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3. Collaboration: How does it work according to therapists and parents of young children? A systematic review

Author

Klatte, Inge S, Ketelaar, Marjolijn, de Groot, Annemieke, Bloemen, Manon, Gerrits, Ellen, Klatte, Inge S, Ketelaar, Marjolijn, de Groot, Annemieke, Bloemen, Manon, and Gerrits, Ellen

Abstract

BACKGROUND: Collaboration between therapists and parents of children with developmental disabilities is a key element of family-centred care. In practice, collaboration appears to be challenging for both parents and therapists. This systematic review aims to make explicit how therapists can optimise their collaboration with parents of young children with developmental disabilities, according to the perspectives of parents and therapists.METHODS: A systematic review was conducted using the following databases: Medline (PubMed), CINAHL (OVID) and PsychINFO (OVID). Those papers were selected, which focused on collaboration using a two-way interaction between therapists and parents, exploring the perspectives of therapists and/or parents of children between 2 and 6 years. Papers needed to be published in English or Dutch between 1998 and July 2021. Included papers were synthesised using a qualitative analysis approach by two researchers independently. Results sections were analysed line-by-line, and codes were formulated and discussed by all authors. Codes were aggregated, resulting in a synthesis of specific collaboration strategies in combined strategy clusters.RESULTS: The search generated 3439 records. In total, 24 papers were selected. Data synthesis resulted in an overview of specific strategies organised into five clusters: (1) continuously invest time in your collaboration with parents, (2) be aware of your important role in the collaboration with parents, (3) tailor your approach, (4) get to know the family and (5) empower parents to become a collaborative partner.CONCLUSIONS: This systematic review resulted in an overview of concrete strategies for therapists to use in their collaboration with parents of children with developmental disabilities. The strategies formulated enable therapists to consciously decide how to optimise their collaboration with each individual parent. Making these strategies explicit facilitates change of practice

Published
2024

4. Collaborative working in speech and language therapy for children with DLD-What are parents' needs?

Author

Klatte, Inge S, Bloemen, Manon, de Groot, Annemieke, Mantel, Tina C, Ketelaar, Marjolijn, Gerrits, Ellen, Klatte, Inge S, Bloemen, Manon, de Groot, Annemieke, Mantel, Tina C, Ketelaar, Marjolijn, and Gerrits, Ellen

Abstract

BACKGROUND: Collaborative practice between therapists and parents is a key element of family-centred care and is essential if we want to address family priorities and needs in interventions. However, collaborative practice is challenging for speech and language therapists (SLTs) and parents. To facilitate collaboration, collaborative practices need to be implemented into speech and language therapy for young children with developmental language disorders (DLD) and their families. Actual change and implementation of collaboration in practice will be successful only when it corresponds with patients' needs, in our case the needs of parents of young children with DLD.AIMS: To explore parents' needs in their collaboration with SLTs during therapy for their young child with DLD.METHODS & PROCEDURES: Parents of children with (a risk of) DLD in the age of 2-6 years were eligible for participation. We recruited parents via SLTs. Twelve parents of children with DLD participated in semi-structured interviews about their needs in collaboration with SLTs. We used a phenomenological approach focusing on parents' lived experiences. We transcribed the interviews verbatim. All interviews were read/listened to and discussed by our parent panel, multiple researchers and the interviewer. Two researchers independently analysed the data using the reflective thematic analysis of Braun and Clarke.OUTCOMES & RESULTS: The analysis of the interviews resulted in six themes: (1) knowing what to expect, (2) knowing how to contribute, (3) feeling capable of supporting the child, (4) trusting the therapist, (5) alignment with parents and children's needs, preferences and priorities and (6) time and space for asking questions and sharing information.CONCLUSIONS & IMPLICATIONS: Parents want SLTs to invest time in collaborating with them. Parents need SLTs to empower them to become a collaborative partner and enable them to support their child in daily life

Published
2024

5. Exploring needs and requirements for a prototype device measuring physical activity in pediatric physical therapy: A qualitative study

Author

Revalidatie Medisch Kinderen, Brain, Child Health, Engels, Barbara, Kloek, Corelien J.J., Sol, Marleen E., Bolster, Eline A.M., Kotte, Elles M.W., Wittink, Harriët, Engelbert, Raoul H.H., Gorter, Jan Willem, Bloemen, Manon A.T., Revalidatie Medisch Kinderen, Brain, Child Health, Engels, Barbara, Kloek, Corelien J.J., Sol, Marleen E., Bolster, Eline A.M., Kotte, Elles M.W., Wittink, Harriët, Engelbert, Raoul H.H., Gorter, Jan Willem, and Bloemen, Manon A.T.

