Blay JY, Casali P, Bouvier C, Dehais C, Galloway I, Gietema J, Halámková J, Hindi N, Idbaih A, Kinloch E, Klümpen HJ, Kolarova T, Kopeckova K, Lovey J, Magalhaes M, Oselin K, Piperno-Neumann S, Ravnsbaek A, Rogasik M, Safwat A, Scheipl S, Seckl M, Taylor J, Temnyk M, Trama A, Urbonas M, Wartenberg M, and Weinman A
Competing Interests: Disclosure The authors have declared no conflicts of interest. List of associated partners ePAGs: Associazione Italiana Laringectizziati (AILAR), Digestive Cancer Europe (DiCE), European Association of NeuroOncology (EANO), European Cancer Organisation, European Cancer Patient Coalition (ECPC), European Head and Neck Society (EHNS), European Network of Gynaecological Cancer Advocacy Groups (ENGAGe), European Neuroendocrine Tumour Society (ENETS), European Organisation for Research and Treatment of Cancer (EORTC), European Rare Disease Patient Organisation (EURORDIS), European School of Oncology (ESO), European Society of Gynaecological Oncology (ESGO), European Society for Medical Oncology (ESMO), European Society of Surgical Oncology (ESSO), European Society for Radiotherapy and Oncology (ESTRO), Melanoma Patient Network Europe (MPNE); French National Network for the Treatment of Rare Peritoneal Surface Malignancies (RENAPE), Info Sarcomes, International Brain tumour Alliance (IBTA), International Neuroendocrine Cancer Alliance (INCA), Melanoma Info Deutschland (MID), Neuroendocrine Cancer, UK, Salivary Gland Cancer UK (SGC), Sarcoma Patients Euronet (SPAEN), Thyroid Cancer Alliance (TCA), Joint Action on Rare Cancers (JARC), Lyon Ingenierie Projets (LIP), Organisation of European Cancer Institute (OECI), Réseau Tumeurs Thymiques et Cancer (Rythmic), French Sarcoma Group, French Tumour Study Group (GSF-GETO), the NETSARC+ network, LYRICAN, Université Claude Bernard Lyon 1 (UCBL), Universita degli studi di Milano (UNIMI).