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42 results on '"Kaptein Ad A"'

1. Therapeutic effect of psilocybin in addiction: A systematic review

Author

AIOS Psychiatrie, Onderzoeksgroep 1, Brain, Diagnostiek & Vroege Psychose Medisch, van der Meer, Pim B., Fuentes, Juan J., Kaptein, Ad A., Schoones, Jan W., de Waal, Marleen M., Goudriaan, Anneke E., Kramers, Kees, Schellekens, Arnt, Somers, Metten, Bossong, Matthijs G., Batalla, Albert, AIOS Psychiatrie, Onderzoeksgroep 1, Brain, Diagnostiek & Vroege Psychose Medisch, van der Meer, Pim B., Fuentes, Juan J., Kaptein, Ad A., Schoones, Jan W., de Waal, Marleen M., Goudriaan, Anneke E., Kramers, Kees, Schellekens, Arnt, Somers, Metten, Bossong, Matthijs G., and Batalla, Albert

Published
2023

3. Asthma control and quality of life in adolescents: The role of illness perceptions, medication beliefs, and adherence

Author

Afd Pharmacoepi & Clinical Pharmacology, Pharmacoepidemiology and Clinical Pharmacology, Kosse, Richelle C., Koster, Ellen S., Kaptein, Ad A., de Vries, Tjalling W., Bouvy, Marcel L., Afd Pharmacoepi & Clinical Pharmacology, Pharmacoepidemiology and Clinical Pharmacology, Kosse, Richelle C., Koster, Ellen S., Kaptein, Ad A., de Vries, Tjalling W., and Bouvy, Marcel L.

Published
2020

4. Asthma control and quality of life in adolescents: The role of illness perceptions, medication beliefs, and adherence

Author

Afd Pharmacoepi & Clinical Pharmacology, Pharmacoepidemiology and Clinical Pharmacology, Kosse, Richelle C., Koster, Ellen S., Kaptein, Ad A., de Vries, Tjalling W., Bouvy, Marcel L., Afd Pharmacoepi & Clinical Pharmacology, Pharmacoepidemiology and Clinical Pharmacology, Kosse, Richelle C., Koster, Ellen S., Kaptein, Ad A., de Vries, Tjalling W., and Bouvy, Marcel L.

Published
2020

5. Asthma control and quality of life in adolescents: The role of illness perceptions, medication beliefs, and adherence

Author

Afd Pharmacoepi & Clinical Pharmacology, Pharmacoepidemiology and Clinical Pharmacology, PECP – Centre for Clinical Therapeutics, Kosse, Richelle C., Koster, Ellen S., Kaptein, Ad A., de Vries, Tjalling W., Bouvy, Marcel L., Afd Pharmacoepi & Clinical Pharmacology, Pharmacoepidemiology and Clinical Pharmacology, PECP – Centre for Clinical Therapeutics, Kosse, Richelle C., Koster, Ellen S., Kaptein, Ad A., de Vries, Tjalling W., and Bouvy, Marcel L.

Published
2020

6. A TASMAN Expedition: Development of a Questionnaire to Assess Specific Self-Management Abilities

Author

Voorhaar,Maarten, Tiemensma,Jitske, Asijee,Guus, Slok,Annerika, Muris,Jean, Kaptein,Ad, Voorhaar,Maarten, Tiemensma,Jitske, Asijee,Guus, Slok,Annerika, Muris,Jean, and Kaptein,Ad

Abstract

M Voorhaar,1 J Tiemensma,2 GM Asijee,1 AHM Slok,1 JWM Muris,1 AA Kaptein3 1Department of Family Medicine, Maastricht University, CAPHRI Care and Public Health Research Institute, Maastricht, the Netherlands; 2Department of Anesthesiology, Erasmus University Medical Center, Rotterdam, the Netherlands; 3Department of Medical Psychology, Leiden University Medical Centre, Leiden, the NetherlandsCorrespondence: M Voorhaar Email m.voorhaar@maastrichtuniversity.nlIntroduction: Self-management (SM) is a core component of well-being and perceived health for patients with chronic obstructive pulmonary disease (COPD). Most theories on SM share that self-efficacy, illness-perception and coping are determinants of SM behavior. Optimal support to improve SM should be tailored to the individual patient’s level of these determinants as SM abilities vary between patients. To tailor SM support, it is therefore necessary to assess the scores on these determinants. Unfortunately, no such instrument exists for clinical use. Therefore, the first goal of this study was to verify presumed correlations between SM and the determinants thereof. The second goal was to develop an instrument to assess the SM abilities.Methods: In this cross-sectional, observational study, COPD patients completed the General Self-Efficacy Scale (GSES), Brief Illness Perception Questionnaire (B-IPQ) and the Utrecht Proactive Coping Competence measure (UPCC) as well as the Self-Management Ability Scale (SMAS-30). Correlations between the questionnaires were assessed and a principal component analysis (PCA) was performed to identify the best-fitting items in the three independent variables related to SM. These items were used to create an instrument to assess SM abilities.Results: Hundred COPD patients (58 males, 41 females, 1 unknown) were included. The correlation between SM and self-efficacy, illness perception on concerns and proactive coping was moderate and significant (r=0.318, p< 0.01; r=&am

