1. Trauma in people with intellectual and developmental disabilities: reactions of parents and caregivers to research participation
- Author
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Vanessa M. Jacoby, Joseph R. Scotti, Rachel Freed, Elizabeth Schmidt, Sarah B Stevens, and Magdalene R Bracken
- Subjects
Adult ,Male ,Parents ,Biomedical Research ,Psychometrics ,Adolescent ,Developmental Disabilities ,Education ,Developmental psychology ,Life Change Events ,Young Adult ,Clinical work ,Informed consent ,Intellectual Disability ,Surveys and Questionnaires ,Developmental and Educational Psychology ,Humans ,Young adult ,Child ,Aged ,Community and Home Care ,Aged, 80 and over ,Research ethics ,Traumatic stress ,Middle Aged ,Psychiatry and Mental health ,Caregivers ,Scale (social sciences) ,Child, Preschool ,Pediatrics, Perinatology and Child Health ,Female ,Psychology ,Stress, Psychological ,Clinical psychology - Abstract
Generally, studies have revealed that only a minority of people are bothered by participation in research on traumatic stress. Severity of traumatic events and subsequent responses are typically unrelated to negative reactions. We included 386 family members and caregivers (respondents) of people with intellectual and developmental disabilities (focus people). Focus people (ages 4โ82) had a wide range of physical and intellectual disabilities, medical and behavioral problems, and exposure to potentially traumatic events. The measures of impact of research participation (based on J. I. Ruzek & D. F. Zatzick's [2000] Reactions to Research Participation Questionnaire [RRPQ]; S. Folkman and R. S. Lazarus's [1986, 1988] Emotional Responses to Participation Scale) showed good psychometric properties. Response to participation was highly skewed toward good understanding of informed consent, valuing participation, and minimal negative reactions. Number of traumatic events was related, positively, to only one RRPQ subscale: Valuing Participation. Implications for research and clinical work are discussed.
- Published
- 2012