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12 results on '"Van Valckenborgh, Els"'

1. Genetic counselling legislation and practice in cancer in EU Member States

Author

McCrary, J. Matt, Van Valckenborgh, Els, Poirel, Hélène A., de Putter, Robin, van Rooij, Jeroen, Horgan, Denis, Dierks, Marie Luise, Antonova, Olga, Brunet, Joan, Chirita-Emandi, Adela, Colas, Chrystelle, Dalmas, Miriam, Ehrencrona, Hans, Grima, Claire, Janavičius, Ramūnas, Klink, Barbara, Koczok, Katalin, Krajc, Mateja, Lace, Baiba, Leitsalu, Liis, Mistrik, Martin, Paneque, Milena, Primorac, Dragan, Roetzer, Katharina M., Ronez, Joelle, Slámová, Lucie, Spanou, Elena, Stamatopoulos, Kostas, Stoklosa, Tomasz, Strang-Karlsson, Sonja, Szakszon, Katalin, Szczałuba, Krzysztof, Turner, Jacqueline, van Dooren, Marieke F., van Zelst-Stams, Wendy A.G., Vassallo, Loredana Maria, Wadt, Karin A.W., Žigman, Tamara, Ripperger, Tim, Genuardi, Maurizio, Van den Bulcke, Marc, Bergmann, Anke Katharina, McCrary, J. Matt, Van Valckenborgh, Els, Poirel, Hélène A., de Putter, Robin, van Rooij, Jeroen, Horgan, Denis, Dierks, Marie Luise, Antonova, Olga, Brunet, Joan, Chirita-Emandi, Adela, Colas, Chrystelle, Dalmas, Miriam, Ehrencrona, Hans, Grima, Claire, Janavičius, Ramūnas, Klink, Barbara, Koczok, Katalin, Krajc, Mateja, Lace, Baiba, Leitsalu, Liis, Mistrik, Martin, Paneque, Milena, Primorac, Dragan, Roetzer, Katharina M., Ronez, Joelle, Slámová, Lucie, Spanou, Elena, Stamatopoulos, Kostas, Stoklosa, Tomasz, Strang-Karlsson, Sonja, Szakszon, Katalin, Szczałuba, Krzysztof, Turner, Jacqueline, van Dooren, Marieke F., van Zelst-Stams, Wendy A.G., Vassallo, Loredana Maria, Wadt, Karin A.W., Žigman, Tamara, Ripperger, Tim, Genuardi, Maurizio, Van den Bulcke, Marc, and Bergmann, Anke Katharina

Abstract

Background: Somatic and germline genetic alterations are significant drivers of cancer. Increasing integration of new technologies which profile these alterations requires timely, equitable and high-quality genetic counselling to facilitate accurate diagnoses and informed decision-making by patients and their families in preventive and clinical settings. This article aims to provide an overview of genetic counselling legislation and practice across European Union (EU) Member States to serve as a foundation for future European recommendations and action. Methods: National legislative databases of all 27 Member States were searched using terms relevant to genetic counselling, translated as appropriate. Interviews with relevant experts from each Member State were conducted to validate legislative search results and provide detailed insights into genetic counselling practice in each country. Results: Genetic counselling is included in national legislative documents of 22 of 27 Member States, with substantial variation in legal mechanisms and prescribed details (i.e. the ‘who, what, when and where’ of counselling). Practice is similarly varied. Workforce capacity (25 of 27 Member States) and genetic literacy (all Member States) were common reported barriers. Recognition and/or better integration of genetic counsellors and updated legislation and were most commonly noted as the ‘most important change’ which would improve practice. Conclusions: This review highlights substantial variability in genetic counselling across EU Member States, as well as common barriers notwithstanding this variation. Future recommendations and action should focus on addressing literacy and capacity challenges through legislative, regulatory and/or strategic approaches at EU, national, regional and/or local levels.

Published
2024

3. Figure S1 from Extracellular S100A9 Protein in Bone Marrow Supports Multiple Myeloma Survival by Stimulating Angiogenesis and Cytokine Secretion

Author

De Veirman, Kim, primary, De Beule, Nathan, primary, Maes, Ken, primary, Menu, Eline, primary, De Bruyne, Elke, primary, De Raeve, Hendrik, primary, Fostier, Karel, primary, Moreaux, Jérôme, primary, Kassambara, Alboukadel, primary, Hose, Dirk, primary, Heusschen, Roy, primary, Eriksson, Helena, primary, Vanderkerken, Karin, primary, and Van Valckenborgh, Els, primary

Published
2023
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5. Supplementary Data from Extracellular S100A9 Protein in Bone Marrow Supports Multiple Myeloma Survival by Stimulating Angiogenesis and Cytokine Secretion

