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1. AB1701 IS THERE A DIFFERENCE IN THE NUMBER OF INVOLVED ORGAN SYSTEMS BETWEEN JUVENILE DIFFUSE AND LIMITED SUBTYPE SYSTEMIC SCLEROSIS PATIENTS?

Author

Foeldvari, I., primary, Klotsche, J., additional, Torok, K., additional, Kasapcopur, O., additional, Adrovic, A., additional, Feldman, B., additional, Antón, J., additional, Johnson, S. R., additional, Sztajnbok, F. R., additional, Terreri, M. T., additional, Sakamoto, A. P., additional, Khubchandani, R., additional, Stanevicha, V., additional, Schonenberg, D., additional, Al-Abadi, E., additional, Alexeeva, E., additional, Katsikas, M., additional, Sawhney, S., additional, Smith, V., additional, Appenzeller, S., additional, Avcin, T., additional, Kostik, M., additional, Lehman, T., additional, Malcova, H., additional, Marrani, E., additional, Pain, C., additional, Patwardhan, A., additional, Sifuentes-Giraldo, W. A., additional, Vasquez-Canizares, N., additional, Abu Al Saoud, S., additional, Costa Reis, P., additional, Janarthanan, M., additional, Moll, M., additional, Nemcova, D., additional, Santos, M. J., additional, Battagliotti, C., additional, Berntson, L., additional, Bica, B., additional, Brunner, J., additional, Eleftheriou, D., additional, Harel, L., additional, Horneff, G., additional, Kaiser, D., additional, Kallinich, T., additional, Lazarevic, D., additional, Minden, K., additional, Nuruzzaman, F., additional, Opsahl Hetlevik, S., additional, Sparchez, M., additional, Uziel, Y., additional, and Helmus, N., additional

Published
2024
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2. POS0758 PRESENCE OF NAILFOLD CAPILLARY CHANGES CORRELATES WITH MORE SEVERE ORGAN INVOLVEMENT IN JUVENILE SYSTEMIC SCLERODERMA. RESULTS OF THE JUVENILE SCLERODERMA INCEPTION COHORT.

Author

Foeldvari, I., primary, Klotsche, J., additional, Torok, K., additional, Kasapcopur, O., additional, Adrovic, A., additional, Feldman, B., additional, Antón, J., additional, Johnson, S. R., additional, Sztajnbok, F. R., additional, Terreri, M. T., additional, Sakamoto, A. P., additional, Stanevicha, V., additional, Schonenberg, D., additional, Alexeeva, E., additional, Katsikas, M., additional, Khubchandani, R., additional, Sawhney, S., additional, Smith, V., additional, Al-Abadi, E., additional, Appenzeller, S., additional, Avcin, T., additional, Kostik, M., additional, Lehman, T., additional, Malcova, H., additional, Marrani, E., additional, Pain, C., additional, Patwardhan, A., additional, Sifuentes-Giraldo, W. A., additional, Vasquez-Canizares, N., additional, Abu Al Saoud, S., additional, Costa Reis, P., additional, Janarthanan, M., additional, Moll, M., additional, Nemcova, D., additional, Santos, M. J., additional, Battagliotti, C., additional, Berntson, L., additional, Bica, B., additional, Brunner, J., additional, Eleftheriou, D., additional, Harel, L., additional, Horneff, G., additional, Kaiser, D., additional, Kallinich, T., additional, Lazarevic, D., additional, Minden, K., additional, Nielsen, S., additional, Nuruzzaman, F., additional, Opsahl Hetlevik, S., additional, Sparchez, M., additional, Uziel, Y., additional, and Helmus, N., additional

Published
2024
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3. POS0770 DIFFERENCES IN CLINICAL PRESENTATION BETWEEN JUVENILE SYSTEMIC SCLEROSIS PATIENTS WITH DIFFUSE AND LIMITED SUBTYPE. RESULTS FROM THE JUVENILE SCLERODERMA INCEPTION COHORT.

Author

Foeldvari, I., primary, Klotsche, J., additional, Torok, K., additional, Kasapcopur, O., additional, Adrovic, A., additional, Feldman, B., additional, Antón, J., additional, Johnson, S. R., additional, Sztajnbok, F. R., additional, Terreri, M. T., additional, Sakamoto, A. P., additional, Khubchandani, R., additional, Stanevicha, V., additional, Schonenberg, D., additional, Al-Abadi, E., additional, Alexeeva, E., additional, Katsikas, M., additional, Sawhney, S., additional, Smith, V., additional, Appenzeller, S., additional, Avcin, T., additional, Kostik, M., additional, Lehman, T., additional, Malcova, H., additional, Marrani, E., additional, Pain, C., additional, Patwardhan, A., additional, Sifuentes-Giraldo, W. A., additional, Vasquez-Canizares, N., additional, Abu Al Saoud, S., additional, Costa Reis, P., additional, Janarthanan, M., additional, Moll, M., additional, Nemcova, D., additional, Santos, M. J., additional, Battagliotti, C., additional, Berntson, L., additional, Bica, B., additional, Brunner, J., additional, Eleftheriou, D., additional, Harel, L., additional, Horneff, G., additional, Kaiser, D., additional, Kallinich, T., additional, Lazarevic, D., additional, Minden, K., additional, Nuruzzaman, F., additional, Opsahl Hetlevik, S., additional, Sparchez, M., additional, Uziel, Y., additional, and Helmus, N., additional

Published
2024
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4. POS0139 DIFFUSE JUVENILE SYSTEMIC SCLEROSIS PATIENTS SHOW DISTINCT ORGAN INVOLVEMENT, ANTIBODY PATTERN AND HAVE SIGNIFICANTLY MORE SEVERE DISEASE IN THE LARGEST JSSC COHORT OF THE WORLD. RESULTS FROM THE JUVENILE SCLERODERMA INCEPTION COHORT

Author

Foeldvari, I., primary, Klotsche, J., additional, Torok, K., additional, Kasapcopur, O., additional, Adrovic, A., additional, Terreri, M. T., additional, Sakamoto, A. P., additional, Feldman, B., additional, Sztajnbok, F. R., additional, Antón, J., additional, Stanevicha, V., additional, Johnson, S., additional, Khubchandani, R., additional, Schonenberg, D., additional, Al-Abadi, E., additional, Alexeeva, E., additional, Katsikas, M., additional, Sawhney, S., additional, Smith, V., additional, Appenzeller, S., additional, Avcin, T., additional, Kostik, M., additional, Lehman, T., additional, Malcova, H., additional, Marrani, E., additional, Pain, C., additional, Patwardhan, A., additional, Sifuentes-Giraldo, W. A., additional, Vasquez-Canizares, N., additional, Costa Reis, P., additional, Janarthanan, M., additional, Moll, M., additional, Nemcova, D., additional, Santos, M. J., additional, Abu Al Saoud, S., additional, Battagliotti, C., additional, Berntson, L., additional, Bica, B., additional, Brunner, J., additional, Eleftheriou, D., additional, Harel, L., additional, Horneff, G., additional, Kaiser, D., additional, Kallinich, T., additional, Lazarevic, D., additional, Minden, K., additional, Nielsen, S., additional, Nuruzzaman, F., additional, Opsahl Hetlevik, S., additional, Uziel, Y., additional, and Helmus, N., additional

Published
2023
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5. POS0140 PATIENT AND PHYSICIAN REPORTED OUTCOMES OF JUVENILE SYSTEMIC SCLEROSIS PATIENTS SIGNIFICANTLY IMPROVE OVER 24 MONTHS OBSERVATION PERIOD IN THE JUVENILE SYSTEMIC SCLERODERMA INCEPTION COHORT

