science, and Scopus) was conducted to identify relevant studies published from 2003 to 2023. Eligible studies included observational study designs such as cohort and crosssectional studies. Target studies for review assessed the effect of dampness and/or mold on mental health outcomes. RESULTS: Of the 1,169 records retrieved, 19 studies met the inclusion criteria. The available evidence described positive associations between residential dampness/mold exposure and poor mental health. In adults, associations were observed for outcomes such as depression, stress, and anxiety, while for children, associations were observed for emotional symptoms and emotional dysregulation. DISCUSSION: Identified studies generally reported associations between exposure to dampness/mold in the home and poorer mental and emotional health. Given the methodological limitations present in the current evidence base, it is recommended that more research be conducted. [ABSTRACT FROM AUTHOR]
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- 2024
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34. Consultations With Muslims From Minoritised Ethnic Communities Living in Deprived Areas: Identifying Inequities in Mental Health Care and Support.
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Tannerah, Ashraf, Hazel, Oluwalolami, Desson, Sheree, Farah, Rahima, Kamil‐Thomas, Zalihe, Iqbal, Halima, Eames, Catrin, Saini, Pooja, and Bifarin, Oladayo
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MENTAL illness prevention ,HEALTH services accessibility ,HEALTH literacy ,MENTAL health services ,RESEARCH funding ,MEDICAL quality control ,PATIENT safety ,DIVERSITY & inclusion policies ,QUESTIONNAIRES ,CULTURAL competence ,POVERTY areas ,SOCIAL theory ,MUSLIMS ,THEMATIC analysis ,RACISM ,TRUST ,MINORITIES ,SOCIAL support ,HEALTH equity ,HEALTH promotion ,PATIENTS' attitudes ,SOCIAL stigma - Abstract
Background: Limited research concerning existing inequities in mental health care and support services in the United Kingdom captures perceptions and lived experiences of the significantly underrepresented Muslim population. Methods: Underpinned by social constructivist theory, we used consultation to facilitate public and patient involvement and engagement (PPIE) to identify inequities in mental health care and support experienced by Muslims from minoritised ethnic communities living in deprived areas in Liverpool, UK. The rationale was to (a) better inform standards and policies in healthcare and (b) provide a psychologically safe space to members of the Muslim community to share perceptions and experiences of mental health care and support services. To ensure trustworthiness of the data, member checking was adopted. This paper describes the procedure to achieving this consultation, including our recruitment strategy, data collection and analysis as well as key findings. Findings: Twenty‐seven consultees attended the women's consultation and eight consultees attended the men's consultation. Consultees were from Yemeni, Somali, Sudanese, Egyptian, Algerian, Pakistani and Moroccan communities and share the Islamic faith. Four key interlinked themes were identified from consultees' narratives: (1) broken cycle of trust; (2) an overmedicalised model of care; (3) community mental health prevention initiatives; and (4) culturally conscious training and education. Conclusions: The Muslim population has identified numerous barriers to accessing mental health support and there is a need to resource activities that would aid deeper understanding of mental health support needs through continuous and meaningful community initiatives. This would afford mental health practitioners and organisations opportunities for developing realistic anti‐racism strategies, effectively adopting social prescription, strengthening partnerships and collaborations aimed at supporting delivery of evidence‐based mental health care provisions to tackle mental health inequities. Patient and Public Involvement: This paper reports on the involvement and engagement of Muslims from minoritised ethnic communities living in the Liverpool city region. [ABSTRACT FROM AUTHOR]
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- 2024
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35. Trends in Multicomponent Training Research in the Aged Population: A Bibliometric Analysis.
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Pereira-Payo, Damián, Denche-Zamorano, Ángel, Mendoza-Muñoz, María, Franco-García, Juan Manuel, Carlos-Vivas, Jorge, and Pérez-Gómez, Jorge
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SERIAL publications ,HEALTH status indicators ,RESEARCH funding ,EXERCISE therapy ,CITATION analysis ,DESCRIPTIVE statistics ,RESISTANCE training ,MUSCLE strength ,THEMATIC analysis ,AGING ,MEDICAL research ,BIBLIOMETRICS ,PHYSICAL fitness ,QUALITY of life ,AEROBIC exercises ,DATA analysis software ,POSTURAL balance ,SARCOPENIA ,ACCIDENTAL falls - Abstract
The proportion of aged populations is increasing worldwide. Exercise has a palliating effect on some adverse implications of aging. Multicomponent training (MCT) is a recommended form of exercise for the aged population. The aims of this research were to (1) study the number of publications regarding MCT in the aged population following an exponential growth rate; (2) identify the journals, authors, and countries that stand out the most in this area; and (3) describe the most common themes and used keywords in this field. The analysis was performed through the traditional laws of bibliometrics, including, Price's, Lotka's, Bradford's, and Zipf's law. All documents published in journals indexed in the Web of Science (WoS) Core Collection from 2001 to November 2023 that met the inclusion criteria were included. The 485 documents included in this review revealed that the number of annual publications experienced an exponential growth phase, 15 journals with six or more publications formed the core journals on this topic, and the author Mikel Izquierdo and his collaborative network topped the lists of prominent and prolific co-authors. Spain was the leading country in number of publications. Various thematic lines and keywords regarding strength, sarcopenia, quality of life, falls, balance, dual-task exercise, and cognitive and physical functioning were identified. In conclusion, this work confirmed that research on this topic is going through an exponential growth phase and provided detailed information about the journals, authors, and countries involved in the subject, as well as the keywords most frequently used in the subject matter. [ABSTRACT FROM AUTHOR]
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- 2024
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36. Tunneling, cognitive load and time orientation and their relations with dietary behavior of people experiencing financial scarcity – an AI-assisted scoping review elaborating on scarcity theory.
