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224 results on '"Kaye, Erica C."'

2. Full Collection of Personal Narratives

Author

Mulé, Christina, Ciaccio, Shaina Rose, Bendas, Rose, Snyder, Monica, Bratt Carle, Jessica, Dahm, Angela Yvonne, Jaquier, Monika, Washington, Sirena, Lens, Jill Wieber, Razbadauskaitė Venskė, Indrė, Cotter, L. Emily, Faison, Giulia, Kaye, Erica C., McIntyre, Taylor, Chang, Anita Kumar, Hurst, Daniel J., Hurst, Rachel N., Tarbi, Elise C., Lepinski, Katarina, and Lelkes, Efrat

Published
2023
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17. Narrative Medicine in Hospice and Palliative Care: A Longitudinal Fellowship Curriculum Pilot.

Author

Paul, Trisha K., Aglio, Taylor, Dalgo, Austin, and Kaye, Erica C.

Abstract

Introduction: Growing evidence suggests that clinician exposure to narrative medicine (NM) may help bolster resilience and mitigate burnout. The value of formal longitudinal training in NM for hospice and palliative medicine (HPM) trainees remains understudied. Methods: A 1-year longitudinal NM curriculum for HPM fellows was pilot-tested for feasibility, acceptability, and exploratory impact. Six monthly 45-minute sessions included reading literature, reflective writing, and sharing creative work. Quantitative and qualitative data were collected through a pre-intervention survey and post-intervention survey administered immediately upon completion of the curriculum. Longitudinal impact was assessed with a post-intervention survey administered three months after completion of the curriculum. Results: All HPM fellows (n = 6) attended at least 5/6 sessions during the 1-year pilot, suggesting intervention feasibility. Participant engagement and self-reported comfort with NM exercises supported intervention acceptability. Post-intervention, participants described the positive influence of NM practice on their clinical practice and stated an intention to integrate NM skills in their future HPM careers. Three months following the intervention, participants had a sustained increase in their comfort level with NM. All participants felt that the NM sessions had been relevant to their life as HPM fellows and anticipated using NM moving forward in their practice of HPM. Discussion: This novel NM curriculum was feasible and acceptable to implement in a 1-year HPM fellowship. Longitudinal impact showed sustained increase in trainee comfort and interest in using NM in their future clinical practice. [ABSTRACT FROM AUTHOR]

Published
2024
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25. Understanding treatment recommendations at diagnosis of advanced cancer in pediatric oncology: The need to explore decision‐making challenges globally

Author

Force, Lisa M., primary, Hlatywayo, Loyce, additional, Salek, Marta, additional, Bhakta, Manoo, additional, Bonilla, Miguel, additional, Kaye, Erica C., additional, Rodriguez‐Galindo, Carlos, additional, Baker, Justin N., additional, Bhakta, Nickhill, additional, and Chitsike, Inam, additional

Published
2024
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29. Factors influencing parents' choice of palliative treatment goals for children with relapsed or refractory neuroblastoma: A multi‐site longitudinal survey study.

Author

Kaye, Erica C., Smith, Jesse, Zhou, Yiwang, Bagatell, Rochelle, Baker, Justin N., Cohn, Susan L., Diller, Lisa R., Glade Bender, Julia L., Granger, M. Meaghan, Marachelian, Araz, Park, Julie R., Rosenberg, Abby R., Shusterman, Suzanne, Twist, Clare J., and Mack, Jennifer W.

Subjects
*NEUROBLASTOMA, *PARENTAL influences, *PALLIATIVE treatment, *LOW-income parents, *GOAL (Psychology), *CHILDHOOD cancer
Abstract

