108 results
Search Results
2. GPT Technology to Help Address Longstanding Barriers to Care in Free Medical Clinics.
- Author
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Ong, Hannah, Ong, Joshua, Cheng, Rebekah, Wang, Calvin, Lin, Murong, and Ong, Dennis
- Abstract
The implementation of technology in healthcare has revolutionized patient-centered decision making by providing contextualized information about a patient's healthcare journey, leading to increased efficiency (Keyworth et al. in BMC Med Inform Decis Mak 18:93, 2018, https://doi.org/10.1186/s12911-018-0661-3). Artificial intelligence has been integrated within Electronic Health Records (EHR) to prompt screenings or diagnostic tests based on a patient's holistic health profile. While larger hospitals have already widely adopted these technologies, free clinics hold lower utilization of these advanced capability EHRs. The patient population at a free clinic faces a multitude of factors that limits their access to comprehensive care, thus requiring necessary efforts and measures to close the gap in healthcare disparities. Emerging Artificial Intelligence (AI) technology, such as OpenAI's ChatGPT, GPT-4, and other large language models (LLMs) have remarkable potential to improve patient care outcomes, promote health equity, and enhance comprehensive and holistic care in resource-limited settings. This paper aims to identify areas in which integrating these LLM AI advancements into free clinics operations can optimize and streamline healthcare delivery to underserved patient populations. This paper also identifies areas of improvements in GPT that are necessary to deliver those services. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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3. Remote enrollment into a telehealth-delivering patient portal: Barriers faced in an urban population during the COVID-19 pandemic
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Christopher Ferrer, Charles Sanky, Matthew A. Weissman, Jordan A. Francke, Tristan Grogan, Dennis M. Bienstock, Danielle L. Tepper, Tania P. Chen, and Phillip Groden
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education.field_of_study ,Telemedicine ,Original Paper ,Coronavirus disease 2019 (COVID-19) ,business.industry ,Population ,education ,Biomedical Engineering ,Patient portal ,COVID-19 ,Bioengineering ,Telehealth ,medicine.disease ,Applied Microbiology and Biotechnology ,Healthcare delivery ,Male patient ,Pandemic ,medicine ,Medical emergency ,Barriers to Care ,business ,health care economics and organizations ,Biotechnology - Abstract
Telehealth drastically reduces the time burden of appointments and increases access to care for homebound patients. During the COVID-19 pandemic, many outpatient practices closed, requiring an expansion of telemedicine capabilities. However, a significant number of patients remain unconnected to telehealth-capable patient portals. Currently, no literature exists on the success of and barriers to remote enrollment in telehealth patient portals. From March 26 to May 8, 2020, a total of 324 patients were discharged from Mount Sinai Beth Israel (MSBI), a teaching hospital in New York City. Study volunteers attempted to contact and enroll patients in the MyChart patient portal to allow the completion of a post-discharge video visit. If patients were unable to enroll, barriers were documented and coded for themes. Of the 324 patients discharged from MSBI during the study period, 277 (85%) were not yet enrolled in MyChart. Volunteers successfully contacted 136 patients (49% of those eligible), and 39 (14%) were successfully enrolled. Inability to contact patients was the most significant barrier. For those successfully contacted but not enrolled, the most frequent barrier was becoming lost to follow-up (29% of those contacted), followed by lack of interest in remote appointments (21%) and patient technological limitations (9%). Male patients, and those aged 40–59, were significantly less likely to successfully enroll compared to other patients. Telehealth is critical for healthcare delivery. Remote enrollment in a telemedicine-capable patient portal is feasible, yet underperforms compared to reported in-person enrollment rates. Health systems can improve telehealth infrastructure by incorporating patient portal enrollment into in-person workflows, educating on the importance of telehealth, and devising workarounds for technological barriers.
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- 2021
4. Brachytherapy utilization for cervical cancer in Western United States border counties: seeking to understand referral patterns for outcome improvement
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Christine H. Feng, Corinne McDaniels-Davidson, Maria Elena Martinez, Jesse Nodora, Arno J. Mundt, and Jyoti S. Mayadev
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Original Paper ,barriers to care ,Oncology ,underutilization ,cervical cancer ,Clinical Research ,brachytherapy ,referral pattern ,Radiology, Nuclear Medicine and imaging ,survey ,Cancer - Abstract
Purpose Standard of care for definitive treatment of locally advanced cervical cancer (LACC) is concurrent chemoradiation followed by a brachytherapy boost. Only 55.8% of women in the United States receive brachytherapy, with even lower proportions in San Diego and Imperial Counties. The purpose of this study was to investigate brachytherapy practice and referral patterns in Western United States border region. Material and methods A short survey was sent to 28 radiation oncologists in San Diego and Imperial Counties, who treat patients with gynecologic malignancies. Descriptive statistics were used for analysis. Results Seventeen (61%) physicians responded to the survey. All physicians reported some training in cervical cancer brachytherapy during residency, with median 6 months. Only two physicians reported personally treating all cervical cancer patients with brachytherapy; however, 92% of remaining physicians would recommend brachytherapy for patients if given time and access. The most common reason for referral (78%) was patients deemed to require hybrid or interstitial brachytherapy implants. Barriers to referral included patients’ preference, insurance status, their resources, or logistics. No changes were reported for brachytherapy practices during the COVID-19 pandemic, except the addition of pre-procedural testing for SARS-CoV-2. Ninety-two percent of physicians identified inadequate maintenance of skills as a barrier to performing brachytherapy, but 77% were not interested in additional training. External beam radiation therapy boosts were rarely recommended in case scenarios describing potentially curable patients. Conclusions The importance of brachytherapy is widely recognized for conferring a survival benefit, but barriers to implementation include inadequate training or maintenance of skills, and larger systematic issues related to reimbursement policy, social support, and financial hardship. As most established providers were uninterested in additional brachytherapy training, future approaches to improve patients’ access should be multidimensional and reflect the value of brachytherapy in definitive treatment of patients with LACC.
- Published
- 2021
5. Barriers in care pathways and unmet mental health needs in LGBTIQ + communities.
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Silveri, Giada, Schimmenti, Simone, Prina, Eleonora, Gios, Lorenzo, Mirandola, Massimo, Converti, Manlio, Fiorillo, Andrea, Pinna, Federica, Ventriglio, Antonio, Galeazzi, Gian Maria, Sherriff, Nigel, Zeeman, Laetitia, Amaddeo, Francesco, Somaini, Giulia, Paribello, Pasquale, Giallanella, Daniela, Gaggiano, Costanza, Marchi, Mattia, Arcolin, Elisa, and Fiore, Gianluca
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ONLINE information services ,PSYCHOLOGY information storage & retrieval systems ,HEALTH services accessibility ,MEDICAL information storage & retrieval systems ,SUBSTANCE abuse ,PSYCHOLOGY of LGBTQ+ people ,SYSTEMATIC reviews ,COMMUNITIES ,MENTAL health ,SOCIAL stigma ,DESCRIPTIVE statistics ,MEDLINE ,THEMATIC analysis ,MEDICAL needs assessment - Abstract
Lesbian, gay, bisexual, transgender, intersex, queer people and minority gender identities and sexualities (LGBTIQ+) are often stigmatized and experience discrimination in health care settings, leading to poorer mental health outcomes and unmet needs compared to heterosexual and cisgendered peers. It is thus imperative that mental health providers consider and address structural challenges in order to reduce mental health inequalities of this population. This narrative review assessed the barriers that may prevent access to care and the pathways for care in LGBTIQ + communities. PubMed, PsycInfo, Embase, and Scopus were searched for papers published between December 2021 and February 2022. A total of 107 papers were included with studies reflecting five themes: (1) Unmet mental health needs; (2) Young people; (3) Substance abuse and addiction; (4) Barriers and pathways to care; and (5) Interventions. Findings demonstrate that LGBTIQ + people experience stigmatization and higher rates of substance misuse and mental ill health, which may lead to barriers in accessing health care services, and fewer tailored interventions being provided. These findings have implications for policy, health care screening, and how specialist services are structured. Substantial gaps in the evidence-base exist, and future research should examine how mental health care providers can challenge social issues that maintain discriminatory and stigmatizing practices, and support LGBTIQ + individuals to sustain their resilience. [ABSTRACT FROM AUTHOR]
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- 2022
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6. Dialectics, power dynamics, and undercurrents of meaning: using psychotherapeutic strategies in primary care with trans and gender-diverse clients.
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Waldron, Elizabeth, Solonsch, Lucy, and Stone, Louise
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MEDICAL quality control ,GENDER affirming care ,HEALTH services accessibility ,MINORITIES ,GENDER-nonconforming people ,MENTAL health ,PRIMARY health care ,SEX distribution ,DIALECTICAL behavior therapy ,AUSTRALIANS ,HEALTH equity ,NEEDS assessment ,PSYCHOTHERAPY - Abstract
Trans and gender-diverse individuals experience poor mental health, and face significant barriers when trying to access appropriate mental health care. Most seek treatment from mainstream primary care services, who have an ethical duty to provide care to all. Primary care practitioners can ameliorate traumatic harms by identifying helpful strategies and avoiding inappropriate or harmful strategies. However, there is limited robust, culturally sensitive evidence informing clinicians about the appropriateness and efficacy of psychological interventions for trans and gender-diverse clients. This forum article argues that the epistemological and ontological frameworks underlying psychotherapies can impact the therapeutic relationship, and are therefore important factors to consider in primary care practice with trans and gender-diverse clients. Our paper synthesises selected psychotherapies into four clusters. Each cluster is accompanied by discussion of the potential or demonstrated benefits and limitations of the underlying framework, in the context of primary care with trans and gender-diverse clients. We also explore power dynamics in therapeutic relationships with trans and gender-diverse clients, and the challenges these factors pose to developing a shared understanding of the client's needs and preferences. The article concludes with some practical considerations for managing these issues in primary care. Trans and gender-diverse individuals tend to experience poor mental health, often exacerbated by culturally unsafe services in primary care. This paper offers four key frameworks for understanding and anticipating the potential benefits and harms of different psychological therapies when caring for trans and gender-diverse clients. The article concludes with recommendations for implementing the frameworks in practice, and discussion of the scope for involving peer workers in multidisciplinary care teams. [ABSTRACT FROM AUTHOR]
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- 2023
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7. Inequities in periodontal disease prevalence, prevention, and management.