Published
2020

7. Illness Perceptions and Quality of Life in Patients with Non-Small-Cell Lung Cancer: A 3-Month Follow-Up Pilot Study

Author

Vollmann,Manja, Matsuda,Ayako, Kroep,Judith R, Kobayashi,Kunihiko, Kubota,Kaoru, Inoue,Kenichi, Yamaoka,Kazue, Putter,Hein, Ramai,Rajen, Nortier,Hans W R, Fischer,Maarten J, Kaptein,Ad A, Vollmann,Manja, Matsuda,Ayako, Kroep,Judith R, Kobayashi,Kunihiko, Kubota,Kaoru, Inoue,Kenichi, Yamaoka,Kazue, Putter,Hein, Ramai,Rajen, Nortier,Hans W R, Fischer,Maarten J, and Kaptein,Ad A

Abstract

Manja Vollmann,1 Ayako Matsuda,2 Judith R Kroep,3 Kunihiko Kobayashi,4 Kaoru Kubota,5 Kenichi Inoue,6 Kazue Yamaoka,7 Hein Putter,8 Rajen Ramai,9 Johannes WR Nortier,3 Maarten J Fischer,10 Ad A Kaptein10 1Socio-Medical Sciences ESHPM, Erasmus University Rotterdam, Rotterdam, the Netherlands; 2Department of Hygiene and Public Health, Teikyo University School of Medicine, Tokyo, Japan; 3Medical Oncology, Leiden University Medical Center, Leiden, the Netherlands; 4Saitama International Medical Center Saitama, Saitama, Japan; 5Nippon Medical School Hospital, Tokyo, Japan; 6Saitama Cancer Center, Saitama, Japan; 7Teikyo University Graduate School of Public Health, Tokyo, Japan; 8Medical Statistics and Bioinformatics, Leiden University Medical Center, Leiden, the Netherlands; 9Respiratory Medicine, Leiden University Medical Centre, Leiden, the Netherlands; 10Medical Psychology, Leiden University Medical Center, Leiden, the NetherlandsCorrespondence: Ad A KapteinDepartment of Medical Psychology, Leiden University Medical Center, PO Box 9600, Leiden 2300 RC, the NetherlandsEmail a.a.kaptein@lumc.nlPurpose: Examine illness perceptions, functional health and quality of life of lung cancer patients throughout chemotherapy treatment.Patients and Methods: Longitudinal design with baseline measure 12 days after the first chemotherapy and follow-up measure 3 months later, where illness perceptions (BIPQ), functional health, and quality of life (EORTC QLQ-C-30) were measured. A total of 21 patients with non-small-cell lung cancer took part. Non-parametric testing was performed given the pilot nature of the study and the associated relatively small sample size.Results: Small to medium changes in illness perceptions and functional health between the two measurement points were detected, with both becoming more positive. More negative illness perceptions at the beginning of the treatment were associated with less functioning and lower quality of life at both beginning and end of treat

Published
2020

8. Asthma

Author

Kaptein, Ad A., Klok, Ted, Brand, Paul, Kaptein, Ad A., Klok, Ted, and Brand, Paul

Published
2019

9. The effect of arthropathies on illness perceptions, coping strategies, outcomes, and their changes over time in patients with inflammatory bowel disease : A 12-month follow-up study

Author

Van Erp, Sanne J.H., Van Der Have, Mike, Fidder, Herma H., Van Der Heijde, Désirée, Wolterbeek, Ron, Hommes, Daniel W., Kaptein, Ad A., Van Der Meulen-De Jong, Andrea E., Van Erp, Sanne J.H., Van Der Have, Mike, Fidder, Herma H., Van Der Heijde, Désirée, Wolterbeek, Ron, Hommes, Daniel W., Kaptein, Ad A., and Van Der Meulen-De Jong, Andrea E.

Published
2018

10. Corrigendum : Non-adherence to Anti-TNF Therapy is Associated with Illness Perceptions and Clinical Outcomes in Outpatients with Inflammatory Bowel Disease: Results from a Prospective Multicentre Study

Author

van der Have, Mike, Oldenburg, Bas, Kaptein, Ad A., Jansen, Jeroen M., Scheffer, Robert C.H., van Tuyl, Bas A., van der Meulen-de Jong, Andrea E., Pierik, Marieke, Siersema, Peter D., van Oijen, Martijn G.H., Fidder, Herma H., van der Have, Mike, Oldenburg, Bas, Kaptein, Ad A., Jansen, Jeroen M., Scheffer, Robert C.H., van Tuyl, Bas A., van der Meulen-de Jong, Andrea E., Pierik, Marieke, Siersema, Peter D., van Oijen, Martijn G.H., and Fidder, Herma H.

