102 results on '"United Kingdom"'
Search Results
2. Variables Affecting Student Motivation Based on Academic Publications
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Yilmaz, Ercan, Sahin, Mehmet, and Turgut, Mehmet
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In this study, the variables having impact on the student motivation have been analyzed based on the articles, conference papers, master's theses and doctoral dissertations published in the years 2000-2017. A total of 165 research papers were selected for the research material and the data were collected through qualitative research techniques through document review and content analysis. According to the research results, the most important factors affecting student motivation are the fields of teacher, teachers' classroom management skills and their teaching methods. In this research, factors having less influence on the student motivation are parental communication, student characteristics and study fields. In addition, relational search type was used more than others, mostly students were selected as the study group and most researches were conducted in USA and Turkey.
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- 2017
3. Conceptualising Social Justice and Sociocultural Issues within Physical Education Teacher Education: International Perspectives
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Hill, Joanne, Philpot, Rod, Walton-Fisette, Jennifer L., Sutherland, Sue, Flemons, Michelle, Ovens, Alan, Phillips, Sharon, and Flory, Sara B.
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Background: Physical education (PE) and physical education teacher education (PETE) have a substantial literature base that advocates for students to develop a critical consciousness, appreciate multiple perspectives, and engage in actions to enhance social justice [Tinning, R. 2016. "Transformative Pedagogies and Physical Education." In "The Routledge Handbook of Physical Education Pedagogies," edited by C. Ennis, 281-294. New York: Routledge]. Analysing sociocultural issues, critically reflecting on beliefs, knowledge, biography, and values, and developing a sense of agency to enact change, have been recognised as an integral part of the PETE knowledge base for some time [Fernández-Balboa, J. M. 1997. "Physical Education Teacher Preparation in the Postmodern era: Toward a Critical Pedagogy." In "Critical Postmodernism in Human Movement, Physical Education, and Sport," edited by J. M. Fernández-Balboa, 121-138. Albany: State University of New York Press]. However, there remain differences in how social justice itself is conceptualised and enacted. Social justice is aligned heavily with critical and 'post' theories where taking action for justice, democracy, and power is central; but social justice is also found in humanist beliefs in student-centredness and equality and has been co-opted by neoliberal forces that promote individual responsibility. While a lack of consensus is not in itself a problem [Bialystok, L. 2014. "Politics Without 'Brainwashing': A Philosophical Defence of Social Justice Education." "Curriculum Inquiry" 44 (3): 413-440], diverse definitions might contribute to confusion and lead to uncertainty over what and how to teach for social justice. Purpose: In order to work towards greater certainty around concepts of social justice in the PETE community, this project sought to map variations in definition and conceptualisation of social justice and sociocultural issues among physical education teacher educators (PETEs) and physical education and sport pedagogy (PESP) educators, as part of a wider project on social justice and sociocultural perspectives and practices in PETE. Methods: PETE and PESP faculty (n = 72) in North America, Europe, and Australasia engaged in an in-depth interview, during which they were asked how they define social justice and sociocultural issues. Additional information about participants' social identity was collected. A constant comparative method of analysing participants' definitions mapped a range of concepts building on the theoretical framework of neoliberal, humanist, critical, and 'post' approaches to social justice. Findings: The data demonstrate that there are a range of understandings about sociocultural issues and social justice. Most commonly, some participants articulated a humanist approach to social justice by encouraging their pre-service teachers (PSTs) to have awareness of equality of opportunity in relation to gender, sexuality, and/or racism. Less prevalent, but strongly stated by those who conceptualised social justice in these terms, was the importance to take action for democracy, empowerment, or critical reflection. The terms diversity and equality, framed in neoliberal and humanist discourses, were most commonly used within the United States (US), while critical pedagogy and alignment with critical and 'post' theories were more prevalent in Australia and New Zealand. Conclusion: Differences exist in the ways social justice is conceptualised in PETE. While this can be attributed to the influence of local issues, it is also reflective of what intellectual tools, such as humanism or critical theory, are available for problematising social issues. The range of non-critical concepts found raises concern that PSTs are not getting the tools to enact social justice or tackle sociocultural issues.
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- 2018
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4. A UK and Ireland Survey of Educational Psychologists' Intervention Practices for Students with Autism Spectrum Disorder
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Robinson, Lee, Bond, Caroline, and Oldfield, Jeremy
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Although evidence-based interventions (EBIs) for autism spectrum disorder (ASD) have been identified in recent systematic literature reviews, the extent to which the practice of educational psychologists (EPs) in the UK and Ireland is informed by these is unknown. This study presents the results of a questionnaire that surveyed 146 EP practitioners in the UK and Ireland about their use of 31 EBIs for ASD. This survey also explored the factors that influence EP practitioners' decision-making when planning interventions for students with ASD. Of the 31 EBIs, EP practitioners were most often involved with implementing visual supports, social stories, reinforcement, modelling, antecedent-based interventions, prompting, and social skills training. The most salient factors that influenced EP practitioners' decision-making when planning interventions for students with ASD included the student's individual needs and factors related to the school context. Implications for EP practice are discussed in addition to the limitations of this study.
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- 2018
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5. 'It Doesn't Really Matter Which University You Attend or Which Subject You Study While Abroad.' The Massification of Student Mobility Programmes and Its Implications for Equality in Higher Education
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Courtois, Aline
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Based on documentary analysis and interviews, the article examines the current practices of Irish universities in their efforts to increase their students' participation in international exchange programmes. It argues that increased participation, while a positive outcome, obscures a growing differentiation in the types of exchange programmes and destinations. This emerging stratification leads to differentiated experiences and outcomes, which may amplify other forms of stratification pervading the higher education sector. In particular, we look at the emergence of different models of exchange, that have moved away from an academic focus towards a more easily manageable model better suited to the massification underway. We suggest that Irish higher education institutions contribute to making credit mobility a space, where students can deploy socially unequal strategies and where the more vulnerable remain either excluded, or limited to "second best" programmes, devalued academically or where pedagogic opportunities are lost. This is one of the manifestations of the production of internationalization under the pressures of cost-saving, corporatization and the employability discourse.
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- 2018
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6. Graduates' Vocational Skills for the Management Accountancy Profession: Exploring the Accounting Education Expectation-Performance Gap
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Howcroft, Douglas
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This paper focuses on understanding the vocational skills required by graduates and assessing the competence of graduates for the management accountancy profession. It explores "expectation gaps" by examining whether the Chartered Institute of Management Accountants, practitioner employers and university educators have different expectations with regard to the important vocational skills for graduates. The research aim is to generate a greater understanding of the factors that create identified expectation gaps between the above stakeholders and to explore the implications of any gaps. The research was conducted by interviewing stakeholders and a survey of university accounting educators in UK and Ireland business schools. Expectation gaps between the stakeholders were identified. These expectation gaps appear to exist owing to conflicting views on the purpose of university education. The paper contributes to the growing debates about the general role of higher education in society and the role of university accounting educators in supplying graduate trainee accountants for the management accountancy profession.
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- 2017
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7. Excellence in University Academic Staff Evaluation: A Problematic Reality?
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O'Connor, Pat and O'Hagan, Clare
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This article is concerned with the macro-cultural ideal or institutional myth of excellence as defined and used in the evaluation of academic staff as part of an institutional logic. Such logics "prescribe what constitutes legitimate behaviour and provide taken-for-granted conceptions of what goals are appropriate and what means are legitimate to achieve these goals" as stated by Pache and Santos Insead. In the case study university, this logic is reflected in the identification of ostensibly objective, gender-neutral key performance indicators of excellence. Lamont suggests that evaluation is necessarily subjective. Drawing on 23 qualitative interviews with those involved in such evaluation, this article looks at variation in the definition of excellence and in the evaluative practices in decision-making fora. It raises questions about the implications of this for gender inequality and for the myth of excellence and ultimately for the legitimacy of the organisation.
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- 2016
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8. Learners' Use of Communication Strategies in Text-Based and Video-Based Synchronous Computer-Mediated Communication Environments: Opportunities for Language Learning
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Hung, Yu-Wan and Higgins, Steve
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This study investigates the different learning opportunities enabled by text-based and video-based synchronous computer-mediated communication (SCMC) from an interactionist perspective. Six Chinese-speaking learners of English and six English-speaking learners of Chinese were paired up as tandem (reciprocal) learning dyads. Each dyad participated in four kinds of interactions, namely, English text-based SCMC, Chinese text-based SCMC, English video-based SCMC and Chinese video-based SCMC. Their use of communication strategies (CSs) were analyzed along with an after-task questionnaire and with stimulated reflection to explore systematically and comprehensively the differences between text-based and video-based SCMC. In addition to the main role of qualitative analysis, the quantitative analysis was undertaken to provide an overview of the relative frequencies of the occurrence of the different strategies and to understand their distribution in the different conditions. A MANOVA was applied to understand to what extent the differences are likely to have occurred by chance. The results showed that learners used CSs differently in text-based and video-based SCMC and indicated different learning opportunities provided by these two modes of SCMC. While text-based SCMC appears to have greater potential for learning target-like language forms, video-based SCMC seems particularly effective for fluency development as well as pronunciation improvement.
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- 2016
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9. The Internationalization of Research in Europe: A Quantitative Study of 11 National Systems From a Micro-Level Perspective
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Kwiek, Marek
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This article focuses on the impact of international research collaboration on individual research productivity in 11 European countries. Research productivity and international publication co-authorship of "internationalists" and "locals" (or academics collaborating and not collaborating internationally) are compared. The article uses a micro-level (individual) approach and relies on the primary data collected in a comparable format through a survey from 17,211 European academics. In all countries and all clusters of academic fields studied, international collaboration in research is strongly correlated with substantially higher research productions. Internationalization increasingly plays a stratifying role, though: More international collaboration tends to mean higher publishing rates and those who do not collaborate internationally may be losing more than ever before in terms of resources and prestige in the process of "accumulative disadvantage." The competition is becoming a permanent feature of the European research landscape, and local prestige combined with local publications may no longer suffice in the race for resources and academic recognition. Cross-disciplinary and cross-national differences apply but our study shows a powerful role of internationalization of research for both individual research productivity and the competitiveness of national research outputs.
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- 2015
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10. Primary School Leadership: Understanding Preparation in the Tóraíocht Programme
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McGuinness, Sam and Cunningham, Verena
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In the context of an impending global educational recruitment crisis, together with the recognition of the critical impact of effective leadership on educational outcomes, leadership preparation has become a focus of educational reform worldwide. The design and delivery of pre-appointment programmes for school leadership has significance for school effectiveness. In many countries, a leadership qualification is now mandatory for aspiring principals. In the Republic of Ireland, Tóraíocht, a non-mandatory accredited programme of preparation for school leadership was introduced in 2008, adding to the various diplomas and degrees available through higher education institutions. Adopting a narrative-informed qualitative methodological approach, the aim of this research study was to examine whether Tóraíocht makes a difference to the perceived leadership competencies of the novice primary school principals (n = 12), six of whom had participated in Tóraíocht and six of whom had not. The main findings indicate certain favourable conclusions regarding the impact of the programme on graduates subsequently appointed to primary-level principalship positions, and positive attitudes towards the proposed introduction of a compulsory pre-appointment leadership qualification in the near future.
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- 2015
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11. An online qualitative study exploring wants and needs for a cooking programme during pregnancy in the UK and Ireland.
