Search

Your search keyword '"Miller, Fiona A."' showing total 482 results
Start Over Author "Miller, Fiona A." Publication Type Academic Journals
482 results on '"Miller, Fiona A."'

4. Antibias Efforts in United States Maternity Care: A Scoping Review of the Publicly Funded Health Equity Intervention Pipeline

Author

Garrett, Sarah B, Walia, Anjali, Miller, Fiona, Tahir, Peggy, Jones, Linda, Harris, Julie, Powell, Breezy, Chambers, Brittany, and Simon, Melissa A

Subjects
Reproductive Medicine, Biomedical and Clinical Sciences, Health Services, Clinical Research, Health and social care services research, 8.1 Organisation and delivery of services, Generic health relevance, Good Health and Well Being, United States, Female, Pregnancy, Humans, Maternal Health Services, Health Equity, Maternal Health, bias, racism, birth equity, interventions, community-based participatory research, scoping review, Paediatrics and Reproductive Medicine, Obstetrics & Reproductive Medicine, Reproductive medicine
Abstract

Antibias training is increasingly identified as a strategy to reduce maternal health disparities. Evidence to guide this work is limited. We conducted a community-guided scoping review to characterize new antibias research. Four of 508 projects met our criteria: US-based, publicly funded, initiated from January 1, 2018 to June 30, 2022, and featuring an intervention to reduce bias or racism in maternal health care providers. Training was embedded in multicomponent interventions in 3 projects, limiting its evaluation as a stand-alone intervention. Major public funders have sponsored few projects to advance antibias training research in maternal health. More support is needed to develop a rigorous and scalable evidence base.

Published
2023

5. Provision of Interventional Radiology Services 2023

Author

Morgan, Robert, Haslam, Philip, McCafferty, Ian, Bryant, Timothy, Clarke, Christopher, McPherson, Simon, Wells, David, Gupta, Yuri, See, Teik Choon, Lakshminarayan, Raghu, Miller, Fiona, Scott, Paul, Almazedi, Bahir, Bardgett, Harry, Barnacle, Alex, Shaida, Nadeem, Manoharan, Dinesh, Lewis, Mark, Taylor, Jeremy, Bhat, Rajesh, Shaygi, Behnam, and Ratnam, Lakshmi

Published
2024
Full Text
View/download PDF

12. 'Intervening Early': Agendas and Rationalisations for Children's Developmental Health

Author

Cressman, Celine, Miller, Fiona A., Guttmann, Astrid, Cairney, John, and Hayeems, Robin

Abstract

Background: Despite broad scientific consensus about the importance of the early years in the lifelong health and wellbeing of children, there is debate about whether and how healthcare professionals can optimise early child development through monitoring or screening. The evidence in support of a systematic population-level intervention is disputed, which is reflected in the diversity of approaches to developmental screening internationally. Methods: Using a case-study design, and interpretive qualitative methods, we explored how Canadian experts in child health (n=39): a) rationalise why they do, or would, pursue population-level developmental screening; b) articulate the policy goals of such an intervention, and; c) justify the practice with reference to evidence. Findings: Respondents identified three distinct framings, or policy agendas, for what developmental screening can and should seek to achieve, specifically: 1) as medical intervention, facilitating the early identification of health risk or disorder; 2) as social intervention, providing an opportunity for communication and connection with parents for all children; and 3) as political intervention, staking a claim for early child health on the broader political agenda. Discussion and conclusions: Each agenda is justified by distinct types of evidence, posing a challenge to simplistic models of evidence-based policymaking, and demonstrating that evidence is not just an input, but a contested part of a dynamic and political policymaking process.

