112 results
Search Results
2. BJOT Call for Papers: Special Issue — Cancer rehabilitation.
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AUTHORSHIP ,CANCER patient rehabilitation ,MANUSCRIPTS ,PUBLISHING ,SERIAL publications - Abstract
An introduction is presented in which the author discusses the topics include rehabilitation interventions that reduce disability of cancer survivors across the lifespan; descriptive studies of participation restrictions and functional well-being after cancer diagnosis.
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- 2019
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3. Cancer care and occupational therapy: A scoping review.
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Wallis, Amy, Meredith, Pamela, and Stanley, Mandy
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CANCER patient rehabilitation ,CINAHL database ,PSYCHOLOGY information storage & retrieval systems ,MEDLINE ,OCCUPATIONAL therapy ,OCCUPATIONAL therapy services ,SYSTEMATIC reviews ,EVIDENCE-based medicine ,LITERATURE reviews ,OCCUPATIONAL roles ,DESCRIPTIVE statistics - Abstract
Introduction: Cancer can disrupt participation in everyday activities, suggesting a place for occupational therapy; however, there is a need to articulate the nature, scope and available evidence supporting the occupational therapy role within cancer care. In this scoping review, we identify the breadth of practice and evidence for occupational therapy in cancer care, across all stages of the disease trajectory (diagnosis to palliation/survivorship) throughout the lifespan. Methods: Five electronic databases were searched in June 2018, for English language articles. Key words were: cancer care, OR oncolog*, OR oncologic care, OR neoplasms, OR cancer survivors, OR terminal cancer, OR cancer rehabilitation, AND occupational therap*. No date restrictions were imposed. Included were: all styles of literature including grey literature, all types of cancers and all age brackets. There were no restrictions on place of origin of papers. Following the Arksey and O'Malley (2006; International Journal of Social Research Methodology, 8: 19–32) framework for scoping reviews, the first author screened titles and abstracts, and all three authors reviewed sets of the included articles. Conflicts were discussed until consensus was reached. Results: After evaluating 305 titles and abstracts and 111 full‐text articles, 89 papers were retained. Articles included research studies (n = 43), reviews (n = 15), grey literature (n = 16), practice analyses (n = 14) and an editorial (n = 1). The occupational therapy roles described were diverse, but largely descriptive in nature, with little evidence of outcomes from treatment. Furthermore, the majority of papers addressed adult populations, with few considering children, adolescents or young adults. Most papers focused on specific stages of the disease, and none addressed the disease along its full trajectory. Conclusion: Despite identifying a diverse range of occupational therapy roles in cancer care throughout the disease trajectory and across the lifespan, the need for professional discourse and research within our profession was highlighted. This was particularly evident for adolescents and young adults with cancer. [ABSTRACT FROM AUTHOR]
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- 2020
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4. The Development of a Multi-Modal Cancer Rehabilitation (Including Prehabilitation) Service in Sheffield, UK: Designing the Active Together Service.
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Humphreys, Liam, Myers, Anna, Frith, Gabriella, Thelwell, Michael, Pickering, Katie, Mills, Gary H., Kerr, Karen, Fisher, Patricia, Kidder, John, Keen, Carol, Hodson, Suzanne, Phillips, Gail, Smith, Rachel, Evans, Laura, Thornton, Sarah, Dale, Emma, Maxwell, Louise, Greenfield, Diana M., and Copeland, Robert
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HUMAN services programs ,BEHAVIOR modification ,PREHABILITATION ,CANCER patient medical care ,EXERCISE therapy ,QUALITY of life ,HEALTH behavior ,NUTRITIONAL status ,CANCER patient psychology ,SOCIAL support ,QUALITY assurance ,CANCER patient rehabilitation ,PHYSICAL activity - Abstract
Cancer patients undergoing major interventions face numerous challenges, including the adverse effects of cancer and the side effects of treatment. Cancer rehabilitation is vital in ensuring cancer patients have the support they need to maximise treatment outcomes and minimise treatment-related side effects and symptoms. The Active Together service is a multi-modal rehabilitation service designed to address critical support gaps for cancer patients. The service is located and provided in Sheffield, UK, an area with higher cancer incidence and mortality rates than the national average. The service aligns with local and regional cancer care objectives and aims to improve the clinical and quality-of-life outcomes of cancer patients by using lifestyle behaviour-change techniques to address their physical, nutritional, and psychological needs. This paper describes the design and initial implementation of the Active Together service, highlighting its potential to support and benefit cancer patients. [ABSTRACT FROM AUTHOR]
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- 2024
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5. Optimising Patient Outcomes in Tongue Cancer: A Multidisciplinary Approach.
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de Boer, Jasper, Barnett, Rebecca, Cardin, Anthony, Cimoli, Michelle, Davies, Lauren, Delany, Clare, Dixon, Benjamin J., Evans, Sue M., Findlay, Michael W., Fox, Carly, Ftanou, Maria, Hart, Christopher D., Howard, Megan, Iseli, Tim A., Jackson, Andrea, Kranz, Sevastjan, Le, Brian H., Lekgabe, Ernest, Lennox, Rachel, and McLean, Luke S.
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NURSES ,POLICY sciences ,INTERPROFESSIONAL relations ,DIFFUSION of innovations ,EVALUATION of medical care ,PATIENT care ,TREATMENT effectiveness ,ALLIED health personnel ,CONVALESCENCE ,TONGUE tumors ,WELL-being ,CANCER patient rehabilitation - Abstract
Simple Summary: The initiative outlined in this paper emphasises the importance of a collaborative strategy in managing tongue cancer, involving a broad spectrum of healthcare professionals. This multidisciplinary method integrates the expertise of nurses, allied health workers, and various medical specialists to enhance diagnosis, treatment, and recovery processes for patients. By developing and examining a series of online lectures, this study highlights the critical roles played by each discipline in the comprehensive care pathway, from prevention and early detection to the management of advanced stages of the disease. This approach aims not only to address the clinical aspects of tongue cancer but also to support the overall well-being of patients, showcasing the benefits of teamwork in healthcare settings for improving patient outcomes. A multidisciplinary approach to the management of tongue cancer is vital for achieving optimal patient outcomes. Nursing and allied health professionals play essential roles within the team. We developed symposia comprising a series of online lectures offering a detailed perspective on the role each discipline and consumer perspective has in the management of patients with tongue cancer. The topics, including epidemiology and prevention, diagnosis, treatment planning, surgery, adjuvant care, and the management of recurrent or metastatic disease, were thoroughly examined. The symposia highlighted the significance of fostering collaboration and continuous learning through a multidisciplinary approach. This initiative should be relevant to healthcare professionals, researchers, and policymakers striving to enhance patient outcomes in tongue cancer care through innovative collaboration. [ABSTRACT FROM AUTHOR]
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- 2024
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6. Cancer survivors' experience of exercise-based cancer rehabilitation - a meta-synthesis of qualitative research.
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Midtgaard, Julie, Hammer, Nanna Maria, Andersen, Christina, Larsen, Anders, Bruun, Ditte-Marie, and Jarden, Mary
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CANCER patients ,CANCER patient rehabilitation ,CINAHL database ,EXERCISE therapy ,MEDICAL information storage & retrieval systems ,PSYCHOLOGY information storage & retrieval systems ,MEDLINE ,ONLINE information services ,SYSTEMATIC reviews ,META-synthesis - Abstract
Background. Evidence for the safety and benefits of exercise training as a therapeutic and rehabilitative intervention for cancer survivors is accumulating. However, whereas the evidence for the efficacy of exercise training has been established in several meta-analyses, synthesis of qualitative research is lacking. In order to extend healthcare professionals' understanding of the meaningfulness of exercise in cancer survivorship care, this paper aims to identify, appraise and synthesize qualitative studies on cancer survivors' experience of participation in exercise-based rehabilitation. Material and methods. Five electronic databases (PubMed, PsychINFO, EMBASE, Cinahl and Scopus) were searched systematically for articles published up to May 2014 using keywords and MeSH terms. To be included, studies had to contain primary data pertaining to patient experiences from participation in supervised, structured moderate to vigorous-intensity exercise. Results. In total 2447 abstracts were screened and 37 papers were read in full. Of these, 19 studies (n = 390) were selected for inclusion and critically appraised. Synthesis of data extracted from eight studies including in total 174 patients (77% women, age 28-76 years) exclusively reporting experiences of participation in structured, supervised exercise training resulted in nine themes condensed into three categories: 1) emergence of continuity; 2) preservation of health; and 3) reclaiming the body reflecting the benefits of exercise-based rehabilitation according to cancer survivors. Accordingly, the potential of rebuilding structure in everyday life, creating a normal context and enabling the individual to re-establish confidentiality and trust in their own body and physical potential constitute substantial qualities fundamental to the understanding of the meaningfulness of exercise-based rehabilitation from the perspective of patients. Conclusions. In addition to the accumulating evidence for the efficacy of exercise training in cancer rehabilitation, it is incumbent upon clinicians and policy-makers to acknowledge and promote the meaningfulness of exercise for the individual, and to use this knowledge to provide new solutions to current problems related to recruitment of underserved populations, long-term adherence and implementation. [ABSTRACT FROM AUTHOR]
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- 2015
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7. Survivorship – the situation room.
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Dalton, Susanne Oksbjerg and Johansen, Christoffer
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TUMOR treatment ,CANCER patient psychology ,SERIAL publications ,SURVIVAL rate ,DOCUMENTATION ,NEED (Psychology) ,CANCER patient medical care ,CANCER patient rehabilitation - Abstract
The article offers a perspective on survivorship situation in cancer patients. Emphasis is given on the need to address psychosocial problems such as depression and anxiety in cancer patients. Survivorship research papers are cited on topics including interventions addressing late effects such as neuropathy or bone density, role of patient-reported outcomes in cancer management and follow-up care, and effect of breast cancer treatment on sexuality.
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- 2023
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8. Ghosts in the machinery: Living with and beyond radiotherapy treatment for gynaecological cancer.
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Stewart, Hilary, Ashmore, Lisa, Kragh-Furbo, Mette, Singleton, Vicky, and Hutton, Daniel
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CANCER patient psychology , *WELL-being , *PRESUMPTIONS (Law) , *EXPERIENCE , *PATIENTS' attitudes , *CANCER patients , *RESEARCH funding , *THERAPEUTIC complications , *FEMALE reproductive organ tumors , *PSYCHOLOGICAL distress , *CANCER patient rehabilitation - Abstract
This paper explores post-treatment experiences of women who have had radiotherapy for gynaecological cancer. Drawing on data from a project which explored post-treatment wellbeing, conceptual metaphors of ghosts/haunting are used to engage with enduring legacies of cancer and 'neglected matters' in post-treatment trajectories. Current arrangements of care contribute to the idea that participants are 'out of the other side of cancer' once active treatment completes. Despite broader ambitions for holistic cancer rehabilitation, fragilities of body and mind persist, even when the outward representation is one of health, of looking well, of moving on. We show how neglected matters of cancer (visceral late effects, psychological suffering and lives not lived) are part of living with and beyond cancer. These 'ghosts' manifest in chronic states of unsettledness that are temporarily relieved by individualised 'fixes', such as mobilisation of 'mind over matter' discourse and mindfulness. This discourse and its associated tools are a powerful yet impoverished framing of approaches to living with and beyond cancer. We argue for the need to attend to 'neglected matters' of post-treatment trajectories differently. [ABSTRACT FROM AUTHOR]
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- 2024
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9. Exercise during and after curative oncological treatment – a mapping review.