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Lavelle, Fiona, McKernan, Claire, Shrewsbury, Vanessa, Wolfson, Julia A., Taylor, Rachael M., Duncanson, Kerith, Martins, Carla A., Elliott, Christopher, and Collins, Clare E.
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COOKING , *QUALITATIVE research , *CONSUMER attitudes , *PREGNANT women , *DESCRIPTIVE statistics , *THEMATIC analysis , *RESEARCH methodology , *DATA analysis software , *NUTRITION education , *PREGNANCY - Abstract
Background: Optimal maternal nutrition is associated with better pregnancy and infant outcomes. Culinary nutrition programmes have potential to improve diet quality during pregnancy. Therefore, this research aimed to understand the experiences of cooking and the wants and needs of pregnant women regarding a cooking and food skills programme in the United Kingdom (UK) and Republic of Ireland (ROI). Methods: Online focus group discussions with pregnant women and those who had experienced a pregnancy in the UK or ROI were conducted between February and April 2022. Two researchers conducted a thematic analysis. Seven focus groups with ROI participants (n = 24) and six with UK participants (n = 28) were completed. Results: Five themes were generated. These were (1) cooking during pregnancy: barriers, motivators and solutions; (2) food safety, stress and guilt; (3) need for cooking and food skills programmes and desired content; (4) programme structure; (5) barriers and facilitators to programme participation. Overall, there was support for a programme focusing on broad food skills, including planning, food storage, using leftovers and to manage pregnancy‐specific physiological symptoms such as food aversions. Participants emphasised the importance of inclusivity for a diverse range of people and lifestyles for programme design and content. Conclusions: Current findings support the use of digital technologies for culinary nutrition interventions, potentially combined with in‐person sessions using a hybrid structure to enable the development of a support network. Highlights: Thirteen online focus group discussions were conducted across the UK and Ireland.Five themes were generated around cooking during pregnancy and the content and structure of a cooking and food skills programme.There was support for an inclusive cooking programme that included a wide range of food‐related skills.Participants believed the programme should be supported by the health services.There was support for the use of digital technologies, potentially combined with in‐person sessions using a hybrid structure. [ABSTRACT FROM AUTHOR]
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- 2024
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12. Exploring concepts of friendship formation in children with language disorder using a qualitative framework analysis.
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Janik Blaskova, Lenka and Gibson, Jenny L.
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PSYCHOLOGY of children with disabilities , *LANGUAGE disorders in children , *QUALITATIVE research , *RESEARCH funding , *INTERVIEWING , *JUDGMENT sampling , *CHILDHOOD friendships , *RESEARCH , *CONCEPTUAL structures , *SOCIAL skills , *RESEARCH methodology , *INTERPERSONAL relations , *WELL-being , *PHYSICAL activity - Abstract
Purpose: Sociometric studies and adult reports have established that children with Language Disorder (LD) are at risk of peer relationship difficulties. However, we have limited knowledge of how children with LD understand friendship, whom they deem as a good or bad friend, and what role their friendship concepts play in their relationships with peers. This exploratory study aimed to conduct a qualitative investigation into the friendship concepts that children with LD hold and to explore their strategies for making friends. Methods: We conducted multiple, art‐informed interviews on the topic of friendship with 14 children with LD at the age of 6–8 years. Participating children were based in the United Kingdom and Republic of Ireland. They attended enhanced provision, specific speech and language classes and mainstream classrooms. We used framework analysis to map children's responses to Selman's (1979) developmental model of interpersonal understanding, which espouses a theory of children's social development within the context of peer relationships. Results: The understanding of friendship formation in children with LD varied from physical presence to mutual support and sharing. Children's ideas about a good/bad friend represented the lowest developmental stage. Participants from the mainstream classroom demonstrated the highest stages of interpersonal understanding. Children with LD did not mention their language abilities as a barrier to making friends. Conclusion: There are limited studies exploring friendship directly from children with LD, and this study provides insights into this gap, by utilising art‐informed interviews. Children's immature understanding of a good/bad friend points towards a potential susceptibility to false friends, which we suggest needs further empirical validation. We also found that children with LD did not pay attention to their language difficulties when making friends, which raises questions about the ways diagnoses are shared with children. WHAT THIS PAPER ADDS: What is already known on the subject: Children with Language Disorder (LD) are at risk of peer relationship difficulties. Studies to date are based on sociometrics and adult reports. Only a few studies employ participatory approaches to research with children, directly engaging children with LD when exploring their friendships What this paper adds: This paper directly asks children with LD about their understanding of friendship and strategies for making friends.Physical proximity and play are important to children.s understanding of friendship especially in recognising good and bad friends. This indicates potential reasons for children with LD being susceptible to false friendsAdditionally, children with LD do not perceive language and communication as a barrier to making friends. What are the potential or actual clinical implications of this work?: Concepts around friendship and good/bad friends should be routinely assessed and targeted (if appropriate) in interventions. The study highlights the need to continue discussing practices around sharing diagnoses with children with LD. [ABSTRACT FROM AUTHOR]
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- 2024
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13. Patient and public involvement in international research: Perspectives of a team of researchers from six countries on collaborating with people with lived experiences of dementia and end‐of‐life.
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Vellani, Shirin, Yous, Marie‐Lee, Rivas, Vanessa Maradiaga, Lucchese, Stephanie, Kruizinga, Julia, Sussman, Tamara, Abelson, Julia, Akhtar‐Danesh, Noori, Bravo, Gina, Brazil, Kevin, Ganann, Rebecca, and Kaasalainen, Sharon
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PSYCHIATRY , *CAREGIVER attitudes , *PATIENT participation , *TERMINAL care , *HUMAN research subjects , *STRATEGIC planning , *RESEARCH methodology , *PATIENT selection , *INTERVIEWING , *CULTURAL pluralism , *EXPERIENCE , *QUALITATIVE research , *INTERPROFESSIONAL relations , *PSYCHOLOGY of caregivers , *RESEARCH funding , *REFLEXIVITY , *THEMATIC analysis , *DIFFUSION of innovations - Abstract
Background: Patient and public involvement (PPI) is a critical priority in research, policy, academia and advocacy organizations. PPI in dementia research is gaining momentum. However, these efforts are missing in international projects aimed at those living with advanced dementia in long‐term care (LTC) homes. Additional complexities can arise in enacting PPI within the context of integration of a palliative approach to care and experiences around end‐of‐life in (EOL) dementia. The mySupport study involved implementing the Family Carer Decision Support (FCDS) intervention for care partners of those living with advanced dementia in LTC in six countries. Research Design and Objective: An interpretive description study was conducted to explore the perspectives of international researchers from six countries on engaging people with lived experiences of dementia and EOL care in research processes. The findings from this study informed the development of a PPI strategy and a subsequent toolkit for the FCDS intervention. Findings: Thirty‐eight interviews were completed with project researchers: 12 from the United Kingdom, 8 from Canada, 7 from Ireland, 4 each from Italy and The Netherlands and 3 from the Czech Republic. Four broad themes describe international researchers' perspectives on advancing methods of engagement for people with lived experiences of dementia and EOL in international PPI activities: (1) Groundwork to engage in research; (2) planning for research activities is key; (3) focus on meaningful engagement and (4) having foresight for practical issues shaping PPI. Discussion and Implications: International projects that involve PPI can present many sources of challenges. The findings in this study highlight important considerations for foundational work for incorporating PPI in international projects. Learning from world leaders and those with lived experiences in various regions can be insightful and help share tools and resources. Patient or Public Contribution: PPI was envisioned as a critical part of conducting the mySupport study. The findings from this study informed the development of a PPI strategy and an international Strategic Guiding Council that included family carers of those living with advanced dementia in LTC homes in six countries. This manuscript focused on the perspectives of researchers on their engagement with people with lived experiences of dementia and EOL. The perspectives of persons with lived experiences on engaging in the mySupport research study will be reported in a forthcoming manuscript. [ABSTRACT FROM AUTHOR]
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- 2024
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14. The lived experiences of oropharyngeal dysphagia in adults living with fibromyalgia.
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Gilheaney, Órla, Hussey, Joeann, and McTiernan, Kathleen
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STRATEGIC planning , *RESEARCH methodology , *DEGLUTITION disorders , *ECOLOGY , *INTERVIEWING , *EXPERIENCE , *FIBROMYALGIA , *QUALITATIVE research , *COMPARATIVE studies , *PHENOMENOLOGY , *SOUND recordings , *THEMATIC analysis , *ANXIETY , *PSYCHOLOGICAL adaptation , *STATISTICAL sampling , *VIDEO recording , *SYMPTOMS , *ADULTS - Abstract
Background: Fibromyalgia is a chronic pain condition which has recently been linked with eating, drinking and swallowing difficulties (dysphagia). However, to date, sample sizes within completed research are small and study designs heterogeneous, and therefore, little is known about the lived experiences of dysphagia among people with fibromyalgia. To go some way towards addressing this gap in the literature, this study collected and analysed the first‐hand experiences of the physical symptoms, the psychosocial impacts and environmental factors that influenced the lived experience of a sample of people living with fibromyalgia‐associated dysphagia. Methods: Qualitative semi‐structured interviews were conducted with adults with dysphagia and fibromyalgia. Reflexive thematic analysis was employed and themes were identified regarding the reported experience and impact of swallowing problems. The same researcher conducted the interviews and extracted all data, and a second researcher analysed a random sample of 5% of the data for accuracy, with no disagreements arising between the two researchers. Results: All participants (n = 8) reported the negative psychosocial impact of their dysphagia. Participants reported managing their dysphagia independently, primarily using compensatory strategies. Participants discussed feeling unsupported in healthcare interactions due to clinicians not understanding the occurrence, nature or impact of eating, drinking and swallowing difficulties. Participants also reported that they did not have access to evidence‐based management strategies that adequately addressed their fibromyalgia‐related swallowing problems. Conclusions: Despite minimal previous research in this area, findings here highlight the impact that dysphagia has on people with fibromyalgia. A broad range of physical symptoms were reported to have negative consequences across both social and emotional domains. The reported symptoms often required complex coping strategies and sometimes impeded participants from seeking suitable medical intervention from healthcare providers. There are both broad‐ranging implications of fibromyalgia‐associated dysphagia and reported poor perceptions of medical interactions for this cohort of patients. Therefore, there is evidently a need for clinical research into the management of this condition to develop patient‐centred care delivery options and to equip healthcare professionals with the knowledge and skills necessary to provide efficacious management to this group. Patient or Public Contribution: Before initiation of the qualitative interviews, the interview schedule was piloted with an individual living with fibromyalgia and dysphagia, with feedback provided on the appropriate wording and format of semi‐structured questioning. [ABSTRACT FROM AUTHOR]
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- 2024
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15. The impact of COVID‐19 on mental health and well‐being in critical care nurses – a longitudinal, qualitative study.