Published
2020
Full Text
View/download PDF

13. Environmental Competencies for Healthcare Educators and Trainees: A Scoping Review

Author

Parker, Gillian, Berta, Whitney, Shea, Christine, and Miller, Fiona

Abstract

Background: The health-care community has a responsibility to address the environmental impact of delivering health-care services. Educational programmes present ideal fora to confer 'environmental competencies' to future health system leaders, managers, practitioners and researchers. The aim of this review is to synthesise the literature on health-care competencies, education and training of relevance to issues of environmental sustainability and climate change in the health sector. Methods: We conducted a systematic review of English language articles on environmental competencies in healthcare in the MEDLINE, Cumulative Index to Nursing and Allied Health Literature (CINAHL) and ProQuest databases published from inception to April 2019. Thematic analysis and descriptive statistics were used to synthesise the findings and develop a typology of environmental competencies. Results: Of the 902 unique citations, we identified 23 articles that met our inclusion criteria. Environmental competencies that align with general management skills were most frequent (40%), followed by research skills (37%). Three competencies specific to the environment (22%) were identified: resource stewardship (n = 16), systems thinking (n = 14) and social and environmental justice (n = 7). The majority of work was identified in nursing, medicine and public health. Competencies were most commonly embedded in existing curricula or offered as new courses or workshops. Conclusion: Incorporating environmental competencies into education programmes will serve to raise awareness of, and advance the significance of, the health sector's impact on climate change and environmental sustainability. Our findings that environmental competencies align with previously validated health-care competencies support the perspective that these competencies represent essential knowledge and skills for the health-care workforce.

Published
2020
Full Text
View/download PDF

14. SPARK: A US Cohort of 50,000 Families to Accelerate Autism Research

Author

Consortium, The SPARK, Feliciano, Pamela, Daniels, Amy M, Snyder, LeeAnne Green, Beaumont, Amy, Camba, Alexies, Esler, Amy, Gulsrud, Amanda G, Mason, Andrew, Gutierrez, Anibal, Nicholson, Amy, Paolicelli, Anna Marie, McKenzie, Alexander P, Rachubinski, Angela L, Stephens, Alexandra N, Simon, Andrea R, Stedman, Amy, Shocklee, Amanda D, Swanson, Amy, Finucane, Brenda, Hilscher, Brittani A, Hauf, Brenda, O’Roak, Brian J, McKenna, Brooke, Robertson, Beverly E, Rodriguez, Barbara, Vernoia, Brianna M, Van Metre, Bonnie, Bradley, Catherine, Cohen, Cheryl, Erickson, Craig A, Harkins, Christina, Hayes, Caitlin, Lord, Catherine, Martin, Christa Lese, Ortiz, Crissy, Ochoa-Lubinoff, Cesar, Peura, Christine, Rice, Catherine E, Rosenberg, Cordelia R, Smith, Christopher J, Thomas, Carrie, Taylor, Cora M, White, Loran Casey, Walston, Corrie H, Amaral, David G, Coury, Daniel Lee, Sarver, Dustin E, Istephanous, Dalia, Li, Deana, Nugyen, Dzung Cong, Fox, Emily A, Butter, Eric M, Berry-Kravis, Elizabeth, Courchesne, Eric, Fombonne, Eric J, Hofammann, Eugenia, Lamarche, Elena, Wodka, Ericka L, Matthews, Emily T, O’Connor, Eirene, Palen, Emily, Miller, Fiona, Dichter, Gabriel S, Marzano, Gabriela, Stein, Gail, Hutter, Hanna, Kaplan, Hannah E, Li, Hai, Lechniak, Holly, Schneider, Hoa Lam, Zaydens, Hana, Arriaga, Ivette, Gerdts, Jennifer A, Cubells, Joseph F, Cordova, Jeanette M, Gunderson, Jaclyn, Lillard, Joseph, Manoharan, Julie, McCracken, James T, Michaelson, Jacob J, Neely, Jason, Orobio, Jessica, Pandey, Juhi, Piven, Joseph, Scherr, Jessica, Sutcliffe, James S, Tjernagel, Jennifer, Wallace, Jermel, Callahan, Kristen, Dent, Katherine, Schweers, Kathryn A, Hamer, Kira E, Law, J Kiely, Lowe, Kathryn, O’Brien, Kaela, Smith, Kaitlin, Pawlowski, Katherine G, Pierce, Karen L, and Roeder, Katherine