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Mills, Arden and Levin, Liran
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PERIODONTAL disease treatment ,PERIODONTAL disease prevention ,WELL-being ,HEALTH services accessibility ,HOSPITAL emergency services ,ORAL health ,PERIODONTAL disease ,DENTAL care ,MEDICAL care ,TELEDENTISTRY ,HEALTH literacy ,DENTISTRY ,INSURANCE - Abstract
Periodontal disease is highly prevalent and contributes to the global burden of chronic diseases. Inherent and institutional inequities contribute to the prevalence of periodontal disease by facilitating barriers to accessing dental care and maintaining good oral health. The aim of this paper is to review the inequities experienced in the dental field in relation to periodontal disease. Barriers to dental care are experienced in many countries globally. They include cost, insurance coverage, geography, physician availability, and oral health literacy. These barriers influence the frequency of dental visits, oral hygiene, and risk behaviors of individuals which impact an individual's oral health status. Most often, postponed or improper dental care leads to worsened dental conditions that are more costly and detrimental to one's wellbeing. These dental conditions, like periodontitis, fall back on the health care system for treatment through emergency department resource use and comorbidities that can develop or be worsened as a result. To reduce the global burden of chronic disease and the costs of treatments for preventable conditions, and increase oral health, corrective actions are required. Such actions may include the use of teledentistry, greater oral health education, emergency departments staffing dental practitioners, subsidies for rural or remote dental practitioners, and policy changes for universal coverage of basic dental needs. [ABSTRACT FROM AUTHOR]
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- 2022
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8. Community engagement to inform development of strategies to improve referral for hypertension: perspectives of patients, providers and local community members in western Kenya.
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Naanyu, Violet, Njuguna, Benson, Koros, Hillary, Andesia, Josephine, Kamano, Jemima, Mercer, Tim, Bloomfield, Gerald, Pastakia, Sonak, Vedanthan, Rajesh, and Akwanalo, Constantine
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MEDICAL personnel ,PATIENTS' attitudes ,HEALTH information technology ,HYPERTENSION ,HEALTH facilities - Abstract
Background: Hypertension is the leading cause of death and disability. Clinical care for patients with hypertension in Kenya leverages referral networks to provide basic and specialized healthcare services. However, referrals are characterized by non-adherence and delays in completion. An integrated health information technology (HIT) and peer-based support strategy to improve adherence to referrals and blood pressure control was proposed. A formative assessment gathered perspectives on barriers to referral completion and garnered thoughts on the proposed intervention. Methods: We conducted a qualitative study in Kitale, Webuye, Kocholya, Turbo, Mosoriot and Burnt Forest areas of Western Kenya. We utilized the PRECEDE-PROCEED framework to understand the behavioral, environmental and ecological factors that would influence uptake and success of our intervention. We conducted four mabaraza (customary heterogenous community assemblies), eighteen key informant interviews, and twelve focus group discussions among clinicians, patients and community members. The data obtained was audio recorded alongside field note taking. Audio recordings were transcribed and translated for onward coding and thematic analysis using NVivo 12. Results: Specific supply-side and demand-side barriers influenced completion of referral for hypertension. Key demand-side barriers included lack of money for care and inadequate referral knowledge. On the supply-side, long distance to health facilities, low availability of services, unaffordable services, and poor referral management were reported. All participants felt that the proposed strategies could improve delivery of care and expressed much enthusiasm for them. Participants appreciated benefits of the peer component, saying it would motivate positive patient behavior, and provide health education, psychosocial support, and assistance in navigating care. The HIT component was seen as reducing paper work, easing communication between providers, and facilitating tracking of patient information. Participants also shared concerns that could influence implementation of the two strategies including consent, confidentiality, and reduction in patient-provider interaction. Conclusions: Appreciation of local realities and patients' experiences is critical to development and implementation of sustainable strategies to improve effectiveness of hypertension referral networks. Incorporating concerns from patients, health care workers, and local leaders facilitates adaptation of interventions to respond to real needs. This approach is ethical and also allows research teams to harness benefits of participatory community-involved research. Trial registration: Clinicaltrials.gov, NCT03543787, Registered June 1, 2018. https://clinicaltrials.gov/ct2/show/NCT03543787 [ABSTRACT FROM AUTHOR]
- Published
- 2023
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9. Out-of-pocket payments: impacts on healthcare decision-making and system and individual level measures to minimise the burden.
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Neil, Amanda L.
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HEALTH services accessibility ,MEDICAL care costs ,PATIENT-centered care ,DECISION making ,SAFETY-net health care providers ,MENTAL health services ,MEDICARE - Abstract
Out-of-pocket healthcare payments are a concern for all, particularly those least able to afford them, a situation only being exacerbated by the current cost-of-living crisis. This article aims to provide an overview of out-of-pocket payments and their impacts on decision-making: whether, or not to delay care or seek care at all. The impact of average out-of-pocket payments on demand for mental healthcare services is provided as a specific example. The available data indicate a positive linear relationship between the average out-of-pocket payments for Medicare services by type of provider, and the proportion of patients who decide not to obtain care from a given type provider. This article also poses that current safety net processes are not consumer centric, the Pharmaceutical Benefits Scheme (PBS) Safety Net particularly so, and that change is required. It is recommended that a consumer-centric approach should be adopted with everyone listed on a Medicare card automatically included in the assessment of the Medicare and PBS Safety Nets and for the PBS Safety Net to be automatically assessed through Services Australia. Links to websites are provided to support individual decision-making and registering for available safety nets. Finally, supply side considerations and their implications for market equilibrium and the economy are briefly overviewed. What is known about the topic? Out-of-pocket payments can have significant impacts on healthcare choices; whether or not to delay or seek care. What does this paper add? This article provides an overview of out-of-pocket payments and their impacts on decision-making with a focus on Medicare-subsidised mental health services. Current government measures to contain out-of-pocket payments are overviewed and their limitations highlighted. What are the implications for practitioners? Current Medicare Benefits Schedule and Pharmaceutical Benefits Scheme (PBS) safety nets are not consumer centric, the PBS Safety Net particularly so. Changes should be made to these schemes to further address the burden of out-of-pocket payments. [ABSTRACT FROM AUTHOR]
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- 2023
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10. Subjective experiences, perceptions, and meanings associated with barriers to seeking mental health care among first responders.
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O'Dare, Kellie, Atwell, Leah, King, Erin, Dillard, Dana, Herzog, Joseph, and Rotunda, Robert
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ObjectiveMethodsResultsDiscussionSeeking mental health services can be challenging for first responders due to various barriers that impede access to care. The objective of this study was to gain a deeper understanding of the subjective experiences, perceptions, and meanings associated with seeking services among first responders.The survey-design instrument consisted of questions regarding stress, psychological health, health-related difficulties, and potential barriers to treatment that first responders may experience. The questions were asked in multiple formats including multiple choice, select all that apply, and one open-ended question. This paper includes responses from the optional open-ended question (
n = 78). Researchers conducted data analysis using ATLAS.ti and the analysis followed a thematic approach.Three (3) themes and several sub-themes were identified. First responders provided diverse explanations for their reluctance to seek care, such as organisational and leadership factors, stigma related to mental health, concerns about being red-flagged, limited access to care, and the financial implications of treatment. A prevailing sentiment was a lack of trust in the mental health field.By giving voice to the lived experiences of first responders, this study can inform the development of targeted interventions and support programs that address their specific needs and enhance overall well-being of first responders. [ABSTRACT FROM AUTHOR]- Published
- 2024
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11. Impact of Patient Navigation on Population-Based Breast Screening: a Systematic Review and Meta-analysis of Randomized Clinical Trials.
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Tian, Lu, Huang, Lei, Liu, Jie, Li, Xia, Ajmal, Aisha, Ajmal, Maryam, Yao, Yunjin, and Tian, Li
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MEDICAL screening ,CLINICAL trials ,EARLY detection of cancer ,RANDOMIZED controlled trials ,BREAST exams ,NAVIGATION - Abstract
Background: Unsatisfactory cancer screening results are often associated with poor prognosis. This study synthesized the literatures addressing the impact of patient navigation (PN) interventions on population-based breast cancer screening promotion to identify characteristics of the model for addressing breast cancer disparities. Methods: We searched Pubmed, Embase, Web of Science, and the Cochrane Central Registry from inception to 31 December 2020 for randomized controlled trials (PROSPERO: CRD42021246890). We double blindly abstracted data and assessed study quality. We assessed screening completion rates and diagnostic resolution using random-effects models between those receiving navigation and controls. Results: Of 236 abstracts identified, 15 studies met inclusion criteria. Nine of the papers evaluated the impact of PN on breast screening, while the other six were on the resolution of abnormal screening results. Compared to the non-PN group, PN improved screening completion (OR: 2.0, 95% CI: 1.4–2.8]) and shortened the time to diagnosis (WMD: − 9.90 days, 95% CI: − 19.09 to − 0.71). Conclusions: Patient navigation improves breast cancer screening rates but does not improve resolution of abnormal tests. [ABSTRACT FROM AUTHOR]
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- 2022
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12. Peer navigators' role in supporting people living with human immunodeficiency virus in Australia: Qualitative exploration of general practitioners' perspectives.
