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Your search keyword '"Siminoff, Laura A."' showing total 4 results
Start Over Author "Siminoff, Laura A." Publication Type Electronic Resources
4 results on '"Siminoff, Laura A."'

1. Development of a decision support tool in pediatric Differences/Disorders of Sex Development.

Author

Sandberg, David E, Sandberg, David E, Gardner, Melissa, Kopec, Kristin, Urbanski, Megan, Callens, Nina, Keegan, Catherine E, Yashar, Beverly M, Fechner, Patricia Y, Shnorhavorian, Margarett, Vilain, Eric, Timmermans, Stefan, Siminoff, Laura A, Sandberg, David E, Sandberg, David E, Gardner, Melissa, Kopec, Kristin, Urbanski, Megan, Callens, Nina, Keegan, Catherine E, Yashar, Beverly M, Fechner, Patricia Y, Shnorhavorian, Margarett, Vilain, Eric, Timmermans, Stefan, and Siminoff, Laura A

Abstract

Decisions about how best to clinically care for young children born with Disorders of Sex Development (DSD) can be challenging because some decisions are irreversible, have lasting physical and mental health effects, and are frequently made before the affected person is able to participate in decision-making. This multi-stage study involved (1) the development of a web-based decision support tool (DST) for parents of infants or young children and the clinicians caring for them; (2) the assessment of communications and decision making between DSD specialists and parents both before and after introduction of the DST; and (3) interviews with a broad range of stakeholders regarding optimizing the DST and integrating it into usual care. Experience over the course of the 3 stages of this research suggests the need for further refinement of the DST to increase acceptability to all stakeholder groups, the necessity to address misperceptions by providers that they are already accomplishing all aspects of SDM in regular care without a DST and misunderstandings by parents that decisions are unnecessary because only a single option is apparent, and to better incorporate the tool into regular clinic workflow.

Published
2019

2. The US Cancer Moonshot initiative.

Author

Aelion, C Marjorie, Aelion, C Marjorie, Airhihenbuwa, Collins O, Alemagno, Sonia, Amler, Robert W, Arnett, Donna K, Balas, Andrew, Bertozzi, Stefano, Blakely, Craig H, Boerwinkle, Eric, Brandt-Rauf, Paul, Buekens, Pierre M, Chandler, G Thomas, Chang, Rowland W, Clark, Jane E, Cleary, Paul D, Curran, James W, Curry, Susan J, Diez Roux, Ana V, Dittus, Robert, Ellerbeck, Edward F, El-Mohandes, Ayman, Eriksen, Michael P, Erwin, Paul C, Evans, Gregory, Finnegan, John R, Fried, Linda P, Frumkin, Howard, Galea, Sandro, Goff, David C, Goldman, Lynn R, Guilarte, Tomas R, Rivera-Gutiérrez, Ralph, Halverson, Paul K, Hand, Gregory A, Harris, Cynthia M, Healton, Cheryl G, Hennig, Nils, Heymann, Jody, Hunter, David, Hwang, Wenke, Jones, Resa M, Klag, Michael J, Klesges, Lisa M, Lahey, Tim, Lawlor, Edward F, Maddock, Jay, Martin, William J, Mazzaschi, Anthony J, Michael, Max, Mohammed, Shan D, Nasca, Philip C, Nash, David, Ogunseitan, Oladele A, Perez, Ronald A, Perri, Michael, Petersen, Donna J, Peterson, Darleen V, Philbert, Martin, Pinto-Martin, Jennifer, Raczynski, James M, Raskob, Gary E, Rimer, Barbara K, Rohrbach, Louise Ann, Rudkin, Laura L, Siminoff, Laura, Szapocznik, José, Thombs, Dennis, Torabi, Mohammad R, Weiler, Robert M, Wetle, Terrie Fox, Williams, Phillip L, Wykoff, Randy, Ying, Jun, Aelion, C Marjorie, Aelion, C Marjorie, Airhihenbuwa, Collins O, Alemagno, Sonia, Amler, Robert W, Arnett, Donna K, Balas, Andrew, Bertozzi, Stefano, Blakely, Craig H, Boerwinkle, Eric, Brandt-Rauf, Paul, Buekens, Pierre M, Chandler, G Thomas, Chang, Rowland W, Clark, Jane E, Cleary, Paul D, Curran, James W, Curry, Susan J, Diez Roux, Ana V, Dittus, Robert, Ellerbeck, Edward F, El-Mohandes, Ayman, Eriksen, Michael P, Erwin, Paul C, Evans, Gregory, Finnegan, John R, Fried, Linda P, Frumkin, Howard, Galea, Sandro, Goff, David C, Goldman, Lynn R, Guilarte, Tomas R, Rivera-Gutiérrez, Ralph, Halverson, Paul K, Hand, Gregory A, Harris, Cynthia M, Healton, Cheryl G, Hennig, Nils, Heymann, Jody, Hunter, David, Hwang, Wenke, Jones, Resa M, Klag, Michael J, Klesges, Lisa M, Lahey, Tim, Lawlor, Edward F, Maddock, Jay, Martin, William J, Mazzaschi, Anthony J, Michael, Max, Mohammed, Shan D, Nasca, Philip C, Nash, David, Ogunseitan, Oladele A, Perez, Ronald A, Perri, Michael, Petersen, Donna J, Peterson, Darleen V, Philbert, Martin, Pinto-Martin, Jennifer, Raczynski, James M, Raskob, Gary E, Rimer, Barbara K, Rohrbach, Louise Ann, Rudkin, Laura L, Siminoff, Laura, Szapocznik, José, Thombs, Dennis, Torabi, Mohammad R, Weiler, Robert M, Wetle, Terrie Fox, Williams, Phillip L, Wykoff, Randy, and Ying, Jun

