18 results on '"Verheijden, J"'
Search Results
2. Longitudinal Association Between Gross Motor Capacity and Neuromusculoskeletal Function in Children and Youth With Cerebral Palsy
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van Schie, P.E.M., Schuengel, C., Ketelaar, M., Lindeman, E., Jongmans, M., Roebroeck, M.E., Tan, S.S., Wiegerink, D.J.H.G., Reinders-Messelink, H.A., Verheijden, J., BOSK, Vos, Rimke C., Becher, Jules G., Voorman, Jeanine M., Gorter, Jan Willem, van Eck, Mirjam, van Meeteren, Jetty, Smits, Dirk-Wouter, Twisk, Jos W., and Dallmeijer, Annet J.
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- 2016
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3. Pain, fatigue, depressive symptoms and sleep disturbance in young adults with cerebral palsy
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van Gorp, M., Dallmeijer, Annet J., van Wely, Leontien, de Groot, Vincent, Terwee, Caroline B., Flens, Gerard, Stam, Henk J., van der Slot, W., Roebroeck, Marij E., Tan, S. S., van Meeteren, J., Stam, H., Dallmeijer, A. J., van Wely, L., de Groot, V, Ketelaar, M., Voorman, J. M., Reinders-Messelink, H. A., Gorter, J. W., Verheijden, J., Rehabilitation Medicine, Clinical Child and Family Studies, Pulmonary Medicine, Erasmus School of Economics, Obstetrics & Gynecology, Paediatric Psychosocial Care, APH - Mental Health, CCA - Treatment and quality of life, Amsterdam Reproduction & Development, Amsterdam Movement Sciences - Restoration and Development, Rehabilitation medicine, Amsterdam Reproduction & Development (AR&D), Amsterdam Movement Sciences, Amsterdam Movement Sciences - Rehabilitation & Development, Epidemiology and Data Science, APH - Aging & Later Life, APH - Methodology, APH - Societal Participation & Health, and APH - Health Behaviors & Chronic Diseases
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030506 rehabilitation ,medicine.medical_specialty ,medicine.medical_treatment ,Population ,GROSS ,PARTICIPATION ,CHILDREN ,Cerebral palsy ,03 medical and health sciences ,MOTOR FUNCTION ,0302 clinical medicine ,depressive symptoms ,Quality of life ,SDG 3 - Good Health and Well-being ,QUALITY-OF-LIFE ,medicine ,Humans ,pain ,Young adult ,education ,MUSCULOSKELETAL PAIN ,education.field_of_study ,Sleep disorder ,Rehabilitation ,Depression ,business.industry ,Gross Motor Function Classification System ,medicine.disease ,sleep disturbance ,Mental health ,INDIVIDUALS ,Physical therapy ,young adult ,CLASSIFICATION-SYSTEM ,fatigue ,Sleep ,0305 other medical science ,business ,MENTAL-HEALTH ,ITEM BANKS ,030217 neurology & neurosurgery - Abstract
Purpose: Investigate pain, fatigue, depressive symptoms and sleep disturbance in young adults with cerebral palsy compared to references. Materials and methods: Young adults with cerebral palsy (n = 97, aged 21–34 years) and age-matched references from the general population (n = 190) rated pain using a numeric rating scale and fatigue, depressive symptoms, sleep disturbance and global health using Patient-Reported Outcomes Measurement Information System® short forms. Scores were compared between cerebral palsy subgroups and the reference population. Correlation coefficients and linear regression analyses assessed interrelationships of health issues and associations with global health. Results: Individuals with Gross Motor Function Classification System level I had less pain, fatigue and depressive symptoms, while individuals with levels II and III–V had more pain (53% and 56%, p < 0.001) and those with levels III–V more fatigue (39%, p = 0.035) than references (pain: 26%, fatigue: 14%). Pain and fatigue were more interrelated (correlation coefficients: 0.71 vs. 0.41) and stronger associated with global mental health in individuals with cerebral palsy. Conclusions: Young adults with Gross Motor Function Classification System levels II–V report more pain and those with levels III–V report more fatigue than references. Pain and fatigue are highly interrelated and specifically relate to mental health in individuals with cerebral palsy.Implications for rehabilitation Except for those in the highest level of motor function, young adults with cerebral palsy report higher levels of pain and fatigue compared to the general population of the same age. Pain and fatigue are strongly interrelated and associated with mental health in young adults with cerebral palsy. The present study recommends to monitor pain and fatigue in young adults with cerebral palsy with low levels of gross motor function. We advise rehabilitation professionals to consider combined treatment for both pain and fatigue.