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Credland, Nicola, Griffin, Martyn, Hamilton, Peter, Harness, Oonagh, and McMurray, Robert
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COVID-19 , *WELL-being , *WORK environment , *HOSPITALS , *BETRAYAL , *INTENSIVE care units , *NURSES' attitudes , *SOCIAL support , *RESEARCH methodology , *LEADERSHIP , *PRACTICAL politics , *SOCIAL media , *INTERVIEWING , *EMOTIONAL trauma , *CRITICAL care nurses , *QUALITATIVE research , *SOUND recordings , *RESEARCH funding , *THEMATIC analysis , *JUDGMENT sampling , *COVID-19 pandemic , *PSYCHOLOGICAL distress , *LONGITUDINAL method , *CONTROL (Psychology) , *MORALE - Abstract
Background: The COVID‐19 pandemic has had both a psychological and physiological effect on the human race. For those working in health care, particularly in critical care, the pandemic has put unprecedented strain on staff. Witnessing suffering during crisis in an organizational setting can be a traumatic experience and critical care nurses often risked, not only their own lives, but their psychological well‐being, so that those infected with the virus might have a better chance at survival. Aim: The aim of this study was to explore the challenges to mental health and psychological well‐being experienced by Critical Care Nurses during the COVID‐19 pandemic. Study Design: A longitudinal, qualitative study involving semi‐structured interviews with 54 critical care nurses across 38 hospitals in the United Kingdom and Ireland. Interviews were transcribed verbatim and analysed using thematic analysis. Results: Four key themes were identified which represent the challenges faces by critical care nurses during the COVID‐19 pandemic: Lack of control, Psychological trauma, Unexpected leadership, Public‐political betrayal. Conclusions: While public‐political praise may lead to a short‐term lift in morale for front line workers; where it is not accompanied by practical support in terms of appropriate equipment, leadership, emotional support and renumeration it is likely to be damaging in the longer term. Relevance to Clinical Practice: This study has provided a greater understanding of the factors which affected the well‐being and mental health of critical care nurses during a global pandemic. [ABSTRACT FROM AUTHOR]
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- 2024
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16. The impact of COVID-19 on PRO development, collection and implementation: views of UK and Ireland professionals.
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Holch, Patricia, Turner, Grace, Keetharuth, Anju D, Gibbons, E, Cocks, Kim, and Absolom, Kate L
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COVID-19 ,ATTITUDES of medical personnel ,CROSS-sectional method ,HEALTH outcome assessment ,QUALITATIVE research ,CONCEPTUAL structures ,PHARMACEUTICAL industry ,MEDICAL practice ,DATA analysis software ,THEMATIC analysis - Abstract
Background: PROs are valuable tools in clinical care to capture patients' perspectives of their health, symptoms and quality of life. However the COVID-19 pandemic has had profound impacts on all aspects of life, in particular healthcare and research. This study explores the views of UK and Irish health professionals, third sector and pharmaceutical industry representatives and academic researchers on the impact of COVID-19 on PRO collection, use and development in clinical practice. Methods: A volunteer sample took part in a 10 question cross sectional qualitative survey, on the impact of COVID-19, administered online via Qualtrics. Demographic data was descriptively analysed, and the qualitative free text response data was subject to thematic analysis and summarised within the Strengths, Weaknesses, Opportunities and Threats (SWOT) framework. Results: Forty nine participants took part located in a range of UK settings and professions. Participants highlighted staff strengths during the pandemic including colleagues' flexibility and ability to work collaboratively and the adoption of novel communication tools. Weaknesses were a lack of staff capacity to continue or start PRO projects and insufficient digital infrastructure to continue studies online. Opportunities included the added interest in PROs as useful outcomes, the value of electronic PROs for staff and patients particularly in relation to integration into systems and the electronic patient records. However, these opportunities came with an understanding that digital exclusion may be an issue for patient groups. Threats identified included that the majority of PRO research was stopped or delayed and funding streams were cut. Conclusions: Although most PRO research was on hold during the pandemic, the consensus from participants was that PROs as meaningful outcomes were valued more than ever. From the opportunities afforded by the pandemic the development of electronic PROs and their integration into electronic patient record systems and clinical practice could be a lasting legacy from the COVID-19 pandemic. [ABSTRACT FROM AUTHOR]
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- 2023
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17. The Lived Experiences of Female Relatives of Child Sexual Abuse Material (CSAM) Offenders in Ireland and the United Kingdom.
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Kavanagh, Elaine, Kinsella, Elaine, and Ryan, Patrick
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CHILD sexual abuse , *PORNOGRAPHY , *RESEARCH methodology , *SELF-perception , *LEGAL status of sex offenders , *INTERVIEWING , *SOCIAL stigma , *FAMILY attitudes , *EXPERIENCE , *QUALITATIVE research , *PSYCHOLOGY of women , *THEMATIC analysis , *WOUNDS & injuries , *SHAME , *FAMILY relations - Abstract
There is a limited understanding about how an association with those that download Child Sexual Abuse Material (CSAM), a highly stigmatized crime, impacts the lives of their innocent family members. Non-offending family members are often considered a valuable protective resource for offender desistance and in safeguarding children from abuse. Therefore, the present study aimed to explore the lived experiences of female family members of CSAM offenders in Ireland and the United Kingdom to both identify and target areas for intervention thus ameliorating their ability to protect. A qualitative research design was adopted, and data analyzed via reflexive thematic analysis. Fifteen individuals self-selected for participation and interviews resulted in the identification of three key themes: Shattered Worldview, The Injured Self; Contamination by Association. The analysis highlighted how non-offending family members experienced considerable shame, trauma, and stigma with consequences that reached into every aspect of their lives. The findings are discussed in the context of the limited available literature along with research implications and recommendations for both policy and practice. [ABSTRACT FROM AUTHOR]
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- 2023
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18. Leaving child and adolescent mental health services (CAMHS): the impact of diagnosis and medication management on optimal discharge or transition.
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Street, Cathy, Ni Chinseallaigh, Ellen, Holme, Ingrid, Appleton, Rebecca, Tah, Priya, Tuomainen, Helena, Leijesdorff, Sophie, van Bodegom, Larissa, van Amelsvoort, Therese, Franic, Tomislav, Tomljenovic, Helena, and McNicholas, Fiona
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PRIVACY , *CAREGIVERS , *TRANSITIONAL care , *INTERVIEWING , *MEDICAL personnel , *MEDICATION therapy management , *PATIENTS' attitudes , *QUALITATIVE research , *EXPERIENCE , *PATIENTS' families , *CHILD psychopathology , *DECISION making , *CHILD health services , *QUESTIONNAIRES , *MEDICAL ethics , *MEDICAL referrals , *COMMUNICATION , *RESEARCH funding , *THEMATIC analysis , *DECISION making in clinical medicine , *PATIENT-professional relations , *MENTAL health services , *DISCHARGE planning , *PARENTS - Abstract
Purpose: This study aims to explore how young people in child and adolescent mental health services (CAMHS) in the UK, Ireland, The Netherlands and Croatia, experienced leaving CAMHS and identified a range of factors impeding optimal discharge or transition to adult mental health services (AMHS). Design/methodology/approach: Interviews about discharge or transition planning, including what information was provided about their ongoing mental health needs, undertaken with 34 young people aged 17–24, all previous or current attendees of CAMHS. Some interviews included accounts by parents or carers. Data were thematically analysed. Findings: A number of previously well-documented barriers to a well-delivered discharge or transition were noted. Two issues less frequently reported on were identified and further discussed; they are the provision of an adequately explained, timely and appropriately used diagnosis and post-CAMHS medication management. Overall, planning processes for discharging or transitioning young people from CAMHS are often sub-optimal. Practice with regard to how and when young people are given a diagnosis and arrangements for the continuation of prescribed medication appear to be areas requiring improvement. Originality/value: Study participants came from a large cohort involving a wide range of different services and health systems in the first pan-European study exploring the CAMHS to adult service interface. Two novel and infrequently discussed issues in the literature about young people's mental health transitions, diagnosis and medication management were identified in this cohort and worthy of further study. [ABSTRACT FROM AUTHOR]
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- 2023
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19. The non-use of evidence in the adoption of a sugar-sweetened beverage tax in OECD countries.
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Hornung, Johanna and Sager, Fritz
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HEALTH policy , *TAXATION , *NON-communicable diseases , *BEVERAGES , *STRATEGIC planning , *PUBLIC health , *QUALITATIVE research , *PREVENTIVE health services , *RESEARCH funding , *POLICY sciences , *HEALTH care rationing - Abstract
Background Studies confirm the positive effect of sugar-sweetened beverage (SSB) taxation on public health. However, only a few countries in Europe adopt SSB taxes. From a public policy perspective, we investigate the conditions under which countries do or do not follow this evidence. Methods Crisp-set Qualitative Comparative Analysis (QCA) of 26 European Organization of Economic Cooperation and Development countries with and without an SSB tax. We test which configurations of conditions (problem pressure, governmental composition, strategic planning, health care system, public health policies, inclusion of expert advice in policymaking) emerge as relevant in determining adoption and non-adoption between the years 1981 and 2021. Pathways that lead to the presence and absence of SSB taxes are identified separately. Results At least one of the following configurations of conditions is present in countries that introduced taxation: (i) high financial problem pressure, low regulatory impact assessment activity; (ii) high public health problem pressure, a contribution-financed health care system, no holistic strategy for combatting non-communicable diseases (NCDs); (iii) a tax-financed health care system, a holistic NCD strategy, high strategic and executive planning capacity. In countries that did not adopt SSB taxes, we find (i) high regulatory impact assessment activity, high levels of sugar export; (ii) no holistic NCD strategy, high spending on preventive care; (iii and iv) a lack of strategic planning capacity and either a high share of spending on preventive care or inclusion of expert advice. Discussion Evidence inclusion requires clear policy priorities in terms of strategy and resources to promote public health. [ABSTRACT FROM AUTHOR]
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- 2023
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20. Betwixt and between: qualitative findings from a study on a specialist social work service for Travellers in Ireland.
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Kelleher, Joanne, Campbell, Jim, Norris, Michelle, and Palmer, Angela
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PROFESSIONAL practice ,TRAVEL ,SOCIAL workers ,RURAL conditions ,RESEARCH methodology ,PROFESSIONAL employee training ,ORGANIZATIONAL structure ,INTERVIEWING ,QUALITATIVE research ,RESEARCH funding ,SOCIAL services ,METROPOLITAN areas ,DATA analysis software ,THEMATIC analysis ,SOCIAL case work ,CORPORATE culture - Abstract
This paper reports on a study (commissioned by central government) of a specialist social work service provided by local government agencies (local authorities) in Ireland. The service originated in the 1960s, was designed to meet the accommodation related needs of Travellers, an indigenous, Irish, ethnic group, who have faced centuries of social exclusion and discrimination. The paper begins with an account of the economic and social problems faced by Travellers and then the few available Irish and UK publications. It then reports on qualitative findings drawn from interviews with social workers, Travellers and other key stakeholders. The idiom 'betwixt and between' is used to characterise the social work role. Respondents aspired to forms of social action and advocacy roles but were sometimes viewed with suspicion by Traveller activists. Local authority structures were overly focused on non-social work functions where social work expertise was rarely acknowledged or utilised. This partly explains why social workers faced challenges in upholding their professional values, regulatory obligations and continuous professional development. The authors conclude by arguing for a more clearly defined, human-rights based social work role, referencing lessons that can be drawn from the wider European literature. [ABSTRACT FROM AUTHOR]
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- 2023
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21. 'It's like being pushed into sea on a boat with no oars': Breast cancer survivorship and rehabilitation support in Ireland and the UK.