Published
2018

11. The effect of arthropathies on illness perceptions, coping strategies, outcomes, and their changes over time in patients with inflammatory bowel disease : A 12-month follow-up study

Author

Van Erp, Sanne J.H., Van Der Have, Mike, Fidder, Herma H., Van Der Heijde, Désirée, Wolterbeek, Ron, Hommes, Daniel W., Kaptein, Ad A., Van Der Meulen-De Jong, Andrea E., Van Erp, Sanne J.H., Van Der Have, Mike, Fidder, Herma H., Van Der Heijde, Désirée, Wolterbeek, Ron, Hommes, Daniel W., Kaptein, Ad A., and Van Der Meulen-De Jong, Andrea E.

Published
2018

12. Corrigendum : Non-adherence to Anti-TNF Therapy is Associated with Illness Perceptions and Clinical Outcomes in Outpatients with Inflammatory Bowel Disease: Results from a Prospective Multicentre Study

Author

van der Have, Mike, Oldenburg, Bas, Kaptein, Ad A., Jansen, Jeroen M., Scheffer, Robert C.H., van Tuyl, Bas A., van der Meulen-de Jong, Andrea E., Pierik, Marieke, Siersema, Peter D., van Oijen, Martijn G.H., Fidder, Herma H., van der Have, Mike, Oldenburg, Bas, Kaptein, Ad A., Jansen, Jeroen M., Scheffer, Robert C.H., van Tuyl, Bas A., van der Meulen-de Jong, Andrea E., Pierik, Marieke, Siersema, Peter D., van Oijen, Martijn G.H., and Fidder, Herma H.

Published
2018

13. The effect of arthropathies on illness perceptions, coping strategies, outcomes, and their changes over time in patients with inflammatory bowel disease : A 12-month follow-up study

Author

Van Erp, Sanne J.H., Van Der Have, Mike, Fidder, Herma H., Van Der Heijde, Désirée, Wolterbeek, Ron, Hommes, Daniel W., Kaptein, Ad A., Van Der Meulen-De Jong, Andrea E., Van Erp, Sanne J.H., Van Der Have, Mike, Fidder, Herma H., Van Der Heijde, Désirée, Wolterbeek, Ron, Hommes, Daniel W., Kaptein, Ad A., and Van Der Meulen-De Jong, Andrea E.

Published
2018

14. Corrigendum : Non-adherence to Anti-TNF Therapy is Associated with Illness Perceptions and Clinical Outcomes in Outpatients with Inflammatory Bowel Disease: Results from a Prospective Multicentre Study

Author

van der Have, Mike, Oldenburg, Bas, Kaptein, Ad A., Jansen, Jeroen M., Scheffer, Robert C.H., van Tuyl, Bas A., van der Meulen-de Jong, Andrea E., Pierik, Marieke, Siersema, Peter D., van Oijen, Martijn G.H., Fidder, Herma H., van der Have, Mike, Oldenburg, Bas, Kaptein, Ad A., Jansen, Jeroen M., Scheffer, Robert C.H., van Tuyl, Bas A., van der Meulen-de Jong, Andrea E., Pierik, Marieke, Siersema, Peter D., van Oijen, Martijn G.H., and Fidder, Herma H.

Published
2018

15. Corrigendum: Non-adherence to Anti-TNF Therapy is Associated with Illness Perceptions and Clinical Outcomes in Outpatients with Inflammatory Bowel Disease: Results from a Prospective Multicentre Study

Author

Unit Opleiding MDL, Infection & Immunity, MS MDL 1, Cancer, van der Have, Mike, Oldenburg, Bas, Kaptein, Ad A., Jansen, Jeroen M., Scheffer, Robert C.H., van Tuyl, Bas A., van der Meulen-de Jong, Andrea E., Pierik, Marieke, Siersema, Peter D., van Oijen, Martijn G.H., Fidder, Herma H., Unit Opleiding MDL, Infection & Immunity, MS MDL 1, Cancer, van der Have, Mike, Oldenburg, Bas, Kaptein, Ad A., Jansen, Jeroen M., Scheffer, Robert C.H., van Tuyl, Bas A., van der Meulen-de Jong, Andrea E., Pierik, Marieke, Siersema, Peter D., van Oijen, Martijn G.H., and Fidder, Herma H.

Published
2018

16. The effect of arthropathies on illness perceptions, coping strategies, outcomes, and their changes over time in patients with inflammatory bowel disease: A 12-month follow-up study

Author

TN groep Pasterkamp, Infection & Immunity, Unit Opleiding Aios, MS MDL 1, Cancer, Van Erp, Sanne J.H., Van Der Have, Mike, Fidder, Herma H., Van Der Heijde, Désirée, Wolterbeek, Ron, Hommes, Daniel W., Kaptein, Ad A., Van Der Meulen-De Jong, Andrea E., TN groep Pasterkamp, Infection & Immunity, Unit Opleiding Aios, MS MDL 1, Cancer, Van Erp, Sanne J.H., Van Der Have, Mike, Fidder, Herma H., Van Der Heijde, Désirée, Wolterbeek, Ron, Hommes, Daniel W., Kaptein, Ad A., and Van Der Meulen-De Jong, Andrea E.