Author

Foeldvari, I., primary, Klotsche, J., additional, Kasapcopur, O., additional, Adrovic, A., additional, Torok, K., additional, Terreri, M. T., additional, Sakamoto, A. P., additional, Antón, J., additional, Feldman, B., additional, Khubchandani, R., additional, Kostik, M., additional, Lehman, T., additional, Marrani, E., additional, Katsikas, M., additional, Nemcova, D., additional, Santos, M. J., additional, Sztajnbok, F. R., additional, Appenzeller, S., additional, Battagliotti, C., additional, Berntson, L., additional, Brunner, J., additional, Harel, L., additional, Horneff, G., additional, Johnson, S., additional, Kallinich, T., additional, Minden, K., additional, Moll, M., additional, Nuruzzaman, F., additional, Patwardhan, A., additional, Schonenberg, D., additional, and Helmus, N., additional

Published
2023
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6. POS0141 APPLICATION OF CRISS SCORE, REVISED CRISS SCORE AND RCID SCORE IN PATIENTS WITH JUVENILE SYSTEMIC SCLEROSIS

Author

Klotsche, J., primary, Foeldvari, I., additional, Torok, K., additional, Del Galdo, F., additional, Furst, D., additional, Kasapcopur, O., additional, Adrovic, A., additional, Feldman, B., additional, Terreri, M. T., additional, Sakamoto, A. P., additional, Sztajnbok, F. R., additional, Antón, J., additional, Katsikas, M., additional, Stanevicha, V., additional, Appenzeller, S., additional, Avcin, T., additional, Johnson, S., additional, Kostik, M., additional, Malcova, H., additional, Marrani, E., additional, Sifuentes-Giraldo, W. A., additional, Khubchandani, R., additional, Nemcova, D., additional, Santos, M. J., additional, Schonenberg, D., additional, Battagliotti, C., additional, Berntson, L., additional, Bica, B., additional, Brunner, J., additional, Eleftheriou, D., additional, Harel, L., additional, Horneff, G., additional, Kallinich, T., additional, Lehman, T., additional, Minden, K., additional, Moll, M., additional, Nielsen, S., additional, Patwardhan, A., additional, Smith, V., additional, and Helmus, N., additional

Published
2023
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7. Application of CRISS score, revised CRISS score and RCID score in patients with Juvenile systemic sclerosis

Author

Klotsche, J, Foeldvari, I, Torok, K, Del Gado, F, Furst, DE, Kasapcopur, O, Adrovic, A, Feldman, B, Terreri, MT, Sakamoto, AP, Sztajnbok, F, Anton, J, Katsicas, M, Stanevicha, V, Appenzeller, S, Avcin, T, Johnson, S, Kostik, M, Malcova, H, Marrani, E, Sifuentes-Giraldo, WA, Khubchandani, R, Nemcova, D, Santos, MJ, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lehman, T, Minden, K, Moll, M, Nielsen, S, Patwardhan, A, Smith, V, Helmus, N, Klotsche, J, Foeldvari, I, Torok, K, Del Gado, F, Furst, DE, Kasapcopur, O, Adrovic, A, Feldman, B, Terreri, MT, Sakamoto, AP, Sztajnbok, F, Anton, J, Katsicas, M, Stanevicha, V, Appenzeller, S, Avcin, T, Johnson, S, Kostik, M, Malcova, H, Marrani, E, Sifuentes-Giraldo, WA, Khubchandani, R, Nemcova, D, Santos, MJ, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lehman, T, Minden, K, Moll, M, Nielsen, S, Patwardhan, A, Smith, V, and Helmus, N

Published
2023

8. Patient and physician reported outcomes of juvenile systemic sclerosis patients significantly improve over 24 months observation period in the juvenile systemic scleroderma inception cohort

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Anton, J, Feldman, B, Khubchandani, R, Kostik, M, Lehman, T, Marrani, E, Katsicas, M, Nemcova, D, Santos, MJ, Sztajnbok, F, Appenzeller, S, Battagliotti, C, Berntson, L, Brunner, J, Harel, L, Horneff, G, Johnson, S, Kallinich, T, Minden, K, Moll, M, Nuruzzaman, F, Patwardhan, A, Schonenberg, D, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Anton, J, Feldman, B, Khubchandani, R, Kostik, M, Lehman, T, Marrani, E, Katsicas, M, Nemcova, D, Santos, MJ, Sztajnbok, F, Appenzeller, S, Battagliotti, C, Berntson, L, Brunner, J, Harel, L, Horneff, G, Johnson, S, Kallinich, T, Minden, K, Moll, M, Nuruzzaman, F, Patwardhan, A, Schonenberg, D, and Helmus, N

Published
2023

9. Diffuse juvenile systemic sclerosis patients show distinct organ involvement, antibody pattern and have significantly more severe disease in the largest jSSc cohort of the world. Results from the juvenile scleroderma inception cohort

Author

Foeldvari, I, Klotsche, J, Torok, K, Kasapcopur, O, Adrovic, A, Terreri, MT, Sakamoto, AP, Feldman, B, Sztajnbok, F, Anton, J, Stanevicha, V, Johnson, S, Khubchandani, R, Schonenberg, D, Al-Abadi, E, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Malcova, H, Marrani, E, Pain, C, Patwardhan, A, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Nemcova, D, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, Helmus, N, Foeldvari, I, Klotsche, J, Torok, K, Kasapcopur, O, Adrovic, A, Terreri, MT, Sakamoto, AP, Feldman, B, Sztajnbok, F, Anton, J, Stanevicha, V, Johnson, S, Khubchandani, R, Schonenberg, D, Al-Abadi, E, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Malcova, H, Marrani, E, Pain, C, Patwardhan, A, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Nemcova, D, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, and Helmus, N

Published
2023

10. Is decreased body mass index-2 z score or less correlating with an organ involvement pattern? Results from the juvenile scleroderma inception cohort

Author

Foeldvari, I, Klotsche, J, Torok, K, Kasapcopur, O, Adrovic, A, Feldman, B, Sztajnbok, F, Anton, J, Terreri, MT, Sakamoto, AP, Khubchandani, R, Stanevicha, V, Al-Abadi, E, Alexeeva, E, Katsicas, M, Sawhney, S, Schonenberg, D, Smith, V, Appenzeller, S, Avcin, T, Lehman, T, Malcova, H, Marrani, E, Patwardhan, A, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Johnson, S, Kostik, M, Nemcova, D, Pain, C, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, Helmus, N, Foeldvari, I, Klotsche, J, Torok, K, Kasapcopur, O, Adrovic, A, Feldman, B, Sztajnbok, F, Anton, J, Terreri, MT, Sakamoto, AP, Khubchandani, R, Stanevicha, V, Al-Abadi, E, Alexeeva, E, Katsicas, M, Sawhney, S, Schonenberg, D, Smith, V, Appenzeller, S, Avcin, T, Lehman, T, Malcova, H, Marrani, E, Patwardhan, A, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Johnson, S, Kostik, M, Nemcova, D, Pain, C, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, and Helmus, N

Published
2023

11. Diffuse juvenile systemic sclerosis patients show distinct organ involvement and have more severe disease in the largest jSSc cohort of the world. Results from the the juvenile scleroderma inception cohort

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Sztajnbok, F, Stanevicha, V, Anton, J, Johnson, S, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Malcova, H, Marrani, E, Pain, C, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Sztajnbok, F, Stanevicha, V, Anton, J, Johnson, S, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Malcova, H, Marrani, E, Pain, C, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Costa Reis, P, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Abu Al-Saoud, S, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nuruzzaman, F, Opsahl Hetlevik, S, Uziel, Y, and Helmus, N

Published
2022

12. Juvenile systemic sclerosis treatment practices in an international cohort and comparison to recent SHARE consensus guidelines