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Igelström, Helena, Berntsen, Sveinung, Demmelmaier, Ingrid, Johansson, Birgitta, and Nordin, Karin
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TUMOR treatment ,CANCER fatigue ,AEROBIC exercises ,CANCER patient rehabilitation ,EXERCISE ,INFORMATION storage & retrieval systems ,MEDICAL databases ,PSYCHOLOGY information storage & retrieval systems ,LIFE skills ,LYMPHEDEMA ,EVALUATION of medical care ,MEDLINE ,ONLINE information services ,PHYSICAL fitness ,QUALITY of life ,SYSTEMATIC reviews ,RESISTANCE training ,PREVENTION - Abstract
Background:By mapping the existing literature on exercise oncology, gaps in knowledge can be identified, and future directions for research can be pointed out. Objectives:This review aimed to map diagnoses and outcome measures targeted in reviews and describe the effects on those outcomes. Further, the aim was to map exercise intervention characteristics being reviewed and the effects depending on these characteristics, and to discuss implications for future research. Methods: A systematic search was performed in PubMed, Cinahl, PSYCHInfo, and Cochrane Library. Reviews including physical activity and exercise intervention trials in adult patients during or after curative oncological treatment were included. Reference lists were scanned in order to find additional relevant papers. Results:Twenty-three reviews were included in the present study. The majority included mixed forms of cancers. Significant improvements were reported on physical fitness, cancer-related fatigue (CRF), health-related quality of life, physical function, psychological outcomes, lymphedema-related symptoms, biological markers, and physical activity level. Four reviews targeted time point for implementation of exercise intervention. There were slightly greater effects on CRF, physical fitness, and walking distance from implementation after completed treatment. Two reviews comparing exercise types reported superior effects from combinations of aerobic exercise and resistance training compared to aerobic or resistance training alone. One review targeted exercise intensity, and the results indicated a greater effect from moderately intense exercise compared to high intense exercise. One review assessed behaviour change techniques in exercise trials and suggested the use of programme goal-setting, self-monitoring, and generalization of behaviour to promote adoption and maintenance of exercise behaviour. Conclusion: Exercise seems to be beneficial during and after curative oncological treatment in several types of cancer. A higher reporting of exercise intervention details is essential in future exercise intervention trials and there is still a need for large, randomized trials, especially in forms of cancer other than breast cancer. [ABSTRACT FROM AUTHOR]
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- 2017
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10. Fear of cancer recurrence in lymphoma survivors: A descriptive study.
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Latella, Lauren E., Rogers, Madeline, Leventhal, Howard, Parker, Patricia A., Horwitz, Steven, Matasar, Matthew J., Bylund, Carma L., Kissane, David W., Franco, Kara, and Banerjee, Smita C.
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PSYCHOLOGICAL adaptation ,B cell lymphoma ,CANCER patients ,CANCER patient rehabilitation ,CANCER relapse ,COMMUNICATION ,STATISTICAL correlation ,EXPERIENCE ,FEAR ,HEALTH ,HODGKIN'S disease ,PATIENT aftercare ,INTERVIEWING ,RESEARCH methodology ,MEDICAL appointments ,PATIENT-professional relations ,MEDICAL protocols ,ONCOLOGISTS ,ONCOLOGY ,SOCIAL support ,PATIENTS' attitudes ,DESCRIPTIVE statistics - Abstract
Objectives: Fear of cancer recurrence (FCR) is a common experience among cancer survivors and often persists after the termination of cancer treatments. The purpose of this paper was to evaluate FCR in survivors of Hodgkin's and diffuse large B-cell lymphomas, given a high rate of survivorship in this patient population. Research Approach: The parent study was a multi-site, cluster-randomized trial to assess a communication skills intervention: survivorship planning consultation (versus a time-attention control - wellness rehabilitation intervention) to promote transition to survivorship. Participants & Methodological Approach: 199 patients enrolled in the study and completed a survivorship (or control) consultation one-month after receiving the news of their survivorship status; 141 of those patients (n = 92 experimental arm, n = 49 control arm) completed an interview at their 6-month follow-up consultation. In the interview, participants described frequency of FCR, causes of FCR, coping mechanisms, and specific things oncologists said to reduce FCR. Both qualitative and quantitative methods were utilized for analyzing participant responses. Findings: The majority (88%) of participants reported experiencing FCR, with a higher number of participants in the experimental arm significantly more likely to endorse FCR compared to the control group participants. The main causes of FCR were having medical appointments and concerns about potential relapse and secondary cancers. Participants endorsed utilizing self-sufficient coping mechanisms. As well, participants reported that oncologists most frequently cited specific cure rates of lymphoma to reduce patients' FCR. Interpretation & Implications for Psychosocial Providers: Communication skills training programs should emphasize FCR in survivorship consultations. [ABSTRACT FROM AUTHOR]
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- 2020
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11. Are all cancer survivors included when using electronically administered patient reported outcomes in primary healthcare cancer rehabilitation? A cross-sectional study.
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Rossen, Sine, Sandager, Mette Thønnings, Hofland, Dorte Thoning, Nielsen, Claus Vinther, and Maribo, Thomas
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CROSS-sectional method ,MEDICAL quality control ,RESEARCH funding ,PRIMARY health care ,EQUALITY ,LOGISTIC regression analysis ,QUESTIONNAIRES ,MULTIVARIATE analysis ,DESCRIPTIVE statistics ,WORKFLOW ,ELECTRONIC health records ,QUALITY of life ,CANCER patient psychology ,HEALTH outcome assessment ,SOCIODEMOGRAPHIC factors ,PATIENT monitoring ,CANCER patient rehabilitation ,SOCIAL classes ,EVALUATION - Abstract
Background: Patient reported outcomes (PROs) are being used frequently in clinical practice. PROs often serve several purposes, such as increasing patient involvement, assessing health status, and monitoring and improving the quality-of-care at an aggregated level. However, the lack of representative PRO-data may have implications for all these purposes. This study aims to assess the association of non-administration of (not sending an electronic invite to PRO) and non-response to (not responding to PRO) electronically administered PROs with social inequality in a primary healthcare cancer rehabilitation setting. Furthermore, it examines whether the workflows surrounding PRO have an impact on non-administration and non-response. Methods: This is a cross sectional study using routinely collected data from electronic health records and registers including cancer survivors (CSs) over 18 years booked for an initial consultation in a primary healthcare cancer rehabilitation setting using PROs for systematic health status assessment. During the study period two different PRO platforms were used, each associated with different workflows. Non-administration and non-response rates were calculated for sociodemographic characteristics for each PRO platform. Crude and adjusted odds ratios were calculated using univariate and multivariate logistic regression. Results: In total, 1868 (platform 1) and 1446 (platform 2) CSCSs were booked for an initial consultation. Of these, 233 (12.5%) (platform 1) and 283 (19.6%) (platform 2) were not sent a PRO (non-administration). Among those who received a PRO, 157 (9.6%) on platform 1 and 140 (12.0%) on platform 2 did not respond (non-response). Non-administration of and non-response to PROs were significantly associated with lower socioeconomic status. Moreover, the workflows surrounding PROs seem to have an impact on non-inclusion in and non-response to PROs. Conclusions: Non-administration of and non-response to PROs in clinical practice is associated with determinants of social inequality. Clinical workflows and the PRO platforms used may potentially worsen this inequality. It is important to consider these implications when using PROs at both the individual and aggregated levels. A key aspect of implementing PROs in clinical practice is the ongoing focus on representativeness, including a focus on monitoring PRO administration and response. [ABSTRACT FROM AUTHOR]
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- 2024
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12. Survivorship care plans in cancer: a systematic review of care plan outcomes.
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Brennan, M E, Gormally, J F, Butow, P, Boyle, F M, and Spillane, A J
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CANCER patient rehabilitation ,CANCER patient medical care ,CHILDHOOD cancer ,COLON cancer patients ,SERVICES for breast cancer patients - Abstract
Background:Eight years after the Institute of Medicine recommended survivorship care plans (SCPs) for all cancer survivors, this study systematically reviewed the evidence for their use.Methods:Studies evaluating outcomes after implementation of SCPs for cancer survivors were identified by searching databases (MEDLINE, EMBASE and Cochrane). Data were extracted and summarised.Results:Ten prospective studies (2286 survivors) met inclusion criteria (5 randomised controlled trials (RCTs)). Study populations included survivors of breast, gynaecological, colorectal and childhood cancer. Several models of SCP were evaluated (paper based/on-line, oncologist/nurse/primary-care physician-delivered and different templates). No significant effect of SCPs was found on survivor distress, satisfaction with care, cancer-care coordination or oncological outcomes in RCTs. Breast cancer survivors with SCPs were better able to correctly identify the clinician responsible for their follow-up care. One study suggested a positive impact on reducing unmet needs. Levels of survivor satisfaction with, and self-reported understanding of, their SCP were very high. Feasibility was raised by health professionals as a significant barrier, as SCPs took 1-4 h of their time to develop.Conclusions:Emerging evidence shows very few measurable benefits of SCPs. Survivors reported high levels of satisfaction with SCPs. Resource issues were identified as a significant barrier to implementation. [ABSTRACT FROM AUTHOR]
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- 2014
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13. Family-Oriented Rehabilitation (FOR) and Rehabilitation of Adolescents and Young Adults (AYA) in Pediatric Oncology.
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Krauth, Konstantin A.
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CANCER patient rehabilitation ,CANCER patient medical care ,CANCER treatment ,PATIENT-family relations ,PATIENT-centered care ,PEDIATRIC oncology - Abstract
This paper describes the function and contribution of family-oriented oncologic rehabilitation (FOR) and of oncologic rehabilitation for adolescents and young adults (AYA). The rehabilitation of children with cancer and their families and that of AYA is an integral component of pediatric oncologic treatment regimens. 32 years ago, FOR was developed in Germany and continues in a select number of highly-specialized rehabilitation centers recommended by the GPOH (Gesellschaft für Pädiatrische Onkologie und Hämatologie, Society of Pediatric Oncology and Hematology). After oncologic treatment, the patient, along with his or her family, begins an individualized rehabilitation process. The whole family participates in this process to ensure success. AYA patients are rehabilitated in small peer groups. In FOR, the immediate goal is to stabilize the family system in order to ensure maximum success for the patient. The long-term goal of FOR and AYA rehabilitation is to provide support for a return to as normal and self-determined a life as possible. Patients who suffer from chronic illnesses due to their oncologic disease and therapy (for example, a significant number of brain tumor patients) need longterm help in various areas. Here, multiple 4-week cycles of oncologic rehabilitation may be necessary throughout a patient's lifetime. [ABSTRACT FROM AUTHOR]
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- 2017
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14. Impact of a comprehensive rehabilitation palliative care program on the quality of life of patients with terminal cancer and their informal caregivers: a quasi-experimental study.