Published
2018

17. Illness perceptions and outcomes in patients with inflammatory bowel disease: Is coping a mediator?

Author

Clinical Psychology (onderzoeksprogramma), Leerstoel Bockting, van Erp, Sanne J. H., Brakenhoff, Lianne K. P. M., Vollmann, M., van der Heijde, Désirée M., Veenendaal, R.A., Fidder, Herma H., Hommes, D.W., Kaptein, Ad A., van der Meulen-de Jong, Andrea E., Scharloo, Margreet, Clinical Psychology (onderzoeksprogramma), Leerstoel Bockting, van Erp, Sanne J. H., Brakenhoff, Lianne K. P. M., Vollmann, M., van der Heijde, Désirée M., Veenendaal, R.A., Fidder, Herma H., Hommes, D.W., Kaptein, Ad A., van der Meulen-de Jong, Andrea E., and Scharloo, Margreet

Published
2017

18. Illness perceptions and outcomes in patients with inflammatory bowel disease: Is coping a mediator?

Author

Clinical Psychology (onderzoeksprogramma), Leerstoel Bockting, van Erp, Sanne J. H., Brakenhoff, Lianne K. P. M., Vollmann, M., van der Heijde, Désirée M., Veenendaal, R.A., Fidder, Herma H., Hommes, D.W., Kaptein, Ad A., van der Meulen-de Jong, Andrea E., Scharloo, Margreet, Clinical Psychology (onderzoeksprogramma), Leerstoel Bockting, van Erp, Sanne J. H., Brakenhoff, Lianne K. P. M., Vollmann, M., van der Heijde, Désirée M., Veenendaal, R.A., Fidder, Herma H., Hommes, D.W., Kaptein, Ad A., van der Meulen-de Jong, Andrea E., and Scharloo, Margreet

Published
2017

19. Illness perceptions and outcomes in patients with inflammatory bowel disease: Is coping a mediator?

Author

Clinical Psychology (onderzoeksprogramma), Leerstoel Bockting, van Erp, Sanne J. H., Brakenhoff, Lianne K. P. M., Vollmann, M., van der Heijde, Désirée M., Veenendaal, R.A., Fidder, Herma H., Hommes, D.W., Kaptein, Ad A., van der Meulen-de Jong, Andrea E., Scharloo, Margreet, Clinical Psychology (onderzoeksprogramma), Leerstoel Bockting, van Erp, Sanne J. H., Brakenhoff, Lianne K. P. M., Vollmann, M., van der Heijde, Désirée M., Veenendaal, R.A., Fidder, Herma H., Hommes, D.W., Kaptein, Ad A., van der Meulen-de Jong, Andrea E., and Scharloo, Margreet

Published
2017

20. COPD depicted – patients drawing their lungs

Author

Kaptein,Ad A, Tiemensma,Jitske, Broadbent,Elizabeth, Asijee,Guus M, Voorhaar,Maarten, Kaptein,Ad A, Tiemensma,Jitske, Broadbent,Elizabeth, Asijee,Guus M, and Voorhaar,Maarten

Abstract

Ad A Kaptein,1 Jitske Tiemensma,2 Elizabeth Broadbent,3 Guus M Asijee,4,5 Maarten Voorhaar4,5 1Medical Psychology, Leiden University Medical Centre (LUMC), Leiden, the Netherlands; 2Psychological Sciences, University of California, Merced, CA, USA; 3Psychology Department, Auckland University Medical School, Auckland, New Zealand; 4CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands; 5Boehringer Ingelheim Pharma GmbH & Co. KG, Ingelheim am Rhein, Germany Background: Given the increasing importance of patient-reported outcomes (PRO) in quality medical care, we examined the value and feasibility of an innovative method for assessing patients’ illness perceptions, represented in drawings made by patients with COPD of their lungs. Aim: The aim of our study was: to study patients’ representation of COPD as reflected in their drawings of their lungs; and to examine scores on a validated measure that assesses illness perceptions (ie, Brief Illness Perception Questionnaire [B-IPQ]). Patients and methods: One hundred outpatients with COPD, mean age 70 years, selected from a pharmacy database, participated and 98 filled out the B-IPQ. Eighty-seven patients completed the drawing task. Results: The illness perceptions as reflected in the responses to the B-IPQ scales represented a quite optimistic view of COPD and its consequences. The drawings of the lungs reflected a considerable discordance between patients’ representations and medically accepted representations of lungs of a person with COPD. Conclusion: Assessing illness perceptions in clinical care and research about COPD offers opportunities to identify goals for patient education and self-management. Inviting patients to draw their illness is an innovative and promising approach to assessing PRO. Keywords: COPD, drawings, illness perceptions, PRO, quality of life, self-management

Published
2017

22. Non-adherence to anti-TNF therapy is associated with illness perceptions and clinical outcomes in outpatients with inflammatory bowel disease : results from a prospective multicentre study