Published
2024

7. Collaboration: How does it work according to therapists and parents of young children? A systematic review

Author

Revalidatiegeneeskunde Onderzoek, Brain, Child Health, Infectieziekten onderzoek2 (Wildenbeest), Klatte, Inge S, Ketelaar, Marjolijn, de Groot, Annemieke, Bloemen, Manon, Gerrits, Ellen, Revalidatiegeneeskunde Onderzoek, Brain, Child Health, Infectieziekten onderzoek2 (Wildenbeest), Klatte, Inge S, Ketelaar, Marjolijn, de Groot, Annemieke, Bloemen, Manon, and Gerrits, Ellen

Published
2024

8. Collaborative working in speech and language therapy for children with DLD-What are parents' needs?

Author

Infectieziekten onderzoek2 (Wildenbeest), Revalidatiegeneeskunde Onderzoek, Brain, Child Health, Klatte, Inge S, Bloemen, Manon, de Groot, Annemieke, Mantel, Tina C, Ketelaar, Marjolijn, Gerrits, Ellen, Infectieziekten onderzoek2 (Wildenbeest), Revalidatiegeneeskunde Onderzoek, Brain, Child Health, Klatte, Inge S, Bloemen, Manon, de Groot, Annemieke, Mantel, Tina C, Ketelaar, Marjolijn, and Gerrits, Ellen

Published
2024

9. Exploring needs and requirements for a prototype device measuring physical activity in pediatric physical therapy: A qualitative study.

Author

Engels, Barbara, Kloek, Corelien J. J., Sol, Marleen E., Bolster, Eline A. M., Kotte, Elles M. W., Wittink, Harriët, Engelbert, Raoul H. H., Gorter, Jan Willem, and Bloemen, Manon A. T.

Subjects
PEDIATRIC therapy, PHYSICAL activity, CHILDREN with developmental disabilities, PHYSICAL therapy, PHYSICAL therapists, QUALITATIVE research
Abstract

Aims: To analyze needs and requirements of Pediatric Physical Therapists (PPTs), parents, children and adolescents with and without developmental disabilities in the future use of an activity monitor prototype (AM-p) in everyday clinical practice. Methods: Qualitative exploratory study with a thematic analysis approach, based on Braun and Clarke's six steps. Codes derived from the analysis and central themes were collated, based on Fleuren et al.'s groupings of determinants. Results: We interviewed 25 PPTs, 12 parents, and 12 children and adolescents. Within four groupings of determinants, we found nine themes: 1) development of information materials; 2) application: output visualization and ease of use; 3) design; 4) relevance and acceptance; 5) shared decision-making; 6) compatibility in daily living; 7) finances, 8) time, and 9) legislation and regulations. Conclusions: End-users have similar basic needs, with individual fine-tuning to be addressed during further development of the AM-p. A child-friendly design, information material, and an easy-to-use application to read and interpret results, need to be developed. Efficient training for PPTs is important for the use of the AM-p and analysis of results. Communication between PPTs and children as well as parents enhances shared decision-making. We recommend involving diverse end-users to enable maximum customization of the AM-p. [ABSTRACT FROM AUTHOR]

Published
2024
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13. 6-Minute Push Test in Youth Who Have Spina Bifida and Who Self-Propel a Wheelchair: Reliability and Physiologic Response

Author

Damen, Karlijn M.S., Takken, Tim, Groot, Janke F. de, Backx, Frank J.G., Radder, Bob, C.P.Roos, Irene M., and Bloemen, Manon A.T.

