8 results on '"pediatric palliative care"'
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2. The Importance of Collaboration of the Home Health Care Unit and Pediatric Palliative Care Unit in Children
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Nilgün Harputluoğlu, Tanju Çelik, Utku Karaarslan, and Sevil Uysal
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child ,home health ,chronic disease ,pediatric palliative care ,Medicine ,Pediatrics ,RJ1-570 ,Medical emergencies. Critical care. Intensive care. First aid ,RC86-88.9 - Abstract
Introduction:In recent years, advances in technology and medicine have led to an increase in the number of children with chronic diseases, while reducing the mortality rates of pediatric patients. In this study, it was aimed to evaluate the general characteristics and hospitalizations of pediatric patients receiving health care at home from our hospital.Methods:The study was carried out at the University of Health Sciences Turkey, İzmir Dr. Behçet Uz Children’s Hospital. The cases registered to the home health services unit between 2012 and 2018 were evaluated retrospectively. The demographic features, diseases, medical devices and technological dependence and hospitalization information of these patients were accessed from the hospital registration system. Data were recorded on SPSS program and evaluated statistically.Results:The average age of 124 patients enrolled in the home health services unit was 8.4 (0.6-17.8) years, and 56.5% were male. 71.8% of the patients were diagnosed with a primary neurological disease, especially cerebral palsy. Tracheostomy was present in 31.5% of the patients and 25% were receiving respiratory support by mechanical ventilation. Gastrotomy was present in 12.9% of the patients. While policlinic applications of those with primary neurological disease were significantly higher (p=0.04) compared to the patient group other than neurological disease, hospitalization rates were similar (p>0.05).Conclusion:The neurological group of patients, including pediatric patients with medical devices and technology dependence, is the main group among the patients who are monitored in the home health care unit. Specialized pediatric palliative care services need to be opened and developed in order to meet the medical, psychological and social needs of these patients and to reduce the workload and occupancy of special units such as intensive care.
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- 2021
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3. The Knowledge of Pediatricians About Pediatric Palliative Care
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Nilgün Harputluoğlu, Senem Alkan Özdemir, and Tanju Çelik
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child ,education ,pediatrician ,pediatric palliative care ,Medicine ,Pediatrics ,RJ1-570 ,Medical emergencies. Critical care. Intensive care. First aid ,RC86-88.9 - Abstract
Introduction:Pediatric palliative care is the highest level of care aiming to improve the quality of life of all children and families with life-limiting and threatening diseases. The knowledge and awareness of pediatricians about pediatric palliative care in our country is not known. The aim of this study was to evaluate the knowledge and awareness level of pediatricians in the field of pediatric palliative care.Methods:The study was planned as a prospective study following the approval of Local Ethics Committee of Dr. Behçet Uz Children’s Hospital. Totally 217 pediatricians answered the questionnaire completely. The data obtained from the survey questions were uploaded to the SPSS program and statistical analysis was performed.Results:Of the 217 pediatricians who participated in the study, 67.3% were women and 59.4% were specialist physicians. 68.7% of the physicians were employed in education and research hospitals and 7.4% in private institutions. It was found that pediatricians heard about pediatric palliative care (p=0.002), but they thought it was less necessary when its effect on quality of life, analgesia and sedation use was questioned.Conclusion:Pediatric palliative care is a new field in our country. It was found that most of the participants heard about pediatric palliative care because they worked in education and research hospital but they did not know the content. In the coming years, we believe that increasing the number of centers and training will increase the knowledge level of pediatricians.
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- 2020
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4. Çocuklarda Evde Sağlık Hizmetleri ile Çocuk Palyatif Bakım Ünitesinin Birlikte Çalışmasının Önemi.