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Khalpey, Zoyah, Fitzgerald, Lisa, Howard, Chris, Istiko, Satrio Nindyo, Dean, Judith, and Mutch, Allyson
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HIV infections & psychology ,AFFINITY groups ,OCCUPATIONAL roles ,HIV infections ,PRIVACY ,SOCIAL support ,MEDICINE information services ,HEALTH services accessibility ,PROFESSIONS ,WORK ,RESEARCH methodology ,SELF-management (Psychology) ,PATIENT-centered care ,PHYSICIANS' attitudes ,INTERVIEWING ,FEAR ,SOCIAL stigma ,COMMUNITY health services ,PRIMARY health care ,QUALITATIVE research ,HEALTH information services ,EXPERIENTIAL learning ,RESEARCH funding ,DESCRIPTIVE statistics ,SOUND recordings ,MEDICAL ethics ,COMMUNICATION ,PATIENT education ,THEMATIC analysis ,PSYCHOLOGY of HIV-positive persons ,SOCIAL case work - Abstract
The redefining of human immunodeficiency virus (HIV) from an acute disease to a manageable chronic illness has reshaped the focus of care, emphasising clinical outcomes and sidelining the complex social barriers many people living with HIV (PLHIV) still face. This parallels changes in the location of HIV care in Australia, with many PLHIV seeking care from private general practitioners whose ability to address complex social issues is constrained by limitations of time and resources. In response, peer navigation has emerged as a model of care implemented by some HIV‐based community health organisations seeking to support PLHIV's biomedical and psychosocial needs. However, there is limited understanding of how peer navigation operates in community settings or of the way these programmes integrate with primary care. This paper is the first to explore peer navigation from the perspective of general practitioners (GPs), with experience in treating PLHIV, to understand the role they see for peer navigators (PNs) in supporting PLHIV. Semi‐structured in‐depth interviews were conducted with six GPs (11.5% of specialty HIV GPs in Queensland, Australia) to examine their views and experiences of peer navigation in the context of HIV care. GPs highlighted the complexities of care for PLHIV and the need for additional resources and supports for psychosocial care. GPs valued peer navigation as part of a patient support network and bridge to health and social care systems. PNs normalised HIV, alleviating fear and stigma, educating and translating clinical information for patients. However, a key challenge was the absence of direct communication pathways with PNs. Peer navigation has clear potential in supporting the care of PLHIV, to alleviate constraints in GP settings and expand HIV care beyond the clinic. [ABSTRACT FROM AUTHOR]
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- 2022
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13. Development of a patient-oriented navigation model for patients with lung cancer and stroke in Germany.
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Gödde, Kathrin, Fügemann, Hella, Desch, Anke, Stumm, Judith, Schindel, Daniel, Rieckmann, Nina, Meisel, Andreas, Müller-Nordhorn, Jacqueline, Goerling, Ute, and Holmberg, Christine
- Abstract
Background: The concept of patient navigation was first established in the USA to support vulnerable patient groups in receiving timely and comprehensive access to cancer care. It has recently gained increasing interest in Germany to support patients with chronic diseases in a fragmented healthcare system. The aim of this paper is to present the development of such a model adapted to the German context based on the results of mixed-methods studies investigating the need for and barriers to patient-oriented care.Methods: In a process adapted from Delphi rounds, we conducted regular structured workshops with investigators of the project to discuss results of their studies and identify content and structure of the model based on the data. Workshop discussions were structured along seven core components of a navigation model including target patient groups, navigator tasks, occupational background and education of navigators, and patient-navigator interaction mode.Results: Using an approach based on empirical data of current care practices with special focus on patients' perspectives, we developed a patient-oriented navigation model for patients who have experienced stroke and lung cancer in the German healthcare context. Patients without personal social support were viewed as struggling most with the healthcare system, as well as multimorbid and elderly patients. Navigators should serve as a longer-term contact person with a flexible contact mode and timing based on the individual situation and preferences of patients. Navigator tasks include the provision of administrative and organizational support as well as referral and guidance to available resources and beneficial health programs with special forms of knowledge. Implementation of the navigator should be flexibly located to ensure a reliable outreach to vulnerable patients for first contact in settings like specialized in-patient and out-patient settings, while navigation itself focuses on care coordination in the out-patient setting.Conclusion: Flexibility of navigator tasks needed to be a core characteristic of a navigation model to be perceived as supportive from patients' perspectives. In a subsequent feasibility study, an intervention based on the model will be evaluated according to its acceptance, demand, and practicality. [ABSTRACT FROM AUTHOR]- Published
- 2022
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14. Barriers to Care among Adults with Chronic Liver Disease in the United States
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Wong, Carrie
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Public health ,Health sciences ,Epidemiology ,Barriers to care ,Chronic liver disease ,Health care access - Abstract
Chronic liver disease is increasingly prevalent with high rates of morbidity and mortality, yet it receives less attention than other similar chronic diseases such as cardiovascular disease and chronic obstructive pulmonary disease. Barriers to timely medical care may preclude diagnosis and management and thus, exacerbate potentially avoidable morbidity and mortality for persons with chronic liver disease. This dissertation explored the extent of health care barriers among adults with chronic liver disease compared to other chronic conditions and identified latent classes derived from different health care barriers to phenotype those at highest risk for recurrent acute care use within the adult population with chronic liver disease in the United States.The first paper, “Evaluation of the Extent of Health Care Barriers among Adults with Chronic Liver Disease vs. Other Chronic Diseases in the United States,” compared estimates of any and the number of health care barriers and the association of recurrent acute care use by prevalence of barriers to care among adults with chronic liver disease versus those with cardiovascular disease and/or chronic obstructive pulmonary disease. Using a multivariable hurdle model, the study found that adults with chronic liver disease were significantly more likely to have any barriers to care (incident rate ratio, 1.12), but such a significant difference did not exist for the frequency of health care barriers. There was a dose-dependent relationship between likelihood of recurrent acute care use and prevalence of barriers to care. Inclusion of chronic liver disease as a high-risk group in future health policies that aim to improve access to care may help reduce challenges that persons with chronic liver disease encounter when seeking timely medical care and potentially reduce preventable acute care use.The second paper, “Identification of Hidden Phenotypes Using Self-Reported Barriers to Care to Predict Risk of Recurrent Hospitalization or Emergency Department Visits among Adults with Chronic Liver Disease in the United States,” identified latent classes within the adult population with chronic liver disease using self-reported barriers to care and assessed each phenotype’s likelihood of recurrent acute care use. The best fitting model to the data included four latent classes or phenotypes: minimal barriers, unaffordability, care delays, and inability to establish care. The study used a multivariable multinomial logistic regression model to identify likelihood of class membership. The unaffordability phenotype was significantly associated with younger age, fair or poor health, functional limitation due to health, and uninsurance. Membership in the care delays class was significantly associated with Hispanics, fair or poor health, and functional limitation due to health. The inability to establish care phenotype was significantly associated with younger age, female sex, functional limitation due to health, and non-private insurance. The inability to establish care group had the highest odds of recurrent acute care use, followed by the care delays and unaffordability groups. An emphasis on risk stratification using health care barriers can potentially help improve interventions that aim to reduce recurrent acute care use among adults with chronic liver disease, particularly for those who struggle to establish care.In summary, both chapters highlighted the prevalence of health care barriers and its association with recurrent acute care use for adults with chronic liver disease. Findings from the second chapter showed the consistent disparity in health care barriers for adults with chronic liver disease versus other chronic diseases and aimed to capture the attention of health policy makers to include chronic liver disease in future iterations of existing health policies or new programs that strive to improve outpatient care access to reduce preventable hospitalizations. The third chapter identified novel phenotypes of persons with chronic liver disease with different associated sociodemographic, health, and insurance characteristics and risks of recurrent acute care use. The third chapter also introduced the concept of using self-reported barriers to care as a way to risk stratify and allocate resources to the most vulnerable individuals with chronic liver disease. Both chapters intend to help improve health care access, reduce preventable acute care use, and potentially improve the morbidity and mortality trends among adults with chronic liver disease in the United States.
- Published
- 2023
15. Characterizing barriers to care in migraine: multicountry results from the Chronic Migraine Epidemiology and Outcomes – International (CaMEO-I) study.
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Lanteri-Minet, Michel, Leroux, Elizabeth, Katsarava, Zaza, Lipton, Richard B., Sakai, Fumihiko, Matharu, Manjit, Fanning, Kristina, Manack Adams, Aubrey, Sommer, Katherine, Seminerio, Michael, and Buse, Dawn C.
