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2. Ethical Considerations and Dilemmas for the Researcher and for Families in Home-Based Research: A Case for Situated Ethics
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Palaiologou, Ioanna and Brown, Alice
- Abstract
When researching with or about families in home-based research, there are numerous unexpected ethical issues that can emerge, particularly in qualitative research. This paper is based on reflective accounts of four homed-based research projects, two in the UK and two Australia, which examined ethical dilemmas identified when engaged in home-based research with young children. Using a synergy of ecocultural theory and Foucauldian ideas of Heterotopia as theoretical conceptualisations, the authors employed reflective lenses to guide their approach, and examine dilemmas and complexities when conducting research in the home. We argue that, to address ethical dilemmas, researchers need to problematise and reflect upon the nature of respectful approaches and the ethical implications of their behaviours. We conclude that, although ethical codes are valuable when researching families at home, researchers should plan for and forefront their methodological approaches in ways that are family-centred, whilst also framed by practices that are ethical, respectful and reflective to the situated contexts of family's ecologies and heterotopias.
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- 2023
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3. Riding a Rollercoaster in a Hurricane -- Researching My Own Chronic Illness
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Murphy, Rachel, Harris, Belinda, and Wakelin, Katharine
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Purpose: This article outlines the experience of conducting Interpretative Phenomenological Analysis research into the chronic illness of Inflammatory Bowel Disease, an incurable condition of the gastro-intestinal tract which results in numerous physically and psychologically symptoms that are difficult to live with, by a researcher who shares the same condition. It considers the complex nature of researcher positioning from a nuanced, relational rather than binary insider/outsider position (Berger, 2015; Hayfield and Huxley, 2015). Additionally, the importance of reflexivity when conducting such personal, reciprocal qualitative research is brought to life, illustrating how such reflexivity deepens the relationship to the research, increases understanding of the interpretations and in turn its validity adds to the trustworthiness of both the endeavour and the written account (Etherington, 2007; Oakley, 2016). Design/methodology/approach: Conducting research into a medical condition that the researcher also experiences brings its own particular challenges (Hofmann and Barker, 2017). When the chosen methodology is Interpretative Phenomenological Analysis, with its in-depth, relational nature, those challenges intensify (Smith, 2009). Findings: Using researcher journal extracts, the lived experience of researching whilst experiencing a chronic illness is explored. This includes the psychological impact of experiencing deep empathy for others living with IBD, managing the impact of increased disease knowledge, researching through fatigue and experiencing the claustrophobia of living with and researching one's own condition. Originality/value: Finally, tactics for surviving such research are provided in a bid to enable researchers and supervisors embarking on similar projects, to successfully manage the research rollercoaster ride even when it's in the middle of a Hurricane.
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- 2022
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4. Exiting the Elephant: Hearing the Participant Voice in Qualitative Data Collection
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Rumary, Kevin James, Goldspink, Sally, and Howlett, Philip
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Data collection in qualitative research is intended to capture the participant experience in relation to defined phenomena. Whilst attention is given to the different ways of gathering qualitative data, the presence of the researcher is a common feature. However, the researcher does not hold an inert position in the data collection process and may influence the type and level of data obtained. This paper highlights and explores the issue of researcher presence by suggesting a strategy to distance the researcher from the data collection frame via self-governing focus groups. Developed in a study examining vocational student experience in further education, a data collection method is proposed which aims to reduce the influencing factor of the researcher. A self-administered structured question schedule replaces the interviewer to promote authentic access to the participant voice in an environment which is familiar, comfortable and safe. Consideration is given to the construction of the question schedule and recording procedure which aims to stimulate inclusive and unhindered contributions, as well as maintaining the research focus. The analysis of contributions indicates that by standing back, the researcher can see authentic customary social processes which reveal a meaning of the phenomena for the participants.
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- 2023
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5. Unpacking the "complex" in complex evaluations: lessons learned conducting large scale evaluations of maternal and child health programmes over 20 years of collaborative research in Ghana.
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Soremekun, Seyi, Amenga-Etego, Seeba, and Kirkwood, Betty
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THERAPEUTIC use of vitamin A ,INTERPROFESSIONAL relations ,CHILD health services ,CLINICAL trials ,HEALTH occupations schools ,RECORDING & registration ,EXPERIMENTAL design ,MEDICAL research ,UNIVERSAL healthcare ,HEALTH outcome assessment ,DIETARY supplements - Abstract
The development of integrated community-based maternal neonatal and child health (MNCH) programmes is essential to address the gap in coverage of universal health care in sub-Saharan Africa, which bears the highest burden for poor MNCH outcomes globally. However, to assess their impact in practice requires the design and implementation of increasingly complex evaluation approaches in 'real-world' settings frequently characterised by underserved health and civil registration systems. This commentary introduces the series titled "Lessons Learned from Operationalising Impact Evaluations of MNCH Interventions". Based on a 20-year collaboration between the Kintampo Health Research Centre in Ghana (KHRC) and the London School of Hygiene and Tropical Medicine in the United Kingdom (LSHTM), the series brings together an international group of authors responsible for the design and conduct of seminal MNCH trials of community health worker-led interventions, including policy-relevant trials of vitamin A supplementation conducted since 1995. Underpinning the research was a long running surveillance system following up 120,000 women and infants each month—the largest research surveillance system on the continent at the time. The papers in this series provide honest and practical accounts of lessons learned in the design of quantitative and qualitative systems to track key MNCH outcomes, supported by sustainable strategies to maximise engagement with study communities. This commentary offers a retrospective overview of the collaboration and its many achievements, and highlights key messages from the series relevant for future research in MNCH. [ABSTRACT FROM AUTHOR]
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- 2024
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6. A Systematic Review of the Educational Uses and Effects of Exemplars
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To, Jessica, Panadero, Ernesto, and Carless, David
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The analysis of exemplars of different quality is a potentially powerful tool in enabling students to understand assessment expectations and appreciate academic standards. Through a systematic review methodology, this paper synthesises exemplar-based research designs, exemplar implementation and the educational effects of exemplars. The review of 40 empirical exemplar-based studies indicated frequent use of post-intervention evaluation designs. The integrated use of exemplars and strategies such as rubrics, peer or self-assessment was a major pedagogic feature to enhance students' understanding of standards and aid their generation of internal feedback for self-monitoring. There was evidence suggesting that the combined use of exemplars with these strategies could advance students' academic performance and development of self-regulated learning. The review results set future directions for exemplar-based studies: quantitative research would benefit from controlled manipulation of variables to disentangle the effects of exemplars and those of other strategies; qualitative research could profitably use self-reflective diaries, think aloud protocols or classroom observations to develop deeper understandings of exemplar implementation. The key pedagogical implication recommends students' production of an assignment draft prior to exposure to exemplars so that they can compare their own work with exemplars and then make improvements independently of teachers.
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- 2022
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7. Cultural Myths, Superstitions, and Stigma Surrounding Dementia in a UK Bangladeshi Community.
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Hussain, Nazmul, Clark, Andrew, and Innes, Anthea
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DEMENTIA risk factors ,CAREGIVER attitudes ,RESEARCH methodology ,STAKEHOLDER analysis ,SOCIAL stigma ,INTERVIEWING ,DEMENTIA patients ,RISK assessment ,QUALITATIVE research ,HEALTH literacy ,CULTURAL competence ,SUPERSTITION ,DESCRIPTIVE statistics ,RESEARCH funding ,BANGLADESHIS - Abstract
The last three census data highlighted that UK Bangladeshi communities have the worst health outcomes. This includes a higher risk of type two diabetes and heart diseases; both are risk factors for developing vascular dementia. However, little is known about Bangladeshi community members' understandings of dementia, including cultural myths. This paper focuses on the cultural myths, superstitions, and stigma surrounding dementia in an English Bangladeshi community from the direct experiences of people living with dementia, their caregivers, and the views of dementia service providers/stakeholders. This qualitative research was undertaken with three distinct participant groups using semistructured interviews (n = 25), who were recruited from community settings. The first and second participant groups explored the experiences of people with dementia (n = 10) and their family caregivers (n = 10). The third group examined stakeholders'/service providers' views (n = 5). Interviews were recorded digitally and transcribed verbatim. Findings were reached using an interpretive approach, emphasising the sense people make in their own lives and experiences and how they frame and understand dementia. The study revealed that participants with dementia and their caregivers have "alternative" knowledge about dementia and do not necessarily understand dementia in a Westernised scientific/biomedical context. Misconceptions about dementia and belief in various myths and superstitions can lead people to go to spiritual healers or practice traditional remedies rather than to their GPs, delaying their dementia diagnosis. This paper concludes that there is a lack of awareness among the Bangladeshi participants and a need for targeted awareness about dementia to help dispel cultural myths and combat the stigma surrounding dementia within the Bangladeshi community. [ABSTRACT FROM AUTHOR]
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- 2024
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8. Care precarity among older British migrants in Spain.
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Hall, Kelly
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FRAIL elderly ,HEALTH services accessibility ,SOCIAL workers ,EMIGRATION & immigration ,INTERVIEWING ,UNCERTAINTY ,QUALITATIVE research ,RESEARCH funding ,RETIREMENT ,FAMILY relations ,STATISTICAL sampling ,MEDICAL needs assessment - Abstract
Northern European international retirement migrants are often viewed as affluent and use migration as a route to a better quality of life. However, as these migrants transition into the 'fourth age', the onset of age-related illnesses, frailty and care needs can lead to increased levels of risk and insecurity. Through 34 qualitative interviews with older British migrants in Spain, the paper explores how these migrants access and experience care as they age. It draws on a lens of precarity that allows an understanding not only of individual care needs, but of the political, economic and social context in which they are situated, including social protections and public safety nets. The findings suggest that distant family relationships and limited access to formal social protection can both create and exacerbate precarity. These older migrants therefore develop different strategies to access care that include drawing on informal relationships and voluntary organisations within the British community in Spain. The paper contributes to understanding how international retirement migrants manage their care needs, and theoretically extends our understanding of how the intersection of old age, migration and care can create new forms of precarity. [ABSTRACT FROM AUTHOR]
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- 2023
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9. Factors which influence ethnic minority women's participation in maternity research: A systematic review of quantitative and qualitative studies.
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Lovell, Holly, Silverio, Sergio A., Story, Lisa, Skelton, Emily, and Matthew, Jacqueline
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MINORITY women ,MINORITIES ,PARTICIPATION ,QUALITATIVE research - Abstract
Background: Women from Black, Asian and mixed ethnicity backgrounds in the UK experience higher rates of maternal and neonatal mortality and morbidity, and report poorer experiences of maternity care. Research is required to understand how to reduce these disparities, however, it is acknowledged these groups of women are under-represented in clinical research. Aim: To investigate factors which influence participation in maternity research for women from an ethnic minority background. Methods: A systematic review was conducted to examine influencing factors for research participation. MEDLINE/CINHAL/PsycInfo/EMBASE databases were systematically searched in March 2021 and updated in March 2022. Papers were eligible if they explored maternal research participation and identified a woman's ethnicity in the results. No restrictions were placed on methodology. A convergent integrated approach was used to synthesise findings. Findings: A total of 14 papers met the inclusion criteria. Results were divided into eight overarching themes. A personalised approach to recruitment and incorporating culturally sensitive communication and considerations enhanced research participation. Distrust around sharing data, a perception of risk to research participation, and research lacking in personal relevance adversely affected the decision to participate. Large variation existed in the quality of the studies reviewed. Conclusions: Consideration of a woman's culture and background in the design and the delivery of a maternity research study may facilitate participation, particularly when sampling from a specific population. Further research, informed by women from ethnic minority backgrounds is warranted to develop women-centred recommendations for conducting inclusive maternity research. Prospero registration:www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42021261686. [ABSTRACT FROM AUTHOR]
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- 2023
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10. Empowering People to Make Healthier Choices: A Critical Discourse Analysis of the Tackling Obesity Policy.
