39 results on '"Pallesen, Hanne"'
Search Results
2. Nature-based rehabilitation—experiences from patients with acquired brain injury: an explorative qualitative study.
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Vibholm, Anne Pernille, Pallesen, Hanne, Christensen, Jeanette Reffstrup, and Varning Poulsen, Dorthe
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NATURE & psychology , *REHABILITATION for brain injury patients , *QUALITATIVE research , *FOCUS groups , *AUTONOMY (Psychology) , *INTERPROFESSIONAL relations , *RESEARCH funding , *INTERVIEWING , *CONTENT analysis , *FUNCTIONAL training , *NATUROPATHY , *JUDGMENT sampling , *EXPERIENCE , *SOCIAL integration , *RESEARCH , *RESEARCH methodology , *MEMORY , *PATIENT-professional relations , *PHENOMENOLOGY , *PATIENTS' attitudes , *PHYSICAL activity - Abstract
Purpose: Nature has been found to improve and promote health and prevent disease. Nature-based rehabilitation (NBR) delivered as part of neurorehabilitation is a developing approach. Yet to date the research is sparse. Following an acquired brain injury (ABI), people often experience impairments that cause limitations in activity and participation in daily life, which can impact the quality of life long-term. NBR delivered in neurorehabilitation has previously been explored from the perspective of occupational therapists and physiotherapists, however, to date patients' experiences are yet to be explored. This study aims to explore patients' experiences and perspectives of NBR delivered as part of standard neurorehabilitation. Methods: This qualitative study had a constructivist and phenomenological design. Semi-structured focus group interviews were carried out across three healthcare settings in Denmark with 17 participants. Data was analysed using content analysis. Results: The analysis generated three categories: 1. Outdoor versus indoor environment, 2. The natural environment as a co-therapist, and 3. Interrelatedness. Conclusion: The study provides insight into participants' experiences of NBR. They reported that interacting with the natural environment as part of neurorehabilitation enhanced activity. Moreover, being in nature increased their self-efficacy, sense of autonomy, community spirit, cooperation, and joy, and led to a feeling of peace. IMPLICATIONS FOR REHABILITATION: Nature-based rehabilitation (NBR) delivered as part of neurorehabilitation provides an alternative to indoor rehabilitation. The natural environment offers multisensory stimulation, sensory-motor training, and opportunities for mental restoration. NBR promotes social engagement, cooperation, and feelings of being in the same boat and may increase autonomy, self-efficacy, activity, and participation. NBR can be designed and delivered in a way where the natural environment and the intervention promote individual and group rehabilitation. The benefits of NBR in neurorehabilitation for patients appear to be an underexposed topic, and the intervention may provide an opportunity for improving rehabilitation for patients with acquired brain injury. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Shoulder function after constraint-induced movement therapy assessed with 3D kinematics and clinical and patient reported outcomes: A prospective cohort study
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Hansen, Gunhild Mo, Svendsen, Susanne Wulff, Pedersen, Asger Roer, Kersting, Uwe Gustav, Pallesen, Hanne, and Nielsen, Jørgen Feldbæk
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- 2021
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4. “More air—better performance—faster recovery”: study protocol for randomised controlled trial of the effect of post-stroke inspiratory muscle training for adults
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Sørensen, Susanne Lillelund, Kjeldsen, Simon Svanborg, Mortensen, Sine Secher, Hansen, Ulla Torp, Hansen, Dorthe, Pedersen, Asger Roger, and Pallesen, Hanne
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- 2021
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5. “Stroke - 65 plus. Continued active life.” A randomized controlled trial of a self-management neurorehabilitation intervention for elderly people after stroke.
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Pallesen, Hanne, Pedersen, Sedsel Kristine Stage, Sørensen, Susanne Lillelund, Næss-Schmidt, Erhard Trillingsgaard, Brunner, Iris, Nielsen, Jørgen Feldbæk, and Kjeldsen, Simon Svanborg
- Abstract
AbstractPurposeMethodsResultsConclusions\nIMPLICATION FOR REHABILITATIONPost-stroke sequelae among elderly often lead to a more inactive life while carrying a risk of overburdening close relatives. The objective of the present study was to determine if a novel self-management neuro-rehabilitation intervention added to usual treatment for people with stroke over the age of 65 years improved their self-efficacy.This randomised controlled trial included participants two weeks before discharge from subacute rehabilitation. All participants received usual treatment. The intervention entailed an add-on of six to eight self-management sessions lasting 45–60 min within a period of nine months after discharge. This novel neuro-rehabilitation intervention focused on promoting growth, development and self-efficacy by facilitating the participants’ self-management strategies regarding their activities and social network. All participants were assessed at baseline, three months and nine months after discharge. The primary outcome was self-efficacy measured by the Stroke Self-Efficacy Questionnaire.Sixty-nine individuals with stroke aged
> 65 years were randomised. Their mean(SD) age was 76(6) years; 32 (46%) were female. No significant difference was found between the groups at baseline. Improvement recorded in the intervention group did not significantly differ from that of the control group with regard to primary outcome or secondary outcomes.This novel self-management intervention had no significant effect measured by the primary outcome self-efficacy or quality of life. Furthermore, no impact was observed on participation and autonomy compared with usual treatment.Clinical trial registration—URL: ClinicalTrials.gov, NCT03183960. Registered on 12 June 2017. The present study testing a novel self-management neuro-rehabilitation intervention for people with stroke aged more than 65 years failed to improve self-efficacy, quality of life, and impact on participation and autonomy.Post hoc analyzes showed a lower caregiver burden at three and nine months in the intervention group as compared to the control group.The approach of perceiving the stroke individual and the informal caregiver as one unit (dyad), involving both in decisions regarding everyday activities and roles in everyday life especially within their shared part of life, appears important and warrants further development.The present study testing a novel self-management neuro-rehabilitation intervention for people with stroke aged more than 65 years failed to improve self-efficacy, quality of life, and impact on participation and autonomy.Post hoc analyzes showed a lower caregiver burden at three and nine months in the intervention group as compared to the control group.The approach of perceiving the stroke individual and the informal caregiver as one unit (dyad), involving both in decisions regarding everyday activities and roles in everyday life especially within their shared part of life, appears important and warrants further development. [ABSTRACT FROM AUTHOR]- Published
- 2024
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6. Social psychological mechanisms and processes in a novel, health professional-led, self-management intervention for older stroke individuals: a synthesis and phenomenological study
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Sørensen, Susanne Lillelund, Pedersen, Sedsel Kristine Stage, and Pallesen, Hanne
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- 2019
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7. A meaningful everyday life experienced by adults with acquired neurological impairments: A scoping review.