Author

Have, Mike van der, Oldenburg, Bas, Kaptein, Ad A, Jansen, Jeroen M, Scheffer, Robert C H, van Tuyl, Bas A, van der Meulen-de Jong, Andrea E, Pierik, Marieke, Siersema, Peter D, van Oijen, Martijn G H, Fidder, Herma H, Have, Mike van der, Oldenburg, Bas, Kaptein, Ad A, Jansen, Jeroen M, Scheffer, Robert C H, van Tuyl, Bas A, van der Meulen-de Jong, Andrea E, Pierik, Marieke, Siersema, Peter D, van Oijen, Martijn G H, and Fidder, Herma H

Published
2016

24. Non-adherence to anti-TNF therapy is associated with illness perceptions and clinical outcomes in outpatients with inflammatory bowel disease : results from a prospective multicentre study

Author

Have, Mike van der, Oldenburg, Bas, Kaptein, Ad A, Jansen, Jeroen M, Scheffer, Robert C H, van Tuyl, Bas A, van der Meulen-de Jong, Andrea E, Pierik, Marieke, Siersema, Peter D, van Oijen, Martijn G H, Fidder, Herma H, Have, Mike van der, Oldenburg, Bas, Kaptein, Ad A, Jansen, Jeroen M, Scheffer, Robert C H, van Tuyl, Bas A, van der Meulen-de Jong, Andrea E, Pierik, Marieke, Siersema, Peter D, van Oijen, Martijn G H, and Fidder, Herma H

Published
2016

25. Non-adherence to anti-TNF therapy is associated with illness perceptions and clinical outcomes in outpatients with inflammatory bowel disease : results from a prospective multicentre study

Author

Have, Mike van der, Oldenburg, Bas, Kaptein, Ad A, Jansen, Jeroen M, Scheffer, Robert C H, van Tuyl, Bas A, van der Meulen-de Jong, Andrea E, Pierik, Marieke, Siersema, Peter D, van Oijen, Martijn G H, Fidder, Herma H, Have, Mike van der, Oldenburg, Bas, Kaptein, Ad A, Jansen, Jeroen M, Scheffer, Robert C H, van Tuyl, Bas A, van der Meulen-de Jong, Andrea E, Pierik, Marieke, Siersema, Peter D, van Oijen, Martijn G H, and Fidder, Herma H

Published
2016

27. Non-adherence to anti-TNF therapy is associated with illness perceptions and clinical outcomes in outpatients with inflammatory bowel disease: results from a prospective multicentre study

Author

Unit Opleiding Aios, Infection & Immunity, MS MDL 1, Externen Med. Onco, Cancer, Have, Mike van der, Oldenburg, Bas, Kaptein, Ad A, Jansen, Jeroen M, Scheffer, Robert C H, van Tuyl, Bas A, van der Meulen-de Jong, Andrea E, Pierik, Marieke, Siersema, Peter D, van Oijen, Martijn G H, Fidder, Herma H, Unit Opleiding Aios, Infection & Immunity, MS MDL 1, Externen Med. Onco, Cancer, Have, Mike van der, Oldenburg, Bas, Kaptein, Ad A, Jansen, Jeroen M, Scheffer, Robert C H, van Tuyl, Bas A, van der Meulen-de Jong, Andrea E, Pierik, Marieke, Siersema, Peter D, van Oijen, Martijn G H, and Fidder, Herma H

Published
2016

28. Uitdagingen rond de therapietrouw van adolescenten

Author

Longziekten patientenzorg, Child Health, Brand, Paul L P, Kaptein, Ad A., Janssens, Luc P F, Klok, Ted, Longziekten patientenzorg, Child Health, Brand, Paul L P, Kaptein, Ad A., Janssens, Luc P F, and Klok, Ted

Published
2016

29. Self-reported disability in patients with inflammatory bowel disease largely determined by disease activity and illness perceptions

Author

van der Have, Mike, Fidder, Herma H, Leenders, Max, Kaptein, Ad A, van der Valk, Mirthe E, van Bodegraven, Ad A, Dijkstra, Gerard, de Jong, Dirk J, Pierik, Marieke, Ponsioen, Cyriel Y, van der Meulen-de Jong, Andrea E, van der Woude, C Janneke, van de Meeberg, Paul C, Romberg-Camps, Mariëlle J L, Clemens, Cees H M, Jansen, Jeroen M, Mahmmod, Nofel, Bolwerk, Clemens J M, Vermeijden, J Reinoud, Siersema, Peter D, Oldenburg, Bas, COIN study group, van der Have, Mike, Fidder, Herma H, Leenders, Max, Kaptein, Ad A, van der Valk, Mirthe E, van Bodegraven, Ad A, Dijkstra, Gerard, de Jong, Dirk J, Pierik, Marieke, Ponsioen, Cyriel Y, van der Meulen-de Jong, Andrea E, van der Woude, C Janneke, van de Meeberg, Paul C, Romberg-Camps, Mariëlle J L, Clemens, Cees H M, Jansen, Jeroen M, Mahmmod, Nofel, Bolwerk, Clemens J M, Vermeijden, J Reinoud, Siersema, Peter D, Oldenburg, Bas, and COIN study group

