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19. Movement Disorders

Author

Quinn, Niall, primary, Bhatia, Kailash, additional, Brown, Peter, additional, Cordivari, Carla, additional, Hariz, Marwan, additional, Lees, Andrew, additional, Limousin, Patricia, additional, Robertson, Mary, additional, Schrag, Anette, additional, and Tabrizi, Sarah, additional

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22. Quality of Life Assessment in Atypical Parkinsonian Disorders.

Author

Tarsy, Daniel, Litvan, Irene, Schrag, Anette, and Selai, Caroline E.

Abstract

Assessing the health-related quality of life (Hr-QoL) of patients with atypical parkinsonism disorders is important yet no validated measures are currently available. The atypical parkinsonian disorders are chronic progressive conditions, which not only shorten life expectancy but affect many aspects of patients' and their carers' lives. No curative treatment for these disorders is available, and management of these patients largely has to concentrate on amelioration of symptoms, such as falls, immobility, autonomic features or dysphagia, activities of daily living and (in)dependence, and patients' social and emotional well-being; in short, the improvement of patients' quality of life. Assessment of patients with atypical parkinsonism has concentrated on objective measures such as mortality and clinical evaluation of impairment and physical functioning, supplemented by laboratory test results. However, a large literature shows that patients' own assessments of their health, their preferences, and their views regarding health often differ significantly from physicians' objective assessments (1). Where possible, treatment decisions should focus on health outcomes of value to the individual patient. [ABSTRACT FROM AUTHOR]

Published
2005
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