105 results on '"Meeteren, J"'
Search Results
2. The role of appraisal and coping style in relation with societal participation in fatigued patients with multiple sclerosis: a cross-sectional multiple mediator analysis
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van den Akker, Lizanne Eva, Beckerman, Heleen, Collette, Emma Hubertine, Bleijenberg, Gijs, Dekker, Joost, Knoop, Hans, de Groot, Vincent, de Groot, V., Beckerman, H., Malekzadeh, A., van den Akker, L. E., Looijmans, M., Sanches, S. A., Dekker, J., Collette, E. H., van Oosten, B. W., Teunissen, C. E., Blankenstein, M. A., Eijssen, I. C. J. M., Rietberg, M., Heine, M., Verschuren, O., Kwakkel, G., Visser-Meily, J. M. A., van de Port, I. G. L., Lindeman, E., Blikman, L. J. M., van Meeteren, J., Bussmann, J. B. J., Stam, H. J., Hintzen, R. Q., Hacking, H. G. A., Hoogervorst, E. L., Frequin, S. T. F. M., Knoop, H., de Jong, B. A., de Laat, F. A. J., Verhulsdonck, M. C., van Munster, E. T. H., Oosterwijk, C. J., Aarts, G. J., and TREFAMS-ACE study group
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- 2016
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3. Pain, fatigue, depressive symptoms and sleep disturbance in young adults with cerebral palsy
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van Gorp, M., Dallmeijer, Annet J., van Wely, Leontien, de Groot, Vincent, Terwee, Caroline B., Flens, Gerard, Stam, Henk J., van der Slot, W., Roebroeck, Marij E., Tan, S. S., van Meeteren, J., Stam, H., Dallmeijer, A. J., van Wely, L., de Groot, V, Ketelaar, M., Voorman, J. M., Reinders-Messelink, H. A., Gorter, J. W., Verheijden, J., Rehabilitation Medicine, Clinical Child and Family Studies, Pulmonary Medicine, Erasmus School of Economics, Obstetrics & Gynecology, Paediatric Psychosocial Care, APH - Mental Health, CCA - Treatment and quality of life, Amsterdam Reproduction & Development, Amsterdam Movement Sciences - Restoration and Development, Rehabilitation medicine, Amsterdam Reproduction & Development (AR&D), Amsterdam Movement Sciences, Amsterdam Movement Sciences - Rehabilitation & Development, Epidemiology and Data Science, APH - Aging & Later Life, APH - Methodology, APH - Societal Participation & Health, and APH - Health Behaviors & Chronic Diseases
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030506 rehabilitation ,medicine.medical_specialty ,medicine.medical_treatment ,Population ,GROSS ,PARTICIPATION ,CHILDREN ,Cerebral palsy ,03 medical and health sciences ,MOTOR FUNCTION ,0302 clinical medicine ,depressive symptoms ,Quality of life ,SDG 3 - Good Health and Well-being ,QUALITY-OF-LIFE ,medicine ,Humans ,pain ,Young adult ,education ,MUSCULOSKELETAL PAIN ,education.field_of_study ,Sleep disorder ,Rehabilitation ,Depression ,business.industry ,Gross Motor Function Classification System ,medicine.disease ,sleep disturbance ,Mental health ,INDIVIDUALS ,Physical therapy ,young adult ,CLASSIFICATION-SYSTEM ,fatigue ,Sleep ,0305 other medical science ,business ,MENTAL-HEALTH ,ITEM BANKS ,030217 neurology & neurosurgery - Abstract
Purpose: Investigate pain, fatigue, depressive symptoms and sleep disturbance in young adults with cerebral palsy compared to references. Materials and methods: Young adults with cerebral palsy (n = 97, aged 21–34 years) and age-matched references from the general population (n = 190) rated pain using a numeric rating scale and fatigue, depressive symptoms, sleep disturbance and global health using Patient-Reported Outcomes Measurement Information System® short forms. Scores were compared between cerebral palsy subgroups and the reference population. Correlation coefficients and linear regression analyses assessed interrelationships of health issues and associations with global health. Results: Individuals with Gross Motor Function Classification System level I had less pain, fatigue and depressive symptoms, while individuals with levels II and III–V had more pain (53% and 56%, p < 0.001) and those with levels III–V more fatigue (39%, p = 0.035) than references (pain: 26%, fatigue: 14%). Pain and fatigue were more interrelated (correlation coefficients: 0.71 vs. 0.41) and stronger associated with global mental health in individuals with cerebral palsy. Conclusions: Young adults with Gross Motor Function Classification System levels II–V report more pain and those with levels III–V report more fatigue than references. Pain and fatigue are highly interrelated and specifically relate to mental health in individuals with cerebral palsy.Implications for rehabilitation Except for those in the highest level of motor function, young adults with cerebral palsy report higher levels of pain and fatigue compared to the general population of the same age. Pain and fatigue are strongly interrelated and associated with mental health in young adults with cerebral palsy. The present study recommends to monitor pain and fatigue in young adults with cerebral palsy with low levels of gross motor function. We advise rehabilitation professionals to consider combined treatment for both pain and fatigue.
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- 2021
4. A lifestyle intervention improves fatigue, mental health and social support among adolescents and young adults with cerebral palsy: focus on mediating effects
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Slaman, J, van den Berg-Emons, H JG, van Meeteren, J, Twisk, J, van Markus, F, Stam, H J, van der Slot, W M, and Roebroeck, M E
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- 2015
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5. Efficacy of halopeRIdol to decrease the burden of Delirium In adult Critically ill patiEnts (EuRIDICE): study protocol for a prospective randomised multi-centre double-blind placebo-controlled clinical trial in the Netherlands
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Smit, L., Trogrlić, Z. (Zoran), Devlin, J.W., Osse, R.J. (Robert Jan), Ponssen, H.H., Slooter, A.J.C., Hunfeld, N.G.M., Rietdijk, W.J.R., Gommers, D.A.M.P.J. (Diederik), Jagt, M. (Mathieu) van der, Boogaard, M.W. (Merel), Brouwers, A. (Anke), Lens, J.A., van der Meer, B.J.M., Ponssen, H., Schoonderbeek, F.J., Simons, K.S., Berger, E., Bouman, A., Del Campo, M, van Duijn, D., Embden-van Donk, H., de Graaf, D., Hoogendoorn, E., Ormskerk, P., Roovers, N., Toscano, E., Vileito, A., van Zuylen, T., Exler, C., Berg, E. (Esther) van den, van Meeteren, J., Koopmanschap, M.A. (Marc), Smit, L., Trogrlić, Z. (Zoran), Devlin, J.W., Osse, R.J. (Robert Jan), Ponssen, H.H., Slooter, A.J.C., Hunfeld, N.G.M., Rietdijk, W.J.R., Gommers, D.A.M.P.J. (Diederik), Jagt, M. (Mathieu) van der, Boogaard, M.W. (Merel), Brouwers, A. (Anke), Lens, J.A., van der Meer, B.J.M., Ponssen, H., Schoonderbeek, F.J., Simons, K.S., Berger, E., Bouman, A., Del Campo, M, van Duijn, D., Embden-van Donk, H., de Graaf, D., Hoogendoorn, E., Ormskerk, P., Roovers, N., Toscano, E., Vileito, A., van Zuylen, T., Exler, C., Berg, E. (Esther) van den, van Meeteren, J., and Koopmanschap, M.A. (Marc)
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Introduction Delirium in critically ill adults is associated with prolonged hospital stay, increased mortality and greater cognitive and functional decline. Current practice guideline recommendations advocate the use of nonpharmacological strategies to reduce delirium. The routine use of scheduled haloperidol to treat delirium is not recommended given a lack of evidence regarding its ability to resolve delirium nor improve relevant short-term and longer-term outcomes. This study aims to evaluate the efficacy and safety of haloperidol for the treatment of delirium in adult critically ill patients to reduce days spent with coma or delirium. Methods and analysis EuRIDICE is a prospective, multicentre, randomised, double-blind, placebo-controlled trial. Study population consists of adult intensive care unit (ICU) patients without acute neurological injury who have delirium based on a positive Intensive Care Delirium Screening Checklist (ICDSC) or Confusion Assessment Method for the ICU (CAM-ICU) assessment. Intervention is intravenous haloperidol 2.5mg (or matching placebo) every 8 hours, titrated daily based on ICDSC or CAMICU positivity to a maximum of 5mg every 8 hours, until delirium resolution or ICU discharge. Main study endpoint is delirium and coma-free days (DCFD) up to 14 days after randomisation. Secondary endpoints include (1) 28-day and 1-year mortality, (2) cognitive and functional performance at 3 and 12 months, (3) patient and family delirium and ICU experience, (4) psychological sequelae during and after ICU stay, (4) safety concerns associated with haloperidol use and (5) cost-effectiveness. Differences in DCFDs between haloperidol and placebo group will be analysed using Poisson regression analysis. Study recruitment started in February 2018 and continues. Ethics and dissemination The study has been approved by the Medical Ethics Committee of the Erasmus University Medical Centre Rotterdam (MEC2017-511) and by the Institutional Review Boards of the pa
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- 2020
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6. Fatigue Profiles in Patients with Multiple Sclerosis are Based on Severity of Fatigue and not on Dimensions of Fatigue
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Beckerman, H. (Heleen), Eijssen, L.M.T. (Lars), Meeteren, J. (Jetty) van, Verhulsdonck, M.C. (Marion C), Groot, V. (Vincent) de, Beckerman, H. (Heleen), Eijssen, L.M.T. (Lars), Meeteren, J. (Jetty) van, Verhulsdonck, M.C. (Marion C), and Groot, V. (Vincent) de
- Abstract
Fatigue related to Multiple Sclerosis (MS) is considered a multidimensional symptom, manifesting in several dimensions such as physical, cognitive, and psychosocial fatigue. This study investigated in 264 patients with severe primary MS-related fatigue (median MS duration 6.8 years, mean age 48.1 years, 75% women) whether subgroups can be distinguished based on these dimensions. Subsequently, we tested whether MS-related f
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- 2020
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7. Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers
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van Staa, A. L., Jedeloo, S., van Meeteren, J., and Latour, J. M.