Published
2015

30. Self-reported disability in patients with inflammatory bowel disease largely determined by disease activity and illness perceptions

Author

van der Have, Mike, Fidder, Herma H, Leenders, Max, Kaptein, Ad A, van der Valk, Mirthe E, van Bodegraven, Ad A, Dijkstra, Gerard, de Jong, Dirk J, Pierik, Marieke, Ponsioen, Cyriel Y, van der Meulen-de Jong, Andrea E, van der Woude, C Janneke, van de Meeberg, Paul C, Romberg-Camps, Mariëlle J L, Clemens, Cees H M, Jansen, Jeroen M, Mahmmod, Nofel, Bolwerk, Clemens J M, Vermeijden, J Reinoud, Siersema, Peter D, Oldenburg, Bas, COIN study group, van der Have, Mike, Fidder, Herma H, Leenders, Max, Kaptein, Ad A, van der Valk, Mirthe E, van Bodegraven, Ad A, Dijkstra, Gerard, de Jong, Dirk J, Pierik, Marieke, Ponsioen, Cyriel Y, van der Meulen-de Jong, Andrea E, van der Woude, C Janneke, van de Meeberg, Paul C, Romberg-Camps, Mariëlle J L, Clemens, Cees H M, Jansen, Jeroen M, Mahmmod, Nofel, Bolwerk, Clemens J M, Vermeijden, J Reinoud, Siersema, Peter D, Oldenburg, Bas, and COIN study group

Published
2015

31. Back/joint pain, illness perceptions and coping are important predictors of quality of life and work productivity in patients with inflammatory bowel disease : a 12-month longitudinal study

Author

van der Have, Mike, Brakenhoff, Lianne K P M, van Erp, Sanne J H, Kaptein, Ad A, Leenders, Max, Scharloo, Margreet, Veenendaal, Roeland A, van der Heijde, Désirée M F M, van der Meulen-de Jong, Andrea E, Hommes, Daan W, Fidder, Herma H, van der Have, Mike, Brakenhoff, Lianne K P M, van Erp, Sanne J H, Kaptein, Ad A, Leenders, Max, Scharloo, Margreet, Veenendaal, Roeland A, van der Heijde, Désirée M F M, van der Meulen-de Jong, Andrea E, Hommes, Daan W, and Fidder, Herma H

Published
2015

32. Back/joint pain, illness perceptions and coping are important predictors of quality of life and work productivity in patients with inflammatory bowel disease : a 12-month longitudinal study

Author

van der Have, Mike, Brakenhoff, Lianne K P M, van Erp, Sanne J H, Kaptein, Ad A, Leenders, Max, Scharloo, Margreet, Veenendaal, Roeland A, van der Heijde, Désirée M F M, van der Meulen-de Jong, Andrea E, Hommes, Daan W, Fidder, Herma H, van der Have, Mike, Brakenhoff, Lianne K P M, van Erp, Sanne J H, Kaptein, Ad A, Leenders, Max, Scharloo, Margreet, Veenendaal, Roeland A, van der Heijde, Désirée M F M, van der Meulen-de Jong, Andrea E, Hommes, Daan W, and Fidder, Herma H

Published
2015

33. Self-reported disability in patients with inflammatory bowel disease largely determined by disease activity and illness perceptions

Author

van der Have, Mike, Fidder, Herma H, Leenders, Max, Kaptein, Ad A, van der Valk, Mirthe E, van Bodegraven, Ad A, Dijkstra, Gerard, de Jong, Dirk J, Pierik, Marieke, Ponsioen, Cyriel Y, van der Meulen-de Jong, Andrea E, van der Woude, C Janneke, van de Meeberg, Paul C, Romberg-Camps, Mariëlle J L, Clemens, Cees H M, Jansen, Jeroen M, Mahmmod, Nofel, Bolwerk, Clemens J M, Vermeijden, J Reinoud, Siersema, Peter D, Oldenburg, Bas, COIN study group, van der Have, Mike, Fidder, Herma H, Leenders, Max, Kaptein, Ad A, van der Valk, Mirthe E, van Bodegraven, Ad A, Dijkstra, Gerard, de Jong, Dirk J, Pierik, Marieke, Ponsioen, Cyriel Y, van der Meulen-de Jong, Andrea E, van der Woude, C Janneke, van de Meeberg, Paul C, Romberg-Camps, Mariëlle J L, Clemens, Cees H M, Jansen, Jeroen M, Mahmmod, Nofel, Bolwerk, Clemens J M, Vermeijden, J Reinoud, Siersema, Peter D, Oldenburg, Bas, and COIN study group

Published
2015

34. Back/joint pain, illness perceptions and coping are important predictors of quality of life and work productivity in patients with inflammatory bowel disease: a 12-month longitudinal study