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MIGRAINE diagnosis ,MEDICAL care use ,HEALTH services accessibility ,RESEARCH funding ,DESCRIPTIVE statistics ,CHI-squared test ,POPULATION geography ,PROFESSIONS ,PHYSICIANS ,MEDICAL needs assessment ,MIGRAINE ,MEDICAL referrals - Abstract
Objective: To assess rates of traversing barriers to care to access optimal clinical outcomes in people with migraine internationally. Background: People in need of medical care for migraine should consult a health care professional knowledgeable in migraine management, obtain an accurate diagnosis, and receive an individualized treatment plan, which includes scientific society guideline-recommended treatments where appropriate. Methods: The Chronic Migraine Epidemiology and Outcomes-International (CaMEO-I) Study was a cross-sectional, web-based survey conducted from July 2021 through March 2022 in Canada, France, Germany, Japan, the United Kingdom, and the United States (US). Respondents who met modified International Classification of Headache Disorders, 3rd edition, criteria for migraine and had Migraine Disability Assessment Scale (MIDAS) scores of ≥ 6 (i.e., mild, moderate, or severe disability) were deemed to need medical care and were included in this analysis. Minimally effective treatment required that participants were currently consulting a health care professional for headache (barrier 1), reported an accurate diagnosis (barrier 2), and reported use of minimally appropriate pharmacologic treatment (barrier 3; based on American Headache Society 2021 Consensus Statement recommendations). Proportions of respondents who successfully traversed each barrier were calculated, and chi-square tests were used to assess overall difference among countries. Results: Among 14,492 respondents with migraine, 8,330 had MIDAS scores of ≥ 6, were deemed in need of medical care, and were included in this analysis. Current headache consultation was reported by 35.1% (2926/8330) of respondents. Compared with the US, consultation rates and diagnosis rates were statistically significantly lower in all other countries except France where they were statistically significantly higher. Total appropriate treatment rates were also statistically significantly lower in all other countries compared with the US except France, which did not differ from the US. All 3 barriers were traversed by only 11.5% (955/8330) of respondents, with differences among countries (P < 0.001). Conclusions: Of people with migraine in need of medical care for migraine, less than 15% traverse all 3 barriers to care. Although rates of consultation, diagnosis, and treatment differed among countries, improvements are needed in all countries studied to reduce the global burden of migraine. Trial registration: NA. [ABSTRACT FROM AUTHOR]
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- 2024
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16. A Qualitative Investigation into the Trauma Exhibited by First Responders Impacted by the Opioid Epidemic.
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Nicholson, Thalia P., Blazer, Erin C., Hymes, Aaron S., and Ginley, Meredith K.
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This qualitative study aimed to capture the lived experiences of first responders (FRs) combatting the opioid epidemic in an effort to better understand how the increase in opioids, opioid-related harm, and opioid-related death has affected the FR profession. FRs (N = 30) from Tennessee partook in semi-structured interviews investigating the impact of responding to opioid-related incidents. Using a phenomenological approach, three response themes emerged including (1) opioid epidemic burden on FR mental health, (2) variable availability and effectiveness of resources, and (3) identified roles of FRs in reducing the impact of the epidemic. The findings indicate that FRs are experiencing posttraumatic stress and secondary traumatic stress symptoms due to a shift in their duties, as well as repeated exposures to the adverse impacts of opioid use. This study finds a deficit in resources and support to combat the mental health repercussions FRs have experienced due to the epidemic. Given that FRs are often directly involved in preventing opioid-related deaths, ensuring that they are well resourced is an essential component of harm reduction and will ultimately augment care for individuals experiencing opioid-related harm. [ABSTRACT FROM AUTHOR]
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- 2024
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17. Children's Opportunities and Constraints in European Parent Care Over Time: A Within-Family Approach.
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Vergauwen, Jorik
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ELDER care ,SIBLINGS ,RESEARCH funding ,PARENT-child relationships ,QUESTIONNAIRES ,POPULATION geography ,PSYCHOLOGY of caregivers ,PSYCHOSOCIAL factors ,EMPLOYMENT ,TIME ,REGRESSION analysis ,INTERGENERATIONAL relations ,CHILDREN - Abstract
The role of children's caregiving has received substantial attention in studies on care in old age. Previous research shows that children's care provision is strongly intertwined with both their individual and siblings' situation regarding employment and geographic parent-child distance. This study uses data from six waves of the Survey of Health, Ageing and Retirement in Europe (SHARE), taking a within-family approach, to examine how caregiving is (re-)distributed between siblings over time. The provision of continuous parent care is observed more frequent and volatile in European countries with a family-based care system. The results from family fixed-effects regression models demonstrate that children working less than siblings persist in caregiving more. Living closest to parents facilitates children to keep up care efforts, while changing to living closest enhances the start of parent care. This study suggests that geographic distance is vital in the long-term organization of parent care between siblings. [ABSTRACT FROM AUTHOR]
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- 2024
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18. Obstacles to Accepting Care: Understanding Why Obstetric Patients Leave against Medical Advice
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Lu, Connie F., Matovina, Chloe N., Premkumar, Ashish, and Watson, Katie
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- 2024
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19. Barriers to Mental Health Care Transition for Youth and Young Adults with Intellectual and Developmental Disabilities and Co-occurring Mental Health Conditions: Stakeholders’ Perspectives
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Mirzaian, Christine B., Deavenport-Saman, Alexis, Hudson, Sharon M., and Betz, Cecily L.
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- 2024
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20. Barriers to care and treatment experiences among individuals with postpartum psychosis
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Kobylski, Lauren A., Arakelian, Miranda H., Freeman, Marlene P., Gaw, Margaret L., Cohen, Lee S., and Vanderkruik, Rachel
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- 2024
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21. Optimizing Patient Engagement in Treatment for Opioid Use Disorder: Primary Care Team Perspectives on Influencing Factors
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Austin, Elizabeth J., Chen, Jessica, Soyer, Elena, Idrisov, Bulat, Briggs, Elsa S., Ferro, Lori, Saxon, Andrew J., Fortney, John C., Curran, Geoffrey M., Moghimi, Yavar, Blanchard, Brittany E., Williams, Emily C., Ratzliff, Anna D., Ruiz, Monica S., and Koch, Ulrich
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- 2024
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22. Barriers and Facilitators to High Emergency Department Use Among Patients with Mental Disorders: A Qualitative Investigation
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Fleury, Marie-Josée, Imboua, Armelle, and Grenier, Guy
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- 2024
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23. Barriers to Mental Health Care in US Military Veterans
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Lewis, Connor, Fischer, Ian C., Tsai, Jack, Harpaz-Rotem, Ilan, and Pietrzak, Robert H.
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- 2024
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24. Mental Health Service Use, Barriers, and Service Preferences During COVID-19 among Low-Income Housing and Market-Rate Housing Residents of Harlem in New York City
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Ngo, Victoria K., Vu, Thinh T., Punter, Malcolm A., Levine, Deborah, Borrell, Luisa N., and Mateu-Gelabert, Pedro
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- 2024
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- View/download PDF
25. Caregiver-reported barriers to care for children and adults with Williams Syndrome
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Barnhardt, Elizabeth W., Martens, Marilee, Andridge, Rebecca, and Walton, Jennifer
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- 2024
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26. Gender differences in structural and attitudinal barriers to mental healthcare in UK Armed Forces personnel and veterans with self-reported mental health problems
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Trompeter, Nora, Rafferty, Laura, Dyball, Daniel, McKenzie, Amber, Greenberg, Neil, Fear, Nicola T., and Stevelink, Sharon A. M.
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- 2024
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27. Βarriers and Gaps to Medical Care for Transgender Individuals: A TRANSCARE Scoping Review with a Focus on Greece.
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Anastasaki, Marilena, Angelaki, Agapi, Paganis, Philippos, Christidi, Elena Olga, Papathanasiou, Nancy, Stoupa, Eleni Panagiota, Karamagioli, Evika, Pikoulis, Emmanouil, and Lionis, Christos
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HEALTH services accessibility ,RESEARCH funding ,GENDER affirming care ,SYSTEMATIC reviews ,MEDLINE ,INFORMATION needs ,LITERATURE reviews ,ONLINE information services ,NEEDS assessment ,QUALITY assurance - Abstract
Trans people face substantial barriers to care worldwide. In Greece, limited evidence regarding trans health and actions to improve accessibility in healthcare services is available. This study aims to identify barriers to care for transgender populations in order to discuss the potential gaps in healthcare providers' training in this direction. A scoping review was conducted in PubMed. Study eligibility criteria included: (a) reporting on at least one barrier to care for trans individuals or at least one educational need for healthcare providers; (b) free full text availability; and (c) publishing from 2015 and afterwards. Discrepancies in study inclusion were discussed between the research team until consensus was reached. Out of 560 identified references, 69 were included in this study, with only three reporting empirical research from Greece. Several individual-, interpersonal-, and institutional-level barriers to healthcare for trans individuals were identified. These included discriminatory treatment by healthcare providers, a lack of knowledgeable providers trained on trans-specific healthcare issues, lack of trusted and safe healthcare environments, health coverage-related issues, and healthcare systems that do not take into account particular transgender health issues during care provision. Improving access to care for transgender people is a multidimensional issue that should be addressed at the societal, healthcare, and research levels. Actions for future professional education initiatives should focus on respecting transgender identity, protecting confidentiality, creating trusted provider–patient relationships, and providing sufficient competency on trans-specific healthcare issues. [ABSTRACT FROM AUTHOR]
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- 2024
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28. Perceptions of provider awareness of traditional and cultural treatments among Indigenous people who use unregulated drugs in Vancouver, Canada.