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- 2021
4. Development curves of communication and social interaction in individuals with cerebral palsy
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Tan, Siok Swan, van Gorp, Marloes, Voorman, JM, Geytenbeek, JJM, Reinders-Messelink, HA, Ketelaar, M, Dallmeijer, AJ, Roebroeck, Marij, Wely, L, de Groot, V, van Meeteren, Jetty, van der Slot, Wilma, Stam, Henk, Gorter, JW, Verheijden, J, Amsterdam Movement Sciences - Restoration and Development, Rehabilitation medicine, AMS - Rehabilitation & Development, APH - Societal Participation & Health, APH - Health Behaviors & Chronic Diseases, Amsterdam Movement Sciences, Amsterdam Neuroscience - Neuroinfection & -inflammation, Public Health, and Rehabilitation Medicine
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Gerontology ,Adult ,Male ,Coping (psychology) ,PRESCHOOL-CHILDREN ,Adolescent ,Human Development ,LANGUAGE ,MANUAL ABILITY ,Cerebral palsy ,03 medical and health sciences ,Interpersonal relationship ,Young Adult ,0302 clinical medicine ,Developmental Neuroscience ,030225 pediatrics ,Intellectual Disability ,Intellectual disability ,YOUNG-ADULTS ,medicine ,Humans ,Interpersonal Relations ,Longitudinal Studies ,Young adult ,Child ,Cerebral Palsy ,Communication ,GROSS MOTOR FUNCTION ,Infant ,Gross Motor Function Classification System ,Original Articles ,medicine.disease ,Vineland Adaptive Behavior Scale ,Social relation ,Child, Preschool ,Pediatrics, Perinatology and Child Health ,CLASSIFICATION-SYSTEM ,Original Article ,Female ,Neurology (clinical) ,TRAJECTORIES ,Psychology ,030217 neurology & neurosurgery - Abstract
Aim To determine development curves of communication and social interaction from childhood into adulthood for individuals with cerebral palsy (CP). Method This Pediatric Rehabilitation Research in the Netherlands (PERRIN)‐DECADE study longitudinally assessed 421 individuals with CP, aged from 1 to 20 years at baseline, after 13 years (n=121 at follow‐up). Communication and social interactions were assessed using the Vineland Adaptive Behavior Scales. We estimated the average maximum performance limit (level) and age at which 90% of the limit was reached (age90) using nonlinear mixed‐effects modeling. Results One‐hundred individuals without intellectual disability were aged 21 to 34 years at follow‐up (39 females, 61 males) (mean age [SD] 28y 5mo [3y 11mo]). Limits of individuals without intellectual disability, regardless of Gross Motor Function Classification System (GMFCS) level, approached the maximum score and were significantly higher than those of individuals with intellectual disability. Ages90 ranged between 3 and 4 years for receptive communication, 6 and 7 years for expressive communication and interrelationships, 12 and 16 years for written communication, 13 and 16 years for play and leisure, and 14 and 16 years for coping. Twenty‐one individuals with intellectual disability were between 21 and 27 years at follow‐up (8 females, 13 males) (mean age [SD] 24y 7mo [1y 8mo]). Individuals with intellectual disability in GMFCS level V showed the least favourable development, but variation between individuals with intellectual disability was large. Interpretation Individuals with CP and without intellectual disability show developmental curves of communication and social interactions similar to typically developing individuals, regardless of their level of motor function. Those with intellectual disability reach lower performance levels and vary largely in individual development. What this paper adds Communication and social interactions in individuals with cerebral palsy without intellectual disability develop similarly to typically developing individuals.Communication and social interactions of individuals with intellectual disability develop less favourably and show large variation., What this paper adds Communication and social interactions in individuals with cerebral palsy without intellectual disability develop similarly to typically developing individuals.Communication and social interactions of individuals with intellectual disability develop less favourably and show large variation. This article's abstract has been translated into Spanish and Portuguese. Follow the links from the http://onlinelibrary.wiley.com/doi/10.1111/dmcn.14351/abstract to view the translations.
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- 2020
5. Parents’ experiences with physical and occupational therapy for their young child with cerebral palsy: a mixed studies review
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Kruijsen-Terpstra, A. J. A., Ketelaar, M., Boeije, H., Jongmans, M. J., Gorter, J. W., Verheijden, J., Lindeman, E., and Verschuren, O.
