Search

The EURO-NMD Registry collects data from all neuromuscular patients seen at EURO-NMD's expert centres. In-kind contributions from three patient organisations have ensured that the registry is patient-centred, meaningful, and impactful. The consenting process covers other uses, such as research, cohort finding and trial readiness.

Background: The EURO-NMD Registry collects data from all neuromuscular patients seen at EURO-NMD's expert centres. In-kind contributions from three patient organisations have ensured that the registry is patient-centred, meaningful, and impactful. The consenting process covers other uses, such as research, cohort finding and trial readiness. Results: The registry has three-layered datasets, with European Commission-mandated data elements (EU-CDEs), a set of cross-neuromuscular data elements (NMD-CDEs) and a dataset of disease-specific data elements that function modularly (DS-DEs). The registry captures clinical, neuromuscular imaging, neuromuscular histopathology, biological and genetic data and patient-reported outcomes in a computer-interpretable format using selected ontologies and classifications. The EURO-NMD registry is connected to the EURO-NMD Registry Hub through an interoperability layer. The Hub provides an entry point to other neuromuscular registries that follow the FAIR data stewardship principles and enable GDPR-compliant information exchange. Four national or disease-specific patient registries are interoperable with the EURO-NMD Registry, allowing for federated analysis across these different resources. Conclusions: Collectively, the Registry Hub brings together data that are currently siloed and fragmented to improve healthcare and advance research for neuromuscular diseases.

Ce3+ - doped Y2SiO5 nanophosphors were successfully produced by Sol-Gel process. To study the influence of the temperature on the structure and the luminescence of Y2SiO5:Ce3+, we annealed the xerogels at the temperatures 800, 900, 950, 1000, 1050 and 1250 °C. The X-ray diffraction technique (XRD), field emission scanning electron microscopy (FEG-SEM), Fourier transform infrared spectroscopy (FTIR) and steady photoluminescence were used to characterize the samples. The crystallite size keeps the same value in the temperature range 950-1050 °C. The room temperature steady photoluminescence emission and excitation of Ce3+ in X1-Y2SiO5:Ce3+ nanomaterial with increasing temperature were measured and investigated. At the crystallization temperature of 1250 °C, we have a new structure X2- Y2SiO5:Ce3+ with grain sizes larger than the X1-Y2SiO5:Ce3+ and also intense violet-blue emission.

The amount of audio-visual information has increased dramatically with the advent of High Speed Internet. Furthermore, technological advances in recent years in the field of information technology, have simplified the use of video data in various fields by the general public. This made it possible to store large collections of video documents into computer systems. To enable efficient use of these collections, it is necessary to develop tools to facilitate access to these documents and handling them. In this paper we propose a method for indexing and retrieval of video sequences in a video database of large dimension, based on a weighting technique to calculate the degree of membership of a concept in a video also a structuring of the data of the audio-visual (context / concept / video). Finally, we decided to create a search system, offering in addition to the usual commands, different types of access to the system, depending on the disability of the person. Indeed, the application consists of a search system but offers access to commands through voice or gestures. Our contribution at the experimental level consists with the implementation of prototype. We integrated the techniques proposed in system to evaluate it contributions in terms of effectiveness and precision., Comment: 6 pages, in French. International conference Human-Machine Interaction and Image IHMIM14, May 2014, Hammamet, Tunisia

Videos clips became the most important and prominent multimedia document to illustrate the rituals process of Hajj and Umrah. Therefore, it is necessary to develop a system to facilitate access to information related to the duties, the pillars, the stages and the prayers. In this paper present a new project accomplishing a search engine in a large video database enabling any pilgrims to get the information that he care about as fast, accurate. This project is based on two techniques: (a) the weighting method to determine the degree of affiliation of a video clip to a particular topic (b) organizing data using several layers., Comment: arXiv admin note: text overlap with arXiv:1308.3225

Fresh water is one of the most significant resources for human activities and survival, and irrigation is among the most important uses of water. The sustainibility and performance of irrigation canals can be greatly affected by sediment transport and deposition. In our previous works, we proposed a Lattice Boltzmann model for simulating a free surface flow in an irrigation canal, as an alternative to more traditional models mainly based on shallow water equations. Here we introduce the sedimentation phenomenon into our model by adding a new algorithm, based on the earlier work by B. Chopard, A. Dupuis and A. Masselot [9,11,12,27]. Transport, erosion, deposition and toppling of sediments are taken into account and enable the global sedimentation algorithm to simulate different transport modes such as bed load and suspended load. In the present work, we study both the behaviour of a sediment deposit located at an underflow submerged gate (depending on the gate opening and the flow discharge) and the influence of the presence of such a deposit on the flow. Both numerical and experimental validations have been performed. The experiments were realized on the micro-canal of the LCIS laboratory at Valence, France. The comparisons between simulations and experiments give good qualitative agreement

The amount of audio-visual information has increased dramatically with the advent of High Speed Internet. Furthermore, technological advances in recent years in the field of information technology, have simplified the use of video data in various fields by the general public. This made it possible to store large collections of video documents into computer systems. To enable efficient use of these collections, it is necessary to develop tools to facilitate access to these documents and handling them. In this paper we propose a method for indexing and retrieval of video sequences in a video database of large dimension, based on a weighting technique to calculate the degree of membership of a concept in a video also a structuring of the data of the audio-visual (context / concept / video) and a relevance feedback mechanism., Comment: 4 pages, IGS 2013 Conference; IGS 2013

Fresh water is one of the most significant resources for human activities and survival, and irrigation is among the most important uses of water. The sustainibility and performance of irrigation canals can be greatly affected by sediment transport and deposition. In our previous works, we proposed a Lattice Boltzmann model for simulating a free surface flow in an irrigation canal, as an alternative to more traditional models mainly based on shallow water equations. Here we introduce the sedimentation phenomenon into our model by adding a new algorithm, based on the earlier work by B. Chopard, A. Dupuis and A. Masselot [9,11,12,27]. Transport, erosion, deposition and toppling of sediments are taken into account and enable the global sedimentation algorithm to simulate different transport modes such as bed load and suspended load. In the present work, we study both the behaviour of a sediment deposit located at an underflow submerged gate (depending on the gate opening and the flow discharge) and the influence of the presence of such a deposit on the flow. Both numerical and experimental validations have been performed. The experiments were realized on the micro-canal of the LCIS laboratory at Valence, France. The comparisons between simulations and experiments give good qualitative agreement