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Ibrahim, Ateya Megahed, Wahba, Nadia Mohamed Ibrahim, Zaghamir, Donia Elsaid Fathi, Mersal, Nahed Ahmed, Mersal, Fathia Ahmed, Ali, Rasmia Abd El-Sattar, Eltaib, Fatma Abdou, and Mohamed, Heba Ali Hamed
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PALLIATIVE treatment ,RESEARCH funding ,QUESTIONNAIRES ,CANCER patients ,TREATMENT effectiveness ,HEALTH surveys ,PSYCHOEDUCATION ,PSYCHOLOGICAL adaptation ,MANN Whitney U Test ,CAREGIVERS ,PRE-tests & post-tests ,QUALITY of life ,RESEARCH methodology ,SPIRITUAL care (Medical care) ,TERMINALLY ill ,PSYCHOLOGICAL tests ,DATA analysis software ,CANCER patient rehabilitation - Abstract
Background: Palliative care schemes, which include pain management, symptom control, psychosocial support and rehabilitation, aim to boost patients' quality of life, ease the burden and anxiety of informal caregivers, and ultimately provide a comprehensive approach to enhance well-being during this challenging and sensitive period. This study aims to evaluate the impact of a comprehensive rehabilitation palliative care program on the quality of life of patients with terminal cancer and their informal caregivers. Methods: This quasi-experimental study, conducted from August 2023 to January 2024 at outpatient clinics affiliated with the Oncology Center at Mansoura University, Egypt, focused on cancer patients and their caregivers in the palliative care department. Employing pre- and post-test phases, data were gathered using a questionnaire, EORTC QLQ C30, Hospital Anxiety and Depression Scale, Short Form Health Survey, Caregiver Burden Inventory, and Beck Anxiety Inventory. The investigation evaluated a 16-week rehabilitation program comprising exercise, psychoeducation, individual counselling, and spiritual support. Exercises, led by a physiotherapist, targeted fatigue and stress through tailored aerobic and resistance training. Psychoeducation sessions aimed to bolster coping abilities, covering fatigue management and nutrition. Trained counsellors addressed spiritual and existential concerns. Personal advisory sessions were available for individual support. Caregivers received education on rehabilitation and palliative care protocols, ensuring comprehensive patient care. Results: The mean age for cancer patients was 65.79 ± 13.85. In contrast, the mean age for primary carers was 42.05 ± 11.15. The QOL for cancer patients during the pre-test phase was 77.8 ± 7.16 and rose to 87.34 ± 14.56 during the post-test phase. Additionally, the total anxiety level of patients before the rehabilitation palliative care program was conducted was 15.45 ± 3.05 compared to 6.12 ± 3.21 after the post test phase. Furthermore, the total depression levels of the patients during the pre-test phase were 20.89 ± 9.21. However, after implementing the rehabilitation palliative care program, it decreased to 15.5 ± 6.86. In regards to the total quality of life of informal caregivers, it was measured at 67.28 ± 32.09 before conducting the program. Nevertheless, it increased to 25.95 ± 40.29 after conducting it. Additionally, the total Caregiver Burden Inventory before implementing the program was 37.45 ± 25.7, and it decreased to 29.36 ± 16.4 after conducting it. Additionally, the total score on the Beck Anxiety Inventory decreased from 45.7 ± 4.3 during the initial testing phase to 17.35 ± 23.67. Conclusion: The program for rehabilitation palliative care successfully achieved its goals by enhancing the overall quality of life for cancer patients and their caregivers. Additionally, it reduced the anxiety and depression levels among the patients, as well as the anxiety and caregiver burden among the caregivers. Continue research into the effectiveness of rehabilitation palliative care programs to identify best practices, improve existing programs, and expand access to these services. [ABSTRACT FROM AUTHOR]
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- 2024
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15. Supportive care services in New Brunswick, Canada: An environmental scan.
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Schwarz, Charlotte, Luke, Alison, Ashfield, Lauren Renée, Easley, Julie, McIntosh-Lawrence, Stephanie, Beaulieu, Danie, and Doucet, Shelley
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FAMILIES & psychology ,TUMOR treatment ,HEALTH services accessibility ,COMMUNITY health services ,LANGUAGE & languages ,HEALTH policy ,SOCIAL services ,MEDICAL care ,SERVICES for caregivers ,PSYCHOLOGICAL adaptation ,DECISION making ,DESCRIPTIVE statistics ,PATIENT-centered care ,METROPOLITAN areas ,RURAL conditions ,SOCIAL support ,CANCER patient psychology ,FAMILY support ,PSYCHOLOGY of caregivers ,QUALITY assurance ,MEDICAL needs assessment ,CANCER patient rehabilitation - Abstract
Copyright of Canadian Oncology Nursing Journal is the property of Pappin Communications and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2024
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16. The Use of Wearable Devices in Oncology Patients: A Systematic Review.
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Chow, Ronald, Drkulec, Hannah, Im, James H B, Tsai, Jane, Nafees, Abdulwadud, Kumar, Swetlana, Hou, Tristan, Fazelzad, Rouhi, Leighl, Natasha B, Krzyzanowska, Monika, Wong, Philip, and Raman, Srinivas
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TUMOR treatment ,MEDICAL information storage & retrieval systems ,RESEARCH funding ,CINAHL database ,SEDENTARY lifestyles ,WEARABLE technology ,CANCER patients ,ACTIGRAPHY ,DESCRIPTIVE statistics ,GAIT in humans ,TREATMENT effectiveness ,SYSTEMATIC reviews ,MEDLINE ,PEDOMETERS ,MEDICAL databases ,TUMORS ,LENGTH of stay in hospitals ,CANCER patient rehabilitation ,PHYSICAL activity - Abstract
Introduction The aim of this systematic review was to summarize the current literature on wearable technologies in oncology patients for the purpose of prognostication, treatment monitoring, and rehabilitation planning. Methods A search was conducted in Medline ALL, Cochrane Central Register of Controlled Trials, Embase, Emcare, CINAHL, Scopus, and Web of Science, up until February 2022. Articles were included if they reported on consumer grade and/or non-commercial wearable devices in the setting of either prognostication, treatment monitoring or rehabilitation. Results We found 199 studies reporting on 18 513 patients suitable for inclusion. One hundred and eleven studies used wearable device data primarily for the purposes of rehabilitation, 68 for treatment monitoring, and 20 for prognostication. The most commonly-reported brands of wearable devices were ActiGraph (71 studies; 36%), Fitbit (37 studies; 19%), Garmin (13 studies; 7%), and ActivPAL (11 studies; 6%). Daily minutes of physical activity were measured in 121 studies (61%), and daily step counts were measured in 93 studies (47%). Adherence was reported in 86 studies, and ranged from 40% to 100%; of these, 63 (74%) reported adherence in excess of 80%. Conclusion Wearable devices may provide valuable data for the purposes of treatment monitoring, prognostication, and rehabilitation. Future studies should investigate live-time monitoring of collected data, which may facilitate directed interventions. [ABSTRACT FROM AUTHOR]
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- 2024
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17. Patient rehabilitation after cancer: is it time to adjust our approach?
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Duijts, S.
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CANCER patients ,CANCER patient rehabilitation ,VOCATIONAL rehabilitation ,SOCIAL support ,PATIENTS' attitudes - Abstract
The author discusses several papers about cancer treatment and survivorship given the growing number of cancer survivors worldwide who are enduring side effects they have to manage. These include a study by C Handberg et al which describes the aim of cancer rehabilitation, a pilot study by KM Heinrich et al which describes the efficacy of a high-intensity functional training programme among cancer survivors and one by T Mitchell which focused on healthcare professionals with history of cancer.
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- 2015
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18. Rehabilitative medicine and physiotherapy services in community oncology.
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Grant, Alexander, Lesniak Walton, Susanne, Knapik, Gayle, Collacutt, Vivian L., and Brigden, Malcolm
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COMMUNITY health services ,CANCER patient rehabilitation ,CANCER ,PHYSICAL therapy ,PATIENT-centered care ,ONCOLOGY ,CANCER treatment complications ,PREVENTION - Abstract
Patient-centred cancer care requires careful attention to both quantity and quality of life. Assuring safety, comfort, and function for cancer patients requires the efforts of a multidisciplinary healthcare team.1,2,3 Rehabilitation services, including physiotherapy, have long been recognized as an integral component of comprehensive cancer care.2,3,4 Despite significant advances in cancer treatment and management, cancer survivors continue to experience multiple morbidities as a consequence of both the cancer itself and cancer treatment. Physical impairments in strength, range of motion, mobility, fatigue, pain, chemotherapy-induced peripheral neuropathy and lymphedema can be significantly improved with physiotherapy interventions.4,5 In addition, such interventions have been shown to be cost-effective by reducing the need to access other more costly healthcare services, as well as reducing indirect costs of cancer survivorship, such as caregiver burden, transportation costs and equipment needs.5,6 While there are usually rehabilitation/physiotherapy programs present at Canadian tertiary cancer centres, such essential services may function and be structured quite differently in the community cancer care setting.7,8 This paper describes how a busy community cancer program located at the Jack Ady Cancer Centre (JACC) in Lethbridge, Alberta, introduced and then optimized an on-site physiotherapy program to meet its growing cancer patient care needs. [ABSTRACT FROM AUTHOR]
- Published
- 2017
19. Speech and swallow rehabilitation in head and neck cancer: United Kingdom National Multidisciplinary Guidelines.
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CLARKE, P., RADFORD, K., COFFEY, M., and STEWART, M.
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CANCER patients ,CANCER patient medical care ,CANCER patient rehabilitation ,DEGLUTITION disorders ,HEAD tumors ,MEDICAL protocols ,NECK tumors ,SPEECH therapy ,THERAPEUTICS - Abstract
This is the official guideline endorsed by the specialty associations involved in the care of head and neck cancer patients in the UK. The disease itself and the treatment can have far reaching effects on speech and swallow function, which are consistently prioritised by survivors as an area of concern. This paper provides recommendations on the assessments and interventions for speech and swallow rehabilitation in this patient group. [ABSTRACT FROM AUTHOR]
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- 2016
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20. A cost-effectiveness analysis of using TheraBite in a preventive exercise program for patients with advanced head and neck cancer treated with concomitant chemo-radiotherapy.
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Retèl, Valesca, Molen, Lisette, Steuten, Lotte, den Brekel, Michiel, and Hilgers, Frans
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MEDICAL care costs ,FACIAL pain ,HEAD & neck cancer treatment ,CHEMORADIOTHERAPY ,CANCER patient rehabilitation ,THERAPEUTICS - Abstract
Previous studies have shown that a 'Preventive Exercise Program' (PREP) is cost-effective compared to the standard exercise program provided in 'Usual Care' (UC) in patients with advanced head and neck cancer. The current paper specifically estimates the cost-effectiveness of the TheraBite jaw rehabilitation device (TB) which is used as part of the PREP, compared to Speech Language Pathology (SLP) sessions as part of UC, and herewith intents to inform reimbursement discussions regarding the TheraBite device. Costs and outcomes [quality-adjusted life-years (QALYs)] of the TB compared to SLP were estimated using a Markov model of advanced head and neck cancer patients. Secondary outcome variables were trismus, feeding substitutes, facial pain, and pneumonia. The incremental cost-effectiveness ratio (ICER) was estimated from a health care perspective of the Netherlands, with a time horizon of 2 years. The total health care costs per patient were estimated to amount to €5,129 for the TB strategy and €6,915 for the SLP strategy. Based on the current data, the TB strategy yielded more quality-adjusted life-years (1.28) compared to the SLP strategy (1.24). Thus, the TB strategy seems more effective (+0.04) and less costly (−€1,786) than the SLP only strategy. At the prevailing threshold of €20,000/QALY the probability for the TB strategy being cost-effective compared to SLP was 70 %. To conclude, analysis of presently available data indicates that TB is expected to be cost-effective compared to SLP in a preventive exercise program for concomitant chemo-radiotherapy for advanced head and neck cancer patients. [ABSTRACT FROM AUTHOR]
- Published
- 2016
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21. From Cancer Rehabilitation to Recreation: A Coordinated Approach to Increasing Physical Activity.