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- 2014
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6. Autonomy in participation in cerebral palsy from childhood to adulthood
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Schmidt, Anna, van Gorp, Marloes, Wely, L, Ketelaar, M, Hilberink, Sander, Roebroeck, Marij, Tan, Siok Swan, van Meeteren, Jetty, van der Slot, Wilma, Stam, Henk, Dallmeijer, AJ, de Groot, V, Voorman, JM, Smits, DW, Wintels, SC, Reinders-Messelink, HA, Gorter, JW, Verheijden, J, Rehabilitation Medicine, Academic Medical Center, APH - Personalized Medicine, APH - Quality of Care, ARD - Amsterdam Reproduction and Development, APH - Mental Health, Amsterdam Movement Sciences - Restoration and Development, APH - Societal Participation & Health, APH - Health Behaviors & Chronic Diseases, Rehabilitation medicine, Amsterdam Reproduction & Development (AR&D), Amsterdam Movement Sciences, Amsterdam Neuroscience - Brain Imaging, Amsterdam Movement Sciences - Rehabilitation & Development, APH - Methodology, and AMS - Rehabilitation & Development
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Adult ,Male ,Gerontology ,Adolescent ,medicine.medical_treatment ,media_common.quotation_subject ,GROSS ,CHILDREN ,artikel tijdschrift ,Severity of Illness Index ,Cerebral palsy ,Disability Evaluation ,Young Adult ,03 medical and health sciences ,Interpersonal relationship ,0302 clinical medicine ,Developmental Neuroscience ,030225 pediatrics ,Intellectual disability ,YOUNG-ADULTS ,ADOLESCENTS ,medicine ,Humans ,Interpersonal Relations ,Young adult ,autonomy ,Child ,Generalized estimating equation ,media_common ,cerebral palsy ,Rehabilitation ,Gross Motor Function Classification System ,Social Participation ,medicine.disease ,MOTOR CAPACITY ,MOBILITY ,Personal Autonomy ,Pediatrics, Perinatology and Child Health ,Female ,Neurology (clinical) ,Psychology ,INTERVENTION ,030217 neurology & neurosurgery ,Autonomy - Abstract
To determine the long-term development of autonomy in participation of individuals with cerebral palsy (CP) without intellectual disability.Individuals with CP (n=189, 117 males, 72 females; mean age [SD] 21y 11mo [4y 11mo], range 12-34y); were assessed cross-sectionally (46%) or up to four times (54%), between the ages of 12 and 34 years. Autonomy in participation was classified using phase 3 of the Rotterdam Transition Profile. A logistic generalized estimating equation regression model was used to analyse autonomy in six domains (independent variables: age, Gross Motor Function Classification System [GMFCS] level, and interaction between age and GMFCS level). Proportions of autonomy were compared to references using binomial tests (p0.05).In most domains, over 90% of participants (n=189, 400 observations, 80% in GMFCS levels I and II) reached autonomy in participation in their late twenties, except for intimate/sexual relationships. Those in GMFCS levels III to V compared to those in GMFCS levels I and II had less favourable development of autonomy in the transportation, intimate relationships, employment, and housing domains, and more favourable development in the finances domain. Compared to references, fewer individuals with CP were autonomous in participation.This knowledge of autonomy may guide the expectations of young people with CP and their caregivers. Furthermore, rehabilitation professionals should address autonomy development in intimate relationships, employment, and housing, especially in individuals with lower gross motor function.Individuals with cerebral palsy without intellectual disability achieved autonomy in most participation domains. Regarding intimate relationships, they continued to have less experience compared to age-matched references. Development of autonomy was less favourable for individuals in Gross Motor Function Classification System levels III to V.AUTONOMÍA EN LA PARTICIPACIÓN EN LA PARÁLISIS CEREBRAL DESDE LA INFANCIA A LA EDAD ADULTA: OBJETIVO: Determinar el desarrollo a largo plazo de la autonomía en la participación de individuos con parálisis cerebral (PC) sin discapacidad intelectual. MÉTODO: Individuos con PC (n=189, 117 varones, 72 mujeres; edad media [DE] 21 años y 11 meses [4 años y 11meses], rango 12-34 años); fueron evaluados de forma transversal (46%) o hasta cuatro veces (54%), entre las edades comprendidas entre los 12 y los 34 años. La autonomía en la participación fue clasificada usando la fase 3 del perfil de transición de Rotterdam (Rotterdam Transition Profile). Se utilizó un modelo de regresión logístico generalizado estimando la ecuación para analizar la autonomía en 6 dominios (variables independientes: edad, nivel del Sistema de Clasificación de la Función Motora Gruesa, [GMFCS], y la interacción entre la edad y el nivel GMFCS). Las proporciones de la autonomía se compararon con las referencias mediante pruebas binomiales (p0,05). RESULTADOS: En la mayoría de los dominios, más del 90% de los participantes (n=189.400 observaciones, 80% en los niveles I y II de la GMFCS) alcanzaron la autonomía en la participación bien entrados los 20 años, excepto para las relaciones íntimas/sexuales. Aquellos en los niveles III y V de la GMFCS en comparación con los niveles I y II de la GMFCS tuvieron un desarrollo de la autonomía menos favorable en el transporte, relaciones íntimas, empleo y en el dominio de la vivienda, y un desarrollo más favorable en