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Aadal, Lena, Hundborg, Michele Offenbach, Pallesen, Hanne, and Steensgaard, Randi
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PATIENTS' attitudes ,ADULTS ,EVERYDAY life ,CINAHL database ,DATA extraction - Abstract
Objective: This scoping review explores the characteristics of a meaningful life appraised by adults living with an acquired neurological impairment. Introduction: Limitations in function, activity or participation following a neurological injury or disease imposes comprehensive changes on the every-day life of the affected person and close relatives. Including patients' perception of a meaningful life is pivotal to facilitate motivation and individualize rehabilitation efforts to address the patients' wishes, hopes, needs, and preferences. Surprisingly, only little research has been devoted to illuminating what a meaningful life is from the impaired person's perspective. Hence, a scoping review of existing knowledge is needed to facilitate person-centered high-quality rehabilitation and research initiatives. Inclusion criteria: All studies, published in English or Scandinavian languages describing a meaningful life as experienced by adult persons with neurological impairment were included. No search date range filter was selected. Methods: This review followed the Joanna Briggs Institute (JBI) methodology for scoping reviews according to a published protocol. A three-step search strategy was conducted in the databases PubMed, Cinahl, PsycINFO and Embase. At least two independent researchers conducted inclusions and exclusions, data extraction, and analyses. Covidence software was used to manage the information. Findings: We identified 307 studies. Of these, 20 were included and quality assessed. Findings are reported in accordance with the PRISMA- SCR checklist and descriptively presented mapped in three main domains and 10 ten sub-domains. Conclusion: Current literature conveys no clear definition or perception of what a meaningful life is. However, across the 20 included studies, the following main characteristics were stepped forward as particularly significant for adults living with an acquired neurological impairment in regard to achieving a meaningful life: i) to be part of meaningful relationships and meaningful activities; ii) to become confident with one's perceived identity. [ABSTRACT FROM AUTHOR]
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- 2023
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8. “Stroke - 65 Plus. Continued Active Life”: a study protocol for a randomized controlled cross-sectoral trial of the effect of a novel self-management intervention to support elderly people after stroke
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Pallesen, Hanne, Næss-Schmidt, Erhard Trillingsgaard, Kjeldsen, Simon Svanborg, Pedersen, Sedsel Kristine Stage, Sørensen, Susanne Lillelund, Brunner, Iris, and Nielsen, Jørgen Feldbæk
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- 2018
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9. Who are relatives? Young adults, relatives and professionals' perceptions of relatives during the rehabilitation of young adults with a severe acquired brain injury.
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Bystrup, Mette Ryssel, Aadal, Lena, Pallesen, Hanne, Larsen, Kristian, and Hindhede, Anette L.
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FRIENDSHIP ,SOCIAL support ,ATTITUDES of medical personnel ,RESEARCH methodology ,INTERVIEWING ,SOCIAL network analysis ,SEVERITY of illness index ,FAMILY attitudes ,PATIENTS' attitudes ,QUALITATIVE research ,CONCEPTUAL structures ,SEX distribution ,COMPARATIVE studies ,QUESTIONNAIRES ,INTERPERSONAL relations ,SOCIAL classes ,DESCRIPTIVE statistics ,RESEARCH funding ,REHABILITATION ,DATA analysis software ,REHABILITATION for brain injury patients ,ALLIED health personnel ,LONGITUDINAL method ,DISCHARGE planning ,PARENTS ,ADULTS - Abstract
This paper explores the perception of "relatives" during the rehabilitation of young adults with severe acquired brain injury (SABI). This longitudinal qualitative study followed eight young adults with a SABI from hospital discharge to a year and a half after discharge. The design encompassed professional records, interviews, and surveys, including a name generator list completed by the young adults and focus group interviews with both their families and professionals. We apply a sociological theoretical framework concerning friendship, and we employ social network analysis (SNA) methodology to capture, visualise, and analyse the young adults' significant social relations. Social relations engaged as relatives during rehabilitation are to a large extent determined by the perceptions of professionals and the parents of the young adult. These perceptions contain a limited number of social relations, with priority given to biological and juridical ties. This might reflect the reduced social support available for the young adult, who initially had a much larger social network. The authors suggest a professional rethinking of who "relatives" are as well as considering these social ties as dynamic. Rehabilitation professionals must be aware of and pay attention to differing perceptions that exist as to who qualifies as significant social relations in order to reconsider the practical implementation of relative involvement. The perception of who relatives are during the rehabilitation process should be reconsidered and extended to include who the young adult perceive as significant social relations. Relatives are not a fixed entity and should be considered dynamically throughout the rehabilitation process. Social relations of the young adult must to a larger extent be considered during rehabilitation to prevent social isolation in the long run. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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10. Stroke self-efficacy questionnaire – Denmark (SSEQ-DK): test–retest of the Danish version.
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Pedersen, Sedsel Kristine Stage and Pallesen, Hanne
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STATISTICS ,CONSENSUS (Social sciences) ,STATISTICAL reliability ,CONFIDENCE intervals ,CONFIDENCE ,CHRONIC diseases ,SELF-efficacy ,COMPARATIVE studies ,SUBACUTE care ,APHASIA ,PSYCHOMETRICS ,T-test (Statistics) ,STROKE rehabilitation ,QUESTIONNAIRES ,STROKE patients ,INTRACLASS correlation ,DESCRIPTIVE statistics ,SCALE analysis (Psychology) ,RESEARCH funding ,DATA analysis software ,DATA analysis ,MEASUREMENT errors - Abstract
In stroke rehabilitation, measurement tools measuring self-efficacy with sound psychometric properties are needed. The Stroke Self-Efficacy Questionnaire (SSEQ) has recently been translated and validated into a Danish version (SSEQ–DK). To evaluate the test–retest reliability of the SSEQ-DK. Fifty people with stroke ≥ 18 years in the sub-acute and chronic phase were included from February 2019 to August 2020. The SSEQ-DK was completed twice; on day 1 and day 7–14. Test–retest reliability of the single items was assessed using weighted Cohen's kappa and percentage agreement. The activity and self-management scales were assessed by the intraclass correlation coefficient (ICC). Measurement error was assessed by calculating the Smallest Detectable Change (SDC) based on the standard error of measurement. Overall, kappa values showed fair to substantial test–retest reliability of the single items. However, several kappa values were missing as the statistical prerequisites were not present. The percentage agreement ranged from 78% to 94%. Based on the reported confidence interval of the estimated intraclass correlation coefficient, the test–retest reliability of the activity and self-management scales was poor to excellent in all analysis. Ceiling effects appeared in the single items. Conversely, no floor effect was seen. The SSEQ-DK showed good test–retest reliability of the single items based on agreement among a population with stroke in the subacute and chronic phase. Broad ICC confidence intervals bar any firm conclusions concerning the test–retest reliability of the activity and self-management scales. ClinicalTrials.gov NCT03183960. Reg. 15 June 2017. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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11. Unequal neurorehabilitation trajectories – a longitudinal case study combining field structures with social Class–Based Capital Conversion.