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Norton, Alexa, Homayra, Fahmida, Defriend, Courtney, Barker, Brittany, Meilleur, Louise, Hayashi, Kanna, and Nosyk, Bohdan
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INDIGENOUS peoples ,CULTURAL awareness ,MULTIPLE regression analysis ,DRUG utilization ,HEALTH services accessibility - Abstract
Introduction: Indigenous people who use unregulated drugs (IPWUD) face significant barriers to care, including sparse availability of culturally safe health services. Integrating Indigenous traditional and cultural treatments (TCT) into health service delivery is one way to enhance culturally safe care. In a Canadian setting that implemented cultural safety reforms, we sought to examine the prevalence and correlates of client perceptions of primary care provider awareness of TCT among IPWUD. Methods: Data were derived from two prospective cohort studies of PWUD in Vancouver, Canada between December 2017 and March 2020. A generalized linear mixed model with logit-link function was used to identify longitudinal factors associated with perceived provider awareness of TCT. Results: Among a sample of 507 IPWUD who provided 1200 survey responses, a majority (n = 285, 56%) reported their primary care provider was aware of TCT. In multiple regression analyses, involvement in treatment decisions always (Adjusted Odds Ratio [AOR] = 3.6; 95% confidence interval [CI]: 1.6–7.8), involvement in treatment decisions most or some of the time (AOR = 3.3; 95% CI: 1.4–7.7), comfort with provider or clinic (AOR = 2.7; 95% CI: 1.5–5.0), and receiving care from a social support worker (AOR = 1.5; 95% CI: 1.0–2.1) were positively associated with provider awareness of TCT. Conclusion: We found high levels of perceived provider awareness of TCT and other domains of culturally safe care within a cohort of urban IPWUD. However, targeted initiatives that advance culturally safe care are required to improve healthcare and health outcomes for IPWUD, who continue to bear a disproportionate burden of substance use harms. [ABSTRACT FROM AUTHOR]
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- 2024
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29. Exploring barriers to using modern contraceptives and accessing safe abortion care in women who terminated unintended pregnancies in Southern Ethiopia.
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Woldetsadik, Mahlet A., Yoseph, Yeshihareg, and Degu, Mekonnen
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ABORTION statistics ,UNPLANNED pregnancy ,CONTRACEPTION ,ABORTION ,CONTRACEPTIVES ,UNWANTED pregnancy - Abstract
Background: Unsafe abortion is a major medical and public health problem in Ethiopia and contributes significantly to abortion-related morbidity and mortality in the country. We explored women's experiences with modern contraceptives and identified barriers to accessing safe abortion care and other sexual and reproductive health services. Methods: We recruited participants from six health clinics and a public hospital in southern Ethiopia. We conducted one-on-one interviews with 34 women aged 18–49 years who sought abortion care within the past twelve months of the study. Interviews were recorded, transcribed verbatim, translated to English, and imported into Dedoose software. We analysed the data using a directed content analysis. Results: Our findings show prevailing belief among participants that contraceptives caused infertility, abnormalities in subsequent pregnancies, and other side effects. Some of the women suggested that medical or unsafe abortions were a better alternative to using modern contraceptives for terminating unplanned pregnancies. Barriers to accessing safe abortion care included costs of services, lack of privacy, and fear of judgment from providers. Women who had negative experiences with providers were more likely to seek unsafe abortion the second time around. Conclusion: Providers need to address women's concerns about using modern contraceptives, educate their clients about the best ways to prevent unwanted pregnancies, and provide non-judgemental services. In addition, comprehensive counselling services that include contraceptive counselling should be made available to women before, during, and after abortion care. Finally, providers should strive to be facilitators of, not barriers to, safe abortion care. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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30. "There is no one who helps you with it": experiences of people with long COVID regarding medical care, therapeutic measures, and barriers in the German healthcare system: results of a qualitative study with four focus groups.
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Schmachtenberg, Tim, Königs, Gloria, Dragaqina, Anita, Roder, Sascha, Müller, Frank, Müllenmeister, Christina, Schröder, Dominik, Dopfer-Jablonka, Alexandra, Vieth, Katharina, and El-Sayed, Iman
- Subjects
POST-acute COVID-19 syndrome ,MEDICAL care ,GENERAL practitioners ,MEDICAL personnel ,FOCUS groups ,COVID-19 - Abstract
Background: Many people experience long-term symptoms such as fatigue, cognitive problems, or shortness of breath after an acute infection with COVID-19. This emerging syndrome, known as long COVID, is new and complex in many aspects. This study aims to collect the experiences of people with long COVID with ambulatory healthcare structures. Methods: Four focus groups were conducted with a total of 23 adults with long COVID in June and July 2022. These discussions were audio-recorded, subsequently transcribed, and analyzed using the qualitative content analysis of Mayring and Kuckartz. Results: Fourteen out of 19 participants who had a primary care encounter regarding their long COVID symptoms did not perceive it as helpful. Many respondents reported that their general practitioners did not take their long COVID symptoms seriously and did not refer them to specialists or made therapeutic recommendations. However, some participants reported that they were prescribed non-pharmaceutical therapies (e.g., group meetings supported by psychotherapists, occupational therapy, etc.) that improved their condition. 14 of 23 respondents perceived care barriers such as providers' lack of awareness of long COVID, poor access to specialists, a lack of specialized care (e.g., long COVID clinics), or high bureaucratic hurdles for specific healthcare services. To improve medical care, participants suggested campaigns to raise awareness of long COVID among healthcare providers and the general population, increase research and government investments regarding the development of treatment structures for long COVID, expanding existing therapeutic services, and establishing one-stop shops for integrated specialist healthcare for people with long COVID. Conclusions: Several implications for healthcare professionals and policymakers can be derived from this study: (1) general practitioners should take the symptoms of long COVID seriously, assume a care coordinating role, make referrals, and establish contact with long COVID clinics; (2) care planners should focus on developing interprofessional evidence-based care and treatment approaches for long COVID; (3) existing care structures such as long COVID outpatient clinics should be expanded. The overarching goal must be to develop consistent guidelines for long COVID diagnosis, care, and treatment. Trial registration: The study is registered in the German register for clinical trials (DRKS00026007, first registration on 09/09/2021). [ABSTRACT FROM AUTHOR]
- Published
- 2023
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31. Community engagement to inform development of strategies to improve referral for hypertension: perspectives of patients, providers and local community members in western Kenya
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Violet Naanyu, Benson Njuguna, Hillary Koros, Josephine Andesia, Jemima Kamano, Tim Mercer, Gerald Bloomfield, Sonak Pastakia, Rajesh Vedanthan, and Constantine Akwanalo
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Hypertension ,Referral networks ,Barriers to care ,Health information technology ,Peer support ,LMIC ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background Hypertension is the leading cause of death and disability. Clinical care for patients with hypertension in Kenya leverages referral networks to provide basic and specialized healthcare services. However, referrals are characterized by non-adherence and delays in completion. An integrated health information technology (HIT) and peer-based support strategy to improve adherence to referrals and blood pressure control was proposed. A formative assessment gathered perspectives on barriers to referral completion and garnered thoughts on the proposed intervention. Methods We conducted a qualitative study in Kitale, Webuye, Kocholya, Turbo, Mosoriot and Burnt Forest areas of Western Kenya. We utilized the PRECEDE-PROCEED framework to understand the behavioral, environmental and ecological factors that would influence uptake and success of our intervention. We conducted four mabaraza (customary heterogenous community assemblies), eighteen key informant interviews, and twelve focus group discussions among clinicians, patients and community members. The data obtained was audio recorded alongside field note taking. Audio recordings were transcribed and translated for onward coding and thematic analysis using NVivo 12. Results Specific supply-side and demand-side barriers influenced completion of referral for hypertension. Key demand-side barriers included lack of money for care and inadequate referral knowledge. On the supply-side, long distance to health facilities, low availability of services, unaffordable services, and poor referral management were reported. All participants felt that the proposed strategies could improve delivery of care and expressed much enthusiasm for them. Participants appreciated benefits of the peer component, saying it would motivate positive patient behavior, and provide health education, psychosocial support, and assistance in navigating care. The HIT component was seen as reducing paper work, easing communication between providers, and facilitating tracking of patient information. Participants also shared concerns that could influence implementation of the two strategies including consent, confidentiality, and reduction in patient-provider interaction. Conclusions Appreciation of local realities and patients’ experiences is critical to development and implementation of sustainable strategies to improve effectiveness of hypertension referral networks. Incorporating concerns from patients, health care workers, and local leaders facilitates adaptation of interventions to respond to real needs. This approach is ethical and also allows research teams to harness benefits of participatory community-involved research. Trial registration Clinicaltrials.gov, NCT03543787, Registered June 1, 2018. https://clinicaltrials.gov/ct2/show/NCT03543787
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- 2023
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32. Caring for older adults with cancer in Canada: Views from healthcare providers and cancer care allies in the community
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Li, Hong, Kilgour, Heather, Leung, Bonnie, Cho, Michelle, Pollock, Joy, Culbertson, Stuart, Hedges, Penelope, Mariano, Caroline, and Haase, Kristen R.
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- 2024
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33. Characterizing Persons With HIV/HCV Coinfection Who Remain Untreated for Hepatitis C at Four HIV Clinics in Connecticut (CT): Role of Multiple Overlapping Barriers at the Individual and Clinic System Levels.