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- 2011
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8. Liquid-Multiple Solid Phase Equilibria in Fats
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De Loos, Th, primary, Giessen, R, additional, Overbosch, P, additional, Van Meeteren, J, additional, De Jong, S, additional, Peters, C, additional, Gandasasmita, I, additional, Royers, E, additional, Struik, M, additional, Grootscholten, P, additional, Don, A, additional, and Wesdorp, L, additional
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- 2004
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9. Energy Conservation Management for People With Multiple Sclerosis-Related Fatigue: Who Benefits?
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Blikman, L. J. M., van Meeteren, J., Twisk, Jos W. R., de laat, Fred A. J., de Groot, Vincent, Beckerman, Heleen, Stam, Henk J., Bussmann, Johannes B. J., Malekzadeh, A., van den Akker, L. E., Looijmans, M., Sanches, S. A., Dekker, J., Collette, E. H., van Oosten, B. W., Teunissen, C. E., Blankenstein, M. A., Eijssen, I. C. J. M., Rietberg, M., Heine, M., Verschuren, O., Kwakkel, G., Visser-Meily, J. M. A., van de Port, I. G. L., Lindeman, E., Bussmann, J. B. J., Stam, H. J., Hintzen, R. Q., Hacking, H. G. A., Hoogervorst, E. L., Frequin, S. T. F. M., Knoop, H., de Jong, B. A., Bleijenberg, G., Verhulsdonck, M. C., van Munster, E. T. H. L., Oosterwijk, C. J., Aarts, G. J., Rehabilitation Medicine, Erasmus School of Law, Neurology, Pediatrics, Urology, Immunology, Gastroenterology & Hepatology, Public Health, Erasmus School of Health Policy & Management, Academic Medical Center, Epidemiology and Data Science, Rehabilitation medicine, Amsterdam Movement Sciences - Rehabilitation & Development, Amsterdam Neuroscience - Systems & Network Neuroscience, APH - Methodology, APH - Societal Participation & Health, Amsterdam Movement Sciences - Restoration and Development, and ACS - Atherosclerosis & ischemic syndromes
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medicine.medical_specialty ,Multiple Sclerosis ,media_common.quotation_subject ,MEDLINE ,Disease ,Logistic regression ,law.invention ,03 medical and health sciences ,Social support ,0302 clinical medicine ,Occupational Therapy ,Randomized controlled trial ,law ,Perception ,Medicine ,Humans ,Single-Blind Method ,030212 general & internal medicine ,SDG 7 - Affordable and Clean Energy ,Fatigue ,Research Articles ,media_common ,business.industry ,Checklist ,Ambulatory ,Physical therapy ,Fatigue/physiopathology ,business ,030217 neurology & neurosurgery - Abstract
OBJECTIVE. We investigated whether demographic, disease-related, or personal baseline determinants can predict a positive response to energy conservation management (ECM). METHOD. We conducted a secondary analysis of a single-blind, two-parallel-arms randomized controlled trial that included ambulatory adults with severe MS-related fatigue. Therapy responders and nonresponders were categorized by Checklist Individual Strength fatigue change scores between baseline and end of treatment. Logistic regression analyses were used to assess the determinants of response. RESULTS. Sixty-nine participants were included (ECM group, n = 34; control group, n = 35). In the ECM group, fatigue severity, perception of fatigue, illness cognitions about MS, and social support discrepancies were related to the probability of being a responder. CONCLUSION. The results suggest that people with MS-related fatigue who had a less negative perception of fatigue and who perceived fewer disease benefits and a higher discrepancy in social support had the best response to ECM treatment.
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- 2019
10. Transition into adulthood of young adults with cerebral palsy: limitations in achieving independent life: E: 3
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ROEBROECK, M E, DONKERVOORT, M, WIEGERINK, D J H G, VAN MEETEREN, J, and STAM, H J
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- 2007
11. Lifespan care issues of transition into adulthood and adult life of patients with a disabling condition since childhood
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ROEBROECK, M E, VAN DEN BERG-EMONS, H JG, DONKERVOORT, M, VAN MEETEREN, J, PESCH-BATENBURG, J MFB, and STAM, H J
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- 2007
12. Responsiveness of isokinetic dynamometry parameters, pain and activity level scores to evaluate changes in patients with capsulitis of the shoulder
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van Meeteren, J, Roebroeck, M E, Selles, R W, and Stam, H J
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- 2006
13. Autonomy in participation in cerebral palsy from childhood to adulthood
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Schmidt, A.K. (Ann Katrin), van Gorp, M. (Marloes), van Wely, L. (Leontien), Ketelaar, M. (Marjolijn), Hilberink, S.R. (Sander), Roebroeck, M.E. (Marij), Tan, S.S. (S. S.), Meeteren, J. (Jetty) van, Slot, W.M.A. (Wilma) van der, Stam, H.J. (Henk), Dallmeijer, A.J. (Annet), Groot, V. (Vincent) de, Voorman, J.M. (Jeanine), Smits, D.W. (Dirk-Wouter), Wintels, S.C. (S. C.), Reinders-Messelink, H.A. (Heleen), Gorter, J.W. (Jan Willem), Verheijden, J.M.A. (Johannes), Schmidt, A.K. (Ann Katrin), van Gorp, M. (Marloes), van Wely, L. (Leontien), Ketelaar, M. (Marjolijn), Hilberink, S.R. (Sander), Roebroeck, M.E. (Marij), Tan, S.S. (S. S.), Meeteren, J. (Jetty) van, Slot, W.M.A. (Wilma) van der, Stam, H.J. (Henk), Dallmeijer, A.J. (Annet), Groot, V. (Vincent) de, Voorman, J.M. (Jeanine), Smits, D.W. (Dirk-Wouter), Wintels, S.C. (S. C.), Reinders-Messelink, H.A. (Heleen), Gorter, J.W. (Jan Willem), and Verheijden, J.M.A. (Johannes)
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Aim: To determine the long-term development of autonomy in participation of individuals with cerebral palsy (CP) without intellectual disability. Method: Individuals with CP (n=189, 117 males, 72 females; mean age [SD] 21y 11mo [4y 11mo], range 12–34y); were assessed cross-sectionally (46%) or up to four times (54%), between the ages of 12 and 34 years. Autonomy in participation was classified using phase 3 of the Rotterdam Transition Profile. A logistic generalized estimating equation regression model was used to analyse autonomy in six domains (independent variables: age, Gross Motor Function Classification System [GMFCS] level, and interaction between age and GMFCS level). Proportions of autonomy were compared to references using binomial tests (p<0.05). Results: In most domains, over 90% of participants (n=189, 400 observations, 80% in GMFCS levels I and II) reached autonomy in participation in their late twenties, except for intimate/sexual relationships. Those in GMFCS levels III to V compared to those in GMFCS levels I and II had less favourable development of autonomy in the transportation, intimate relationships, employment, and housing domains, and more favourable development in the finances domain. Compared to references, fewer individuals with CP were autonomous in participation. Interpretation: This knowledge of autonomy may guide the expectations of young people with CP and their caregivers. Furthermore, rehabilitation professionals should address autonomy development in intimate relationships, employment, and housing, especially in individuals with lower gross motor function. What this paper adds: Individuals with cerebral palsy without intellectual disability achieved autonomy in most participation domains. Regarding intimate relationships, they continued to have less experience compared to age-matched references. Development of autonomy was less favourable for individuals in Gross Motor Function Classification System levels III to V.