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Bystrup, Mette Ryssel, Hindhede, Anette Lykke, Pallesen, Hanne, Aadal, Lena, and Larsen, Kristian
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CULTURE ,SOCIAL capital ,INTERVIEWING ,ACQUISITION of data ,CONCEPTUAL structures ,SOCIAL classes ,CASE studies ,MEDICAL records ,HEALTH equity ,REHABILITATION for brain injury patients ,LONGITUDINAL method - Abstract
Inequalities in illness, service provision, and outcomes are well documented in the Nordic universal welfare state. The ways in which inequalities are produced during illness recovery trajectories remain largely unknown. Long-term brain injury rehabilitation in this context provides a window into veiled aspects of inequality and the underlying mechanisms. We examine inequality empirically by combing framing field structures with the classed abilities of families to mobilise capital after a severe acquired brain injury (severe ABI). Using a Bourdieuan theoretical framework, informed by the concepts of field, doxa, cultural health capital (CHC), and rehabilitation capital (RC), we designed a longitudinal case study encompassing professional records, observations, and interviews that tracked and analysed subjects' trajectories. We found that families' consistent accumulation and conversion of capital was crucial after a severe ABI because of the multifaceted rehabilitation process involving many different field specific agendas and doxas. This study supplements previous concepts (CHC and RC) developed in a health care context by including other rehabilitation contexts. These disparities in forms of capital amongst social classes result in winners and losers and were reflected in the rehabilitation trajectories of the young adults, characterised by continuity on one extreme and broken trajectories on the other. [ABSTRACT FROM AUTHOR]
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- 2022
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12. Improved active participation among patients with severe acquired brain injury in early rehabilitation: Implementation of a professional competence development intervention.
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Pallesen, Hanne, Honore, Helene, Aadal, Lena, and Kjeldsen, Simon Svanborg
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PATIENT participation ,RESEARCH methodology ,HUMAN services programs ,PROFESSIONAL competence ,REHABILITATION for brain injury patients - Abstract
BACKGROUND: In 2019, an educational programme was implemented in a sub-acute in-hospital neurorehabilitation clinic for patients with severe acquired brain injury (sABI). The programme was initiated to enhance staff competencies related to identifying and improving active participation among patients with sABI. OBJECTIVE: The purpose was to evaluate the implementation effectiveness of the educational programme. METHODS: Mixed methods were chosen to assess implementation effectiveness as perceived by staff and patients. RESULTS: A survey of the professional's experience showed an increase in perceived competence after each completed seminar and from before the first seminar to after the last completed seminar. These results were confirmed and elaborated through staff focus group interviews. The proportion of patients achieving active participation increased from 45% before to 75% after implementation (six of eight patients). CONCLUSION: Exploring the implementation effectiveness of the educational programme seemed clinically valuable and showed a promising and probable effect of an implementation process. [ABSTRACT FROM AUTHOR]
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- 2022
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13. What is a meaningful life for persons with acquired neurological impairments? A scoping review protocol.
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Steensgaard, Randi, Hundborg, Michele Offenbach, Pallesen, Hanne, and Aadal, Lena
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PATIENTS' attitudes ,SEARCH algorithms ,NEUROLOGICAL disorders ,CINAHL database - Abstract
Objective: This scoping review explores the constitution of a meaningful life as perceived by adults with acquired neurological impairment following an injury or a disease. Introduction: A neurological injury or disease imposes extensive life changes on the affected person and his or her close relatives. Including the patients' perception of a meaningful life is crucial to facilitate adjustment of any rehabilitation initiatives to the patients' wishes, hopes, needs, and preferences. Even so, the descriptions and common traits of a meaningful life from the impaired person's perspective are scarcely covered in the literature. Hence, a scoping review of existing knowledge is needed to facilitate quality rehabilitation and research initiatives. Inclusion criteria: All studies, regardless of their design, are included provided they describe a meaningful life as considered or experienced by persons aged 18 years or more with neurological impairment. Methods: A PICo framework defines the search algorithms used in the databases MEDLINE, Cinahl, PsycINFO and Embase. Using Covidence, the scoping review systematically organizes the identified articles to provide a broad description of the study phenomenon. Furthermore, titles, abstracts, and full-text articles are screened independently by two reviewers to determine if they meet the inclusion criteria. In case of disagreement, a third and fourth reviewer are consulted. The scoping will be reported according to the PRISMA- SCR checklist. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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14. The practices of body in rehabilitation after stroke: a qualitative study of how physiotherapy affects identity reconstruction.
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Roenn-Smidt, Helle, Larsen, Kristian, and Pallesen, Hanne
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HOSPITALS ,REHABILITATION centers ,PHYSICAL therapy ,RESEARCH methodology ,QUALITATIVE research ,STROKE rehabilitation ,DESCRIPTIVE statistics ,RESEARCH funding ,MEDICAL practice ,THEMATIC analysis ,BODY image - Abstract
The rehabilitation process after a stroke transits through different treatment options organised in different settings, which thereby structure the patient's possibilities for constructing identity. To investigate how physiotherapy located in hospitals, municipal rehabilitation, and private clinics during rehabilitation after stroke provide different practices related to the patient body and how this creates different and opposed positions for construction identity after stroke. A qualitative longitudinal study based on empirical data that followed 12 patients with stroke through their rehabilitation, consisted of observations of interactions between physiotherapists and patients, as well as individual in-depth interviews with physiotherapists and patients. Building on Bourdieu's notions of field, capital, and habitus, different bodily habitus seemed to work as capital throughout the rehabilitation process. Positions available for habitus were around the disembodied body, the malfunctioning body, the defective body, the remodelled body, and the body altered. These different bodies interwove and shifted across the different sites and phases of the patient's rehabilitation. The relations between patients, physiotherapists and field constructed different bodily positions in the physiotherapeutic practice, where some bodies were included while other bodies were excluded. This shaped varying practices and different potentials for the patients' identity reconstruction. [ABSTRACT FROM AUTHOR]
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- 2021
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15. Patients' and Health Professionals' Experiences of Group Training to Increase Intensity of Training after Acquired Brain Injury: A Focus Group Study.
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Hansen, Gunhild Mo, Brunner, Iris, and Pallesen, Hanne
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Background. Increased intensity of training in the subacute phase after acquired brain injury facilitates plasticity and enhances better function. Group training can be a motivating factor and an effective means of increasing intensity. Reports on patients' and health care professionals' experiences on increasing the amount of active practice through group training during in-patient rehabilitation after acquired brain injury have been limited. Methods. Two focus groups, patients and health care professionals, participated each in two interviews, before and after implementation of the Activity block, i.e., 2-hour daily intensive group training. The data from the interviews were analyzed from a phenomenological perspective. Results. Three categories emerged from the data analyzes (i) training intensity, (ii) motivation and meaningfulness, and (iii) expectations and concerns. Both groups experienced that the training after implementation of the Activity block had become more intense and that motivation was increased induced by the group setting. Also, both groups found self-management enhanced. Some challenges were also reported. Patients expressed concerns to finding a balance between rest and activity, while the health professionals mentioned practical challenges, i.e., planning the content of the day and finding their role in the Activity block. Conclusion. Activity block benefitted a heterogeneous group of patients with acquired brain injury and was perceived as an overall positive experience by patients and health personnel. Matching the training to the individuals' need for support, finding a balance between rest and activity and using tasks that support patients' motivation, appeared important. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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16. Mind the gap. How job task distributions of health professional developers constitute evidence-based practice.