Published
2016

3. The US Cancer Moonshot initiative.

Author

Aelion, C Marjorie, Aelion, C Marjorie, Airhihenbuwa, Collins O, Alemagno, Sonia, Amler, Robert W, Arnett, Donna K, Balas, Andrew, Bertozzi, Stefano, Blakely, Craig H, Boerwinkle, Eric, Brandt-Rauf, Paul, Buekens, Pierre M, Chandler, G Thomas, Chang, Rowland W, Clark, Jane E, Cleary, Paul D, Curran, James W, Curry, Susan J, Diez Roux, Ana V, Dittus, Robert, Ellerbeck, Edward F, El-Mohandes, Ayman, Eriksen, Michael P, Erwin, Paul C, Evans, Gregory, Finnegan, John R, Fried, Linda P, Frumkin, Howard, Galea, Sandro, Goff, David C, Goldman, Lynn R, Guilarte, Tomas R, Rivera-Gutiérrez, Ralph, Halverson, Paul K, Hand, Gregory A, Harris, Cynthia M, Healton, Cheryl G, Hennig, Nils, Heymann, Jody, Hunter, David, Hwang, Wenke, Jones, Resa M, Klag, Michael J, Klesges, Lisa M, Lahey, Tim, Lawlor, Edward F, Maddock, Jay, Martin, William J, Mazzaschi, Anthony J, Michael, Max, Mohammed, Shan D, Nasca, Philip C, Nash, David, Ogunseitan, Oladele A, Perez, Ronald A, Perri, Michael, Petersen, Donna J, Peterson, Darleen V, Philbert, Martin, Pinto-Martin, Jennifer, Raczynski, James M, Raskob, Gary E, Rimer, Barbara K, Rohrbach, Louise Ann, Rudkin, Laura L, Siminoff, Laura, Szapocznik, José, Thombs, Dennis, Torabi, Mohammad R, Weiler, Robert M, Wetle, Terrie Fox, Williams, Phillip L, Wykoff, Randy, Ying, Jun, Aelion, C Marjorie, Aelion, C Marjorie, Airhihenbuwa, Collins O, Alemagno, Sonia, Amler, Robert W, Arnett, Donna K, Balas, Andrew, Bertozzi, Stefano, Blakely, Craig H, Boerwinkle, Eric, Brandt-Rauf, Paul, Buekens, Pierre M, Chandler, G Thomas, Chang, Rowland W, Clark, Jane E, Cleary, Paul D, Curran, James W, Curry, Susan J, Diez Roux, Ana V, Dittus, Robert, Ellerbeck, Edward F, El-Mohandes, Ayman, Eriksen, Michael P, Erwin, Paul C, Evans, Gregory, Finnegan, John R, Fried, Linda P, Frumkin, Howard, Galea, Sandro, Goff, David C, Goldman, Lynn R, Guilarte, Tomas R, Rivera-Gutiérrez, Ralph, Halverson, Paul K, Hand, Gregory A, Harris, Cynthia M, Healton, Cheryl G, Hennig, Nils, Heymann, Jody, Hunter, David, Hwang, Wenke, Jones, Resa M, Klag, Michael J, Klesges, Lisa M, Lahey, Tim, Lawlor, Edward F, Maddock, Jay, Martin, William J, Mazzaschi, Anthony J, Michael, Max, Mohammed, Shan D, Nasca, Philip C, Nash, David, Ogunseitan, Oladele A, Perez, Ronald A, Perri, Michael, Petersen, Donna J, Peterson, Darleen V, Philbert, Martin, Pinto-Martin, Jennifer, Raczynski, James M, Raskob, Gary E, Rimer, Barbara K, Rohrbach, Louise Ann, Rudkin, Laura L, Siminoff, Laura, Szapocznik, José, Thombs, Dennis, Torabi, Mohammad R, Weiler, Robert M, Wetle, Terrie Fox, Williams, Phillip L, Wykoff, Randy, and Ying, Jun