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van der Veer, Annemarieke, Madern, Tamara, and van Lenthe, Frank J.
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MENTAL orientation ,CONTROL (Psychology) ,RESEARCH funding ,ARTIFICIAL intelligence ,DECISION making ,SELF-control ,FINANCIAL stress ,FOOD ,SYSTEMATIC reviews ,MOTIVATION (Psychology) ,HEALTH behavior ,CLINICAL health psychology ,LITERATURE reviews ,FINANCIAL management ,CONCEPTUAL structures ,DIET ,COGNITION - Abstract
Background: The concept of a financial scarcity mindset has raised much attention as an explanation for poor decision-making and dysfunctional behavior. It has been suggested that financial scarcity could also impair dietary behavior, through a decline in self-control. Underlying cognitive mechanisms of tunneling (directing attention to financial issues and neglecting other demands), cognitive load (a tax on mental bandwidth interfering with executive functioning) and time orientation (a shift towards a present time horizon, versus a future time horizon) may explain the association between financial scarcity and self-control related dietary behavior. The current scoping review gathers recent evidence on how these mechanisms affect dietary behavior of people experiencing financial scarcity. It builds on a theoretical framework based on insights from behavioral economics and health psychology. Methods: A literature search was executed in six online databases, which resulted in 9.975 papers. Search terms were tunneling, cognitive load and time orientation, financial scarcity, and dietary behavior. Screening was performed with ASReview, an AI-ranking tool. In total, 14 papers were included in the scoping review. We used PRISMA-ScR guidelines for reporting. Results: Limited evidence indicates that a scarcity mindset could increase tunneling, through attentional narrowing on costs of food, which then directly impacts dietary behavior. A scarcity mindset involves experiencing financial stress, which can be understood as cognitive load. Cognitive load decreases attentional capacity, which could impair self-control in dietary choices. Financial scarcity is related to a present time orientation, which affects dietary choices by shifting priorities and decreasing motivation for healthy dietary behavior. Conclusions: A scarcity mindset affects dietary behavior in different ways. Tunneling and a shift in time orientation are indicative of an attentional redirection, which can be seen as more adaptive to the situation. These may be processes indirectly affecting self-control capacity. Cognitive load could decrease self-control capacity needed for healthy dietary behavior because it consumes mental bandwidth. How a changing time orientation when experiencing financial scarcity relates to motivation for self-control in dietary behavior is a promising theme for further inquiry. [ABSTRACT FROM AUTHOR]
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- 2024
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37. Precise control of digital dental unit to reduce aerosol and splatter production: new challenges for future epidemics.
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Yu, Yuedi, Wu, Xueling, and Sun, Yang
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PREVENTION of infectious disease transmission ,OPERATIVE dentistry ,STATISTICAL significance ,DENTAL equipment ,REVERSE transcriptase polymerase chain reaction ,COVID-19 ,AEROSOLS ,DENTAL facilities ,ONE-way analysis of variance ,CORONAVIRUS spike protein ,VIRAL load ,DENTAL care ,RISK assessment ,INFECTION control ,T-test (Statistics) ,INFECTIOUS disease transmission ,DESCRIPTIVE statistics ,RESEARCH funding ,DATA analysis software ,DISEASE risk factors - Abstract
Background: During dental procedures, critical parameters, such as cooling condition, speed of the rotary dental turbine (handpiece), and distance and angle from pollution sources, were evaluated for transmission risk of the Severe Acute Respiratory Syndrome Coronavirus 2 (SARS-CoV-2), simulated by spiking in a plasmid encoding a modified viral spike protein, HexaPro (S6P), in droplets and aerosols. Methods: To simulate routine operation in dental clinics, dental procedures were conducted on a dental manikin within a digital dental unit, incorporating different dental handpiece speeds and cooling conditions. The tooth model was immersed in Coomassie brilliant blue dye and was pre-coated with 100 μL water spiked-in with S6P-encoding plasmid. Furthermore, the manikin was surrounded by filter papers and Petri dishes positioned at different distances and angles. Subsequently, the filter papers and Petri dishes were collected to evaluate the aerosol splash points and the viral load of S6P-encoding plasmid in aerosols and splatters generated during the dental procedure. Results: Aerosol splashing generated a localized pollution area extended up to 60 cm, with heightened contamination risks concentrated within a 30 cm radius. Significant differences in aerosol splash points and viral load by different turbine handpiece speeds under any cooling condition (P < 0.05) were detected. The highest level of aerosol splash points and viral load were observed when the handpiece speed was set at 40,000 rpm. Conversely, the lowest level of aerosol splash point and viral load were found at a handpiece speed of 10,000 rpm. Moreover, the aerosol splash points with higher viral load were more prominent in the positions of the operator and assistant compared to other positions. Additionally, the position of the operator exhibited the highest viral load among all positions. Conclusions: To minimize the spread of aerosol and virus in clinics, dentists are supposed to adopt the minimal viable speed of a dental handpiece with limited cooling water during dental procedures. In addition, comprehensive personal protective equipment is necessary for both dental providers and dental assistants. [ABSTRACT FROM AUTHOR]
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- 2024
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38. The experiences of people with liver disease of palliative and end‐of‐life care in the United Kingdom—A systematic literature review and metasynthesis.