- Author
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Deery, Elizabeth, Johnston, Katie, and Butler, Thomas
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- *
SOCIAL support , *RESEARCH methodology , *CARDIOVASCULAR diseases , *INTERVIEWING , *DIET , *CANCER , *CANCER patients , *QUALITATIVE research , *HEALTH attitudes , *MENTAL depression , *EXERCISE , *STRESS management , *ANXIETY , *THEMATIC analysis , *JUDGMENT sampling , *BREAST tumors , *COMORBIDITY , *CANCER patient rehabilitation - Abstract
Background: Cancer survivorship is associated with co‐morbidities including anxiety, depression and cardiovascular disease (CVD). Rehabilitative care post‐treatment is vital for survivors' psychological and physical well‐being. The present study aimed to investigate breast cancer survivors' attitudes towards their health post‐treatment; their awareness of co‐morbidities associated with treatment; and their awareness of support systems available. Methods: A qualitative research approach was employed, using semi‐structured interviews with breast cancer survivors from the UK and Ireland. Data were analysed using thematic analysis. Eight breast cancer survivors were recruited through purposive sampling. Results: Two themes emerged from the data: (1) health and rehabilitation post‐treatment, which included mental and physical health and a desire to control one's own health in survivorship as well as a discussion around co‐morbidities, and (2) access to support services in survivorship, which highlighted both positive and negative experiences of accessing support, as well as reasons for not accessing support in survivorship. Conclusions: Access to rehabilitation support, including diet, exercise and stress management, is key to survivorship. Rehabilitation and support services need to be more readily available for survivors to aid them in this journey and to educate them on the increased risk of conditions such as CVD with cancer treatment. Utilising current cardiac rehabilitation models could be a solution to provide a holistic cancer rehabilitation, thus providing the lifelong support that cancer survivors both want and need. Key points: Access to rehabilitation support, including diet, exercise and stress management, is key to survivorship; however, access to support differed and was lacking for many survivors. Longer‐term comorbidities of cancer treatment were not fully understood. Therefore, there is a need for rehabilitation and support services to educate survivors on the increased risk of conditions such as cardiovascular disease with cancer treatment. These services must also address long‐term risk through lifestyle factors, including diet and physical activity. Utilising current cardiac rehabilitation models could be a solution to provide a holistic cancer rehabilitation, thus providing the lifelong support that cancer survivors both want and need. [ABSTRACT FROM AUTHOR]
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- 2023
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22. Assessment tools used in adult safeguarding practice within the UK and Ireland: results from a small-scale qualitative study.
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Doyle, Laura, Montgomery, Lorna, Donnelly, Sarah, Mackay, Kathryn, and Penhale, Bridget
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SAFETY , *PILOT projects , *RESEARCH methodology , *INTERVIEWING , *QUALITATIVE research , *CONCEPTUAL structures , *RISK assessment , *THEMATIC analysis , *SOCIAL case work - Abstract
Purpose: Across the UK and Ireland, there are a range of processes and interventions offered to adults who, because of personal characteristics or life circumstances, require help to keep themselves safe from potential harm or abuse. The ways in which the statutory and voluntary sectors have chosen to safeguard these adults varies. Different models of intervention and the utilisation of a range of assessment tools, frameworks and approaches have evolved, often in response to policy and practice wisdom. Empirical research in this area is limited. The primary research purpose of the project on which this paper is based is to gather information on the range of tools and frameworks that are used in adult safeguarding practice across the UK and Ireland. In so doing, this paper seeks to contribute and inform the future development of an evidence based adult safeguarding assessment framework. Design/methodology/approach: A team of academics from England, Scotland, Northern Ireland and Ireland wanted to explore the possibility of adapting a pre-existing assessment framework currently in use in family and childcare social work to consider its utility in assessing carers involved in adult safeguarding referrals. This paper reports on a small pilot study which sought to inform the adaptation of this framework for use in adult safeguarding. This paper is based on a qualitative study involving 11 semi-structured telephone interviews with adult safeguarding social work managers and experienced practitioners. Two to four professionals from each region of England, Scotland, Northern Ireland and Ireland were interviewed to elicit their perceptions and experiences of engaging in adult safeguarding assessment processes and their views about models of assessment. Findings: This study identified considerable variation in and between the nations under review, in terms of the assessment frameworks and tools used in adult safeguarding practice. To a large extent, the assessment frameworks and tools in use were not evidence based or accredited. Participants acknowledged the value of using assessment frameworks and tools whilst also identifying barriers in undertaking effective assessments. Originality/value: There is limited evidence available in the literature regarding the utility of assessment frameworks and tools in adult safeguarding practice. This primary research identifies four themes derived from professional's experiences of using such frameworks and identifies broader recommendations for policy and practice in this area. [ABSTRACT FROM AUTHOR]
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- 2023
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23. How research into healthcare staff use and non‐use of e‐books led to planning a joint approach to e‐book policy and practice across UK and Ireland healthcare libraries.
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Gorring, Hélène, Duffy, Denise, Forde, Alison, Irving, Donna, Morgan, Katherine, and Nicholas, Katie
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ELECTRONIC books , *MEDICAL libraries , *SOCIAL media , *ATTITUDES of medical personnel , *POSTERS , *BIBLIOGRAPHIC databases , *INTERVIEWING , *HUMAN services programs , *MEDICAL care research , *NATIONAL health services , *QUALITATIVE research , *SURVEYS , *INTERPROFESSIONAL relations , *HEALTH , *POLICY sciences , *INFORMATION-seeking behavior , *NEEDS assessment , *STATISTICAL sampling , *JUDGMENT sampling , *EMAIL - Abstract
The research goals were to obtain an understanding of who the users of e‐books in the NHS are, what they are using e‐books for, and when and how they use them. This article presents the methodology used and the findings from the research. It also explores the outputs and next steps from the research, both for the individual countries and collectively. The Five Nations group, (library leads in England, Northern Ireland, Ireland, Scotland and Wales) commissioned research into healthcare staff use and non‐use of e‐books to understand the behaviours, needs and expectations of healthcare staff and to identify shared challenges around e‐books to inform policy and practice. [ABSTRACT FROM AUTHOR]
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- 2023
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24. Trainee clinical psychologists' experiences of the therapeutic alliance while pregnant.
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Curtin, Yvonne and Houghton, Sharon
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THERAPEUTIC alliance , *CLINICAL psychologists , *SEMI-structured interviews - Abstract
The present study examined trainee clinical psychologists' experiences of the therapeutic alliance while pregnant. There is a dearth of literature that has explored trainee clinical psychologists' lived experiences of the therapeutic alliance while pregnant. To address this gap in the literature, the present study explored trainee clinical psychologists' experiences of the therapeutic alliance while pregnant. Using a qualitative design, 11 trainee clinical psychologists from clinical doctorate programmes in Ireland and the United Kingdom were invited to take part in a semi-structured interview about their experiences. From the analysis, three superordinate themes emerged: a) disclosure of the pregnancy; b) perception of the alliance and c) changes within the therapeutic interaction. The findings suggest that trainees may experience changes in their relationships with clients during their pregnancy. Recommendations from this study include the development of specific guidelines for responding to these relational changes that may emerge within the therapeutic space, in response to their pregnancy. Directions for future studies are discussed. [ABSTRACT FROM AUTHOR]
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- 2023
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25. Children with language disorder as friends: Interviews with classroom peers to gather their perspectives.
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Blaskova, Lenka Janik and Gibson, Jenny L
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FRIENDSHIP , *AFFINITY groups , *ART , *SOCIOMETRY , *COMMUNICATION barriers , *INTERVIEWING , *QUALITATIVE research , *MAINSTREAMING in special education , *DESCRIPTIVE statistics , *ACTION research , *RESEARCH funding , *THEMATIC analysis , *LANGUAGE disorders in children , *MEDICAL coding - Abstract
Language disorder (LD) is a common childhood condition affecting language development, which can in turn impact children's peer relationships. Although most children with LD are included in mainstream classrooms, there is limited knowledge about the way friendships support or hinder the learning experiences of children with LD in inclusive settings. Typically developing (TD) peers' views tend to get overlooked when considering inclusion but they need to be heard as they too adapt to inclusive classrooms. In this small-scale study, we explored the perspectives of peers on their friendship quality with children with LD. We conducted friendship interviews with classroom friends (n = 9) of 6–8-year-old children with LD (n = 9), who attended the enhanced provision and mainstream classrooms in the United Kingdom and the Republic of Ireland. We used sociometric nomination methods to identify the reciprocal friends of children with LD. We then interviewed these friends using art-based methods and analysed our interview data using thematic framework. Friends of children with LD attending the enhanced provision showed an inclusive mindset and revealed their own strategies for overcoming potential communication barriers. In contrast, friends in full-time mainstream classrooms did not report experiencing communication difficulties when interacting with a peer with LD. We conclude that educational practice should build on those inclusion strategies that children find natural and consider the importance of teaching all children about adjustments that can support inclusion of those with communication difficulties. [ABSTRACT FROM AUTHOR]
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- 2023
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26. In it together?: Exploring solidarity with frontline workers in the United Kingdom and Ireland during COVID‐19.
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Kinsella, Elaine L., Muldoon, Orla T., Lemon, Sarah, Stonebridge, Natasha, Hughes, Samantha, and Sumner, Rachel C.
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- *
WELL-being , *ATTITUDES of medical personnel , *SOCIAL networks , *RESEARCH methodology , *LEADERSHIP , *MEDICAL personnel , *INTERVIEWING , *SOCIAL cohesion , *EXPERIENCE , *QUALITATIVE research , *PSYCHOSOCIAL factors , *INTERPERSONAL relations , *DECISION making , *RESEARCH funding , *THEMATIC analysis , *MANAGEMENT , *POLICY sciences , *INDUSTRIAL hygiene , *COVID-19 pandemic - Abstract
The phrase 'in it together' has been used liberally since the outbreak of COVID‐19, but the extent that frontline workers felt 'in it together' is not well understood. Here, we consider the factors that built (or eroded) solidarity while working through the pandemic, and how frontline workers navigated their lives through periods of disconnection. Semi‐structured interviews with 21 frontline workers, across all sectors, were conducted in the United Kingdom and Ireland. The qualitative data were analysed systematically using reflexive thematic analysis. The three themes identified in the data were: (1) Solidarity as central to frontline experiences; (2) Leadership as absent, shallow and divisive: highlighting 'us‐them' distinctions and (3) The rise of 'us' and 'we' among colleagues. Our research offers insights into how frontline workers make sense of their experiences of solidarity and discordance during the first year of the COVID‐19 pandemic, with relevance for government and organizational policy‐makers shaping future conditions for frontline workers. [ABSTRACT FROM AUTHOR]
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- 2023
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27. Visual perceptual deficit screening in stroke survivors: evaluation of current practice in the United Kingdom and Republic of Ireland.