el dominio de las finanzas. En comparación con las referencias, menos individuos con PC fueron autónomos en la participación. INTERPRETACIÓN: Este conocimiento de la autonomía puede guiar las expectativas de los jóvenes con PC y de sus cuidadores. Además, los profesionales de la rehabilitación deberían abordar el desarrollo de la autonomía en las relaciones íntimas, el empleo y la vivienda, especialmente en aquellos individuos con una función motora gruesa más baja.AUTONOMIA NA PARTICIPAÇÃO EM PARALISIA CEREBRAL DA INFÂNCIA À VIDA ADULTA: OBJETIVO: Determinar o desenvolvimento em longo prazo da autonomia na participação de indivíduos com paralisia cerebral (PC) sem deficiência intelectual. MÉTODO: Indivíduos com PC (n=189, 117 do sexo masculino, 72 do sexo feminino; média de idade [DP] 21a 11m [4a 11m], variação 12-34a); foram avaliados transversalmente (46%) ou até quatro vezes (54%), entre as idades de 12 e 34 anos. A autonomia na participação foi classificada usando a fase 3 do Perfil de Transição de Rotterdam. Um modelo de regressão logística com generalizada com equações estimadas foi usado para analisar a autonomia em seis domínios (variáveis independentes: idade, Nível segundo o Sistema de Classificação da Função Motora Grossa [GMFCS], e interação entre idade e nível GMFCS). As proporções de autonomia foram comparadas com as referências usando testes binomiais (p0,05). RESULTADOS: Na maior parte dos domínios, cerca de 90% dos participantes (n=189.400 observações, 80% nos níveis GMFCS I e II) atingiram autonomia na participação no final da terceira década de vida, exceto para relações íntimas/sexuais. Aqueles nos níveis GMFCS III a V comparados com os níveis I e II tiveram desenvolvimento menos favorável nos domínios da autonomia no transporte, relações íntimas, emprego, e domicílio, e mais desenvolvimento mais favorável no domínio das finanças. Em comparação com as referências, menos indivíduos com PC foram autônomos na participação. INTERPRETAÇÃO: Este conhecimento sobre a autonomia pode guiar as expectativas de jovens com PC e seus cuidadores. Além disso, profissionais da reabilitação devem abordar o desenvolvimento da autonomia nas relações íntimas, emprego e domicílio, especialmente nos indivíduos com menor função motora grossa.
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- 2020
7. LEARN2MOVE 0-2 years, a randomized early intervention trial for infants at very high risk of cerebral palsy: family outcome and infant's functional outcome
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Hielkema, T., Boxum, A.G., Hamer, E.G., Bastide-Van Gemert, S. La, Dirks, T., Reinders-Messelink, H.A., Maathuis, C.G.B., Verheijden, J., Geertzen, J.H., Hadders-Algra, M., Hielkema, T., Boxum, A.G., Hamer, E.G., Bastide-Van Gemert, S. La, Dirks, T., Reinders-Messelink, H.A., Maathuis, C.G.B., Verheijden, J., Geertzen, J.H., and Hadders-Algra, M.
- Abstract
Contains fulltext : 229747.pdf (Publisher’s version ) (Open Access), Purpose: To compare family and functional outcome in infants at very high risk of cerebral palsy, after receiving the family centred programme "Coping with and Caring for infants with special needs (COPCA)" or typical infant physiotherapy.Materials and methods: Forty-three infants at very high risk were included before 9 months corrected age and randomly assigned to one year COPCA (n = 23) or typical infant physiotherapy (n = 20). Family and infant outcome were assessed before and during the intervention. Physiotherapy intervention sessions were analysed quantitatively for process analysis. Outcome was evaluated with non-parametric tests and linear mixed-effect models.Results: Between-group comparisons revealed no differences in family and infant outcomes. Within-group analysis showed that family's quality of life improved over time in the COPCA-group. Family empowerment was positively associated with intervention elements, including "caregiver coaching."Conclusions: One year of COPCA or typical infant physiotherapy resulted in similar family and functional outcomes. Yet, specific intervention elements, e.g., coaching, may increase empowerment of families of very high risk infants and may influence quality of life, which emphasizes the importance of family centred services.Implications for rehabilitationOne year of the family centred programme "Coping with and a Caring for infants with special needs" compared with typical infant physiotherapy resulted in similar family outcome and similar functional outcome for the infants at very high risk for cerebral palsy.Specific contents of intervention, such as caregiver coaching, are associated with more family empowerment and increased quality of life.Emphasis on family needs is important in early intervention for infants at very high risk for cerebral palsy.
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- 2020
8. LEARN2MOVE 0-2 years, a randomized early intervention trial for infants at very high risk of cerebral palsy: neuromotor, cognitive, and behavioral outcome
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Hielkema, T., Hamer, E.G., Boxum, A.G., Bastide-Van Gemert, S. La, Dirks, T., Reinders-Messelink, H.A., Maathuis, C.G.B., Verheijden, J., Geertzen, J.H., Hadders-Algra, M., Hielkema, T., Hamer, E.G., Boxum, A.G., Bastide-Van Gemert, S. La, Dirks, T., Reinders-Messelink, H.A., Maathuis, C.G.B., Verheijden, J., Geertzen, J.H., and Hadders-Algra, M.