Published
2016

4. Assessing patient-caregiver communication in cancer—a psychometric validation of the Cancer Communication Assessment Tool (CCAT-PF) in a German sample

Author

Haun, Markus, Sklenarova, Halina, Winkler, Eva, Huber, Johannes, Thomas, Michael, Siminoff, Laura, Woll, Michael, Brechtel, Anette, Herzog, Wolfgang, Hartmann, Mechthild, Haun, Markus, Sklenarova, Halina, Winkler, Eva, Huber, Johannes, Thomas, Michael, Siminoff, Laura, Woll, Michael, Brechtel, Anette, Herzog, Wolfgang, and Hartmann, Mechthild

Abstract

Purpose: The recently introduced Cancer Communication Assessment Tool (CCAT-PF) measures congruence in patient-caregiver communication and was initially validated in lung cancer patients. Contributing to a greater proportion of the variance in the conflict scores, primary caregivers were hypothesized to experience greater stress. For a detailed understanding of conflicting communication patterns of cancer-affected families, our study aimed for psychometric validation of the CCAT-PF in a sample covering heterogeneous tumor entities. Methods: Subsequent to a cross-sectional survey of 189 pairs of cancer patients (31% gastrointestinal, 34% lung, and 35% urological) and their caregivers' exploratory factor analysis with principal component condensation and varimax rotation was conducted (response rate, 74.2%). Reliability and construct validity were assessed calculating Cronbach's α and Pearson correlation coefficients for CCAT-P and CCAT-F scales and related constructs, respectively. Results: Cancer-related communication according to the CCAT-PF can be subdivided into four factors including the scales Disclosure, Limitation of treatment, Family involvement in treatment decisions, and Continuing treatment. Reliability ranged from α = .51-.68. The Disclosure scale, describing poor cancer-related communication of the patient, was correlated with patient's distress (QSC-R10: r = .30, p < .0001), unmet needs in several areas (SCNS-SF-34: r = .25-.32, p < .001), and negatively with social/family well-being (FACT: r = −0.31, p < .0001). Higher scores on the scale were significantly associated with considerable decrements in emotional well-being especially for caregivers perceiving patients' disclosure as problematic. Conclusions: The Disclosure scale originating from the CCAT-PF emerged as a short, valid, and reliable stand-alone instrument for identifying conflicting communication in patient-caregiver-dyads at risk.

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