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Beresford, Cathy J., Gelling, Leslie, Baron, Sue, and Thompson, Linda
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META-synthesis ,CAUSES of death ,TERMINAL care ,PATIENT-centered care ,EXPERIENCE ,LIVER diseases ,SELF-efficacy ,COMMUNICATION ,RESEARCH funding ,LITERATURE reviews ,THEMATIC analysis ,PALLIATIVE treatment ,GREY literature ,SYMPTOMS - Abstract
Background: Liver disease is a growing health concern and a major cause of death. It causes multiple symptoms, including financial, psychological and social issues. To address these challenges, palliative care can support people alongside active treatment, and towards the end of life, but little is known about the care experiences of individuals with liver disease in the United Kingdom. This review aimed to explore the palliative and end‐of‐life care experiences of people with liver disease in the United Kingdom. Method: A systematic review was conducted using a five‐stage process and following Preferred Reporting Items for Systematic Reviews and Meta Analyses guidelines. Searches were across Web of Science, Scopus, EBSCO and grey literature until 10 May 2023. The review was registered through International Prospective Register of Systematic Reviews (PROSPERO). NVivo 12.5 was used to facilitate data analysis (systematic review registration: PROSPERO CRD42022382649). Results: Of 6035 papers (excluding duplicates) found from searches, five met the inclusion criteria of primary research related to adults with liver disease receiving palliative and/or end‐of‐life care in the United Kingdom, published in English. Reflexive thematic analysis of the data was conducted. The themes identified were the experiences of people with liver disease of relating to healthcare professionals, using services, receiving support, and experiences of information and communication. These were connected by an overarching concept of disempowerment versus empowerment, with the notion of person‐centred care as an important feature. Conclusion: This review has found variations in the care experiences of people with advanced liver disease towards the end of life and an overall lack of access to specialist palliative care services. Where services are designed to be person‐centred, experiences are more empowering. Further research is needed but with recognition that it is often unclear when care for people with liver disease is palliative or end‐of‐life. Patient and Public Contribution: An online public involvement workshop was held on 18 April 2023 through Voice (2023). This included four people with liver disease and four carers to discuss the review findings and to design a qualitative research study to further explore the topic. [ABSTRACT FROM AUTHOR]
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- 2024
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39. Circulating Polymorphonuclear Myeloid-Derived Suppressor Cells (PMN-MDSCs) Have a Biological Role in Patients with Primary Myelofibrosis.
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Campanelli, Rita, Carolei, Adriana, Catarsi, Paolo, Abbà, Carlotta, Boveri, Emanuela, Paulli, Marco, Gentile, Raffaele, Morosini, Monica, Albertini, Riccardo, Mantovani, Stefania, Massa, Margherita, Barosi, Giovanni, and Rosti, Vittorio
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RESEARCH funding ,MYELOID-derived suppressor cells ,MYELOPROLIFERATIVE neoplasms ,OXIDATIVE stress ,IMMUNE system ,CHRONIC diseases ,BONE marrow diseases ,SEPSIS ,MYELOFIBROSIS ,INFLAMMATION ,CYTOKINES ,GENETICS - Abstract
Simple Summary: Myeloid-derived suppressor cells (MDSCs) are immature cells that expand in the circulation of patients with cancer, sepsis or chronic inflammation, modulate the immune response against cancer (favoring tumor onset and progression) and promote neoangiogenesis. These premises suggest that MDSCs could be involved in the pathogenesis of primary myelofibrosis (PMF) (a myeloproliferative neoplasm characterized by chronic inflammation and extensive neoangiogenesis in bone marrow and spleen). In this paper, we found that (1) MDSCs are increased both in the circulation and in the spleen of PMF patients and strongly correlate with disease progression; and (2) reduced CXCR4 expression on MDSCs along with increased plasmatic SDF-1α can be involved in their mobilization. These findings suggest that circulating MDSCs can be considered a parameter of disease severity and set MDSCs as potential new targets for cancer therapy. Primary myelofibrosis (PMF) is a myeloproliferative neoplasm characterized by a chronic inflammatory state that plays a relevant role in the disease pathogenesis (as proven by high levels of inflammatory cytokines with prognostic significance and by a persistent oxidative stress) and by extensive neoangiogenesis in bone marrow (BM) and spleen. Myeloid-derived suppressor cells (MDSCs) are immature cells that expand in patients with cancer, sepsis or chronic inflammation, favoring tumor onset and progression mainly through the decrease in immune surveillance and the promotion of neoangiogenesis. In this paper, we evaluated the presence of circulating MDSCs in PMF patients, the plasmatic factors involved in their mobilization/expansion and the correlations with laboratory, genetic and clinical parameters. The data indicated that MDSCs could have a relevant role in PMF as a new pathogenic mechanism contributing to explaining the phenotypic diversity observed during the clinical course of the disease, or a potential new target for personalized treatment. [ABSTRACT FROM AUTHOR]
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- 2024
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40. Effects of increasing the availability of vegetarian options on main meal choices, meal offer satisfaction and liking: a pre-post analysis in a French university cafeteria.