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Brookes, Gavin
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OBESITY complications ,OBESITY treatment ,HEALTH policy ,RESEARCH ,CARDIOVASCULAR diseases risk factors ,COVID-19 ,SOCIAL determinants of health ,FOOD labeling ,MEDICINE information services ,PUBLIC health ,POLICY science research ,RISK assessment ,SELF-efficacy ,QUALITATIVE research ,NATIONAL health services ,TYPE 2 diabetes ,FOOD preferences ,HEALTH information services ,WEIGHT loss ,DISCOURSE analysis ,HEALTH behavior ,NATURAL foods ,HEALTH promotion ,BEHAVIOR modification - Abstract
In response to the heightened risk that coronavirus disease 2019 (COVID-19) poses to the health and lives of people with obesity, in 2020 the U.K. government launched a new package of policies intended to stimulate weight loss among the country's population. In this article, I present a critical discourse analysis of the policy paper which announced these new measures. I identify the discourses that are used to represent things, people, and processes in this policy text. These discourses are interpreted in terms of broadly neoliberal ideologies of public health management. Taken together, the discourses identified contribute to a broadly neoliberal ideology of public health management. It is argued that the policy paper represents an instance of "lifestyle drift," as it initially appears to engage with social and economic determinants of health but ultimately neglects these in favor of focusing on individual lifestyle factors, particularly in the shape of individuals' "choices." [ABSTRACT FROM AUTHOR]
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- 2021
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11. Pragmatic patchwork ethnography, a call to action for health, nutrition and dietetic researchers.
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Swettenham, Marie and Langley‐Evans, Simon C.
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PROFESSIONAL practice ,ETHNOLOGY research ,HEALTH ,SEX distribution ,NUTRITIONISTS ,ETHNOLOGY ,COMMUNITIES ,DIETETICS research ,RACE ,CONCEPTUAL structures ,RESEARCH methodology ,NUTRITIONAL status ,PUBLIC health ,EVIDENCE-based medicine ,NUTRITION ,CULTURAL pluralism - Abstract
Qualitative research methods are increasingly used in nutrition and dietetics research. Ethnography is an underexploited approach which seeks to explore the diversity of people and cultures in a given setting, providing a better understanding of the influences that determine their choices and behaviours. It is argued that traditional ethnography, that is, the methodology of living within participant communities, is a dated practice, with roots in colonialism, accessible to only researchers with the means, connections and status to conduct such research, typically white, privileged males. This paper proposes a formal interpretation of 'patchwork ethnography', whereby research is carried out in situ around existing modern‐day commitments of the researcher, thus enabling more researchers within health, nutrition and dietetic practice to benefit from the rich data that can be discovered from communities. This review proposes the concept that pragmatic patchwork ethnography is required, proposing a framework for implementation, providing researchers, particularly within the fields of human nutrition, dietetics and health, the accessibility and means to deploy a meaningful client‐centric methodology. We present pragmatic patchwork ethnography as a modern method for use within multiple healthcare settings, thus adding a progressive brick in the wall of qualitative research. Key points: Ethnography in health research allows professionals to gather rich qualitative data such as lived experiences of participants.However, undertaking traditional ethnography can be demanding, costly and time‐consuming, consequently rendering it inaccessible and challenging to undertake.Pragmatic patchwork ethnography is underpinned by guiding principles of traditional ethnography, enabling researchers to weave the method into existing life and health practice commitments.This paper sets out the seven steps required to deploy pragmatic patchwork ethnography enabling and empowering public health, nutrition and dietetic researchers to undertake valuable qualitative research in a contemporary research landscape. [ABSTRACT FROM AUTHOR]
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- 2024
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12. How mothers manage and make sense of their early adolescent's interactive screen use: an IPA study in the UK.
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Shahverdi, Holly, Burke, Shani, and Kyriakopoulos, Alex
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TEENAGERS ,MOTHER-child relationship ,WESTERN society ,MOTHERS ,DIGITAL technology ,FAMILY relations ,TEENAGE girls - Abstract
Interactive screen use (ISU) for leisure is becoming increasingly popular amongst early adolescents in western societies. ISU adds complexity to family relationships as mothers are required to navigate positive relationships and caregiving in a technological landscape which balances risk-management with the promotion of autonomy. This is made more difficult as early adolescents tend to be less open to their mother's guidance during this developmental period. There is currently no existing literature which explores mother's lived experience of navigating and making sense of their early adolescent's ISU and this paper offers an original contribution to knowledge in this area. Qualitative data were collected from individual, semi-structured interviews with seven mothers of early adolescent children and analysed using Interpretative Phenomenological Analysis. Three master themes were identified: (1) Mother's concerns around the impact ISU on their children, (2) ISU impacting on the mother–child relationship and (3) the changing role of the mother when parenting their early adolescent children in a digital world. The paper concludes with a discussion of the findings of this study and suggestions for future research directions. [ABSTRACT FROM AUTHOR]
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- 2024
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13. A qualitative exploration of speech–language pathologists' approaches in treating spoken discourse post‐traumatic brain injury.
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Hoffman, Rhianne, Spencer, Elizabeth, and Steel, Joanne
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SPEECH therapy ,MEDICAL logic ,MEDICAL protocols ,QUALITATIVE research ,INTERVIEWING ,CONTENT analysis ,JUDGMENT sampling ,PHYSICIAN practice patterns ,RESEARCH methodology ,SOCIAL skills ,BRAIN injuries ,DISEASE complications - Abstract
Background: Spoken discourse impairments post‐traumatic brain injury (TBI) are well‐documented and heterogeneous in nature. These impairments have chronic implications for adults in terms of employment, socializing and community involvement. Intervention delivered by a speech–language pathologist (SLP) is recommended for adults with discourse impairments post‐TBI, with an emphasis on context‐sensitive treatment. The developing evidence base indicates a wide array of treatment components for SLPs to evaluate and implement within their clinical practice. However, there is limited insight into how SLPs are currently treating discourse impairments and the rationales informing clinical practice. Aims: To explore the under‐researched area of clinical practice for spoken discourse interventions with adults post‐TBI, including treatment components and clinician rationales, and to contribute towards a shared knowledge base. Methods & Procedures: Participants were recruited via purposeful sampling strategies. Six SLPs participated from Australia, the United Kingdom (UK) and the United States (US). Semi‐structured interviews were conducted via Zoom. Interviews were manually transcribed, coded and analysed via a qualitative content analysis approach. Outcomes & Results: :Participants described discourse treatment practices across various settings and TBI recovery stages. Results indicated that SLPs used numerous treatment activities, resources and outcome measures. Intervention approaches primarily targeted social communication skills, strategy development/utilization and insight‐building. Clinical practice conformed to available guidelines where possible, reflected best practice and incorporated components of the research literature. Participants reported using individualized treatment activities aimed at addressing client‐specific factors and rationales prioritized tailored, context‐sensitive and goal‐directed treatment. Conclusions & Implications: This study provided insight into a previously under‐researched area. It highlighted a wide range of treatment activities and factors informing current SLPs' treatment of spoken discourse impairment post‐TBI. Overall, clinical practice and rationales discussed in this study were aligned with best practice and emphasized a contextualized, individualized approach to discourse treatment across service settings and stages of recovery. Participants identified areas requiring further support, including access to training, resources and research, and the challenge of finding suitable outcome measures. Further investigation into discourse management post‐TBI, from initial assessment to outcome measurement, may help inform clinical decision‐making and the transfer of research to practice. WHAT THIS PAPER ADDS: What is already known on the subject: Spoken discourse impairments occur in dialogic and monologic productions post‐TBI. Interventions targeting both genres are detailed within the research literature; however, studies exploring clinical practice and decision‐making for discourse interventions post‐TBI are limited. What this paper adds to existing knowledge: This study provides new insight into the current treatment targets, activities, resources and outcome measures employed by clinicians supporting adults with discourse impairment post‐TBI. It details the factors that influence clinical decision‐making for this caseload and identifies an emphasis on client priorities and the value of clinician experience. What are the potential or actual clinical implications of this work?: This study identifies the broad and complex considerations required to deliver context‐sensitive discourse intervention post‐TBI. It indicates the need for an in‐depth review from assessment to treatment outcomes to better understand and support this area of practice and to direct future research. This study also highlighted the role of clinician experience in discourse intervention and the value of sharing clinical knowledge and resources within and across the profession to support all levels of clinician experience. [ABSTRACT FROM AUTHOR]
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- 2024
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14. Older people's family relationships in disequilibrium during the COVID-19 pandemic. What really matters?
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Derrer-Merk, Elfriede, Ferson, Scott, Mannis, Adam, Bentall, Richard, and Bennett, Kate M.
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QUALITATIVE research ,RESEARCH funding ,INTERVIEWING ,FAMILY relations ,FAMILY roles ,EXPERIENCE ,STAY-at-home orders ,THEMATIC analysis ,QUALITY of life ,FAMILY support ,GROUNDED theory ,INTERPERSONAL relations ,INTERGENERATIONAL relations ,COVID-19 pandemic ,SOCIAL distancing ,WELL-being ,OLD age - Abstract
Inter- and intragenerational relationships are known to be important in maintaining the wellbeing of older people. A key aspect of these relationships is the exchange of both emotional and instrumental social support. However, relatively little is known about how this exchange of support changes in the context of widespread disruption. The COVID-19 pandemic provides an opportunity to examine how older people's family relationships are impacted by such social change. The present qualitative study explores how older people in the United Kingdom experienced changes in inter- and intragenerational support during the COVID-19 pandemic. Participants (N = 33) were recruited through a large-scale nationally representative survey (https://www.sheffield.ac.uk/psychology-consortium-covid19). We asked how life had been pre-pandemic, how they experienced the first national lockdown and what the future might hold in store. The data were analysed using constructivist grounded theory. This paper focuses on the importance of family relationships and how they changed as a consequence of the pandemic. We found that the family support system had been interrupted, that there were changes in the methods of support and that feelings of belonging were challenged. We argue that families were brought into disequilibrium through changes in the exchange of inter- and intragenerational support. The important role of grandchildren for older adults was striking and challenged by the pandemic. The significance of social connectedness and support within the family had not changed during the pandemic, but it could no longer be lived in the same way. The desire to be close to family members and to support them conflicted with the risk of pandemic infection. Our study found support for the COVID-19 Social Connectivity Paradox: the need for social connectedness whilst maintaining social distance. This challenged family equilibrium, wellbeing and quality of life in older people. [ABSTRACT FROM AUTHOR]
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- 2024
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15. "It's Like a Drive by Misogyny": Sexual Violence at UK Music Festivals.
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Bows, Hannah, Day, Aviah, and Dhir, Alishya
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VIOLENCE prevention ,CULTURE ,SEXISM ,SEX offenders ,RAPE ,RESEARCH methodology ,FEMINISM ,VIOLENCE ,INTERVIEWING ,SOCIAL context ,SEXUAL harassment ,CRIME victims ,CONCEPTUAL structures ,QUALITATIVE research ,SPECIAL days ,SEX crimes ,PSYCHOLOGY of women ,PUBLIC spaces ,GOVERNMENT policy ,RESEARCH funding ,MUSIC ,EMOTIONS ,PSYCHOLOGICAL adaptation ,HOLIDAYS ,WOMEN'S health - Abstract
Despite increasing scholarly and media attention on sexual violence in public spaces, including those associated with the night-time economy and licensed venues, music festivals have been largely absent from research and policy. This paper presents the findings from the first UK study of sexual violence at music festivals, drawing on data from interviews with 13 women who have experienced some form of sexual harassment or assault at a festival. Analysis reveals that sexual violence at festivals occurs on a continuum and represents an extension of rape culture through which sexual violence is culturally condoned and normalized, enabled through a number of environmental and culture features that are unique to festivals. [ABSTRACT FROM AUTHOR]
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- 2024
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16. Co‐designing a theory‐informed, multicomponent intervention to increase vaccine uptake with Congolese migrants: A qualitative, community‐based participatory research study (LISOLO MALAMU).