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Honoré, Helene, Pallesen, Hanne, Ellegård, Kajsa, and Nielsen, Jørgen Feldbæk
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CONTENT analysis ,JOB descriptions ,RESEARCH methodology ,MEDICAL personnel in-service training ,PROFESSIONAL employee training ,PROFESSIONS ,REHABILITATION centers ,TEACHERS ,EVIDENCE-based medicine ,PROFESSIONAL practice ,JOB performance ,OCCUPATIONAL roles ,TASK performance ,DATA analysis software ,DIARY (Literary form) ,DESCRIPTIVE statistics - Abstract
BACKGROUND: Development of clinical practice at a Danish neurorehabilitation centre was delegated to a group of health professional developers. Their job function lacked conceptual foundation, and it was unclear how their working tasks contributed to evidence-based practice. OBJECTIVE: Conceptual clarification of the job function and pattern analysis of activity distributions for health professional developers. METHODS: Health professional developers kept continuous time geographical diaries for two weeks. Meaningful categories were subtracted through content analysis. Patterns were analysed within activity distributions with regards to evidence-based practice. RESULTS: A total of 213 diaries were collected from 21 health professional developers of three professions (physiotherapists, occupational therapists and nurses). Each participant reported 6–13 workdays (median 10 days). Eleven main categories of work tasks emerged with 42 subcategories. Overall, 7% of total time reported was spent on external knowledge, with minimal variation between professions and contractual time allocation. CONCLUSION: Conceptual clarification of work tasks was established for health professional developers. Their work activity distributions contributed mainly to maintenance of existing level of professional knowledge rather than to implementation of new knowledge, which did not fulfil the intended responsibility for development of evidence-based practice. Educational competence boost and data-driven change of organisation structure was recommended. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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17. Nature-based rehabilitation for adults with acquired brain injury: a scoping review.
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Vibholm, Anne Pernille, Christensen, Jeanette Reffstrup, and Pallesen, Hanne
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CINAHL database ,COGNITION ,HORTICULTURE ,PSYCHOLOGY information storage & retrieval systems ,MEDLINE ,NATURE ,OCCUPATIONAL therapy ,ONLINE information services ,QUALITY of life ,SYSTEMATIC reviews ,LITERATURE reviews ,REHABILITATION for brain injury patients - Abstract
The objective of this review was to provide an overview of the existing knowledge of the benefits of nature-based rehabilitation for patients with impairments after acquired brain injury. Systematic searches were conducted across PubMed, CINAHL, PsycINFO and Scopus, and seven studies were found to be included for review. Results suggest that nature-based rehabilitation may benefit individuals with acquired brain injury, as both motor – and sensory-motor functions, as well as cognitive functions were significantly improved. Furthermore, two studies found an improvement in quality of life. The benefits on anxiety and depression were not clear. The studies used different approaches, outcome measures and study designs that made comparisons difficult. Recommendations for future studies are offered. [ABSTRACT FROM AUTHOR]
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- 2020
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18. The temporality of uncertainty in decision-making and treatment of severe brain injury.
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Krogager Mathiasen, Mia, Bastrup Jørgensen, Lene, From, Mette, Aadal, Lena, and Pallesen, Hanne
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BRAIN injuries ,FUTURE (Logic) ,NEUROREHABILITATION ,UNCERTAINTY ,SOCIAL processes - Abstract
The aim of the study is to investigate how time and uncertainties of clinical action and decision-making plays out in the practical work of early neurorehabilitation in order to present new analytical ways to understand the underlying logics and dynamic social processes that take place during professional treatment of patients with severe acquired brain injury. Drawing on ethnographic fieldwork in a Danish neuro-intensive step-down unit (NISU) specialising in early neurorehabilitation, we found that negotiation of futures takes place in the modern ICU in the present by strategically building upon past experiences. We have argued that the clinical programme therefore cannot be understood only from a "here and now perspective", since the early neurorehabilitation practice is embedded in overlapping temporalities of the past, the present, and desired futures. The study discusses the underlying logics—often hidden or unnoticed—that impact clinical practice of early neurorehabilitation, in what we have termed a logic of clinical reenactment, a logic of future negotiation and a logic of paradox. [ABSTRACT FROM AUTHOR]
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- 2020
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19. Different Caregiver, Different Collaboration.
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Rønn-Smidt, Helle, Shim, Janet K., Fitzsimmons, Amber, Larsen, Kristian, and Pallesen, Hanne
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MEDICAL personnel ,MEDICAL personnel as patients ,CULTURAL capital ,ATTITUDE (Psychology) ,NEUROREHABILITATION - Abstract
The quality of the collaboration between health professionals and caregivers is of great significance to outcome and recovery. Severe brain injuries after a stroke can leave patients unable to communicate their needs and wishes with health professionals, in which case the role of the caregiver(s) becomes even more important. This position is highly differentiated, and there are substantial variations in how caregivers participate in the collaboration. Using the Bourdieusian concept of cultural health capital, we aimed to develop a broader understanding of the role played by the patient's caregiver and how inequality is produced in the encounter with professionals. This qualitative study was conducted from 2014 to 2018. We observed the meetings and interactions between caregivers and health professionals during patients' neurorehabilitation after a stroke, and we interviewed caregivers and health professionals on their experiences during this period. Constructing three different caregiver types--the proactive, the persistent, and the deferential--we discovered different ways of interacting and different attitudes related to cultural health capital, which provided the caregiver with more or fewer opportunities to participate in a dialogue and negotiation on behalf of the patient. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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20. Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis.
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Pedersen, Synne G., Anke, Audny, Aadal, Lena, Pallesen, Hanne, Moe, Siri, and Arntzen, Cathrine
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ATTITUDE (Psychology) ,COMPARATIVE studies ,CONVALESCENCE ,EMPLOYMENT reentry ,PATIENT aftercare ,INTERPERSONAL relations ,INTERVIEWING ,LIFE ,LIFE skills ,RESEARCH methodology ,MEDICAL cooperation ,PATIENT-professional relations ,QUALITY of life ,RESEARCH ,SOCIAL support ,PATIENTS' attitudes ,STROKE rehabilitation - Abstract
Purpose: This study aims to explore quality of life (QOL) during the first year of recovery after stroke in North Norway and Central Denmark. Method: Individual in-depth interviews with 11 stroke survivors were performed twelve months after stroke onset. An interpretative, inductive approach shaped the interview process and the processing of data. Results: We found that QOL reflected the individuals' reconstruction of the embodied self, which was identified by three intertwined and negotiating processes: a familiar self, an unfamiliar self, and a recovery of self. Further, we found that reconstruction of the embodied self and QOL could be framed as an ongoing and interrelated process of "being, doing, belonging and becoming". Enriching social relations, successful return to work, and continuity and presence in professional support during recovery enhanced the experience of QOL. Fatigue and sustained reduced function hindered participation in meaningful activities and influenced the perceived QOL negatively. Conclusions: The two countries differed in descriptions of continuity and support in the professional follow-up during the recovery process, influencing the degree of encouragement in reconstructing the embodied self. Reconstruction of the embodied self is a means of understanding stroke survivors' QOL during the first year of recovery, supporting an individualized and tailored rehabilitation practice. [ABSTRACT FROM AUTHOR]
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- 2019
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21. Virtual Reality Training for Upper Extremity in Subacute Stroke (VIRTUES): A multicenter RCT.