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Anton, J, Sztajnbok, F, Stanevicha, V, Appenzeller, S, Avcin, T, Johnson, S, Khubchandani, R, Kostik, M, Marrani, E, Sifuentes-Giraldo, WA, Nemcova, D, Santos, MJ, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Janarthanan, M, Kallinich, T, Lehman, T, Moll, M, Nuruzzaman, F, Patwardhan, A, Smith, V, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Anton, J, Sztajnbok, F, Stanevicha, V, Appenzeller, S, Avcin, T, Johnson, S, Khubchandani, R, Kostik, M, Marrani, E, Sifuentes-Giraldo, WA, Nemcova, D, Santos, MJ, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Janarthanan, M, Kallinich, T, Lehman, T, Moll, M, Nuruzzaman, F, Patwardhan, A, Smith, V, and Helmus, N

Published
2022

13. Patient and physician reported outcomes of juvenile systemic sclerosis patients significantly improve over 12 months observation period in the juvenile systemic scleroderma inception cohort

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Feldman, B, Anton, J, Katsicas, M, Stanevicha, V, Sztajnbok, F, Appenzeller, S, Avcin, T, Kostik, M, Marrani, E, Sifuentes-Giraldo, WA, Johnson, S, Khubchandani, R, Nemcova, D, Santos, MJ, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Janarthanan, M, Kallinich, T, Minden, K, Moll, M, Nielsen, S, Patwardhan, A, Schonenberg, D, Smith, V, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Feldman, B, Anton, J, Katsicas, M, Stanevicha, V, Sztajnbok, F, Appenzeller, S, Avcin, T, Kostik, M, Marrani, E, Sifuentes-Giraldo, WA, Johnson, S, Khubchandani, R, Nemcova, D, Santos, MJ, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Cimaz, R, Eleftheriou, D, Harel, L, Horneff, G, Janarthanan, M, Kallinich, T, Minden, K, Moll, M, Nielsen, S, Patwardhan, A, Schonenberg, D, Smith, V, and Helmus, N

Published
2022

14. Clinical characteristics of juvenile onset systemic sclerosis patients from the juvenile scleroderma inception cohort compared to adult age juvenile-onset patients from EUSTAR. Are these differences suggesting risk for mortality?

Author

Foeldvari, I, Klotsche, J, Carreira, PE, Kasapcopur, O, Adrovic, A, Torok, K, Airò, P, Iannone, F, Allanore, Y, Balbir-Gurman, A, Schmeiser, T, Sztajnbok, F, Terreri, MT, Stanevicha, V, Anton, J, Feldman, B, Khubchandani, R, Alexeeva, E, Johnson, S, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Campochiaro, C, De Vries-Bouwstra, J, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Malcova, H, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Seskute, G, Truchetet, ME, Veale, D, Hoffmann-Vold, AM, Gabrielli, A, Distler, O, Foeldvari, I, Klotsche, J, Carreira, PE, Kasapcopur, O, Adrovic, A, Torok, K, Airò, P, Iannone, F, Allanore, Y, Balbir-Gurman, A, Schmeiser, T, Sztajnbok, F, Terreri, MT, Stanevicha, V, Anton, J, Feldman, B, Khubchandani, R, Alexeeva, E, Johnson, S, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Campochiaro, C, De Vries-Bouwstra, J, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Malcova, H, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Seskute, G, Truchetet, ME, Veale, D, Hoffmann-Vold, AM, Gabrielli, A, and Distler, O

Published
2022

15. POS0172 DIFFUSE JUVENILE SYSTEMIC SCLEROSIS PATIENTS SHOW DISTINCT ORGAN INVOLVEMENT AND HAVE MORE SEVERE DISEASE IN THE LARGEST jSSc COHORT OF THE WORLD. RESULTS FROM THE THE JUVENILE SCLERODERMA INCEPTION COHORT. www.juvenile-scleroderma.com

Author

Foeldvari, I., primary, Klotsche, J., additional, Kasapcopur, O., additional, Adrovic, A., additional, Torok, K., additional, Terreri, M. T., additional, Sakamoto, A. P., additional, Feldman, B., additional, Sztajnbok, F. R., additional, Stanevicha, V., additional, Anton, J., additional, Johnson, S., additional, Khubchandani, R., additional, Alexeeva, E., additional, Katsikas, M., additional, Sawhney, S., additional, Smith, V., additional, Appenzeller, S., additional, Avcin, T., additional, Kostik, M., additional, Lehman, T., additional, Malcova, H., additional, Marrani, E., additional, Pain, C., additional, Schonenberg, D., additional, Sifuentes-Giraldo, W. A., additional, Vasquez-Canizares, N., additional, Costa Reis, P., additional, Janarthanan, M., additional, Moll, M., additional, Nemcova, D., additional, Patwardhan, A., additional, Santos, M. J., additional, Abu Al Saoud, S., additional, Battagliotti, C., additional, Berntson, L., additional, Bica, B., additional, Brunner, J., additional, Cimaz, R., additional, Eleftheriou, D., additional, Harel, L., additional, Horneff, G., additional, Kaiser, D., additional, Kallinich, T., additional, Lazarevic, D., additional, Minden, K., additional, Nielsen, S., additional, Nuruzzaman, F., additional, Opsahl Hetlevik, S., additional, Uziel, Y., additional, and Helmus, N., additional

Published
2022
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16. AB1236 CLINICAL CHARACTERISTICS OF JUVENILE ONSET SYSTEMIC SCLEROSIS PATIENTS FROM THE JUVENILE SCLERODERMA INCEPTION COHORT COMPARED TO ADULT AGE JUVENILE-ONSET PATIENTS FROM EUSTAR. ARE THESE DIFFERENCES SUGGESTING RISK FOR MORTALITY?

Author

Foeldvari, I., primary, Klotsche, J., additional, Carreira, P., additional, Kasapcopur, O., additional, Torok, K., additional, Airò, P., additional, Iannone, F., additional, Allanore, Y., additional, Balbir-Gurman, A., additional, Schmeiser, T., additional, Sztajnbok, F. R., additional, Terreri, M. T., additional, Stanevicha, V., additional, Anton, J., additional, Feldman, B., additional, Khubchandani, R., additional, Alexeeva, E., additional, Johnson, S., additional, Katsikas, M., additional, Sawhney, S., additional, Smith, V., additional, Appenzeller, S., additional, Avcin, T., additional, Campochiaro, C., additional, De Vries-Bouwstra, J., additional, Kostik, M., additional, Lehman, T., additional, Marrani, E., additional, Schonenberg, D., additional, Sifuentes-Giraldo, W. A., additional, Vasquez-Canizares, N., additional, Janarthanan, M., additional, Malcova, H., additional, Moll, M., additional, Nemcova, D., additional, Patwardhan, A., additional, Santos, M. J., additional, Seskute, G., additional, Truchetet, M. E., additional, Battagliotti, C., additional, Berntson, L., additional, Bica, B., additional, Brunner, J., additional, Cimaz, R., additional, Costa Reis, P., additional, Eleftheriou, D., additional, Harel, L., additional, Horneff, G., additional, Kaiser, D., additional, Kallinich, T., additional, Lazarevic, D., additional, Minden, K., additional, Nielsen, S., additional, Nuruzzaman, F., additional, Opsahl Hetlevik, S., additional, Uziel, Y., additional, Veale, D., additional, Hoffmann-Vold, A. M., additional, Gabrielli, A., additional, and Distler, O., additional

Published
2022
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17. POS1302 PATIENT AND PHYSICIAN REPORTED OUTCOMES OF JUVENILE SYSTEMIC SCLEROSIS PATIENTS SIGNIFICANTLY IMPROVE OVER 12 MONTHS OBSERVATION PERIOD IN THE JUVENILE SYSTEMIC SCLERODERMA INCEPTION COHORT. www.juvenile-scleroderma.com