Subjects
Autism, Pediatric, Intellectual and Developmental Disabilities (IDD), Brain Disorders, Mental Health, Mental health, Autism Spectrum Disorder, Biomedical Research, Cohort Studies, Gene-Environment Interaction, Genetic Predisposition to Disease, Humans, Patient Selection, United States, SPARK Consortium. Electronic address: pfeliciano@simonsfoundation.org, SPARK Consortium, Neurosciences, Psychology, Cognitive Sciences, Neurology & Neurosurgery
Abstract

The Simons Foundation Autism Research Initiative (SFARI) has launched SPARKForAutism.org, a dynamic platform that is engaging thousands of individuals with autism spectrum disorder (ASD) and connecting them to researchers. By making all data accessible, SPARK seeks to increase our understanding of ASD and accelerate new supports and treatments for ASD.

Published
2018

25. The Cognitive and Behavioral Phenotype of the 16p11.2 Deletion in a Clinically Ascertained Population

Author

Hanson, Ellen, Bernier, Raphael, Porche, Ken, Jackson, Frank I, Goin-Kochel, Robin P, Snyder, LeeAnne Green, Snow, Anne V, Wallace, Arianne Stevens, Campe, Katherine L, Zhang, Yuan, Chen, Qixuan, D’Angelo, Debra, Moreno-De-Luca, Andres, Orr, Patrick T, Boomer, KB, Evans, David W, Kanne, Stephen, Berry, Leandra, Miller, Fiona K, Olson, Jennifer, Sherr, Elliot, Martin, Christa L, Ledbetter, David H, Spiro, John E, Chung, Wendy K, and Consortium, on behalf of the Simons Variation in Individuals Project

Subjects
Clinical Research, Mental Health, Genetic Testing, Brain Disorders, Autism, Behavioral and Social Science, Pediatric, Genetics, Intellectual and Developmental Disabilities (IDD), Detection, screening and diagnosis, 4.2 Evaluation of markers and technologies, Mental health, Adolescent, Child, Child, Preschool, Chromosome Deletion, Chromosomes, Human, Pair 16, Cognition, Developmental Disabilities, Heterozygote, Humans, Intelligence, Mental Disorders, Phenotype, Young Adult, 16p11.2 Deletion, Autism spectrum disorder, Developmental disability, Psychiatric diagnosis, Simons Variation in Individuals Project Consortium, Biological Sciences, Medical and Health Sciences, Psychology and Cognitive Sciences, Psychiatry
Abstract

BackgroundDeletion of the recurrent ~600 kb BP4-BP5 chromosomal region 16p11.2 has been associated with a wide range of neurodevelopmental outcomes.MethodsTo clarify the phenotype of 16p11.2 deletion, we examined the psychiatric and developmental presentation of predominantly clinically referred individuals, with a particular emphasis on broader autism phenotype characteristics in individuals with recurrent ~600 kb chromosome 16p11.2 deletions. Using an extensive standardized assessment battery across three clinical sites, 85 individuals with the 16p11.2 deletion and 153 familial control subjects were evaluated for symptom presentation and clinical diagnosis.ResultsIndividuals with the 16p11.2 deletion presented with a high frequency of psychiatric and developmental disorders (>90%). The most commonly diagnosed conditions were developmental coordination disorder, phonologic processing disorder, expressive and receptive language disorders (71% of individuals >3 years old with a speech and language-related disorder), and autism spectrum disorder. Individuals with the 16p11.2 deletion not meeting diagnostic criteria for autism spectrum disorder had a significantly higher prevalence of autism-related characteristics compared with the familial noncarrier control group. Individuals with the 16p11.2 deletion had a range of intellectual ability, but IQ scores were 26 points lower than noncarrier family members on average.ConclusionsClinically referred individuals with the 16p11.2 deletion have high rates of psychiatric and developmental disorders and provide a genetically well-defined group to study the emergence of developmental difficulties, particularly associated with the broader autism phenotype.