- Author
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Brunner, Iris, Skouen, Jan Sture, Hofstad, Håkon, Aßmus, Jörg, Becker, Frank, Sanders, Anne-Marthe, Pallesen, Hanne Pallesen, Kristensen, Lola Qvist, Michielsen, Marc, Thijs, Liselot, Verheyden, Geert, Pallesen, Hanne, and Qvist Kristensen, Lola
- Published
- 2017
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22. Municipal Cross-Disciplinary Rehabilitation following Stroke in Denmark and Norway: A Qualitative Study.
- Author
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Aadal, Lena, Pallesen, Hanne, Arntzen, Cathrine, and Moe, Siri
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CONCEPTUAL structures , *HEALTH care teams , *INTERVIEWING , *LOCAL government , *RESEARCH methodology , *NOSOLOGY , *REHABILITATION , *QUALITATIVE research , *STROKE rehabilitation - Abstract
Aim. To explore and compare the content of rehabilitation practices in, respectively, a Danish and a Norwegian region, focusing on how the citizens’ rehabilitation needs are met during rehabilitation in the municipalities. Method. Six Danish and five Norwegian cases were followed 12 months after the onset of stroke. Field work and focus group interviews with multidisciplinary teams in the municipalities were conducted. The conceptual frame of the International Classification of Functioning was used to outline general patterns and local variation in the rehabilitation services. Findings. Each of the settings faces different challenges and opportunities in the provision of everyday life-supportive rehabilitation services. Rehabilitation after stroke in both settings basically follows the same guidelines, but the organization of rehabilitation programmes is more specialized in Denmark than in Norway. Team organization, multidisciplinarity, and collaboration to assess and target the patients’ needs characterized the Danish rehabilitation services. Decentralized coordination and monodisciplinary contributions with scarce or unsystematic collaboration were common in the Norwegian cases. Seamless holistic rehabilitation was challenged in both countries, but more notably in Norway. The municipal services emphasized physical functioning, which could conflict with the patients’ needs. Cognitive disturbances to and aspects of activity or participation were systematically addressed by the interdisciplinary teams in Denmark, while practitioners in Norway found that these disturbances were scarcely addressed. Discussion. The study showed major differences in municipal stroke rehabilitation services in the Northern Norway and Central Denmark Regions—in their ability to conduct everyday life—supportive rehabilitation services. Despite the fact that biopsychosocial conceptions of disease and illness, as recommended in the ICF, have been generally accepted, they seemed scarcely implemented in the political and health managerial arenas, especially in Norway. These national diversities can partly be explained by the size of the municipalities and the available health profiles in delivering patient and family-centred rehabilitation services. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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23. Cross-cultural adaptation of the stroke self-efficacy questionnaire - Denmark (SSEQ-DK).
- Author
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Kristensen, Lola Qvist and Pallesen, Hanne
- Subjects
PSYCHOMETRICS ,STATISTICAL correlation ,TEST validity ,RESEARCH methodology ,CULTURAL pluralism ,QUESTIONNAIRES ,RESEARCH funding ,SELF-efficacy ,TRANSLATIONS ,CROSS-sectional method ,RESEARCH methodology evaluation ,DATA analysis software ,STROKE patients - Abstract
Objective The objective of the present study was to translate and cross-culturally adapt the Stroke Self-Efficacy Questionnaire (SSEQ) from English to Danish in order to create a Danish version of the measure, SSEQ-DK, and to assess psychometric properties in the form of internal consistency and face validity. Methods The adaptation process followed standard guidelines, in five stages: (I) initial translation, (II) synthesis, (III) back translation, (IV) expert committee, and (V) pretest involving 30 stroke survivors. Face validity was assessed in the expert committee and, based on results from the pretest, internal consistency was evaluated using Cronbach’s α. Results There was a high level of agreement in the translations. Some adjustments were made, primarily with regard to semantic equivalence. Thirty stroke survivors participated in the pretest, evaluating the relevance of the questionnaire on a Likert scale: not relevant (0%), somewhat relevant (10%), relevant (40%), and very relevant (50%). The perceived difficulty of completing the questionnaire was also evaluated on a Likert scale: very easy (30%), easy (43.3%), neither easy nor difficult (26.7%), difficult (0%), and very difficult (0%). Face validity was satisfactory, and the SSEQ-DK showed good internal consistency (0.89). Conclusion The translation and cultural adaptation of the SSEQ to SSEQ-DK appears to be successful, with good face validity and internal consistency along with a high level of relevance and comprehensibility. Further assessment of the inter- and intra-reliability of SSEQ-DK is required before it can be recommended in clinical use. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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24. The body participating: a qualitative study of early rehabilitation participation for patients with severe brain injury and low level of consciousness.
- Author
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Pallesen, Hanne, Lund, Lone Blak, Jensen, Marianne, and Roenn-Smidt, Helle
- Subjects
- *
CONSCIOUSNESS , *FIELDWORK (Educational method) , *PHENOMENOLOGY , *PHYSICAL therapists , *PHYSICAL therapy , *REHABILITATION , *RESEARCH funding , *VIDEO recording , *QUALITATIVE research , *THEMATIC analysis , *SEVERITY of illness index , *REHABILITATION for brain injury patients , *CLASSIFICATION - Abstract
Background: The literature on participation in rehabilitation by those with the most severe acquired brain injury is very sparse. Objectives: The aim of this study was to explore how physiotherapists promote the participation of patients with severe brain injury in therapeutic and daily-life situations in early rehabilitation. Methods: In a qualitative study employing phenomenological philosophy, several video-recorded sessions of patients with a Rancho Los Amigos Scale score of 3-4 were analysed. Empirical themes were identified by four different investigators through individual and consensus-based analyses. The results were theoretically stated and supported. Results: In an effort to achieve patient participation, the following four themes seemed to be significant: 1) consciously encountering the patient in the moment, 2) the employment of concepts surrounding the interaction between body and environment, 3) timing and flow of the activities and 4) comprehensive bodily support, guidance and facilitation of the activity and participation in daily-life skills. Conclusions: The dynamic use of these four themes seemed to enrich early rehabilitation interventions for patients with severe brain injury and low level of consciousness in terms of their participation and functioning in everyday life. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
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25. Patients’ and Health Professionals’ Experiences of Using Virtual Reality Technology for Upper Limb Training after Stroke: A Qualitative Substudy.