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Crawshaw, Alison F., Kitoko, Lusau M., Nkembi, Sarah L., Lutumba, Laura M., Hickey, Caroline, Deal, Anna, Carter, Jessica, Knights, Felicity, Vandrevala, Tushna, Forster, Alice S., and Hargreaves, Sally
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EDUCATION of refugees ,VACCINATION ,COVID-19 ,IMMUNIZATION ,NOMADS ,HEALTH services accessibility ,COVID-19 vaccines ,ATTITUDE (Psychology) ,COMMUNITY health services ,INTERVIEWING ,MEDICAL care ,QUALITATIVE research ,CONCEPTUAL structures ,MEDICAL protocols ,PHILOSOPHY of education ,COMMUNITY-based social services ,COMMUNICATION ,VACCINE hesitancy ,RESEARCH funding ,MEDICAL needs assessment - Abstract
Introduction: Disparities in the uptake of routine and COVID‐19 vaccinations have been observed in migrant populations, and attributed to issues of mistrust, access and low vaccine confidence. Participatory research approaches and behaviour change theory hold the potential for developing tailored vaccination interventions that address these complex barriers in partnership with communities and should be explored further. Methods: This study used a theory‐informed, community‐based participatory research approach to co‐design a culturally tailored behaviour change intervention aimed at increasing COVID‐19 vaccine uptake among Congolese migrants in London, United Kingdom (2021–2022). It was designed and led by a community‐academic partnership in response to unmet needs in the Congolese community as the COVID‐19 pandemic started. Barriers and facilitators to COVID‐19 vaccination, information and communication preferences, and intervention suggestions were explored through qualitative in‐depth interviews with Congolese migrants, thematically analysed, and mapped to the theoretical domains framework (TDF) and the capability, opportunity, motivation, behaviour model to identify target behaviours and strategies to include in interventions. Interventions were co‐designed and tailored in workshops involving Congolese migrants. Results: Thirty‐two Congolese adult migrants (24 (75%) women, mean 14.3 (SD: 7.5) years in the United Kingdom, mean age 52.6 (SD: 11.0) years) took part in in‐depth interviews and 16 (same sample) took part in co‐design workshops. Fourteen barriers and 10 facilitators to COVID‐19 vaccination were identified; most barrier data related to four TDF domains (beliefs about consequences; emotion; social influences and environmental context and resources), and the behavioural diagnosis concluded interventions should target improving psychological capability, reflective and automatic motivations and social opportunities. Strategies included culturally tailored behaviour change techniques based on education, persuasion, modelling, enablement and environmental restructuring, which resulted in a co‐designed intervention comprising community‐led workshops, plays and posters. Findings and interventions were disseminated through a community celebration event. Conclusions: Our study demonstrates how behavioural theory can be applied to co‐designing tailored interventions with underserved migrant communities through a participatory research paradigm to address a range of health issues and inequalities. Future research should build on this empowering approach, with the goal of developing more sensitive vaccination services and interventions which respond to migrant communities' unique cultural needs and realities. Patient or Public Contribution: Patient and public involvement (PPI) were embedded in the participatory study design and approach, with community members co‐producing all stages of the study and co‐authoring this paper. An independent PPI board (St George's Migrant Health Research Group Patient and Public Involvement Advisory Board) comprising five adult migrants with lived experience of accessing healthcare in the United Kingdom were also consulted at significant points over the course of the study. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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17. Experiences and views of people who frequently call emergency ambulance services: A qualitative study of UK service users.
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Evans, Bridie A., Khanom, Ashra, Edwards, Adrian, Edwards, Bethan, Farr, Angela, Foster, Theresa, Fothergill, Rachael, Gripper, Penny, Gunson, Imogen, Porter, Alison, Rees, Nigel, Scott, Jason, Snooks, Helen, and Watkins, Alan
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AMBULANCES ,INTERVIEWING ,PATIENTS' attitudes ,EXPERIENCE ,QUALITATIVE research ,SOUND recordings ,THEMATIC analysis ,DATA analysis software ,MEDICAL case management ,PATIENT-professional relations ,EMERGENCY medicine ,POLICE - Abstract
Introduction: People who call emergency ambulances frequently are often vulnerable because of health and social circumstances, have unresolved problems or cannot access appropriate care. They have higher mortality rates. Case management by interdisciplinary teams can help reduce demand for emergency services and is available in some UK regions. We report results of interviews with people who use emergency ambulance services frequently to understand their experiences of calling and receiving treatment. Methods: We used a two‐stage recruitment process. A UK ambulance service identified six people who were known to them as frequently calling emergency services. Through third‐sector organisations, we also recruited nine individuals with healthcare experiences reflecting the characteristics of people who call frequently. We gained informed consent to record and transcribe all telephone interviews. We used thematic analysis to explore the results. Results: People said they make frequent calls to emergency ambulance services as a last resort when they perceive their care needs are urgent and other routes to help have failed. Those with the most complex health needs generally felt their immediate requirements were not resolved and underlying mental and physical problems led them to call again. A third of respondents were also attended to by police and were arrested for behaviour associated with their health needs. Those callers receiving case management did not know they were selected for this. Some respondents were concerned that case management could label frequent callers as troublemakers. Conclusion: People who make frequent calls to emergency ambulance services feel their health and care needs are urgent and ongoing. They cannot see alternative ways to receive help and resolve problems. Communication between health professionals and service users appears inadequate. More research is needed to understand service users' motivations and requirements to inform design and delivery of accessible and effective services. Patient or Public Contribution: People with relevant experience were involved in developing, undertaking and disseminating this research. Two public contributors helped design and deliver the study, including developing and analysing service user interviews and drafting this paper. Eight public members of a Lived Experience Advisory Panel contributed at key stages of study design, interpretation and dissemination. Two more public contributors were members of an independent Study Steering Committee. [ABSTRACT FROM AUTHOR]
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- 2024
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18. Negotiating social belonging: A case study of second‐generation Kurds in London.
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Moftizadeh, Nali, Zagefka, Hanna, and Barn, Ravinder
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NEGOTIATION ,ATTITUDE (Psychology) ,FAMILIES ,GROUP identity ,INTERVIEWING ,EMIGRATION & immigration ,QUALITATIVE research ,EMOTIONS ,ETHNIC groups ,SOCIAL integration - Abstract
This qualitative study aims to contribute to our understanding of how second‐generation immigrants negotiate their multiple identities, and construct their feelings of belonging. We focus on second‐generation ethnic Kurds, a stateless ethnic group with a complex political and social history, who have seldom been investigated in a UK context. Drawing on data from interviews with 14 Kurds living in the UK, this paper outlines the tensions in Kurds' lived experiences of Kurdish and British identity; in particular, experiences of feeling "othered" and how this manifests in relation to their identities. We found that Kurds most commonly dealt with some of the tensions they experienced from not belonging or feeling like an "other" by constructing new identities with more permeable boundaries of belonging; in this study, this was achieved through a "place‐based" identity. In sum, this paper offers a novel contribution to discourses of belonging, by demonstrating how the nuances of belonging and its lived complexities manifest in the experiences of UK‐based second‐generation Kurds, and the resultant strategies that they adopt to navigate tensions. [ABSTRACT FROM AUTHOR]
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- 2022
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19. The importance of school in the management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): issues identified by adolescents and their families.
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Clery, Philippa, Linney, Catherine, Parslow, Roxanne, Starbuck, Jennifer, Laffan, Amanda, Leveret, Jamie, and Crawley, Esther
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CHRONIC fatigue syndrome treatment ,PARENT attitudes ,ACADEMIC accommodations ,HIGH schools ,TEACHER-student relationships ,HEALTH education ,SOCIAL support ,FOCUS groups ,ATTITUDES of medical personnel ,WORK ,RESEARCH methodology ,INTERVIEWING ,MEDICAL personnel ,PATIENTS' attitudes ,EXPERIENCE ,QUALITATIVE research ,PATIENTS' families ,EXPERIENTIAL learning ,PSYCHOLOGY of high school students ,RESEARCH funding ,ACCEPTANCE & commitment therapy ,THEMATIC analysis ,ADOLESCENCE - Abstract
Paediatric Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) is a disabling condition. Schools play a key role in adolescents' experiences with managing ME/CFS. However, little is known about the experiences of adolescents with ME/CFS (and their families) in schools. This paper is an incidental qualitative study, which combines data from two independent ME/CFS studies: study 1 researched ethnic minority adolescents with ME/CFS; study 2 explored Acceptance and Commitment Therapy for adolescents with ME/CFS who had not recovered after one year. Participants included: adolescents with ME/CFS; their families; and medical professionals (ME/CFS specialists and non‐specialists). Adolescents, their families, and ME/CFS medical professionals were recruited from a UK specialist paediatric ME/CFS service. Non‐ME/CFS medical professionals were recruited from the same region. Semi‐structured qualitative interviews and focus groups were undertaken. Participants' views on schools from each study were combined and thematic analysis was used to identify themes. Fifteen adolescents with ME/CFS (11–17 years old), sixteen family members, and ten medical professionals (GPs, school nurses and ME/CFS specialists) were interviewed. Four key themes were found: (1) adolescents identified school was important for aiding ME/CFS recovery, especially educationally and socially; (2) families described varying levels of support from schools and local authorities with help managing ME/CFS – some described significant practical and emotional difficulties to accessing education, whereas others recounted examples of positive supportive strategies, particularly when teachers had previous experience or knowledge of ME/CFS; (3) parents thought three‐way communication between schools, healthcare and families could improve support; (4) participants felt schools were an appropriate place for knowledge building and raising awareness of ME/CFS amongst teachers and pupils, to aid improved supportive measures. In conclusion, this paper provides rich data that highlights the importance of education and the realistic fears and hurdles for adolescents with ME/CFS remaining engaged in education and the impact on their future. Some families described positive strategies in school, which were viewed as helpful to manage ME/CFS in the classroom. These strategies could be implemented alongside knowledge building initiatives and improved communication between healthcare and education. There is a need to further investigate useful strategies and determine how teachers can be best supported in implementing them. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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20. Pilot evaluation of the electronic monitoring scheme in the UK.
- Author
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Churchman, James William, Baron, Susan, Carr, Michelle, and Orr, Donna
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RECIDIVISM prevention ,PILOT projects ,SCIENTIFIC observation ,PRISONERS ,PROFESSIONAL licenses ,RESEARCH methodology ,ELECTRONIC equipment ,INTERVIEWING ,QUALITATIVE research ,PROBATION ,THEMATIC analysis ,LONGITUDINAL method - Abstract
Purpose: Following research into the application of Electronic Monitoring (EM), Criminal Justice Order (2016) no. 954 was published, which introduced EM for offenders leaving custody in England and Wales (Ministry of Justice, 2016). EM was later extended to include those subjected to release on temporary licence (ROTL). The purpose of this study is to be the first, to the best of the authors' knowledge, to evaluate a pilot project using EM during the ROTL process. The outcome allowed for recommendations to be made regarding the continued use of EM within the open prison estate. Design/methodology/approach: This is a qualitative research project involving semi-structured interviews with staff and residents. Transcripts were analysed using thematic analysis which resulted in exploration of 4 themes and 11 sub-themes and recommendations for future research/practice. Findings: Results demonstrated that both staff and residents evaluated the use of EM as helpful with regard to evidencing compliance with ROTL conditions. In addition, staff also found it helpful for providing additional reassurance to victims and providing evidence for ROTL breaches. Practical implications: To the best of the authors' knowledge, this was the first qualitative evaluation of EM relating to the ROTL process. The evaluation improves understanding of the value of EM for policymakers and the Ministry of Justice, especially in terms of the ROTL process. The recommendations made in this paper evidence the value of EM use in the future. Originality/value: This evaluation supports continued use of EM and its integration into policy and procedures for residents subject to temporary licence. This paper concluded that consistent and reliable use of EM may contribute to victim reassurance and reduce recidivism of residents during ROTL, subsequently increasing the public's perception of safety. [ABSTRACT FROM AUTHOR]
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- 2023
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21. Crisis resolution home treatment team Clinicians' perceptions of using a recovery approach with people with a diagnosis of borderline personality disorder.