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Dennett, Amy M, Peiris, Casey L, Shields, Nora, and Taylor, Nicholas F
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CANCER patients , *CANCER patient rehabilitation , *CANCER relapse , *CONCEPTUAL structures , *CONTINUUM of care , *COUNSELING , *HEALTH promotion , *HEALTH services accessibility , *EVALUATION of medical care , *MEDICAL quality control , *PHYSICAL fitness , *QUALITY assurance , *RECREATION , *RISK management in business , *SELF-efficacy , *SURVIVAL , *HUMAN services programs , *PHYSICAL activity , *EVALUATION of human services programs , *DISEASE risk factors - Abstract
Participation in adequate physical activity improves the health status of cancer survivors, enhances their survival, and reduces their risk of cancer recurrence. However, cancer survivors engage in low levels of physical activity and have limited access to rehabilitation services that could increase their participation. No optimal framework has been developed that supports physical activity participation among cancer survivors. Given the growth in numbers of cancer survivors, development of a framework may provide a pathway to facilitate timely and appropriate care. This perspective paper describes the development of the Cancer Rehabilitation to Recreation (CaReR) Framework and its practical implications. The CaReR Framework uses a tailored, stepped approach to guide health services and clinicians on the design and implementation of interventions to promote physical activity among cancer survivors. Implementation of the CaReR Framework will improve continuity and quality of care for cancer survivors and promote physical activity with the ultimate aim of improving health outcomes. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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22. Clinically Integrated Physical Therapist Practice in Cancer Care: A New Comprehensive Approach.
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Barnes, Christopher A, Stout, Nicole L, Varghese, Thomas K, Ulrich, Cornelia M, Couriel, Daniel R, Lee, Catherine J, Noren, Christopher S, and LaStayo, Paul C
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- *
CANCER patients , *CANCER patient medical care , *CANCER patient rehabilitation , *INTEGRATED health care delivery , *LIFE skills , *MEDICAL screening , *PHYSICAL therapy , *MEDICAL triage , *HUMAN services programs , *EVALUATION of human services programs - Abstract
Best practice recommendations in cancer care increasingly call for integrated rehabilitation services to address physical impairments and disability. These recommendations have languished primarily due to a lack of pragmatic, generalizable intervention models. This perspective paper proposes a clinically integrated physical therapist (CI-PT) model that enables flexible and scalable services for screening, triage, and intervention addressing functional mobility. The model is based on (1) a CI-PT embedded in cancer care provider clinics, and (2) rehabilitation across the care continuum determined by the patient's level of functional mobility. The CI-PT model includes regular screening of functional mobility in provider clinics via a patient-reported mobility measure—the Activity Measure for Post-Acute Care, a brief physical therapy evaluation tailored to the specific functional needs of the individual—and a tailored, skilled physical therapist intervention based on functional level. The CI-PT model provides a pragmatic, barrier-free, patient-centric, data-driven approach to integrating rehabilitation as part of standard care for survivors of cancer. The model standardizes CI-PT practice and may be sufficiently agile to provide targeted interventions in widely varying cancer settings and populations. Therefore, it may be ideal for wide implementation among outpatient oncological settings. Implementation of this model requires a shared approach to care that includes physical therapists, rehabilitation administrators, cancer care providers, and cancer center administrators. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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23. Establishing Innovative Complex Services: Learning from the Active Together Cancer Prehabilitation and Rehabilitation Service.
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Keen, Carol, Phillips, Gail, Thelwell, Michael, Humphreys, Liam, Evans, Laura, and Copeland, Rob
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MEDICAL quality control ,EVALUATION of medical care ,HEALTH services accessibility ,MEDICAL care costs ,CANCER patients ,LABOR supply ,INTERPROFESSIONAL relations ,HEALTH behavior ,PREHABILITATION ,CANCER patient rehabilitation ,BEHAVIOR modification - Abstract
Prehabilitation and rehabilitation will be essential services in an ageing population to support patients with cancer to live well through their life spans. Active Together is a novel evidence-based service embedded within existing healthcare pathways in an innovative collaboration between health, academic, and charity organisations. Designed to improve outcomes for cancer patients and reduce the demand on healthcare resources, it offers physical, nutritional, and psychological prehabilitation and rehabilitation support to patients undergoing cancer treatment. The service is underpinned by behaviour change theories and an individualised and personalised approach to care, addressing the health inequalities that might come about through age, poverty, ethnicity, or culture. Meeting the challenge of delivering high-quality services across multiple stakeholders, while addressing the complexity of patient need, has required skilled leadership, flexibility, and innovation. To support patients equally, regardless of geography or demographics, future services will need to be scaled regionally and be available in locations amenable to the populations they serve. To deliver these services across wide geographic regions, involving multiple providers and complex patient pathways, will require a systems approach. This means embracing and addressing the complexity of the contexts within which these services are delivered, to ensure efficient, high-quality provision of care, while supporting staff well-being and meeting the needs of patients. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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24. Rehabilitation interventions for young adult cancer survivors: A scoping review.
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Aagesen, Maria, la Cour, Karen, Møller, Jens-Jakob Kjer, Stapelfeldt, Christina M, Hauken, May Aasebø, and Pilegaard, Marc Sampedro
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PSYCHOLOGY information storage & retrieval systems ,CINAHL database ,MEDICAL databases ,BIOPSYCHOSOCIAL model ,MEDICAL information storage & retrieval systems ,SYSTEMATIC reviews ,CANCER patients ,DESCRIPTIVE statistics ,LITERATURE reviews ,MEDLINE ,THEMATIC analysis ,CANCER patient rehabilitation ,ADULTS - Abstract
Objective: To map existing research concerning rehabilitation interventions for young adult cancer survivors (YACS) that address at least one factor from the biopsychosocial health model. Design: Scoping review. Data sources: Searches were performed in EMBASE, MEDLINE, PsycINFO, CINAHL and Cochrane in January 2022 and updated in March 2023, and grey literature between February and April 2022. Methods: The review followed Joanna Briggs Institute's methodology for scoping reviews. Quantitative, qualitative and mixed methods studies evaluating interventions for YACS of any cancer who had completed primary treatment and were between 18 and 39 years old at diagnosis were included. Two authors independently screened studies for eligibility, and standardised forms were used for data extraction. Descriptive statistics, narrative summaries and thematic analysis were used to analyse the data. Results: The search revealed 5706 records, of which 70 were full-text screened. The 20 included studies represented a heterogeneous group of 444 young adults with different cancer types, mean age above 25, and an overrepresentation of females. Most studies were feasibility and pilot studies. The 20 studies consisted of 14 unique interventions focusing primarily on one dimension of the biopsychosocial health model like biological or psychological factors. In the 14 interventions, the most frequent intervention element was peer-to-peer support (n = 12). The interventions were often delivered online (n = 9), lasting 3–12 months (n = 8). A wide variety of theories, providers and outcome measures were used. Conclusion: The results show that current research on multicomponent, biopsychosocial and age-specific rehabilitation for YACS remains at an early stage. [ABSTRACT FROM AUTHOR]
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- 2023
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25. Clinical Outcome Assessment in Cancer Rehabilitation and the Central Role of Patient-Reported Outcomes.
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Lehmann, Jens, Rothmund, Maria, Riedl, David, Rumpold, Gerhard, Grote, Vincent, Fischer, Michael J., and Holzner, Bernhard
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FUNCTIONAL status ,HEALTH outcome assessment ,PATIENT-centered care ,VALUE-based healthcare ,QUALITY of life ,CANCER patient rehabilitation - Abstract
Simple Summary: After completion of acute cancer treatment, it is important to support patients in recovering physically and psychologically and to help them regain their social life. This is the goal of cancer rehabilitation. If we want to know which rehabilitation interventions are helpful, we must measure their effects. This can be done by asking clinicians, testing patients' performance, observing their behaviors, or by asking patients directly about their experience. This paper focuses on reports from the patients. We give an overview of available questionnaires and offer advice regarding their use. Furthermore, we discuss how to integrate them into clinical practice and research. The most promising way to collect such data are electronic systems, which offer many advantages. The goal of assessing the patient perspective is to help patients, clinicians, and health insurance providers to decide which rehabilitation interventions suit patients' needs, and therefore, which ones should be chosen and reimbursed. The aim of cancer rehabilitation is to help patients regain functioning and social participation. In order to evaluate and optimize rehabilitation, it is important to measure its outcomes in a structured way. In this article, we review the different types of clinical outcome assessments (COAs), including Clinician-Reported Outcomes (ClinROs), Observer-Reported Outcomes (ObsROs), Performance Outcomes (PerfOs), and Patient-Reported Outcomes (PROs). A special focus is placed on PROs, which are commonly defined as any direct report from the patient about their health condition without any interpretation by a third party. We provide a narrative review of available PRO measures (PROMs) for relevant outcomes, discuss the current state of PRO implementation in cancer rehabilitation, and highlight trends that use PROs to benchmark value-based care. Furthermore, we provide examples of PRO usage, highlight the benefits of electronic PRO (ePRO) collection, and offer advice on how to select, implement, and integrate PROs into the cancer rehabilitation setting to maximize efficiency. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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26. Using Single-Case Experimental Design and Patient-Reported Outcome Measures to Evaluate the Treatment of Cancer-Related Cognitive Impairment in Clinical Practice.
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Ferguson, Robert J., Terhorst, Lauren, Gibbons, Benjamin, Posluszny, Donna M., Chang, Hsuan, Bovbjerg, Dana H., and McDonald, Brenna C.
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COGNITION disorder risk factors ,COGNITION disorders treatment ,EXPERIMENTAL design ,HEALTH outcome assessment ,RISK assessment ,CANCER patients ,RESEARCH funding ,QUALITY assurance ,TUMORS ,MEDICAL practice ,CANCER patient rehabilitation ,DISEASE complications - Abstract
Simple Summary: After cancer diagnosis and treatment, many patients report difficulty with cognitive functions such as learning, memory, and attention. Cancer-related cognitive impairment (also known as CRCI) can lead to problems in work, social life, and other daily activities. Research on the treatment of CRCI is ongoing, and one approach, cognitive-behavioral therapy or CBT, may be helpful. This article describes how to track symptoms with patient-reported outcome measures for individual cancer survivors who engage in CBT or other CRCI treatments in clinical practice. This system may help determine if treatments are effective and improve real-world patient outcomes. Cancer-related cognitive impairment (CRCI) affects a large proportion of cancer survivors and has significant negative effects on survivor function and quality of life (QOL). Treatments for CRCI are being developed and evaluated. Memory and attention adaptation training (MAAT) is a cognitive-behavioral therapy (CBT) demonstrated to improve CRCI symptoms and QOL in previous research. The aim of this article is to describe a single-case experimental design (SCED) approach to evaluate interventions for CRCI in clinical practice with patient-reported outcome measures (PROs). We illustrate the use of contemporary SCED methods as a means of evaluating MAAT, or any CRCI treatment, once clinically deployed. With the anticipated growth of cancer survivorship and concurrent growth in the number of survivors with CRCI, the treatment implementation and evaluation methods described here can be one way to assess and continually improve CRCI rehabilitative services. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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27. The intentional pursuit of everyday life while dying: A longitudinal qualitative study of working-aged adults living with advanced cancer.
