1. The Development of the Evidence-Informed "OI Splint Kit" for Children with Osteogenesis Imperfecta and Their Families.
- Author
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Addab, Sofia, Thierry, Stephanie, Lafrance, Marie-Elaine, Jeong, Sunny, Brown, Jennifer, Brown, Carter, Plourde, Sylvie-Anne, Gugliotti, Angela, Thorstad, Kelly, Hamdy, Reggie, Rauch, Frank, and Tsimicalis, Argerie
- Subjects
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BONE fracture prevention , *CINAHL database , *PSYCHOLOGY information storage & retrieval systems , *MEMORY , *CONSENSUS (Social sciences) , *OSTEOGENESIS imperfecta , *ORTHOPEDIC implants , *SYSTEMATIC reviews , *FAMILIES , *HUMAN services programs , *MEDICAL protocols , *HEALTH literacy , *TEACHING aids , *MEDLINE , *PATIENT education , *VIDEO recording , *CHILDREN - Abstract
Background: Children with osteogenesis imperfecta (OI) live in fear of fracturing their bones. As fractures are unpredictable, there is a need for tools and knowledge to immobilize a fracture during emergencies. Inspired by a patient with OI recognized for fracture management, the aim of this patient-initiated project was to establish best practices for the safe splinting of fractures during emergencies, including the creation of an evidence-informed OI Splint Kit. Methods: A clinical practice guideline study was conducted to create an evidence-informed splint kit for patients. A systematic review of the literature was conducted to identify kits and materials used to immobilize fractures with splints during emergencies. An expert Task Force was convened to review the results and a timeline was established to create a splint kit. The prototype underwent iterative cycles of modifications based on feedback from the Task Force. Results: Four electronic databases were searched (Medline, CINHAL, PsychInfo, and Scopus), revealing zero publications pertaining to fracture immobilization kits. The Task Force used their clinical expertise and experiences to develop the OI Splint Kit. The following itemswere included: splinting tools, bilingual educational material, instructional cards, video tutorials, and memory card game. Conclusion: A gap remains in terms of validated kits to assist in fracture immobilization during emergencies. A portable and practical OI Splint Kit was developed to assist in fracture immobilization emergencies, based on interprofessional clinical expertise and patient experiential knowledge. The kit is subject to ongoing testing quality evaluations to ensure its suitability for use in various contexts. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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