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- 2019
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14. Development curves of communication and social interaction in individuals with cerebral palsy
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Tan, S.S. (Siok Swan), van Gorp, M. (Marloes), Voorman, J.M. (Jeanine), Geytenbeek, J.J.M. (Joke), Reinders-Messelink, H.A. (Heleen), Ketelaar, M. (Marjolijn), Dallmeijer, A.J. (Annet J), Roebroeck, M.E. (Marij), Dallmeijer, A.J. (Annet), van Wely, L. (L.), Groot, V. (Vincent) de, Meeteren, J. (Jetty) van, Slot, W.M.A. (Wilma) van der, Stam, H.J. (Henk), Gorter, J.W. (Jan Willem), Verheijden, J.M.A. (Johannes), Tan, S.S. (Siok Swan), van Gorp, M. (Marloes), Voorman, J.M. (Jeanine), Geytenbeek, J.J.M. (Joke), Reinders-Messelink, H.A. (Heleen), Ketelaar, M. (Marjolijn), Dallmeijer, A.J. (Annet J), Roebroeck, M.E. (Marij), Dallmeijer, A.J. (Annet), van Wely, L. (L.), Groot, V. (Vincent) de, Meeteren, J. (Jetty) van, Slot, W.M.A. (Wilma) van der, Stam, H.J. (Henk), Gorter, J.W. (Jan Willem), and Verheijden, J.M.A. (Johannes)
- Abstract
Aim: To determine development curves of communication and social interaction from childhood into adulthood for individuals with cerebral palsy (CP). Method: This Pediatric Rehabilitation Research in the Netherlands (PERRIN)-DECADE study longitudinally assessed 421 individuals with CP, aged from 1 to 20 years at baseline, after 13 years (n=121 at follow-up). Communication and social interactions were assessed using the Vineland Adaptive Behavior Scales. We estimated the average maximum performance limit (level) and age at which 90% of the limit was reached (age90) using nonlinear mixed-effects modeling. Results: One-hundred individuals without intellectual disability were aged 21 to 34 years at follow-up (39 females, 61 males) (mean age [SD] 28y 5mo [3y 11mo]). Limits of individuals without intellectual disability, regardless of Gross Motor Function Classification System (GMFCS) level, approached the maximum score and were significantly higher than those of individuals with intellectual disability. Ages90 ranged between 3 and 4 years for receptive communication, 6 and 7 years for expressive communication and interrelationships, 12 and 16 years for written communication, 13 and 16 years for play and leisure, and 14 and 16 years for coping. Twenty-one individuals with intellectual disability were between 21 and 27 years at follow-up (8 females, 13 males) (mean age [SD] 24y 7mo [1y 8mo]). Individuals with intellectual disability in GMFCS level V showed the least favourable development, but variation between individuals with intellectual disability was large. Interpretation: Individuals with CP and without intellectual disability show developmental curves of communication and social interactions similar to typically developing individuals, regardless of their level of motor function. Those with intellectual disability reach lower performance levels and vary largely in individual development. What this paper adds: Communication and social interactions in individuals with
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- 2019
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15. Autonomy in participation in cerebral palsy from childhood to adulthood.
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Schmidt, Ann Katrin, van Gorp, Marloes, van Wely, Leontien, Ketelaar, Marjolijn, Hilberink, Sander R, Roebroeck, Marij E, Tan, S. S., van Meeteren, J., van der Slot, W., Stam, H., Dallmeijer, A. J., de Groot, V., Voorman, J. M., Smits, D. W., Wintels, S. C., Reinders‐Messelink, H. A., Gorter, J. W., and Verheijden, J.
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CEREBRAL palsy ,GENERALIZED estimating equations ,ADULTS ,PARTICIPATION ,INTELLECTUAL disabilities - Abstract
Copyright of Developmental Medicine & Child Neurology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2020
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16. Development curves of communication and social interaction in individuals with cerebral palsy.
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Tan, Siok Swan, Gorp, Marloes, Voorman, Jeanine M, Geytenbeek, Joke JM, Reinders‐Messelink, Heleen A, Ketelaar, Marjolijn, Dallmeijer, Annet J, Roebroeck, Marij E, Dallmeijer, AJ, Wely, L, Groot, V, Meeteren, J, Slot, W, Stam, H, Gorter, JW, Verheijden, J, van Gorp, Marloes, Reinders-Messelink, Heleen A, and Perrin-Decade study group
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CEREBRAL palsy ,SOCIAL interaction ,DEVELOPMENTAL disabilities ,INTELLECTUAL disabilities ,PEOPLE with disabilities ,RESEARCH ,RESEARCH methodology ,DEVELOPMENTAL psychobiology ,EVALUATION research ,MEDICAL cooperation ,COMPARATIVE studies ,COMMUNICATION ,INTERPERSONAL relations ,PEOPLE with intellectual disabilities ,LONGITUDINAL method - Abstract
Copyright of Developmental Medicine & Child Neurology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2020
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17. Physical behaviour is weakly associated with physical fatigue in persons with multiple sclerosis-related fatigue
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Blikman, L, primary, Meeteren, J, additional, Rizopoulos, D, additional, Groot, V, additional, Beckerman, H, additional, Stam, H, additional, and Bussmann, J, additional
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- 2018
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18. Effectiveness of energy conservation management on fatigue and participation in multiple sclerosis: a randomized clinical trial
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Blikman, L J M, Meeteren, J, Twisk, J, Laat, F, Groot, V, Beckerman, H, Stam, H J, Bussmann, H, Epidemiology and Data Science, EMGO - Lifestyle, overweight and diabetes, Rehabilitation medicine, EMGO - Musculoskeletal health, MOVE Research Institute, General practice, and EMGO - Mental health
- Abstract
Objectives: To evaluate the effectiveness of an energy conservation management (ECM) intervention versus an MS-nurse control intervention for treating fatigue in persons with multiple sclerosis (MS). Design: Single-blind, two-parallel-arms randomized clinical trial (RCT). Setting: Two outpatient rehabilitation departments. Subjects: Adult persons with definite MS, severe fatigued, and being ambulatory. Interventions: The individual-based ECM intervention (12 sessions in 4 months) is based on the Packer group program and was given by occupational therapists. The control intervention (3 sessions in 4 months) consisted of MS-nurse consultations. Method: Primary outcome measures were Fatigue (Checklist Individual Strength-CIS20r domain subjective experience of fatigue) and participation (Impact on Participation and Autonomy- IPA). Additional secondary outcome measures on fatigue, activity and participation were done. Measurements, evaluated by blinded assessors, were at baseline and 8, 16, 26 and 52 weeks after randomization. Linear Mixed Models analyses with a three level structure (repeated measures, patients and therapists) were performed. Results: Intention to treat analysis was based on 76 patients (ECM n=36; MS-nurse n=40). No significant intervention effects were found for fatigue (overall difference CIS20r between the groups = -0.81; 95% CI -3.71 to 2.11; p=0.58), and for four out of five IPA domains. For the IPA domain social relations, an overall unfavorable effect for the ECM group was found (difference between the groups = 0.19, 95% CI 0.03 to 0.35, p=0.02). Conclusion: Energy conservation management does not lead to significant and clinically relevant changes in fatigue and participation compared to MS nurse consultations. Although both treatments achieved a statistically significant decline of fatigue during the treatment period, and for the ECM group also at long-term followup, these effects must be considered as clinically non-relevant
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- 2016
19. Real-Time Assessment of Fatigue in Patients With Multiple Sclerosis: How Does It Relate to Commonly Used Self-Report Fatigue Questionnaires?