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Brose, Julie M, Willis, Eileen, and Morgan, Deidre D
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CANCER patient psychology ,MODEL of Human Occupation ,FUNCTIONAL status ,RESEARCH methodology ,ACTIVITIES of daily living ,INTERVIEWING ,EXPERIENCE ,QUALITATIVE research ,PHENOMENOLOGY ,ATTITUDES toward illness ,OCCUPATIONAL therapy ,QUALITY of life ,RESEARCH funding ,THEMATIC analysis ,JUDGMENT sampling ,LONGITUDINAL method ,PALLIATIVE treatment ,CANCER patient rehabilitation ,ADULTS - Abstract
Background: People living with advanced cancer experience functional decline and increasing difficulty participating in activities of daily living over their final year of life, consequently reducing quality of life. Palliative rehabilitation may serve to mitigate some of these challenges by optimising function. However, limited research and theory explore the rehabilitative process of adaptation amid increasing dependency, often experienced by people living with advanced cancer. Aim: To explore the lived experience of everyday life for working-aged adults living with advanced cancer, and how this changes over time. Design: A longitudinal hermeneutic phenomenological approach was employed, using in-depth semi-structured interviews. Data was analysed using inductive thematic analysis, and findings mapped against the Model of Human Occupation and illness experience literature. Setting/participants: Purposively sampled working-aged adults (40–64 years) with advanced cancer were recruited by a rural home care team in Western Canada. Results: Thirty-three in-depth interviews were conducted over 19 months with eight adults living with advanced cancer. Advanced cancer and other losses have a disruptive impact on daily life. Despite experiencing progressive functional decline, these adults intentionally sought to participate in valued everyday activities. Adaptation to ongoing deterioration occurred through engagement in daily life. Conclusions: Despite experiencing disruption to routines and daily life, people living with advanced cancer seek to continue doing what is important to them, albeit in a modified form. Adaptation to functional decline is an active, ongoing process and occurs through continued engagement in activities. Palliative rehabilitation can facilitate participation in everyday life. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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28. The Self-Regulation Assessment (SeRA) questionnaire: development and exploratory analyses of a new patient-reported outcome measure for rehabilitation.
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Mol, T. I., van Bennekom, C. A. M., Scholten, E. W. M., Visser-Meily, J. M. A., Beckerman, H., Passier, P. E. C. A., Smeets, R. J. E. M., Schiphorst Preuper, H. R., and Post, M. W. M.
- Subjects
EXPERIMENTAL design ,MEDICAL rehabilitation ,RESEARCH ,CHRONIC pain ,MUSCULOSKELETAL system diseases ,STATISTICS ,REHABILITATION centers ,SPINAL cord injuries ,RESEARCH evaluation ,RESEARCH methodology ,RESEARCH methodology evaluation ,SELF-control ,CROSS-sectional method ,HEALTH outcome assessment ,PATIENTS ,PSYCHOMETRICS ,SELF-efficacy ,CRONBACH'S alpha ,QUESTIONNAIRES ,FACTOR analysis ,DESCRIPTIVE statistics ,RESEARCH funding ,AMPUTATION ,DATA analysis software ,DATA analysis ,REHABILITATION for brain injury patients ,CANCER patient rehabilitation ,REHABILITATION - Abstract
To develop and explore underlying dimensions of the Self-Regulation Assessment (SeRA) and psychometric features of potential components. Further, to identify associations between the SeRA and disability-management self-efficacy, type of diagnosis, and type of rehabilitation. Based on a previously developed model of self-regulation, expert and patient opinions, and cognitive interviews, a list of 22 items on self-regulation (the SeRA) was constructed. The SeRA was included in a cross-sectional survey among a multi-diagnostic group of 563 former rehabilitation patients. Exploratory analyses were conducted. Respondents had a mean age of 56.5 (SD 12.7) years. The largest diagnostic groups were chronic pain disorder and brain injury. Four components were found within the SeRA, labelled as "insight into own health condition," "insight into own capabilities," "apply self-regulation," and "organization of help." Cronbach's alpha was high (total scale: 0.93, subscales: range 0.85–0.89). Only scores on the first subscale showed a ceiling effect. Subscale three showed the highest correlation with a self-efficacy measure. Small differences in SeRA total scores (range 71.6–78.1) were found between different diagnostic groups. The SeRA is a new self-regulation measure with four subscales. Further research is needed to establish the validity and reliability of the SeRA. The Self-Regulation Assessment (SeRA) was developed to provide a comprehensive measurement of self-regulation among rehabilitation populations. The SeRA could potentially be used to identify persons with self-regulation problems at the start of rehabilitation treatment and measure outcomes of rehabilitation for self-regulation. The SeRA could potentially be used to help analyse outcomes of rehabilitation practice as well as evaluate interventions on self-regulation. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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29. Integrated Short-term Palliative Rehabilitation to improve quality of life and equitable care access in incurable cancer (INSPIRE): a multinational European research project.
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Bayly, Joanne, Ahmedzai, Hilde Hjelmeland, Blandini, Maria Grazia, Bressi, Barbara, Caraceni, Augusto Tommaso, Carvalho Vasconcelos, Joana, Costi, Stefania, Fugazzaro, Stefania, Guberti, Monica, Guldin, Mai-Britt, Hauken, May, Higginson, Irene, Laird, Barry J.A., Ling, Julie, Normand, Charles, Nottelmann, Lise, Oldervoll, Line, Payne, Cathy, Prevost, A. Toby, and Stene, Guro B.
- Subjects
TUMOR treatment ,DIVERSITY & inclusion policies ,HEALTH services accessibility ,FUNCTIONAL status ,MEDICAL care costs ,CANCER patients ,QUALITY of life ,RESEARCH funding ,INTEGRATED health care delivery ,PALLIATIVE treatment ,CANCER patient rehabilitation ,CANCER patient medical care - Abstract
Background: Disability related to incurable cancer affects over a million Europeans each year and people with cancer rank loss of function among the most common unmet supportive care needs. Objectives: To test the clinical and cost-effectiveness of an integrated short-term palliative rehabilitation intervention, to optimise function and quality of life in people affected by incurable cancer. Design: This is a multinational, parallel group, randomised, controlled, assessor blind, superiority trial. Methods: The INSPIRE consortium brings together leaders in palliative care, oncology and rehabilitation from partner organisations across Europe, with complementary expertise in health service research, trials of complex interventions, mixed-method evaluations, statistics and economics. Partnership with leading European civil society organisations ensures citizen engagement and dissemination at the highest level. We will conduct a multinational randomised controlled trial across five European countries, recruiting participants to assess the effectiveness of palliative rehabilitation for people with incurable cancer on the primary outcome – quality of life – and secondary outcomes including disability, symptom burden and goal attainment. To support trial conduct and enhance analysis of trial data, we will also conduct: comparative analysis of current integration of rehabilitation across oncology and palliative care services; mixed-method evaluations of equity and inclusivity, processes and implementation for the intervention, at patient, health service and health system levels. Finally, we will conduct an evidence synthesis, incorporating INSPIRE findings, and a Delphi consensus to develop an international framework for palliative rehabilitation practice and policy, incorporating indicators, core interventions, outcomes and integration methods. Scientific contribution: If positive, the trial could produce a scalable and equitable intervention to improve function and quality of life in people with incurable cancer and reduce the burden of care for their families. It could also upskill the practitioners involved and motivate future research questions. The intervention could be adapted and integrated into different health systems using existing staff and services, with little or no additional cost. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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30. Psycho-Educational and Rehabilitative Intervention to Manage Cancer Cachexia (PRICC) for Advanced Patients and Their Caregivers: Lessons Learned from a Single-Arm Feasibility Trial.
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Buonaccorso, Loredana, Fugazzaro, Stefania, Autelitano, Cristina, Bertocchi, Elisabetta, Accogli, Monia Allisen, Denti, Monica, Costi, Stefania, Martucci, Gianfranco, Braglia, Luca, Bassi, Maria Chiara, and Tanzi, Silvia
- Subjects
PILOT projects ,CAREGIVERS ,RESEARCH methodology ,PSYCHOEDUCATION ,HEALTH outcome assessment ,CANCER patients ,EXERCISE ,RESEARCH funding ,DESCRIPTIVE statistics ,BODY movement ,CACHEXIA ,COMBINED modality therapy ,STATISTICAL sampling ,CANCER patient rehabilitation ,LONGITUDINAL method - Abstract
Simple Summary: Approximately half of all patients with advanced cancer experience cachexia, and the prevalence rises above 80% in the last weeks of life. Cancer cachexia (CC) is characterised by anorexia, systemic inflammation, ongoing loss of muscle mass, and weight loss, affecting the quality of life. Different treatments are proposed to manage CC, and comprehensive treatment requires a multidisciplinary approach aimed at evaluating overall patients' conditions and relieving the symptoms, including psycho-social and spiritual functions. Key elements in CC management are personalized, multi-targeted, and multimodal interventions, but it is hard for some patients to follow programs based on several components. We examined the feasibility of a bimodal intervention, including a psycho-educational component and exercises, to support patients and their caregivers in managing CC. Our prospective mixed-methods pilot study explored feasibility data, changes in PROMS and performance outcomes over time, and qualitative data from dyads and healthcare professionals' interviews. Background: Key elements in cancer cachexia (CC) management are personalized and multimodal interventions, but it is hard for some patients to follow programs based on several components. We examined the feasibility of a bimodal intervention, including a psycho-educational component and exercises, to support patients and their caregivers in managing CC; Methods: Prospective mixed-methods pilot study explored feasibility data, changes in patient-reported outcomes, and performance outcomes over time in a convenient sample of 30 consecutive CC patients and their caregivers. Results: Twenty-four dyads consented to participate. Twenty dyads received at least two psycho-educational sessions, so the psycho-educational component was feasible for 83.3% of the sample. Six dyads participated in at least fourteen out of twenty-seven rehabilitation sessions, so the exercise program was feasible for 25.0% of the sample. Six dyads showed compliance greater than 50% for both components of the bimodal intervention. Conclusions: While we did not meet our primary feasibility endpoint and had mixed acceptability, our experience provides insight into the challenges and lessons learned in implementing a primary palliative care intervention for CC. More robust studies are needed to help clinicians understand the best exercise program for CC patients, to be included in a multimodal intervention. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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31. Effect of exercise on rehabilitation of breast cancer surgery patients: A systematic review and meta‐analysis of randomized controlled trials.
- Author
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Lin, Yawei, Chen, Yi, Liu, Rongrong, and Cao, Baohua
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ONLINE information services ,PUBLICATION bias ,META-analysis ,MEDICAL information storage & retrieval systems ,SYSTEMATIC reviews ,SURGERY ,PATIENTS ,CANCER patients ,ARM ,LEG ,MUSCLE strength ,QUALITY assurance ,DESCRIPTIVE statistics ,MEDLINE ,DATA analysis software ,BREAST tumors ,EXERCISE therapy ,CANCER patient rehabilitation ,POSTOPERATIVE pain - Abstract
Aim: To determine the effective exercise methods for different complications of breast cancer patients after surgery. Design: Systematic review and meta‐analysis. Methods: A comprehensive electronic search was carried out with no time limit until May 2020. Studies must have been randomized controlled trials of patients after breast cancer surgery, without limit to the way of exercise. Literature quality was evaluated by the modified Jadad scale. The meta‐analysis was conducted with CMA2.0 software. Results: Aerobic exercise reduced the intensity of the pain (MD = −1.043), improved shoulder flexion (MD = 3.398) and internal rotation range (MD = 3.868), lessened upper limb dysfunction (MD = −5.231) and improved muscle strength during flexion (MD = 1.076) and abduction (MD = 0.991). Shoulder elbow movement improved the range of shoulder external rotation (MD = 2.691) and reduced the incidence of arm lymphedema (RR = 0.343). Anti‐resistance exercise also lessened upper limb dysfunction (MD = − 4.094). [ABSTRACT FROM AUTHOR]
- Published
- 2023
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32. New horizons in managing older cancer survivors: complexities and opportunities.