- Author
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Zhao, Alice, Wegener, Maximilian, Brooks, Ralph, Mininberg, Lena, Helou, Elie, Maughan, Ashly, and Villanueva, Merceditas
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HEPATITIS C diagnosis ,HIV infections ,HIV-positive persons ,HEALTH services accessibility ,SUBSTANCE abuse ,SOCIAL determinants of health ,FOOD security ,HEPATITIS C ,ANTIVIRAL agents ,RETROSPECTIVE studies ,ACQUISITION of data ,TRANSPORTATION of patients ,PRIMARY health care ,RISK assessment ,MIXED infections ,MEDICAL records ,DESCRIPTIVE statistics ,INFECTIOUS disease transmission ,HEALTH care teams ,SOCIODEMOGRAPHIC factors ,HOUSING ,MENTAL illness ,AFRICAN Americans ,HIV ,DISEASE risk factors - Abstract
Introduction. Direct-acting antiviral medications have made hepatitis C virus (HCV) cure possible for >95% of persons with chronic HCV infection, including those coinfected with HIV. Achieving strategic HCV elimination targets requires an understanding of system, provider, and patient-level barriers to treatment. We explored such barriers among persons with HIV/HCV coinfection who remained untreated for HCV. Methods. Among four primary care HIV clinics in CT with high rates of HCV cure, 25 patients with HIV/HCV coinfection were eligible (no HCV treatment as of March 31, 2021). We conducted retrospective chart reviews of demographics, clinical practice patterns, patient-specific issues such as housing, transportation, food security, and presence of mental health and substance use problems. Results. Among untreated patients, 13 (51%) were female; 17 (68%) were Black; median age was 62 years old. The majority (84%) had injecting drug use (IDU) as HIV transmission risk factor; 14 (56%) were prescribed medication-assisted treatment. Median time since HIV and HCV diagnosis was 25 and 19 years, respectively. Clinic-level barriers were noted in 19 (76%) and included lack of evaluation, treatment not recommended or implemented. Concomitant structural barriers included unstable housing for 11 (44%) and lack of transportation for eight (32%). Most patients had history of illicit substance use (84%) and mental health issues (68%). Many (76%) had multiple potential barriers. Conclusions. Multiple overlapping barriers spanning clinic and patient level domains including social determinants of health were the norm in persons with long-standing HIV/HCV coinfection who have not received HCV treatment. Interventions will require innovative, multi-disciplinary and personalized approaches. [ABSTRACT FROM AUTHOR]
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- 2023
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34. Future Directions for HIV/HCV Care: Lessons Learned From Local Evaluation Projects in Texas and Connecticut and Implications for Practice and Health Promotion.
- Author
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Villanueva, Merceditas
- Subjects
HEPATITIS C prevention ,PROFESSIONAL practice ,HIV-positive persons ,HIV infections ,HEALTH services accessibility ,DISEASE eradication ,UNIVERSITIES & colleges ,MIXED infections ,ENDOWMENTS ,HEALTH promotion - Abstract
The Health Resources Service Administration (HRSA) Special Projects of National Significance (SPNS) project titled "Curing Hepatitis C among People of Color Living with HIV," funded two sites, University of Texas (TX) San Antonio and Yale University School of Medicine in Connecticut (CT) to explore barriers and facilitators towards achieving HCV cure in the era of curative DAAs for HCV in different local contexts. Through individualized approaches that study patient, provider and system level barriers, the nine articles in this Focus Issue highlight key themes that are important in designing local implementation strategies that will enable achievement of HCV elimination goals in priority populations. [ABSTRACT FROM AUTHOR]
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- 2023
- Full Text
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35. Voices of those living with type 2 diabetes in Belize: barriers to care before and during the COVID-19 pandemic.
- Author
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Allen, Lindsay P., Ellis, Lucia, Engleton, Christophe, Valerio, Valerie Lynette, and Hatala, Andrew R.
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HEALTH services accessibility ,INTERDISCIPLINARY research ,SELF-management (Psychology) ,GROUNDED theory ,RESEARCH methodology ,MOTIVATION (Psychology) ,INTERVIEWING ,TYPE 2 diabetes ,EXPERIENCE ,QUALITATIVE research ,COMPARATIVE studies ,DESCRIPTIVE statistics ,DISEASE prevalence ,HEALTH care teams ,RESEARCH funding ,DATA analysis software ,THEMATIC analysis ,STAY-at-home orders ,TEXT messages ,COVID-19 pandemic ,MEDICAL coding ,DIFFUSION of innovations ,ADULTS - Abstract
Belize has the highest national prevalence of type 2 diabetes (T2D) of Central and South America, and fifth direst in the world. T2D is the leading cause of death in Belize, a country facing burdens of increasing prevalence with few resources. Since March of 2020, the COVID-19 pandemic has exacerbated the difficulties of those living with T2D in Belize. To address T2D issues in Belize, our interdisciplinary research team explored the barriers to care and self-management for adult patients with T2D in Belize prior to and during the COVID-19 pandemic. Research relationships between Canadian (ARH) and Belizean (LE) authors have been ongoing since 2016. Together we used a qualitative Constructivist Grounded Theory design generating knowledge through 35 semi-structured patient interviews, 25 key informant discussions, and participant observation with field notes between February 2020 to September 2021. We used Dedoose analysis software for a systematized thematic coding process, as well as iterative verification activities. Findings revealed several barriers to care and self-management, including: 1) the tiered health and social care system with major gaps in coverage; 2) the unfulfilled demand for accurate health information and innovative dissemination methods; and 3) the compounding of loss of community supports, physical exercise, and health services due to COVID-19 restrictions. In the post-pandemic period, it is necessary to invest in physical, nutritional, economic, and psychosocial health through organized activities adaptable to changeable public health restrictions. Recommendations for activities include sending patients informational and motivational text messages, providing recipes with accessibly sourced T2D foods, televising educational workshops, making online tools more accessible, and mobilising community and peer support networks. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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36. Direct and indirect barriers to hypothetical access to care among Canadian forces health services personnel.
- Author
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Born, Jennifer and Frank, Christine
- Subjects
MEDICAL personnel ,CANADIAN military ,POST-traumatic stress disorder ,MENTAL health ,HEALTH services accessibility ,MEDICAL care - Abstract
Background Though research among Canadian Forces Health Services (CFHS) personnel is limited, the literature suggests formal healthcare is underused. Though much research has been conducted on particular barriers (e.g., stigma), examining a breadth of barriers could better inform behavioral interventions. Furthermore, work has yet to examine the indirect effects of barriers through their impact on intentions to access care. Methods CFHS participants were randomly assigned to complete either a mental health (N = 503) or physical health (N = 530) version of the survey. The survey included questions on the perceived impact of barriers, health-related information (e.g., past access to care), intention to seek care, and two hypothetical scenarios (i.e., pneumonia and back injury or post-traumatic stress disorder and depression) as a proxy of access to care. Multiple regressions using Hayes PROCESS macro were conducted to assess the direct and indirect effects (through intentions) of the barriers on hypothetical access to care. Results Results show conflict with career goals barriers were indirectly linked to all health outcomes, and directly linked to mental health outcomes. Treatment preference barriers were directly and indirectly linked to care seeking only for mental health, while resource barriers were directly linked to care seeking only for physical health. Knowledge and ability to access care barriers were directly linked to care seeking for depression and pneumonia. Implications Interventions to improve treatment-seeking should be developed only after the behavioural antecedents are understood, and should focus on combining evidence-based techniques to simultaneously target multiple aspects of the behaviour. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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37. Evaluating the childcare needs of cancer patients undergoing radiation therapy.
- Author
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Li, Zhang Hao, MacDonald, Kenzie, Preston, Katherine, Giuliani, Meredith, Leung, Bonnie, Melosky, Barbara, Simmons, Christine, Hamilton, Sarah, Tinker, Anna, and Ingledew, Paris-Ann
- Abstract
Purpose: About one-fifth of newly diagnosed cancer patients are parents to young children. These patients are at higher risk of psychosocial stress and inability to attend treatment due to having to balance their own healthcare needs with childcare duties. This study aims to explore the impact of childcare on cancer parents and elicit their perspectives on potential supports. The results could help inform the implementation of suitable childcare programs to remove this barrier in accessing care. Methods: Patients at a large Canadian cancer treatment center were screened by oncologists for having minor children at home. Secure electronic surveys were then distributed to consenting participants. Domains surveyed included patient demographics, childcare burden, impact on treatment, and preference for childcare supports. Results: The mean age of correspondents was 43.9 (range 33–54), 46 patients (92%) were female, and breast cancer was the most common primary tumor. The median number of children per correspondent was two, and their mean age was 8.4. Balancing childcare with cancer treatment had a significant impact on self-reported stress levels for most correspondents. Twenty (40%) participants had to reschedule and 7 (14%) participants missed at least one appointment due to childcare conflicts. During the COVID-19 pandemic, access to childcare resources decreased while childcare responsibilities increased. Three-quarters of correspondents reported that a flexible childcare would make it easier for them to adhere to appointment schedules. Conclusion: Childcare is a significant psychosocial barrier for patients accessing cancer care. Our results indicate that most parents undergoing treatment may benefit from hospital-based childcare services. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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38. Identifying Latent Patterns and Predictors of Health Behaviors and Healthcare Barriers Among LGBT Older Adults.
- Author
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Jung, Hailey H., Kim, Hyun-Jun, and Fredriksen-Goldsen, Karen
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HEALTH behavior ,OLDER LGBTQ+ people ,QUALITY of life ,ADULTS ,CULTURAL competence - Abstract
Heightened risk of adverse health behaviors is of major concern among lesbian, gay, bisexual, and transgender (LGBT) older adults. Yet, no previous research has investigated heterogeneity of LGBT older adults on a set of health behaviors in conjunction with healthcare barriers. We aim to identify latent classes of the behavior and barrier patterns and examine differences in physical and psychological health-related quality of life (HRQOL) by the specified latent classes while exploring predictors of the class membership. Three-step latent class analysis applying survey weights was conducted with 14 indicators of health-risk behavior, health-promoting behavior, preventive care use, and healthcare barriers from baseline data of the Aging with Pride: National Health, Aging, and Sexuality/Gender Study (NHAS, N = 2450). The best empirical and substantive fit was determined with four classes consisting of (1) healthy behaviors and minimal barriers (C1, 39%), (2) less healthy behaviors and high barriers (C2, 31%), (3) healthy behaviors and healthcare system barriers (C3, 19%), and (4) optimal health behaviors with risks of limited healthcare access (C4, 11%). Compared to C1, C2 and C3 had lower physical HRQOL and C2 also had lower psychological HRQOL. C4 did not differ in HRQOL from C1. C2 was associated with more day-to-day discrimination, lower mastery, and lower social support. Efforts to lower healthcare barriers are warranted in addition to interventions to strengthen social support and reduce marginalization. Positive relationships between LGBT older adults and healthcare need to be established via trust-building and cultural competency. [ABSTRACT FROM AUTHOR]
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- 2023
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- View/download PDF
39. Current Challenges and Disparities in the Delivery of Equitable Breast Cancer Care in Canada.
- Author
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Jackson, Emily B., Simmons, Christine E., and Chia, Stephen K.