Subjects
Spina bifida -- Complications and side effects -- Physiological aspects, Wheelchairs -- Usage, Exercise tests -- Evaluation, Disabled youth -- Physiological aspects -- Medical examination, Pediatric research, Health
Abstract

Objective. Despite the common occurrence of lower levels of physical activity and physical ftness in youth with spina bifida (SB) who use a wheelchair, there are very few tests available to measure and assess these levels. The purpose of this study was to determine reliability and the physiologic response of the 6-minute push test (6MPT) in youth with SB who self-propel a wheelchair. Methods. In this reliability and observational study, a sample of 53 youth with SB (5-19 years old; mean age = 13 years 7 months; 32 boys and 21 girls) who used a wheelchair performed 2 exercise tests: the 6MPT and shuttle ride test. Heart rate, minute ventilation, respiratory exchange ratio, and oxygen consumption were measured using a calibrated mobile gas analysis system and a heart rate monitor. For reliability, intraclass correlation coefficients (ICCs), SE of measurement, smallest detectable change for total covered distance, minute work, and heart rate were calculated. Physiologic response during the 6MPT was expressed as percentage of maximal values achieved during the shuttle ride test. Results. The ICCs for total distance and minute work were excellent (0.95 and 0.97, respectively), and the ICC for heart rate was good (0.81). The physiologic response during the 6MPT was 85% to 89% of maximal values, except for minute ventilation (70.6%). Conclusions. For most youth with SB who use a wheelchair for mobility or sports participation, the 6MPT is a reliable, functional performance test on a vigorous level of exercise. Impact. This is the first study to investigate physiologic response during the 6MPT in youth (with SB) who are wheelchair using. Clinicians can use the 6MPT to evaluate functional performance and help design effective exercise programs for youth with SB who are wheelchair using., Spina bifida (SB) is the most common form of neural tube defects, with a worldwide prevalence ranging from 43.6 to 59.8 per 100,000 live births. (1,2) At present, 60% to [...]

Published
2020
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15. Collaborative working in speech and language therapy for children with DLD—What are parents' needs?

Author

Klatte, Inge S., Bloemen, Manon, de Groot, Annemieke, Mantel, Tina C., Ketelaar, Marjolijn, and Gerrits, Ellen

Subjects
*WELL-being, *SPEECH therapy, *RESEARCH methodology, *DEVELOPMENTAL disabilities, *INTERVIEWING, *PHENOMENOLOGY, *EXPERIENCE, *DECISION making, *THEMATIC analysis, *LANGUAGE disorders, *PARENTS
Abstract

Background: Collaborative practice between therapists and parents is a key element of family‐centred care and is essential if we want to address family priorities and needs in interventions. However, collaborative practice is challenging for speech and language therapists (SLTs) and parents. To facilitate collaboration, collaborative practices need to be implemented into speech and language therapy for young children with developmental language disorders (DLD) and their families. Actual change and implementation of collaboration in practice will be successful only when it corresponds with patients' needs, in our case the needs of parents of young children with DLD. Aims: To explore parents' needs in their collaboration with SLTs during therapy for their young child with DLD. Methods & Procedures: Parents of children with (a risk of) DLD in the age of 2–6 years were eligible for participation. We recruited parents via SLTs. Twelve parents of children with DLD participated in semi‐structured interviews about their needs in collaboration with SLTs. We used a phenomenological approach focusing on parents' lived experiences. We transcribed the interviews verbatim. All interviews were read/listened to and discussed by our parent panel, multiple researchers and the interviewer. Two researchers independently analysed the data using the reflective thematic analysis of Braun and Clarke. Outcomes & Results: The analysis of the interviews resulted in six themes: (1) knowing what to expect, (2) knowing how to contribute, (3) feeling capable of supporting the child, (4) trusting the therapist, (5) alignment with parents and children's needs, preferences and priorities and (6) time and space for asking questions and sharing information. Conclusions & Implications: Parents want SLTs to invest time in collaborating with them. Parents need SLTs to empower them to become a collaborative partner and enable them to support their child in daily life. Parents need knowledge about the therapy process and diagnosis and skills in how to support their child's language development. Also, they need emotional support to feel secure enough to support their child, to ask questions to therapists and to bring up their own thoughts and opinions in therapy. Parents' needs are in line with collaborative working as described in literature, which underlines the importance of implementing collaborative working in speech and language therapy for young children with DLD. WHAT THIS PAPER ADDS: What is already known on the subject: Several reviews have explored parents' perspectives on speech and language therapy. Results reveal parents' experiences with speech and language therapy in general, and parents' perspectives on specific topics such as shared decision‐making and parents/therapists roles in therapy. What this study adds: This study adds insights into parents' needs to ensure collaboration with speech and language therapists (SLTs). Parents of young children with developmental language disorders (DLD) need SLTs to invest time to create optimal collaboration. It is important for parents to have enough knowledge about DLD and the SLT process, skills and confidence in how to support their child and opportunities to share thoughts and questions with SLTs. Our results underline the importance of parents being empowered by SLTs to become a collaborative partner. What are the clinical implications of this work?: When children are referred to speech and language therapy, parents often venture into an unknown journey. They need support from SLTs to become a collaborative partner in speech and language therapy. Parents need SLTs to invest time in sharing knowledge, skills and power and align therapy to parents' and child's needs, preferences, priorities and expectations. [ABSTRACT FROM AUTHOR]

Published
2024
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16. Collaboration: How does it work according to therapists and parents of young children? A systematic review.