Author

Foeldvari, I., primary, Klotsche, J., additional, Kasapcopur, O., additional, Adrovic, A., additional, Torok, K., additional, Terreri, M. T., additional, Sakamoto, A. P., additional, Feldman, B., additional, Anton, J., additional, Katsikas, M., additional, Stanevicha, V., additional, Sztajnbok, F. R., additional, Appenzeller, S., additional, Avcin, T., additional, Kostik, M., additional, Marrani, E., additional, Sifuentes-Giraldo, W. A., additional, Johnson, S., additional, Khubchandani, R., additional, Nemcova, D., additional, Santos, M. J., additional, Battagliotti, C., additional, Berntson, L., additional, Bica, B., additional, Brunner, J., additional, Cimaz, R., additional, Eleftheriou, D., additional, Harel, L., additional, Horneff, G., additional, Janarthanan, M., additional, Kallinich, T., additional, Minden, K., additional, Moll, M., additional, Nielsen, S., additional, Patwardhan, A., additional, Schonenberg, D., additional, Smith, V., additional, and Helmus, N., additional

Published
2022
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18. POS1299 JUVENILE SYSTEMIC SCLEROSIS TREATMENT PRACTICES IN AN INTERNATIONAL COHORT AND COMPARISON TO RECENT SHARE CONSENSUS GUIDELINES.

Author

Foeldvari, I., primary, Torok, K., additional, Kasapcopur, O., additional, Adrovic, A., additional, Terreri, M. T., additional, Sakamoto, A. P., additional, Feldman, B., additional, Anton, J., additional, Sztajnbok, F. R., additional, Stanevicha, V., additional, Appenzeller, S., additional, Avcin, T., additional, Johnson, S., additional, Khubchandani, R., additional, Kostik, M., additional, Marrani, E., additional, Sifuentes-Giraldo, W. A., additional, Nemcova, D., additional, Santos, M. J., additional, Schonenberg, D., additional, Battagliotti, C., additional, Berntson, L., additional, Bica, B., additional, Brunner, J., additional, Cimaz, R., additional, Eleftheriou, D., additional, Harel, L., additional, Horneff, G., additional, Janarthanan, M., additional, Kallinich, T., additional, Lehman, T., additional, Moll, M., additional, Nuruzzaman, F., additional, Patwardhan, A., additional, Smith, V., additional, and Helmus, N., additional

Published
2022
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19. Patients with juvenile systemic sclerosis have a distinct pattern of organ involvement. Results from thejuvenile systemic sclerosis inception cohort

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Stanevicha, V, Anton, J, Sztajnbok, F, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, and Helmus, N

Subjects
ddc: 610, 610 Medical sciences, Medicine
Abstract

Introduction: Juvenile systemic sclerosis (jSSc) is a rare disease with a prevalence of around 3 in 1,000,000 children. To better capture the clinical manifestations of jSSc the juvenile systemic sclerosis inception cohort (jSScC, [link:https://www.juvenile-scleroderma.com/*https://www.juvenile-scleroderma.com/])[for full text, please go to the a.m. URL], Deutscher Rheumatologiekongress 2021, 49. Kongress der Deutschen Gesellschaft für Rheumatologie (DGRh), 35. Jahrestagung der Deutschen Gesellschaft für Orthopädische Rheumatologie (DGORh), Wissenschaftliche Herbsttagung der Gesellschaft für Kinder- und Jugendrheumatologie (GKJR)

Published
2021
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20. Differences sustained between diffuse and limited forms of juvenile systemic sclerosis in expanded international cohort. www.juvenile-scleroderma.com

Author

Foeldvari I, Klotsche J, Kasapcopur O, Adrovic A, Terreri MT, Sakamoto AP, Stanevicha V, Sztajnbok F, Anton-Lopez J, Feldman B, Alexeeva E, Katsicas M, Smith V, Avcin T, Marrani E, Kostik M, Lehman T, Sifuentes-Giraldo WA, Vasquez-Canizares N, Appenzeller S, Janarthanan M, Moll M, Nemcova D, Patwardhan A, Santos MJ, Sawhney S, Schonenberg-Meinema D, Battagliotti C, Berntson L, Bica B, Brunner J, Costa-Reis P, Eleftheriou D, Harel L, Horneff G, Kaiser D, Kallinich T, Lazarevic D, Minden K, Nielsen S, Nuruzzaman F, Uziel Y, Helmus N, and Torok KS

Abstract

OBJECTIVES: To evaluate the baseline clinical characteristics of juvenile systemic sclerosis (jSSc) patients in the international Juvenile SSc Inception Cohort (jSScC), compare these characteristics between the classically defined diffuse (dcjSSc) and limited cutaneous (lcjSSc) subtypes, and among those with overlap features. METHODS: A cross-sectional study was performed using baseline visit data. Demographic, organ system evaluation, treatment, and patient and physician reported outcomes were extracted and summary statistics applied. Comparisons between dcjSSc and lcSSc subtypes and patients with and without overlap features were performed using Chi-square and Mann Whitney U-tests. RESULTS: At data extraction 150 jSSc patients were enrolled across 42 centers, 83% were Caucasian, 80% female, dcjSSc predominated (72%), and 17% of the cohort had overlap features. Significant differences were found between dcjSSc and lcjSSc regarding the modified Rodnan Skin Score, presence of Gottron's papules, digital tip ulceration, 6 Minute walk test, composite pulmonary and cardiac involvement. All more frequent in dcSSc except for cardiac involvement. DcjSSc patients had significantly worse scores for physician rated disease activity and damage. A significantly higher occurrence of Gottron's papules, musculoskeletal involvement and composite pulmonary involvement, and significantly lower frequency of Raynaud's phenomenon, were seen in those with overlap features. CONCLUSION: Results from a large international jSSc cohort demonstrate significant differences between dcjSSc and lcjSSc patients including more globally severe disease and increased frequency of ILD in dcjSSc patients, while those with lcSSc have more frequent cardiac involvement. Those with overlap features had an unexpected higher frequency of interstitial lung disease.

Published
2021

21. Patients with Juvenile Systemic Sclerosis Have a Distinct Pattern of Organ Involvement: Results from the Juvenile Systemic Sclerosis Inception Cohort

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, M, Sakamoto, AP, Sztajnbok, F, Feldman, B, Stanevicha, V, Anton-Lopez J, Khubchandani, R, Alexeeva, E, Johnson, S, Katsicas, MM, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Marrani, E, Schonenberg-Meinema, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Malcova, H, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Battagliotti, C, Berntson, L, Bica, BERG, Brunner, J, Cimaz, R, Reis, PC, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Hetlevik, SO, Uziel, Y, and Helmus, N

Published
2021

22. Male Juvenile Systemic Sclerosis Patients Have More Severe Disease: Results from the International Juvenile Scleroderma Inception Cohort

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, M, Sakamoto, AP, Sztajnbok, F, Feldman, B, Stanevicha, V, Anton-Lopez J, Khubchandani, R, Alexeeva, E, Johnson, S, Katsicas, MM, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Marrani, E, Schonenberg-Meinema, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Malcova, H, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Battagliotti, C, Berntson, L, Bica, BERG, Brunner, J, Cimaz, R, Reis, PC, Eleftheriou, D, Harel, L, Horneff, G, Kaiser, D, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Hetlevik, SO, Uziel, Y, and Helmus, N

Published
2021

23. Juvenile systemic sclerosis (jSSc) patients with overlap characteristics do not have mild disease.Results from thejSSc inception cohort