- Author
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Pallesen, Hanne, Andersen, Mette Brændstrup, Hansen, Gunhild Mo, Lundquist, Camilla Biering, and Brunner, Iris
- Subjects
- *
ARM physiology , *ATTITUDE (Psychology) , *CLINICAL trials , *FOCUS groups , *GAMES , *INTERVIEWING , *PHENOMENOLOGY , *RESEARCH methodology , *MEDICAL cooperation , *MEDICAL personnel , *MOTIVATION (Psychology) , *OCCUPATIONAL therapists , *PHYSICAL therapists , *QUESTIONNAIRES , *RESEARCH , *RESEARCH funding , *STATISTICAL sampling , *VIRTUAL reality , *QUALITATIVE research , *THEMATIC analysis , *RANDOMIZED controlled trials , *TREATMENT effectiveness , *MEDICAL equipment reliability , *DATA analysis software , *PATIENTS' attitudes , *INDIVIDUALIZED medicine , *STROKE rehabilitation , *DESCRIPTIVE statistics ,RESEARCH evaluation - Abstract
Background . In recent years, virtual reality (VR) therapy systems for upper limb training after stroke have been increasingly used in clinical practice. Therapy systems employing VR technology can enhance the intensity of training and can also boost patients’ motivation by adding a playful element to therapy. However, reports on user experiences are still scarce.Methods . A qualitative investigation of patients’ and therapists’ perspectives on VR upper limb training. Semistructured face-to-face interviews were conducted with six patients in the final week of the VR intervention. Therapists participated in two focus group interviews after the completion of the intervention. The interviews were analyzed from a phenomenological perspective emphasizing the participants’ perceptions and interpretations.Results . Five key themes were identified from the patients’ perspectives: (i) motivational factors, (ii) engagement, (iii) perceived improvements, (iv) individualization, and (v) device malfunction. The health professionals described the same themes as the patients but less positively, emphasizing negative technical challenges.Conclusion . Patients and therapists mainly valued the intensive and motivational character of VR training. The playful nature of the training appeared to have a significant influence on the patients’ moods and engagement and seemed to promote a “gung-ho” spirit, so they felt that they could perform more repetitions. [ABSTRACT FROM AUTHOR]- Published
- 2018
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26. Interdisciplinary facilitation of the minimal participation of patients with severe brain injury in early rehabilitation.
- Author
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Pallesen, Hanne and Buhl, Inge
- Subjects
- *
CLINICAL competence , *COMMUNICATION , *DOCUMENTATION , *ECOLOGY , *FAMILIES , *FOCUS groups , *HEALTH care teams , *INTERPROFESSIONAL relations , *INTERVIEWING , *PHENOMENOLOGY , *PATIENT-professional relations , *MEETINGS , *NONVERBAL communication , *SCIENTIFIC observation , *REHABILITATION , *RESEARCH funding , *VIDEO recording , *QUALITATIVE research , *FIELD research , *REHABILITATION for brain injury patients , *DATA analysis software , *GLASGOW Coma Scale - Abstract
Aim:The purpose of the study was to shed light on the participatory aspect of early rehabilitation, when contact, communication and interaction between the patients and the professionals is minimal, because of the patients’ severe brain injury and complex conditions. Methodology:A qualitative study was chosen. The field study involved five patients (aged 39–64) and included: participant observation and video recordings of 41 rehabilitation situations, five individual interviews and one focus group interview with multidisciplinary rehabilitation experts; together with document review of hospital charts and memos. The data were analyzed using a four-step phenomenological analysis and NVivo 10. Major findings:Participation comes into play in various practices around the patient. Three main themes seem to be important: (1) The dynamic interplay of the multidisciplinary team as an element that influences participation, (2) significant relational encounters and meetings as aspects that impact on the promotion of participation, and (3) significant frameworks that affect involvement, engagement and participation. Principal conclusion:Patients’ participation and recovery are facilitated by a combination of the clinicians’ professional skills, their ability to create a rehabilitation environment in which patients can perform activities, the right framework for the meeting, and a suitable approach, to facilitate fruitful interaction with the patients. [ABSTRACT FROM PUBLISHER]
- Published
- 2017
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27. Early rehabilitation and participation in focus – a Danish perspective on patients with severe acquired brain injury.
- Author
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Pallesen, Hanne, Buhl, Inge, and Roenn-Smidt, Helle
- Subjects
- *
REHABILITATION - Abstract
Early neurorehabilitation is an interdisciplinary field. Thus, in order to eliminate unnecessary barriers for individuals with severe acquired brain injury in early rehabilitation, we need rehabilitation science that supports both quantitative and qualitative research methods. Participation can be studied directly and indirectly. This commentary proposes that active participation and the “lived body” are essential terms in early rehabilitation of severe ABI patients, and a description of how these terms are interpreted and handled in the practice is needed. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
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28. Is upper limb virtual reality training more intensive than conventional training for patients in the subacute phase after stroke? An analysis of treatment intensity and content.
- Author
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Brunner, Iris, Skouen, Jan Sture, Hofstad, Håkon, Aßmuss, Jörg, Becker, Frank, Pallesen, Hanne, Thijs, Liselot, and Verheyden, Geert
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VIRTUAL reality in medicine ,STROKE patients ,STROKE treatment ,MEDICAL rehabilitation ,MOTOR ability ,PARALYSIS - Abstract
Background: Virtual reality (VR) training is thought to improve upper limb (UL) motor function after stroke when utilizing intensive training with many repetitions. The purpose of this study was to compare intensity and content of a VR training intervention to a conventional task-oriented intervention (CT). Methods: A random sample of 50 video recordings was analyzed of patients with a broad range of UL motor impairments (mean age 61y, 22 women). Patients took part in the VIRTUES trial and were randomized to either VR or CT and stratified according to severity of paresis. A standardized scoring form was used to analyze intensity, i.e. active use of the affected UL expressed in % of total time, total active time and total duration of a training session in minutes, content of training and feedback. Two raters collected data independently. Linear regression models as well as descriptive and graphical methods were used. Results: Patients in the VR group spent significantly more time actively practicing with an activity rate of 77.6 (8.9) % than patients in the CT 67.3 (13.9) %, (p = .003). This difference was attributed to the subgroup of patients with initially severe paresis (n = 22). While in VR severely impaired patients spent 80.7 % (4.4 %) of the session time actively; they reached 60.6 (12.1) % in CT. VR and CT also differed in terms of tasks and feedback provided. Conclusion: Our results indicate that patients with severely impaired UL motor function spent more time actively in VR training, which may influence recovery. The upcoming results of the VIRTUES trial will show whether this is correlated with an increased effect of VR compared to CT. [ABSTRACT FROM AUTHOR]
- Published
- 2016
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29. How is individualization in constraint-induced movement therapy performed? A qualitative observational study.
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Mo Hansen, Gunhild, Pallesen, Hanne, and Normann, Britt
- Subjects
- *
CONTENT analysis , *SCIENTIFIC observation , *VIDEO recording , *QUALITATIVE research , *GROUP process , *UNOBTRUSIVE measures , *CONSTRAINT-induced movement therapy , *BODY movement , *PATIENT-centered care - Abstract
The aim of the study was to investigate relationships between the design of tasks and impairments in constraint-induced movement therapy (CIMT) and significant principles ofin situindividualization in group-based performance of the intervention, focusing on quality of performance versus compensatory strategies in the more affected upper limb. Non-participatory observations of four individuals undergoing CIMT group training with a physiotherapist were conducted, followed by theme-based content analysis using concepts from practice knowledge and movement analysis as analytical tools. The material was characterized by the physiotherapist focusing on the quality of movements by interacting and making a variety of adjustments. Most tasks were too challenging in terms of shoulder stability and were performed using compensatory strategies. It appeared essential that participants’ could solve the task with optimal movement quality in addition to experiencing meaning and success. In conclusion, the physiotherapist’s individualizationsin situappeared to be based on goal attainment through optimization of movement quality. Interlinking the design of tasks with the individual patient’s underlying impairments, elements from activities in daily life and sense-making seem essential. Impairments occurred owing to high demands of dynamic stability in the shoulder, which may be a reason why participants in CIMT often use compensatory strategies. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
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30. Constraint-induced movement therapy for children with acquired brain injury: didactical approach and functional change.
