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ABSTRACT Goals are presented in the chronic illness literature as effective strategies to help people adopt self-management behaviors, however, not much is known about the types and characteristics of individuals' [...]

Abstract: The purpose of this study was to document seizure events associated with the use of a computer-based assessment and to describe the contextual factors surrounding these seizure episodes. Study [...]

The initial development and testing of the Antiretroviral Medication Complexity Index (AMCI), an instrument to measure complexity of antiretroviral medications and regiments is discussed. The complexity as measured by the AMCI was associated with some measures of adherence, providing partial support for construct validity and the results proved evidence for reliability and validity of the AMCI when used for research purposes.

Abstract: The purpose of this study was to extend a previous evaluation of neuroscience nursing research to an assessment of the research published during the 1990s--the Decade of the Brain. [...]

Abstract: Medications are the most common treatment for epilepsy. Regimens vary from once per day dosing to several pills several times per day. More complex regimens have been associated with [...]

Implementation of audio computer-assisted interviewing software ACASI software package, the Questionnaire Development System in nursing and HIV research centers is described in this article.

A pilot study of a nursing intervention which is based on the motivational intervention (MI) is described. The pilot study results indicate a promise to promote adherence to antiretroviral medications through the use of (MI) as an intervention.

Cancer clinical trials (CCT) provide much of the evidence for clinical guidelines and standards of care. But low levels of CCT participation are well documented, especially for minorities.

The purpose of this study was to document seizure events associated with the use of a computerbased assessment and to describe the contextual factors surrounding these seizure episodes. Study participants were adults with epilepsy who were enrolled at research sites in Atlanta and Boston. Subjects were asked to complete a computerbased assessment at 3 time points. Fourteen seizure events were documented they occurred during 1.6 of all completed assessments 896 and affected 4.4 of the participants 320. The mean age of participants who experienced seizure events was 41.4 years about 70 were female, and 70 were white. A variety of possible precipitating factors for seizure events included hunger, fatigue, stress, and medication changes. Participants indicated computer use could have triggered their seizures in 2 instances. These findings suggest use of computerbased assessments may pose minimal risks for adults with epilepsy, particularly those without a history of photosensitivity epilepsy.

Medications are the most common treatment for epilepsy. Regimens vary from once per day dosing to several pills several times per day. More complex regimens have been associated with lower adherence rates. To date, medication complexity has been measured by the number of pills and the number of times per day the pills are taken. However, complexity also includes special instructions e.g., take at a separate time than other medications and the specific administration actions e.g., take 12 pill. This article describes the development of an instrument designed to measure the complexity associated with epilepsy treatment regimens. The medication complexity tool MCI was modified to create the Epilepsy Medication and Treatment Complexity Index EMTCI. The EMTCI comprises four sections a general medication information, b frequency of administration, c special instructions, and d administration actions. Points are given for dosing schedules, special instructions, and administration actions. A total complexity score is calculated by adding points for each section. One form is completed for each medication prescribed for each person. The initial development of the EMTCI included revising the MCI to make it applicable to epilepsy medications. Interrater and intrarater reliability assessments were conducted. The EMTCI was administered to adults with epilepsy as part of a larger study of selfmanagement in people with epilepsy. Data from that study were used for further assessments of the EMTCI including testretest reliability, criterion validity, and construct validity. The EMTCI shows evidence of both reliability and validity. Information from the tool can be used to describe the medication complexity of epilepsy medication regimens in much greater detail than has been done previously for this population. This information is useful in describing the treatment and adherence issues for persons with epilepsy.

•Marginalized and minoritized groups remain underrepresented in pain research.•Benefits of adopting principles and practices of inclusive research are discussed.Key concepts are structural causes of pain disparities, intersectionality, and universal design.•Numerous strategies for promoting inclusion are presented, with a focus on stakeholder engagement.•Training, resources for engagement and a diverse workforce will advance inclusive pain research.