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CANCER treatment ,BREAST cancer ,PATIENT experience ,CANCER diagnosis ,HEALTH equity - Abstract
Recent exciting advances in the diagnosis and management of breast cancer have improved outcomes for Canadians diagnosed and living with breast cancer. However, the reach of this progress has been uneven; disparities in accessing care across Canada are increasingly being recognized and are at risk of broadening. Members of racial minority groups, economically disadvantaged individuals, or those who live in rural or remote communities have consistently been shown to experience greater challenges in accessing 'state of the art' cancer care. The Canadian context also presents unique challenges—vast geography and provincial jurisdiction of the delivery of cancer care and drug funding create significant interprovincial differences in the patient experience. In this commentary, we review the core concepts of health equity, barriers to equitable delivery of breast cancer care, populations at risk, and recommendations for the advancement of health equity in the Canadian cancer system. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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40. The relationship between underage initiation of selling sex and depression among female sex workers in Eswatini.
- Author
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Grosso, Ashley, Fielding-Miller, Rebecca, Matse, Sindy, Sithole, Bhekie, and Baral, Stefan
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DEPRESSION in women ,SEX workers ,MENTAL health services ,MULTIVARIABLE testing ,ODDS ratio - Abstract
Background: Minors who sell sex are likely to have complex mental health needs that may persist into adulthood. This topic is understudied in sub-Saharan Africa. This study hypothesized that adult female sex workers in Eswatini who started selling sex as minors have a higher prevalence of depression than those who started as adults. We also examined correlates of depression and underage initiation of selling sex, including stigma and condom-related behaviors. Methods: From October-December 2014, women aged 18 or older who sold sex in the past 12 months in Eswatini were recruited through venue-based sampling. Participants completed a survey including the 9-item Patient Health Questionnaire (PHQ-9) and a question about the age at which they first sold sex for money. T-tests, χ
2 tests and multivariable logistic regression were used to assess associations. Results: Overall, 43.1% of participants (332/770) had probable depression, and 16.6% (128/770) started selling sex as minors under the age of 18. Over half (55.5%, 71/128) of those who started selling sex as minors had depression. This was significantly higher than the 40.7% (261/642) prevalence of depression among participants who started selling sex as adults (p = 0.002). After adjusting for confounders, female sex workers who started selling sex as minors had higher odds of depression than those who started as adults (adjusted odds ratio [aOR] 1.70, 95% confidence interval 1.11-2.60). Conclusion: Results highlight the need for trauma-informed and adolescentfriendly mental health services in settings free of stigma toward female sex workers in Eswatini. [ABSTRACT FROM AUTHOR]- Published
- 2023
- Full Text
- View/download PDF
41. Access to mental health care in Canada.
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Faber, Sonya C., Osman, Muna, and Williams, Monnica T.
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PREVENTION of racism ,RESEARCH ,STATISTICS ,HEALTH services accessibility ,ONE-way analysis of variance ,AGE distribution ,RACE ,LANGUAGE & languages ,T-test (Statistics) ,GENDER identity ,INCOME ,CHI-squared test ,DESCRIPTIVE statistics ,RESEARCH funding ,DATA analysis ,MENTAL health services ,EDUCATIONAL attainment - Abstract
There has been ongoing national discourse about barriers to mental health care services in Canada. The purpose of the study is to better understand these barriers, with a focus on Canadians of color. To that end, this study surveyed 1501 adults representative of the general population, collected by the Angus Reid Institute. Over half of the respondents had sought out mental health care and experienced barriers to access. People of color (visible minorities and Indigenous people) had more difficulty accessing care, as did younger adults and those with lower incomes. The most common difficulties were largely structural: long waitlists (62%), financial barriers (58%), lack of resources/professionals in the area (47%), difficulty finding specialists (41%), and difficulty accessing in-person care during the pandemic (34%). Many noted negative experiences with mental health professionals (35%). More English-speaking than French-speaking Canadians reported barriers to care overall. Race/ethnicity was related to difficulties when trying to access mental health care, as many could not find someone of the same group (25% of Black respondents), someone who spoke their preferred language (22% of South Asian respondents), or they had prior negative experiences (50% of Indigenous respondents). We discuss the implications of these findings, including the critical need to increase the supply and diversity of mental health providers across Canada. This study is one of the first to provide quantitative data on the perceived barriers faced by Canadians in accessing mental health care while exploring the role of language, race, and ethnicity as variables that may influence access. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
42. Perceptions and experiences of prostate cancer patients in a public tertiary hospital in urban South Africa.
- Author
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Kim, Andrew Wooyoung, Lambert, Madeleine, Norris, Shane A., and Mendenhall, Emily
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SOCIAL support ,RESEARCH methodology ,PHYSICIAN-patient relations ,TERTIARY care ,INTERVIEWING ,PATIENT satisfaction ,PATIENTS' attitudes ,CANCER patients ,QUALITATIVE research ,PUBLIC hospitals ,METROPOLITAN areas ,EMOTIONS ,PROSTATE tumors ,PSYCHOLOGICAL resilience - Abstract
Prostate cancer is among the most prevalent forms of cancer worldwide and is reported to have the highest incidence, mortality, and 5-year prevalence rate of all cancers among men living in Africa. Despite this widespread burden in the African continent, little is known about the perspectives and experience of prostate cancer among African men. To further understand experiences among patients living in urban South Africa, we conducted in-depth, semi-structured qualitative interviews to examine the perceptions and experiences of 28 Black African prostate cancer patients receiving treatment at a major tertiary hospital in Johannesburg, South Africa. Our data explored four major areas of patients' experiences with prostate cancer: detection, diagnosis, treatment, and follow-up care. Our results showed that the experience of living with prostate cancer among low-income, Black South African men is a stressful and emotionally painful experience due in part to men feeling that they had insufficient knowledge about their own condition and feeling disempowered or ill-equipped to manage their cancer. These feelings were strongly associated with distrust or dissatisfaction with physicians and the health care system. Resilience factors include social support from family, friends, and religious communities, acceptance of their diagnosis, religion, and positive appraisals of their medical care. [ABSTRACT FROM AUTHOR]
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- 2023
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43. Care delivery approaches and perceived barriers to improving quality of care: A national survey of skilled nursing facilities.
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Chen, Amanda C., Epstein, Arnold M., Joynt Maddox, Karen E., Grabowski, David C., Orav, E. John, and Barnett, Michael L.
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SUBSTANCE abuse treatment ,MEDICAL quality control ,PATIENT aftercare ,PSYCHOLOGICAL burnout ,NURSING ,HOSPITAL emergency services ,SOCIAL support ,NURSING home patients ,MEDICAL care ,MENTAL health ,NURSING care facilities ,HEALTH insurance reimbursement ,PRIMARY health care ,LABOR turnover ,QUALITY assurance ,GERIATRIC nursing ,DESCRIPTIVE statistics ,PSYCHOSOCIAL factors ,RESEARCH funding ,MEDICAL case management ,PHYSICIAN practice patterns ,MEDICATION reconciliation ,WORKING hours ,DISCHARGE planning - Abstract
Background: Nursing home quality of care is a persistent challenge, with recent reports calling for increased reforms to improve quality and safety. Less is known about the clinical approaches currently used and the barriers perceived by skilled nursing facilities (SNFs) to provide care for their short‐stay residents. Methods: We conducted a nationally representative survey of SNFs from October 2020 to May 2021 to understand their care delivery approaches and perceived barriers. Our primary outcomes were the reported number of 23 separate care delivery approaches and the reported number of 12 separate barriers to reduce spending or improve care for SNF short‐stay residents. We also performed stratified analyses by facility participation in bundled payments and other SNF characteristics. Results: We received 377 responses from 693 SNFs contacted (response rate = 54%). SNFs reported an average of 16.8 care delivery approaches and an average of 5.0 barriers. While there were some differences observed in SNF characteristics, such as by bundled payments participation or ownership type, there were common care delivery approaches and barriers shared by most facilities. Care management practices, including reviewing the patient census and medication reconciliation on discharge, were the most common delivery approaches reported. SNFs were less likely to ensure the completion of a follow‐up appointment with a primary care provider or track repeat emergency room visits. Issues concerning staffing, such as staff turnover and/or burnout, and lack of resources to provide patients social support, mental health, and substance use services, were the most cited barriers to care delivery. Conclusions: Nationally, SNFs implemented a wide array of care delivery approaches, but challenges with staffing and limited resources to address patients' social and mental health needs were dominant. Individual SNFs may have limited ability to address these key barriers, so the involvement of many stakeholders across the entire healthcare system may be necessary. [ABSTRACT FROM AUTHOR]
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- 2023
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44. COVID-19-related mental health challenges and opportunities perceived by mental health providers in the Philippines.