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Colwell, Michael J., Demeyere, Nele, and Vancleef, Kathleen
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- *
CONSENSUS (Social sciences) , *MEDICAL rehabilitation , *STROKE , *PERCEPTUAL disorders , *SELF-evaluation , *RESEARCH methodology , *MEDICAL screening , *INTERVIEWING , *PATIENTS , *QUALITATIVE research , *CRONBACH'S alpha , *MEDICAL protocols , *VISUAL perception , *QUESTIONNAIRES , *DESCRIPTIVE statistics , *STROKE rehabilitation , *CHI-squared test , *RESEARCH funding , *PHYSICIAN practice patterns , *THEMATIC analysis , *DATA analysis software , *DISEASE complications , *SYMPTOMS - Abstract
Visual perceptual deficits are frequently underdiagnosed in stroke survivors compared to sensory vision deficits or visual neglect. To better understand this imparity, we evaluated current practice for screening post-stroke visual perceptual deficits. We conducted a survey targeted at professionals working with stroke survivors involved in screening visual perceptual deficits across the United Kingdom and the Republic of Ireland. Forty orthoptists and 174 occupational therapists responded to the survey. Visual perceptual deficit screening was primarily conducted by occupational therapists (94%), with 75∼100% of stroke survivors screened per month. Respondents lacked consensus on whether several common post-stroke visual deficits were perceptual or not. During the screening, respondents primarily relied on self-reports and observation (94%), while assessment batteries (58%) and screening tools were underutilised (56%) and selected inappropriately (66%). Respondents reported lack of training in visual perception screening (20%) and physical/cognitive condition of stroke survivors (19%) as extremely challenging during screening. Visual perceptual deficits are screened post-stroke at a similar rate to sensory vision or visual neglect. Underdiagnosis of visual perceptual deficits may stem from both reliance on subjective and non-standardised screening approaches, and conflicting definitions of visual perception held among clinicians. We recommend increased training provision and use of brief performance-based screening tools. Lack of agreement among clinicians on what constitutes as visual perceptual or sensory vision deficits may prove problematic, as precise and exact language is often required for clinical decision-making (e.g., referrals). Biases for more familiar visual (perceptual) deficits held among clinicians during the screening process may lead to other visual deficits being missed. To avoid problems being missed, clinicians should aim to use standardised assessments rather than stroke survivor self-report and observations of function when screening for visual perceptual difficulties. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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28. Watch Out for the Bull! Farmer Risk Perception and Decision-Making in Livestock Handling Scenarios.
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Tone, Ilinca and Irwin, Amy
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- *
EQUIPMENT & supplies , *ATTITUDE (Psychology) , *PSYCHOLOGY of agricultural laborers , *AGRICULTURE , *RESEARCH methodology , *ECOLOGY , *COGNITION , *RISK perception , *QUALITATIVE research , *DECISION making , *CASE studies , *SCALE analysis (Psychology) , *RISK management in business , *THEMATIC analysis , *FATIGUE (Physiology) , *ANIMALS , *PSYCHOLOGICAL stress - Abstract
Livestock cause many fatal and non-fatal agricultural accidents. It is crucial to understand how farmers perceive and manage different risks associated with livestock handling to devise better solutions for accident reduction. The current study investigated farmers' perception and management of four types of livestock handling risks related to self, animal, environment, and equipment. Additionally, farmers' and agricultural stakeholders' perspectives were compared. Two samples comprising 56 farmers and 55 stakeholders from the UK and Ireland completed the online study. Participants were presented with eight short livestock handling vignettes, two per risk type, and were asked to decide whether they would proceed with the task, to report their reasoning, and to detail their risk management strategies. Likert-scale responses across scenarios were compared. Thematic analysis was used to identify qualitative data patterns. Stress and fatigue were perceived as low risk by both samples based on quantitative and qualitative results. The thematic analysis revealed that risk was evaluated in terms of broader aspects, including animal welfare and duty. Participants reported the use of cognitive non-technical skills when mitigating risks associated with handling livestock alone. By changing safety messages to capture farmer priorities, agricultural organisations could encourage risk avoidance, especially in situations involving stress or fatigue. Furthermore, the cognitive non-technical skills identified could be trained within existing courses for farmers. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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29. Attachment state of mind and trauma in mother and baby home adoptees.
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Dalton, Natasha, McLaughlin, Marian, and Cassidy, Tony
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PSYCHOLOGY of adopted children ,PSYCHOLOGY of mothers ,ATTACHMENT behavior ,QUALITATIVE research ,PARENTING ,WOUNDS & injuries ,PSYCHOLOGY of adoptive parents ,THEMATIC analysis ,PSYCHOLOGICAL adaptation - Abstract
This study has two aims: to explore the experiences and impact of adoption among five adults (three males and two females, all over the age of 55) adopted from mother and baby homes in the UK and Ireland, and to establish each participant's state of mind (SOM) with regards to attachment using the Adult Attachment Interview (AAI) (George, Kaplan and Main, 1985–1996). It makes use of all information gained from the AAI by analysing the interview transcripts in two ways: (1) using the AAI scoring system (Main, Goldwyn and Hesse, 2003) to assess SOM; and (2) thematic analysis of the transcripts to produce an inductive set of themes. It was found that all participants had an insecure SOM with regards to attachment. For four out of the five participants, this was unresolved/disorganised, and the category 'preoccupied' was the most prevalent underlying three-way classification. Qualitative analysis of transcripts identified four overarching themes: (1) identity and belonging; (2) trauma; (3) 'silenced' coping; and (4) adverse parenting which reflected their experiences of adoption. The findings indicate that the participants were highly susceptible to trauma associated with loss. They also highlight the importance of suitable adoption placements and vetting of potential adopters. The clinical and research implications of the results and their contribution to the broader discussion of trauma related to adoption are discussed. [ABSTRACT FROM AUTHOR]
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- 2022
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30. "We shouldn't waste a good crisis": the lived experience of working on the frontline through the first surge (and beyond) of COVID-19 in the UK and Ireland.
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Kinsella, Elaine L., Hughes, Samantha, Lemon, Sarah, Stonebridge, Natasha, and Sumner, Rachel C.
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- *
WELL-being , *WORK , *ATTITUDE (Psychology) , *RESEARCH methodology , *JOB stress , *MEDICAL personnel , *INTERVIEWING , *QUALITATIVE research , *PSYCHOSOCIAL factors , *EXPERIENTIAL learning , *THEMATIC analysis , *COVID-19 pandemic , *PSYCHOLOGICAL resilience - Abstract
Frontline workers have shown extraordinary resilience and sustained efforts since the outbreak of COVID-19. The present study used semi-structured interviews with 38 frontline workers in the UK and Ireland to explore the psychological impact of working through COVID-19. The qualitative data were analysed systematically using thematic analysis. Four themes were interpreted: 1)) "I've stopped turning the telly on. I've had to because the news was making me ill": An ecosystem of influence; 2) "Dead, dead, dead": The emotional and psychological toll: 3) "It's shone a light on what we're failing on as well": Injustices, hierarchies and heroes: and 4) "I definitely think COVID happened for a reason to stop us in our tracks and to slow us down": Unexpected positives. This research offers insights into how frontline workers make sense of their experiences during periods of enormous societal and occupational stress. The learnings generated have relevance for government and organisational policy-makers who have opportunities to shape future conditions for frontline workers. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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31. An evaluation of the process of informed consent: views from research participants and staff.
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O' Sullivan, Lydia, Feeney, Laura, Crowley, Rachel K., Sukumar, Prasanth, McAuliffe, Eilish, and Doran, Peter
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- *
HUMAN research subjects , *PARTICIPANT observation , *MEDICAL research , *RESEARCH methodology , *QUALITATIVE research - Abstract
Background: The process of informed consent for enrolment to a clinical research study can be complex for both participants and research staff. Challenges include respecting the potential participant's autonomy and information needs while simultaneously providing adequate information to enable an informed decision. Qualitative research with small sample sizes has added to our understanding of these challenges. However, there is value in garnering the perspectives of research participants and staff across larger samples to explore the impact of contextual factors (time spent, the timing of the discussion and the setting), on the informed consent process.Methods: Research staff and research participants from Ireland and the UK were invited to complete an anonymous survey by post or online (research participants) and online (research staff). The surveys aimed to quantify the perceptions of research participants and staff regarding some contextual factors about the process of informed consent. The survey, which contained 14 and 16 multiple choice questions for research participants and staff respectively, was analysed using descriptive statistics. Both surveys included one optional, open-ended question, which were analysed thematically.Results: Research participants (169) and research staff (115) completed the survey. Research participants were predominantly positive about the informed consent process but highlighted the importance of having sufficient time and the value of providing follow-up once the study concludes, e.g. providing results to participants. Most staff (74.4%) staff reported that they felt very confident or confident facilitating informed consent discussions, but 63% felt information leaflets were too long and/or complicated, 56% were concerned about whether participants had understood complex information and 40% felt that time constraints were a barrier. A dominant theme from the open-ended responses to the staff survey was the importance of adequate time and resources.Conclusions: Research participants in this study were overwhelmingly positive about their experience of the informed consent process. However, research staff expressed concern about how much participants have understood and studies of patient comprehension of research study information would seem to confirm these fears. This study highlights the importance of allocating adequate time to informed consent discussions, and research staff could consider using Teach Back techniques.Trial Registration: Not applicable. [ABSTRACT FROM AUTHOR]- Published
- 2021
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32. The Lived Experience of Sexuality Among Adults With Intellectual and Developmental Disabilities: A Scoping Review.
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Bathje, Molly, Schrier, Mallory, Williams, Katherine, and Olson, Linda
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CINAHL database ,ONLINE information services ,PSYCHOLOGY information storage & retrieval systems ,SYSTEMATIC reviews ,RESEARCH methodology ,DEVELOPMENTAL disabilities ,QUANTITATIVE research ,EXPERIENCE ,ATTITUDES toward sex ,QUALITATIVE research ,PHENOMENOLOGY ,ETHNOLOGY research ,DISCOURSE analysis ,OCCUPATIONAL therapy services ,PEOPLE with intellectual disabilities ,MEDLINE ,DATA analysis software ,THEMATIC analysis - Abstract
Importance: Sexuality is an important part of the human experience. However, little is known about the experience of sexuality from the perspective of adults with intellectual and developmental disabilities (IDD). Objective: To review evidence about the lived experience of sexuality among adults with IDD to inform future research and practice. Data Sources: We located articles using search terms summarized into three categories: intellectual disability, sexual activity, and feelings/opinions. Articles were indexed in the following electronic databases: CINAHL, Scopus, PubMed, and PsycINFO. Study Selection and Data Collection: Arksey and O'Malley's methodology was used to review scientific literature published between 2008 and 2018. The studies were in English, were located in peer-reviewed journals, and described the experience of sexuality from the perspective of people with IDD or observations of expressed sexuality. Findings: Seventeen articles met inclusion criteria. Four main themes emerged: intimate relationships, oppressed sexual activity, knowledge, and identity. Findings indicate that sexuality is a part of the lives of many adults with IDD, regardless of their engagement in sexual activity. Conclusions and Relevance: Barriers to expression of sexuality exist for people with IDD. Some of these barriers are internal, although many are external. The results provide support for addressing sexuality among adults with IDD. What This Article Adds: This review provides evidence to support occupational therapy practitioners in including sexuality as a part of their holistic view of clients and as an area for advocacy. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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33. Occupational therapy practice with children with developmental coordination disorder: An online qualitative vignette survey.