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Taylor, Tracy, Stockton, Stephanie, and Bowen, Matt
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TREATMENT of borderline personality disorder ,COMMUNITY mental health nurses ,NURSES' attitudes ,HOME care services ,RESEARCH methodology ,TIME ,CONVALESCENCE ,MEDICAL care ,INTERVIEWING ,INDIVIDUALIZED medicine ,SOCIAL stigma ,QUALITATIVE research ,STATISTICAL sampling ,JUDGMENT sampling ,THEMATIC analysis ,WORKING hours ,RISK management in business ,CRISIS intervention (Mental health services) - Abstract
Accessible Summary: What is known on the subject?: It is known that people with a diagnosis of borderline personality disorder often experience crises in their mental wellbeing.There is little evidence about the approaches of mental health nurses in community‐based crisis teams when working with people with a diagnosis of BPD. What the paper adds to the existing knowledge?: This paper highlights that limited resources, work‐patterns and issues of stigma present challenges to delivering recovery‐oriented care.The paper highlights that nurses typically try to navigate the challenges to continue to provide individualized care, though their self‐assessment is that this is with mixed success. What are the implications for practice?: The findings suggest that support is needed to develop brief interventions specific to teams working with people with a diagnosis of BPD who are at a point of crisis. Introduction: People with a diagnosis of borderline personality disorder (BPD) are often in contact with mental health services at a point of crisis, and in the UK, this includes Crisis Resolution Home Treatment teams (CRHTT). There is a drive for services to be recovery orientated; however, there is little evidence about the degree to which community services achieve this for people with a diagnosis of BPD when in crisis. Research Aim: To understand the perceptions held by CRHTT clinicians about their provision of recovery‐orientated acute care, for people with a diagnosis of BPD. Method: From a purposive sample of a single CRHTT, seven registered mental health nurses were interviewed and Braun and Clarke's thematic analysis framework was used to interpret the data. Results: Five themes emerged: person‐centred care; the timing is wrong; inconsistent staffing; the risks are too great; and BPD as a label. Discussion: The results demonstrate tensions between a drive to deliver person‐centred care and a range of challenges that inhibit this, with the possibility of reframing a recovery approach as "recovery‐ready". Implications for Practice: A whole‐system approach is required to enable a consistent recovery‐oriented approach, but research is also needed for brief interventions specific to this context. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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22. Design and implementation of an online admissions interview for selection to nursing and midwifery programmes: a partnership approach.
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Traynor, Marian, Dunleavy, Stephanie, McIlfatrick, Sonja, Fitzsimons, Donna, Stevenson, Michael, McEvoy, Roisin, and Mulvenna, Caroline
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MIDWIVES ,HEALTH occupations students ,INTERNET ,CROSS-sectional method ,VIRTUAL reality ,INTERVIEWING ,QUANTITATIVE research ,HUMAN services programs ,QUALITATIVE research ,CRONBACH'S alpha ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,INTERPROFESSIONAL relations ,NURSING students ,DEMOGRAPHY ,SCHOOL entrance requirements - Abstract
Background: The recent surge in applications to nursing in the United Kingdom together with the shift towards providing virtual interviews through the use of video platforms has provided an opportunity to review selection methodologies to meet a new set of challenges. However there remains the requirement to use selection methods which are evidence-based valid and reliable even under these new challenges. Method: This paper reports an evaluation study of applicants to nursing and midwifery and reports on how to plan and use online interviews for in excess of 3000 applicants to two schools of nursing in Northern Ireland. Data is reported from Participants, Assessors and Administrators who were asked to complete an online evaluation using Microsoft Forms. Results: A total of 1559 participants completed the questionnaire. The majority were aged 17–20. The findings provide evidence to support the validity and reliability of the online interview process. Importantly the paper reports on the design and implementation of a fully remote online interview process that involved a collaboration with two schools of nursing without compromising the rigour of the admissions process. The paper provides practical, quantitative, and qualitative reasons for concluding that the online remote selection process generated reliable data to support its use in the selection of candidates to nursing and midwifery. Conclusion: There are significant challenges in moving to online interviews and the paper discusses the challenges and reflects on some of the broader issues associated with selection to nursing and midwifery. The aim of the paper is to provide a platform for discussion amongst other nursing schools who might be considering major changes to their admissions processes. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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23. Perceptions and attitudes of black Sub-Saharan African migrants from war-torn zones towards accessing health services in the English West Midlands region, UK.
- Author
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Nyashanu, Mathew, Mbalinda, Scovia Nalugo, Madziva, Roda, and Ekpenyong, Mandu Stephen
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IMMIGRANTS ,RESEARCH ,HEALTH services accessibility ,FOCUS groups ,DISCUSSION ,WAR ,INTERVIEWING ,PATIENTS' attitudes ,QUALITATIVE research ,THEMATIC analysis ,BLACK British ,MEDICAL coding - Abstract
Purpose: The purpose of this paper is to explore the experiences of black Sub-Saharan African (BSSA) migrants from war-torn zones in accessing health services in the West Midlands region of the UK. This may help to inform on factors influencing the uptake of health services for new migrant communities. Design/methodology/approach: This study explored the experiences of BSSA migrants from war-torn zones in accessing health services in the West Midlands using an explorative qualitative approach. Ten focus groups made up of seven participants each were followed up with three in-depth one-to-one interviews from each focus group using a conversational approach where research participants were encouraged to direct and shape the discussion in accordance with their own experiences, views and particular concerns (Kvale, 1996) as opposed to responding to a pre-determined agenda. Findings: Following transcription, coding and analysis of the focus group discussions and follow-up interviews, this study found that perceptions and attitudes of BSSA communities in accessing health services included difficulties in navigating the health system, intrusive and embarrassing questions from clinicians, stigmatisation through offering an HIV test, culturally unfriendly counselling support, unconfidently services and episodes of trauma flashbacks. Originality/value: The experiences of BSSA migrants who sought health services in the West Midlands in the UK demonstrated important implications for future practice and informed service delivery. There is a need to consider cultural education for both BSSA migrants and health professionals to enhance understanding and trust between the groups. Basic professional training for health professionals should also encompass the needs of the growing ethnic populations in the UK. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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24. Menopause at work—An organisation‐based case study.
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Cronin, Camille, Abbott, Joanne, Asiamah, Nestor, and Smyth, Susan
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PERIMENOPAUSE ,WORK environment ,WELL-being ,OCCUPATIONAL roles ,SHIFT systems ,INFERENTIAL statistics ,SOCIAL support ,JOB stress ,RESEARCH methodology ,MEDICAL care ,INTERVIEWING ,FLEXTIME ,QUANTITATIVE research ,CASE-control method ,SEVERITY of illness index ,EMPLOYEE assistance programs ,SURVEYS ,QUALITATIVE research ,LABOR supply ,JOB satisfaction ,EMPLOYMENT ,RESEARCH funding ,MENOPAUSE ,DATA analysis software ,THEMATIC analysis ,OCCUPATIONAL health services ,CORPORATE culture ,WOMEN employees ,WOMEN'S health - Abstract
Aim: The aim of the study was to explore and understand the organizational culture of a workplace in terms of support and well‐being for staff experiencing perimenopausal and menopausal symptoms at work. Design: It is widely acknowledged that perimenopause and menopause symptoms are experienced by a large percentage of the female workforce. There is a lack of research into how nurses are supported through menopause (Cronin et al. Issues in Mental Health Nursing, 42, 2021, 541–548). The perimenopause and menopause transition can be a challenging time where many may require symptom management and support (RCN, The Menopause and Work: Guidance for RCN Representatives, 2020). This paper presents a case study research (CSR) approach to examine one healthcare organization. Methods: CSR design was used: A survey distributed to all staff employed, a review of the available documentation on menopause and interviews with managers from different levels of the organization. The COREQ consolidated criteria was used for reporting the qualitative research reported this study. Results: The case study generated both quantitative and qualitative data using surveys, interviews and documentation. Data from the organization (n = 6905) showed a majority female workforce of 81.9% with 40.6% aged between 41 and 55 years old, meaning a third of the organization working through perimenopause and menopause. Survey responses (n = 167) collected biographical and psychometric data on the prevalence of perimenopausal and menopausal symptoms. Seven managers were interviewed highlighting two themes: Access to support and culture of menopause and 13 documents from the organization on menopause were analysed for content. The study design permitted an iterative approach to data collection and providing an in‐depth understanding of the needs and support for those experiencing perimenopause and menopause. The findings help healthcare organizations to understand their workforce and take in to account the larger numbers of female employees particularly nurses with the need to provide person‐centred support mechanisms and an organizational approach for all employees. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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25. The meaning and impact on well-being of bespoke dancing sessions for those living with Parkinson's.
- Author
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Norton, Elizabeth, Hemingway, Ann, and Ellis Hill, Caroline
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WELL-being ,RESEARCH ,DANCE therapy ,HAPPINESS ,AFFECT (Psychology) ,RESEARCH methodology ,ATTITUDE (Psychology) ,INTERVIEWING ,AEROBIC dancing ,QUALITATIVE research ,LIFE ,PARKINSON'S disease ,SEXUAL orientation identity ,RESEARCH funding ,THEMATIC analysis ,PSYCHOLOGICAL adaptation ,SOCIAL integration - Abstract
Purpose: This paper presents qualitative research findings from the evaluation of a Parkinson's Dance well-being venture in the UK. Methods: Qualitative data was gathered to see how bespoke dancing sessions helped people with Parkinson's (PwP) to manage their conditions and improve their lives and prospects. Principles of a participatory approach were incorporated and methods included semi-structured interviewing, researchers participant observation and an elicitation-based activity. Nineteen PwP, six carers, four dance artists and seven helpers participated in the study. Results: Participating in Parkinson's Dance sessions meant that PwP could experience the possibilities to dance, develop a "can do" attitude, experience fun, enjoyment, social connection, exercise, movement to music, improvement and/or maintenance of their balance, suppleness, coordination and confidence with movement, symptoms being pushed back and ability to learn new things. Conclusions: Our findings add to the evidence-base about the benefits of dance for people experiencing Parkinson's and through novel application of the Life-world based well-being framework of K. T. Galvin and Todres (2011) we propose a theoretical basis for Parkinson's Dance as a resource for well-being. There is scope to consider application of the well-being framework to other arts activities and as the basis of an arts and well-being evaluation tool. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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26. 'You really do become invisible': examining older adults' right to the city in the United Kingdom.