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Contains fulltext : 229748.pdf (Publisher’s version ) (Open Access), Purpose: Evidence for efficacy of early intervention in infants at high risk of cerebral palsy (CP) is limited. We compared outcome of infants at very high risk of CP after receiving the family centered program COPing with and CAring for infants with special needs (COPCA) or typical infant physiotherapy.Materials and methods: Forty-three infants were randomly assigned before the corrected age of 9 months to 1 year of COPCA (n = 23) or typical infant physiotherapy (n = 20). Neuromotor development, cognition, and behavior was assessed until 21 months corrected age. Video-recorded physiotherapy sessions were quantitatively analyzed for further process analyses. Outcome was evaluated with nonparametric tests and linear mixed effect models.Results: During and after the interventions, infant outcome in both intervention groups was similar [primary outcome Infant Motor Profile: COPCA 82 (69-94), typical infant physiotherapy 81 (69-89); Hodges Lehman estimate of the difference 0 (confidence interval -5;4)]. Outcome was not associated with contents of intervention.Conclusions: One year of COPCA and 1 year of typical infant physiotherapy in infants at high risk of CP resulted in similar neurodevelopmental outcomes. It is conceivable that combinations of active ingredients from different approaches are needed for effective early intervention.IMPLICATIONS FOR REHABILITATIONFor infants at very high risk of cerebral palsy, 1 year of intervention with the family-centred programme Coping with and Caring for infants with special needs resulted in similar infant outcome as 1 year of typical infant physiotherapy.Infant's neuromotor, cognitive, and behavioural outcome was not associated with specific interventional elements, implying that the various elements may have a similar effect on developmental outcome.We suggest that a specific mix of ingredients of different approaches may work best, resulting in comprehensive care including both infant and family needs.
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- 2020
9. Participation in Social Roles of Adolescents With Cerebral Palsy: Exploring Accomplishment and Satisfaction
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Smits, Dirk-Wouter, primary, van Gorp, Marloes, additional, van Wely, Leontien, additional, Verheijden, Johannes, additional, Voorman, Jeanine, additional, Wintels, Sophie, additional, van der Cruijsen, Joyce, additional, Ketelaar, Marjolijn, additional, Ketelaar, M., additional, Smits, D.W., additional, Voorman, J.M., additional, Dallmeijer, A.J., additional, Roebroeck, M.E., additional, Reinders-Messelink, H.A., additional, Gorter, J.W., additional, and Verheijden, J., additional
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- 2019
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10. Samenwerken en samen beslissen met ouders in de zorg voor kinderen met een beperking
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Alsem, M.W., Wong-Chung, R.W., Ketelaar, M., Verheijden, J., Amsterdam Movement Sciences, Amsterdam Reproduction & Development, and Rehabilitation
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- 2018
11. Longitudinal Association Between Gross Motor Capacity and Neuromusculoskeletal Function in Children and Youth With Cerebral Palsy
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Vos, Rimke C., Becher, Jules G., Voorman, Jeanine M., Gorter, Jan Willem, van Eck, Mirjam, van Meeteren, Jetty, Smits, Dirk Wouter, Twisk, Jos W., Dallmeijer, Annet J., van Schie, P. E M, Schuengel, C., Ketelaar, M., Lindeman, E., Jongmans, M., Roebroeck, M. E., Tan, S. S., Wiegerink, D. J H G, Reinders-Messelink, H. A., Verheijden, J., Leerstoel Jongmans, Sub Onderzoeksdirectie, Education and Learning: Cognitive and Motor Disabilities, Rehabilitation medicine, EMGO - Musculoskeletal health, MOVE Research Institute, Epidemiology and Data Science, Methodology and Applied Biostatistics, Kinesiology, Clinical Child and Family Studies, LEARN! - Social cognition and learning, EMGO+ - Mental Health, and Rehabilitation Medicine
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Male ,Physical Therapy ,medicine.medical_treatment ,Severity of Illness Index ,Disability Evaluation ,0302 clinical medicine ,Motor disorders ,Longitudinal Studies ,Prospective Studies ,Range of Motion, Articular ,Child ,Motor skill ,Netherlands ,Rehabilitation ,Gross Motor Function Classification System ,AdolescentCerebral Palsy Child Child, Preschool Disability Evaluation Female Hip Humans Knee Longitudinal Studies Male Motor Skills Muscle Spasticity Muscle Strength Netherlands Physical Therapy Modalities Prospective Studies Range of Motion, Articular Severity of Illness Index Young Adult Adolescent Cerebral palsy Child Motor disorders Rehabilitation ,Motor Skills ,Muscle Spasticity ,Child, Preschool ,Female ,medicine.symptom ,Range of motion ,Psychology ,Articular Severity of Illness Index Young Adult Adolescent Cerebral palsy Child Motor disorders Rehabilitation ,medicine.medical_specialty ,Adolescent ,Gross motor skill ,Physical Therapy, Sports Therapy and Rehabilitation ,Sports Therapy and Rehabilitation ,Cerebral palsy ,03 medical and health sciences ,Young Adult ,Preschool Disability Evaluation Female Hip Humans Knee Longitudinal Studies Male Motor Skills Muscle Spasticity Muscle Strength Netherlands Physical Therapy Modalities Prospective Studies Range of Motion ,Physical medicine and rehabilitation ,030225 pediatrics ,medicine ,Journal Article ,Humans ,Knee ,Spasticity ,Muscle Strength ,Physical Therapy Modalities ,Hip ,AdolescentCerebral Palsy Child Child ,Motor control ,medicine.disease ,Physical therapy ,030217 neurology & neurosurgery - Abstract