Published
2015

27. Quantifying the Effects of 16p11.2 Copy Number Variants on Brain Structure: A Multisite Genetic-First Study

Author

Addor, Marie-Claude, Andrieux, Joris, Arveiler, Benoît, Baujat, Geneviève, Sloan-Béna, Frédérique, Belfiore, Marco, Bonneau, Dominique, Bouquillon, Sonia, Boute, Odile, Brusco, Alfredo, Busa, Tiffany, Caberg, Jean-Hubert, Campion, Dominique, Colombert, Vanessa, Cordier, Marie-Pierre, David, Albert, Debray, François-Guillaume, Delrue, Marie-Ange, Doco-Fenzy, Martine, Dunkhase-Heinl, Ulrike, Edery, Patrick, Fagerberg, Christina, Faivre, Laurence, Forzano, Francesca, Genevieve, David, Gérard, Marion, Giachino, Daniela, Guichet, Agnès, Guillin, Olivier, Héron, Delphine, Isidor, Bertrand, Jacquette, Aurélia, Jaillard, Sylvie, Journel, Hubert, Keren, Boris, Lacombe, Didier, Lebon, Sébastien, Le Caignec, Cédric, Lemaître, Marie-Pierre, Lespinasse, James, Mathieu-Dramart, Michèle, Mercier, Sandra, Mignot, Cyril, Missirian, Chantal, Petit, Florence, Pilekær Sørensen, Kristina, Pinson, Lucile, Plessis, Ghislaine, Prieur, Fabienne, Rooryck-Thambo, Caroline, Rossi, Massimiliano, Sanlaville, Damien, Schlott Kristiansen, Britta, Schluth-Bolard, Caroline, Till, Marianne, Van Haelst, Mieke, Van Maldergem, Lionel, Alupay, Hanalore, Aaronson, Benjamin, Ackerman, Sean, Ankenman, Katy, Anwar, Ayesha, Atwell, Constance, Bowe, Alexandra, Beaudet, Arthur L., Benedetti, Marta, Berg, Jessica, Berman, Jeffrey, Berry, Leandra N., Bibb, Audrey L., Blaskey, Lisa, Brennan, Jonathan, Brewton, Christie M., Buckner, Randy, Bukshpun, Polina, Burko, Jordan, Cali, Phil, Cerban, Bettina, Chang, Yishin, Cheong, Maxwell, Chow, Vivian, Chu, Zili, Chudnovskaya, Darina, Cornew, Lauren, Dale, Corby, Dell, John, Dempsey, Allison G., Deschamps, Trent, Earl, Rachel, Edgar, James, Elgin, Jenna, Olson, Jennifer Endre, Evans, Yolanda L., Findlay, Anne, Fischbach, Gerald D., Fisk, Charlie, Fregeau, Brieana, Gaetz, Bill, Gaetz, Leah, Garza, Silvia, Gerdts, Jennifer, Glenn, Orit, Gobuty, Sarah E., Golembski, Rachel, Greenup, Marion, Heiken, Kory, Hines, Katherine, Hinkley, Leighton, Jackson, Frank I., Jenkins, Julian, III, Jeremy, Rita J., Johnson, Kelly, Kanne, Stephen M., Kessler, Sudha, Khan, Sarah Y., Ku, Matthew, Kuschner, Emily, Laakman, Anna L., Lam, Peter, Lasala, Morgan W., Lee, Hana, LaGuerre, Kevin, Levy, Susan, Cavanagh, Alyss Lian, Llorens, Ashlie V., Campe, Katherine Loftus, Luks, Tracy L., Marco, Elysa J., Martin, Stephen, Martin, Alastair J., Marzano, Gabriela, Masson, Christina, McGovern, Kathleen E., McNally Keehn, Rebecca, Miller, David T., Miller, Fiona K., Moss, Timothy J., Murray, Rebecca, Nagarajan, Srikantan S., Nowell, Kerri P., Owen, Julia, Paal, Andrea M., Packer, Alan, Page, Patricia Z., Paul, Brianna M., Peters, Alana, Peterson, Danica, Poduri, Annapurna, Pojman, Nicholas J., Porche, Ken, Proud, Monica B., Qasmieh, Saba, Ramocki, Melissa B., Reilly, Beau, Roberts, Timothy P.L., Shaw, Dennis, Sinha, Tuhin, Smith-Packard, Bethanny, Gallagher, Anne Snow, Swarnakar, Vivek, Thieu, Tony, Triantafallou, Christina, Vaughan, Roger, Wakahiro, Mari, Wallace, Arianne, Ward, Tracey, Wenegrat, Julia, Wolken, Anne, Martin-Brevet, Sandra, Rodríguez-Herreros, Borja, Nielsen, Jared A., Moreau, Clara, Modenato, Claudia, Maillard, Anne M., Pain, Aurélie, Richetin, Sonia, Jønch, Aia E., Qureshi, Abid Y., Zürcher, Nicole R., Conus, Philippe, Chung, Wendy K., Sherr, Elliott H., Spiro, John E., Kherif, Ferath, Beckmann, Jacques S., Hadjikhani, Nouchine, Reymond, Alexandre, Buckner, Randy L., Draganski, Bogdan, and Jacquemont, Sébastien