- Author
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Menezes, Deborah, Woolrych, Ryan, Sixsmith, Judith, Makita, Meiko, Smith, Harry, Fisher, Jenny, Garcia-Ferrari, Soledad, Lawthom, Rebecca, Henderson, James, and Murray, Michael
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HUMAN rights ,RESEARCH methodology ,SOCIAL justice ,INTERVIEWING ,QUALITATIVE research ,OLD age - Abstract
A global ageing population presents opportunities and challenges to designing urban environments that support ageing in place. The World Health Organization's Global Age-Friendly Cities movement has identified the need to develop communities that optimise health, participation and security in order to enhance quality of life as people age. Ensuring that age-friendly urban environments create the conditions for active ageing requires cities and communities to support older adults' rights to access and move around the city ('appropriation') and for them to be actively involved in the transformation ('making and remaking') of the city. These opportunities raise important questions: What are older adults' everyday experiences in exercising their rights to the city? What are the challenges and opportunities in supporting a rights to the city approach? How can the delivery of age-friendly cities support rights to the city for older adults? This paper aims to respond to these questions by examining the lived experiences of older adults across three cities and nine neighbourhoods in the United Kingdom. Drawing on 104 semi-structured interviews with older adults between the ages of 51 and 94, the discussion centres on the themes of: right to use urban space; respect and visibility; and the right to participate in planning and decision-making. These themes are illustrated as areas in which older adults' rights to access and shape urban environments need to be addressed, along with recommendations for age-friendly cities that support a rights-based approach. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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27. Approaching systems change at Fulfilling Lives South East in efforts to improve unsupported temporary accommodation: a qualitative case study.
- Author
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Cooke, Charlotte, Jones, Kate, Rieley, Rebecca, and Sylvester, Sandra
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PSYCHOLOGICAL vulnerability ,RESEARCH methodology ,INTERVIEWING ,ORGANIZATIONAL change ,QUALITATIVE research ,ACCESSIBLE design of public spaces ,QUALITY assurance ,RESEARCH funding ,INTERPROFESSIONAL relations ,HOUSING ,HOMELESSNESS ,THEMATIC analysis ,LITERATURE reviews ,JUDGMENT sampling - Abstract
Purpose: The purpose of this paper is to consider how a South East project approached systems change to improve unsupported temporary accommodation (UTA) and the changes made for people experiencing multiple disadvantage ("multiple and complex needs"). This paper also covers some matters that are hard to change or uncertain, such as housing shortages and financial constraints. The paper focuses on a case study of the East Sussex Temporary Accommodation Action Group (TAAG) – a multi-agency action group. Design/methodology/approach: A qualitative case study involving a thematic analysis of seven semi-structured interviews, with a review of published literature and internal documentation. Findings: This example of setting up a TAAG shows us the value of having a dedicated forum to look at a part of the system that requires changing and to identify what works well. Creating a collaborative and democratic space with a common purpose brings different stakeholders and perspectives together and opens discussions to new ways of working. Equalising partners creates an opportunity to create change from the bottom-up within a system traditionally governed by statutory bodies. This study found that the TAAG has facilitated learning around trauma-informed practice and nurtured more sustainable changes towards a Standards Charter and women-only safe UTA. Originality/value: This is one of the first qualitative case studies of a local systems change approach to improving UTA for people experiencing multiple disadvantage in East Sussex. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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28. QMiP statement on controversial Qualitative Research publication.
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PSYCHIATRY ,PROFESSIONAL peer review ,COMMITTEES ,SERIAL publications ,DEBATE ,QUALITATIVE research ,RESEARCH ethics ,REFLEXIVITY - Abstract
Many, if not all, of our readers will be aware of the controversial paper which was published earlier this year, often referred to as 'that paper'. As a committee, QMiP have discussed internally and produced the below statement which we have posted online in response to ongoing discussions. We are reproducing this here for transparency and to ensure this is available to as many QMiP members as possible. We hope the below statement makes the position of the QMiP committee clear; whilst we do not agree with nor condone the approaches used in this instance, this should not take away from the high-quality qualitative research that takes place in our field and which we seek to champion. [ABSTRACT FROM AUTHOR]
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- 2022
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29. "It's the discharge and what comes after that" – a phenomenological analysis of peer support workers' lived experiences of transitioning from psychiatric care.
- Author
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Brenisin, Kristina, Padilla, Mc Stephen, and Breen, Kieran
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AFFINITY groups ,WELL-being ,OCCUPATIONAL roles ,SOCIAL support ,TRANSITIONAL care ,ATTITUDES of medical personnel ,PATIENT readmissions ,INTERVIEWING ,EXPERIENCE ,PHENOMENOLOGY ,QUALITATIVE research ,SELF-efficacy ,SUPPORT groups ,THEMATIC analysis ,PSYCHIATRIC treatment ,MENTAL health services ,DISCHARGE planning - Abstract
Purpose: Transition from inpatient mental health care to community living can be very difficult, as people are at an increased risk of suicide, self-harm and ultimately readmission into hospital. There is little research conducted exploring peer support workers' (PSWs) lived experiences that could provide insight into the key transitions of care, particularly the support required after discharge from inpatient mental health care. The purpose of this paper is thus to provide a particular insight into what it feels like being discharged from psychiatric care from a PSW's perspective, how may support be improved post-discharge and what factors might impact the potential for readmission into inpatient care. Design/methodology/approach: A qualitative, phenomenological approach was adopted to explore and describe PSWs' lived experiences of transitioning from psychiatric care. Four PSWs who were employed by a UK secure mental health facility were recruited. PSW is a non-clinical role with their main duty to support patients, and they were considered for this type of the study for their experience in negotiating the discharge process to better carry out their job as a PSW. Findings: After being discharged from psychiatric care, PSWs experienced issues that had either a negative impact on their mental wellbeing or even resulted in their readmission back into inpatient psychiatric care. This study identified three inter-related recurrent themes – continuity of support, having options and realisation, all concerning difficulties in adjusting to independent community life following discharge. The findings of the study highlighted the importance of ensuring that service users should be actively involved in their discharge planning, and the use of effective post-discharge planning processes should be used as a crucial step to avoid readmission. Research limitations/implications: A deeper insight into the factors that impact on readmission to secure care is needed. The active involvement of service users in effective pre- and post-discharge planning is crucial to avoid readmission. Practical implications: Mental health professionals should consider developing more effective discharge interventions in collaboration with service users; inpatient services should consider creating more effective post-discharge information care and support packages. Their lived experience empowers PSWs to play a key role in guiding patients in the discharge process. Originality/value: This is the first study, to the best of the authors' knowledge, to explore what it feels like being discharged from inpatient mental health care by interviewing PSWs employed at a forensic mental health hospital by adopting a phenomenological approach. This paper offers a deeper insight into the transition process and explores in detail what support is needed post discharge to avoid potential readmission from PSWs' perspectives. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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30. The gaming of performance management systems in British universities.
- Author
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Aboubichr, Btissam and Conway, Neil
- Subjects
MEDICAL information storage & retrieval systems ,EMPLOYEE attitudes ,EVALUATION of organizational effectiveness ,MOTIVATION (Psychology) ,RESEARCH methodology ,GAMES ,INTERVIEWING ,QUALITATIVE research ,UNIVERSITIES & colleges ,SOUND recordings ,DESCRIPTIVE statistics ,REWARD (Psychology) ,JOB performance ,THEMATIC analysis ,EDUCATIONAL attainment - Abstract
Performance management systems are intended to positively influence employee behaviour but do they also motivate significant gaming? This concern is increasingly noted in the literature yet research into gaming and how it arises has been very limited. Using data collected from 65 semi-structured interviews with academics working in 13 research intensive business schools/schools of management in the United Kingdom, this article demonstrates how performance management systems can encourage employees to engage in a range of behaviours termed gaming in order to navigate performance management systems. It categorises gaming behaviours into five types: gratuitous proliferation, hoarding performance, collusive alliances, playing safe and cooking the books. The article then examines the distinctive features of each type and illustrates how it arises as a response to performance management systems. Given the widespread use of performance management systems and the close similarities in the way they are implemented in different public and private sector organisations, the derived categories are relevant to contexts beyond the university setting. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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31. Assessment tools used in adult safeguarding practice within the UK and Ireland: results from a small-scale qualitative study.
- Author
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Doyle, Laura, Montgomery, Lorna, Donnelly, Sarah, Mackay, Kathryn, and Penhale, Bridget
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SAFETY ,PILOT projects ,RESEARCH methodology ,INTERVIEWING ,QUALITATIVE research ,CONCEPTUAL structures ,RISK assessment ,THEMATIC analysis ,SOCIAL case work - Abstract
Purpose: Across the UK and Ireland, there are a range of processes and interventions offered to adults who, because of personal characteristics or life circumstances, require help to keep themselves safe from potential harm or abuse. The ways in which the statutory and voluntary sectors have chosen to safeguard these adults varies. Different models of intervention and the utilisation of a range of assessment tools, frameworks and approaches have evolved, often in response to policy and practice wisdom. Empirical research in this area is limited. The primary research purpose of the project on which this paper is based is to gather information on the range of tools and frameworks that are used in adult safeguarding practice across the UK and Ireland. In so doing, this paper seeks to contribute and inform the future development of an evidence based adult safeguarding assessment framework. Design/methodology/approach: A team of academics from England, Scotland, Northern Ireland and Ireland wanted to explore the possibility of adapting a pre-existing assessment framework currently in use in family and childcare social work to consider its utility in assessing carers involved in adult safeguarding referrals. This paper reports on a small pilot study which sought to inform the adaptation of this framework for use in adult safeguarding. This paper is based on a qualitative study involving 11 semi-structured telephone interviews with adult safeguarding social work managers and experienced practitioners. Two to four professionals from each region of England, Scotland, Northern Ireland and Ireland were interviewed to elicit their perceptions and experiences of engaging in adult safeguarding assessment processes and their views about models of assessment. Findings: This study identified considerable variation in and between the nations under review, in terms of the assessment frameworks and tools used in adult safeguarding practice. To a large extent, the assessment frameworks and tools in use were not evidence based or accredited. Participants acknowledged the value of using assessment frameworks and tools whilst also identifying barriers in undertaking effective assessments. Originality/value: There is limited evidence available in the literature regarding the utility of assessment frameworks and tools in adult safeguarding practice. This primary research identifies four themes derived from professional's experiences of using such frameworks and identifies broader recommendations for policy and practice in this area. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
32. Child Language Brokering in Healthcare: Exploring the Intersection of Power and Age in Mediation Practices.
- Author
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Iqbal, Humera and Crafter, Sarah
- Subjects
IMMIGRANTS ,CULTURE ,COMMUNICATION barriers ,MEDICAL personnel ,INTERVIEWING ,EXPERIENCE ,PATIENTS' families ,QUALITATIVE research ,RESEARCH funding ,CASE studies ,INTERPERSONAL relations ,PATIENT-professional relations ,HEALTH facility translating services ,CHILDREN ,ADOLESCENCE - Abstract
This paper aims to explore young people's perspectives of a real-life scenario of child language brokering in a healthcare setting (the doctor's office), when the topic of discussion is sensitive and potentially conflictual. Child Language brokers are migrant young people who translate and interpret for family members, peers and the local community. Often the spaces in which children broker (e.g., healthcare, banks), referred to here as a 'contact zone', are dominated by adults in positions of authority and unequal power differentials. The language broker and those for whom they are brokering may be in a less powerful position because of their migration status and/or age status. Existing research has focused mainly from the view of adults and young people's perspectives on the practice are underexplored. We draw the existing literature to explore how brokers understand the wider societal context and the strategies they employ to manage conflict. Findings are presented from 29 individual qualitative vignette-based interviews with language brokers (aged 13–16) in the United Kingdom which were qualitatively analysed. Findings show how these children play a vital role in protecting those for whom they broker, often navigating sophisticated social interactions and tactics (such as delay and selective modification). Equally, they carry a weight of responsibility trying to manage complicated, perhaps morally questionable, situations. By asking brokers to reflect on a real-life healthcare scenario, we are advancing understanding of migrant youth brokers and the families they support in their day to day lives. Highlights: Child language brokers find themselves brokering in health care settings with unequal power relations. Vignette methodology is a useful way of capturing complex sensitive and conflictual accounts of healthcare brokering in children. Brokering in the doctor's office required children to have knowledge of tri-interactional actors, institutional factors and wider societal norms. Young people used different strategies for managing conflict (e.g., delay tactics and selective modification). Clearer guidelines are needed around child language brokering in medical settings and spaces with contentious power inequalities. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
33. Companies' Responses to a Tax on Sugar-Sweetened Beverages: Implications for Research: Comment on "Understanding Marketing Responses to a Tax on Sugary Drinks: A Qualitative Interview Study in the United Kingdom, 2019".