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Stanevicha, V, Anton, J, Sztajnbok, F, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Terreri, MT, Sakamoto, AP, Feldman, B, Stanevicha, V, Anton, J, Sztajnbok, F, Khubchandani, R, Alexeeva, E, Katsicas, M, Sawhney, S, Smith, V, Appenzeller, S, Avcin, T, Kostik, M, Lehman, T, Marrani, E, Schonenberg, D, Sifuentes-Giraldo, WA, Vasquez-Canizares, N, Janarthanan, M, Moll, M, Nemcova, D, Patwardhan, A, Santos, MJ, and Helmus, N

Published
2021

24. POS1304 JUVENILE SYSTEMIC SCLEROSIS (JSSC) PATIENTS WITH OVERLAP CHARACTERISTICS DO NOT HAVE MILD DISEASE. RESULTS FROM THE JSSC INCEPTION COHORT. WWW.JUVENILESCLERODERMA.COM

Author

Foeldvari, I., primary, Klotsche, J., additional, Kasapcopur, O., additional, Adrovic, A., additional, Torok, K., additional, Terreri, M. T., additional, Sakamoto, A. P., additional, Feldman, B., additional, Stanevicha, V., additional, Anton, J., additional, Sztajnbok, F. R., additional, Khubchandani, R., additional, Alexeeva, E., additional, Katsikas, M., additional, Sawhney, S., additional, Smith, V., additional, Appenzeller, S., additional, Avcin, T., additional, Kostik, M., additional, Lehman, T., additional, Marrani, E., additional, Schonenberg, D., additional, Sifuentes-Giraldo, W. A., additional, Vasquez-Canizares, N., additional, Janarthanan, M., additional, Moll, M., additional, Nemcova, D., additional, Patwardhan, A., additional, Santos, M. J., additional, Battagliotti, C., additional, Berntson, L., additional, Bica, B., additional, Brunner, J., additional, Cimaz, R., additional, Costa Reis, P., additional, Eleftheriou, D., additional, Harel, L., additional, Horneff, G., additional, Johnson, S., additional, Kaiser, D., additional, Kallinich, T., additional, Lazarevic, D., additional, Minden, K., additional, Nielsen, S., additional, Nuruzzaman, F., additional, Opsahl Hetlevik, S., additional, Uziel, Y., additional, and Helmus, N., additional

Published
2021
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25. POS0079 PATIENTS WITH JUVENILE SYSTEMIC SCLEROSIS HAVE A DISTINCT PATTERN OF ORGAN INVOLVEMENT.RESULTS FROM THE JUVENILE SYSTEMIC SCLEROSIS INCEPTION COHORT. WWW.JUVENILE-SCLERODERMA.COM

Author

Foeldvari, I., primary, Klotsche, J., additional, Kasapcopur, O., additional, Adrovic, A., additional, Torok, K., additional, Terreri, M. T., additional, Sakamoto, A. P., additional, Feldman, B., additional, Stanevicha, V., additional, Anton, J., additional, Sztajnbok, F. R., additional, Khubchandani, R., additional, Alexeeva, E., additional, Katsikas, M., additional, Sawhney, S., additional, Smith, V., additional, Appenzeller, S., additional, Avcin, T., additional, Kostik, M., additional, Lehman, T., additional, Marrani, E., additional, Schonenberg, D., additional, Sifuentes-Giraldo, W. A., additional, Vasquez-Canizares, N., additional, Janarthanan, M., additional, Moll, M., additional, Nemcova, D., additional, Patwardhan, A., additional, Santos, M. J., additional, Battagliotti, C., additional, Berntson, L., additional, Bica, B., additional, Brunner, J., additional, Cimaz, R., additional, Costa Reis, P., additional, Eleftheriou, D., additional, Harel, L., additional, Horneff, G., additional, Johnson, S., additional, Kaiser, D., additional, Kallinich, T., additional, Lazarevic, D., additional, Minden, K., additional, Nielsen, S., additional, Nuruzzaman, F., additional, Opsahl Hetlevik, S., additional, Uziel, Y., additional, and Helmus, N., additional

Published
2021
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26. FRI0466 NO DISEASE PROGRESSION AFTER 36 MONTHS FOLLOW UP IN THE JUVENILE SYSTEMIC SCLERODERMA INCEPTION COHORT

Author

Foeldvari, I., primary, Klotsche, J., additional, Kasapcopur, O., additional, Adrovic, A., additional, Terreri, M. T., additional, Cimaz, R., additional, Katsikas, M., additional, Nemcova, D., additional, Santos, M. J., additional, Brunner, J., additional, Kostik, M., additional, Minden, K., additional, Patwardhan, A., additional, Torok, K., additional, and Helmus, N., additional

Published
2020
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27. THU0499 IS THERE A DIFFERENT PRESENTATION OF JUVENILE SYSTEMIC DIFFUSE AND LIMITED SUBSET? DATA FROM THE JUVENILE SCLERODERMA INCEPTION COHORT. WWW.JUVENILE-SCLEORDERMA.COM

Author

Foeldvari, I., primary, Klotsche, J., additional, Kasapcopur, O., additional, Adrovic, A., additional, Torok, K., additional, Terreri, M. T., additional, Sakamoto, A. P., additional, Stanevicha, V., additional, Sztajnbok, F. R., additional, Anton, J., additional, Feldman, B., additional, Alexeeva, E., additional, Katsikas, M., additional, Smith, V., additional, Marrani, E., additional, Kostik, M., additional, Vasquez-Canizares, N., additional, Appenzeller, S., additional, Janarthanan, M., additional, Moll, M., additional, Nemcova, D., additional, Patwardhan, A., additional, Santos, M. J., additional, Sawhney, S., additional, Schonenberg, D., additional, Battagliotti, C., additional, Berntson, L., additional, Bica, B., additional, Brunner, J., additional, Costa Reis, P., additional, Eleftheriou, D., additional, Harel, L., additional, Horneff, G., additional, Kaiser, D., additional, Lazarevic, D., additional, Minden, K., additional, Nielsen, S., additional, Nuruzzaman, F., additional, Uziel, Y., additional, and Helmus, N., additional

Published
2020
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28. FRI0454 UNDER DETECTION OF INTERSTITIAL LUNG DISEASE IN JUVENILE SYSTEMIC SCLEROSIS (JSSC) UTILIZING PULMONARY FUNCTION TESTS. RESULTS FROM THE JUVENILE SCLERODERMA INCEPTION COHORT

Author

Foeldvari, I., primary, Hinrichs, B., additional, Torok, K., additional, Santos, M. J., additional, Kasapcopur, O., additional, Adrovic, A., additional, Stanevicha, V., additional, Sztajnbok, F. R., additional, Terreri, M. T., additional, Sakamoto, A. P., additional, Alexeeva, E., additional, Anton, J., additional, Katsikas, M., additional, Smith, V., additional, Cimaz, R., additional, Kostik, M., additional, Appenzeller, S., additional, Janarthanan, M., additional, Moll, M., additional, Nemcova, D., additional, Schonenberg, D., additional, Battagliotti, C., additional, Berntson, L., additional, Bica, B., additional, Brunner, J., additional, Costa Reis, P., additional, Eleftheriou, D., additional, Harel, L., additional, Horneff, G., additional, Lazarevic, D., additional, Minden, K., additional, Nielsen, S., additional, Nuruzzaman, F., additional, Patwardhan, A., additional, Uziel, Y., additional, and Helmus, N., additional

Published
2020
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29. Update from the juvenile scleroderma Inception Cohort

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Sztajnbok, F, Terreri, MT, Alexeeva, E, Anton, J, Katsicas, M, Smith, V, Avcin, T, Cimaz, R, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Schonenberg, D, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Patwardhan, A, Uziel, Y, and Helmus, N