- Author
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O'Dea, Áine Emma, Coote, Susan, and Robinson, Katie
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OCCUPATIONAL therapy needs assessment ,CROSS-sectional method ,MOVEMENT disorders ,INTERVIEWING ,QUALITATIVE research ,OCCUPATIONAL therapy services ,QUESTIONNAIRES ,CASE studies ,INTERPROFESSIONAL relations ,DESCRIPTIVE statistics ,THEMATIC analysis ,STATISTICAL sampling ,CHILDREN - Abstract
Introduction: Children and young people with developmental coordination disorder experience multiple occupational performance and participation challenges across environments. Research to date has not fully explored occupational therapy practice with children with developmental coordination disorder and their families. This study aims to describe current occupational therapy practice with children with developmental coordination disorder. Method: This study used a cross-sectional, online qualitative vignette survey methodology. International occupational therapists who were working with or had worked with children with developmental coordination disorder within the previous 5 years were invited to participate. Following a case vignette, clinicians were asked questions prompting them to describe their practice based upon the vignette. The data were analysed thematically. The Consolidated Criteria for Reporting Qualitative Research and Checklist for Reporting Results of Internet E-Surveys reporting guidelines were adhered to. Findings: Fifty-three valid responses were analysed. Analysis identified three themes describing occupational therapy practice with children with developmental coordination disorder: (a) a collaborative approach to establish occupation-focused goals; (b) occupation-focused assessment to guide therapy and diagnose developmental coordination disorder; and (c) the use of occupation-based interventions incorporating multiple strategies to enhance occupational engagement. Conclusion: This study suggests that current occupational therapy practice with children with developmental coordination disorder is collaborative, occupation-focused, and multi-component. Findings highlight a gap between the complexity of practice and the nature of interventions evaluated in research to date. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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34. Perceptions and Nursing Demands and Experiences in the Midst of an International Crisis (PANDEMIC): A Qualitative Study of Nurse Educators' Experiences.
- Author
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Nowell, Lorelli, Dhingra, Swati, Andrews, Kimberley, and Jackson, Jennifer
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OCCUPATIONAL roles ,NURSES' attitudes ,TEACHING methods ,WORK ,CROSS-sectional method ,RESEARCH methodology ,COLLEGE teacher attitudes ,INTERVIEWING ,CURRICULUM ,QUALITATIVE research ,EXPERIENTIAL learning ,EMPLOYEES' workload ,NURSES ,PSYCHOSOCIAL factors ,EDUCATORS ,INTERPROFESSIONAL relations ,NURSING school faculty ,THEMATIC analysis ,PSYCHOLOGICAL adaptation ,MEDICAL needs assessment ,COVID-19 pandemic ,LONGITUDINAL method - Published
- 2021
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35. How people of African Caribbean or Irish ethnicity cope with long‐term health conditions in UK community settings: A systematic review of qualitative, quantitative and mixed method studies.
- Author
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Shafiq, Saba, Parveen, Sahdia, and Oyebode, Jan R.
- Subjects
- *
PSYCHOLOGY information storage & retrieval systems , *CINAHL database , *MEDICAL databases , *INFORMATION storage & retrieval systems , *MEDICAL information storage & retrieval systems , *CHRONIC diseases , *SYSTEMATIC reviews , *RESEARCH methodology , *COMMUNITIES , *QUANTITATIVE research , *SOCIAL stigma , *QUALITATIVE research , *PSYCHOLOGICAL adaptation , *ETHNIC groups , *MEDLINE , *AMED (Information retrieval system) , *HEALTH self-care - Abstract
Living with a chronic or mental health condition can be challenging and requires considerable adjustment. As ways of coping are culturally influenced, it is important to understand how minority ethnic populations cope, to inform appropriate services. This review aimed to explore the coping strategies used by UK residents from an African Caribbean or Irish background between 1960 and 2020. A systematic literature search on strategies used to cope with chronic health conditions in both populations living in the United Kingdom identified 26 relevant studies. Data were extracted, quality of papers was appraised and critical interpretive synthesis was applied. Two major foci of the studies were coping strategies and barriers to coping. The main coping strategies were denial/scepticism, self‐management, spirituality and religion. Within each population, there was variation in ways of coping. The review highlights the complex role of religion in influencing coping strategies. It demonstrates how personal and minority ethnic populations' experiences of service use are connected with stigma, fear and mistrust, which also act as barriers to seeking help and to coping. Coping with a chronic or mental health condition in the Irish and African Caribbean populations is under‐researched. Stigma, fear and mistrust in services act as key barriers to help‐seeking and religion is a prominent coping strategy. However, few detailed examples were given on how it was used to assist individuals when managing a chronic or mental health condition. Also due to a lack of research, firm conclusions cannot be drawn for the Irish population. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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36. Challenges for palliative care day services: a focus group study.
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Hasson, Felicity, Jordan, Joanne, McKibben, Laurie, Graham-Wisener, Lisa, Finucane, Anne, Armour, Kathy, Zafar, Shazia, Hewison, Alistair, Brazil, Kevin, and Kernohan, W. George
- Subjects
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FOCUS groups , *HEALTH care teams , *HEALTH services accessibility , *HOSPICE care , *MEDICAL quality control , *PALLIATIVE treatment , *QUALITATIVE research , *SOCIAL support , *THEMATIC analysis , *ADULT day care , *DESCRIPTIVE statistics - Abstract
Background: Palliative care day services provide a safe environment for people with palliative care needs, enabling them to access a range of services while acting as a respite services for family caregivers. Viewed as marginal services, they are often under resourced and under researched. The aim of this study was to understand how palliative day care services contribute to client care from the perspective of management and hospice multidisciplinary teams. Methods: A descriptive qualitative study, using six focus groups conducted with staff at three United Kingdom hospices in England, Scotland and Northern Ireland. Thirty-five participants were recruited, including management and staff. Discussions were transcribed and analysed thematically. Results: Four key themes emerged: (1) variations of care, beyond heterogeneity of patients; (2) unclear referrals and inconsistent patient population; (3) recognising strengths and challenges and (4) an uncertain future. A major focus of group discussions was the model of care and the benefits of the service, however the importance of demonstrating services' effectiveness and value for money was highlighted. Conclusions: Management and hospice staff believed day-services to be a helpful introduction to palliative care, providing both social and medical support. Economic pressures and patient demand were influencing them to move from a social model to a hybrid model. Further research is needed to understand the effectiveness of the service. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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37. Older people's early experience of household isolation and social distancing during COVID‐19.
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Brooke, Joanne and Clark, Maria
- Subjects
- *
PSYCHOLOGICAL adaptation , *ATTITUDE (Psychology) , *COMMUNITY health services , *HAND washing , *INFORMATION services , *INTERVIEWING , *LIFE , *PHENOMENOLOGY , *RESEARCH methodology , *QUALITY of life , *STATISTICAL sampling , *SOCIAL isolation , *STERILIZATION (Disinfection) , *QUALITATIVE research , *SOCIAL support , *SOCIAL media , *PATIENTS' attitudes , *COVID-19 , *SOCIAL distancing , *COVID-19 pandemic , *OLD age - Abstract
Aim and objective: To explore older people's initial experience of household isolation, social distancing and shielding, and the plans they constructed to support them through the COVID‐19 pandemic. Background: Public health guidance for those aged 70 or older was predominantly to undertake stringent social distancing within their household. Little is known about older people's experience of these measures. This paper explores changes experienced by those over the age of 70 during the first two weeks of household isolation, social distancing and shielding in the UK and the Republic of Ireland, and their early perceptions and plans to support them through the pandemic. Methods: An inductive phenomenological study. University staff posted the study invitation flyer on social media, such as WhatsApp neighbourhood groups, the Nextdoor App and Twitter. Qualitative semi‐structured interviews were undertaken with 19 participants and repeated at 2‐week intervals for 10 weeks; further data collection is still in progress. This paper presents the findings from the baseline interviews, which showed older peoples' early responses. The COREQ (COnsolidated criteria for REporting Qualitative research) checklist was adhered to in the reporting of this study. Results: Three themes emerged from older people's early experiences of social distancing: protective measures; current and future plans; and acceptance of a good life, but still a life to live. Conclusion: People over 70 adapted to household isolation, social distancing and shielding, by using social media and neighbourhood resources. Nurses and other professionals can develop holistic care for older people by listening to their experiences of what works for them, helping them link to local and distant supports. Understanding the holistic life view of older people, including death anxiety, is an important element of care planning; to help older people access the protective resources, they need to reduce the serious risks associated with coronavirus. Relevance to clinical practice: Older people engage with social media, and during the current pandemic and beyond nurses can engage with this medium to communicate with older people. The importance of nurses to understand some older people consider quality of life to be more important than longevity, which may impact on their adherence to health advice. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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38. A cross‐cultural qualitative study of the ethical aspects in the transition from child mental health services to adult mental health services.
- Author
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O'Hara, Lesley, Holme, Ingrid, Tah, Priya, Franic, Tomislav, Vrljičak Davidović, Nikolina, Paul, Moli, Singh, Swaran Preet, Street, Cathy, Tuomainen, Helena, Schulze, Ulrike, McNicholas, Fiona, Madan, Jason, Wolke, Dieter, Warwick, Jane, Canaway, Alastair, Griffin, James, Appleton, Rebecca, Tuffrey, Amanda, Wilson, Anna, and Gatherer, Charlotte
- Subjects
- *
AUTONOMY (Psychology) , *DECISION making , *FOCUS groups , *MEDICAL care , *MENTAL health services , *SOCIAL stigma , *TRANSCULTURAL medical care , *QUALITATIVE research , *ADULTS , *CHILDREN - Abstract
Background: Transitioning from Child and Adolescent Mental Health Services (CAMHS) to Adult Mental Health Services (AMHS) raises novel ethical aspects for healthcare professionals, as well as for young people, their parents and carers. Method: Focus groups were conducted in Croatia, Ireland and the United Kingdom with youth mental health groups and youth representatives with no mental health (MH) remit. One hundred and eleven participants, aged from 16 to 60 years, contributed to discussions. Results: Perpetuation of stigma, autonomy and decision‐making were central themes as both enablers and deterrents of successful transition. The tension between professional (and at times parental) paternalism and young persons' growing autonomy was well captured in the themes; (a) desired practice, (b) who should decide, (c) the process of decision‐making and (d) potential harm(s). Conclusions: This study provides insight into the ethical values, particularly autonomy and collaboratively working, which people expect to underpin the transition between CAMHS and AMHS. Key Practitioner Message: Engaging young people early in making decisions about their future care can enhance trust between practitioner and the young person.In addition to diagnosis, a number of factors (such as moving home; waiting lists and stigma) may need to be taken into account when considering the direction of future health care.When possible, alternatives to AMHS should be considered if considered by the young person to be a less‐stigmatising treatment option. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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39. How do you solve a problem like Maria? Family complexity and institutional complications in UK social work.
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Walsh, Julie, White, Sue, Morris, Kate, and Doherty, Paula
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PSYCHOLOGICAL adaptation ,CHILD welfare ,COUNSELING ,DECISION making ,FAMILIES ,DOMESTIC violence ,FOCUS groups ,INTERVIEWING ,MANAGEMENT ,RESEARCH methodology ,MEDICAL personnel ,NEEDS assessment ,RESEARCH funding ,SOCIAL case work ,PSYCHOLOGY of social workers ,SUBSTANCE abuse ,QUALITATIVE research ,GOVERNMENT policy ,FAMILY relations ,SOCIAL support ,PATIENTS' families ,SOCIAL worker attitudes - Abstract
This paper draws on UK data from an international, comparative project involving eight countries. The study examined how social workers' conceptions and definitions of family impact on the way they engage with complex families, and how social policies that frame social work context impact on the way social workers engage with families. Focus groups were held in which social workers from four service areas (child welfare, addictions, mental health and migration) were asked to discuss a case vignette. Several factors were embedded in the vignette to represent a realistic situation a social worker may come across in their day-to-day work. Social workers clearly identified the complexity of the family's situation in terms of the range of issues identified and candidate 'causes'. However, typical first responses were institutional, looking for triggers that would signify certainty about their, or other agencies' involvement. This resulted in a complicated story, through which the family was disaggregated into individual problem-service categories. This paper argues that understanding these processes and their consequences is critical for exploring the ways in which we might develop alternative, supportive professional responses with families with complex needs. It also demonstrates how organisational systems manifest themselves in everyday reasoning. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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- View/download PDF
40. International medical graduates and general practice training: How do educational leaders facilitate the transition from new migrant to local family doctor?