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Heine, Martin, primary, van den Akker, Lizanne Eva, additional, Blikman, Lyan, additional, Hoekstra, Trynke, additional, van Munster, Erik, additional, Verschuren, Olaf, additional, Visser-Meily, Anne, additional, Kwakkel, Gert, additional, de Groot, V., additional, Beckerman, H., additional, Malekzadeh, A., additional, van den Akker, L.E., additional, Looijmans, M., additional, Sanches, S.A., additional, Dekker, J., additional, Collette, E.H., additional, van Oosten, B.W., additional, Teunissen, C.E., additional, Blankenstein, M.A., additional, Eijssen, I.C.J.M., additional, Rietberg, M., additional, Heine, M., additional, Verschuren, O., additional, Kwakkel, G., additional, Visser-Meily, J.M.A., additional, van de Port, I.G.L., additional, Lindeman, E., additional, Blikman, L.J.M., additional, van Meeteren, J., additional, Bussmann, J.B.J., additional, Stam, H.J., additional, Hintzen, R.Q., additional, Hacking, H.G.A., additional, Hoogervorst, E.L., additional, Frequin, S.T.F.M., additional, Knoop, H., additional, de Jong, B.A., additional, Bleijenberg, G., additional, de Laat, F.A.J., additional, Verhulsdonck, M.C., additional, van Munster, E.Th.L., additional, Oosterwijk, C.J., additional, and Aarts, G.J., additional
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- 2016
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20. Developmental trajectories of social participation in individuals with cerebral palsy: A multicentre longitudinal study
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Tan, Siok Swan, Wiegerink, Diana J H G, Vos, Rimke C., Smits, Dirk Wouter, Voorman, Jeanine M., Twisk, Jos W R, Ketelaar, Marjolijn, Roebroeck, Marij E., Dallmeijer, A. J., Vos, R. C., Van Eck, M., Van Schie, P., Voorman, J. M., Becher, J. G., Schuengel, C., Ketelaar, M., Smits, D. W., Lindeman, E., Jongmans, M., Roebroeck, M. E., Tan, S. S., Wiegerink, D. J H G, Van Meeteren, J., Reinders-Messelink, H. A., Gorter, J. W., Verheijden, J., Leerstoel Jongmans, and Education and Learning: Cognitive and Motor Disabilities
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Developmental Neuroscience ,Clinical Neurology ,Pediatrics, Perinatology, and Child Health - Abstract
Aim: This study aimed to determine the developmental trajectories of social participation, by level of gross motor function and intellectual disability, in a Dutch population of individuals with cerebral palsy (CP) aged 1 to 24 years. Method: As part of the Pediatric Rehabilitation Research in the Netherlands (PERRIN+), 424 individuals with CP (261 males, 163 females; mean age [SD] 9y 6mo [6y 2mo]; Gross Motor Function Classification [GMFCS] levels I-V [50% level I]; 87% with spastic CP; 26% with intellectual disability) were longitudinally followed for up to 4 years between 2002 and 2007. Social participation was assessed with the Vineland Adaptive Behavior Scales survey. Effects of age, GMFCS level and intellectual disability were analysed using multilevel modelling. Results: The developmental trajectories for individuals in GMFCS levels I to IV did not significantly differ from each other. For individuals without intellectual disability, the degree of social participation increased with age and stabilized at about 18 years. These individuals reached social participation levels similar to typically developing individuals. The trajectories were significantly less favourable for individuals in GMFCS level V and individuals with intellectual disability. Interpretation: Intellectual disability is more distinctive for the development of social participation than GMFCS level. The developmental trajectories will support individuals with CP and their families in setting realistic goals and professionals in optimizing the choice of interventions at an early age.
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- 2014
21. The effectiveness of aerobic training, cognitive behavioural therapy, and energy conservation management in treating MS-related fatigue: The design of the TREFAMS-ACE programme
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Beckerman, H., Blikman, L.J., Heine, M., Malekzadeh, A., Teunissen, C.E., Bussmann, J.B.J., Kwakkel, G., Meeteren, J. van, Groot, V. de, Jong, B.A. de, Knoop, H., and Bleijenberg, G.
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Human Movement & Fatigue [NCEBP 10] ,DCN MP - Plasticity and memory - Abstract
Contains fulltext : 126110.pdf (Publisher’s version ) (Open Access) BACKGROUND: TREFAMS is an acronym for TReating FAtigue in Multiple Sclerosis, while ACE refers to the rehabilitation treatment methods under study, that is, Aerobic training, Cognitive behavioural therapy, and Energy conservation management. The TREFAMS-ACE research programme consists of four studies and has two main objectives: (1) to assess the effectiveness of three different rehabilitation treatment strategies in reducing fatigue and improving societal participation in patients with MS; and (2) to study the neurobiological mechanisms of action that underlie treatment effects and MS-related fatigue in general. METHODS/DESIGN: Ambulatory patients (n = 270) suffering from MS-related fatigue will be recruited to three single-blinded randomised clinical trials (RCTs). In each RCT, 90 patients will be randomly allocated to the trial-specific intervention or to a low-intensity intervention that is the same for all RCTs. This low-intensity intervention consists of three individual consultations with a specialised MS-nurse. The trial-specific interventions are Aerobic Training, Cognitive Behavioural Therapy, and Energy Conservation Management. These interventions consist of 12 individual therapist-supervised sessions with additional intervention-specific home exercises. The therapy period lasts 16 weeks. All RCTs have the same design and the same primary outcome measures: fatigue - measured with the Checklist Individual Strength, and participation - measured with the Impact on Participation and Autonomy questionnaire. Outcomes will be assessed 1 week prior to, and at 0, 8, 16, 26 and 52 weeks after randomisation. The assessors will be blinded to allocation. Pro- and anti-inflammatory cytokines in serum, salivary cortisol, physical fitness, physical activity, coping, self-efficacy, illness cognitions and other determinants will be longitudinally measured in order to study the neurobiological mechanisms of action. DISCUSSION: The TREFAMS-ACE programme is unique in its aim to assess the effectiveness of three rehabilitation treatments. The programme will provide important insights regarding the most effective treatment for MS-related fatigue and the mechanisms that underlie treatment response. A major strength of the programme is that the design involves three almost identical RCTs, enabling a close comparison of the treatment strategies and a strong overall meta-analysis. The results will also support clinical practice guidelines for the treatment of MS-related fatigue. TRIAL REGISTRATIONS: Current Controlled Trials ISRCTN69520623, ISRCTN58583714, and ISRCTN82353628. 14 p.
- Published
- 2013
22. Effectiviteit van aerobe training, cognitieve gedragstherapie en energiemanagement bij MS-gerelateerde vermoeidheid. TREFAMS-ACE studie
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van Meeteren, J., Blikman, L.J.M., Heine, M., Malekzadeh, A., Teunissen, C.E., Bussmann, J.B.J., Kwakkel, G., Beckerman, H., de Groot, V., Clinical chemistry, EMGO - Musculoskeletal health, NCA - Multiple Sclerosis and Other Neuroinflammatory Diseases, NCA - Neurodegeneration, VU University medical center, MOVE Research Institute, EMGO+ - Musculoskeletal Health, and Neuroscience Campus Amsterdam - Multiple Sclerosis and Other Neuroinflammatory Diseases
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- 2012
23. Gross motor development in youth with cerebral palsy; associations with musculoskeletal function
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Vos, R.C., primary, Becher, J.G., additional, Voorman, J.M., additional, Gorter, J.W., additional, van Eck, M., additional, van Meeteren, J., additional, Smits, D.W., additional, Twisk, J.W., additional, and Dallmeijer, A.J., additional
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- 2015
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24. Percutaneous Driveline Infection Does Not Increase Subsequent Risk of Stroke and Pump Thrombus During Support With a Left Ventricular Assist Device
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Van Meeteren, J., primary, Maltais, S., additional, Dunlay, S., additional, Haglund, N., additional, Davis, M.E., additional, Pagani, F.D., additional, Aaronson, K., additional, Cowger, J., additional, Shah, P., additional, and Stulak, J.M., additional
- Published
- 2015
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25. A Multi-Institutional Outcome Analysis of Patients Undergoing Left Ventricular Assist Device Implantation Stratified By Sex and Race
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Van Meeteren, J., primary, Maltais, S., additional, Dunlay, S., additional, Haglund, N., additional, Davis, M.E., additional, Pagani, F.D., additional, Aaronson, K.D., additional, Cowger, J., additional, Shah, P., additional, and Stulak, J.M., additional
- Published
- 2015
- Full Text
- View/download PDF
26. Cost-utility of a lifestyle intervention in adolescents and young adults with spastic cerebral palsy.
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Slaman, J, primary, Berg-Emons, R, additional, Tan, S, additional, Russchen, H, additional, Meeteren, J, additional, Stam, H, additional, and Roebroeck, M, additional
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- 2015
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27. Developmental trajectories of social participation in individuals with cerebral palsy: A multicentre longitudinal study
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Leerstoel Jongmans, Education and Learning: Cognitive and Motor Disabilities, Tan, Siok Swan, Wiegerink, Diana J H G, Vos, Rimke C., Smits, Dirk Wouter, Voorman, Jeanine M., Twisk, Jos W R, Ketelaar, Marjolijn, Roebroeck, Marij E., Dallmeijer, A. J., Vos, R. C., Van Eck, M., Van Schie, P., Voorman, J. M., Becher, J. G., Schuengel, C., Ketelaar, M., Smits, D. W., Lindeman, E., Jongmans, M., Roebroeck, M. E., Tan, S. S., Wiegerink, D. J H G, Van Meeteren, J., Reinders-Messelink, H. A., Gorter, J. W., Verheijden, J., Leerstoel Jongmans, Education and Learning: Cognitive and Motor Disabilities, Tan, Siok Swan, Wiegerink, Diana J H G, Vos, Rimke C., Smits, Dirk Wouter, Voorman, Jeanine M., Twisk, Jos W R, Ketelaar, Marjolijn, Roebroeck, Marij E., Dallmeijer, A. J., Vos, R. C., Van Eck, M., Van Schie, P., Voorman, J. M., Becher, J. G., Schuengel, C., Ketelaar, M., Smits, D. W., Lindeman, E., Jongmans, M., Roebroeck, M. E., Tan, S. S., Wiegerink, D. J H G, Van Meeteren, J., Reinders-Messelink, H. A., Gorter, J. W., and Verheijden, J.