- Author
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Gonçalves, Judite
- Subjects
SWEETENED beverage tax ,BUSINESS enterprises ,QUALITATIVE research ,PRICES - Abstract
The paper by Forde et al, newly published in this journal, sheds light on how sugar-sweetened beverages (SSBs) companies may react to the introduction of a SSB tax. This commentary goes over the paper's main findings and drafts implications for research on the impacts of SSB taxes. First and foremost, future research needs to assess the actual impacts of SSB taxes on companies' actions, especially reformulation. Second, cross-country research, comparing large companies with similar beverage portfolios, could bring insights about the impacts of external factors, including different SSB taxes, on companies' decisions. Third, SSB companies' actions are potential confounders in empirical studies looking into the impacts of SSB taxes on prices, demand, or other outcomes. Researchers need to be aware of and discuss such aspects thoroughly in their studies, as the implications for the interpretation of results are evident. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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34. Faith, values, and metaphysical positionality in qualitative research.
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Johnsen, Sarah and Fitzpatrick, Suzanne
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RESEARCHER positionality ,QUALITATIVE research ,IRRELIGION ,HOMELESSNESS ,PROOF of God ,HOMELESS persons ,GEOGRAPHY - Abstract
Positionality has long been a preoccupation for qualitative researchers within and beyond geography. Reflexive assessments of positionality typically examine the ways in which a researcher's sociodemographic identifiers such as gender, age, ethnicity, dis/ability, sexuality, and/or the intersections between these affect research encounters, processes, and outcomes. Religion rarely features in such interrogations, and then usually only in relation to participants' ethnic or racial affiliations. Drawing on experiences conducting a study exploring the role of faith‐based organisations in welfare provision for homeless people in the UK, this paper focuses on the related (but not synonymous) issue of metaphysical stance, that is, belief or non‐belief in the existence of God(s). It argues that metaphysical stance should be regarded as a sui generis aspect of positionality, which fits into none of the identity categories typically considered but is deserving of separate analysis with respect to its ethical and practical implications. Further to this, it contends that extreme diplomacy and discretion are required when exploring issues as inherently value‐laden as the moral frameworks underpinning welfare approaches. This is especially true when participants' views divide in part along theist/atheist lines, such that religious and policy "literacy" are valuable attributes for researchers negotiating these sensitive terrains in the field. Building on and critiquing existing scholarship on researcher reflexivity within and beyond geography, this paper argues that metaphysical stance should be regarded as a sui generis aspect of positionality that fits into none of the sociodemographic identity categories typically considered but is deserving of separate analysis with respect to its ethical and practical implications. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
35. Evaluating the effectiveness of resilience-building training within the national health service in the UK.
- Author
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Horton, Nicole, Drayton, Mike, Wilcox, Daniel Thomas, and Dymond, Harriet
- Subjects
PSYCHOLOGICAL burnout ,STATISTICS ,EVALUATION of human services programs ,CONFIDENCE ,JOB stress ,MENTAL health ,PSYCHOLOGY ,NATIONAL health services ,QUALITATIVE research ,PRE-tests & post-tests ,LEARNING strategies ,QUESTIONNAIRES ,SCALE analysis (Psychology) ,DESCRIPTIVE statistics ,DATA analysis ,PSYCHOLOGICAL resilience - Abstract
Purpose: This paper aims to describe the use of an innovative resilience-building training programme delivered to NHS Safeguarding Leads and other participating professionals over a five-month period concluding in March 2019. The developers used knowledge and expertise in both the fields of psychology and drama-based learning to promote comprehension, retention and a capacity for using and conveying these strategies to other health-care workers. Design/methodology/approach: Attendees were given pre- and post-questionnaires to examine the effectiveness of the training in terms of understanding the stages of burnout, developing an awareness of personal risk factors that may be associated with potential burnout and their perceptions of the confidence they have in both evaluating their personal resilience and using acquired skills and coping techniques that they may apply to their personal and professional lives. A Wilcoxon Signed Ranks test was administered, to assess the significance of the difference between pre- and post-training scores. Findings: Following the training, participants reported statistically significant improvements relating to their understanding of terms, including "burnout". They also reported an increased awareness of their personal risk factors associated with burnout and felt more resilient having completed the training. Statistically significant changes were reported in all of these areas, with the drama element of the training being commended on about one third of all feedback forms where, with the post-test results, a narrative (unscored) opportunity for feedback was sought. Research limitations/implications: The authors note that a long-term follow-up of retention and use of this training was not undertaken, though they consider that, post-pandemic, this necessary training can be reinitiated and that, as with other professional initiatives, video-engagement technology may be, through innovative efforts, merged with these effective training techniques as an option for future training applications. Practical implications: To the best of the authors' knowledge, this training programme was the first of its kind to use a psychologically underpinned drama-based didactic approach to build resilience and protect against burnout. The results of this paper show that this training used an effective and efficient medium for successfully meeting these primary objectives. Social implications: It is considered that using a similar training approach would be effective in building resilience and preventing burnout in health-care professionals. Originality/value: This paper evaluates the effectiveness of an innovative resilience-building training programme drawing upon the field of psychology and drama-based learning to support safeguarding professionals within the NHS. [ABSTRACT FROM AUTHOR]
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- 2022
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36. Views and experiences of primary care among Black communities in the United Kingdom: a qualitative systematic review.
- Author
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Ojo-Aromokudu, Oyinkansola, Suffel, Anne, Bell, Sadie, and Mounier-Jack, Sandra
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PSYCHOLOGY of Black people ,CINAHL database ,PSYCHOLOGY information storage & retrieval systems ,CULTURE ,COMPUTER software ,MEDICAL information storage & retrieval systems ,HEALTH services accessibility ,SYSTEMATIC reviews ,MOTIVATION (Psychology) ,FAMILY medicine ,ATTITUDES of medical personnel ,HELP-seeking behavior ,MEDICAL care ,LANGUAGE & languages ,PRIMARY health care ,PATIENTS' attitudes ,QUALITATIVE research ,PSYCHOSOCIAL factors ,HEALTH attitudes ,HEALTH behavior ,RESEARCH funding ,MEDLINE ,FINANCIAL management ,ETHNIC groups ,DATA analysis software ,THEMATIC analysis ,PATIENT-professional relations ,TRUST ,GREY literature - Abstract
In the United Kingdom, people with non-white ethnicities are more likely to report being in worse health conditions and have poorer experiences of healthcare services than white counterparts. The voices of those of Black ethnicities are often merged in literature among other non-white ethnicities. This literature review aims to analyse studies that investigate Black participant experiences of primary care in the UK. We conducted a systematic literature review searching Medline, Web of Science, EMBASE, SCOPUS, Social Policy and Practice, CINAHL plus, Psych INFO and Global Health with specific search terms for appropriate studies. No publish date limit was applied. 40 papers (39 articles and 1 thesis) were deemed eligible for inclusion in the review. A number of major themes emerged. Patient expectations of healthcare and the health seeking behaviour impacted their interactions with health systems in the UK. Both language and finances emerged as barriers through which some Black participants interacted with primary care services. (Mis)trust of clinicians and the health system was a common theme that often negatively impacted views of UK primary care services. The social context of the primary care service and instances of a cultural disconnect also impacted views of primary care services. Some papers detail patients recognising differential treatment based on ethnicity. The review included the voices of primary care professionals where descriptions of Black patients were overwhelmingly negative. Views and experiences of Black groups may be radically different to other ethnic minorities and thus, should be teased out of broader umbrella terms like Black and Asian Minority Ethnic (BAME) and Black Minority Ethnic (BME). To address ethnicity-based health inequalities, culturally sensitive interventions that engage with the impacted community including co-designed interventions should be considered while acknowledging the implications of being racialised as Black in the UK. [ABSTRACT FROM AUTHOR]
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- 2023
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37. Views about Euthanasia and Dementia: Exploring Perceptions Utilising Evidence from the Mass Observation Archive.
- Author
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Blain, Janet, Stevens, Dean, Taylor, Louise, Kingston, Paul, and Watts, Geoffrey
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ASSISTED suicide ,ATTITUDES toward illness ,QUALITATIVE research ,EUTHANASIA ,DEMENTIA ,DESCRIPTIVE statistics ,THEMATIC analysis ,DATA analysis software - Abstract
This paper contributes to the ongoing discussion in the United Kingdom regarding euthanasia and assisted dying, using data specifically related to individuals with dementia. A qualitative approach was taken with data captured via a set of written questions in the form of a Mass Observation Archive Directive. The respondents, known as Observers, provided written responses; there was no limit to the length of the responses and the Observers were able to provide as much or as little detail as they chose. The data were analysed thematically utilising NVivo software. One-hundred and seven responses were received, representing a range of beliefs, and with opinions regarding euthanasia and dementia with pro, anti, and uncertain views being expressed. Five main themes emerged during our data analysis: capacity, legislation, agency and personal philosophies, disquietude, and incumbrance. Consistent with previous research capturing public views regarding euthanasia and assisted dying for people with dementia, the findings suggest policy makers may wish to consult the British public regarding legislation regarding euthanasia and dementia. [ABSTRACT FROM AUTHOR]
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- 2023
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38. Managing ovarian hyperstimulation syndrome: A qualitative interview study with women and healthcare professionals.
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Lumley, Elizabeth, O'Cathain, Alicia, Drabble, Sarah, Pye, Clare, Brian, Kate, and Metwally, Mostafa
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INFERTILITY treatment ,FERTILITY clinics ,ATTITUDES of medical personnel ,RESEARCH methodology ,PATIENT decision making ,OVARIAN hyperstimulation syndrome ,INTERVIEWING ,HEALTH status indicators ,QUALITATIVE research ,SEVERITY of illness index ,DYSPNEA ,PSYCHOLOGY of women ,HEALTH ,INFORMATION resources ,QUALITY assurance ,SOUND recordings ,DESCRIPTIVE statistics ,COMMUNICATION ,RESEARCH funding ,WORRY ,DATA analysis software ,THEMATIC analysis ,EDEMA ,PSYCHOLOGICAL distress ,DISEASE management ,SYMPTOMS - Abstract
Aim: To explore the experiences of women who have had ovarian hyperstimulation syndrome, and healthcare professionals who care for them. Background: Ovarian hyperstimulation syndrome is a side effect of fertility treatment. Little research exists internationally that explores the experiences of women who have had this condition, or the healthcare professionals who manage it. Design: Qualitative study using semi‐structured interviews. Methods: Eighteen interviews with women who had experienced ovarian hyperstimulation syndrome (n = 10) and healthcare professionals (n = 8) in six UK fertility centres. Framework analysis was used. This paper is reported following COREQ guidelines. Results: Women described a range of symptoms and severity, sometimes experiencing worrying physical health problems such as abdominal swelling and shortness of breath. The combination of the symptoms, and their management, on delaying future fertility treatment could cause emotional distress. Healthcare professionals at different centres described variation in practice, which generally involved 'active monitoring' until symptoms became severe, when women would be hospitalised. Women expressed feeling 'left in limbo' while waiting for symptoms to improve or worsen, and described a lack of control during this waiting period. Healthcare professionals felt they provided adequate information about ovarian hyperstimulation syndrome and its management. This, however, did not align with women's perceptions that information, including potential delays to their fertility treatment, was missing. There was similar mismatch between women's and healthcare professionals' views of decision‐making about fertility treatment following ovarian hyperstimulation syndrome, including women's concerns about having to make rushed, unplanned decisions about their fertility treatment when they did not feel adequately informed to do so. Conclusion: Ovarian hyperstimulation syndrome and its management can have a significant physical and emotional impact on women, and influence their fertility treatment. Improvements could be made to the information women receive about this condition, its management and its implications for wider fertility treatment. Implications for the profession and/or patient care: Nurses have the skills and knowledge to support women through the physical and emotional stresses of fertility treatment. Therefore, they are well placed to provide specialist information and support for OHSS and ensure women are fully informed about all aspects of the condition, including how its management might delay fertility treatment. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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39. Power, Participation, Payment and Platform: Ethical and Methodological Issues in Recruitment in Qualitative Domestic Abuse Research.