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Harputluoğlu, Nilgün, Çelik, Tanju, Karaarslan, Utku, and Uysal, Sevil
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FAMILIES & psychology ,TRACHEOTOMY ,PALLIATIVE care nursing ,TERMINAL care ,ACADEMIC medical centers ,RESPIRATORY insufficiency ,HOME care services ,CHILDREN'S hospitals ,CHRONIC diseases ,PEDIATRICS ,INTERPROFESSIONAL relations ,HEALTH care teams ,HOSPITAL care ,DESCRIPTIVE statistics ,CHILD health services ,DATA analysis software ,GASTROSTOMY ,PALLIATIVE treatment ,CHILDREN - Abstract
Copyright of Journal of Pediatric Emergency & Intensive Care Medicine / Çocuk Acil ve Voğun Bakım Dergisi is the property of Galenos Yayinevi Tic. LTD. STI and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2021
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5. Çocuk Palyatif Bakım Hakkında Çocuk Hekimlerinin Bilgi Düzeyi.
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Harputluoğlu, Nilgün, Özdemir, Senem Alkan, and Çelik, Tanju
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PROFESSIONS ,ANALGESIA ,ANESTHESIA ,CHILDREN'S hospitals ,PEDIATRICS ,QUESTIONNAIRES ,QUALITY of life ,COGNITIVE testing ,DATA analysis software ,PALLIATIVE treatment ,LONGITUDINAL method - Abstract
Copyright of Journal of Pediatric Emergency & Intensive Care Medicine / Çocuk Acil ve Voğun Bakım Dergisi is the property of Galenos Yayinevi Tic. LTD. STI and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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- 2020
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6. Pediyatrik Palyatif Bakımda Etiyoloji: ID Tek Merkez Deneyimi.
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Harputluoğlu, Nilgün, Yılmaz, Ünsal, and Çelik, Tanju
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LUNG infections , *CHILDREN'S hospitals , *CONGENITAL disorders , *PALLIATIVE treatment , *DIAGNOSIS - Abstract
Objective: Pediatric palliative care is the highest level of care aimed at improving the quality of life of all children and families with life-limiting and threatening diseases. Characteristics of children needing pediatric palliative care in Turkey are unknown. The aim of this study was to investigate the characteristics and needs of children at pediatric palliative care. Method: Following the approval of local ethics committe, hospital records of children followed up at Pediatric Palliative Care Unit of Dr. Behçet Uz Children's Hospital between November 2018 and November 2019 were retrospectively reviewed. Results: A total of 97 patients with a mean age of 5.2 ±4.6 (0.3-17) years were included in the study, and 53.6% (n=48) of them were male. The most common diagnosis was cerebral palsy in 39.2% (n=38) and congenital metabolic diseases in 20.6% (n=20) of the patients. The most common indication for hospitalization was lung infection (61.9%) and the most frequently used drugs were antibiotics (70.1%). In the first 7 days of hospitalization, the need for mechanical ventilator and child intensive care was significantly different (p=0.020 and p=0.020, respectively). Conclusion: Children with a wide range of disorders, including cerebral palsy, metabolic disorders and muscle disorders, need pediatric palliative care. Lung infection is the most common reason for hospitalization, and patients who are hospitalized should be followed up more closely in the early period. [ABSTRACT FROM AUTHOR]
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- 2020
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7. Pediyatrik Palyatif Bakım.