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- 2014
28. A lifestyle intervention improves fatigue, mental health and social support among adolescents and young adults with cerebral palsy: focus on mediating effects
- Author
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Slaman, J, primary, van den Berg-Emons, HJG, additional, van Meeteren, J, additional, Twisk, J, additional, van Markus, F, additional, Stam, HJ, additional, van der Slot, WM, additional, and Roebroeck, ME, additional
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- 2014
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29. Lifestyle, participation, and health-related quality of life in adolescents and young adults with myelomeningocele
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Buffart, L.M., van den Berg-Emons, R.J., van Meeteren, J., Stam, H., Roebroeck, M.E., Epidemiology and Data Science, and EMGO - Lifestyle, overweight and diabetes
- Abstract
This study aimed to describe participation and health-related quality of life (HRQoL) in adolescents and young adults with myelomeningocele and to explore their relationships with lifestyle-related factors. Fifty-one individuals with a mean age of 21 years 1 month (SD 4y 6mo) years participated (26 males, 25 females; 82% hydrocephalus, 55% wheelchair-dependent). Participation was assessed using the Life Habits Questionnaire, and HRQoL was assessed using the Medical Outcomes Study 36-item Short-form Health Survey. Physical activity was measured using an accelerometry-based activity monitor, fitness (peak oxygen uptake) was measured during a maximal exercise test, and the sum of four skin-folds was assessed to indicate body fat. Relationships were studied using logistic regression analyses. Of the participants, 63% had difficulties in daily activities and 59% in social roles. Participants perceived lower physical HRQoL than a Dutch reference population. Participants with higher levels of physical activity and fitness had fewer difficulties in participating in daily activities (odds ratio [OR]=8.8, p=0.02 and OR=29.7, p=0.02 respectively) and a higher physical HRQoL (OR=4.8, p=0.02 and OR=30.2, p=0.006 respectively), but not mental HRQoL. Body fat was not related to participation or HRQoL. In conclusion, a large proportion of individuals with myelomeningocele had difficulties in participation and perceived low physical HRQoL. Higher levels of physical activity and fitness were related to fewer difficulties in participation and higher physical HRQoL
- Published
- 2009
30. The effectiveness of aerobic training, cognitive behavioural therapy, and energy conservation management in treating MS-related fatigue: The design of the TREFAMS-ACE programme
- Author
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Beckerman, H. (Heleen), Blikman, L.J.M. (Lyan), Heine, M. (Martin), Malekzadeh, A. (Arjan), Teunissen, C.E. (Charlotte), Bussmann, J.B.J. (Hans), Kwakkel, G. (Gert), Meeteren, J. (Jetty) van, Groot, V. (Vincent) de, Beckerman, H. (Heleen), Blikman, L.J.M. (Lyan), Heine, M. (Martin), Malekzadeh, A. (Arjan), Teunissen, C.E. (Charlotte), Bussmann, J.B.J. (Hans), Kwakkel, G. (Gert), Meeteren, J. (Jetty) van, and Groot, V. (Vincent) de
- Abstract
Background: TREFAMS is an acronym for TReating FAtigue in Multiple Sclerosis, while ACE refers to the rehabilitation treatment methods under study, that is, Aerobic training, Cognitive behavioural therapy, and Energy conservation management. The TREFAMS-ACE research programme consists of four studies and has two main objectives: (1) to assess the effectiveness of three different rehabilitation treatment strategies in reducing fatigue and improving societal participation in patients with MS; and (2) to study the neurobiological mechanisms of action that underlie treatment effects and MS-related fatigue in general.Methods/Design: Ambulatory patients (n = 270) suffering from MS-related fatigue will be recruited to three single-blinded randomised clinical trials (RCTs). In each RCT, 90 patients will be randomly allocated to the trial-specific intervention or to a low-intensity intervention that is the same for all RCTs. This low-intensity intervention consists of three individual consultations with a specialised MS-nurse. The trial-specific interventions are Aerobic Training, Cognitive Behavioural Therapy, and Energy Conservation Management. These interventions consist of 12 individual therapist-supervised sessions with additional intervention-specific home exercises. The therapy period lasts 16 weeks. All RCTs have the same design and the same primary outcome measures: fatigue - measured with the Checklist Individual Strength, and participation - measured with the Impact on Participation and Autonomy questionnaire. Outcomes will be assessed 1 week prior to, and at 0, 8, 16, 26 and 52 weeks after randomisation. The assessors will be blinded to allocation. Pro- and anti-inflammatory cytokines in serum, salivary cortisol, physical fitness, physical activity, coping, self-efficacy, illness cognitions and other determinants will be longitudinally measured in order to study the neurobiological mechanisms of action.Discussion: The TREFAMS-ACE programme is unique in its aim to
- Published
- 2013
- Full Text
- View/download PDF
31. Crossing the transition chasm: Experiences and recommendations for improving transitional care of young adults, parents and providers
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van Staa, A., Jedeloo, S., van Meeteren, J., Latour, Jos, van Staa, A., Jedeloo, S., van Meeteren, J., and Latour, Jos
- Abstract
Background: Transition from paediatric to adult healthcare has received little attention in the Netherlands. This study aimed to: (i) map experiences with the transfer to adult care of young adults with chronic conditions; and (ii) identify recommendations for transitional care of young adults, their parents and healthcare providers. Methods: Semi-structured interviews with 24 young adults after transfer (aged 15–22 years; diagnosed with haemophilia, diabetes mellitus, spina bifida, congenital heart disorders, cystic fibrosis, juvenile rheumatoid arthritis or sickle cell disease), 24 parents and 17 healthcare providers. Thematic analysis was performed. Results: Only the haemophilia department offered a structured transition programme, most patients had not been prepared for transition. Experiences and views of patients, parents and professionals mainly overlapped and were condensed into four core themes. Two are related to moving to adult care: (1) ‘leaving paediatric care is a logical step’. Leaving familiar surroundings was harder for parents than for young adults who displayed a positive ‘wait-and-see’ attitude; and (2) ‘transition is complicated by cultural gaps between paediatric and adult services’. Young adults and parents felt lost after transfer and recommended their peers ‘to be alert and involved’. Providers also recognized the cultural chasm between both services and worried about non-compliance, lost to follow-up and lack of independence. Two other themes indicated priorities for improvement: (3) ‘better patient and parent preparation’ for differences between healthcare settings and for new roles and responsibilities with respect to self-management; and (4) ‘more collaboration and personal links’ between paediatric and adult care providers.Conclusions: Action is required to cross the chasm between paediatric and adult-oriented care. Preparation for transition should start early and focus on strengthening adolescents' independency without undermining par
- Published
- 2011
32. Learn 2 Move 16-24: Effectiveness of an intervention to stimulate physical activity and improve physical fitness of adolescents and young adults with spastic cerebral palsy; a randomized controlled trial
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Slaman, J. (Jorrit), Roebroeck, M.E. (Marij), Meeteren, J. (Jetty) van, Slot, W.M.A. (Wilma) van der, Reinders-Messelink, H.A. (Heleen), Lindeman, E. (Eline), Stam, H.J. (Henk), Berg-Emons, H.J.G. (Rita) van den, Slaman, J. (Jorrit), Roebroeck, M.E. (Marij), Meeteren, J. (Jetty) van, Slot, W.M.A. (Wilma) van der, Reinders-Messelink, H.A. (Heleen), Lindeman, E. (Eline), Stam, H.J. (Henk), and Berg-Emons, H.J.G. (Rita) van den
- Abstract
Background: Persons with cerebral palsy (CP) are at risk for developing an inactive lifestyle and often have poor fitness levels, which may lead to secondary health complications and diminished participation and quality of life. However, persons with CP also tend not to receive structural treatment to improve physical activity and fitness in adolescence, which is precisely the period when adult physical activity patterns are established.Methods: We aim to include 60 adolescents and young adults (16-24 yea
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- 2010
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33. Assessment of Functions and Functional Activities of the Upper Extremity
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Meeteren, J. (Jetty) van and Meeteren, J. (Jetty) van
- Abstract
The author was born in Rotterdam on the 21 of July 1963 and spent her childhood in Breda and Dordrecht. From 1975 to 1981 she attended Het Christelijk Lyceum (VWO ) in Dordrecht. In 1981 she started medical studies at the Erasmus University Rotterdam and obtained her medical degree in 1988. After this she worked as a resident in the departments of Surgery, Neurology and Rehabilitation Medicine for children. Three years later, in 1992, she started her residency in the department of Rehabilitation Medicine at the University Hospital Rotterdam Dijkzigt; head of the department and trainer Prof.dr. H.J. Stam. The residency consisted of 3 years rehabilitation in the university hospital and 1 year in the rehabilitation centre de Hoogstraat in Utrecht; trainer drs. W. van Haselen. From 1996 onwards, she has been a member of staff of the department of Rehabilitation Medicine at the Erasmus Medical Centre Rotterdam and has also worked, for several years, in the children's hospital Sophia, part of the Erasmus MC. Since 1999 she has been a member of the Concilium of the VRA (Vereniging voor revalidatieartsen) and since 2005 she has served as president of the Concilium. Jetty van Meeteren is married to Paul de Graaff and they have two daughters Anouk (1999) and Kyra (2003)., This thesis describes different methods used to measure of functions and functional activities of the upper extremity. In rehabilitation medicine, treatment aims to improve functions, to diminish limitations in functional activities, and to achieve an optimal level of social participation. The International Classification of Functioning, Disability and Health (ICF) published in 2001 by the World Health Organization (WHO) describes the terms functions, functional activities and participation. This thesis is divided into two parts; the first part presents studies investigating measurement of the function of the shoulder and the relation with functional activities. The second part consists of studies that determine relationships between measurements of functions, functional activities of the upper extremity, and participation in young adults with cerebral palsy (CP).