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Arrazat, Laura, Cambriels, Claire, Noan, Christine Le, Nicklaus, Sophie, and Marty, Lucile
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EVALUATION research ,NUTRITIONAL value ,FOOD quality ,SATISFACTION ,ACADEMIC medical centers ,RESTAURANTS ,ECOLOGY ,STATISTICAL significance ,RESEARCH funding ,FOOD service ,DESCRIPTIVE statistics ,VEGETARIANISM ,STUDENTS ,ODDS ratio ,FOOD waste ,FOOD preferences ,MEALS ,COLLEGE students ,HEALTH promotion ,CONFIDENCE intervals ,DATA analysis software - Abstract
Background: Changing the food environment is an important public health lever for encouraging sustainable food choices. Targeting the availability of vegetarian main meals served in cafeterias substantially affects food choice, but acceptability has never been assessed. We examined the effects of an availability intervention at a French university cafeteria on students' main meal choices, meal offer satisfaction and liking. Methods: A four-week controlled trial was conducted in a university cafeteria in Dijon, France. During the two-week control period, vegetarian main meals constituted 24% of the offer. In the subsequent two-week intervention period, this proportion increased to 48%, while all the other menu items remained unchanged. Students were not informed of the change. Student choices were tracked using production data, and daily paper ballots were used to assess student satisfaction with the meal offer and liking of the main meal they chose (score range [1;5]). Nutritional quality, environmental impact, and cost of production of meal choices were calculated for each lunchtime. Food waste was measured over 4 lunchtimes during control and intervention periods. An online questionnaire collected student feedback at the end of the study. Results: Doubling availability of vegetarian main meals significantly increased the likelihood of choosing vegetarian options (OR = 2.57, 95% CI = [2.41; 2.74]). Responses of the paper ballots (n = 18,342) indicated slight improvements in meal offer satisfaction from 4.05 ± 0.92 to 4.07 ± 0.93 (p = 0.028) and in liking from 4.09 ± 0.90 to 4.13 ± 0.92 (p < 0.001) during control and intervention periods, respectively. The end-of-study questionnaire (n = 510) revealed that only 6% of students noticed a change the availability of vegetarian main meals. The intervention led to a decrease in the environmental impact of the main meals chosen, a slight decrease in nutritional quality, a slight increase in meal costs and no change in food waste. Conclusions: Doubling availability of vegetarian main meals in a university cafeteria resulted in a twofold increase in their selection, with students reporting being more satisfied and liking the main meals more during the intervention period. These results suggest that serving an equal proportion of vegetarian and nonvegetarian main meals could be considered in French university cafeterias to tackle environmental issues. Trial registration: Study protocol and analysis plan were pre-registered on the Open Science Framework (https://osf.io/pf3x7/). [ABSTRACT FROM AUTHOR]
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- 2024
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41. Comparing national device-based physical activity surveillance systems: a systematic review.
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de Wolf, Inge, Elevelt, Anne, van Nassau, Femke, Toepoel, Vera, de Hollander, Ellen, Kompier, Maaike E., Luiten, Annemieke, Schouten, Barry, Wendel-Vos, G. C. Wanda, and van der Ploeg, Hidde P.
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PUBLIC health surveillance ,MEDICAL information storage & retrieval systems ,SPORTS ,RESEARCH funding ,INFORMATION storage & retrieval systems ,SYSTEMATIC reviews ,MEDLINE ,RESEARCH ,COMPARATIVE studies ,ONLINE information services ,PHYSICAL activity - Abstract
Background: Physical activity surveillance systems are important for public health monitoring but rely mostly on self-report measurement of physical activity. Integration of device-based measurements in such systems can improve population estimates, however this is still relatively uncommon in existing surveillance systems. This systematic review aims to create an overview of the methodology used in existing device-based national PA surveillance systems. Methods: Four literature databases (PubMed, Embase.com, SPORTDiscus and Web of Science) were searched, supplemented with backward tracking. Articles were included if they reported on population-based (inter)national surveillance systems measuring PA, sedentary time and/or adherence to PA guidelines. When available and in English, the methodological reports of the identified surveillance studies were also included for data extraction. Results: This systematic literature search followed the PRISMA guidelines and yielded 34 articles and an additional 18 methodological reports, reporting on 28 studies, which in turn reported on one or multiple waves of 15 different national and 1 international surveillance system. The included studies showed substantial variation between (waves of) systems in number of participants, response rates, population representativeness and recruitment. In contrast, the methods were similar on data reduction definitions (e.g. minimal number of valid days, non-wear time and necessary wear time for a valid day). Conclusions: The results of this review indicate that few countries use device-based PA measurement in their surveillance system. The employed methodology is diverse, which hampers comparability between countries and calls for more standardized methods as well as standardized reporting on these methods. The results from this review can help inform the integration of device-based PA measurement in (inter)national surveillance systems. [ABSTRACT FROM AUTHOR]
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- 2024
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42. The research landscape of ferroptosis in neurodegenerative disease: a bibliometric analysis.