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Wearne, Susan M., Brown, James B., Kirby, Catherine, and Snadden, David
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- *
ADAPTABILITY (Personality) , *FAMILY medicine , *INTERPERSONAL relations , *INTERVIEWING , *RESEARCH methodology , *MEDICAL quality control , *MEDICAL school faculty , *FOREIGN physicians , *RESPONSIBILITY , *VOCATIONAL education , *QUALITATIVE research , *SOCIAL constructionism , *PSYCHOSOCIAL factors , *SOCIAL support , *TEACHING methods , *LEADERS , *HEALTH education teachers - Abstract
Objectives: To document medical educators' experience and initiatives in training international medical graduates (IMGs) to become general practitioners (GP). Design: Qualitative social-constructivist emergent design with descriptive and interpretive analyses. Setting: GP vocational training in Australia, Canada, Ireland, New Zealand, the Netherlands, and UK. Participants: Twenty-eight leaders of GP training. Intervention: Data collected from public documents, published literature and 27 semi-structured interviews. Main outcome measures: Tensions in training and innovations in response to these tensions. Results: Medical educators identified tension in teaching IMGs as it could be different to teaching domestic graduates in any or all aspects of a training program. They felt an ethical responsibility to support IMGs to provide quality health care in their adopted country but faced multiple challenges to achieve this. They described initiatives to address these throughout GP training. Conclusions: IMG's differing educational needs will benefit from flexible individualized adaptation of training programs. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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41. Constructing Meaning through Connection: Religious Perspectives on the Purpose of Life.
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Callister, Adam, Galbraith, Quinn, and Kelley, Heather
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- *
FAMILIES , *RELIGIOUSNESS , *INTERVIEWING , *RELIGIONS , *QUALITATIVE research - Abstract
Given prior research, which establishes a connection between religiosity and an increased sense of meaning in life, this study draws on qualitative data from interviews with 172 religious individuals living in Ireland and the United Kingdom in order to analyze what religious individuals perceive as their purpose in life. Interviews were conducted in person, recorded, transcribed verbatim, and coded utilizing a team-based methodology. Researchers identified three main themes from the data related to the idea that the purpose of life is tied to relationships and connection: love and service toward others, family relationships, and connection with God. An analysis of these findings and prior research on the topic suggests that part of religion's role in increasing a sense of meaning in life is that of encouraging adherents to build and foster meaningful relationships. [ABSTRACT FROM AUTHOR]
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- 2019
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42. Barriers to and Facilitators of Implementing Programs for Return to Work (RTW) of Cancer Survivors in Four European Countries: A Qualitative Study.
- Author
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Tamminga, Sietske J., Braspenning, Anna M., Haste, Anna, Sharp, Linda, Frings-Dresen, Monique H. W., and de Boer, Angela G. E. M.
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CANCER patients ,CONCEPTUAL structures ,EMPLOYMENT reentry ,FOCUS groups ,INTERVIEWING ,VOCATIONAL rehabilitation ,WORK environment ,QUALITATIVE research ,THEMATIC analysis ,HUMAN services programs ,DATA analysis software - Abstract
Purpose Implementation of return to work (RTW) programs for cancer survivors has proved to be challenging. The purpose of our study was to gather experiences about barriers to and facilitators of implementing RTW programs for cancer survivors in four European countries. Methods Separate multidisciplinary focus groups were held in Belgium (n = 8), the Netherlands (n = 8), Ireland (n = 6), and UK (n = 4) in 2017 and included among others a physician, and a representative of an employer, a cancer society, and the government. Primary focus of thematic analysis was what could be done to improve the implementation of RTW programs for cancer survivors. Analysis used the 'Arena in work disability prevention model' as the conceptual framework. Results Many barriers to and facilitators of implementing RTW programs for cancer survivors were described including the personal, workplace, healthcare and legislative system as well as the overall societal and political context. That is, for example cooperation between stakeholders, time, money and ability issues at the workplace, and insufficient/inadequate legislation. Insufficient knowledge of cancer and its implications for work was identified as an overarching theme in all countries leading to stigma, misconceptions and lack of communication. This was mentioned in relation to the workplace, personal and healthcare system, and in the overall societal context. Conclusions Results indicate that a prerequisite for implementing RTW programs is raising sufficient knowledge regarding cancer and its implications for work. Greater knowledge could be a first step to better implement RTW programs which may result in better supporting cancer survivors with their RTW. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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- View/download PDF
43. The Role of Place for Transnational Social Workers in Statutory Child Protection.
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Modderman, Corina, Threlkeld, Guinever, and McPherson, Lynne
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CHILD welfare ,CONCEPTUAL structures ,INTERVIEWING ,LABOR mobility ,PHENOMENOLOGY ,RESEARCH methodology ,POPULATION geography ,RESPONSIBILITY ,STATISTICAL sampling ,SELF-efficacy ,SELF-perception ,SOCIAL services ,PSYCHOLOGY of social workers ,QUALITATIVE research ,PROFESSIONAL practice ,OCCUPATIONAL roles ,SOCIAL worker attitudes - Abstract
This article explores the experience and influence of place amongst transnational social workers. The concept of 'place' may be perceived as quietly existing in the background of everyday social work practice. Yet, transnational social workers in this study tell a different story about what happens to the role of place when social workers become globally mobile. The social work profession is embedded in place; qualifications and applications of social work are located within local and national context. Professional migration inevitably entails being separated from the construction of social work as it was known in the country of origin, which leads to an intersection between the context of social work, the role of place and redefining a professional home in an unfamiliar practice environment. This qualitative study explored the role of place for thirteen transnational social workers who relocated from the UK and Ireland to practice in Australia's child protection system. Participants were interviewed twice over a three-year period to allow a deep understanding of the role of place and experience of 'self' over time. Findings highlight place-related change as a multidimensional experience that has a profound impact on transnational social workers. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
44. Increasing the intensity and comprehensiveness of aphasia services: identification of key factors influencing implementation across six countries.
- Author
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Trebilcock, Megan, Worrall, Linda, Ryan, Brooke, Shrubsole, Kirstine, Jagoe, Caroline, Simmons-Mackie, Nina, Bright, Felicity, Cruice, Madeline, Pritchard, Madeleine, and Le Dorze, Guylaine
- Subjects
- *
APHASIA , *CONCEPTUAL structures , *FOCUS groups , *QUALITATIVE research , *THEMATIC analysis , *HUMAN services programs , *THERAPEUTICS - Abstract
Background: Aphasia services are currently faced by increasing evidence for therapy of greater intensity and comprehensiveness. Intensive Comprehensive Aphasia Programs (ICAPs) combine these elements in an evidence-based, time-limited group program. The incorporation of new service delivery models in routine clinical practice is, however, likely to pose challenges for both the service provider and administering clinicians. This program of research aims to identify these challenges from the perspective of aphasia clinicians from six countries and will seek to trial potential solutions. Continual advancements in global communication technologies suggest that solutions will be easily shared and accessed across multiple countries. Aims: To identify the perceived and experienced barriers and facilitators to the implementation of 1) intensive aphasia services, 2) comprehensive aphasia services, and 3) ICAPs, from aphasia clinicians across six countries. Methods and procedures: A qualitative enquiry approach included data from six focus groups (n = 34 participants) in Australia, New Zealand, Canada, United States of America (USA), United Kingdom (UK), and Ireland. A thematic analysis of focus group data was informed by the Theoretical Domains Framework (TDF). Outcomes and results: Five prominent theoretical domains from the TDF influenced the implementation of all three aphasia service types across participating countries: environmental context and resources, beliefs about consequences, social/professional role and identity, skills, and knowledge. Four overarching themes assisted the identification and explanation of the key barriers and facilitators: 1. Collaboration, joint initiatives and partnerships, 2. Advocacy, the promotion of aphasia services and evidence-based practice, 3. Innovation, the ability to problem solve challenges, and 4. Culture, the influence of underlying values. Conclusions: The results of this study will inform the development of a theoretically informed intervention to improve health services' adherence to aphasia best practice recommendations. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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- View/download PDF
45. Appropriate frameworks for economic evaluation of end of life care: A qualitative investigation with stakeholders.
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Kinghorn, Philip and Coast, Joanna
- Subjects
- *
ATTITUDE (Psychology) , *CONCEPTUAL structures , *COST effectiveness , *EXPERIENCE , *FEAR , *HEALTH care rationing , *INTERVIEWING , *RESEARCH methodology , *MEDICAL personnel , *PALLIATIVE treatment , *PSYCHOLOGICAL stress , *THERAPEUTICS , *QUALITATIVE research , *ATTITUDES toward death , *PATIENTS' attitudes ,ANXIETY prevention - Abstract
Background: The use of quality-adjusted life years rests on the assertion that the objective of the health care system is to improve health. Aim: To elicit the views of expert stakeholders on the purpose and evaluation of supportive end of life care, and explore how different purposes of end of life care imply the need for different evaluative frameworks. Design: Semi-structured qualitative interviews, analysed through an economic lens using a constant comparative approach. Participants: Twenty professionals working in or visiting the United Kingdom or Republic of Ireland, with clinical experience and/or working as academics in health-related disciplines. Results: Four purposes of end of life care were identified from and are critiqued with the aid of the qualitative data: to improve health, to enable patients to die in their preferred place, to enable the patient to experience a good death, and to enable the patient to experience a good death, and those who are close to the patient to have an experience which is as free as possible from fear, stress and distress. Conclusion: Managing symptoms and reducing anxiety were considered to be core objectives of end of life care and fit with the wider health service objective of improving/maximising health. A single objective across the entire health system ensures consistency in the way that resource allocation is informed across that entire system. However, the purpose of care at the end of life is more complex, encompassing diverse and patient-centred objectives which we have interpreted as enabling the patient to experience a good death. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
46. Aspirations for a website to support families' active waiting for speech-language pathology.
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McGill, Nicole and McLeod, Sharynne
- Subjects
EXPERIMENTAL design ,FAMILIES ,FOCUS groups ,HEALTH ,HEALTH services accessibility ,LANGUAGE acquisition ,LANGUAGE disorders in children ,WEB development ,RESEARCH methodology ,QUALITY assurance ,QUESTIONNAIRES ,READABILITY (Literary style) ,RESEARCH ,RESEARCH evaluation ,RESEARCH funding ,STATISTICAL sampling ,SPEECH disorders in children ,SPEECH therapy ,TRUST ,WORLD Wide Web ,INFORMATION resources ,QUALITATIVE research ,JUDGMENT sampling ,QUANTITATIVE research ,SOCIAL support ,THEMATIC analysis ,FAMILY roles ,INTER-observer reliability ,DATA analysis software ,DESCRIPTIVE statistics - Abstract
Purpose: Children sometimes wait 12 months or longer to access speech-language pathology services. Information on websites may support families' active waiting for speech-language pathology; however, there are few user-friendly, evidence-based websites specifically designed for children and families for this purpose. The current study aimed to: (1) ascertain appropriate website content, format, features and functions; (2) evaluate the quality of existing speech and language sites and (3) obtain feedback on a prototype website. Method: A three-stage explanatory sequential mixed-methods design was employed. Stage 1 involved 119 participants completing an online questionnaire recommending website content, format, features and functions. Stage 2 involved evaluating the quality of 25 online sites about children's speech and language. Stage 3 involved focus groups with 16 participants to explore aspirations and feedback on a website to support active waiting. Result: Participants wanted information about typical development and services to access while waiting; strategies to stimulate children's speech and language development; simple web architecture; and high readability. High scoring sites contained evidence-based information from trustworthy sources. Strategies from the theory of preparative waiting arose in the focus groups. Conclusion: Participants considered easily identifiable, trustworthy sources of information, and user-friendly strategies and resources to be important on a website to support active waiting for speech-language pathology. The theory of preparative waiting may be a viable framework informing waiting for speech-language pathology for children with speech and language difficulties. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
47. Managing and supporting quality‐of‐life issues in dysphagia: A survey of clinical practice patterns and perspectives in the UK, Ireland and South Africa.