Subjects
ddc: 610, integumentary system, 610 Medical sciences, Medicine
Abstract

Background: Juvenile systemic scleroderma (jSSc) is an orphan disease with a prevalence of 3 in 1 000 000 children. There are limited data regarding the clinical presentation of jSSc. The Juvenile Systemic Scleroderma Inception Cohort (JSSIC) is a multinational registry that prospectively collects information[for full text, please go to the a.m. URL], 47. Kongress der Deutschen Gesellschaft für Rheumatologie (DGRh), 33. Jahrestagung der Deutschen Gesellschaft für Orthopädische Rheumatologie (DGORh), 29. Jahrestagung der Gesellschaft für Kinder- und Jugendrheumatologie (GKJR)

Published
2019
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30. Proposal of outcome measures to be used on a 12-month open label drug trial in Juvenile Systemic Sclerosis. Results of the 3rd Consensus Meeting in Hamburg December 2018

Author

Foeldvari, I, Torok, K, Ambartsumyan, L, Anton, J, Beyer, C, Blakley, M, Constantin, T, Costa Reis, P, Curran, M, Cutolo, M, del Gado, F, Denton, CP, Fligelstone, K, Hinrichs, B, Höger, A, Ingegnoli, F, Kasapcopur, O, Li, S, Nemcova, D, Orteu, C, Pilkington, C, Smith, V, Stevens, A, Stevens, B, Zhen, A, Khanna, D, and Furst, D

Subjects
ddc: 610, 610 Medical sciences, Medicine
Abstract

Background: Juvenile systemic sclerosis (jSSc) is an orphan disease, associated with high morbidity and mortality. New treatment strategies are much needed. To develop an open label drug trial for the treatment of jSSc patients, it is necessary to clearly define how to evaluate outcomes in this disease,[for full text, please go to the a.m. URL], 47. Kongress der Deutschen Gesellschaft für Rheumatologie (DGRh), 33. Jahrestagung der Deutschen Gesellschaft für Orthopädische Rheumatologie (DGORh), 29. Jahrestagung der Gesellschaft für Kinder- und Jugendrheumatologie (GKJR)

Published
2019
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31. Is there a difference in presentation of female and male patients with juvenile systemic scleroderma?

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Sztajnbok, F, Sakamoto, AP, Alexeeva, E, Anton, J, Katsicas, M, Smith, V, Avcin, T, Cimaz, R, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Nassar, A, Battagliotti, C, Berntson, L, Bica, B, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Horneff, G, Kallinich, T, Lazarevic, D, Minden, K, Nielsen, S, Nuruzzaman, F, Patwardhan, A, Uziel, Y, and Helmus, N

Subjects
ddc: 610, integumentary system, 610 Medical sciences, Medicine
Abstract

Background: Juvenile systemic scleroderma (jSSc) is an orphan disease with a prevalence of 3 in 1 000 000 children. There are limited data published regarding the differences in clinical presentation of male and female patients with jSSc. The Juvenile Systemic Scleroderma Inception Cohort (JSSIC) is[for full text, please go to the a.m. URL], 47. Kongress der Deutschen Gesellschaft für Rheumatologie (DGRh), 33. Jahrestagung der Deutschen Gesellschaft für Orthopädische Rheumatologie (DGORh), 29. Jahrestagung der Gesellschaft für Kinder- und Jugendrheumatologie (GKJR)

Published
2019
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32. Patients and physician related outcomes improve significantly over 12 months follow up in patients with juvenile systemic sclerosis. Results from the juvenile scleroderma inception cohort. www.juvenile-scleroderma.com

Author

Foeldvari, I, Klotsche, J, Terreri, MT, Katsicas, M, Stanevicha, V, Avcin, T, Cimaz, R, Kostik, M, Sifuentes-Giraldo, WA, Sztajnbok, F, Anton, J, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Eleftheriou, D, Harel, L, Janarthanan, M, Kallinich, T, Moll, M, Nielsen, S, Smith, V, Torok, K, and Helmus, N

Subjects
ddc: 610, integumentary system, 610 Medical sciences, Medicine, skin and connective tissue diseases
Abstract

Background: Juvenile systemic scleroderma (jSSc) is an orphan disease with an estimated prevalence of around 3 per 1 000 000 children. There are no studies which evaluated prospectively the patient related outcomes in these patients. We report the data from juvenile scleroderma inception cohort (jSSc)[for full text, please go to the a.m. URL], 46. Kongress der Deutschen Gesellschaft für Rheumatologie (DGRh), 32. Jahrestagung der Deutschen Gesellschaft für Orthopädische Rheumatologie (DGORh), Wissenschaftliche Herbsttagung der Gesellschaft für Kinder- und Jugendrheumatologie (GKJR)

Published
2019
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33. After 24 months observation period patient reported outcomes improved significantly in the juvenile Scleroderma Inceptions Cohort

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Anton, J, Avcin, T, Cimaz, R, Kostik, M, Katsicas, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Harel, L, Kallinich, T, Minden, K, Moll, M, Patwardhan, A, Torok, K, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Anton, J, Avcin, T, Cimaz, R, Kostik, M, Katsicas, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Harel, L, Kallinich, T, Minden, K, Moll, M, Patwardhan, A, Torok, K, and Helmus, N

Published
2019

34. Do Raynaud phenomenon negative juvenile systemic scleroderma patients have a different pattern of organ involvement as Raynaud phenomenon positive patients?

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Sztajnbok, F, Avcin, T, Cimaz, R, Anton, J, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Uziel, Y, Stevens, A, Pilkington, C, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Torok, K, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Sztajnbok, F, Avcin, T, Cimaz, R, Anton, J, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Costa Reis, P, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Uziel, Y, Stevens, A, Pilkington, C, and Helmus, N

Published
2019

35. Is there a Difference in the clinical Presentation of juvenile Systemic Scleroderma Patients according the Age of onset: Results from the juvenile Scleroderma Inception Cohort www.juvenile-scleroderma.com

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Cimaz, R, Kostik, M, Lehman, T, Anton, J, Sifuentes-Giraldo, WA, Sztajnbok, F, Avcin, T, Janarthanan, M, Jose Santos, M, Moll, M, Nemcova, D, Battagliotti, C, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Torok, K, Uziel, J, Stevens, A, Pilkington, C, and Helmus, N

Subjects
stomatognathic diseases, ddc: 610, integumentary system, natural sciences, 610 Medical sciences, Medicine, skin and connective tissue diseases
Abstract

Background: Juvenile systemic sclerosis (jSSc) is an orphan autoimmune disease. It was rarely looked at the differences between the clinical presentations of patients at different paediatric age groups. The juvenile scleroderma inception cohort ([link:http://www.juvenile-scleroderma.com/*http://www.juvenile-scleroderma.com/])[for full text, please go to the a.m. URL], 45. Kongress der Deutschen Gesellschaft für Rheumatologie (DGRh), 31. Jahrestagung der Deutschen Gesellschaft für Orthopädische Rheumatologie (DGORh), 27. Jahrestagung der Gesellschaft für Kinder- und Jugendrheumatologie (GKJR)

Published
2017
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36. Proposal for a Juvenile Systemic Sclerosis Response Index(JSScRI): Result of the Consensus Meeting in Hamburg. Germany 11th of December 2016

Author

Foeldvari, I, Furst, D, Anton, J, Baildem, E, Blakley, M, Constantin, T, Costa Reis, P, Curran, M, Cutolo, M, Denton, CP, Fligelstone, K, Hinrichs, B, Ingegnoli, F, Kienast, A, Nemcova, D, Pain, C, Pilkington, C, Smith, V, and Khanna, D

Subjects
ddc: 610, 610 Medical sciences, Medicine
Abstract

Background: Juvenile Systemic Sclerosis (jSSc) is an orphan disease. There is increaseing interest to test novel therapies in management of fibrotic diseases. Therefore, is very important to develop a Response Index for jSSc (JSScRI) to separate effective therapies from placebo. In 2014 at the First[for full text, please go to the a.m. URL], 45. Kongress der Deutschen Gesellschaft für Rheumatologie (DGRh), 31. Jahrestagung der Deutschen Gesellschaft für Orthopädische Rheumatologie (DGORh), 27. Jahrestagung der Gesellschaft für Kinder- und Jugendrheumatologie (GKJR)

Published
2017
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37. THU0577 Do raynaud phenomenon negative juvenile systemic scleroderma patients have a different pattern of organ involvement as raynaud phenomenon positive patients?