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Mislang, Anna R A, Mangoni, Arduino A, Molga, Angela, Jena, Swatee, and Koczwara, Bogda
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TUMOR treatment ,CANCER patient psychology ,MEDICAL quality control ,GERIATRIC assessment ,INDIVIDUALIZED medicine ,PATIENT-centered care ,SURVIVAL rate ,MEDICAL protocols ,QUALITY of life ,HEALTH self-care ,CANCER patient medical care ,ELDER care ,CANCER patient rehabilitation - Abstract
Older adults represent a growing population amongst cancer survivors who require specific consideration given the complex and largely unknown interactions between cancer-related concerns and age-related conditions. The increasing use of geriatric assessment (GA) has enabled oncologists to appropriately assess older patients' overall health status, personalise anti-cancer treatment and improve survival. However, whilst current research and practice focus on improving the management of older adults with cancer in the acute setting, the progress in the field of survivorship research in geriatric oncology is lagging. As cancer survivorship is a continuum, planning for a healthy survivorship should start at the time of cancer diagnosis. GA can play an important role in identifying potential survivorship issues and optimising delivery of survivorship care. A goal-directed, patient-focused geriatric survivorship care plan that involves a multidisciplinary team provides a framework for a personalised delivery of survivorship care in this patient group and there is a need for tailored interventions that support self-management and care integration. Research on the impact of cancer and its treatment on geriatric-specific outcomes needs to be prioritised through global initiatives to encompass a diverse and heterogenous population of adult cancer survivors. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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33. Exercise Preferences in Young Adults with Cancer—The YOUEX Study.
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Voland, Annelie, Krell, Verena, Götte, Miriam, Niels, Timo, Köppel, Maximilian, and Wiskemann, Joachim
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CANCER patient rehabilitation ,EXERCISE therapy ,COVID-19 pandemic ,PHYSICAL activity ,ACUTE medical care - Abstract
(1) Background: Strong evidence supports the persuasive positive effects of exercise for cancer patients and survivors. Different approaches of exercise programs have been established; however, the special interests of young adults (YAs) with cancer have rarely been considered in exercise interventions. Therefore, the study YOUng EXercisers (YOUEX) aimed to investigate exercise preferences in YAs. (2) Methods: YOUEX was a three-arm, patient preference-based non-randomized, longitudinal, pre–post exercise intervention, offering three different exercise modules to YAs during or after acute therapy (Module 1: online supervised group-based (M1); Module 2: online unsupervised (M2); Module 3: in-person supervised (M3)). The intervention period was 12 weeks with another 12-week follow-up period, the modules could be changed or amended after 6 and 12 weeks. (3) Results: 92 YAs were allocated to the study. At baseline, 50 YAs (54%) chose M2, 32 YAs (35%) M1 and 10 YAs (11%) M3. The analysis revealed high acceptability and feasibility of the online exercise programs (M1, M2). There was a high impact of the COVID-19 pandemic on the execution of M3. YAs showed diverse preferences in module selection due to differences in, e.g., cancer therapy status or favored level of supervision. (4) Conclusions: YAs need personalized exercise programs that consider their individual interests and needs. Online exercise programs can be a promising addition to existing exercise opportunities. They are an effective way to increase physical activity levels in YAs. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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34. Psychosocial Care after Cancer Diagnosis: Recent Advances and Challenges.
- Author
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Tack, Laura, Schofield, Patricia, Boterberg, Tom, Chandler, Rebecca, Parris, Christopher N., and Debruyne, Philip R.
- Subjects
TUMOR diagnosis ,MEDICAL quality control ,HEALTH services accessibility ,PSYCHO-oncology ,CANCER patients ,REHABILITATION of people with mental illness ,CANCER patient rehabilitation ,TELEMEDICINE - Published
- 2022
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- View/download PDF
35. Safety, feasibility, and effectiveness of implementing supervised exercise into the clinical care of individuals with advanced cancer.
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Gil Herrero, Lucía, McNeely, Margaret L, Courneya, Kerry S, Castellanos Montealegre, Mónica, González Marquez, Ana Isabel, Pollan Santamaría, Marina, and Casla Barrio, Soraya
- Subjects
PILOT projects ,CONFIDENCE intervals ,SELF-evaluation ,HEALTH outcome assessment ,COMMUNITY health services ,TUMOR classification ,TREATMENT effectiveness ,PRE-tests & post-tests ,T-test (Statistics) ,COMPARATIVE studies ,CANCER patients ,HUMAN services programs ,PHYSICAL activity ,ANALYSIS of covariance ,DESCRIPTIVE statistics ,QUESTIONNAIRES ,QUALITY of life ,INTEGRATED health care delivery ,DATA analysis software ,FATIGUE (Physiology) ,REHABILITATION ,CANCER patient rehabilitation ,EXERCISE therapy ,PATIENT safety ,EVALUATION - Abstract
Objective: To evaluate the safety, feasibility, and preliminary effectiveness of implementing supervised exercise programming into the clinical care of individuals with advanced cancer. Design: Single group implementation feasibility study using a pre–posttest design. Setting: Exercise Oncology Unit of the Spanish Cancer Association (a cancer-specific community facility outside the hospital setting). Participants: Adult individuals with advanced cancer profile involving advanced local cancer or distant metastases. Intervention: A 12-week, twice-weekly, supervised, clinic-based multi-component exercise program. Main Measure: Paired t -tests were used to assess pre–post changes and analyses of covariance were used to compare effects based on selected participant characteristics. Results: Eighty-four individuals with advanced cancer completed the baseline assessment, with six participants withdrawing prior to the start of the program. Of the 78 participants, 17 dropped out, thus, a total of 61 completed the final assessment. Mean adherence was 82.5%. No serious adverse events occurred. Exercise significantly improved VO
2max by 5.2 mL·kg·min (p < 0.001), chest strength (p < 0.001), leg strength (p < 0.001), lean body mass (p = 0.003), skeletal muscle mass (p < 0.002), % body fat (p = 0.02), quality of life by 5.3 points (p = 0.009), fatigue by 3.2 points (p = 0.012), and physical activity by 1680 METs/week (p < 0.001). Conclusions: Our clinically supervised and tailored exercise program involving moderate to vigorous intensity exercise was found to be feasible, safe, and effective for individuals with advanced cancer. Implications for Cancer Survivors: With proper screening and supervision, individuals with advanced cancer can benefit from tailored exercise oncology support as part of an overall therapeutic care plan. [ABSTRACT FROM AUTHOR]- Published
- 2022
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36. Dance theatre as a form of dance movement psychotherapy for male cancer survivors.
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Weis, Joachim, Troitzsch, Annika, and Dresch, Carolin
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ANXIETY treatment ,CANCER patient psychology ,FAMILY psychotherapy ,PILOT projects ,WELL-being ,GENDER role ,STATISTICS ,NONPARAMETRIC statistics ,DANCE therapy ,MEN'S health ,ANALYSIS of variance ,CONFIDENCE intervals ,CLINICAL trials ,EXTENDED families ,RESEARCH methodology ,SELF-perception ,HEALTH status indicators ,INTERVIEWING ,TREATMENT effectiveness ,PATIENTS' attitudes ,EXPERIENCE ,PRE-tests & post-tests ,SELF-disclosure ,SELF-efficacy ,PSYCHOLOGICAL tests ,COMPARATIVE studies ,MENTAL depression ,QUALITY of life ,PSYCHOSOCIAL factors ,RESEARCH funding ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,SOUND recordings ,INTERPERSONAL relations ,PSYCHOLOGICAL adaptation ,EMOTIONS ,DATA analysis software ,CONTENT analysis ,FAMILY relations ,PERFORMING arts ,PSYCHOLOGICAL distress ,CANCER patient rehabilitation ,BODY image ,EVALUATION - Abstract
Dance therapy and dance theatre are innovative interventions for patients with a chronic disease such as cancer. In this pilot study we investigate both how dance theatre as a supportive intervention may influence the mental health and quality of life of male cancer survivors and how participants experience this type of intervention. We used a pre-post design with two points of measurement based on a mixed-methods approach including quantitative and qualitative data. The sample (N = 16) included male cancer survivors and men indirectly affected by cancer. The results show that the level of distress and depressive symptoms slightly improved during the project. Anxiety symptoms showed a significant reduction. The results of the interviews revealed positive effects of the dance project in terms of coping with late effects, physical strengthening, emotional disclosure and developing personal empowerment and increased self-esteem. The results are preliminary and encourage validation in future studies. [ABSTRACT FROM AUTHOR]
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- 2022
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37. Healthy ageing through participation in community situated activities: A scoping review of assessment instruments to support occupational therapy practice.
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Knightbridge, Lisa, Bourke‐Taylor, Helen M., and Hill, Keith D.
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SOCIAL participation ,OCCUPATIONAL therapy needs assessment ,CINAHL database ,DECISION trees ,ACTIVE aging ,NOSOLOGY ,MEDICAL information storage & retrieval systems ,SPINAL cord injuries ,RESEARCH evaluation ,SYSTEMATIC reviews ,ECOLOGY ,KIDNEY transplantation ,QUESTIONNAIRES ,OCCUPATIONAL therapy services ,DESCRIPTIVE statistics ,STROKE rehabilitation ,DEMENTIA ,REHABILITATION of aphasic persons ,RESEARCH funding ,LITERATURE reviews ,CANCER patient rehabilitation ,REHABILITATION ,OLD age - Abstract
Introduction: The occupational therapy profession has an essential role to play in healthy ageing that includes enabling participation, a construct that according to The International Classification of Functioning, Disability and Health (ICF), incorporates an environmental context. Environmental barriers and enablers of participation in community‐situated activities for people over the age of 65 have been identified. To support practice, occupational therapists require assessments with demonstrated content validity including comprehensive coverage of the construct. The purpose of this scoping review study was to investigate what instruments are available to assess community participation for people over the age of 65 that included environmental factors. Methods: A scoping review of the literature was conducted, utilising the Joanna Briggs Institute (JBI) scoping review methodology. The evidence source was review articles and inclusion criteria were that they reviewed instruments to assess participation that could be used for people over the age of 65. Items extracted from included instruments were evaluated against a preset list of community‐participation and environment categories that had been developed from the ICF. Results: Twenty‐three review studies met inclusion criteria and from these 240 instruments were extracted. Twenty instruments were retained after exclusions and from these, 540 instrument items were extracted. Of these, 280 (47%) were coded as community‐participation, and only 20 (3.4%) as environment items. Fourteen of the instruments included no environment items. Conclusions: No instrument was identified that comprehensively assessed community participation including the related environmental factors. Such an instrument is required to enable occupational therapy practitioners to support healthy ageing. The development of such an instrument will strengthen the profession's capacity to develop new ways of delivering services to older adults in line with emerging ways that aged care will be delivered and to advance its essential role in healthy ageing. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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38. Survivorship - searching for new directions.