Published
2018
Full Text
View/download PDF

33. Geographic Contributions to Institutional Curriculum Reform in Australia: The Challenge of Embedding Field-Based Learning

Author

Lloyd, Kate, Howitt, Richard, Bilous, Rebecca, Clark, Lindie, Dowling, Robyn, Fagan, Robert, Fuller, Sara, Hammersley, Laura, Houston, Donna, McGregor, Andrew, McLean, Jessica, Miller, Fiona, Ruming, Kristian, Semple, Anne-Louise, and Suchet-Pearson, Sandie

Abstract

In the context of continuing pressures from managerialist and neoliberal drivers of university reform in Australia, Macquarie University's recent undergraduate curriculum innovation, based on "People," "Planet," and "Participation," has resulted in the embedding and integration of experiential learning in its curriculum and institutional framework. Such an approach challenges academic and administrative staff, students, and partners in industry, the community and public sector settings, to engage and collaborate across significant boundaries. This article outlines the scope and nature of the curriculum reform, then considers the way geographers have both shaped and responded to the opportunities it created. In so doing, it proposes a number of challenges and recommendations for geographers who might seek to extend their longstanding commitment to field-based learning through similar reforms. In this regard, the discipline of geography and its tendency to engage with the "field" can offer much in fostering deeply transformative learning.

Published
2015
Full Text
View/download PDF

35. Do clinical practice guidelines follow sustainable healthcare principles? A review of respiratory guidance.

Author

Khan, Naba, Walpole, Sarah C., Rostkowska, Olga M., Smith, James N., and Miller, Fiona A.

Subjects
MEDICAL care, OBSTRUCTIVE lung diseases, GREENHOUSE gas mitigation, CLIMATE change, MEDICAL personnel
Abstract