- Author
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Schmidt Pedersen, Kristina, Pallesen, Hanne, and Kaae Kristensen, Hanne
- Subjects
- *
CONCEPTUAL structures , *EXERCISE tests , *GRIP strength , *NEUROPSYCHOLOGICAL tests , *PHENOMENOLOGY , *MOTOR ability , *MUSCLE contraction , *SCIENTIFIC observation , *RESEARCH funding , *QUALITATIVE research , *ACTIVITIES of daily living , *UNOBTRUSIVE measures , *CONSTRAINT-induced movement therapy , *REHABILITATION for brain injury patients , *FIELD notes (Science) , *CHILDREN ,RESEARCH evaluation - Abstract
An estimated 125–137 Danish children with acquired brain injury (ABI) require rehabilitation annually, 30–40 of these at a highly specialized level. Constraint-induced movement therapy (CIMT) has shown significant effects in increasing function in children with cerebral palsy. More knowledge of how CIMT can be adapted for the rehabilitation of children with ABI is needed. The primary purpose of the study was to generate new knowledge about the pedagogical initiatives and frameworks involved in children’s participation in and activities during CIMT. Four children with ABI participated in the 60 h intervention. Data generation consisted of qualitative research through participant observations and healthcare professional evaluations. A didactical approach with individualization and a solid structural framework enhanced the possibility of securing the children’s motivation for and participation in the intervention. Adaptation, compensation and individualization were crucial factors in the achievement of changes in functional skills. Spontaneous functional use and natural bimanual involvement increased, indicating that CIMT intervention encourages the retrieval of natural involvement of the impaired upper limb after ABI. Individualization, attention, firm structure and goal-specific tasks are key didactical factors to maintain children’s motivation to participate during CIMT to increase functional skills and spontaneous and natural bimanual involvement of the impaired upper limb during activities. [ABSTRACT FROM PUBLISHER]
- Published
- 2016
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31. Early rehabilitation of patients with severe acquired brain injury: Strategies to promote participation.
- Author
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Buhl, Inge and Pallesen, Hanne
- Subjects
- *
FOCUS groups , *HEALTH care teams , *INTERVIEWING , *PHENOMENOLOGY , *MEDICAL protocols , *RESEARCH funding , *THEMATIC analysis , *REHABILITATION for brain injury patients , *DATA analysis software , *DESCRIPTIVE statistics - Abstract
Purpose: The aim of this study was to explore the experiences of professional specialists in early rehabilitation who face demanding pedagogical challenges in facilitating and promoting participation of the severe acquired brain injury patient. Method: In a qualitative study, using phenomenological philosophy and thinking, the experiences of specialist professional experts were investigated. Data were generated in five individual interviews and one focus-group interview. The interview questions were grounded in a preliminary field study. In a four-step phenomenological analysis, empirical themes were identified, using the computer program N-Vivo10; they were structured and organized, and the results were theoretically stated and supported. Results: Important practice knowledge emerged in this study that led to the proposal of a determined, client-centred approach when facilitating the promotion of severe acquired brain injury patients' participation in early rehabilitation. Four factors are important in this approach: (i) gain contact, (ii) register responses, (iii) intentional interaction, (iv) partial participation. Together they constitute the elements in a proposal for a new model: the GRIP model. Conclusion: The four factors that shape the GRIP model can enrich neurorehabilitation services and support professional experts in early rehabilitation interventions with severe acquired brain injury patients regaining participation and functioning in everyday life. [ABSTRACT FROM AUTHOR]
- Published
- 2015
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32. Using EFA and FIM rating scales could provide a more complete assessment of patients with acquired brain injury.
- Author
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Stubbs, Peter W., Pallesen, Hanne, Pedersen, Asger R., and Nielsen, Jørgen F.
- Abstract
Purpose: In some hospitals, patients exhibit significant heterogeneity of function at admission and discharge. The current study aims to assess if concurrent usage of the Early Functional Assessment (EFA) and Functional Independence Measure (FIM®) is warranted and practical in rehabilitation centers with diverse patient groups and outcomes. Methods: This retrospective study examined a data set of all patients with concurrent EFA and FIM scores admitted to a single rehabilitation center (4076 scores from 1251 patients). The patients had acquired brain injury of multiple etiologies and a range of severities. Results: The EFA scale was more able to characterize the function of lower functioning patients according to the FIM while the FIM scale was more able to characterize the function of higher functioning patients according to the EFA. This was highlighted by 21% of assessments with the lowest FIM score (18) having corresponding EFA scores of 22-76 and 27% of assessments with the highest EFA score (>90) having corresponding FIM scores of 38-126. Conclusions: In rehabilitation centers with diverse patient groups and outcomes, the FIM and EFA scale could be used to characterize the heterogeneity of function in patients with acquired brain injury. The EFA/FIM scale could be used concurrently in certain patients providing a more complete view of patients throughout the rehabilitation process. [ABSTRACT FROM AUTHOR]
- Published
- 2014
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33. Virtual reality training for upper extremity in subacute stroke (VIRTUES): study protocol for a randomized controlled multicenter trial.
- Author
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Brunner, Iris, Skouen, Jan S., Hofstad, Håkon, Strand, Liv I., Becker, Frank, Sanders, Anne-Marthe, Pallesen, Hanne, Kristensen, Tove, Michielsen, Marc, and Verheyden, Geert
- Subjects
VIRTUAL reality therapy ,ARM ,STROKE treatment ,MOTOR ability ,PHYSICAL therapy - Abstract
Background Novel virtual reality rehabilitation systems provide the potential to increase intensity and offer challenging and motivating tasks. The efficacy of virtual reality systems to improve arm motor function early after stroke has not been demonstrated yet in sufficiently powered studies. The objective of the study is to investigate whether VR training as an adjunct to conventional therapy is more effective in improving arm motor function in the subacute phase after stroke than dose-matched conventional training, to assess patient and therapist satisfaction when working with novel virtual reality training and to calculate costeffectiveness in terms of resources required to regain some degree of dexterity. Methods/Design Randomized controlled observer-blind trial. One hundred and twenty patients up to 12 weeks after stroke will be randomized to either a group receiving VR training or dose-matched and therapist attention-matched conventional arm training in addition to standard rehabilitation. During a period of four weeks the patients will be offered additional 4-5 training sessions a week of 45-60 minutes duration by a physiotherapist or an occupational therapist. Study outcomes: Arm motor function, dexterity and independence in daily life activities will be evaluated at baseline, post treatment and three months follow-up assessments with the Action Research Arm Test, Box and Blocks Test and the Functional Independence Measure, respectively. Patient and therapist satisfaction with the implementation of a VR rehabilitation system will also be assessed with questionnaires and interviews. Discussion Virtual reality systems are promising tools for rehabilitation of arm motor function after stroke. Their introduction in combination with traditional physical and occupational therapy may enhance recovery after stroke, and at the same time demand little personnel resources to increase training intensity. The VIRTUES trial will provide further evidence of VR-based treatment strategies to clinicians, patients and health economists. Trial registration ClinicalTrials.gov NCT02079103 [ABSTRACT FROM AUTHOR]
- Published
- 2014
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34. Health and functioning in a stroke population five years after first incidence.