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Bollettino, Vincenzo, Foo, Cheryl Yunn Shee, Stoddard, Hannah, Daza, Mark, Sison, Antonio C., Teng-Calleja, Mendiola, and Vinck, Patrick
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This paper outlines the psychosocial impacts of the COVID-19 pandemic as reported by 145 licensed mental health providers in the Philippines in an online survey. Respondents perceived an increase in observed mental health disorders in their beneficiaries and an overall decrease in stigma associated with receiving mental health care services during the pandemic. Respondents further identified specific stigma-related help-seeking barriers during the pandemic. Positive impacts of telehealth and importance of increased public education of mental health were highlighted, with implications for improving the landscape of mental health care for Philippines post-pandemic. • Perceptions of mental health providers are an important source of information for identifying barriers to mental health care. • In the Philippines, barriers to access and stigma-related treatment barriers were perceived to be reduced during the pandemic. • Positive outcomes of the COVID-19 pandemic included increased use of teletherapy, and increased awareness and education around mental health. [ABSTRACT FROM AUTHOR]
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- 2023
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45. Characterizing healthcare utilization patterns in a Danish population with headache: results from the nationwide headache in Denmark (HINDER) panel
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Do, Thien Phu, Dømgaard, Mikala, Stefansen, Simon, Steiner, Timothy J., and Ashina, Messoud
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- 2023
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46. Barriers in care pathways and unmet mental health needs in LGBTIQ + communities
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Giada, Silveri, Simone, Schimmenti, Eleonora, Prina, Lorenzo, Gios, Massimo, Mirandola, Manlio, Converti, Andrea, Fiorillo, Federica, Pinna, Antonio, Ventriglio, Gian Maria, Galeazzi, Nigel, Sherriff, Laetitia, Zeeman, Francesco, Amaddeo, Nicola Luigi, Bragazzi, Silveri, Giada, Schimmenti, Simone, Prina, Eleonora, Gios, Lorenzo, Mirandola, Massimo, Converti, Manlio, Fiorillo, Andrea, Pinna, Federica, Ventriglio, Antonio, Galeazzi, Gian Maria, Sherriff, Nigel, Zeeman, Laetitia, and Amaddeo, Francesco
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LGBTIQ+ ,Sexual and Gender Minorities ,Psychiatry and Mental health ,barriers to care ,Adolescent ,Substance-Related Disorders ,mental health ,unmet needs ,Critical Pathways ,Humans ,Female ,Sexuality - Abstract
Lesbian, gay, bisexual, transgender, intersex, queer people and minority gender identities and sexualities (LGBTIQ+) are often stigmatized and experience discrimination in health care settings, leading to poorer mental health outcomes and unmet needs compared to heterosexual and cisgendered peers. It is thus imperative that mental health providers consider and address structural challenges in order to reduce mental health inequalities of this population. This narrative review assessed the barriers that may prevent access to care and the pathways for care in LGBTIQ + communities. PubMed, PsycInfo, Embase, and Scopus were searched for papers published between December 2021 and February 2022. A total of 107 papers were included with studies reflecting five themes: (1) Unmet mental health needs; (2) Young people; (3) Substance abuse and addiction; (4) Barriers and pathways to care; and (5) Interventions. Findings demonstrate that LGBTIQ + people experience stigmatization and higher rates of substance misuse and mental ill health, which may lead to barriers in accessing health care services, and fewer tailored interventions being provided. These findings have implications for policy, health care screening, and how specialist services are structured. Substantial gaps in the evidence-base exist, and future research should examine how mental health care providers can challenge social issues that maintain discriminatory and stigmatizing practices, and support LGBTIQ + individuals to sustain their resilience.
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- 2022
47. The Often-Circuitous Path to Affirming Mental Health Care for Transgender and Gender-Diverse Adults.
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Holt, Natalie R., Hope, Debra A., Mocarski, Richard, and Woodruff, Nathan
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Purpose of Review: We describe recent research regarding access to affirming mental health services for transgender and gender-diverse (TGD) adults and explore new resources available for therapists to inform evidence-based practice with TGD clients. Recent Findings: Barriers and facilitators at all socioecological levels impact TGD adults' mental health help-seeking. TGD adults often interface with mental health providers while accessing gender-affirming medical care, though new standards of care are likely to alter this typically common path to mental health services. Efforts to improve therapist education, such as therapy manuals, are increasingly available and a necessary step to increase the number of competent, affirming therapists. Summary: More work—both advocacy and research—is needed to fully expand accessible, affirming mental health services for TGD adults. Better understanding factors impacting different steps of the mental health help-seeking process and conducting randomized controlled trials of affirming mental health services are important next steps. [ABSTRACT FROM AUTHOR]
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- 2023
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48. Barriers and facilitators to accessing sexual health services for older LGBTQIA+ adults: a global scoping review and qualitative evidence synthesis.
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Conyers, Hayley, Dan Wu, Kpokiri, Eneyi, Qihang Zhang, Hinchliff, Sharron, Shakespeare, Tom, and Tucker, Joseph
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OLDER people ,SEXUAL health ,MEDICAL care ,MINORITY stress ,MEDICAL personnel - Abstract
The number of older adults identifying as lesbian, gay, bisexual, transgender and other sexual and gender diverse identities (LGBTQIA+) is growing as populations age and social environments become more accepting. This study uses a global evidence synthesis to understand perceived barriers and facilitators to access to sexual healthcare globally for older LGBTQIA+ adults. We used a scoping review and qualitative evidence synthesis. Embase, PubMed and PsycInfo were searched with terms related to LGBTQIA+ populations, adults aged 45 years, and sexual health care. We used the Cochrane Handbook and the review protocol was registered. Primary and secondary textual data were coded and grouped into themes using PRISMA-SCR and the Minority Stress Model. The certainty of review findings was assessed using the GRADE-CERQual approach. We identified 19 studies and 15 were included in the qualitative evidence synthesis. All studies were from high-income countries. Heterocentricity and male- centricity of sexual healthcare services contributed to feelings of exclusion for older LGBTQIA+ adults. Both anticipated and enacted stigma from healthcare providers resulted in older LGBTQIA+ adults, especially those with chronic conditions, avoiding health services (seven studies each, low certainty). Older LGBTQIA+ adults have unique sexual health needs and may feel their age empowers them to access appropriate care (four studies, low certainty). This review highlights the need for additional research and interventions to improve sexual health services for older LGBTQIA+ adults. Practical strategies to make sexual health less heterocentric (e.g. gender neutral signage) may increase uptake of essential sexual health services. [ABSTRACT FROM AUTHOR]
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- 2023
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49. People of a Pandemic.
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Kwitny, Molly, Richards, Quinn, Cann, Natalie, Lewis, Jasmine, Vaught, Kayla, Bejoy, Arushi, Gutierrez Matos, Fernanda, DiGirolamo, Grace, Loving, Chloe, Neveldine, Teagan, Weekes, Sakina, and Wenzel, Sophie
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COVID-19 pandemic ,RACIAL minorities ,SOCIOECONOMIC disparities in health ,FINANCIAL management ,HEALTH policy - Abstract
People with marginalized identities were disproportionately affected by the COVID-19 pandemic. There was an increase in overdose-related mortality and an overall higher mortality rate among racial minorities. The pandemic also led to increased isolation among older adults, which has been linked to negative health outcomes. These issues were exacerbated in rural Appalachia when combined with existing health and socioeconomic disparities. In Spring 2021, interviews were conducted with older adults, Hispanic individuals, African American individuals, and people who use drugs in Virginia's New River Valley, with the goal of understanding how the pandemic impacted these populations. Sixteen of those stories are presented here. A thematic analysis revealed major themes: 1) financial (in) security and unemployment, 2) access to resources, 3) internet and technology, 4) public health policies, 5) mental health and isolation, and 6) resilience. [ABSTRACT FROM AUTHOR]
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- 2023
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50. Experienced barriers of care within European treatment seeking transgender individuals: A multicenter ENIGI follow-up study.
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Ross, Maeghan B., van de Grift, Tim C., Elaut, Els, Nieder, Timo O., Becker-Hebly, Inga, Heylens, Gunter, and Kreukels, Baudewijntje P. C.
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HEALTH services accessibility ,CONFIDENCE intervals ,ONE-way analysis of variance ,HELP-seeking behavior ,MEDICAL care costs ,EXPERIENCE ,QUALITATIVE research ,PSYCHOSOCIAL factors ,DESCRIPTIVE statistics ,QUESTIONNAIRES ,CHI-squared test ,SOCIAL status ,DATA analysis software ,ODDS ratio ,TRANSGENDER people - Abstract
Objectives: To evaluate the experienced barriers of care for treatment-seeking trans individuals (TSTG) in three large European clinics. Methods: An online follow-up questionnaire was filled out by 307 TSTG individuals as part of the research protocol of the European Network for the Investigation of Gender Incongruence (ENIGI). Data was collected during follow-up in 2017/2018, around 5 years after participants had their initial clinical appointments in Ghent (Belgium), Amsterdam (the Netherlands), or Hamburg (Germany). Background characteristics, country, treatment characteristics and mental health were analyzed in relation to experienced barriers of care (EBOC, measured though agreement with statements). Results: The majority of participants reported various EBOC, oftentimes more than one. The most-frequently reported EBOCs pertained to the lack of family and friends' support (28.7%, n = 88) and travel time and costs (27.7%, n = 85), whereas around one-fifth felt hindered by treatment protocols. Also, a significant share expressed the feeling that they had to convince their provider they needed care and/or express their wish in such way to increase their likelihood of receiving care. A higher number of EBOCs reported was associated with more mental health problems, lower income and female gender. Conclusions: A substantial number of TSTG individuals within three European health care systems experiences EBOCs. EBOCs relate to both personal and systemic characteristics. These findings can help health care providers and centers to improve care. More research must be done to better understand the diversity among TSTG individuals and the corresponding barriers experienced. Supplemental data for this article is available online at https://doi.org/10.1080/26895269.2021.1964409 [ABSTRACT FROM AUTHOR]
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- 2023
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