- Published
- 2006
34. (156) - Percutaneous Driveline Infection Does Not Increase Subsequent Risk of Stroke and Pump Thrombus During Support With a Left Ventricular Assist Device
- Author
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Van Meeteren, J., Maltais, S., Dunlay, S., Haglund, N., Davis, M.E., Pagani, F.D., Aaronson, K., Cowger, J., Shah, P., and Stulak, J.M.
- Published
- 2015
- Full Text
- View/download PDF
35. (3) - A Multi-Institutional Outcome Analysis of Patients Undergoing Left Ventricular Assist Device Implantation Stratified By Sex and Race
- Author
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Van Meeteren, J., Maltais, S., Dunlay, S., Haglund, N., Davis, M.E., Pagani, F.D., Aaronson, K.D., Cowger, J., Shah, P., and Stulak, J.M.
- Published
- 2015
- Full Text
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36. Test-retest reliability in isokinetic muscle strength measurements of the shoulder
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Meeteren, J. (Jetty) van, Roebroeck, M.E. (Marij), Stam, H.J. (Henk), Meeteren, J. (Jetty) van, Roebroeck, M.E. (Marij), and Stam, H.J. (Henk)
- Published
- 2002
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37. Grip strength parameters and functional activities in young adults with unilateral cerebral palsy compared with healthy subjects
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van Meeteren, J, primary, van Rijn, RM, additional, Selles, RW, additional, Roebroeck, ME, additional, and Stam, HJ, additional
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- 2007
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38. Using the manual ability classification system in young adults with cerebral palsy and normal intelligence.
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van Meeteren J, Nieuwenhuijsen C, de Grund A, Stam HJ, and Roebroeck ME
- Abstract
Purpose. The study aimed to establish whether the manual ability classification system (MACS), a valid classification system for manual ability in children with cerebral palsy (CP), is applicable in young adults with CP and normal intelligence. Subjects. The participants ( n = 83) were young adults with CP and normal intelligence and had a mean age of 19.9 years. Method. In this study, inter observer reliability of the MACS was determined. We investigated relationships between the MACS level and patient characteristics (such as the gross motor function classification system (GMFCS) level, limb distribution of the spastic paresis and educational level) and with functional activities of the upper extremity (assessed with the Melbourne assessment, the Abilhand questionnaire and the domain self-care of the functional independence measure (FIM)). Furthermore, with a linear regression analysis it was determined whether the MACS is a significant determinant of activity limitations and participation restrictions. Results. The reliability was good (intraclass correlation coefficient 0.83). The Spearman correlation coefficients with GMFCS level, limb distribution of the spastic paresis and educational level were 0.53, 0.46, and 0.26, respectively. MACS level correlated moderately with outcome measures of functional activities (correlations ranging from −0.38 to −0.55). MACS level is, in addition to the GMFCS level, an important determinant for limitations in activities and restrictions in participation. Conclusion. We conclude that the MACS is a feasible method to classify manual ability in young adults with CP and normal intelligence with a good manual ability. [ABSTRACT FROM AUTHOR]
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- 2010
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39. Functional activities of the upper extremity of young adults with cerebral palsy: a limiting factor for participation?
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van Meeteren J, Roebroeck ME, Celen E, Donkervoort M, Stam HJ, and Transition Research Group South West Netherlands
- Abstract
Purpose. To assess functional activities of the upper extremity of young adults with cerebral palsy (CP) and to determine their relations with participant characteristics and participation. Method. Assessment of functional activities of the upper extremity was performed on 103 participants (aged 16 - 20 years) with the Melbourne assessment and the Abilhand Questionnaire. Participation was measured with the Life Habits Questionnaire. Participant characteristics included age, gender, limb distribution of the spastic paresis, educational level and gross and fine motor function. Relations among these variables were studied by means of correlation coefficients and linear regression analysis. Results. Limitations in functional activities of the upper extremity were related to the limb distribution of the spastic paresis and were especially present in quadriplegic participants. Significant correlations between participant characteristics and measures of functional activities were present. Limitations in functional activities of the upper extremity, measured with the Abilhand Questionnaire, were an important determinant for participation, in addition to the gross motor function and educational level. Conclusion. Limitations in functional activities of the upper extremity are an important determinant for restrictions in participation in young adults with CP. It is recommended to include assessment of functional activities of the upper extremity in patients with CP. [ABSTRACT FROM AUTHOR]
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- 2008
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40. Test-retest reliability in isokinetic muscle strength measurements of the shoulder.
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van Meeteren J, Roebroeck ME, and Stam HJ
- Abstract
Test-retest reliability is important for long-term follow-up; however, data on the reliability of isokinetic dynamometry of the shoulder are scarce. Twenty subjects (50% male) were measured; 10 with asymmetrical use of the arms (mean age 27 years) and 10 used their arms symmetrically (mean age 32 years). A Biodex dynamometer (Multi joint system 2) was used. Abduction/adduction and external/internal rotation were measured following a standardized protocol. Performed scheme: two sessions with a 2-week interval, all measurements were done with 60 degrees/second (5 repetitions) and respectively 120 degrees/second and 180 degrees/second (10 repetitions). Differences in the mean peak torques, split for muscle group and gender were significant. Intraclass correlation coefficients ranged from 0.69 to 0.92. This implies good to excellent reliability in research on groups. To determine test-retest reliability of two consecutive individual measurements smallest detectable differences (SDD) were computed and ranged from 21% to 43%. It is questionable whether the SDDs are small enough to detect real changes in muscle strength. [ABSTRACT FROM AUTHOR]
- Published
- 2002
41. Long-Term Imaging and Clinical Outcomes of Surgical Left Atrial Appendage Occlusion With AtriClip.
- Author
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Ahmed A, Pothineni NVK, Singh V, Bawa D, Darden D, Kabra R, Singh A, Memon S, Romeya A, Van Meeteren J, Thambidorai S, Lakkireddy D, and Gopinathannair R
- Subjects
- Humans, Male, Female, Retrospective Studies, Treatment Outcome, Echocardiography, Transesophageal adverse effects, Atrial Appendage diagnostic imaging, Atrial Appendage surgery, Cardiac Surgical Procedures methods, Stroke epidemiology, Stroke etiology, Stroke prevention & control, Atrial Fibrillation complications, Atrial Fibrillation surgery
- Abstract
Surgical left atrial appendage (LAA) occlusion with an AtriClip (AtriCure, West Chester, Ohio) is frequently performed for stroke prophylaxis in patients with atrial fibrillation (AF). We conducted a retrospective analysis of all patients with long-standing persistent AF who underwent hybrid convergent ablation and LAA clipping. Contrast-enhanced cardiac computed tomography was performed at 3 to 6 months after LAA clipping to assess the degree of complete closure and the residual LAA stump. A total of 78 patients (64 ± 10 years, 72% male) underwent LAA clipping as part of hybrid convergent AF ablation, from 2019 to 2020. Median size of AtriClip used was 45 mm. Mean LA size was 4.6 ± 1 cm. At 3-to-6 months follow-up computed tomography, 46.2% of patients (n = 36) had a residual stump proximal to the deployed LAA clip. Mean depth of residual stump was 3.95 ± 5.5 mm, with 19% of patients (n = 15) having a stump depth of ≥10 mm and 1 patient requiring more endocardial LAA closure owing to large stump depth. During 1-year follow-up, 3 patients developed stroke; device leak of 6 mm was noted in 1 patient; and none of the patients had a thrombus proximal to the clip. In conclusion, high incidence of residual LAA stump was observed with AtriClip. Larger studies with long-term follow-up are needed to better assess the thromboembolic implications of a residual stump after AtriClip placement., Competing Interests: Declaration of Competing Interest Dr. Pothenini reports speaking honorarium from Boston Scientific. Dr. Singh reports research grant—American Society of Nuclear Cardiology and Pfizer; Advisory Board—Pfizer; and speaker bureau—Pfizer. Dr. Lakkireddy reports being consultant to Bionsense Webster, Boston Scientific, Abbott, AtriCure, Alta Thera, Phillips, and Acutus. Dr. Gopinathannair reports consultancy/honoraria—Abbott Medical and Sanofi; and being on the advisory board of Pacemate. The remaining authors have no conflicts of interest to declare., (Copyright © 2023 Elsevier Inc. All rights reserved.)