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Yun Liu, Dan Feng, Ling Shui, Yu-jie Wang, Li Yu, Yu-qi Liu, and Jin-yong Tian
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SERIAL publications ,RESEARCH funding ,APOPTOSIS ,NEURODEGENERATION ,CELLULAR signal transduction ,DESCRIPTIVE statistics ,CHI-squared test ,CITATION analysis ,MEDICAL research ,BIBLIOMETRICS ,DATA analysis software - Abstract
Background: Ferroptosis, a newly proposed concept of programmed cell death, has garnered significant attention in research across different diseases in the last decade. Despite thorough citation analyses in neuroscience, there is a scarcity of information on ferroptosis research specifically related to neurodegenerative diseases. Method: The Web of Science Core Collection database retrieved relevant articles and reviews. Data on publications, countries, institutions, authors, journals, citations, and keywords in the included studies were systematically analyzed using Microsoft Excel 2019 and CiteSpace 6.2.R7 software. Result: A comprehensive analysis and visualization of 563 research papers on ferroptosis in neurodegenerative diseases from 2014 to 2023 revealed emerging research hotspots and trends. The number of annual publications in this field of study has displayed a pattern of stabilization in the early years of the decade, followed by a notable increase in the later years and peaking in 2023 with 196 publications. Regarding publication volume and total citations, notable research contributions were observed from countries, institutions, and authors in North America, Western Europe, and China. Current research endeavors primarily focus on understanding the intervention mechanisms of neurodegenerative diseases through the ferroptosis pathway and exploring and identifying potential therapeutic targets. Conclusion: The study highlights key areas of interest and emerging trends in ferroptosis research on neurodegenerative diseases, offering valuable insights for further exploration and potential directions for diagnosing and treating such conditions. [ABSTRACT FROM AUTHOR]
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- 2024
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43. A Preliminary Scoping Review of the Impact of e-Prescribing on Pharmacists in Community Pharmacies.
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Farghali, Amr A. and Borycki, Elizabeth M.
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CLINICAL medicine ,MEDICAL information storage & retrieval systems ,MEDICAL prescriptions ,MEDICATION errors ,RESEARCH funding ,PATIENT safety ,QUESTIONNAIRES ,RESEARCH evaluation ,EVALUATION of medical care ,WORKFLOW ,SYSTEMATIC reviews ,MEDLINE ,ORGANIZATIONAL effectiveness ,JOB evaluation ,EMAIL ,LITERATURE reviews ,MEDICAL databases ,TELEPHONES ,DRUGSTORES ,ORDER entry ,ONLINE information services ,DATA analysis software ,PATIENT satisfaction ,PHARMACISTS' attitudes ,EMPLOYEES' workload - Abstract
Objective: This scoping review aims to map the available literature and provide an overview of the published articles discussing the impact of electronic prescribing on medication errors and pharmacy workflow. Methods: The literature search was conducted using PubMed
® , Web of Science® , and the Cochrane Database of Systematic Reviews® , as well as grey literature reports, using the search terms and related components of "pharmacists", "electronic prescribing", "medication errors", and "efficiency". The search included all articles that were published from January 2011 to September 2023. Twenty-two relevant articles were identified and fully reviewed, ten of which were included in this review. Results: Electronic prescribing (e-prescribing) provides a solution for some of the challenges that are associated with handwritten and paper prescriptions. However, the implementation of e-prescribing systems has been recognized as a source of new unforeseen medication errors in all the reviewed articles. Productivity in community pharmacies has been affected with receiving electronic prescriptions (e-prescriptions) and having to deal with the issues that arise from them. The pharmacists' interventions were not eliminated with e-prescriptions compared to other prescription formats. The most frequently reported reason for intervention was related to incomplete instructions in the field of directions of use. Other common challenges with e-prescriptions were related to missing information, quantity, inappropriate dose, dosage form, and drug. Discussion: This review demonstrates the scarcity of research about the impact of electronic prescribing on medication error and efficiency in community pharmacies. In the literature, most of the studies had mainly focused on hospital pharmacies. The literature search demonstrated that there are still some barriers to overcome with e-prescribing systems and that medication errors were not fully eliminated with e-prescriptions. New errors have been identified with e-prescriptions, all of which caused delays in processing, which affected the productivity of the pharmacy staff, and could have negatively impacted patients' safety if not properly resolved. Conclusion: e-Prescribing solved some of the challenges associated with illegibility of handwritten prescriptions. However, more time is required to allow e-prescribing systems to mature. Further training for prescribers and pharmacists is also recommended before and after the implementation. [ABSTRACT FROM AUTHOR]- Published
- 2024
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44. Global overview of anterior cruciate ligament reconstruction in children and adolescents over the past 20 years: a bibliometric analysis.
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Liang, Jiamin, Luo, Yuxin, Yang, Yingzhen, Xie, Huanyu, Huang, Zirong, Zhong, Mingjin, and Zhu, Weimin
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SPORTS medicine ,SERIAL publications ,ANTERIOR cruciate ligament surgery ,RESEARCH funding ,CHILDREN'S hospitals ,FUNCTIONAL status ,SPORTS re-entry ,MEDICAL research ,BIBLIOMETRICS ,RESEARCH methodology ,PUBLISHING ,CONVALESCENCE ,DATA analysis software ,DISEASE relapse ,TIME ,ADOLESCENCE ,CHILDREN - Abstract
Objectives: The objectives of this paper is to conduct a bibliometric analysis to examine the research status and development trend of anterior cruciate ligament injury and reconstruction in children and adolescents over the past 20 years. Design: Descriptive Research. Methods: This study obtained information regarding studies on Anterior Cruciate Ligament Reconstruction in Children and Adolescents from the Web of Science Core Collection database. Visual and bibliometric analysis were conducted using VOSviewer, Origin 2022, Pajek64 5.18and Excel 2019. These analytic tools facilitated the analysis of various aspects, including countries/regions, institutions, authors, journals and keywords related to the research. Results: From 2003 to 2023, a total of 1328 articles were retrieved in WOS, and 637 articles were selected by two authors. The most productive institutions are Childrens Hosp Philadelphia, Kocher, ms. Their articles have the highest number of publications and citations. The American journal of sports medicine is the most frequently cited journal for articles on anterior cruciate ligament reconstruction in children and adolescents. The most common keywords used in these articles were "anterior cruciate ligament reconstruction", "injury, children, adolescent", and "skeletally immature patients". Conclusions: This study provides valuable insights into the research focus of anterior cruciate ligament reconstruction in children and adolescents. In recent years, there has been significant attention paid to areas of "the return to sport, re-repture rate and functional recovery after anterior cruciate ligament reconstruction" in this specific population. These aspects have emerged as key directions for future research in this field. [ABSTRACT FROM AUTHOR]
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- 2024
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45. Coproducing Health Information Materials With Young People: Reflections and Lessons Learned.