Author

Klatte, Inge S., Ketelaar, Marjolijn, de Groot, Annemieke, Bloemen, Manon, and Gerrits, Ellen

Subjects
PARENT attitudes, ONLINE information services, PSYCHOLOGY information storage & retrieval systems, OCCUPATIONAL roles, ATTITUDES of medical personnel, SYSTEMATIC reviews, MEDICAL personnel, DEVELOPMENTAL disabilities, FAMILY-centered care, PATIENTS' families, INTERPROFESSIONAL relations, DESCRIPTIVE statistics, COMMUNICATION, RESEARCH funding, MEDLINE
Abstract

Background: Collaboration between therapists and parents of children with developmental disabilities is a key element of family‐centred care. In practice, collaboration appears to be challenging for both parents and therapists. This systematic review aims to make explicit how therapists can optimise their collaboration with parents of young children with developmental disabilities, according to the perspectives of parents and therapists. Methods: A systematic review was conducted using the following databases: Medline (PubMed), CINAHL (OVID) and PsychINFO (OVID). Those papers were selected, which focused on collaboration using a two‐way interaction between therapists and parents, exploring the perspectives of therapists and/or parents of children between 2 and 6 years. Papers needed to be published in English or Dutch between 1998 and July 2021. Included papers were synthesised using a qualitative analysis approach by two researchers independently. Results sections were analysed line‐by‐line, and codes were formulated and discussed by all authors. Codes were aggregated, resulting in a synthesis of specific collaboration strategies in combined strategy clusters. Results: The search generated 3439 records. In total, 24 papers were selected. Data synthesis resulted in an overview of specific strategies organised into five clusters: (1) continuously invest time in your collaboration with parents, (2) be aware of your important role in the collaboration with parents, (3) tailor your approach, (4) get to know the family and (5) empower parents to become a collaborative partner. Conclusions: This systematic review resulted in an overview of concrete strategies for therapists to use in their collaboration with parents of children with developmental disabilities. The strategies formulated enable therapists to consciously decide how to optimise their collaboration with each individual parent. Making these strategies explicit facilitates change of practice from therapist‐led and child‐centred towards family‐centred care. [ABSTRACT FROM AUTHOR]

Published
2024
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19. Wheelchair Shuttle Test for Assessing Aerobic Fitness in Youth With Spina Bifida: Validity and Reliability

Author

Bloemen, Manon A.T., de Croot, Janke F., Backx, Frank J.G., Benner, Joyce, Kruitwagen, Cas L.J.J., and Takken, Tim

Subjects
Spina bifida -- Health aspects -- Care and treatment, Youth -- Health aspects, Wheelchairs -- Usage, Health
Abstract

Background. Testing aerobic fitness in youth is important because of expected relationships with health. Objective. The purpose of the study was to estimate the validity and reliability of the Shuttle [...]

Published
2017
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20. Reference Values for Anaerobic Performance and Agility in Ambulatory Children and Adolescents with Cerebral Palsy

Author

Verschuren, Olaf, Bloemen, Manon, and Kruitwagen, Cas

Abstract

Aim: The aim of this study was to provide reference values of anaerobic performance and agility in a group of children and adolescents with spastic cerebral palsy (CP). Method: A total of 300 children (184 males, 116 females) with spastic CP were recruited from 26 rehabilitation centres in six different countries. Of these, 215 were classified at GMFCS level I (mean age 11y 2mo, SD 3y, range 6-18y) and 85 were classified at GMFCS level II (mean age 11y; SD 3y 1mo, range 6-18y). The children performed the Muscle Power Sprint Test (MPST) and the 10x5m sprint test in a standardized manner. To establish reference values, reference curves were created using generalized additive models for location, scale, and shape. Results: Height-related reference curves were created based on performance on the two tests. Interpretation: This study provides height-related reference values for anaerobic performance and agility for children and adolescents with CP classified at GMFCS levels I and II. These curves are clinically relevant and provide a user-friendly method in the interpretation of anaerobic performance and agility for children with spastic CP.