Objective: To examine associations over longitudinal measurements between neuromusculoskeletal function and gross motor capacity in children and youth with cerebral palsy (CP). Design: A prospective cohort study. Setting: Rehabilitation departments of university medical centers and rehabilitations centers. Participants: A sample (N=327) consisting of 148 children (aged 5-9y) and 179 youth (aged 11-20y) with CP, Gross Motor Function Classification System level I (n=180), level II (n=44), level III (n=36), level IV (n=34), and level V (n=33). Interventions: Not applicable. Main Outcome Measures: Gross motor capacity was assessed with the Gross Motor Function Measure-66 over a period of 2 to 4 years in different age cohorts. Neuromusculoskeletal function included selective motor control (SMC), muscle strength, spasticity, and range of motion (ROM) of the lower extremities. Results: Multilevel analyses showed that SMC was significantly associated with gross motor capacity in children and youth with CP, showing higher values and a more favorable course of gross motor capacity in those with better SMC. Strength was only associated with gross motor capacity in youth. Reduced ROM of hip (children) and knee extension (youth) and spasticity of the hip adductors (youth) were additionally but more weakly associated with lower values and a less favorable course of gross motor capacity. Conclusions: Results indicate that children and youth with more severely impaired SMC and youth with reduced muscle strength have a less favorable course of gross motor capacity, while spasticity and reduced ROM are less determinative. (C) 2016 by the American Congress of Rehabilitation Medicine
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- 2016
12. The Long Beach barrier island and a rising sea
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Verheijden, J., Bierkens, M.F.P. (Thesis Advisor), Verheijden, J., and Bierkens, M.F.P. (Thesis Advisor)
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Barrier coasts have a meagre elevation above the sea and their location in front of the mainland makes them very vulnerable for sea level rise and climate changes. Barrier coasts are very prone to floods and a first line of defense against the natural violence of hurricanes and North Easter storms (nor’easters) . The Long Beach Barrier Island is located a few steps away from New York City. It is highly urbanized and has a high exposure to water related problems. Therefore, the Long Beach barrier island forms an interesting case study. This thesis aims to gain a broad and better understanding of the effects of sea level rise and climate changes on the groundwater level of the Long Beach barrier island. In addition, the study tries to find out how these changes might affect the island. To evaluate the effect of climate change and sea level rise, groundwater models have been developed in PMWIN and iMod. Scenarios are used as input for these models and are based on climate change projections of the New York Panel on Climate Change (NPCC). The model outcomes show that future climate changes and sea level rise might have a large impact on the groundwater level of the island. As climate change induces less recharge the shape of the groundwater level might become less convex in the future. On the other hand, sea level rise will result in a global rise of groundwater levels in two of the three scenarios. The model outcomes show that the shores of the island will experience the highest groundwater level rise. These changes are greatest in winter months where groundwater levels might increase with one meter at the shores. As evapotranspiration increases in summer months, groundwater levels in summers are expected to decline. The model outcomes show that seasonal differences in groundwater levels become greater. These changes in groundwater level might have a great impact on the City of Long Beach, the biggest city on the barrier island. As the islands elevation is lower on the
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- 2016
13. Longitudinal Association Between Gross Motor Capacity and Neuromusculoskeletal Function in Children and Youth With Cerebral Palsy
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Leerstoel Jongmans, Sub Onderzoeksdirectie, Education and Learning: Cognitive and Motor Disabilities, Vos, Rimke C., Becher, Jules G., Voorman, Jeanine M., Gorter, Jan Willem, van Eck, Mirjam, van Meeteren, Jetty, Smits, Dirk Wouter, Twisk, Jos W., Dallmeijer, Annet J., van Schie, P. E M, Schuengel, C., Ketelaar, M., Lindeman, E., Jongmans, M., Roebroeck, M. E., Tan, S. S., Wiegerink, D. J H G, Reinders-Messelink, H. A., Verheijden, J., BOSK, Leerstoel Jongmans, Sub Onderzoeksdirectie, Education and Learning: Cognitive and Motor Disabilities, Vos, Rimke C., Becher, Jules G., Voorman, Jeanine M., Gorter, Jan Willem, van Eck, Mirjam, van Meeteren, Jetty, Smits, Dirk Wouter, Twisk, Jos W., Dallmeijer, Annet J., van Schie, P. E M, Schuengel, C., Ketelaar, M., Lindeman, E., Jongmans, M., Roebroeck, M. E., Tan, S. S., Wiegerink, D. J H G, Reinders-Messelink, H. A., Verheijden, J., and BOSK
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- 2016
14. LEARN2MOVE 0-2 years, a randomized early intervention trial for infants at very high risk of cerebral palsy: neuromotor, cognitive, and behavioral outcome.