- Published
- 2023
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42. Newborns with myelomeningocele: their health-related quality of life and daily functioning 10 years later.
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Spoor JKH, Eelkman Rooda OHJ, Kik C, van Meeteren J, Westendorp T, DeKoninck PLJ, Eggink AJ, van Veelen MC, Dirven C, and de Jong THR
- Subjects
- Humans, Quality of Life, Health Status, Cognition, Pain etiology, Meningomyelocele complications, Meningomyelocele surgery
- Abstract
Objective: Ten years ago, the authors reported on the outcome of their study investigating the degree of discomfort and pain in newborns with myelomeningocele (MMC), using the parameters of unbearable and hopeless suffering. In the current study, they investigated the quality of life, daily functioning, pain and fatigue, ability to communicate, and number of surgeries in the same cohort of patients. They subdivided their study population into severe (Lorber) and less severe (non-Lorber) cases and compared these cases with a healthy population (non-MMC group) and with each other., Methods: The parents of 22 of 28 patients gave informed consent for this study. The KIDSCREEN-27 and PEDI-CAT (Pediatric Evaluation of Disability Inventory) were used to assess quality of life and daily functioning. Pain and fatigue were self-reported on a 10-point numeric rating scale. Communication and ambulation levels were determined using the Communication Function Classification System (CFCS) and the Hoffer ambulation scale. Using reference data from the KIDSCREEN-27 and PEDI-CAT, the authors created a healthy population comparison group., Results: There was no significant difference in health-related quality-of-life (HRQOL) scores between Lorber and non-Lorber patients, except that school environment domain scores were lower in the Lorber group. When comparing the HRQOL of MMC patients with that of the non-MMC group, the physical well-being and parent relations and autonomy domains scored significantly lower. The daily functioning of MMC patients was lower on all domains of the PEDI-CAT compared with the non-MMC group. Lorber MMC patients scored lower on all domains of the PEDI-CAT when compared with non-Lorber patients. All patients were capable of communicating effectively; most patients (n = 18) were considered CFCS level I, and 4 patients were considered CFCS level II., Conclusions: This study shows that MMC is a severe, lifelong condition that affects patients' lives in many domains. All the patients in this study are capable of effective communication, irrespective of severity of MMC. Overall, the data show that in newborn MMC patients, future unbearable suffering with respect to pain, mobility, cognition, and communication is hard to predict and may not always occur.
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- 2022
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43. Sinus node sparing novel hybrid approach for treatment of inappropriate sinus tachycardia/postural sinus tachycardia: multicenter experience.
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de Asmundis C, Chierchia GB, Lakkireddy D, Romeya A, Okum E, Gandhi G, Sieira J, Vloka M, Jones SD, Shah H, Winner M, Patel D, Whalen SP, Beaty EH, Kincaid EH, Lee A, Brodt C, Taylor BJ, Colombowala I, Romano M, Morady F, Ströker E, Overeinder I, Bala G, Van Meeteren J, Krauthammer Y, Koerber S, Shults C, Thomaides A, Badhwar N, Gopinathannair R, Shah A, Tummala R, Bello D, Hoff S, Almorad A, Frazier K, Brugada P, and La Meir M
- Subjects
- Endocardium surgery, Female, Humans, Sinoatrial Node surgery, Tachycardia, Sinus diagnosis, Catheter Ablation methods, Postural Orthostatic Tachycardia Syndrome diagnosis
- Abstract
Background: The ideal treatment of inappropriate sinus tachycardia (IST) and postural orthostatic tachycardia syndrome (POTS) still needs to be defined. Medical treatments yield suboptimal results. Endocardial catheter ablation of the sinus node (SN) may risk phrenic nerve damage and open-heart surgery may be accompanied by unjustified invasive risks., Methods: We describe our first multicenter experience of 255 consecutive patients (235 females, 25.94 ± 3.84 years) having undergone a novel SN sparing hybrid thoracoscopic ablation for drug-resistant IST (n = 204, 80%) or POTS (n = 51, 20%). As previously described, the SN was identified with 3D mapping. Surgery was performed through three 5-mm ports from the right side. A minimally invasive approach with a bipolar radiofrequency clamp was used to ablate targeted areas while sparing the SN region. The targeted areas included isolation of the superior and the inferior caval veins, and a crista terminalis line was made. All lines were interconnected., Results: Normal sinus rhythm (SR) was restored in all patients at the end of the procedure. All patients discontinued medication during the follow-up. After a blanking period of 6 months, all patients presented stable SR. At a mean of 4.07 ± 1.8 years, normal SN reduction and chronotropic response to exercise were present. In the 51 patients initially diagnosed with POTS, no syncope occurred. During follow-up, pericarditis was the most common complication (121 patients: 47%), with complete resolution in all cases. Pneumothorax was observed in 5 patients (1.9%), only 3 (1.1%) required surgical drainage. Five patients (1.9%) required a dual-chamber pacemaker due to sinus arrest > 5 s., Conclusions: Preliminary results of this multicenter experience with a novel SN sparing hybrid ablation of IST/POTS, using surgical thoracoscopic video-assisted epicardial ablation combined with simultaneous endocardial 3D mapping may prove to be an efficient and safe therapeutic option in patients with symptomatic drug-resistant IST and POTS. Importantly, in our study, all patients had a complete resolution of the symptoms and restored normal SN activity., (© 2021. The Author(s).)
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- 2022
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44. Entering the labor market: increased employment rates of young adults with chronic physical conditions after a vocational rehabilitation program.
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Bal MI, Roelofs PPDM, Hilberink SR, van Meeteren J, Stam HJ, Roebroeck ME, and Miedema HS
- Subjects
- Adolescent, Adult, Humans, Physical Examination, Rehabilitation, Vocational, Young Adult, Disabled Persons, Employment, Supported
- Abstract
Purpose: Employment of young adults with chronic physical conditions entering the labor market after finishing post-secondary education remains behind compared to typically developing peers. The aim of this study is to evaluate changes in their paid employment levels after following a vocational rehabilitation intervention ('At Work')., Materials and Methods: Participants aged between 16 and 27 years ( n = 90) were recruited via rehabilitation physicians and a jobcoach agency and participated in a vocational rehabilitation program. Cochran's Q and McNemar tests served to test the development of intervention participants' paid employment over time. Chi-square tests were used to compare intervention participants' paid employment level with national reference data selected on age and having a self-reported chronic physical condition., Results: Paid employment level of the intervention cohort significantly increased from 10.0% at baseline to 42.4% at 2-years follow-up ( p < 0.001). At 2-years follow-up, their employment rates approached the employment rates of national reference data (42.4% versus 52.9%, p = 0.17)., Conclusion: Starting from a disadvantaged position, the paid employment rate of the intervention cohort substantially increased over time, approaching the employment rate of reference data. 'At Work' seems to be appropriate for supporting this specific group who face obstacles to enter the labor market, to find competitive employment.IMPLICATIONS FOR REHABILITATION'At Work' is a vocational rehabilitation intervention for young adults with chronic physical conditions who experience problems with finding and maintaining competitive employment after finishing post-secondary education.The 'At Work' intervention entails a combination of group sessions and individual coaching sessions based on the supported employment methodology.Paid employment rates of the intervention cohort substantially increased on the short- and long term, and approached employment rates of reference data of persons with chronic physical conditions.The 'At Work' intervention seems appropriate to support young adults with chronic physical conditions who experience barriers for work participation, to enter the labor market and find competitive and sustainable employment.
- Published
- 2021
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45. Fatigue Profiles in Patients with Multiple Sclerosis are Based on Severity of Fatigue and not on Dimensions of Fatigue.