Background Respiratory care is an important site for climate action, given that common treatments for conditions such as asthma and COPD produce significant greenhouse gas emissions, even as respiratory health is negatively impacted by climate change. Clinical guidelines provide key information for healthcare professionals and can promote approaches to healthcare that can mitigate negative environmental impacts, and optimise patient treatment, care delivery, and equitable outcomes, and bring awareness and legitimacy to sustainable healthcare practices. Methods Twenty national and international clinical respiratory guidelines were purposively selected and screened for inclusion of four principles of sustainable clinical practice: prevention, patient empowerment and self-care, lean service delivery, and low carbon alternatives. A screening framework specific to respiratory care implications was developed and used to review each guideline for mention of relevant topics, recommendations, and explicit links to sustainability in relation to each principle. Findings Sustainable clinical care principles were evident in most guidelines reviewed, environmental sustainability was mentioned infrequently. Many guidelines emphasised prevention (more secondary than primary) and support for patient preference and streamlining care, yet there was rarely mention of how these recommendations could contribute to lowering the environmental impacts of health systems. Low carbon alternatives were mentioned in only three guidelines. Conclusions While many clinical respiratory guidelines make recommendations in accordance with the principles of prevention, patient empowerment and self-care, and lean service delivery, reducing the carbon footprint of healthcare was rarely mentioned in the guidelines. Including explicit attention to the environmental impact of clinical care in guidance could support efforts to reduce the wider harms of healthcare, meanwhile, noting the clinical benefits of sustainable approaches could promote the uptake of recommendations. [ABSTRACT FROM AUTHOR]

Published
2023
Full Text
View/download PDF

44. Autism Spectrum Disorder, Developmental and Psychiatric Features in 16p11.2 Duplication

Author

Green Snyder, LeeAnne, D’Angelo, Debra, Chen, Qixuan, Bernier, Raphael, Goin-Kochel, Robin P., Wallace, Arianne Stevens, Gerdts, Jennifer, Kanne, Stephen, Berry, Leandra, Blaskey, Lisa, Kuschner, Emily, Roberts, Timothy, Sherr, Elliot, Martin, Christa L., Ledbetter, David H., Spiro, John E., Chung, Wendy K., Hanson, Ellen, Alupay, Hanalore, Aaronson, Benjamin, Ackerman, Sean, Ankenman, Katy, Anwar, Ayesha, Atwell, Constance, Bowe, Alexandra, Beaudet, Arthur L., Benedetti, Marta, Berg, Jessica, Berman, Jeffrey, Berry, Leandra N., Bibb, Audrey L., Blaskey, Lisa, Brennan, Jonathan, Brewton, Christie M., Buckner, Randy, Bukshpun, Polina, Burko, Jordan, Cali, Phil, Cerban, Bettina, Chang, Yishin, Cheong, Maxwell, Chow, Vivian, Chu, Zili, Chudnovskaya, Darina, Cornew, Lauren, Dale, Corby, Dell, John, Dempsey, Allison G., Deschamps, Trent, Earl, Rachel, Edgar, James, Elgin, Jenna, Olson, Jennifer Endre, Evans, Yolanda L., Findlay, Anne, Fischbach, Gerald D., Fisk, Charlie, Fregeau, Brieana, Gaetz, Bill, Gaetz, Leah, Garza, Silvia, Gerdts, Jennifer, Glenn, Orit, Gobuty, Sarah E., Golembski, Rachel, Greenup, Marion, Heiken, Kory, Hines, Katherine, Hinkley, Leighton, Jackson, Frank I., Jenkins, III, Julian, Jeremy, Rita J., Johnson, Kelly, Kanne, Stephen M., Kessler, Sudha, Khan, Sarah Y., Ku, Matthew, Kuschner, Emily, Laakman, Anna L., Lam, Peter, Lasala, Morgan W., Lee, Hana, LeGuerre, Kevin, Levy, Susan, Cavanagh, Alyss Lian, Llorens, Ashlie V., Campe, Katherine Loftus, Luks, Tracy L., Marco, Elysa J., Martin, Stephen, Martin, Alastair J., Marzano, Gabriela, Masson, Christina, McGovern, Kathleen E., Keehn, Rebecca McNally, Miller, David T., Miller, Fiona K., Moss, Timothy J., Murray, Rebecca, Nagarajan, Srikantan S., Nowell, Kerri P., Owen, Julia, Paal, Andrea M., Packer, Alan, Page, Patricia Z., Paul, Brianna M., Peters, Alana, Peterson, Danica, Poduri, Annapurna, Pojman, Nicholas J., Porche, Ken, Proud, Monica B., Qasmieh, Saba, Ramocki, Melissa B., Reilly, Beau, Roberts, Timothy P. L., Shaw, Dennis, Sinha, Tuhin, Smith-Packard, Bethanny, Gallagher, Anne Snow, Swarnakar, Vivek, Thieu, Tony, Triantafallou, Christina, Vaughan, Roger, Visyak, Nicole, Wakahiro, Mari, Wallace, Arianne, Ward, Tracey, Wenegrat, Julia, Wolken, Anne, and on behalf of the Simons VIP consortium