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Hielkema T, Hamer EG, Boxum AG, La Bastide-Van Gemert S, Dirks T, Reinders-Messelink HA, Maathuis CGB, Verheijden J, Geertzen JHB, and Hadders-Algra M
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- Child Development, Cognition, Early Intervention, Educational, Humans, Infant, Physical Therapy Modalities, Cerebral Palsy
- Abstract
Purpose: Evidence for efficacy of early intervention in infants at high risk of cerebral palsy (CP) is limited. We compared outcome of infants at very high risk of CP after receiving the family centered program COPing with and CAring for infants with special needs (COPCA) or typical infant physiotherapy. Materials and methods: Forty-three infants were randomly assigned before the corrected age of 9 months to 1 year of COPCA ( n = 23) or typical infant physiotherapy ( n = 20). Neuromotor development, cognition, and behavior was assessed until 21 months corrected age. Video-recorded physiotherapy sessions were quantitatively analyzed for further process analyses. Outcome was evaluated with nonparametric tests and linear mixed effect models. Results: During and after the interventions, infant outcome in both intervention groups was similar [primary outcome Infant Motor Profile: COPCA 82 (69-94), typical infant physiotherapy 81 (69-89); Hodges Lehman estimate of the difference 0 (confidence interval -5;4)]. Outcome was not associated with contents of intervention. Conclusions: One year of COPCA and 1 year of typical infant physiotherapy in infants at high risk of CP resulted in similar neurodevelopmental outcomes. It is conceivable that combinations of active ingredients from different approaches are needed for effective early intervention.IMPLICATIONS FOR REHABILITATIONFor infants at very high risk of cerebral palsy, 1 year of intervention with the family-centred programme Coping with and Caring for infants with special needs resulted in similar infant outcome as 1 year of typical infant physiotherapy.Infant's neuromotor, cognitive, and behavioural outcome was not associated with specific interventional elements, implying that the various elements may have a similar effect on developmental outcome.We suggest that a specific mix of ingredients of different approaches may work best, resulting in comprehensive care including both infant and family needs.
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- 2020
- Full Text
- View/download PDF
15. LEARN2MOVE 0-2 years, a randomized early intervention trial for infants at very high risk of cerebral palsy: family outcome and infant's functional outcome.
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Hielkema T, Boxum AG, Hamer EG, La Bastide-Van Gemert S, Dirks T, Reinders-Messelink HA, Maathuis CGB, Verheijden J, Geertzen JHB, and Hadders-Algra M
- Subjects
- Child Development, Early Intervention, Educational, Humans, Infant, Physical Therapy Modalities, Quality of Life, Cerebral Palsy
- Abstract
Purpose: To compare family and functional outcome in infants at very high risk of cerebral palsy, after receiving the family centred programme "Coping with and Caring for infants with special needs (COPCA)" or typical infant physiotherapy. Materials and methods: Forty-three infants at very high risk were included before 9 months corrected age and randomly assigned to one year COPCA ( n = 23) or typical infant physiotherapy ( n = 20). Family and infant outcome were assessed before and during the intervention. Physiotherapy intervention sessions were analysed quantitatively for process analysis. Outcome was evaluated with non-parametric tests and linear mixed-effect models. Results: Between-group comparisons revealed no differences in family and infant outcomes. Within-group analysis showed that family's quality of life improved over time in the COPCA-group. Family empowerment was positively associated with intervention elements, including "caregiver coaching." Conclusions: One year of COPCA or typical infant physiotherapy resulted in similar family and functional outcomes. Yet, specific intervention elements, e.g., coaching, may increase empowerment of families of very high risk infants and may influence quality of life, which emphasizes the importance of family centred services.Implications for rehabilitationOne year of the family centred programme "Coping with and a Caring for infants with special needs" compared with typical infant physiotherapy resulted in similar family outcome and similar functional outcome for the infants at very high risk for cerebral palsy.Specific contents of intervention, such as caregiver coaching, are associated with more family empowerment and increased quality of life.Emphasis on family needs is important in early intervention for infants at very high risk for cerebral palsy.
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- 2020
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16. Managing oneself or managing together? Parents' perspectives on chronic condition self-management in Dutch pediatric rehabilitation services.