Background: Many parents of children with advanced cancer report curative goals and continue intensive therapies that can compound symptoms and suffering. Factors that influence parents to choose palliation as the primary treatment goal are not well understood. The objective of this study was to examine experiences impacting parents' report of palliative goals adjusted for time. The authors hypothesized that awareness of poor prognosis, recall of oncologists' prognostic disclosure, intensive treatments, and burdensome symptoms and suffering would influence palliative goal‐setting. Methods: The authors collected prospective, longitudinal surveys from parents of children with relapsed/refractory neuroblastoma at nine pediatric cancer centers across the United States, beginning at relapse and continuing every 3 months for 18 months or until death. Hypothesized covariates were examined for possible associations with parental report of palliative goals. Generalized linear mixed models were used to evaluate factors associated with parents' report of palliative goals at different time points. Results: A total of 96 parents completed surveys. Parents were more likely to report a primary goal of palliation when they recalled communication about prognosis by their child's oncologist (odds ratio [OR], 52.48; p =.010). Treatment intensity and previous ineffective therapeutic regimens were not associated with parents' report of palliative goals adjusted for time. A parent who reported new suffering for their child was less likely to report palliative goals (OR, 0.13; p =.008). Conclusions: Parents of children with poor prognosis cancer may not report palliative goals spontaneously in the setting of treatment‐related suffering. Prognostic communication, however, does influence palliative goal‐setting. Evidence‐based interventions are needed to encourage timely, person‐centered prognostic disclosure in the setting of advanced pediatric cancer. Plain Language Summary: Many parents of children with poor‐prognosis cancer continue to pursue curative treatments that may worsen symptoms and suffering.Little is known about which factors influence parents to choose palliative care as their child's main treatment goal.To explore this question, we asked parents of children with advanced neuroblastoma across the United States to complete multiple surveys over time.We found that the intensity of treatment, number of treatments, and suffering from treatment did not influence parents to choose palliative goals.However, when parents remembered their child's oncologist talking about prognosis, they were more likely to choose palliative goals of care. The authors collected prospective, longitudinal surveys from parents of children with relapsed and/or refractory neuroblastoma at nine pediatric cancer centers across the United States to identify variables associated with parents' report of palliative goals across advancing illness. They found that parents of children with poor prognosis cancer may not report palliative goals spontaneously in the setting of treatment‐related suffering, but prognostic communication does influence palliative goal‐setting. [ABSTRACT FROM AUTHOR]

Published
2024
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31. CritCom: assessment of quality of interdisciplinary communication around deterioration in pediatric oncologic patients

Author

Rivera, Jocelyn, primary, Malone, Sara, additional, Puerto-Torres, Maria, additional, Prewitt, Kim, additional, Counts, Lara, additional, Wiphatphumiprates, Parima, additional, Sakaan, Firas, additional, Al Zebin, Zebin, additional, Arias, Anita V., additional, Bhattacharyya, Parthasarathi, additional, Gunasekera, Sanjeeva, additional, Johnson, Sherry, additional, Kambugu, Joyce, additional, Kaye, Erica C., additional, Mandrell, Belinda, additional, Mack, Jennifer, additional, McArthur, Jennifer, additional, Mendez, Alejandra, additional, Morrissey, Lisa, additional, Sharara-Chami, Rana, additional, Snaman, Jennifer, additional, Sniderman, Elizabeth, additional, Luke, Douglas A., additional, Graetz, Dylan E., additional, and Agulnik, Asya, additional

Published
2023
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33. Factors influencing treatment decision‐making for cancer patients in low‐ and middle‐income countries: A scoping review

Author

Salek, Marta, primary, Silverstein, Allison, additional, Tilly, Alyssa, additional, Gassant, Pascale Yola, additional, Gunasekera, Sanjeeva, additional, Hordofa, Diriba Fufa, additional, Hesson, Donna, additional, Duffy, Caitlyn, additional, Malik, Nauman, additional, McNeil, Michael, additional, Force, Lisa M., additional, Bhakta, Nickhill, additional, Rodin, Danielle, additional, and Kaye, Erica C., additional

Published
2023
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34. A new measure for multi-professional medical team communication: design and methodology for multilingual measurement development

Author

Malone, Sara, primary, Rivera, Jocelyn, additional, Puerto-Torres, Maria, additional, Prewitt, Kim, additional, Sakaan, Firas, additional, Counts, Lara, additional, Al Zebin, Zebin, additional, Arias, Anita V., additional, Bhattacharyya, Parthasarathi, additional, Gunasekera, Sanjeeva, additional, Johnson, Sherry, additional, Kambugu, Joyce, additional, Kaye, Erica C., additional, Mandrell, Belinda, additional, Mack, Jennifer W., additional, McArthur, Jennifer, additional, Mendez, Alejandra, additional, Morrissey, Lisa, additional, Sharara-Chami, Rana, additional, Snaman, Jennifer, additional, Sniderman, Elizabeth, additional, Luke, Douglas A., additional, Graetz, Dylan E., additional, and Agulnik, Asya, additional

Published
2023
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37. Disparate Access to Fertility Preservation in Youth: A Call for Advocacy to Close the Gap

