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Your search keyword '"Valiullina, Svetlana"' showing total 2 results
Start Over Author "Valiullina, Svetlana" Publication Type Academic Journals
2 results on '"Valiullina, Svetlana"'

1. Research Priorities of the Pediatric Spinal Cord Injury Population: An International Insight for Rehabilitation Care

Author

Arango Lasprilla, Juan Carlos, Augutis, Marika, Graham, Allison, Kontaxakis, Antonis, López Dolado, Elisa, Onal, Bashak, Ríos León, Marta, Scheel-Sailer, Anke, Taylor, Julian, Valiullina, Svetlana, Rapidi, Christina Anastasia, Pyrgeli, Maria, Dalivigka, Zoi, Armakola, Filomeni, Civicos Sánchez, Nora, Köhler, Jutta, Vogel, Lawrence C., Zebracki, Kathy, Stavrianou, Aggeliki, Kelly, Erin, Ertzgaard, Per, Eriks Hoogland, Inge, Mecci, Munawar, Salvati, Jessica, Viala, Carey, Aung, Wunna, Alekseeva, Angelina, Gaymanova, Maya, Novoselova, Irina, Popova, Olga, Wright, Karina, Osman, Aheed E., Chowdhury, Joy Roy, Kumar, Naveen, Fosbrook, Emma, Edwards, Jayne, Hakova, Renata, Kriz, Jiri, Thumbikat, Pradeep, Yin, Han, Hariharan, Ram, Mathew, Kidangalil, Gall, Angela, Wallace, Natasha, Wahman, Kerstin, Bendt, Martina, Hart, Kirsten, Jones, Kevin, Mokri, Vida, Whicher, Emily, van Middendorp, Joost, Mattacola, Emily, Corroto, Ana María Escobar, Ceruelo-Abajo, Silvia, Figueres, Ana Onate, Ríos-León, Marta, Arango-Lasprilla, Juan Carlos, Kelly, Erin Hayes, and López-Dolado, Elisa

Published
2024
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2. Research Priorities of the Pediatric Spinal Cord Injury Population: An International Insight for Rehabilitation Care.

Author

Ríos-León, Marta, Onal, Bashak, Arango-Lasprilla, Juan Carlos, Augutis, Marika, Graham, Allison, Kelly, Erin Hayes, Kontaxakis, Antonis, López-Dolado, Elisa, Scheel-Sailer, Anke, Valiullina, Svetlana, and Taylor, Julian

Subjects
*SPINAL cord injuries, *PHYSICAL mobility, *FOOT movements, *CAREGIVERS, *MEDICAL care
Abstract

Although feedback from people with adult-onset spinal cord injury (SCI) has been considered for new rehabilitation programs, little is known about the priorities of the pediatric-onset SCI population. This study describes and compares health and life (H&L) domain research priorities of youth with pediatric-onset SCI and their parents/caregivers. A cross-sectional survey, designed by the Pan-European Paediatric Spinal Cord Injury (PEPSCI) Collaboration, was performed at six European countries. Dyad data from 202 participants, youth with pediatric-onset SCI (n = 101) and their parents/caregivers (n = 101), were analyzed with the PEPSCI H&L domain surveys. The cohort was composed of 8 to 12-year-olds (30.7%), 13 to 17-year-olds (38.6%), and 18 to 25-year-olds (30.7%). The top three H&L domain research priorities reported by parents/caregivers of 8 to 12-year-olds were "walking/ability to move" (91%), "bladder" function (90%), and "general health/feel" (89%), compared with "physical function" (93%), "general health/feel" (90%), and "walking/ability to move" (89%) rated by parents/caregivers of 13 to 25-year-olds. "Bowel" function (85%), "leg/foot movement" (84%), and "bladder" function (84%) were reported as priorities by 13 to 25-year-olds, whereas "physical function" (84%), "experience at school" (83%), and "general mood" were highlighted by 8 to 12-year-olds. The top 10 priorities preferred by 13 to 25-year-olds when compared with the top 10 priorities reported by their parents/caregivers, included problems related to "bowel" and "pain." Health domain research priorities were highlighted by 13 to 25-year-olds, compared with their parents/caregivers who equally identified H&L domains. This survey will aid health care and clinical research organizations to engage stakeholders to implement a comprehensive research strategy for the pediatric SCI population. [ABSTRACT FROM AUTHOR]

Published
2024
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