Published
2010
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24. Are agile design approaches useful in designing for health?: A case study

Author

Hermsen, Sander, Essen,van, Anita, Gessel,van, Christa, Bolster, Eline, Lugt,van der, Remko, and Bloemen, Manon

Subjects
intervention development, case study, agile, design methods
Abstract

When designing interventions for health, multidisciplinary teams increasingly work according to an ‘agile’ process. Potential benefits of this approach are better knowledge transfer, stakeholder inclusion, and removal of barriers to interactions. Unfortunately, the question whether agile approaches are useful in designing health interventions remains as yet unanswered. To contribute to current knowledge, we analysed the process and results of a large multidisciplinary project with an agile approach. Our case study shows such an approach may indeed be a feasible method for the development of health interventions. The process allowed for a high pace, and good stakeholder inclusion. Some limitations also occurred. The agile approach favours speed over rigour, which hinders integration of user research and scientific evidence in the development process. Multidisciplinary cooperation remains difficult because of the limited availability of experts and stakeholders. Finally, the difficulties in documenting the process and results of the agile approach limit its use in scientific projects. Published at https://research.shu.ac.uk/design4health/publications/2020-conference-proceedings Vol. 2

Published
2020

25. Co-designing behaviour change prototypes with paediatric physical therapists: Integrating insights on behaviour and social systems in a participatory design process

Author

Essen,van, Anita, Hermsen, Sander, Bolster, Eline, Bloemen, Manon, Lugt,van der, Remko, and Gessel,van, Christa

Subjects
Co-design, social systems, participatory design, behaviour change, Physical therapists
Abstract

(‘Co’-)Designing for healthy behaviour greatly benefits from integrating insights about individual behaviour and systemic influences. This study reports our experiences in using insights about individual and systemic determinants of behaviour to inform a large co-design project. To do so, we used two design tools that encourage focusing on individual determinants (Behavioural Lenses Approach) and social / systemic aspects of behaviour (Socionas). We performed a qualitative analysis to identify 1) when and how the team applied the design tools, and 2) how the tools supported or obstructed the design process. The results show that both tools had their distinctive uses during the process. Both tools improved the co-design process by deepening the conversations and underpinnings of the prototypes. Using the Behavioural Lenses under the guidance of a behavioural expert proved most beneficial. Furthermore, the Socionas showed the most potential when interacting with stakeholders, i.c. parents and PPTs.

Published
2020

26. Determinants of physical activity in young wheelchair-users with spina bifida

Author

Activity&Health sectie child development, Activity&Health sectie exercise, Child Health, Biostatistiek Onderwijs, Other research (not in main researchprogram), JC onderzoeksprogramma Methodology, RF&S Team 2 Medisch, Brain, Bloemen, Manon A T, Takken, Tim, de Groot, Janke F, Kruitwagen, Cas L J J, Rooks, Rosanne A, van den Berg-Emons, Rita H J G, Backx, Frank J G, Activity&Health sectie child development, Activity&Health sectie exercise, Child Health, Biostatistiek Onderwijs, Other research (not in main researchprogram), JC onderzoeksprogramma Methodology, RF&S Team 2 Medisch, Brain, Bloemen, Manon A T, Takken, Tim, de Groot, Janke F, Kruitwagen, Cas L J J, Rooks, Rosanne A, van den Berg-Emons, Rita H J G, and Backx, Frank J G

Published
2020

27. 6-Minute Push Test in Youth Who Have Spina Bifida and Who Self-Propel a Wheelchair: Reliability and Physiologic Response

Author

Activity&Health sectie exercise, Child Health, Activity&Health sectie child development, RF&S Team 2 Medisch, Brain, Damen, Karlijn M S, Takken, Tim, de Groot, Janke F, Backx, Frank J G, Radder, Bob, Roos, Irene C P M, Bloemen, Manon A T, Activity&Health sectie exercise, Child Health, Activity&Health sectie child development, RF&S Team 2 Medisch, Brain, Damen, Karlijn M S, Takken, Tim, de Groot, Janke F, Backx, Frank J G, Radder, Bob, Roos, Irene C P M, and Bloemen, Manon A T