Author

Canavera, Kristin E., primary, Bjornard, Kari L., additional, Cost, Nicholas G., additional, Grady, Allison, additional, Irving, Helen, additional, Kaye, Erica C., additional, Ketterl, Tyler, additional, Levine, Jennifer, additional, Reinecke, Joyce, additional, Rios, Julie, additional, Roth, Michael, additional, Sawyer, Kimberly, additional, Thomas, Stefanie M., additional, Unguru, Yoram, additional, and Johnson, Liza-Marie, additional

Published
2023
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40. Interdisciplinary care of pediatric oncology patients: A survey of clinicians in Central America and the Caribbean

Author

Graetz, Dylan E., primary, Chen, Yichen, additional, Devidas, Meenakshi, additional, Antillon‐Klussmann, Federico, additional, Fu, Ligia, additional, Quintero, Karina, additional, Fuentes‐Alabi, Soad L., additional, Gassant, Pascale Y., additional, Kaye, Erica C., additional, Baker, Justin N., additional, Rodriguez Galindo, Carlos, additional, and Mack, Jennifer W., additional

Published
2023
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44. Novel approaches to communication skills development: The untapped potential of qualitative research immersion

Author

Porter, Amy S., primary, Woods, Cameka, additional, Kaye, Erica C., additional, Aglio, Taylor, additional, Applegarth, Jacob, additional, Bien, Kelly, additional, Bilbeisi, Tharwa, additional, Chow, Emma, additional, Greer, Katie, additional, Huber, Rachel, additional, Autrey, Ashley Kiefer, additional, Rockwell, Sarah, additional, Salek, Marta, additional, Stall, Melanie, additional, Trejo, Mariela, additional, Yang, Yenny, additional, and Zalud, Kristina, additional

Published
2022
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46. Full Collection of Personal Narratives

Author

Mulé, Christina, primary, Ciaccio, Shaina Rose, additional, Bendas, Rose, additional, Snyder, Monica, additional, Bratt Carle, Jessica, additional, Dahm, Angela Yvonne, additional, Jaquier, Monika, additional, Washington, Sirena, additional, Lens, Jill Wieber, additional, Razbadauskaitė Venskė, Indrė, additional, Cotter, L. Emily, additional, Faison, Giulia, additional, Kaye, Erica C., additional, McIntyre, Taylor, additional, Chang, Anita Kumar, additional, Hurst, Daniel J., additional, Hurst, Rachel N., additional, Tarbi, Elise C., additional, Lepinski, Katarina, additional, and Lelkes, Efrat, additional

Published
2022
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47. The ALIGN Framework

Author

Lemmon, Monica E., primary, Barks, Mary C., additional, Bansal, Simran, additional, Bernstein, Sarah, additional, Kaye, Erica C., additional, Glass, Hannah C., additional, Ubel, Peter A., additional, Brandon, Debra, additional, and Pollak, Kathryn I., additional

Published
2022
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49. Global caregiver concerns of SARS-CoV-2 vaccination in children with cancer: a cross-sectional mixed-methods study

Author

Gumy, Julia M., Silverstein, Allison, Kaye, Erica C., Caniza, Miguela A., Homsi, Maysam R., Pritchard-Jones, Kathy, and Bate, Jessica M.

Abstract

The objective of this study was to understand global caregiver concerns about SARS-CoV-2 vaccination for children with cancer and to provide healthcare providers with guidance to support parental decision-making. A co-designed cross-sectional mixed-methods survey was distributed to primary caregivers of children with cancer globally between April and May 2021 via several media. Caregivers were asked to rate the importance of vaccine-related questions and the median scores were ranked. Principal Component Analysis was conducted to identify underlying dimensions of caregiver concerns by World Bank income groups. Content analysis of free-text responses was conducted and triangulated with the quantitative findings. 627 caregivers from 22 countries responded to the survey with 5.3% (n = 67) responses from low-and-middle-income countries (LMIC). 184 caregivers (29%) provided free-text responses. Side effects and vaccine safety were caregivers’ primary concerns in all countries. Questions related to logistics were of concern for caregivers in LMIC. A small minority of caregivers (n = 17) did not consider the survey questions important; free-text analysis identified these parents as vaccine hesitant, some of them quoting safety and side effects as main reasons for hesitancy. Healthcare providers and other community organizations globally need to provide tailored information about vaccine safety and effectiveness in pediatric oncology settings. Importantly, continued efforts are imperative to reduce global inequities in logistical access to vaccines, particularly in LMIC.

Published
2023
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