Author

MS MDL 1, Cancer, Infection & Immunity, Unit Opleiding Aios, van der Have, Mike, Brakenhoff, Lianne K P M, van Erp, Sanne J H, Kaptein, Ad A, Leenders, Max, Scharloo, Margreet, Veenendaal, Roeland A, van der Heijde, Désirée M F M, van der Meulen-de Jong, Andrea E, Hommes, Daan W, Fidder, Herma H, MS MDL 1, Cancer, Infection & Immunity, Unit Opleiding Aios, van der Have, Mike, Brakenhoff, Lianne K P M, van Erp, Sanne J H, Kaptein, Ad A, Leenders, Max, Scharloo, Margreet, Veenendaal, Roeland A, van der Heijde, Désirée M F M, van der Meulen-de Jong, Andrea E, Hommes, Daan W, and Fidder, Herma H

Published
2015

35. Self-reported disability in patients with inflammatory bowel disease largely determined by disease activity and illness perceptions

Author

Unit Opleiding Aios, Infection & Immunity, MS MDL 1, Cancer, MS MDL Oncologie, van der Have, Mike, Fidder, Herma H, Leenders, Max, Kaptein, Ad A, van der Valk, Mirthe E, van Bodegraven, Ad A, Dijkstra, Gerard, de Jong, Dirk J, Pierik, Marieke, Ponsioen, Cyriel Y, van der Meulen-de Jong, Andrea E, van der Woude, C Janneke, van de Meeberg, Paul C, Romberg-Camps, Mariëlle J L, Clemens, Cees H M, Jansen, Jeroen M, Mahmmod, Nofel, Bolwerk, Clemens J M, Vermeijden, J Reinoud, Siersema, Peter D, Oldenburg, Bas, COIN Study Group, Unit Opleiding Aios, Infection & Immunity, MS MDL 1, Cancer, MS MDL Oncologie, van der Have, Mike, Fidder, Herma H, Leenders, Max, Kaptein, Ad A, van der Valk, Mirthe E, van Bodegraven, Ad A, Dijkstra, Gerard, de Jong, Dirk J, Pierik, Marieke, Ponsioen, Cyriel Y, van der Meulen-de Jong, Andrea E, van der Woude, C Janneke, van de Meeberg, Paul C, Romberg-Camps, Mariëlle J L, Clemens, Cees H M, Jansen, Jeroen M, Mahmmod, Nofel, Bolwerk, Clemens J M, Vermeijden, J Reinoud, Siersema, Peter D, Oldenburg, Bas, and COIN Study Group

Published
2015

36. Self-management in patients with COPD: theoretical context, content, outcomes, and integration into clinical care

Author

Kaptein,Ad A, Fischer,Maarten J, Scharloo,Margreet, Kaptein,Ad A, Fischer,Maarten J, and Scharloo,Margreet

Abstract

Ad A Kaptein, Maarten J Fischer, Margreet Scharloo Medical Psychology Section, Leiden University Medical Centre (LUMC), Leiden, the Netherlands Abstract: In this narrative review, we put self-management in the context of a 50-year history of research about how patients with COPD respond to their illness. We review a definition of self-management, and emphasize that self-management should be combined with disease management and the chronic care model in order to be effective. Reviewing the empirical status of self-management in COPD, we conclude that self-management is part and parcel of modern, patient-oriented biopsychosocial care. In pulmonary rehabilitation programs, self-management is instrumental in improving patients’ functional status and quality of life. We conclude by emphasizing how studying the way persons with COPD make sense of their illness helps in refining self-management, and thereby patient-reported outcomes in COPD. Keywords: chronic obstructive pulmonary disease, self-management, psychology, quality of life, biopsychosocial model, medical humanities

Published
2014

37. Transjecting growth hormone: continuous nightmare or controlled nuisance? Evaluation of a new needle-free device

Author

Kaptein,Ad A and Kaptein,Ad A

Abstract

Ad A Kaptein Medical Psychology Section, Leiden University Medical Centre, Leiden, Netherlands Background: Administering growth-hormone therapy (GHT) is a long-term treatment, associated with avoidance and phobic behaviors in the children involved. The current study examined GHT users’ perceptions of a new needle-free device (ZomaJet Vision X [10 mg/mL]) with a lower injection volume compared to the traditional device. Methods: A total of 73 persons participated (mean age ± standard deviation, 10.10 ± 3.60 years) in a longitudinal design. Users’ views were studied 4 weeks after having applied both the old and the new device for a period of at least 4 weeks. Satisfaction, ease and frequency of restitution, local sensations, bruises during administering GHT, affective response to local sensations, and subject preference were assessed on the basis of the users’ responses. Results: Subjects’ satisfaction with the new device was equal compared with the previous device for the total group of 73 children. However, the subgroup of 59 children who proved tolerant to meta-cresol (new preservative for Vision X only) reported a significantly higher satisfaction rating with the new device compared to the old device (7.7 vs 6.6, P=0.0002). Vision X was evaluated as better on ease and frequency of restitution and the number of bruises. Pain sensations did not differ meaningfully between the two devices. The new device was favored over the previous one in a majority of respondents. Vision X allows easy reconstitution of the solution, which was reflected in the percentage of young children able to prepare transjections themselves being more than doubled, illustrating the greater sense of empowerment in these users. Self-reported adherence to the therapy was good (less than 10% of injections missed) with both devices. Conclusion: The new device ZomaJet Vision X appears to be evaluated more positively than the previous vers