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McGregor, Kirsty, Taylor, Bethan, and Oakley, Lisa
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PATIENT selection ,QUALITATIVE research ,HUMAN research subjects ,ETHICAL decision making ,DOMESTIC violence ,RESEARCH methodology ,RESEARCH ethics ,PATIENT participation - Abstract
Purpose: This paper presents a critical reflection of pertinent methodological and ethical issues associated with qualitative research on domestic abuse, and synthesises existing models of research to provide ethical, practical, and methodological implications. Methods: Drawing on the combined research and front-line experience of the authors it explores four critical areas: power, participation, payment, and platform. Results: Current practices sometimes lack transparency and may perpetuate marginalisation in studies of some with lived experience of domestic violence and abuse which can be considered symbolic violence. There lacks consistency in participant payment, or research on participants' perceptions of payment. The final section addresses challenges of including perpetrators as participants, highlighting the learning that could occur as a result of inclusion, noting the associated risks of perceived collusion or endorsement of harmful behaviour. Conclusions: This paper contributes to scholarship regarding domestic abuse research through exploration of participation, remuneration, and the unique complexities of domestic abuse perpetrator involvement. We foreground the importance of articulating and managing power dynamics in domestic abuse research, and suggest measures to ensure such dynamics are mitigated successfully to ensure participation is accessible to all. The paper argues for further consideration of payment protocols, and inclusion of the decision-making process in published research. Further it recognises perpetrator exclusion from research can result in victim/survivors being held responsible for raising awareness and developing knowledge of domestic abuse, consequently researchers should consider perpetrator participation where possible. The paper concludes with recommendations for those engaged in domestic violence and abuse research. [ABSTRACT FROM AUTHOR]
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- 2023
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40. Female service users' experiences of secure care in the UK: a synthesis of qualitative research.
- Author
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Ratcliffe, Joanne Marie and Stenfert Kroese, Biza
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USER experience ,QUALITATIVE research ,FORENSIC nursing ,WOMEN'S programs ,QUALITY of service ,FEMALES - Abstract
The forensic care needs of females have received increased attention over recent years, with Department of Health (DOH) initiatives highlighting the need for gender-sensitive service provision. However, little is understood about how women experience such services. This review aimed to systematically review and synthesise the findings of existing qualitative literature exploring female service users' experiences of secure care in the UK. A systematic search of four databases and subsequently applied inclusion and exclusion criteria resulted in fifteen papers that have qualitatively explored female service users' views on secure care provision. The methodological quality of each paper was appraised before employing a Thematic Synthesis approach to integrate the findings. The resultant papers were appraised to be of varying quality although it was often unclear whether this was due to differing methodological rigour or the reporting of such. The synthesis revealed three overarching themes: 'Safety and Containment', 'Empowerment and Acceptance' and 'Making Change'. The findings provide a valuable synthesis of a limited area of qualitative research and highlight areas of importance for female forensic service users. They fall in line with current guidance, as well as indicating new areas for service improvement to ensure positive experiences and outcomes. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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41. Everyday power dynamics and hierarchies in qualitative research: The role of humour in the field.
- Author
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Kaaristo, Maarja
- Subjects
WIT & humor ,PARTICIPANT-researcher relationships ,QUALITATIVE research ,ETHNOLOGY research ,FIELDWORK (Educational method) ,POWER (Social sciences) - Abstract
Negotiating the relationships influenced by a combination of identity markers during fieldwork is an important aspect of qualitative data co-creation. Based on ethnographic research with the canal boating and enthusiast communities in the UK, this paper focuses on the mundane power dynamics and hierarchies in research situations. The paper discusses the role of humour in negotiating the interpersonal dynamics and argues for the consideration of power (im)balances in the field beyond assumptions of the researcher as definitely the advantaged side. Joking plays an important role and is used by both research participants and researchers to level the researcher–participant hierarchies as well as to reproduce and reaffirm them. This takes place on a conceptual continuum: first, in terms of their relative rigidity, whereby certain norms, opinions or value systems are reinforced; and secondly, flexibility, whereby the notions about norms and preconceived ideas might shift during the research encounter. [ABSTRACT FROM AUTHOR]
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- 2022
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42. The impact of Brexit on the migrant strategies of Slovaks in the UK.
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Pecníková, Jana and Strnádová, Petra
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BREXIT Referendum, 2016 ,BRITISH withdrawal from the European Union, 2016-2020 ,COVID-19 pandemic ,IMMIGRANTS ,SOCIAL influence ,SEMI-structured interviews - Abstract
Introduction: It is well-known that after the most significant enlargement of the EU in 2004, a great number of migrants from the Visegrad countries (V4), including Slovakia, decided to seek new opportunities in the UK. This has been reflected in numerous studies illustrating the consequences for British society and particularly the negative shift of Britons' attitudes towards migrants. The fatal mixture of political populism, media influence and social issues subsequently led to a referendum with the unexpected outcome of Britain leaving the EU, otherwise known as Brexit. Objectives: The main objective of the research presented in this paper was to examine the social, economic, legal and political consequences of Brexit and its impact on the migrant strategies of the Slovaks living in the UK. Methods: We used qualitative-research methods in the form of 30 in-depth semi-structured interviews online after the Covid-19 pandemic forced the original plan of interviewing the participants face-to-face to be abandoned. The approach used in the interviews was biographical, addressing the migrants' personal history (in respect to migration), present (in respect to Brexit) and future (in respect to both Brexit and migration). However, the final themes and questions included in the interviews was also affected by the pandemic which had largely replaced Brexit as the main cause of the migrants' concerns and had to be reflected. Results: A qualitative analysis of the collected data showing that Brexit did not alter the migration strategies of those 30 Slovak research participants, especially those from the post-EU-admission migration wave. They did not intend to go back to Slovakia and did not perceive any immediate negative impact of Brexit on their lives. Moreover, they believe that Britain would easily sustain and deal with any potential trouble resulting from Brexit. However, the focus of this paper is on those who emigrated before 2004 and can see the UK, their own lives and consequences of major political decisions in a broader perspective. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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43. Experiences of forced migration: learning for educators and learners: a report.
- Author
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Oddy, Jessica, Harewood, Michelle, Masserano, Erica, and Lounasmaa, Aura
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EDUCATION of refugees ,WELL-being ,IMMIGRANTS ,TEACHING methods ,STUDENT assistance programs ,PSYCHOLOGY of refugees ,MENTAL health ,INTERVIEWING ,HUMAN services programs ,QUALITATIVE research ,WOUNDS & injuries - Abstract
A combination of structural barriers, inadequate student welfare provision and the absence of psycho-social and academic support make higher education access for forcibly displaced students challenging. Many of these students will have experienced many stressful and potentially traumatic events that may have or may continue to impact their mental health and wellbeing. This article draws on reflections by educators and findings from eight interviews with students who participated in a twelve-week preparatory course for access to higher education for refugees and asylum seekers in the United Kingdom. The paper firstly problematizes trauma as an organizing concept and challenges the dominant deficit approaches in forced migration studies when working with displaced students. Then, based on qualitative data collected from students and educators, it explores how creative skills were integrated and the importance of the student's voice as a culturally sustaining pedagogical approach to strengthening trauma-informed teaching approaches. The programme was designed to strengthen individual agency and promote well-being and mental health. Finally, this paper argues that working collaboratively with forcibly displaced students from an asset-based stance appeared critical in creating and sustaining a welcoming higher education environment which could contribute to promoting mental health. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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44. Clinical Targets and Attitudes Toward Implementing Digital Health Tools for Remote Measurement in Treatment for Depression: Focus Groups With Patients and Clinicians.
- Author
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de Angel, Valeria, Lewis, Serena, White, Katie M., Matcham, Faith, and Hotopf, Matthew
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MEDICAL consultation ,FOCUS groups ,SOCIAL support ,GROUNDED theory ,DIGITAL health ,PHYSICIANS' attitudes ,WEARABLE technology ,SMARTPHONES ,PATIENTS' attitudes ,QUALITATIVE research ,MENTAL depression ,DESCRIPTIVE statistics ,EMOTIONS ,TELEMEDICINE ,PSYCHOTHERAPY ,PHENOTYPES - Abstract
Background: Remote measurement technologies, such as smartphones and wearable devices, can improve treatment outcomes for depression through enhanced illness characterization and monitoring. However, little is known about digital outcomes that are clinically meaningful to patients and clinicians. Moreover, if these technologies are to be successfully implemented within treatment, stakeholders' views on the barriers to and facilitators of their implementation in treatment must be considered. Objective: This study aims to identify clinically meaningful targets for digital health research in depression and explore attitudes toward their implementation in psychological services. Methods: A grounded theory approach was used on qualitative data from 3 focus groups of patients with a current diagnosis of depression and clinicians with >6 months of experience with delivering psychotherapy (N=22). Results: Emerging themes on clinical targets fell into the following two main categories: promoters and markers of change. The former are behaviors that participants engage in to promote mental health, and the latter signal a change in mood. These themes were further subdivided into external changes (changes in behavior) or internal changes (changes in thoughts or feelings) and mapped with potential digital sensors. The following six implementation acceptability themes emerged: technology-related factors, information and data management, emotional support, cognitive support, increased self-awareness, and clinical utility. Conclusions: The promoters versus markers of change differentiation have implications for a causal model of digital phenotyping in depression, which this paper presents. Internal versus external subdivisions are helpful in determining which factors are more susceptible to being measured by using active versus passive methods. The implications for implementation within psychotherapy are discussed with regard to treatment effectiveness, service provision, and patient and clinician experience. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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45. Undocumented in the time of pandemic: exploring legal violence, health care and human rights of irregular Filipino migrants in Italy and the UK.
- Author
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Vilog, Ron Bridget T. and Piocos III, Carlos M.