- Author
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Moloney, Jennifer and Walshe, Margaret
- Subjects
- *
EDUCATION of speech therapists , *DEGLUTITION disorders , *HEALTH care teams , *RESEARCH methodology , *SCIENTIFIC observation , *PROFESSIONAL employee training , *QUALITY of life , *QUESTIONNAIRES , *STATISTICAL sampling , *SPEECH therapists , *SURVEYS , *EVIDENCE-based medicine , *DISEASE management , *QUALITATIVE research , *PILOT projects , *JUDGMENT sampling , *JOB performance , *OCCUPATIONAL roles , *SOCIAL support , *THEMATIC analysis , *CROSS-sectional method , *PSYCHOLOGY , *ATTITUDE (Psychology) - Abstract
Background: There is increasing recognition that dysphagia has significant implications for a person's psychological well‐being, social participation and quality of life (QOL). However, a paucity of research exists regarding the clinical management of this area. To inform future research and the development of appropriate and beneficial resources and guidelines, a better understanding of the current practice of speech and language therapists (SLTs) in this area would be useful. This information will highlight current challenges to clinical practice and the ongoing development needs of the profession, which are, as of yet, undocumented. Aims: To determine the practices of SLTs when addressing QOL issues in individuals with dysphagia, the beliefs of SLTs regarding the impact of dysphagia on QOL, the current trends in assessing and managing QOL in dysphagia, and if variations in beliefs and practices in this area exist. Methods & Procedures: An anonymous cross‐sectional, non‐experimental survey study was used. The survey consisted of 18 questions exploring participants' beliefs and opinions regarding dysphagia and QOL, current clinical practice in the area, perceived facilitators and barriers, and education, training and development needs. The survey was created on Survey Monkey and disseminated by e‐mail link to SLT professional bodies. Purposive and snowball sampling were used and participants self‐selected based on the information provided alongside the e‐mail link. Inclusion criteria for the study were a qualification in speech and language therapy, proficiency in the English language, and access to a computer with the internet. Outcomes & Results: A total of 148 SLTs working across the UK, Ireland and South Africa completed the survey. Over 90% of respondents believe that dysphagia has a negative impact on QOL, but only 25% are currently satisfied with the amount of clinical time they can dedicate to this area. Staffing, resources, a lack of best‐practice guidelines and disease‐specific QOL assessment tools were cited as contributing factors. A number of facilitators and barriers to best practice were also highlighted. Based on these findings, professional development actions for the future are suggested. Conclusions & Implications: SLTs believe they have an important role to play in supporting QOL issues in dysphagia. However, it is reported that the area is currently under‐developed, under‐resourced and under‐supported. Increased awareness raising of the role of SLT, alongside the development of best‐practice guidelines and disease‐specific QOL assessment tools, will enhance the quality of care that can be offered in this area. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
48. Social Ecological Resilience and Mental Wellbeing of Irish Emigrant Survivors of Clerical Institutional Childhood Abuse.
- Author
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Moore, Jeff, Flynn, Marie, and Morgan, Mark
- Subjects
- *
IMMIGRANTS , *PSYCHOLOGICAL adaptation , *PSYCHOLOGY of adult child abuse victims , *ALTRUISM , *ANALYSIS of variance , *ATTITUDE (Psychology) , *INSTITUTIONAL care of children , *CLERGY , *CONTENT analysis , *STATISTICAL correlation , *GROUP identity , *INTERVIEWING , *RESEARCH methodology , *MULTIVARIATE analysis , *QUESTIONNAIRES , *REGRESSION analysis , *PSYCHOLOGICAL resilience , *SOCIAL integration , *SPIRITUALITY , *QUALITATIVE research , *JUDGMENT sampling , *JOB performance , *QUANTITATIVE research , *SOCIAL support , *SOCIOECONOMIC factors , *WELL-being , *SOCIAL context , *DATA analysis software - Abstract
Survivors of clerical institutional childhood abuse (ICA) experience poor mental health outcomes in adulthood. Resilience research with this group has focused on psychological adjustment and we know less about the factors across the social ecology that support positive adaptation, including the impact of migration. This study explores the influence of resilience‐enhancing factors across the social ecology on the mental wellbeing (MWB) of Irish emigrant survivors of ICA and how this compares with non‐migrant survivors. Fifty‐six survivors based in the UK and 46 based in Ireland completed a quantitative survey that assessed resilience‐potentiating resources and associations with MWB. A further nine participants, resident in the UK, engaged in a structured interview which aimed to further explain these quantitative data. Results indicate more resilience‐enhancing resources across the ecology of emigrant survivors of ICA. Personal skills and competencies, such as problem‐focused coping, altruism and defiance, and social inclusion were associated with MWB regardless of country of residence. For the migrant group, social identity not defined by institutional care facilitated social inclusion. Migration to the UK and informal instrumental support in the aftermath of institutional care were identified as key turning points towards resilience. Key Practitioner Messages: Multiple factors across the ecology influence the resilience of survivors of institutional childhood abuse (ICA).Resilience strategies for survivors of ICA are contextual and may appear maladaptive to practitioners unfamiliar with the cultural context of this abuse.For Irish emigrant survivors of ICA, problem‐focused coping, defiance, altruism, social inclusion, instrumental support and a social identity not defined by childhood abuse enhanced resilience.Resilience is dynamic and emerges over time for adult survivors of chronic childhood abuse. 'Explores the influence of resilience‐enhancing factors across the social ecology on the mental wellbeing... of Irish emigrant survivors of institutional childhood abuse' [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
49. Inadequate Communication Exacerbates the Support Needs of Current and Bereaved Caregivers in Advanced Heart Failure and Impedes Shared Decision-making.
- Author
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Fitzsimons, Donna, Doherty, Leanne C., Murphy, Mary, Dixon, Lana, Donnelly, Patrick, McDonald, Kenneth, and McIlfatrick, Sonja
- Subjects
HEART failure ,PSYCHOLOGY of caregivers ,COMMUNICATION ,CONTINUUM of care ,DECISION making ,INTERVIEWING ,RESEARCH methodology ,NEEDS assessment ,PALLIATIVE treatment ,TERMINAL care ,QUALITATIVE research ,SOCIAL support ,THEMATIC analysis ,BURDEN of care ,CAREGIVER attitudes ,PSYCHOLOGY - Abstract
Background: Clinicians face considerable challenges in identifying patients with advanced heart failure who experience significant symptom burden at the end of life. Often, these patients are cared for in the community by a loved one who has limited access to support from specialist services, including palliative care. Aim: The aims of this study were to explore caregivers' experience when caring for a loved one with advanced heart failure at the end of life and to identify any unmet psychosocial needs. Methods: This article reports findings of a qualitative study, using semistructured, one-to-one interviews with current and bereaved caregivers, who participated in a larger mixed-methods study. Interviews were conducted by a trained researcher, digitally recorded, transcribed verbatim, and imported to NVivo 11 for data management and coding. Data were analyzed using thematic analysis and an inductive approach. Results: The 30 interviews included 20 current caregivers and 10 bereaved caregivers. The central feature of the caregivers' experience was identified as being "a physical and emotional rollercoaster." There were 3 main themes identified: poor communication, living with uncertainty, and lack of service provision. These themes were supported by 6 subthemes: inadequate understanding of palliative care, a 24/7 physical burden, emotional burden, inability to plan, no care continuity, and dying lonely and unsupported. Conclusions: Caregivers in advanced heart failure need clearer communication regarding diagnosis and prognosis of their loved one's condition to help with the uncertainty of their situation. Improved identification of palliative care needs and more coordinated service provision are urgently required to address their physical and emotional challenges from diagnosis through bereavement. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
- View/download PDF
50. National Cancer Societies and their public statements on alcohol consumption and cancer risk.
- Author
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Amin, Gopal, Siegel, Michael, and Naimi, Timothy
- Subjects
- *
ALCOHOL drinking & health , *ORAL cancer risk factors , *PHARYNGEAL cancer , *COLON cancer risk factors , *LARYNGEAL cancer , *ESOPHAGEAL cancer risk factors , *CANCER risk factors , *ALCOHOLS (Chemical class) , *TUMOR risk factors , *TOBACCO products , *CARCINOGENS , *COMMUNICATION , *ALCOHOL drinking , *MEDICAL protocols , *MEDICAL societies , *TAXATION , *WORLD Wide Web , *QUALITATIVE research , *GOVERNMENT policy , *ECONOMICS ,CANCER associations ,TUMOR prevention - Abstract
Abstract: Background and aims: Studies have shown that alcohol consumption is a risk factor for oral, pharyngeal, laryngeal, esophageal, liver, colon, rectal and breast cancer. It would therefore be expected that cancer prevention organizations would incorporate these facts into their public stance on the consumption of alcohol. The aims of this study were to: (1) assess how national cancer societies in developed English‐speaking countries [i.e. English‐speaking countries belonging to the Organization for Economic Co‐operation and Development (OECD)] communicate alcohol‐related cancer risk to the public and (2) compare whether these organization's advocacy of increased alcohol taxes is in line with their advocacy of tobacco tax increases to reduce cancer risk. Methods: We searched the websites of the following national cancer organizations for all statements related to the relationship between alcohol consumption and cancer risk: Cancer Council Australia, Canadian Cancer Society, Irish Cancer Society, Cancer Society New Zealand, Cancer Research UK and the American Cancer Society. A categorical system was developed to code the qualitative data for health statements, alcohol consumption recommendations, and tax policy recommendations. Websites were analyzed in March of 2017. Results: All organizations, with the exception of the American Cancer Society and Canadian Cancer Society, state that alcohol is a group 1 carcinogen and that even low‐level alcohol consumption increases risk for some cancers. Additionally, while the American Cancer Society supports increasing tobacco taxes through its cancer action network, it has not advocated for increased alcohol taxes in relation to support for tobacco tax increases. Conclusion: Analysis in 2017 of the websites for national cancer societies in Australia, Canada, Ireland, New Zealand, the United Kingdom and the United States—including Cancer Council Australia, the Canadian Cancer Society, the Irish Cancer Society, Cancer Society New Zealand, Cancer Research UK and the American Cancer Society—shows that only the American Cancer Society and Canadian Cancer Society websites fail to state that alcohol is a group 1 carcinogen and can cause cancer at low doses, and that there is no safe threshold for cancer risk. [ABSTRACT FROM AUTHOR]
- Published
- 2018
- Full Text
- View/download PDF
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