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Beckerman H, Eijssen IC, van Meeteren J, Verhulsdonck MC, and de Groot V
- Subjects
- Adult, Aged, Cluster Analysis, Female, Humans, Male, Middle Aged, Psychometrics, Severity of Illness Index, Surveys and Questionnaires, Young Adult, Fatigue diagnosis, Fatigue pathology, Multiple Sclerosis diagnosis, Multiple Sclerosis pathology
- Abstract
Fatigue related to Multiple Sclerosis (MS) is considered a multidimensional symptom, manifesting in several dimensions such as physical, cognitive, and psychosocial fatigue. This study investigated in 264 patients with severe primary MS-related fatigue (median MS duration 6.8 years, mean age 48.1 years, 75% women) whether subgroups can be distinguished based on these dimensions. Subsequently, we tested whether MS-related fatigue consists of a single common unidimensional factor. Subscale scores on four self-reported fatigue questionnaires, including the Checklist of Individual Strength, the Modified Fatigue Impact Scale, the Fatigue Severity Scale and the SF36 vitality, were used in a cluster analysis to identify patients with similar fatigue characteristics. Next, all 54 items were included in exploratory factor analysis to test unidimensionality. Study results show that in patients with a treatment indication for primary MS-related fatigue, fatigue profiles are based on severity and not on the various dimensions of fatigue. The three profiles found, suggested one underlying fatigue dimension, but this could not be confirmed. Factor analysis of all 54 items resulted in 8 factors, confirming the multidimensional construct of the included fatigue questionnaires.
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- 2020
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46. Teenage predictors of participation of adults with cerebral palsy in domestic life and interpersonal relationships: A 13-year follow-up study.
- Author
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van Wely L, van Gorp M, Tan SS, van Meeteren J, Roebroeck ME, and Dallmeijer AJ
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- Activities of Daily Living, Adaptation, Psychological, Adolescent, Adult, Cerebral Palsy psychology, Education, Special, Female, Follow-Up Studies, Humans, Male, Sex Factors, Cerebral Palsy physiopathology, Interpersonal Relations, Parenting, Personality, Social Environment, Social Participation
- Abstract
Background: Adults with cerebral palsy (CP) may experience problems with participation in domestic life and interpersonal relationships., Aims: To identify teenage predictors of adult participation in domestic life and interpersonal relationships., Methods and Procedures: This 13-year follow-up of the PERRIN 16-24 cohort included 53 adults with CP without intellectual disability [current age 31.7 (SD = 1.4) years]. Participation performance was assessed as attendance (Vineland Adaptive Behavior Scales), and difficulty/assistance with participation (Life Habits questionnaire). 56 teenage factors were categorized in ICF components. Stepwise multiple linear regression analyses explored predictors of participation., Outcomes and Results: Lower gross motor capacity, following special education, having protective parents and a rigid personality predicted less participation in domestic life. Having rejective parents, receiving little daily support, having a socially avoidant personality or coping style and the male gender predicted less participation in interpersonal relationships. Lower activity and participation levels as a teenager predicted less participation in both domestic life and interpersonal relationships of adults with CP., Conclusions and Implications: Environmental and personal factors, gross motor capacity and teenage participation were predictors of participation of adults with CP. These factors help identify subgroups at risk for suboptimal adult participation and provide targets for rehabilitation., (Copyright © 2019. Published by Elsevier Ltd.)
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- 2020
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47. Contemporary management and outcome of myelomeningocele: the Rotterdam experience.
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Spoor JKH, Gadjradj PS, Eggink AJ, DeKoninck PLJ, Lutters B, Scheepe JR, van Meeteren J, de Laat PCJ, van Veelen ML, and de Jong THR
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- Child, Decompression, Surgical adverse effects, Female, Humans, Infant, Male, Pregnancy, Quality of Life, Reoperation adverse effects, Retrospective Studies, Ventriculoperitoneal Shunt adverse effects, Arnold-Chiari Malformation surgery, Hydrocephalus surgery, Meningomyelocele surgery, Spinal Dysraphism surgery
- Abstract
Objective: Myelomeningocele (MMC) is the most common form of spina bifida, with a lifelong impact on the quality of life for infants born with this condition. In recent decades, fetal surgery has evolved from an experimental therapy to standard of care for many centers in the world. In this study, the authors aimed to provide an overview of the current management and outcomes for infants with MMC managed at their institution. This then provides a center-specific historical cohort for comparison with future antenatal-treated MMC cases., Methods: This is a retrospective, single-institution cohort study including all consecutive MMC cases between January 1, 2000, and June 1, 2018, at Erasmus MC. Outcome data included closure of the defect (location, timing, and surgical parameters), hydrocephalus management, Chiari malformation type II (CMTII) management, incidence of spinal cord tethering and outcome, motor outcomes, and continence., Results: A total of 93 patients were included with predominantly lumbosacral lesions. Two patients died during follow-up. Hydrocephalus was present in 84%, with a 71% ventriculoperitoneal shunt reoperation rate. Surgery was performed in 12% for a tethered spinal cord at a mean age of 8 years. Decompression surgery was performed in 3 patients for CMTII. Special education in 63% was significantly associated with hydrocephalus (p < 0.015). Nineteen percent of patients were able to walk independently, and 47% were nonambulators. Social continence for urine was obtained in 75% of patients, 4% had fecal incontinence., Conclusions: This study provides an overview of current MMC outcomes at the authors' center and will serve as a historical cohort for comparison with future fetal surgery cases operated on at the center in the coming years. Apart from a relatively low surgical untethering rate, the authors' outcome data are comparable to those in the literature. Hydrocephalus is highly prevalent in postnatally treated MMC patients; in this study as in much of the literature, hydrocephalus is correlated with a low cognitive function. Fetal surgery for MMC halves the need for shunt treatment in a select group of MMC pregnancies, constituting a major indication for us to undergo the transition to a fetal surgery center. The fetal benefits of open antenatal surgery for MMC are well established, yet long-term data on especially tethered spinal cord are eagerly awaited.
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- 2019
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48. Energy Conservation Management for People With Multiple Sclerosis-Related Fatigue: Who Benefits?
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Blikman LJM, van Meeteren J, Twisk JWR, de Laat FAJ, de Groot V, Beckerman H, Stam HJ, and Bussmann JBJ
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- Humans, Single-Blind Method, Fatigue physiopathology, Multiple Sclerosis
- Abstract
Objective: We investigated whether demographic, disease-related, or personal baseline determinants can predict a positive response to energy conservation management (ECM)., Method: We conducted a secondary analysis of a single-blind, two-parallel-arms randomized controlled trial that included ambulatory adults with severe MS-related fatigue. Therapy responders and nonresponders were categorized by Checklist Individual Strength fatigue change scores between baseline and end of treatment. Logistic regression analyses were used to assess the determinants of response., Results: Sixty-nine participants were included (ECM group, n = 34; control group, n = 35). In the ECM group, fatigue severity, perception of fatigue, illness cognitions about MS, and social support discrepancies were related to the probability of being a responder., Conclusion: The results suggest that people with MS-related fatigue who had a less negative perception of fatigue and who perceived fewer disease benefits and a higher discrepancy in social support had the best response to ECM treatment., (Copyright © 2019 by the American Occupational Therapy Association, Inc.)
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- 2019
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49. Effectiveness of energy conservation management on fatigue and participation in multiple sclerosis: A randomized controlled trial.
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Blikman LJ, van Meeteren J, Twisk JW, de Laat FA, de Groot V, Beckerman H, Stam HJ, and Bussmann JB
- Subjects
- Adult, Fatigue etiology, Female, Humans, Male, Middle Aged, Multiple Sclerosis complications, Single-Blind Method, Activities of Daily Living, Energy Metabolism physiology, Fatigue rehabilitation, Multiple Sclerosis rehabilitation, Neurological Rehabilitation methods, Outcome Assessment, Health Care, Social Participation
- Abstract
Background: Fatigue is a frequently reported and disabling symptom in multiple sclerosis (MS)., Objective: To investigate the effectiveness of an individual energy conservation management (ECM) intervention on fatigue and participation in persons with primary MS-related fatigue., Methods: A total of 86 severely fatigued and ambulatory adults with a definite diagnosis of MS were randomized in a single-blind, two-parallel-arm randomized clinical trial to the ECM group or the information-only control group in outpatient rehabilitation departments. Blinded assessments were carried out at baseline and at 8, 16, 26 and 52 weeks after randomization. Primary outcomes were fatigue (fatigue subscale of Checklist Individual Strength - CIS20r) and participation (Impact on Participation and Autonomy scale - IPA)., Results: Modified intention-to-treat analysis was based on 76 randomized patients (ECM, n = 36; MS nurse, n=40). No significant ECM effects were found for fatigue (overall difference CIS20r between the groups = -0.81; 95% confidence interval (CI), -3.71 to 2.11) or for four out of five IPA domains. An overall unfavourable effect was found in the ECM group for the IPA domain social relations (difference between the groups = 0.19; 95% CI, 0.03 to 0.35)., Conclusion: The individual ECM format used in this study did not reduce MS-related fatigue and restrictions in participation more than an information-only control condition.
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- 2017
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50. "Some people see innovation as change, but we have never really seen it like that. It's understanding things and making them better." Adapted from Tim Cook, Chief Executive Officer of Apple.
- Author
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Van Meeteren J and Maltais S
- Subjects
- United States, Leadership, Malus
- Published
- 2016
- Full Text
- View/download PDF
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