Published
2020

28. Reference values for aerobic fitness in children, adolescents, and young adults who have cerebral palsy and are ambulatory

Author

Verschuren, Olaf, Bloemen, Manon, Kruitwagen, Cas, and Takken, Tim

Subjects
Cerebral palsy -- Care and treatment -- Prevention -- Research, Aerobic exercises -- Health aspects -- Research, Physical fitness -- Health aspects -- Research
Abstract

Background. Very few objective data exist regarding aerobic performance in young people with cerebral palsy (CP). The characterization of aerobic fitness could provide baseline and outcome measures for the rehabilitation of young people with CP. Objective. The objective of this study was to provide reference values for aerobic fitness in a group of children, adolescents, and young adults who had CP and who were classified at Gross Motor Function Classification System (GMFCS) level I or II. Data were collected with 10-m shuttle run tests. Design. This investigation was a cross-sectional observational study conducted between August 2008 and June 2009. Methods. Reference values were established using data from a total of 306 children, adolescents, and young adults who had CP, who were 6 to 20 years old, and who were recruited from 26 rehabilitation centers in the Netherlands, Switzerland, Australia, Canada, and the United States. A total of 211 participants were classified at GMFCS level I (mean age=12.2 years, SD=3.0), and 95 were classified at GMFCS level II (mean age=12.4 years, SD=3.2); 181 were male, and 125 were female. Aerobic fitness was reflected by the level achieved on the 10-m shuttle run tests. Results. On the basis of a total of 306 assessments from the 10-m shuttle run tests, 4 reference curves were created. Limitations. The limitation of this study is the cross-sectional nature of the design. Conclusions. This study provided height-related reference values for aerobic fitness in children, adolescents, and young adults who had CP, who were 6 to 20 years old, and who were classified at GMFCS level I or II. Generalized additive models for location, scale, and shape were used to construct centile curves. These curves are clinically relevant and provide a user-friendly method for the prediction of aerobic fitness in young people with CP., Aerobic fitness may be defined as the ability to deliver oxygen to the muscles and to utilize it to generate energy during exercise; it often is presented as peak oxygen [...]

Published
2010
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30. Physical activity and sedentary behaviour in children with spina bifida

Author

Claridge, Everett A., Bloemen, Manon A.T., Rook, Rosanne A., Obeid, Joyce, Timmons, Brian W., Takken, Tim, Van Den Berg-Emons, Rita J.G., De Groot, Janke F., Gorter, Jan Willem, Claridge, Everett A., Bloemen, Manon A.T., Rook, Rosanne A., Obeid, Joyce, Timmons, Brian W., Takken, Tim, Van Den Berg-Emons, Rita J.G., De Groot, Janke F., and Gorter, Jan Willem

Published
2019

31. Cardiopulmonary Exercise Test Using Arm Ergometry in Children With Spina Bifida: A Prediction Model for (V) over dotO(2peak) : A Prediction Model for VO 2peak

Author

Tuijtelaars, Jana A.M., Leonardi-Figuiredo, Marisa Maia, Crescencio, Julio, Gallo, Lourenço, Martinez, Edson Zangiacomi, Bloemen, Manon, Takken, Tim, Mattiello-Sverzut, Ana Claudia, Tuijtelaars, Jana A.M., Leonardi-Figuiredo, Marisa Maia, Crescencio, Julio, Gallo, Lourenço, Martinez, Edson Zangiacomi, Bloemen, Manon, Takken, Tim, and Mattiello-Sverzut, Ana Claudia

Published
2019

32. Physical activity and sedentary behaviour in children with spina bifida

Author

UMC Utrecht, Activity&Health sectie child development, Activity&Health sectie exercise, Child Health, RF&S Team 1 Medisch, Brain, Claridge, Everett A., Bloemen, Manon A.T., Rook, Rosanne A., Obeid, Joyce, Timmons, Brian W., Takken, Tim, Van Den Berg-Emons, Rita J.G., De Groot, Janke F., Gorter, Jan Willem, UMC Utrecht, Activity&Health sectie child development, Activity&Health sectie exercise, Child Health, RF&S Team 1 Medisch, Brain, Claridge, Everett A., Bloemen, Manon A.T., Rook, Rosanne A., Obeid, Joyce, Timmons, Brian W., Takken, Tim, Van Den Berg-Emons, Rita J.G., De Groot, Janke F., and Gorter, Jan Willem