Published
2013

38. Using patients’ experiences with enema design to improve quality of life in patients with IBD

Author

van Dongen,Nadine, Kaptein,Ad A, van Dongen,Nadine, and Kaptein,Ad A

Abstract

Nadine van Dongen,1 Ad A Kaptein21Patient Intelligence Panel, London, United Kingdom; 2Medical Psychology, Leiden University Medical Centre, Leiden, The NetherlandsPurpose: To gain insight from people in The Netherlands with inflammatory bowel disease (IBD) on their experiences with enema use, and their views on the use of enemas and mode of enema delivery.Methods: A total of 112 patients from The Netherlands with physician-diagnosed Crohn's disease, ulcerative colitis, or other intestinal problems completed an online questionnaire of 24 questions. These included: sociodemographic and clinical characteristics, enema use, adherence, perceived advantages/disadvantages of enema use, ideal enema design, and patient views on medication, and on drugs and medical care in general. All respondents had personal experience with enema use and were members of the Patient Intelligence Panel. The Medication Adherence Report Scale and Beliefs about Medicines Questionnaire were also used to assess patient responses.Results: Respondents reported overall satisfaction with their last enema use (4.3 on a scale of one to seven), with the main reasons for dissatisfaction being difficulty of administration and pain. Perception of enema convenience was rated 3.3 on average; one-fifth of respondents gave the lowest rating of “very problematic.” Three distinct improvements for enema design were suggested. Respondents were generally neutral or positive in their beliefs on enema medication, but were more neutral to negative in their views of drugs and prescribing in general.Conclusion: Real-life data on the views of patients with inflammatory bowel disease towards enema use are limited. Patients in this study were aware of the importance of adherence with their enema, but mainly did not regard it as convenient or easy to administer, and reported discomfort with enema use. Enema design was deemed by respondents as worth improving, and suggested improvements aimed to i

Published
2013

39. Parents' views on growth hormone treatment for their children: psychosocial issues

Author

van Dongen,Nadine, Kaptein,Ad A, van Dongen,Nadine, and Kaptein,Ad A

Abstract

Nadine van Dongen,1 Ad A Kaptein21Patient Intelligence Panel Health Ltd, London, United Kingdom; 2Section Medical Psychology, Leiden University Medical Centre, Leiden, The NetherlandsBackground: We evaluated the opinions of parents in The Netherlands concerning treatment of their children with growth hormone, and examined beliefs and perceptions about treatment and quality of health care communication and support.Methods: An Internet survey was completed by 69 parents who had children prescribed growth hormone and were part of the Patient Intelligence Panel. Acceptance of the diagnosis and treatment was investigated with reference to four topics, ie, search and quality of information, involvement in decision-making process, operational aspects, and emotional problems and support.Results: Among the parents surveyed, 48% reported a lack of freedom to choose the type of growth hormone device that best suited their needs, 92% believed that their children (and they themselves) would benefit if the children self-administered growth hormone, and 65% believed training to support self-administration would be helpful. According to 79%, the availability of support from another parent with experience of treating their own child with growth hormone, alongside their doctor, would be valuable. Thirty-seven percent of the parents indicated that their children felt anxious about administration of growth hormone, and 83% of parents would appreciate psychological support to overcome their anxiety. An increase in reluctance to receive treatment with growth hormone was observed by 40% of parents after the children reached puberty, and 57% of these parents would appreciate psychological support to overcome this reluctance.Conclusion: Understanding how growth hormone treatments and their implications are perceived by parents is a first step towards addressing quality of growth hormone treatment, which may be instrumental in improving adherence. The data show a need for support and involve

Published
2012

40. Palliative and end of life care.

Author

French, David, Vedhara, Kavita, Kaptein, Ad A., Weinman, John, Hall, Sue, Payne, Sheila, French, David, Vedhara, Kavita, Kaptein, Ad A., Weinman, John, Hall, Sue, and Payne, Sheila

Published
2010

41. Palliative and end of life care.

Author

French, David, Vedhara, Kavita, Kaptein, Ad A., Weinman, John, Hall, Sue, Payne, Sheila, French, David, Vedhara, Kavita, Kaptein, Ad A., Weinman, John, Hall, Sue, and Payne, Sheila

Published
2010

42. Socio-cultural aspects of health and illness.

Author

French, David, Kaptein, Ad A., Vedhara, Kavita, Weinman, John, Uskul, Ayse K., French, David, Kaptein, Ad A., Vedhara, Kavita, Weinman, John, and Uskul, Ayse K.

Published
2010

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