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Faux‐Nightingale, Alice, Somayajula, Glenys, Bradbury, Charlotte, Bray, Lucy, Burton, Claire, Chew‐Graham, Carolyn A., Gardner, Aaliyah, Griffin, Alex, Twohig, Helen, and Welsh, Victoria
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HEALTH information services ,SOCIAL media ,AUDIOVISUAL materials ,PAMPHLETS ,INTERPROFESSIONAL relations ,RESEARCH funding ,DIFFUSION of innovations ,HUMAN services programs ,POST-acute COVID-19 syndrome ,TEACHING aids ,SCHOOLS ,EDUCATIONAL outcomes ,INFORMATION resources ,REFLECTION (Philosophy) ,ETHICS ,MATHEMATICAL models ,CONCEPTUAL structures ,VIDEOCONFERENCING ,PROBLEM-based learning ,HEALTH education ,THEORY ,STAKEHOLDER analysis ,MEDICINE information services ,PATIENT participation ,ACCESS to information - Abstract
Background: This paper describes and critically reflects on how children and young people (CYP) acted as public advisors to coproduce health information materials about Long Covid for younger audiences. This work was underpinned by the Lundy model, a framework which provides guidance on facilitating CYP to actively contribute to matters which affect them. Methods: Coproduction activity sessions took place with CYP in schools as well as video conferences with a CYP stakeholder group and CYP with Long Covid. Activities encouraged CYP to focus on the content, format, and design of materials and used problem‐based and collaborative learning to encourage engagement with the project. Using a range of methods and open discussion, CYP codesigned a series of Long Covid health information materials for younger audiences. Results: Sixty‐six CYP (aged 10–18), and two young adults were involved. CYP codesigned specifications for the final materials and provided feedback on early designs. The project led to the development of a series of health information materials targeted at CYP: a short social media campaign with six short videos and a 12‐page illustrated leaflet about Long Covid; released on social media and distributed in local area. All the CYP were positive about the project and their involvement. Discussion: Involving CYP led to the development of innovative and engaging information materials (influence). Developing rapport was important when working with CYP and this was facilitated by using approaches and activities to establish an environment (space) where the CYP felt comfortable sharing their views (voice) and being listened to (audience) by the adults in the project. Working with external groups who are willing to share their expertise can help the meaningful involvement of voices 'less heard'. Public Contribution: One CYP coapplicant contributed to the project design and facilitation of PPIE sessions, 64 CYP were involved in the PPIE sessions to design and feedback on materials. Two young adult media producers worked with CYP to produce these materials, another CYP supported this process. Three public contributors were involved in the preparation of this manuscript. [ABSTRACT FROM AUTHOR]
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- 2024
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46. Using co‐design methods to develop new personalised support for people living with Long Covid: The 'LISTEN' intervention.
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Jones, Fiona, Domeny, Anne, Fish, Jessica, Leggat, Fiona, Patel, Ian, McRae, Jackie, Rowe, Carol, and Busse, Monica E.
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INTERPROFESSIONAL relations ,HUMAN services programs ,SELF-management (Psychology) ,SELF-efficacy ,MEETINGS ,RESEARCH funding ,POST-acute COVID-19 syndrome ,CONCEPTUAL structures ,MATHEMATICAL models ,SOCIAL support ,THEORY ,EVIDENCE-based medicine ,GROUP process - Abstract
Introduction: Many Covid‐19 survivors are living with unresolved, relapsing and remitting symptoms and no 'one size' of treatment is likely to be effective for everyone. Supported self‐management for the varied symptoms of Long Covid (LC) is recommended by the National Institute for Health and Care Excellence in the United Kingdom. We aimed to develop a new personalised support intervention for people living with LC using a structured co‐design framework to guide replication and evaluation. Methods: We used the improvement methodology, Experience‐Based Co‐Design, in an accelerated form to harness the collective experiences of people with LC. Incorporating evidence from 'Bridges Self‐Management' (Bridges) an approach in which healthcare professionals (HCPs)are trained to support knowledge, confidence and skills of individuals living with long term conditions. Co‐designed resources are also central to Bridges. Adults who self‐identified as living with or recovered from LC, from England or Wales, aged 18 years and over were recruited, and HCPs, with experience of supporting people with LC. Participants took part in a series of small co‐design group meetings and larger mixed meetings to agree priorities, core principles and generate resources and intervention content. Results: People with LC (n = 28), and HCPs (n = 9) supported co‐design of a book (hard‐copy and digital form) to be used in 1:1 support sessions with a trained HCP. Co‐design stages prioritised stories about physical symptoms first, and psychological and social challenges which followed, nonlinear journeys and reconceptualising stability as progress, rich descriptions of strategies and links to reputable advice and support for navigating healthcare services. Co‐design enabled formulation of eight core intervention principles which underpinned the training and language used by HCPs and fidelity assessments. Conclusion: We have developed a new personalised support intervention, with core principles to be used in one‐to‐one sessions delivered by trained HCPs, with a new co‐designed book as a prompt to build personalised strategies and plans using narratives, ideas, and solutions from other people with LC. Effectiveness and cost effectiveness of the 'LISTEN' intervention will be evaluated in a randomised controlled trial set within the context of the updated Framework for Developing and Evaluating Complex Interventions. Patient and Public Contribution: The LISTEN Public and Patient Involvement (PPI) group comprised seven people living with LC. They all contributed to the design of this study and five members were part of a larger co‐design community described in this paper. They have contributed to this paper by interpreting stages of intervention design and analysis of results. Three members of our PPI group are co‐authors of this paper. [ABSTRACT FROM AUTHOR]
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- 2024
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47. Hard to reach? Methodological challenges researching vulnerable, gang‐involved, young people.