Published
2019

33. Cardiopulmonary Exercise Test Using Arm Ergometry in Children With Spina Bifida: A Prediction Model for (V) over dotO(2peak): A Prediction Model for VO 2peak

Author

Activity&Health sectie child development, Activity&Health sectie exercise, Child Health, Tuijtelaars, Jana A.M., Leonardi-Figuiredo, Marisa Maia, Crescencio, Julio, Gallo, Lourenço, Martinez, Edson Zangiacomi, Bloemen, Manon, Takken, Tim, Mattiello-Sverzut, Ana Claudia, Activity&Health sectie child development, Activity&Health sectie exercise, Child Health, Tuijtelaars, Jana A.M., Leonardi-Figuiredo, Marisa Maia, Crescencio, Julio, Gallo, Lourenço, Martinez, Edson Zangiacomi, Bloemen, Manon, Takken, Tim, and Mattiello-Sverzut, Ana Claudia

Published
2019

34. Physical activity in wheelchair-using youth with spina bifida: An observational study 11 Medical and Health Sciences 1117 Public Health and Health Services

Author

Activity&Health sectie child development, Brain, Activity&Health sectie exercise, Child Health, UMC Utrecht, RF&S Team 2 Medisch, Bloemen, Manon A.T., Van Den Berg-Emons, Rita J.G., Tuijt, Matthijs, Nooijen, Carla F.J., Takken, Tim, Backx, Frank J.G., Vos, Marleen, De Groot, Janke F., Activity&Health sectie child development, Brain, Activity&Health sectie exercise, Child Health, UMC Utrecht, RF&S Team 2 Medisch, Bloemen, Manon A.T., Van Den Berg-Emons, Rita J.G., Tuijt, Matthijs, Nooijen, Carla F.J., Takken, Tim, Backx, Frank J.G., Vos, Marleen, and De Groot, Janke F.

Published
2019

37. Physical fitness and physical behavior in (wheelchair-using) youth with spina bifida

Author

Bloemen, Manon

Subjects
spina bifida, fysieke fitheid, pubers, human activities, adolescenten, rolstoelgebonden, Kinderen
Abstract

In this thesis we analyzed clinimetric measurement properties of physical fitness tests in wheelchair-using youth with SB. Furthermore, the amount of physical behavior in wheelchair-using youth with SB was quantified and associations with age, gender, VO2peak and Hoffer classification were evaluated. Finally, we described the factors associated with physical behavior in youth with SB and youth with physical disabilities, after which the evidence of interventions to improve physical behavior in youth with physical disabilities was analyzed. This last chapter presents the theoretical and clinical implications. At the end, methodological considerations and directions for further research will be discussed after which the overall conclusion is presented.

Published
2017

38. Wheelchair Shuttle Test for Assessing Aerobic Fitness in Youth With Spina Bifida: Validity and Reliability

Author

Bloemen, Manon, Groot,de, Janke, Backx, Frank, Benner, Joyce, Kruitwagen, Cas, and Takken, Tim

Subjects
spina bifida, kinderen, fitness test, human activities
Abstract

Background Testing aerobic fitness in youth is important because of expected relationships with health. Objective The purpose of the study was to estimate the validity and reliability of the Shuttle Ride Test in youth who have spina bifida and use a wheelchair for mobility and sport. Design Ths study is a validity and reliability study. Methods The Shuttle Ride Test, Graded Wheelchair Propulsion Test, and skill-related fitness tests were administered to 33 participants for the validity study (age = 14.5 ± 3.1 y) and to 28 participants for the reliability study (age = 14.7 ± 3.3 y). Results No significant differences were found between the Graded Wheelchair Propulsion Test and the Shuttle Ride Test for most cardiorespiratory responses. Correlations between the Graded Wheelchair Propulsion Test and the Shuttle Ride Test were moderate to high (r = .55–.97). The variance in peak oxygen uptake (VO2peak) could be predicted for 77% of the participants by height, number of shuttles completed, and weight, with large prediction intervals. High correlations were found between number of shuttles completed and skill-related fitness tests (CI = .73 to −.92). Intraclass correlation coefficients were high (.77–.98), with a smallest detectable change of 1.5 for number of shuttles completed and with coefficients of variation of 6.2% and 6.4% for absolute VO2peak and relative VO2peak, respectively. Conclusions When measuring VO2peak directly by using a mobile gas analysis system, the Shuttle Ride Test is highly valid for testing VO2peak in youth who have spina bifida and use a wheelchair for mobility and sport. The outcome measure of number of shuttles represents aerobic fitness and is also highly correlated with both anaerobic performance and agility. It is not possible to predict VO2peak accurately by using the number of shuttles completed. Moreover, the Shuttle Ride Test is highly reliable in youth with spina bifida, with a good smallest detectable change for the number of shuttles completed.