- Author
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Pallesen, Hanne, Pedersen, Anders Degn, and Holst, René
- Subjects
- *
STROKE prognosis , *HEALTH status indicators , *LIFE skills , *PEOPLE with disabilities , *QUESTIONNAIRES , *REGRESSION analysis , *STROKE , *SURVIVAL , *DESCRIPTIVE statistics , *DISEASE complications - Abstract
Purpose:To isolate characteristics of a stroke population five years after first stroke, focusing on functioning and health.Methods:The subjects in the present study were identified in a computerized National Bureau of Health Register over a six month period in 2003 in a well-defined area of 353,284 inhabitants.Results:Survival rate five years after first stroke was 52%. As regards functioning 50% of the group were able to look after own affairs. Thirty-one percent reported themselves as being moderately disabled. Seventeen percent had moderate to severe disability. In the responding group 53% below 65 years of age were disability pensioners. Half of the responding group had suffered a further stroke or another severe illness during the previous five years. There was a positive correlation between functioning and health.Conclusion:Stroke survivors cannot be seen as a homogenous group as regard to functioning and health five years after the incidence. It is recommended that professionals identify the stroke individual's level of functioning before rehabilitation is concluded, and that they give stroke individuals with moderate to severe disabilities a well-considered and individualized follow-up. Professionals should be more aware of the working potential of stroke survivors below 65 years. [ABSTRACT FROM AUTHOR]
- Published
- 2014
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35. Body, coping and self-identity. A qualitative 5-year follow-up study of stroke.
- Author
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Pallesen, Hanne
- Abstract
Objective: The purpose of this article is to identify, from a long-term perspective, stroke survivors' self-identity, their views of any associated disabilities and how they manage their lives after stroke. Methods: The interviews and analyses were conducted using a phenomenological qualitative method. A total of 10 men and 5 women, aged 42-84, participated. All had suffered first-time stroke 5 years earlier. Results: After 5 years, participants had greater acceptance of their situation compared with immediately after participating in the rehabilitation programme. However, they described how they still had to deal with the consequences of stroke. They had suffered further illnesses and additions to side effects of the stroke. In dealing with their disabilities and changes to self-identity and life patterns, they seemed to be in a continuous process of change that never truly stabilised. They coped with this continuous process in at least two different ways, including resignation or personal growth. Conclusion: Stroke survivors suffered considerable ongoing and changing difficulties in relation to disability, self-perception and to coping with a new life. This continuous process of change could be seen to drain their energy. The study shows that many survivors live a more home-centred life with fewer social relations and less active participation in their community. This can entail the risk of depression and loneliness. The study also shows, however, that adopting an optimistic approach to life can lead to continued learning about abilities and limitations, to the development of new skills and to the fashioning of a new self-identity. [ABSTRACT FROM AUTHOR]
- Published
- 2014
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36. The Effects of High-Intensity Aerobic Exercise on Cognitive Performance After Stroke: A Pilot Randomised Controlled Trial.
- Author
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Pallesen, Hanne, Bjerk, Maria, Pedersen, Asger Roer, Nielsen, Jørgen Feldbæk, and Evald, Lars
- Abstract
Background: Aerobic exercise is an effective treatment to improve aerobic capacity following stroke and might also improve cognitive impairments in sub-acute stroke survivors. The aim of the study was to assess the effect of high-intensity aerobic exercise on cognitive impairments in sub-acute stroke survivors. Methods: A pilot, randomised controlled trial on the effects of aerobic exercise on cognitive impairments of stroke patients in the sub-acute (1-3 months) phase was conducted. Thirty patients with moderate cognitive impairments (maximum score of 5 on at least two items on the cognitive subscales of the Functional Independence Measure [FIM]) were included in the study and randomly assigned to either the intervention group – performing high-intensity aerobic exercise (above 70% of maximum heart rate), or the control group – performing low-intensity aerobic exercise (below 60%). Patients in both groups exercised for 50 min twice a week for 4 weeks. Primary neuropsychological outcome: Trail Making Test B. Results: Thirty stroke patients completed the interventions. The results showed that the high-intensity group, compared with the low-intensity group, achieved significant improvements on Trail Making Test B, which assesses processing speed and divided attention (P =.04 after training and P =.01 at follow-up). However, the significant improvements on Trail Making Test B might relate to a ceiling effect in the control group. Conclusions: This study does not provide evidence to support that aerobic exercise can improve cognition in stroke survivors, even though significant improvement was revealed on the primary outcome in sub-acute stroke survivors following high-intensity aerobic exercise compared with low-intensity general exercise. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
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37. Review of the “Quick reference neuroscience for rehabilitation professionals: the essential neurologic principles underlying rehabilitation practice” (3rd edition), edited by S. Gutman, Slack Incorporated, 2016, 434 pp., 55.52, ISBN: 9781630911522
- Author
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Pallesen, Hanne and Kjaersgaard, Annette
- Subjects
- *
NEUROLOGY , *REHABILITATION - Published
- 2017
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38. Upper Limb Virtual Reality Training Provides Increased Activity Compared With Conventional Training for Severely Affected Subacute Patients After Stroke.
- Author
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Verheyden, Geert, Skouen, Jan S., Hofstad, Hakon, Assmus, Jörg, Pallesen, Hanne, Becker, Frank, and Brunner, Iris
- Published
- 2016
- Full Text
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39. Facilitating learning and change in the daily lives of stroke survivors: A comparative analysis of municipal stroke rehabilitation services in Norway and Denmark.
- Author
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Arntzen, Cathrine, Moe, Siri, Aadal, Lena, Pallesen, Hanne, and Schumacher, Udo
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- *
STROKE , *MUNICIPAL services , *SERVICE learning , *COMPARATIVE studies , *REHABILITATION - Abstract
Purpose: This study describes and compare the ability of professionals working in municipality stroke rehabilitation services to facilitate learning and change in the daily living of stroke survivors in two regions: one in northern Norway, the other central Denmark. Materials and Methods: Semi-structured individual interviews were conducted with survivors 3 and 9 months after discharge from in-patient care. By contrast, field observations and focus group interviews were completed with professionals on multidisciplinary teams in the two regions. A sociocultural perspective on learning was applied during data analysis. Results: Altogether, the ability of municipal health services to facilitate learning and change for stroke survivors during the first year generally depended upon developing comprehensive integrated rehabilitation plans and ensuring access to coordinated, qualified multidisciplinary teams with professional knowledge and skills to support the survivors and their families during processes of adjustment, learning and change. However, Danish stroke survivors seemed positioned to be more active, proactive and empowered, and their processes of learning and change seemed more closely co-constructed with professional support. Conclusion: Findings reveal considerable differences in municipal stroke rehabilitation services in northern Norway and central Denmark and their ability to support stroke survivors in performing self-management. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
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