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Barker, Rhiannon, Bonell, Chris, and Melendez‐Torres, G. J.
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LIFESTYLES ,MENTAL health ,GOVERNMENT policy ,QUALITATIVE research ,HEALTH attitudes ,RESEARCH funding ,AT-risk people ,MOTIVATION (Psychology) ,HEALTH education ,RESEARCH ethics ,ADOLESCENCE ,ADULTS - Abstract
Introduction: Research with young people (YP) is ethically challenging and bound in a complex maze of issues relating to power, voice and representation. Such sensitivities mean that the challenges raised in researching marginalised YP are often hard to navigate. This paper reports on research carried out with YP to explore links between mental health, school exclusion and involvement in criminal gangs. It aims to provide a practical guide to negotiating some of the methodological and ethical challenges experienced. Method: In‐depth interviews conducted with 28 YP (aged 14–24 years) who were gang involved or seen to be at risk of gang involvement. Research was conducted in youth clubs, alternative provision and youth justice settings. Results: Observations/Reflections We reflect on how navigating ethics can create barriers to involving YP as primary informants in research. We consider why it is important to overcome these hurdles and how public engagement work with recognised gatekeepers and the use of creative interview methods can facilitate meaningful encounters, where YP feel able to share valuable insights into their lives. Conclusion: Alongside a number of specific learning points, the paper reflects on theories behind research with YP, including the need for recognition of power imbalances and reflexivity. It concludes with thoughts on the practical realities of achieving meaningful participation or an 'authentic voice' with marginalised groups and the importance of this in informing policy and practice. Patient or Public Contribution: The focus of this work was to collect experiences of YP who are recognised as gang‐involved or at risk of being so, with a view to informing health and education policies. The scoping study for the project involved extensive public engagement work with YP exploring and trialling suitable methods of accessing, recruiting and ultimately interviewing this target group. This is central to the discussion within the body of the paper. [ABSTRACT FROM AUTHOR]
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- 2024
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48. Novel CHATogether family-centered mental health care in the post-pandemic era: a pilot case and evaluation.
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Bookman, Caylan J., Nunes, Julio C., Ngo, Nealie T., Twickler, Naomi Kunstler, Smith, Tammy S., Lekwauwa, Ruby, and Yuen, Eunice Y.
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FAMILY psychotherapy ,MENTAL health ,MENTAL health services ,PSYCHODYNAMIC psychotherapy ,OUTPATIENT services in hospitals ,PSYCHOLOGICAL distress ,SUICIDAL ideation ,RESEARCH funding ,PARENT-child relationships ,ROLE playing ,PILOT projects ,QUESTIONNAIRES ,FAMILY-centered care ,CASE studies ,COVID-19 pandemic ,ADOLESCENCE - Abstract
Background: The COVID-19 pandemic impacted children, adolescents, and their families, with significant psychosocial consequences. The prevalence of anxiety, depression, and self-injurious behaviors increased in our youth, as well as the number of suicide attempts and hospitalizations related to suicidal ideation. Additionally, parents' mental health saw increasing rates of depression, irritability, and alcohol use combined with worsening family function, child-parent connectedness, positive family expressiveness, and increases in family conflict. In light of these statistics, we created CHATogether (Compassionate Home, Action Together), a pilot family-centered intervention using multi-faceted psychotherapeutic approaches to improve familial communication and relational health between adolescents and their parents. This paper discusses the implementation of the CHATogether intervention at the Adolescent Intensive Outpatient Program (IOP), providing an example of the intervention through an in-depth pilot case, and evaluation of the program's acceptability and feasibility. Methods: This paper describes a case in detail and evaluation from a total of 30 families that completed CHATogether in the initial pilot. Each family had 4–6 one-hour CHATogether sessions during their 6-week treatment course at the IOP. Before and after CHATogether, adolescents and their parents separately completed a questionnaire designed to explore their perceived family conflicts. After completion of the program, participants completed a brief quality improvement survey to assess their overall experience with CHATogether. In the reported case, the family completed Patient-Reported Outcomes Measurement Information System (PROMIS) depressive and anxiety symptoms scales, Conflict Behavior Questionnaires (CBQ), 9-item Concise Health Risk Tracking Self-Report (CHRT-SR9), and help-seeking attitude from adults during distress and suicide concerns. Results: The pilot case showed a trend of improvement in reported depressive and anxiety symptoms, child-parent conflicts, subfactors of suicide risk including pessimism, helplessness, and despair, help-seeking acceptability from parents for suicide concerns, and the establishment of individualized family relationship goals. Preliminary feedback from participating families demonstrated positive effects on intra-family communication and improvement in the overall family dynamic. Adolescents (n = 30/30) and their parents (n = 30/30) rated "strongly agree" or "agree" that their families had benefited from CHATogether and welcomed participation in future program development. Conclusion: This study presents CHATogether as a novel family-centered intervention to address post-pandemic family mental health stress, especially when a family system was disrupted and negatively affected the mental health of children and adolescents. The intervention facilitated positive child-parent communication on a variety of topics, through tools such as emotional expression and help-seeking behavior. The reported pilot case and evaluation suggested CHATogether's acceptability and feasibility in a clinical context. We also provided quality improvement feedback to guide future studies in establishing the efficacy of CHATogether and other similar models of clinical family interventions. [ABSTRACT FROM AUTHOR]
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- 2024
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49. Effect of concomitant tricuspid annuloplasty on postoperative wound complications in heart failure patients undergoing mitral valve repair.