Published
2017

43. Wheelchair Shuttle Test for Assessing Aerobic Fitness in Youth With Spina Bifida: Validity and Reliability

Author

Activity&Health sectie child development, Brain, RF&S Team 2 Medisch, Biostatistiek Onderwijs, JC onderzoeksprogramma Methodologie, Other research (not in main researchprogram), Kinderbewegingszorg patientenzorg, Child Health, Bloemen, Manon A T, de Groot, Janke F, Backx, Frank J G, Benner, Joyce, Kruitwagen, Cas L J J, Takken, Tim, Activity&Health sectie child development, Brain, RF&S Team 2 Medisch, Biostatistiek Onderwijs, JC onderzoeksprogramma Methodologie, Other research (not in main researchprogram), Kinderbewegingszorg patientenzorg, Child Health, Bloemen, Manon A T, de Groot, Janke F, Backx, Frank J G, Benner, Joyce, Kruitwagen, Cas L J J, and Takken, Tim

Published
2017

44. Validity and Reliability of Skill-Related Fitness Tests for Wheelchair-Using Youth With Spina Bifida

Author

Activity&Health sectie child development, Brain, Kinderbewegingszorg patientenzorg, Child Health, UMC Utrecht, RF&S Team 2 Medisch, Biostatistiek Onderwijs, JC onderzoeksprogramma Methodologie, Other research (not in main researchprogram), Bloemen, Manon A., Takken, Tim, Backx, Frank J., Vos, Marleen, Kruitwagen, Cas L., de Groot, Janke F., Activity&Health sectie child development, Brain, Kinderbewegingszorg patientenzorg, Child Health, UMC Utrecht, RF&S Team 2 Medisch, Biostatistiek Onderwijs, JC onderzoeksprogramma Methodologie, Other research (not in main researchprogram), Bloemen, Manon A., Takken, Tim, Backx, Frank J., Vos, Marleen, Kruitwagen, Cas L., and de Groot, Janke F.

Published
2017

45. Validity and Reliability of Skill-Related Fitness Tests for Wheelchair-Using Youth with Spina Bifida

Author

Kruitwagen, Cas, Backx, Frank, Takken, Tim, Groot,de, Janke, Vos, Marleen, and Bloemen, Manon

Abstract

Objective: To determine content validity of the Muscle Power Sprint Test (MPST) and construct validity and reliability of the MPST, 10x5 Meter Sprint Test (10x5MST), slalom test and one stroke push test (1SPT) in wheelchair-using youth with spina bifida (SB). Design: Clinimetric study Setting: Rehabilitation centers, SB outpatient services, private practices Participants: A convenience sample of 53 children (5-19 years, 32 boys / 21 girls) with SB who use a manual wheelchair. Participants were recruited in the Netherlands through rehabilitation centers, SB outpatient services, pediatric physical therapists and the BOSK (Association of and by parents of children, adolescents and adults with a disability). Interventions: Not applicable. Main Outcome Measures: Construct validity of the the MPST was determined by comparing results with the arm-cranking Wingate Anaerobic test (WAnT) using paired t-tests and Pearson Correlation Coefficients, while content validity was assessed using time based criteria for anaerobic testing . Construct validity of the 10x5MST, slalom test and 1SPT was analyzed by hypothesis testing using Pearson Correlation Coefficients and Multiple Regression. For reliability, Intra Class Correlation coefficients (ICC) and smallest detectable changes (SDC) were calculated. Results: For the MPST, mean exercise time of four sprints was 28.1 sec. (±6.6 sec.). Correlations between the MPST and WAnT were high (r>0.72, p0.95) but the SDCs varied widely. Conclusions: The MPST, 10x5MST and slalom test are valid and reliable tests in wheelchair-using youth with SB for measuring respectively anaerobic performance or agility. For the 1SPT, both validity and reliability are questionable.

Published
2016

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