Published
2016
Full Text
View/download PDF

45. Child and family experiences with inborn errors of metabolism: a qualitative interview study with representatives of patient groups

Author

Khangura, Sara D., Tingley, Kylie, Chakraborty, Pranesh, Coyle, Doug, Kronick, Jonathan B., Laberge, Anne-Marie, Little, Julian, Miller, Fiona A, Mitchell, John J., Prasad, Chitra, Siddiq, Shabnaz, Siriwardena, Komudi, Sparkes, Rebecca, Speechley, Kathy N., Stockler, Sylvia, Trakadis, Yannis, Wilson, Brenda J., Wilson, Kumanan, Potter, Beth K., and on behalf of the Canadian Inherited Metabolic Diseases Research Network (CIMDRN)

Published
2016
Full Text
View/download PDF

50. Governing population screening in an age of expansion: the case of newborn screening

Author

Miller, Fiona Alice, Cressman, Celine, and Hayeems, Robin

Subjects
Preventive medicine -- Research, Newborn infants -- Research -- Health aspects, Genomes -- Research, Genomics -- Research, Government, Health, Health care industry
Abstract

Newborn bloodspot screening is one of the most enduring and successful population screening initiatives. Yet technological innovation to permit simultaneous measurement of multiple biomarkers-and potentially, entire genomes-has spurred expansion and debate. Through a cross-jurisdictional comparison, we describe the varied roles and reach of screening-related governance structures in the United States, the United Kingdom, New Zealand and Canada, and highlight the distinct values and resources brought to bear by the genetics, public health and maternal-child health communities in adjudicating the benefits and burdens of expanded newborn screening. We call for the expansion of formal governance structures that are balanced in resources and perspective and mandated to ensure that the organization and delivery of newborn screening achieves optimal quality. KEY WORDS: Mass screening; public health administration; public health; preventive medicine; health services administration; infant; newborn Le depistage des taches de sang chez les nouveau-nes est une des initiatives de depistage de masse les plus durables et fructueuses. Pourtant, l'innovation technologique pour permettre la mesure simultanee de multiples marqueurs biologiques, et peut-etre des genomes entiers, a suscite une expansion et un debat. Nous decrivons au moyen d'une comparaison inter competence la variete de roles et la portee des structures de gouvernance du depistage aux Etats-Unis, au Royaume-Uni, en NouvelleZelande et au Canada, et soulignons les valeurs et ressources distinctes mises a profit par les communautes de la genetique, de la sante publique et de la sante maternelle et enfantine en jugeant les benefices et le fardeau du depistage elargi chez les nouveau-nes. Nous demandons une expansion des structures de gouvernance officielles qui soit equilibree en termes de ressources et de perspective et ayant le mandat de s'assurer que l'organisation et la prestation du depistage chez les nouveau-nes soient d'une qualite optimale. MOTS CLES : depistage de masse; administration de la sante publique; sante publique; medecine preventive; administration des services de sante; nourrisson; nouveau-ne Can J Public Health 2015;106(4):e244-e248 doi: 10.17269/CJPH.106.4897, Newborn bloodspot screening (NBS) programs have expanded markedly in recent years, motivated by technological developments that have increased the number of conditions detectable and an accompanying press of parent and [...]

Published
2015
Full Text
View/download PDF

Catalog

Books, media, physical & digital resources
See catalog results