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Wong Chung R, Willemen A, Voorman J, Ketelaar M, Becher J, Verheijden J, and Schuengel C
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- Child, Cross-Sectional Studies, Humans, Parents, Professional-Family Relations, Qualitative Research, Self-Management
- Abstract
Purpose: With the growing attention in pediatric rehabilitation services for supporting self-management, the need increases for more shared understanding of the concept. The aim of this study was to explore parent activation, associated factors of- and underlying perceptions on parental self-management of parents of children with chronic conditions. Materials and methods: Using a mixed-methods strategy, first variations in self-management behaviors, motivation and perceived autonomy support were assessed with a cross-sectional survey among parents of children with chronic conditions ( N = 239). Statistical analysis involved descriptive statistics and univariate analysis of variance. The survey was followed by 18 in-depth interviews with parents. Thematic analysis was used to recognize relevant topics in the qualitative data. Results: In the survey most parents reported being active self-managers. Nevertheless, only one third persisted in self-management when under stress. Autonomous motivation was strongly associated with parental self-management. In the interviews, parents mentioned attuning with professionals and finding balance as important aspects of self-management. To facilitate self-management, professionals were expected to have expert knowledge, be engaged and empathic. Conclusion: From the perspective of parents, self-management should be viewed as a collaborative effort in which they are supported by professionals, rather than having to manage it "by themselves".Implications for rehabilitationTo facilitate self-management, parents expect professionals to have expert knowledge and additionally show interpersonal competences as openness, engagement and empathy.Motivating parents may facilitate their level of self-management regarding the care for their child with a chronic disorder.Good communication and collaboration with professionals appear to be key aspects of parental self-management.Parents expect pediatric rehabilitation teams to tune their services to the needs, desires and expectations of parents to support them in "self-managing" the care for their child.
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- 2020
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17. How do adolescents with cerebral palsy participate? Learning from their personal experiences.
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Wintels SC, Smits DW, van Wesel F, Verheijden J, and Ketelaar M
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- Adolescent, Checklist, Environment, Female, Grounded Theory, Humans, Interviews as Topic, Male, Social Participation, Cerebral Palsy psychology, Disabled Persons psychology, Patient Participation
- Abstract
Background: Participation in society can be difficult for adolescents with cerebral palsy (CP). Information is often based on quantitative studies, and little is known about their personal participation experiences., Objective: The aim of this study was to examine the participation experiences of adolescents (aged 12-17 years) with CP., Methods: A qualitative participatory research method was used. Twenty-three semi-structured open interviews were conducted with 13 male and 10 female adolescents (mean age 15 years) with CP. An interview checklist was developed jointly with adolescents with CP. This checklist ensured that the adolescents reflected on various participation areas, that is school, sports, health care and work. The analysis was based on principles of grounded theory., Findings: From the adolescents' experiences, 4 key categories were identified. One concerned participation, as such, expressed as "My participation experiences," including experiences, thoughts and feelings while participating in daily life. Three other categories concerned factors that influence participation experiences, expressed as "My disability," "Me as a person" and "My environment." These 4 categories together formed a model showing the interactions and dynamics of participation according to adolescents with CP., Conclusion: Adolescents with CP expressed their participation experiences, including various important influencing factors. This study conceptualized these experiences into a dynamic model. This experience-based participation model may provide new, personalized perspectives for practice, for instance in rehabilitation, but also for schools and sports (or sports clubs) attended by adolescents. Focusing on personal and environmental factors might be the key to successful participation., (© 2018 The Authors. Health Expectations published by John Wiley & Sons Ltd.)
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- 2018
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18. Efficacy of three therapy approaches in preschool children with cerebral palsy: a randomized controlled trial.
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Kruijsen-Terpstra AJA, Ketelaar M, Verschuren O, Gorter JW, Vos RC, Verheijden J, Jongmans MJ, and Visser-Meily A
- Abstract
Aim: To examine the efficacy of child-focused, context-focused, and regular care approaches, delivered in a rehabilitation setting by physical or occupational therapists to preschool children with cerebral palsy (CP), in optimizing the child's self-care and mobility capabilities., Method: A multicentre randomized controlled trial clustered at therapist level was conducted in 13 rehabilitation centres. It included 68 children with CP (38 males, 30 females; mean age 3y, SD 6mo, range 1y 11mo-4y), classified as Gross Motor Function Classification System levels I to IV, who were already receiving therapy. Children received a child-focused, context-focused, or regular care approach during a 6-month period. Self-care and mobility capabilities were assessed with the Functional Skills Scale of the Pediatric Evaluation of Disability Inventory., Results: The child-focused, context-focused, and regular care approaches all resulted in significant but similar improvements in self-care (regular: reference; child-focused: β=-0.11, 95% confidence interval [CI] -0.68 to 0.46; context-focused: β=0.13, CI -0.38 to 0.64) and mobility (regular: reference; child-focused: β=-0.09, CI=-0.93 to 0.75; and context-focused: β=0.14, CI -0.65 to 0.94) capabilities., Interpretation: The results suggest that the three therapy approaches were equally efficacious for preschool children with CP. Depending on a child's individual situation each approach can be selected., (© 2015 Mac Keith Press.)
- Published
- 2016
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