Author

Foeldvari, I., primary, Klotsche, J., additional, Kasapcopur, O., additional, Adrovic, A., additional, Torok, K., additional, Stanevicha, V., additional, Terreri, M.T., additional, Alexeeva, E., additional, Katsikas, M., additional, Smith, V., additional, Sztajnbok, F., additional, Avcin, T., additional, Cimaz, R., additional, Anton, J., additional, Kostic, M., additional, Lehman, T., additional, Sifuentes-Giraldo, W.-A., additional, Appenzeller, S., additional, Janarthanan, M., additional, Moll, M., additional, Nemcova, D., additional, Santos, M.J., additional, Battagliotti, C., additional, Berntson, L., additional, Brunner, J., additional, Costa Reis, P., additional, Eleftheriou, D., additional, Harel, L., additional, Kallinich, T., additional, Minden, K., additional, Nielsen, S., additional, Uziel, Y., additional, Stevens, A., additional, Pilkington, C., additional, and Helmus, N., additional

Published
2018
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38. THU0578 Patients and physician related outcomes improve significantly over 12 months follow up in patients with juvenile systemic sclerosis. results from the juvenile scleroderma inception cohort. www.juvenile-scleroderma.com

Author

Foeldvari, I., primary, Klotsche, J., additional, Terreri, M.T., additional, Katsikas, M., additional, Stanevicha, V., additional, Avcin, T., additional, Cimaz, R., additional, Kostic, M., additional, Sifuentes-Giraldo, W.-A., additional, Sztajnbok, F., additional, Anton, J., additional, Nemcova, D., additional, Santos, M.J., additional, Battagliotti, C., additional, Berntson, L., additional, Brunner, J., additional, Eleftheriou, D., additional, Harel, L., additional, Janarthanan, M., additional, Kallinich, T., additional, Moll, M., additional, Nielsen, S., additional, Smith, V., additional, Torok, K., additional, Stevens, A., additional, Pilkington, C., additional, and Helmus, N., additional

Published
2018
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39. Update on the juvenile systemic Sclerosis Inception Cohort Project. Characteristics of the first 97 Patients at first Assessment. www.juvenile-scleroderma.com

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Torok, K, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Sztajnbok, F, Avcin, T, Cimaz, R, Anton, J, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Uziel, Y, Pilkington, C, Stevens, A, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Torok, K, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Sztajnbok, F, Avcin, T, Cimaz, R, Anton, J, Kostik, M, Lehman, T, Sifuentes-Giraldo, WA, Appenzeller, S, Janarthanan, M, Moll, M, Nemcova, D, Jose Santos, M, Battagliotti, C, Berntson, L, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Uziel, Y, Pilkington, C, Stevens, A, and Helmus, N

Published
2017

40. Is there a Difference in the Presentation of male and female Patients with diffuse subtype of juvenile systemic Sclerosis? Results from the juvenile Scleroderma Inception Cohort www.juvenile-scleroderma.com

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Cimaz, R, Kostik, M, Lehman, T, Anton, J, Sifuentes-Giraldo, WA, Sztajnbok, F, Avcin, T, Janarthanan, M, Jose Santos, M, Moll, M, Nemcova, D, Battagliotti, C, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Torok, K, Uziel, J, Stevens, A, Pilkington, C, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Stanevicha, V, Terreri, MT, Alexeeva, E, Katsicas, M, Smith, V, Cimaz, R, Kostik, M, Lehman, T, Anton, J, Sifuentes-Giraldo, WA, Sztajnbok, F, Avcin, T, Janarthanan, M, Jose Santos, M, Moll, M, Nemcova, D, Battagliotti, C, Brunner, J, Eleftheriou, D, Harel, L, Kallinich, T, Minden, K, Nielsen, S, Torok, K, Uziel, J, Stevens, A, Pilkington, C, and Helmus, N

Published
2017

41. Update on the juvenile systemic sclerosis inception cohort project (www.juvenilescleroderma.com). Characteristics of the first 74 patients at first assessment

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Stanevicha, V, Katsicas, M, Alexeeva, E, Sztajnbok, F, Cimaz, R, Kostik, M, Sifuentes-Giraldo, WA, Lehman, T, Nemcova, D, Moll, M, Jose Santos, M, Avcin, T, Battagliotti, C, Brunner, J, Nielsen, S, Kallinich, T, Minden, K, Janarthanan, M, Harel, L, Uziel, J, Eleftheriou, D, Torok, K, and Helmus, N

Subjects
body regions, ddc: 610, organ involvement, juvenile systemic sclerosis, 610 Medical sciences, Medicine, humanities
Abstract

Background: Juvenile systemic sclerosis (jSSc) is an orphan autoimmune disease. Currently just retrospective data exist regarding evolvement of organ involvement. In the retrospective studies assessment of the organ involvement is not standardized. Our project is the first one, where prospectively and[for full text, please go to the a.m. URL], 44. Kongress der Deutschen Gesellschaft für Rheumatologie (DGRh); 30. Jahrestagung der Deutschen Gesellschaft für Orthopädische Rheumatologie (DGORh); 26. Jahrestagung der Gesellschaft für Kinder- und Jugendrheumatologie (GKJR)

Published
2016
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42. Raynaud's syndrome in children: systematic review and development of recommendations for assessment and monitoring

Author

Pain, Ce, Constantin, T, Toplak, N, Moll, M, Iking-Konert, C, Piotto, Dp, Aktay Ayaz, N, Nemcova, D, Hoeger, Ph, Cutolo, M, Smith, V, Foeldvari, I, and Paediatric Rheumatology European Society (PRES) Juvenile Scleroderma Working, Group.

Subjects
Male, Consensus, Adolescent, Age Factors, Raynaud Disease, Prognosis, Pediatrics, Microscopic Angioscopy, Rheumatology, Predictive Value of Tests, Risk Factors, Antibodies, Antinuclear, Disease Progression, Humans, Female, Serologic Tests, Child, Biomarkers
Abstract

To develop recommendations for investigation and monitoring of children with Raynaud's syndrome, based on paediatric evidence collated by a systematic review.A systematic review was undertaken to establish the paediatric evidence for assessment and monitoring of Raynaud's syndrome. An expert panel including members of the Paediatric Rheumatology European Society (PRES) Scleroderma Working Group, were invited to a consensus meeting where recommendations were developed based on evidence graded by the systematic review and where evidence was lacking, consensus opinion. A nominal technique was used where 75% consensus was taken as agreement.The expert panel recommended testing anti-nuclear antibody (ANA), more specific antibodies associated with connective tissue disease and nail-fold capillaroscopy in all children presenting with Raynaud's syndrome as data suggests these can be risk factors for evolution into a connective tissue disease. The frequency of follow-up recommended depends on presence of these risk factors with the aim to detect evolving connective tissue disease early in high risk individuals. Those with no abnormalities on capillaroscopy and negative autoantibodies were deemed low risk of progression, whereas those with ANA positivity, specific autoantibodies and/or nailfold capillary changes were deemed high risk and more frequent follow-up was recommended.Recommendations, primarily based on consensus opinion, were agreed regarding investigation and monitoring of children who present with Raynaud's syndrome. Further prospective studies are needed to better define the risk factors for progression to connective tissue disease.