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Johansen, Christoffer and Dalton, Susanne Oksbjerg
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TUMORS & psychology ,CONFERENCES & conventions ,CANCER patients ,CANCER patient rehabilitation ,SERIAL publications ,PHYSICAL activity - Abstract
An introduction is presented in which the editor discusses various articles within the issue on topics including ways to develop theory based and manualized complex behavioral interventions, mapping availability and characteristics of childhood cancer, and mapping of late effects of diseases.
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- 2015
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39. Research Trends around Exercise Rehabilitation among Cancer Patients: A Bibliometrics and Visualized Knowledge Graph Analysis.
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Pan, Yun, Deng, Xianyu, Zhuang, Ying, and Li, Jiyu
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RESEARCH ,BIBLIOMETRICS ,CANCER patients ,CANCER patient rehabilitation ,EXERCISE therapy - Abstract
This study analyzed the research hotspots and frontiers of exercise rehabilitation among cancer patients via CiteSpace. Relevant literature published in the core collection of the Web of Science (WoS) database from January 1, 2000, to February 6, 2022, was searched. Further, we used CiteSpace5.8R1 to generate a network map and identified top authors, institutions, countries, keywords, and research trends. A total of 2706 related literature were retrieved. The most prolific writer was found to be Kathryn H Schmitz (21 articles). The University of Toronto (64 articles) was found to be the leading institution, with the United States being the leading country. Further, "rehabilitation," "exercise," "quality of life," "cancer," and "physical activity" were the top 5 keywords based on frequency; next, "disability," "survival," "fatigue," "cancer," and "rehabilitation" were the top 5 keywords based on centrality. The keyword "fatigue" was ranked at the top of the most cited list. Finally, "rehabilitation medicine," "activities of daily living," "lung neoplasm," "implementation," "hospice," "exercise oncology," "mental health," "telemedicine," and "multidisciplinary" are potential topics for future research. Our results show that the research hotspots have changed from "quality of life," "survival," "rehabilitation," "exercise," "cancer," "physical therapy," "fatigue," and "breast cancer" to "exercise oncology," "COVID-19," "rehabilitation medicine," "inpatient rehabilitation," "implementation," "telemedicine," "lung neoplasm," "telehealth," "multidisciplinary," "psycho-oncology," "hospice," "adapted physical activity," "cancer-related symptom," "cognitive function," and "behavior maintenance." Future research should explore the recommended dosage and intensity of exercise in cancer patients. Further, following promotion of the concept of multidisciplinary cooperation and the rapid development of Internet medical care, a large amount of patient data has been accumulated; thus, how to effectively use this data to generate results of high clinical value is a question for future researchers. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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- View/download PDF
40. Evaluating implementation and pragmatism of cancer-specific exercise programs: a scoping review.
- Author
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Purdy, Graeme M., Sobierajski, Frances M., Dolgoy, Naomi D., and McNeely, Margaret L.
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CINAHL database ,EVALUATION of human services programs ,MEDICAL information storage & retrieval systems ,SYSTEMATIC reviews ,HUMAN services programs ,CANCER patients ,LITERATURE reviews ,MEDLINE ,CANCER patient rehabilitation ,EXERCISE therapy - Abstract
Purpose: Studies in exercise oncology are increasingly evaluating the implementation of cancer-specific exercise programming in real-world settings. Evaluating current implementation efforts and identifying current research gaps may inform future implementation. This scoping review explores studies implementing cancer-specific exercise programs to determine their pragmatic characteristics and evaluate potential for translation into practice. Methods: A systematic literature search was conducted using five databases (up to July 2020) to identify implementation studies that used qualitative or quantitative methods. Program pragmatism was evaluated using the PRECIS/RE-AIM tool. Results: Fourteen articles were included for review. While programs were moderately pragmatic (average: 3.4; range: 2.8–4.2), variability was observed between scoring domains. Programs scored higher (more pragmatic) in domains typical for effectiveness studies, including participant eligibility, follow-up intensity, primary trial outcome, and analysis of primary outcome. In contrast, programs scored lower (less pragmatic) in domains aligned with implementation science, including intervention flexibility, adoption, implementation, and maintenance. Limited information was reported regarding program fidelity, adaptations, and maintenance/sustainability. Conclusion: Researchers should consider the pragmatism of interventions, the nuances of program adoption and implementation at the setting level, and the transition and integration of programming into the healthcare system. Future studies may benefit from the inclusion of decision-makers and implementation experts and shifting focus towards flexible programming. PRECIS/RE-AIM may facilitate the evaluation of programs throughout the study design and implementation process. Implications for Cancer Survivors: The implementation of pragmatic exercise programs that are both scalable and sustainable is needed so that cancer survivors can experience exercise-related benefits beyond research settings. [ABSTRACT FROM AUTHOR]
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- 2022
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41. Occupational Therapy's Role with Oncology in the Acute Care Setting: A Descriptive Case Study.
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Morikawa, Stacey and Amanat, Yasaman
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OCCUPATIONAL therapy ,CRITICAL care medicine ,ACUTE promyelocytic leukemia ,HEALTH care teams ,ONCOLOGY ,CANCER patient rehabilitation - Abstract
As individuals with cancer actively undergo medical treatment, they often experience profound impairments and side-effects that impact their physical and psychosocial functioning and well-being. As occupational therapy practitioners working in acute care, challenges when working with those with oncological diseases may include high acuity, impact on multiple body systems, and fluctuating symptom presentation and levels of function. Thus, it is critical for occupational therapy practitioners to be skilled in identifying and addressing the distinct needs of cancer survivors in the acute care setting. This manuscript presents a descriptive case study to highlight occupational therapy's role in cancer rehabilitation in the acute care setting. [ABSTRACT FROM AUTHOR]
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- 2022
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42. Introduction to the special issue on cancer rehabilitation.
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Lyons, Kathleen
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SERIAL publications ,CANCER patient rehabilitation - Abstract
An editorial is presented on the special issue of cancer rehabilitation. The article discusses that it illuminates the range of experiences that can be seen in cancer survivors and, therefore, adds to the knowledge base needed for cancer rehabilitation; and spanning pediatrics to older adults, including both those living with advanced cancer to those who have completed cancer treatment.
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- 2021
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43. Physical Therapists in Oncology Settings: Experiences in Delivering Cancer Rehabilitation Services, Barriers to Care, and Service Development Needs.
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Brennan, Louise, Sheill, Grainne, O'Neill, Linda, O'Connor, Louise, Smyth, Emily, and Guinan, Emer
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OCCUPATIONAL roles ,PROFESSIONAL employee training ,RESEARCH methodology ,MEDICAL care ,INTERVIEWING ,QUALITATIVE research ,PSYCHOSOCIAL factors ,THEMATIC analysis ,PHYSICAL therapists ,PHYSICAL therapists' attitudes ,MEDICAL needs assessment ,CANCER patient medical care ,CANCER patient rehabilitation - Abstract
Objective: Physical therapist-delivered rehabilitation aims to manage the side effects of cancer and its treatments. Although access to cancer rehabilitation is not yet a standard of care in many countries, physical therapists practice in many types of cancer services with different cancer populations. The purpose of this study was to explore the experiences of physical therapists in cancer care practice with regard to their role, the factors influencing service delivery and development, and physical therapists' professional development needs. Methods: In this qualitative study with semistructured interviews, physical therapists in cancer care settings in the Republic of Ireland were interviewed via telephone. Participants (n = 17) represented a variety of clinical settings and roles. Two researchers performed thematic analysis of transcriptions using a semantic, inductive approach. Key themes and codes were identified and illustrative quotes were selected. Results: Six main themes were found: the need for more services, barriers to service development and delivery, a lack of awareness of the role of physical therapy, facilitators to service development, goals for the future of oncology physical therapy, and training needs of staff. Conclusions: Physical therapists provide valuable interventions across the spectrum of cancer care but experience barriers to the delivery and development of services. Investment in oncology physical therapy and developing international standards of care will allow physical therapists to meet the rehabilitation needs of survivors of cancer. Impact: As international guidelines increasingly recommend development of cancer rehabilitation programs, it is important to understand physical therapists' experiences of working in cancer care to assist in the development of effective oncology physical therapy services. This study demonstrates that physical therapist–led cancer rehabilitation services need investment and public promotion to enable the provision of optimal services to all patients with cancer and to meet standards of care. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
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44. Prehabilitation in cancer care: preparing people for treatment physically and mentally.
- Author
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Bell, Dany and Davis, June Fiona
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TUMORS & psychology ,TUMOR treatment ,OCCUPATIONAL roles ,PATIENT aftercare ,SOCIAL support ,CONVALESCENCE ,MOTIVATIONAL interviewing ,CONTINUING education units ,MEDICAL care ,CANCER ,NURSES ,HEALTH care teams ,INTERPROFESSIONAL relations ,PREHABILITATION ,TUMORS ,CANCER patient medical care ,BEHAVIOR modification ,HEALTH self-care ,PSYCHOLOGICAL resilience ,CANCER patient rehabilitation ,TELEMEDICINE ,DISEASE complications - Abstract
Why you should read this article: • To enhance your awareness of the principles and benefits of prehabilitation in cancer care • To ascertain your role at each stage of prehabilitation: pre-assessment, interventions and follow-up • To better understand the behaviour change process and how you can encourage positive behaviour change Prehabilitation is the process of enhancing an individual's functional capacity by optimising their physical and mental health to prepare them for treatment. Prehabilitation is the first stage of the rehabilitation pathway and comprises pre-assessment, interventions and follow-up. It is designed to reduce the risk of the physical and psychological complications of cancer and its treatment, thereby improving patients' ability to recover as well as their long-term outcomes. This article highlights the principles of prehabilitation in cancer care and its benefits for patients, and explores the role nurses can play in delivering prehabilitation assessments and interventions and in encouraging positive behaviour change in their patients. [ABSTRACT FROM AUTHOR]
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- 2022
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45. Barriers to utilisation of cancer rehabilitation from the expert's view: A cross‐sectional survey.
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Maiwald, Phillip, Weis, Joachim, Kurlemann, Ulrich, Dresch, Carolin, Rademaker, Anna Lena, Valentini, Jan, Joos, Stefanie, Heidt, Vitali, and Bartsch, Hans Helge
- Subjects
RESEARCH ,STATISTICS ,HEALTH services accessibility ,ANALYSIS of variance ,NURSES' attitudes ,PSYCHOLOGY of psychologists ,COUNSELING ,ATTITUDE (Psychology) ,CROSS-sectional method ,RESEARCH methodology ,MULTIVARIATE analysis ,MEDICAL personnel ,PHYSICIANS' attitudes ,QUANTITATIVE research ,MEDICAL cooperation ,PAIRED comparisons (Mathematics) ,SURVEYS ,MEDICAL care use ,QUALITATIVE research ,PRE-tests & post-tests ,QUESTIONNAIRES ,FACTOR analysis ,SOCIAL worker attitudes ,DESCRIPTIVE statistics ,CHI-squared test ,PSYCHOLOGICAL adaptation ,DECISION making in clinical medicine ,DATA analysis software ,STATISTICAL correlation ,DATA analysis ,CANCER patient rehabilitation - Abstract
Objective: The goal of this study was to investigate barriers to utilisation of cancer rehabilitation by querying a large sample of various professionals in health care with a comprehensive set of barriers. Methods: We developed a questionnaire comprising 55 barriers to utilisation of cancer rehabilitation and administered it to four different types of medical, care and social work experts involved in the referral to cancer rehabilitation. An exploratory factor analysis was conducted and the extracted factors were ranked by mean values. Additionally, ANOVAs were calculated to test for group differences. Results: Our sample (N = 606) consisted of 249 physicians, 194 social workers, 105 nurses and 55 psychologists in Germany. We identified seven barrier‐dimensions: low appreciation of rehabilitation by professionals, insufficient coordination, insufficient application procedure, rehabilitation requirements not met, patients' unfulfilled demands, patients' social responsibilities and patients' coping style, with the latter being rated as the most obstructive thereof. Furthermore, we found statistically significant group differences for six of these factors with small‐ to medium‐sized effects. Conclusion: Our results support previous publications implicating the patients' coping style as a barrier. We furthermore found evidence for barriers relating to processes and organisational issues, thereby expanding on the scope of patient‐oriented publications. Suggestions for improving patients' health services accessibility are made. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
46. Health‐related quality of life and physical functioning in patients participating in a rehabilitation programme, undergoing non‐myeloablative allogeneic haematopoietic stem cell transplantation: Outcomes from a single arm longitudinal study.