Author

De Veirman, Kim, primary, De Beule, Nathan, primary, Maes, Ken, primary, Menu, Eline, primary, De Bruyne, Elke, primary, De Raeve, Hendrik, primary, Fostier, Karel, primary, Moreaux, Jérôme, primary, Kassambara, Alboukadel, primary, Hose, Dirk, primary, Heusschen, Roy, primary, Eriksson, Helena, primary, Vanderkerken, Karin, primary, and Van Valckenborgh, Els, primary

Published
2023
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8. Supplementary Table 1 from Extracellular S100A9 Protein in Bone Marrow Supports Multiple Myeloma Survival by Stimulating Angiogenesis and Cytokine Secretion

Author

De Veirman, Kim, primary, De Beule, Nathan, primary, Maes, Ken, primary, Menu, Eline, primary, De Bruyne, Elke, primary, De Raeve, Hendrik, primary, Fostier, Karel, primary, Moreaux, Jérôme, primary, Kassambara, Alboukadel, primary, Hose, Dirk, primary, Heusschen, Roy, primary, Eriksson, Helena, primary, Vanderkerken, Karin, primary, and Van Valckenborgh, Els, primary

Published
2023
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9. Data from Extracellular S100A9 Protein in Bone Marrow Supports Multiple Myeloma Survival by Stimulating Angiogenesis and Cytokine Secretion

Author

De Veirman, Kim, primary, De Beule, Nathan, primary, Maes, Ken, primary, Menu, Eline, primary, De Bruyne, Elke, primary, De Raeve, Hendrik, primary, Fostier, Karel, primary, Moreaux, Jérôme, primary, Kassambara, Alboukadel, primary, Hose, Dirk, primary, Heusschen, Roy, primary, Eriksson, Helena, primary, Vanderkerken, Karin, primary, and Van Valckenborgh, Els, primary

Published
2023
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10. Supplementary Table Legend 1 from The HDAC Inhibitor LBH589 Enhances the Antimyeloma Effects of the IGF-1RTK Inhibitor Picropodophyllin

Author

Lemaire, Miguel, primary, Fristedt, Charlotte, primary, Agarwal, Prasoon, primary, Menu, Eline, primary, Van Valckenborgh, Els, primary, De Bruyne, Elke, primary, Österborg, Anders, primary, Atadja, Peter, primary, Larsson, Olle, primary, Axelson, Magnus, primary, Van Camp, Ben, primary, Jernberg-Wiklund, Helena, primary, and Vanderkerken, Karin, primary

Published
2023
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12. Genetic counselling legislation and practice in cancer in EU Member States.

Author

McCrary JM, Van Valckenborgh E, Poirel HA, de Putter R, van Rooij J, Horgan D, Dierks ML, Antonova O, Brunet J, Chirita-Emandi A, Colas C, Dalmas M, Ehrencrona H, Grima C, Janavičius R, Klink B, Koczok K, Krajc M, Lace B, Leitsalu L, Mistrik M, Paneque M, Primorac D, Roetzer KM, Ronez J, Slámová L, Spanou E, Stamatopoulos K, Stoklosa T, Strang-Karlsson S, Szakszon K, Szczałuba K, Turner J, van Dooren MF, van Zelst-Stams WAG, Vassallo LM, Wadt KAW, Žigman T, Ripperger T, Genuardi M, Van den Bulcke M, and Bergmann AK

Subjects
Humans, Genetic Testing legislation & jurisprudence, European Union, Genetic Counseling legislation & jurisprudence, Neoplasms genetics
Abstract

Background: Somatic and germline genetic alterations are significant drivers of cancer. Increasing integration of new technologies which profile these alterations requires timely, equitable and high-quality genetic counselling to facilitate accurate diagnoses and informed decision-making by patients and their families in preventive and clinical settings. This article aims to provide an overview of genetic counselling legislation and practice across European Union (EU) Member States to serve as a foundation for future European recommendations and action., Methods: National legislative databases of all 27 Member States were searched using terms relevant to genetic counselling, translated as appropriate. Interviews with relevant experts from each Member State were conducted to validate legislative search results and provide detailed insights into genetic counselling practice in each country., Results: Genetic counselling is included in national legislative documents of 22 of 27 Member States, with substantial variation in legal mechanisms and prescribed details (i.e. the 'who, what, when and where' of counselling). Practice is similarly varied. Workforce capacity (25 of 27 Member States) and genetic literacy (all Member States) were common reported barriers. Recognition and/or better integration of genetic counsellors and updated legislation and were most commonly noted as the 'most important change' which would improve practice., Conclusions: This review highlights substantial variability in genetic counselling across EU Member States, as well as common barriers notwithstanding this variation. Future recommendations and action should focus on addressing literacy and capacity challenges through legislative, regulatory and/or strategic approaches at EU, national, regional and/or local levels., (© The Author(s) 2024. Published by Oxford University Press on behalf of the European Public Health Association.)

Published
2024
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