Published
2016

43. AB0957 Is there a difference in the clinical presentation of juvenile systemic scleroderma patients according the age of onset: results from the juvenile scleroderma inception cohort www.juvenile-scleroderma.com

Author

Foeldvari, I, primary, Klotsche, J, additional, Kasapçopur, O, additional, Adrovic, A, additional, Stanevicha, V, additional, Terreri, MT, additional, Alexeeva, E, additional, Katsicas, M, additional, Smith, V, additional, Cimaz, R, additional, Kostik, M, additional, Lehman, T, additional, Anton, J, additional, Sifuentes-Giraldo, W-A, additional, Sztajnbok, F, additional, Avcin, T, additional, Janarthanan, M, additional, Santos, MJ, additional, Moll, M, additional, Nemcova, D, additional, Battagliotti, C, additional, Brunner, J, additional, Eleftheriou, D, additional, Harel, L, additional, Kallinich, T, additional, Minden, K, additional, Nielsen, S, additional, Torok, K, additional, Uziel, Y, additional, Stevens, A, additional, Pilkington, C, additional, and Helmus, N, additional

Published
2017
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45. Is there a difference in the presentation of male and female patients with juvenile systemic sclerosis? Results from the juvenile scleroderma inception cohort (www.juvenilescleroderma.com)

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Stanevicha, V, Katsicas, M, Alexeeva, E, Sztajnbok, F, Cimaz, R, Kostik, M, Sifuentes-Giraldo, WA, Lehman, T, Nemcova, D, Moll, M, Jose Santos, M, Avcin, T, Battagliotti, C, Brunner, J, Nielsen, S, Kallinich, T, Minden, K, Janarthanan, M, Harel, L, Uziel, J, Eleftheriou, D, Torok, K, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Stanevicha, V, Katsicas, M, Alexeeva, E, Sztajnbok, F, Cimaz, R, Kostik, M, Sifuentes-Giraldo, WA, Lehman, T, Nemcova, D, Moll, M, Jose Santos, M, Avcin, T, Battagliotti, C, Brunner, J, Nielsen, S, Kallinich, T, Minden, K, Janarthanan, M, Harel, L, Uziel, J, Eleftheriou, D, Torok, K, and Helmus, N

Published
2016

46. Is there a difference in the presentation of diffuse and limited subtype in childhood? Results from the juvenile scleroderma inception cohort (www.juvenilescleroderma.com)

Author

Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Stanevicha, V, Katsicas, M, Alexeeva, E, Sztajnbok, F, Cimaz, R, Kostik, M, Sifuentes-Giraldo, WA, Lehman, T, Nemcova, D, Moll, M, Jose Santos, M, Avcin, T, Battagliotti, C, Brunner, J, Nielsen, S, Kallinich, T, Minden, K, Janarthanan, M, Harel, L, Uziel, J, Eleftheriou, D, Torok, K, Helmus, N, Foeldvari, I, Klotsche, J, Kasapcopur, O, Adrovic, A, Terreri, MT, Stanevicha, V, Katsicas, M, Alexeeva, E, Sztajnbok, F, Cimaz, R, Kostik, M, Sifuentes-Giraldo, WA, Lehman, T, Nemcova, D, Moll, M, Jose Santos, M, Avcin, T, Battagliotti, C, Brunner, J, Nielsen, S, Kallinich, T, Minden, K, Janarthanan, M, Harel, L, Uziel, J, Eleftheriou, D, Torok, K, and Helmus, N

Published
2016

47. THU0229 Is There A Difference in The Presentation of Diffuse and Limited Subtype in Childhood? Results from The Juvenile Scleroderma Inception Cohort

Author

Foeldvari, I., primary, Klotsche, J., additional, Kasapcopur, O., additional, Adrovic, A., additional, Terreri, M.T., additional, Stanevicha, V., additional, Katsikas, M.M., additional, Alexeeva, E., additional, Sztajnbok, F., additional, Cimaz, R., additional, Kostik, M., additional, Sifuentes-Giraldo, W.A., additional, Lehman, T., additional, Nemcova, D., additional, Moll, M., additional, Santos, M.J., additional, Avcin, T., additional, Battagliotti, C., additional, Brunner, J., additional, Nielsen, S., additional, Kallinich, T., additional, Minden, K., additional, Janarthanan, M., additional, Harel, L., additional, Uziel, Y., additional, Eleftheriou, D., additional, Torok, K.S., additional, and Helmus, N., additional

Published
2016
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48. SAT0257 Update on The Juvenile Systemic Sclerosis Inception Cohort Project. Characteristics of The First 74 Patients at First Assessment

Author

Foeldvari, I., primary, Klotsche, J., additional, Kasapcopur, O., additional, Adrovic, A., additional, Terreri, M.T., additional, Stanevicha, V., additional, Katsikas, M.M., additional, Alexeeva, E., additional, Sztajnbok, F., additional, Cimaz, R., additional, Kostik, M., additional, Sifuentes-Giraldo, W.A., additional, Lehman, T., additional, Nemcova, D., additional, Moll, M., additional, Santos, M.J., additional, Avcin, T., additional, Battagliotti, C., additional, Brunner, J., additional, Nielsen, S., additional, Kallinich, T., additional, Minden, K., additional, Janarthanan, M., additional, Harel, L., additional, Uziel, Y., additional, Eleftheriou, D., additional, Torok, K.S., additional, and Helmus, N., additional

Published
2016
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49. THU0230 Is There A Difference in The Presentation of Male and Female Patients with Juvenile Systemic Sclerosis? Results from The Juvenile Scleroderma Inception Cohort

Author

Foeldvari, I., primary, Klotsche, J., additional, Kasapcopur, O., additional, Adrovic, A., additional, Terreri, M.T., additional, Stanevicha, V., additional, Katsikas, M.M., additional, Alexeeva, E., additional, Sztajnbok, F., additional, Cimaz, R., additional, Kostik, M., additional, Sifuentes-Giraldo, W.A., additional, Lehman, T., additional, Nemcova, D., additional, Moll, M., additional, Santos, M.J., additional, Avcin, T., additional, Battagliotti, C., additional, Brunner, J., additional, Nielsen, S., additional, Kallinich, T., additional, Minden, K., additional, Janarthanan, M., additional, Harel, L., additional, Uziel, Y., additional, Eleftheriou, D., additional, Torok, K.S., additional, and Helmus, N., additional

Published
2016
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50. Update on the juvenile systemic sclerosis inception cohort WWW.JUVENILE-SCLERODERMA.COM

Author

Foeldvari, I, Katsicas, M, Terreri, MT, Cimaz, R, Kostik, M, Sztajnbok, F, Nemcova, D, Moll, M, Jose Santos, M, Avcin, T, Brunner, J, Nielsen, S, Kallinich, T, Minden, K, Müller, J, Janarthanan, M, Uziel, Y, Sifuentes-Giraldo, WA, Eleftheriou, D, Torok, K, Helmus, N, Foeldvari, I, Katsicas, M, Terreri, MT, Cimaz, R, Kostik, M, Sztajnbok, F, Nemcova, D, Moll, M, Jose Santos, M, Avcin, T, Brunner, J, Nielsen, S, Kallinich, T, Minden, K, Müller, J, Janarthanan, M, Uziel, Y, Sifuentes-Giraldo, WA, Eleftheriou, D, Torok, K, and Helmus, N

Published
2015

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