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Hou, Yuehui, Guo, Lan, Li, Yonghua, and Cai, Jin
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HEMORRHAGE risk factors ,TRICUSPID valve surgery ,MORTALITY risk factors ,MITRAL valve surgery ,RISK assessment ,MEDICAL information storage & retrieval systems ,RESEARCH funding ,HEART failure ,META-analysis ,DESCRIPTIVE statistics ,SURGICAL complications ,ODDS ratio ,MEDLINE ,MEDICAL databases ,SURGICAL site infections ,DATA analysis software ,CONFIDENCE intervals ,ONLINE information services ,COMPARATIVE studies ,DISEASE risk factors - Abstract
Tricuspid valve repair (TVR) combined with mitral valve surgery (MVS) has been a controversial issue. It is not clear whether the combined surgery has any influence on the occurrence of postoperative complications. The aim of this study was to compare the occurrence of complications including wound infection, wound bleeding, and mortality after MVS combined with or without TVR. By meta‐analysis, a total of 1576 papers were collected from 3 databases, and 7 of them were included. We provided the necessary data of 7 included studies such as the authors, publication date, country, surgical approach and case number, patient age, and so on. Statistical analysis was carried out with RevMan 5.3 software. We found that patients with heart failure accepting MVS combined with or without TVR, performed no statistically significant difference in postoperative wound infection (OR: 0.88; 95% CI: 0.29, 2.62; P = 0.81), wound bleeding (OR: 0.74; 95% CI: 0.3, 1.48; P = 0.39), and mortality (OR: 1.05; 95% CI: 0.42, 2.61; P = 0.92). In conclusion, current evidence indicated that the combined surgery had no additional risk of postoperative complications, and might be an effective alternative surgical approach to mitral valve diseases accompany with tricuspid regurgitation. However, for the limited case size, it was required to support the findings with a large number of cases in further studies. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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50. Quantifying reciprocal relationships between poverty and health: combining a causal loop diagram with longitudinal structural equation modelling.
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Reumers, Laurens, Hameleers, Niels, Hilderink, Henk, Bekker, Marleen, Jansen, Maria, and Ruwaard, Dirk
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HEALTH status indicators ,CAUSAL models ,SOCIAL determinants of health ,INCOME ,RESEARCH funding ,REPLICATION (Experimental design) ,STRUCTURAL equation modeling ,LONGITUDINAL method ,POVERTY ,SOCIAL classes - Abstract
Background: This study takes on the challenge of quantifying a complex causal loop diagram describing how poverty and health affect each other, and does so using longitudinal data from The Netherlands. Furthermore, this paper elaborates on its methodological approach in order to facilitate replication and methodological advancement. Methods: After adapting a causal loop diagram that was built by stakeholders, a longitudinal structural equation modelling approach was used. A cross-lagged panel model with nine endogenous variables, of which two latent variables, and three time-invariant exogenous variables was constructed. With this model, directional effects are estimated in a Granger-causal manner, using data from 2015 to 2019. Both the direct effects (with a one-year lag) and total effects over multiple (up to eight) years were calculated. Five sensitivity analyses were conducted. Two of these focus on lower-income and lower-wealth individuals. The other three each added one exogenous variable: work status, level of education, and home ownership. Results: The effects of income and financial wealth on health are present, but are relatively weak for the overall population. Sensitivity analyses show that these effects are stronger for those with lower incomes or wealth. Physical capability does seem to have strong positive effects on both income and financial wealth. There are a number of other results as well, as the estimated models are extensive. Many of the estimated effects only become substantial after several years. Conclusions: Income and financial wealth appear to have limited effects on the health of the overall population of The Netherlands. However, there are indications that these effects may be stronger for individuals who are closer to the poverty threshold. Since the estimated effects of physical capability on income and financial wealth are more substantial, a broad recommendation would be that including physical capability in efforts that are aimed at improving income and financial wealth could be useful and effective. The methodological approach described in this paper could also be applied to other research settings or topics. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
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