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Harputluoğlu, Nilgün and Çelik, Tanju
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PALLIATIVE treatment , *MEDICAL personnel , *CHAPLAINS , *OCCUPATIONAL roles , *QUALITY of life , *FAMILIES - Abstract
Due to the increase in the number of individuals with life-threatening or limiting disease, palliative care has been accepted as a special area in medicine. Palliative care in children is different from adult patients, and requires a different approach. Pediatric palliative care is a top-level care system that focuses on improving the quality of life for the child and family, taking care of physical, psychological, social and spiritual needs. The purpose of this review is to define the properties of pediatric palliative care, to indicate the differences from adults and to discuss palliative care models including the role of medical professionals. [ABSTRACT FROM AUTHOR]
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- 2020
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8. Pediatrik Palyatif Bakımda İletişim
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Suat Tuncay, Emine Sarman, and Abdullah Sarman
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Palliative care ,Nursing ,business.industry ,Health Care Sciences and Services ,Palliative care,pediatric palliative care,child,nursing,communication ,Medicine ,Sağlık Bilimleri ve Hizmetleri ,business ,Palyatif bakım,pediatrik palyatif bakım,çocuk,hemşirelik,iletişim ,Pediatric palliative care - Abstract
Pediatric palliative care is child- and family-centered care provided for a child with a progressive, advanced, life-limiting disease for whom the primary goal is to optimize the quality of life. Pediatric palliative care (PPC) is a holistic interdisciplinary care approach with the goal of evaluating and minimizing suffering while promoting personal and spiritual growth. (PPC differs fundamentally from adult palliative care in that it involves parents in decision making and is attentive to the diverse developmental stages represented within service cohorts. Palliative care has always been a part of the care of children. It includes any intervention that focuses on relieving suffering, slowing the progression of disease, and improving quality of life at any stage of disease. Palliative care requires a total and active approach, with transparent, communicated, agreed provision of appropriate and proportionate care. Advance planning enables management of both reversible and chronic aspects of the condition, as well as utilizing parallel planning when end of life approaches. High quality communication and decision-making may influence acceptance of an PPC program’s involvement in care and the timing of its initiation reduce the number of burdensome interventions in the final months of life, or facilitate achievement of care goals. Investigating PPC communication approaches and outcomes can help improve the quality of care services for children and families. Nurses are key position to the integration of the family in this type of care. Nurses are also key players to improved communication among the health care team. This article will discuss pediatric palliative care as a part of family-centered care and the critical role nurses play., Pediatrik palyatif bakım (PPB), birincil amacın yaşam kalitesini optimize etmek olduğu, ilerleyici, ileri ve yaşamı sınırlayıcı bir hastalığı olan bir çocuğa sağlanan, çocuk ve aile merkezli bir bakımdır. PPB, kişisel ve ruhsal gelişimi teşvik ederken, acıyı değerlendirme ve en aza indirgeme amacı olan bütünsel bir disiplinlerarası bakım yaklaşımıdır. Palyatif bakım her zaman çocukların bakımının bir parçası olmuştur. Hastalığın herhangi bir aşamasında acı çekmeyi hafifletmeye, hastalığın ilerlemesini yavaşlatmaya ve yaşam kalitesini iyileştirmeye odaklanan herhangi bir müdahaleyi içerir. PPB, temel olarak yetişkinlere yönelik palyatif bakımdan farklıdır; çünkü ebeveynleri karar alma sürecine dahil eder ve hizmet kohortlarında temsil edilen çeşitli gelişim aşamalarına özen gösterir. Palyatif bakım, şeffaf, uygun ve orantılı bakımın uygulandığı aktif bir yaklaşımı gerektirir. Bakımın önceden planlaması, durumun hem geriye dönük hem de kronik yönlerinin yönetimini sağlarken, yaşamın sonunda yaklaştığında paralel planlama yapılmasını sağlar. Yüksek kaliteli iletişim ve karar alma, bir pediatrik palyatif bakım programının bakıma katılımını ve başlatılmasının zamanlamasını kabul etmeyi etkileyebilir, yaşamın son aylarında külfetli müdahalelerin sayısını azaltabilir veya bakım hedeflerine ulaşılmasını kolaylaştırabilir. PPB iletişim yaklaşımlarının ve sonuçlarının araştırılması, çocuklar ve aileler için bakım hizmetlerinin kalitesinin artırılmasına yardımcı olabilir. Hemşireler, ailenin bu tür bakım ile bütünleşmesinin anahtar pozisyondadır. Hemşireler ayrıca sağlık ekibi arasındaki iletişimi geliştirmek için kilit oyunculardır. Bu makalede, aile merkezli bakımın bir parçası olarak pediatrik palyatif bakımı ve hemşirelerin oynadığı kritik rolü tartışılacaktır.
- Published
- 2020
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