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Využiti skal a hodnoceni pacientů v rutinni klinicke praxi neni přilis oblibene, přesto ma skalovani pacientů nezastupitelne misto, protože nam ukazuje vývoj choroby v case, pomaha nam hodnotit efektivitu lecby a umožňuje srovnani skupin pacientů mezi sebou. Skore využivana v myastenii i jejich vývoj vsak maji urcita specifika vyplývajici z kolisaveho charakteru onemocněni. Cilem clanku je poskytnout přehled nejcastěji využivaných skal a dotazniků s důrazem na prakticke provedeni hodnoceni.

Introduction The MG-QOL15 is a validated, health-related quality of life (HRQOL) measure for myasthenia gravis (MG). Widespread use of the scale gave us the opportunity to further analyze its clinimetric properties. Methods We first performed Rasch analysis on >1,300 15-item Myasthenia Gravis Quality of Life scale (MG-QOL15) completed surveys. Results were discussed during a conference call with specialists and biostatisticians. We decided to revise 3 items and prospectively evaluate the revised scale (MG-QOL15r) using either 3, 4, or 5 responses. Rasch analysis was then performed on >1,300 MG-QOL15r scales. Results The MGQOL15r performed slightly better than the MG-QOL15. The 3-response option MG-QOL15r demonstrated better clinimetric properties than the 4- or 5-option scales. Relative distributions of item and person location estimates showed good coverage of disease severity. Conclusions The MG-QOL15r is now the preferred HRQOL instrument for MG because of improved clinimetrics and ease of use. This revision does not negate previous studies or interpretations of results using the MG-QOL15. Muscle Nerve 54: 1015-1022, 2016.