- Author
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Lindman, Astrid, Handberg, Charlotte, Olesen, Gitte, and Duijts, Saskia
- Subjects
PILOT projects ,RESEARCH ,MEDICAL rehabilitation ,EXERCISE tests ,PATIENT participation ,FRAIL elderly ,CONFIDENCE intervals ,CARDIOPULMONARY system ,LEAN body mass ,SURGERY ,PATIENTS ,TREATMENT effectiveness ,FUNCTIONAL assessment ,CANCER patients ,HEMATOLOGIC malignancies ,QUESTIONNAIRES ,MUSCLE strength ,KARNOFSKY Performance Status ,REPEATED measures design ,DESCRIPTIVE statistics ,RESEARCH funding ,HEMATOPOIETIC stem cell transplantation ,DATA analysis software ,CANCER patient rehabilitation ,LONGITUDINAL method ,REHABILITATION ,EVALUATION - Abstract
Objective: This study aims to report HRQOL, patient activation and physical functioning of haematological patients, participating in a 6‐month multimodal interdisciplinary rehabilitation programme HAPPY, when undergoing non‐myeloablative allogeneic haematopoietic stem cell transplantation (NMA‐HSCT). Methods: A prospective single‐arm longitudinal design. Outcomes were collected as part of a feasibility study and included: HRQOL (EORTC QLQ‐C30), patient activation measure (PAM), cardiorespiratory capacity (VO2peak), leg extensor power, lean body mass, measured pre‐NMA‐HSCT at 3‐, 6‐ and 12‐month follow‐up. Results: Thirty (mean age (SD) 64.1 (6.5)) out of 34 patients participated and 18 completed HAPPY. Outcome measures showed large individual differences of decline and improvement during follow‐up. Patients rated HRQOL as good (median 70.8; range 33.3–100). Fatigue, dyspnoea, insomnia and appetite loss mainly remained or worsened. PAM stayed in the upper half of range (median 55.6; range 20.5–84.8) with a trend towards improvement at 12‐month follow‐up. Physical functioning scores were low [i.e. baseline VO2peak, men median 1.5 L/min range (1.0–2.9), women 1.0 L/min (0.8–1.4), leg extensor power men 2.1 Watt/kg range (1.3–3.8), women 1.7 Watt/kg (1.3–2.4), lean body mass men 19.5% (17.6–24.9) and women 17.8% (15.3–21.7)]. Conclusion: The sustained low level of physical functioning and symptoms 12‐month after NMA‐HSCT emphasise the need for pre‐rehabilitation and long‐lasting rehabilitation support in this frail patient group. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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47. Early, integrated palliative rehabilitation improves quality of life of patients with newly diagnosed advanced cancer: The Pal-Rehab randomized controlled trial.
- Author
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Nottelmann, Lise, Groenvold, Mogens, Vejlgaard, Tove Bahn, Petersen, Morten Aagaard, and Jensen, Lars Henrik
- Subjects
TUMOR treatment ,CONFIDENCE intervals ,TREATMENT effectiveness ,CANCER patients ,RANDOMIZED controlled trials ,COMPARATIVE studies ,QUALITY of life ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,STATISTICAL sampling ,PALLIATIVE treatment ,EARLY medical intervention ,CANCER patient rehabilitation ,EVALUATION - Abstract
Background: Early integration of palliative care into oncology treatment is widely recommended. Palliative rehabilitation has been suggested as a paradigm which integrates enablement, self-management, and self-care into the holistic model of palliative care. Aim: We hypothesized that early integration of palliative rehabilitation could improve quality of life. Design: The Pal-Rehab study (ClinicalTrials.gov NCT02332317) was a randomized controlled trial. The 12-week intervention offered by a specialized palliative care team was two mandatory consultations and the opportunity of participating in an interdisciplinary group program. Supplementary individual consultations were offered, if needed. Setting/participants: At Vejle University Hospital, Denmark, adults diagnosed with advanced cancer within the last 8 weeks were randomized 1:1 to standard oncology care or standard care plus intervention. Assessments at baseline and after six and 12 weeks were based on the European Organization for Research and Treatment of Cancer Quality of Life Core Questionnaire (EORTC QLQ-C30). At baseline participants were asked to choose a "primary problem" from a list of QLQ-C30 domains. The primary endpoint was the change in that "primary problem" measured as area under the curve across 12 weeks (T -scores, European mean value = 50, SD = 10). Results: In all, 288 were randomized of whom 279 were included in the modified intention-to-treat analysis (146 in the standard care group and 133 in the intervention group). The between-group difference for the primary outcome was 3.0 (95% CI [0.0–6.0]; p = 0.047) favoring the intervention. Conclusion: Early integration of palliative rehabilitation into standard oncology treatment improved quality of life for newly diagnosed advanced cancer patients. Trial registration: Clinicaltrials.gov Identifier: NCT02332317, registered on December 30, 2014. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
48. "The quietness of the place calmed my troubled mind": The restorative potential of environments in an existential rehabilitation programme for patients with cancer.
- Author
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Roessler, K. K., Graven, V., la Cour, K., Hvidt, N. C., Rottmann, N., and Hvidt, E. Assing
- Subjects
ENVIRONMENTAL psychology ,CANCER patient rehabilitation ,PSYCHODYNAMICS - Abstract
In the following article, the restorative potential of the environment in a cancer rehabilitation programme is analysed and discussed. The programme was developed as a transdisciplinary cooperation of psychologists, theologians, philosophers, and artists. To investigate the importance of environments, six qualitative focus group interviews were performed with 36 Danish cancer patients (30 females; six males) who attended the programme either at The Danish Knowledge Centre for Rehabilitation and Palliative Care (REHPA), a former hospital building adapted for rehabilitation, or at Løgumkloster Refugium, an old monastery, used as a place for retreat. The data were analysed using a content analysis that took a psychodynamic and hermeneutic approach as its point of departure. Outcomes associated with the environment that enhanced the well-being of the patients were feelings: a) of being close to nature, b) of being protected, c) of the spirit of place, and d) of experiencing narratives of peace. Our programme supports the idea, that environments in which cancer rehabilitation takes place can trigger different emotions and fulfil different existential needs. Aesthetic, historical, and spiritual aspects of an environment can help individuals to respond to existential challenges and can induce hope. Our study contributes knowledge about the interplay between existential well-being and aspects of the environment. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
49. Rehabilitation and palliative care for socioeconomically disadvantaged patients with advanced cancer: a scoping review.
- Author
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Sampedro Pilegaard, Marc, Knold Rossau, Henriette, Lejsgaard, Esben, Kjer Møller, Jens-Jakob, Jarlbaek, Lene, Dalton, Susanne Oksbjerg, and la Cour, Karen
- Subjects
ATTITUDE (Psychology) ,CANCER patients ,CANCER patient rehabilitation ,CINAHL database ,MEDICAL information storage & retrieval systems ,MEDICAL personnel ,MEDLINE ,ONLINE information services ,PALLIATIVE treatment ,POVERTY ,TUMORS ,SYSTEMATIC reviews ,LITERATURE reviews ,SOCIOECONOMIC factors - Abstract
Rehabilitation and palliative care may play an important role in addressing the problems and needs perceived by socioeconomically disadvantaged patients with advanced cancer. However, no study has synthesized existing research on rehabilitation and palliative care for socioeconomically disadvantaged patients with advanced cancer. The study aimed to map existing research of rehabilitation and palliative care for patients with advanced cancer who are socioeconomically disadvantaged. A scoping review was conducted in accordance with the Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR). A systematic literature search was performed in CINAHL, PubMed and EMBASE. Two reviewers independently assessed abstracts and full-text articles for eligibility and performed data extraction. Both qualitative and quantitative studies published between 2010 and 2019 were included if they addressed rehabilitation or palliative care for socioeconomically disadvantaged (adults ≥18 years) patients with advanced cancer. Socioeconomic disadvantage is defined by socioeconomic position (income, educational level and occupational status). In total, 11 studies were included in this scoping review (138,152 patients and 45 healthcare providers) of which 10 were quantitative studies and 1 was a qualitative study. All included studies investigated the use of and preferences for palliative care, and none focused on rehabilitation. Two studies explored health professionals' perspectives on the delivery of palliative care. Existing research within this research field is sparse. Future research should focus more on how best to reach and support socioeconomically disadvantaged people with advanced cancer in community-based rehabilitation and palliative care. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
50. The Oncology Nurse Navigator as "Gate Opener" to Interdisciplinary Supportive and Palliative Care for People with Head and Neck Cancer.
- Author
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Kagan, Sarah H., Morgan, Brianna, Smink, Teresa, DeMille, Debra, Huntzinger, Christine, Pauly, Meredith, and Lynch, Mary Pat
- Subjects
CACHEXIA treatment ,ONCOLOGY nursing ,CANCER patient psychology ,CANCER patient rehabilitation ,CANCER treatment ,HEAD tumors ,HEALTH care teams ,HEALTH services accessibility ,INTERPROFESSIONAL relations ,LEADERSHIP ,MEDICAL needs assessment ,MEDICAL referrals ,NECK tumors ,NURSE-patient relationships ,NURSING assessment ,PALLIATIVE treatment ,HEALTH self-care ,OCCUPATIONAL roles ,SOCIAL support ,SPECIALTY hospitals ,PATIENT-centered care ,PATIENTS' attitudes ,DESCRIPTIVE statistics - Abstract
Background: People living with head and neck cancer frequently encounter challenges in their treatment with multimodality therapy and risk of side effects. Ensuring access to and use of interdisciplinary supportive and palliative care is often challenging given the complex needs and unfamiliar treatment experiences. Objectives: Describe the CARE Clinic Plus ONN Gate Opener as an approach to enhance access to and utilization of interdisciplinary supportive and palliative care for people living with head and neck cancer. Discussion: The Cancer Appetite and Rehabilitation (CARE) Clinic model offers interdisciplinary supportive and palliative care to patients at risk, including those living with head and neck cancer. The oncology nurse navigator (ONN) serves as gate opener, ensuring that those individuals receive appropriate assessment with personalized education and referrals for timely prehabilitation, rehabilitation, and palliation. Conclusions: The ONN, as a gate opener for people living with head and neck cancer, offers an innovative approach to elevate the patient experience and improve clinical outcomes through interdisciplinary supportive and palliative care when working in collaboration with the CARE Clinic. Guidance for other centers to adapt our model to meet their patient and family needs concludes our discussion. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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