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VIOLENCE laws ,HEALTH services accessibility ,HUMAN rights ,PSYCHOLOGICAL vulnerability ,HEALTH status indicators ,QUALITATIVE research ,COVID-19 pandemic - Abstract
Purpose: The purpose of this paper is to examine the effects of states' pandemic responses to the conditions and vulnerabilities of undocumented Filipino migrants in Italy and the UK. It also explores the role and strategies of migrant organisations in addressing the issues and concerns of undocumented workers. Design/methodology/approach: Qualitative approaches are used to collect and analyse the narratives of the migrants and migrant organisations. This paper used government reports, policy briefs and documents from international organisations in analysing the socio-political vulnerabilities of undocumented migrants in the context of the global pandemic. In addition, we interviewed leaders of migrant organisations, which are involved in supporting irregular migrants. Findings: The study reveals that states have exercised a regime of legitimate violence against undocumented workers in Italy and the UK. This regime is imposed not only by the stringent laws and policies that directly and indirectly cause economic, social and even cultural suffering to the migrants but also by the "symbolic violence" manifested in structural and social inequalities, and the exploitative economic order amid the pandemic. Responding to the "regime of fear", migrant organisations provide immediate relief and "safe spaces" for the undocumented workers. Originality/value: The paper contributes to the ongoing conversation on state practices in regulating migration by framing the conditions of undocumentation as legal violence that structurally deprives irregular migrants access to health care and human rights amid global health crisis. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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46. The impacts and implications of the community face mask use during the Covid‐19 pandemic: A qualitative narrative interview study.
- Author
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Hanna, Esmée, Martin, Graham, Campbell, Anne, Connolly, Paris, and Fearon, Kristine
- Subjects
MEDICAL masks ,HEALTH policy ,INTERVIEWING ,PUBLIC health ,EXPERIENCE ,QUALITATIVE research ,JUDGMENT sampling ,THEMATIC analysis ,PUBLIC opinion ,COVID-19 pandemic - Abstract
Introduction: A range of nonpharmaceutical public health interventions has been introduced in many countries following the rapid spread of Covid‐19 since 2020, including recommendations or mandates for the use of face masks or coverings in the community. While the effectiveness of face masks in reducing Covid‐19 transmission has been extensively discussed, scant attention has been paid to the lived experience of those wearing face masks. Method: Drawing on 40 narrative interviews with a purposive sample of people in the United Kingdom, with a particular focus on marginalised and minoritized groups, our paper explores experiences of face mask use during the pandemic. Results: We find that face masks have a range of societal, health and safety impacts, and prompted positive and negative emotional responses for users. We map our findings onto Lorenc and Oliver's framework for intervention risks. We suggest that qualitative data offer particular insights into the experiences of public health interventions, allowing the potential downsides and risks of interventions to be more fully considered and informing public health policies that might avoid inadvertent harm, particularly towards marginalised groups. Patient or Public Contribution: The study primarily involved members of the public in the conduct of the research, namely through participation in interviews (email and telephone). The conception for the study involved extensive discussions on social media with a range of people, and we received input and ideas from presentations we delivered on the preliminary analysis. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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47. What are the information needs of people with dementia and their family caregivers when they are admitted to a mental health ward and do current ward patient information leaflets meet their needs?
- Author
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Wolverson, Emma, Harrison Dening, Karen, Gower, Zoe, Brown, Pat, Cox, Julie, McGrath, Victoria, Pepper, Amy, and Prichard, Jane
- Subjects
CAREGIVERS ,MEDICINE information services ,FOCUS groups ,DEMENTIA patients ,HEALTH information services ,EXPERIENCE ,QUALITATIVE research ,HOSPITAL care ,INFORMATION needs ,CONTENT analysis ,PATIENT education ,MENTAL health services ,PAMPHLETS ,VIDEO recording - Abstract
Introduction: An admission to a mental health ward is an uncertain and unexpected part of a person's journey with dementia and consequently, families require information about what to expect and how to prepare. This study aimed to establish the information needs of people with dementia and their families at the point of admission to a mental health ward and to collate existing ward information leaflets to explore if they meet these information needs. Methods: This research was conducted in two parts: (1) a qualitative study using focus groups, one with people with dementia and family carers with lived experience of such an admission (n = 6), and another with Admiral Nurses (n = 6) to explore information needs at the point of admission. (2) Each National Health Service (NHS) mental health trust (n = 67) was asked to provide a copy of their ward information shared at admission. A total of 30 leaflets were received from 15 NHS trusts; after removing duplicates, 22 were included. A content analysis was conducted to evaluate to what extent leaflets met the information needs identified by focus groups. Results: Two main categories 'honest, accurate and up‐to‐date information' and 'who is the information for' and four subcategories were derived from focus group data. Participants felt that people with dementia and their families were likely to have different information needs. Material for people with dementia needed to be in an accessible format. Information should cover the aim of the admission, a timeline of what to expect and details about how families will be involved in care. Practical information about what to pack and ward facilities was valued. Participants spoke about the need to consider the tone of the information, given that people are likely to be distressed. The information leaflets reviewed did not meet the information needs identified by focus group participants. Conclusions: People with dementia and family carers have different information needs at the point of admission to a mental health ward. Information provided to people with dementia needs to be in an accessible format with content relevant to these needs. Wards should aim to co‐create information to ensure that they meet people's information needs. Patient or Public Contribution: This research was supported by a patient and public involvement (PPI) group of people with dementia and carers who have experience in mental health wards. The idea for the study came from the group and was motivated by their experiences. The PPI group helped with the design of the study and took part in the focus groups. The information generated has been written up in this paper, and the knowledge generated has also been used to co‐create a guide for wards on writing their information leaflets and to support the co‐creation of a public information leaflet by Dementia UK about mental health admissions for people with dementia. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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- View/download PDF
48. 'Like going into a chocolate shop, blindfolded': What do people with primary progressive aphasia want from speech and language therapy?
- Author
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Loizidou, Maria, Brotherhood, Emilie, Harding, Emma, Crutch, Sebastian, Warren, Jason D., Hardy, Chris J.D., and Volkmer, Anna
- Subjects
DIAGNOSIS of aphasia ,SPEECH therapy ,MEDICAL care ,VIDEOCONFERENCING ,BURDEN of care ,PATIENTS' attitudes ,FAMILY attitudes ,TREATMENT effectiveness ,QUALITATIVE research ,DESCRIPTIVE statistics ,RESEARCH funding ,THEMATIC analysis ,STATISTICAL sampling ,COMMUNICATION education - Abstract
Background: Primary progressive aphasia (PPA) describes a group of language‐led dementias. PPAs are complex, diverse and difficult to diagnose, and therefore conventional models of aphasia and dementia treatment do not meet their needs. The research evidence on intervention for PPA is developing, but to date there are only a few case studies exploring the experiences of people with PPA (PwPPA) themselves. Aims: To explore the experiences and opinions of PwPPA and their communication partners (CPs) to understand how speech and language therapy (SLT) services can better meet their needs. Methods & Procedures: A qualitative research approach was used whereby PwPPA and their friends or family members were recruited to participate in focus groups, via advertisements in the Rare Dementia Support PPA group newsletters. Consenting participants were allocated to attend one of four focus groups hosted on an online video conferencing platform. Participants were asked about their communication difficulties, and how SLT could address these needs. All meetings were transcribed, and data were examined using reflexive thematic analysis. Outcomes & Results: Six PwPPA and 14 CPs representing all three PPA variants and mixed PPA participated in the focus groups. Four main themes were identified during the analysis of the focus group discussions: (1) CPs' burden, (2) adjusting to the diagnosis, (3) communication abilities and difficulties and (4) beyond language. A further 10 subthemes were identified. Conclusions & Implications: This study provides a greater understanding of the experiences and needs of PwPPA and their families in relation to SLT. This work underlines the importance of a person‐centred approach that considers the broader needs of both the PwPPA and the people around them. This will enable service providers to deliver SLT that meets the needs of PwPPA and their families and will also inform future research in this field. WHAT THIS PAPER ADDS: What is already known on this subject: We know that PwPPA can maintain or even make improvements in word retrieval and speech fluency with SLT exercises. There is also developing evidence of the benefits of interventions such as CP training, communication aid support and other functional interventions. What this paper adds to existing knowledge: This study provides an understanding of the experiences and opinions of people living with PPA and their families in relation to SLT. Results demonstrate that PwPPA and their families have to navigate a complex journey, identifying strategies to support communication but also the influence of personality and other cognitive symptoms. SLT was useful, but not always available. What are the potential or actual clinical implications of this work?: This study will enable service providers to better plan, justify funding for and delivery of SLT that will meet the needs of PwPPA and their families. Most importantly this work underlines the importance of a person‐centred approach, incorporating the broader needs of the person with PPA and those around them. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
49. Taking 'A walk through dementia': exploring care home practitioners' experiences of using a virtual reality tool to support dementia awareness.
- Author
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Hicks, Ben, Konovalova, Irma, Myers, Kirsten, Falconer, Liz, and Board, Michele
- Subjects
COMPUTER software ,RESEARCH ,FOCUS groups ,VIRTUAL reality ,ATTITUDES of medical personnel ,COGNITION ,QUALITATIVE research ,NURSING care facilities ,DEMENTIA ,PSYCHOSOCIAL factors ,EXPERIENTIAL learning ,RESEARCH funding ,THEMATIC analysis ,MEDICAL practice ,EMOTIONS ,NURSING home employees ,REFLECTION (Philosophy) - Abstract
Emerging research has outlined the possibility for virtual reality (VR) experiences, which situate users into the perspective of someone living with dementia, to enhance dementia awareness. Currently, there is limited VR research that engages care home practitioners. It is imperative this population has high levels of dementia education given their requirements to provide care and support to residents, many of whom will be living with the condition. This paper reports on an exploratory qualitative study designed to elicit the experiences of care home practitioners who engaged with the VR application: 'A walk through dementia'. Twenty practitioners, across four care homes in the United Kingdom, watched the VR scenarios and provided their views on the experience and the potential for the VR tool to be developed into a wider training programme to support dementia awareness. Data were collected via focus group discussions. Following an inductive thematic analysis, we constructed three themes. These suggested participants perceived the VR application offered them a convincing and immersive experience that was insightful and evocative , and provided 'next-level' dementia-awareness training that enabled them to reflect on care practices. Although the findings highlight important challenges for practitioners and developers wishing to use VR within dementia care, they suggest this application may be an engaging experiential learning tool that can provide care home staff with deeper cognitive and emotional awareness of living with dementia. Further work, drawing on these preliminary insights, is required to ensure the VR tool can be incorporated into a training programme that can positively contribute to the 'dementia-friendly communities' agenda. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
50. Non-Binary Parents and Carers: Naming the Specific Detriment Faced.
- Author
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Brown, Claire
- Subjects
NARRATIVE inquiry (Research method) ,QUALITATIVE research ,SOCIAL workers ,PARENTING - Abstract
This empirical qualitative study reports a subset of findings derived from a wider narrative inquiry conducted in the UK. In-depth, semi-structured interviews were undertaken with six participants: four who self-define as non-binary or neutrois and have lived experience of adoption, fostering or birth parenting and two social workers with experience assessing and supporting non-binary carers. Purposive followed by snowball sampling sought to include participants with a range of identities from this hard to access sample. A thematic analysis was employed using Braun and Clarke’s (2006) six stages and utilising an analysis framework integrating elements of cisgenderism, stigma theory and Foucauldian analysis of discourse and power. Findings showed three key themes emerged: 1). Barriers for non-binary carers, 2) Prejudice in adoption and fostering matching processes, 3). Intersectional disadvantage. Cisgenderism was found to affect non-binary carers at micro, meso and macro levels, ranging from the interactions people had with individual family members, friends and professionals, to organisational policies, procedures and responses, to overarching ways in which wider cisgenderist ideas have infused and influenced society. The stigma attached to non-binary identities is unearthed and unpacked to contribute to a developing conversation aiming to promote inclusion of non-binary identities within social and family life. The key finding of this study that non-binary people do experience specific detriment when trying to start or grow their families adds to a burgeoning conversation on the wider specific detriment that non-binary identity faces within contemporary society. This paper speaks to the ways in which cisgenderism can subtly and pervasively influence a devaluing of identities that sit outside of entrenched binary gender norms. The findings of this exploratory study are as such relevant not only to professionals and academics working with non-binary carers, but more widely to gender theorists and sociologists across the globe. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
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